Guest guest Posted January 25, 2001 Report Share Posted January 25, 2001 Re cost of remicade my rheumatologist told me that it is $3,000.00 per month, but I am sure medicare doesn't pay that much for it, guaranteed, maybe 2,000.00 maybe less. I also am curious as I am probably going to go on it tomorrow. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2001 Report Share Posted January 26, 2001 Hi everyone. I had three infusions back in Oct and Nov. My insurance still hasn't been billed. So I have no idea how much I was charged. I'm kinda hoping they forget about me. Tery - FL egroups wrote: > > Hi Jan, > > When I started the Remicade last March my RD told me the cost was about > $2000. When I looked at my insurance invoice it doesn't appear that they are > paying that much. I will have to find it and check it out again. Let ya know. > > ~Rainy Sue > > > > Hi there: Medicare will pay their allowed charge for Remicade, the problem > > is > > I;m having a problem finding out just exactly what that amount is. Also, I > > did contact the drug company which makes Remicade and they do have a > > patient > > assistance program so I am going to call that number in the a.m. and find > > out > > the details. I'll pass this on once I hear about it. The hospital here > > said > > that one dose was $4,000 can't hardly believe that, almost had a > > stroke....ha, ha....thanks for your input, keep in touch, this group is a > > life saver to me. > > > > Jan > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2001 Report Share Posted January 27, 2001 Below is what my Medicare summary says: The amounts are the charged amounts. I don't have to pay anything. All wording is exact as to how it appears on my invoice. In the notes section it says: This service is paid at 100% of the Medicare approved amount. Oh, for newbies, every time you go in for Remicade, blood will be drawn first. ~Rainy Sue Infusion therapy other than che - $341.34 Med-Sur Supplies - $51.00 Drawing blood for specimen - $28.27 Comprehen metabolic pan - $23.50 Bilirubin, direct - $10.68 Automated hemogram - $51.60 -------------------------------------- TOTAL: $506.39 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2001 Report Share Posted January 27, 2001 Hi Rainy, I was reading your note. I have never seen a bill for the Remicade I received, funny I get the breakdowns for everything else. I was told by the nurses when I went that it cost close to $5,000 for each infusion. I don't know if this is true on not, like I said I have never seen the breakdown. It is strange how the prices are so different. How are you feeling, hope that terrible cold you had is better? Me Mom ---------- > From: Rysu19@... > > Subject: Re: [ ] Remicade Cost > Date: Saturday, January 27, 2001 7:06 AM > > Below is what my Medicare summary says: The amounts are the charged amounts. > I don't have to pay anything. All wording is exact as to how it appears on my > invoice. In the notes section it says: This service is paid at 100% of the > Medicare approved amount. Oh, for newbies, every time you go in for Remicade, > blood will be drawn first. ~Rainy Sue > > Infusion therapy other than che - $341.34 > Med-Sur Supplies - $51.00 > Drawing blood for specimen - $28.27 > Comprehen metabolic pan - $23.50 > Bilirubin, direct - $10.68 > Automated hemogram - $51.60 > -------------------------------------- > TOTAL: $506.39 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2001 Report Share Posted January 28, 2001 Hi Me Mom, I am doing much better. My Remicade is on Tuesday. The real question is HOW ARE YOU?? I wish this horrible pain in the butt would leave you already! This is insane! Just keep hanging on and know that I, and everyone else, are here for you! Pamper yourself every minute of every day! You deserve it! As for the cost of Remicade, when I asked my nurse how much it was, even though I knew the answer per my RD-I was checking to see if they all had the same info, she also told me $2000 or something like that. But I don't think they know what Medicare charges. So she doesn't know what mine is costing. She just assumes, I think, that my insurance is paying what they are charging. I don't know how all that works, or what the docs and nurses know. Does anyone here know? I guess the price is different depending on where you get it. Same as buying milk, you'll go to the store that charges the lower price. But we don't have much of a choice with the Remicade. Unless we move! =) As for your not seeing a bill, yet, it