Re: Good Morning a

[Guest guest]

a:

I too have short term memory loss, Dr. Lawson says it is associated with RA

for not getting enough rest and FM. It does get frustrating, I write notes

but then forget to take them with me or forget where I put them.....I try to

rest each afternoon and it does help. Of course, I don't have small children

at home and it is easier for me.

Jan

[Guest guest]

a,

Have you ever heard of a child having FM. The more i read about FM from all

of you and seeing what (jason's mom) goes through, i see some of the

similiarities in . Sometime he complains that his muscles hurt in his

thighs and arms. Some times its almost impossible to give him his injection.

He also is very forgetful which i thought was normal kid stuff or that he was

just playing it up which he is good at. I mean sometimes he seems to use his

illness to get away with things which the dr says is normal for children with

a illness but iam wondering if its something else cause most of the time he

just seems different then when he is playing it up. I can tell when he isn't

telling me the truth. an example of him forgetting: he and his brother were

fighting over the big screen tv in the living room. had come out of his

room and turned the channel while his brother was watching a show. I said

jesse why don't you just watch tv in your room. he told me that he forgot

they had a tv in there. They just got it for christmas. Anyway he seemed

embrassed and try to cover it all up by saying jake always got to watch what

he wanted on the big screen.

When and go back pensacola i will ask him if its possible for a

child to have it but i wanted your imput too. seems so young to have FM

but then again he seems to young for arthritis too. I just want to know so

that i can do the best for him that i can.

shelly

[Guest guest]

Good afternoon Barb. Sorry your house got hit with the flu. I hope

everyone is feeling better. It may be a good idea to let your doctor look

at that lymph node. I hope you get your homeschooling caught up. I can

imagine it is a lot of work, but it is worth it.

I also have a bad memory, and it seems to be getting worse. Do you have

FM too? I don't think memory problems are associated with RA, but many

people with RA also have FM. Are you still seeing improvements from

Remicade? Are you on your 3rd treatment?

is doing ok thanks. I am blessed to have such a great guy.

Sometimes I wonder how he puts up with all my problems.

I hope you have a good day.

a

----- Original Message -----

From: Kendall <bbkendall@...>

< egroups>

Sent: Monday, January 22, 2001 8:42 PM

Subject: [ ] Good Morning a

> Good Morning a,

> just stopped in for a minute to say thanks again for all the info. We have

> had the flu here. Mines been weird, just muscle aches down the back side

of

> me and I feel a little off. oh ya, have a swollen, hard lymph node under

> chin on left. I have a busy week, need to catch my daughter up in school.

> Homeschooling's great, but it's alot of work when they are sick and we

have

> to play catch-me-up!!

>

> I hope you're feeling well. How's ? I think you two are together, I

get

> so confused sometimes, I wish I could blame in on fibro fog, but no such

> luck. I have noticed a large decrease in memory since having RA. Anyway,

> just wanted to say good morning!!

> Barb in CA

> -----Original Message-----

> From: a <aA@...>

> egroups <egroups>

> Date: Tuesday, January 23, 2001 8:29 AM

> Subject: [ ] Today's Topic: Is Caffeine Bad For Bones?

>

>

> >January 23, 2001

> >NUTRITION NEWS FOCUS

> > " Nutrition news is important. We help you understand it! "

> >

> >Today's Topic: Is Caffeine Bad For Bones?

> >

> >Some, but not all, studies have found caffeine increases excretion of

> >calcium in the urine. Most previous experiments have studied bones

> >of postmenopausal women. A new study looked at 177 young adult women

> >at a university in the U.S. and found average caffeine intake of 100

> >mg a day.

> >

> >Since many factors are known to influence bone density, these were

> >adjusted for statistically. After adjusting for height, body-mass

> >index, age at menarche, calcium intake, protein consumption, alcohol

> >intake, and tobacco use, caffeine did not predict bone mineral

> >density of the hip or spine. No source of caffeine (coffee, tea,

> >cola) was associated with lower bone density. The article appeared

> >in the November 2000 issue of Preventive Medicine.

