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Re: Looking for more new friends

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I am new to this list and I too would like to make new friends. I am a dwarf

but I do not know what type of dwarf I am. I am a 29 year old female and I

live in Alabama. I know you all may think it is weird for me not to know

what type of dwarf I am but I just recently found out I was a dwarf.........I

was always told by my Mother that I was just " little "

" Keeblertam@...

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My name is Kathy and Iam the mother of a 6 year old with Ellis Von Crevald

Syndrome. Both my husband and I are of average height. My daughter has only

seen a dwarf once in her life....Dr. Ain. We are looking for parents in

similiar situations.

Thank you,

Kathy

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In a message dated 8/6/99 4:17:02 PM Eastern Daylight Time,

Keeblertam@... writes:

<< I am a dwarf

but I do not know what type of dwarf I am. I am a 29 year old female and I

live in Alabama. I know you all may think it is weird for me not to know

what type of dwarf I am but I just recently found out I was a

dwarf.........I

was always told by my Mother that I was just " little " >>

Keebler:

That is interesting cause I never met a person who had dwarfism who never

knew that they had dwarfism.

Did you look into finding out more about dwarfism such as from the web page

of LPA? Not saying there is anything wrong, but its helpful since you never

knew that you had dwarfism to check out a specialist in your area that

specializes with people of short stature?

Helen

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Kathy

In our chapter of Little People of America we also have a little boy with EVC

and his parents are of average height. Where to you live? Maybe I can have

her contact you. I will keep your email address just in case.

Kim.

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I live in land. I did speak to one man who had a son with EVC, but I lost

contact. I have never seen another child with EVC. I dont think my daughter

knows that she is a little person. I would like to make contact with other

parents who could possibly help me with some of the questions that I have.

Thanks

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Dear Listserv friends,

I just wanted to assure you all that from listening to Kris on the phone when

she called here this morning, that she does sounds genuine and sincere in her

search for friendship. I also understand that their is only so much this list

can do for her, but if some of you just want to drop her a note and assure her

that she is not in this boat alone, then I think that would help her out a great

deal. I suggested the Connections newsletter to her, which I think will

be a great avenue to what she is seeking. Kris may I also suggest to give some

of these other people time to reply, because not everyone has time to catch up

on there email everyday. Just be patient in other words and stay in touch with

those you've already formed a bond with. And just remember you are not out

there alone. :)

Ann

Tom & Kris wrote:

> From: " Tom & Kris " <ktbruno@...>

>

> Hello all!

> I am writing another letter trying to look for more friends.I thanked

alot of people who responded and i met some but i would like to meet more for

friendship or mabye more.I am a single mother of a 2 year old and we both have

hypochondroplasia.I have a few friends around me,but i still get the feeling of

trying to a few good friends.I know people feel the same,but sometimes it gets

lonley without someone there.I know alot of been throught it as well.

> I am not writing this cause i feel sorry for myself i am writing this

because i want to meet more people to

> become friendly with.I am a nice person and i like to talk and a good

listner.Thanks for reading!!!Take care all!!!

>

>

e Brunell---

>

> [Attachments have been removed from this message]

>

> ---------------------------

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Where do you live in Alabama? We live in TN. I am a mother of a two year

old achondroplastic dwarf.

Keeblertam@... on 08/06/99 04:15:37 PM

Please respond to dwarfismonelist

dwarfismonelist

cc: (bcc: Hookey/M & M)

Subject: Re: Looking for more new friends

From: Keeblertam@...

I am new to this list and I too would like to make new friends. I am a

dwarf

but I do not know what type of dwarf I am. I am a 29 year old female and I

live in Alabama. I know you all may think it is weird for me not to know

what type of dwarf I am but I just recently found out I was a

dwarf.........I

was always told by my Mother that I was just " little "

" Keeblertam@...

---------------------------

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Please see LPA Online for information on support for families affected by

Ellis-van Creveld syndrome:

http://www.lpaonline.org/resources_links.html

Dan Kennedy

Internet services coordinator

Little People of America, Inc.

http://www.lpaonline.org

On Fri, 6 Aug 1999 K7838@... wrote:

> From: K7838@...

>

> My name is Kathy and Iam the mother of a 6 year old with Ellis Von Crevald

> Syndrome. Both my husband and I are of average height. My daughter has only

> seen a dwarf once in her life....Dr. Ain. We are looking for parents in

> similiar situations.

> Thank you,

> Kathy

>

> ---------------------------

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" A friend in need is a friend in deed "

I know that may sound cliché, but ever so true. Boy, I opened a whole

new can of worms with this friend search thing. But please don't give

me any credit for this, because I am benefiting from this too. Keep it

up ok and don't just let it be a passing phase, because you may mean

more to someone out there than you will ever know!

