Re: RA-HEREDITARY

[Guest guest]

I've had RA for the last 21 years. ( that's when it was diagnosed, anyway)

but it was hereditary on my mothers side and she had been diagnosed since her

30's. so I was about 10-15 years earlier than her. When I had been

diagnosed with it, her main concern was that i not go and sit down some where

that i keep moving. she had a relative that was bedridden because she had

been told to go to bed with hers, and that is where she died and so she

didn't want me to do that. This women is 84 yrs young and still going

strong. At 65 she and grandpa went white water rafting, at 80 she took a

turn sledding with her grandchildren and great-grandchild, etc. anyway , It

looks as though i get to carry on the legacy of the RA, i sure hope that I

get to carry on the rest of it and am never too old to play with my

grandchildren and great-grandchildren.

[Guest guest]

Hi fibrofog,

Your mom was smart to keep moving. As much as it hurts, if we stop using

it, we loose it. Exercise is so important, yet so painful. I do range of

motion exercises to music and try to concentrate on the music instead of the

pain. It helps and it is fun. I was told that I'd be in a wheelchair

before I was 30, but I was determined to prove them wrong and I did.

Your mom sounds like she is a very determined lady! I love to hear how

active she is.

a

----- Original Message -----

From: <FIBROFOG247@...>

< egroups>

Sent: Thursday, January 25, 2001 9:35 PM

Subject: Re: [ ] RA-HEREDITARY

> I've had RA for the last 21 years. ( that's when it was diagnosed,

anyway)

> but it was hereditary on my mothers side and she had been diagnosed since

her

> 30's. so I was about 10-15 years earlier than her. When I had been

> diagnosed with it, her main concern was that i not go and sit down some

where

> that i keep moving. she had a relative that was bedridden because she had

> been told to go to bed with hers, and that is where she died and so she

> didn't want me to do that. This women is 84 yrs young and still going

> strong. At 65 she and grandpa went white water rafting, at 80 she took a

> turn sledding with her grandchildren and great-grandchild, etc. anyway ,

It

> looks as though i get to carry on the legacy of the RA, i sure hope that

I

> get to carry on the rest of it and am never too old to play with my

> grandchildren and great-grandchildren.

[Guest guest]

a, Get this, it wasn't my mom. it's my 84 yr young grandmother. and i

think she's the greatest. This woman has the traditional crippled hands.

And the woman still bakes Christmas cookies, she has written letters,

crocheted, cake decorating, and numerous other things, as well as has a

garden and then puts up food at the end of the season (CANNING). At 84 she

has gotten pretty limited but this year for christmas I got apple butter,

hard tack candy and her famous cut-out christmas cookies. I rationalized a

long time ago, that she was able to do this stuff because she has never had a

job outside the home. at the time i was working 40 hour weeks. and was

exhausted. plus i also was put on disability for 2 yrs. but i still never had

the energy that she does.. In fact I'm working now 40 hr weeks plus OT if i

can get it and I still don't think I could match her. And I'm 1/2 her age.

Thank for writing. I'll look for your next post.

JOYCE