> >

> >HERE'S WHAT YOU NEED TO KNOW: There seemed to be a

> >decrease of density of the spine with high caffeine intake only when

> >combined with low calcium intake. However, there was no effect on

> >the hip. Some studies have found a detrimental effect of high

> >caffeine intake on bone density in older women, but the majority of

> >studies have not. Remember that this type of study is limited in its

> >ability to show cause and effect.

> >

> >

> >

[Guest guest]

a: Thanks for understanding. Had a relatively good night last , slept

fairly well, unfortunately my poodle had his days and nights mixed up and

wanted to play....just like a child. I see the dr today again, hopefully, he

will give me some marvelous insight and solve it all...ha,ha.... anyway, hope

you have a good day, will keep you all in my thoughts.

jan

[Guest guest]

Dear all in the Group: Shirley from Wyoming still suffering severely, went

back to Dr. today, still have high white blood count of over 14,000 and

normal is about 700, they do not know what to do with me the rheumatologist

can't see me until Fri. so went to reg. Dr. today, evry joint in my

rheumatoid body hurts severely, my husband has to help me up and down and I

cry all the time, don't know what that is from, maybe depression and effects

of the pain medications. The rheumatologist wnats to start me on remmicade

or bump the prednisone up over 60 and I amafraid of that, please anyone let

me know how you feel about remmicade, as I am at my whits end, can't function

and can't stnad the pain any longer, they talk about morning stiffness, well

it is not stiffness, IT IS PAIN< , and morning, huh, it lasts all day and

night, even with the pain patch and pain pills and now they gave me

antiinflamitory pills today, it only just takes the edge off, and I sleep in

15 to 20 minute intervals. Please anyone with any news on bumping

prednisone up high or getting on remmicade let me know what you think and is

the remmicade working? Love and prayers to all of you

PS: I couldn't even go to physical therapy today (had rotator cuff surg),

had to cancell my therapy as I am in just too much pain to get on the CATC

bus and go to therapy, plus they don't just work one side of my body for the

surgical shoulder I have to uto both sides and I can't even raise my other

arm so thought it would v be best to rest today.

Love and Prayers to all ov of you and please pray for me, this has been a God

send Group for me to belong to, it has helped me so much.

Shirley from Wyoming

[Guest guest]

Jan,

Probably the lack of sleep from the pain of RA causes FM. That may be why

so many of us with arthritis wind up with FM. The constant pain increases

the stress level, which also is probably a contributing fact. I hope as

pain meds improve and doctors aren't so reluctant to treat pain, less people

will develop FM. Whenever I don't sleep, I have a much higher pain level.

It is hard to concentrate on anything when in pain.

a

----- Original Message -----

From: <burnettaljanb@...>

< egroups>

Sent: Tuesday, January 23, 2001 12:22 PM

Subject: Re: [ ] Good Morning a

> a:

>

> I too have short term memory loss, Dr. Lawson says it is associated with

RA

> for not getting enough rest and FM. It does get frustrating, I write notes

> but then forget to take them with me or forget where I put them.....I try

to

> rest each afternoon and it does help. Of course, I don't have small

children

> at home and it is easier for me.

>

> Jan

>

[Guest guest]

Shirley: So very sorry to hear of your flare-up. I have, in the past had to

bump up Prednisone to 65 mg per day. I was not pleased with it but I guess it

eventually did help. At times like this, we need to trust our drs. and

believe they have our best interest in heart. As for the pain, I wish with

all my heart someone could wave a magic wand and make it go away. I am going

through a flare-up myself and the Ultram 50.. 2 q hrs, didn't help, Vioxx,

tears up my stomach and doesn't really help that much. I'm taking Lortab now,

cautiously, as I have a hx of substance abuse in the past. I try to alter

heat and cold packs and just rest as much as I can. I am scheduled to start

Remicade once I work out the fees with my budget,etc so can offer no advice

regarding that. I do know that if it wasn't for the Lord giving me the daily

strength to deal with the pain I don't know what I would do, I cry too from

the pain, get depressed, that's normal to a degree. Keep talking about how

you feel to those of us who understand. I'm sending you Psalm 68:19, to

comfort you. I will pray for you and keep you in my thoughts. Remember, you

are not alone...