Ann :))

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Ann u always know what to say. Thank you for the Mp3. I loved it. As

usual your kind heart has given me a smile. So when are we going to get

together again and shop shop till we drop>??? LOl Ha ha ha ha

Shoe time.. LOL Thanks again. your friend always Diane

----------

> From: Ann <macroz22@...>

> dwarfismonelist

> Subject: Re: Looking for more new friends

> Date: Friday, August 06, 1999 2:46 PM

>

> From: Ann <macroz22@...>

>

> " A friend in need is a friend in deed "

>

> I know that may sound cliché, but ever so true. Boy, I opened a whole

> new can of worms with this friend search thing. But please don't give

> me any credit for this, because I am benefiting from this too. Keep it

> up ok and don't just let it be a passing phase, because you may mean

> more to someone out there than you will ever know!

>

> Ann :))

>

>

> ---------------------------

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I live in San Clemente, CA. Have her contact me, anytime---

WTLJmom@... wrote:

> From: WTLJmom@...

>

> Kathy

> In our chapter of Little People of America we also

> have a little boy with EVC

> and his parents are of average height. Where to you

> live? Maybe I can have

> her contact you. I will keep your email address

> just in case.

> Kim.

>

> ---------------------------

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Hey -- yes where DO you live in Alabma. We live in Huntsville. I am a

Pseudo and we have 2 daughters who are also Pseudos. We also have a 14

month old daughter and we're not sure yet if she will be a dwarf.

Reba

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all to common not wierd at all.

----------

> From: Keeblertam@...

> dwarfismonelist

> Subject: Re: Looking for more new friends

> Date: Friday, August 06, 1999 3:15 PM

>

> From: Keeblertam@...

>

> I am new to this list and I too would like to make new friends. I am a

dwarf

> but I do not know what type of dwarf I am. I am a 29 year old female and

I

> live in Alabama. I know you all may think it is weird for me not to know

> what type of dwarf I am but I just recently found out I was a

dwarf.........I

> was always told by my Mother that I was just " little "

>

> " Keeblertam@...

>

> ---------------------------

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Hello there,

So what is your name? I am also a female dwarf in my late twenties. I'm 28

and 3' 7 " tall. I live in Manchester England with my husband, . I am

from Indiana, but moved out here about 3 years ago. My profession is

Architecture and I also love to sing.

So what do you do and where are you from?

It might take me a bit of time to get back to you, but I like meeting new

people.

Take care,

Jude

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Hi, I am a married Dad with a new 7 month old daughter that has

hypochondroplasia. Would love to be friends and keep in touch through email.

Sincerely. Karl Pierick

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God bless you. My name is Marilyn. I am 38 yrs old and Achondroplasia too. I

live in NC. Feel free to write. We are all in this together. We also have a

chat room which is fun too.

Marilyn

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Hi Kathy,

You probally wont believe this but I live in Aberdeen! My son is 6 months

old and has achondroplasia. You will have to forgive me though, I dont

recall if you are lp or a parent or family member. I would love to

correspond with you.

Looking forward to hearing from you,

Livermore

(Evan's Mom)

Re: Looking for more new friends

>From: K7838@...

>

>I want to thank everyone for their responses. I live in Havre de Grace,

>land. It's about 20-30 min. from Baltimore.

>Kathy

>

>---------------------------

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Dear Kathy,

Hello! My name is Cheryl and I am the mother of a 19 month old who has

SED....We have met other parents but they live far away (Texas, Calif.)...we

live in burg, PA....Like you, my husband and I are of average height

and is our first.......Quite a learning experience!!! We live very

close to Hershey so if you are ever doing a " fun " day....keep us in

mind...we'd love to meet you and you daughter.....(I am not quite sure what

EVC involves......) Best!

Cheryl L. Giles-Rudawski

Curriculum Specialist

Capital Area Intermediate Unit #15

cgiles@...

Re: Looking for more new friends

From: K7838@...

My name is Kathy and Iam the mother of a 6 year old with Ellis Von Crevald

Syndrome. Both my husband and I are of average height. My daughter has only

seen a dwarf once in her life....Dr. Ain. We are looking for parents in

similiar situations.

Thank you,

Kathy

---------------------------

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To all the southerners who have come out of the woodwork....

My fiancee is originally from Muscle Shoals Alabama, less than 20 minutes

away from Killen where one of his best friends live. During his entire life

he never met any other LP's in Alabama. Now we're seeing people from

Huntsville, Killen, and Jasper ,TN on this list, it's great. We now live in

New England but we trek down there as often as we can to visit our family and

friends. Maybe someday we should try to all get together, I know that you

can never have too many friends and would love to meet other LP's from

his " hometown " . Take care!

~Rose

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