Jan

[Guest guest]

ouch!!!!

i hope your doc figures this out soon...

rhoda

--- Edmis3@... wrote:

> Dear all in the Group: Shirley from Wyoming still

> suffering severely, went

> back to Dr. today, still have high white blood count

> of over 14,000 and

> normal is about 700, they do not know what to do

> with me the rheumatologist

> can't see me until Fri. so went to reg. Dr. today,

> evry joint in my

> rheumatoid body hurts severely, my husband has to

> help me up and down and I

> cry all the time, don't know what that is from,

> maybe depression and effects

> of the pain medications. The rheumatologist wnats

> to start me on remmicade

> or bump the prednisone up over 60 and I amafraid of

> that, please anyone let

> me know how you feel about remmicade, as I am at my

> whits end, can't function

> and can't stnad the pain any longer, they talk

> about morning stiffness, well

> it is not stiffness, IT IS PAIN< , and morning,

> huh, it lasts all day and

> night, even with the pain patch and pain pills and

> now they gave me

> antiinflamitory pills today, it only just takes the

> edge off, and I sleep in

> 15 to 20 minute intervals. Please anyone with any

> news on bumping

> prednisone up high or getting on remmicade let me

> know what you think and is

> the remmicade working? Love and prayers to all of

> you

> PS: I couldn't even go to physical therapy today

> (had rotator cuff surg),

> had to cancell my therapy as I am in just too much

> pain to get on the CATC

> bus and go to therapy, plus they don't just work one

> side of my body for the

> surgical shoulder I have to uto both sides and I

> can't even raise my other

> arm so thought it would v be best to rest today.

> Love and Prayers to all ov of you and please pray

> for me, this has been a God

> send Group for me to belong to, it has helped me so

> much.

> Shirley from Wyoming

>

>

> [Non-text portions of this message have been

> removed]

>

>

> Chat room: chat/

> Web pages for our group:

> http://rheumatoid.arthritis.freehosting.net/

> http://www.rasupport.webprovider.com/

> Change subscription options:

>

>

=====

contact: ICQ 14328968 , plantjunkie

page http://www.angelfire.com/on3/rhodasbusinesspage

_______________________________________________________

[Guest guest]

Hi Shirley,

I tried remicade and it did help. I didn't notice anything with the first

infusion. I had trouble sitting for the three hours. The second infusion

I could sit with no problem and when I went to leave I could move my hand

better. Rainy Sue has had a lot of luck with it. I would love to take it

again but they are not going to let me. My immune system is in bad shape,

so I can't take it. I would tell you though that it is well worth you

trying it. It was nice after the second time, I really could move around

better. Hope this helps.

Me Mom

----------

> From: Edmis3@...

> egroups

> Subject: Re: [ ] Good Morning a

> Date: Wednesday, January 24, 2001 4:51 PM

>

> Dear all in the Group: Shirley from Wyoming still suffering severely,

went

> back to Dr. today, still have high white blood count of over 14,000 and

> normal is about 700, they do not know what to do with me the

rheumatologist

> can't see me until Fri. so went to reg. Dr. today, evry joint in my

> rheumatoid body hurts severely, my husband has to help me up and down and

I

> cry all the time, don't know what that is from, maybe depression and

effects

> of the pain medications. The rheumatologist wnats to start me on

remmicade

> or bump the prednisone up over 60 and I amafraid of that, please anyone

let

> me know how you feel about remmicade, as I am at my whits end, can't

function

> and can't stnad the pain any longer, they talk about morning stiffness,

well

> it is not stiffness, IT IS PAIN< , and morning, huh, it lasts all day

and

> night, even with the pain patch and pain pills and now they gave me

> antiinflamitory pills today, it only just takes the edge off, and I sleep

in

> 15 to 20 minute intervals. Please anyone with any news on bumping

> prednisone up high or getting on remmicade let me know what you think and

is

> the remmicade working? Love and prayers to all of you

> PS: I couldn't even go to physical therapy today (had rotator cuff

surg),

> had to cancell my therapy as I am in just too much pain to get on the

CATC

> bus and go to therapy, plus they don't just work one side of my body for

the

> surgical shoulder I have to uto both sides and I can't even raise my

other

> arm so thought it would v be best to rest today.

> Love and Prayers to all ov of you and please pray for me, this has been a

God

> send Group for me to belong to, it has helped me so much.

> Shirley from Wyoming

>

>

>