may still come with a break down. Mine comes to me months after a visit, usually. ~Rainy Sue > Hi Rainy, > I was reading your note. I have never seen a bill for the Remicade I > received, funny I get the breakdowns for everything else. I was told by > the nurses when I went that it cost close to $5,000 for each infusion. I > don't know if this is true on not, like I said I have never seen the > breakdown. It is strange how the prices are so different. > How are you feeling, hope that terrible cold you had is better? > Me Mom > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2001 Report Share Posted January 29, 2001 Hi Rainy, I wish it would go away too, but I don't think it will. I have to get the stent removed soon, I am just holding off. I don't do too well after the ERCP'S. Plus once the stent is out I am back to square one. I was feeling better before the last scope, since then not so good. I envy you with the Remicade. I know it was working for me, but unless I go to anothe Rheumy my is not going to allow it. I don't want to change doctors, I like this guy. I was hoping if we got the stomach thing fixed, he would change his mind. He did mention the Arava, but I don't know if he going to do that. Did I read somewhere you can loss your hair? I see it can cause weight loss, I don't think I can get any thinner. Are all your posts going through, I don't think mine are but I am not sure. I'm glad you are feeling better, I was worried about you. I knew you had a serious bug. I think I will call my insurance company and ask them what the charge for the Remicade was, I don't think they will send me papers. The last infusion I had was in September, I will let you know if they tell me. Have a good day, Me Mom ---------- > From: Rysu19@... > > Subject: Re: [ ] Remicade Cost > Date: Sunday, January 28, 2001 2:46 PM > > Hi Me Mom, > > I am doing much better. My Remicade is on Tuesday. The real question is HOW > ARE YOU?? I wish this horrible pain in the butt would leave you already! This > is insane! Just keep hanging on and know that I, and everyone else, are here > for you! Pamper yourself every minute of every day! You deserve it! > > As for the cost of Remicade, when I asked my nurse how much it was, even > though I knew the answer per my RD-I was checking to see if they all had the > same info, she also told me $2000 or something like that. But I don't think > they know what Medicare charges. So she doesn't know what mine is costing. > She just assumes, I think, that my insurance is paying what they are > charging. I don't know how all that works, or what the docs and nurses know. > Does anyone here know? > > I guess the price is different depending on where you get it. Same as buying > milk, you'll go to the store that charges the lower price. But we don't have > much of a choice with the Remicade. Unless we move! =) > > As for your not seeing a bill, yet, it may still come with a break down. Mine > comes to me months after a visit, usually. > > ~Rainy Sue > > > > Hi Rainy, > > I was reading your note. I have never seen a bill for the Remicade I > > received, funny I get the breakdowns for everything else. I was told by > > the nurses when I went that it cost close to $5,000 for each infusion. I > > don't know if this is true on not, like I said I have never seen the > > breakdown. It is strange how the prices are so different. > > How are you feeling, hope that terrible cold you had is better? > > Me Mom > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2001 Report Share Posted January 29, 2001 Hello Me Mom ! How many docs have you seen now? As far as second opinions? I'm sorry, so much has been going on I can't remember everything that everyone says, though I do read EVERY message posted. Are you still continuing to lose weight? I hope not! A side effect of the Arava is some hair loss, but I have a full head! I guess it depends on the person. I know some people have lost lots of hair on Arava. But I have done great on it. I don't know for sure about the Arava causing me to lose the weight I did when I first went on it. I think I had some weird virus. Once I was well, I didn't lose anymore weight. Let me know what you hear about the Remicade cost. I am curious. Feel better SOON! Darn it! Love, Rainy Sue > Hi Rainy, > I wish it would go away too, but I don't think it will. I have to get > the > stent removed soon, I am just holding off. I don't do too well after the > ERCP'S. Plus once the stent is out I am back to square one. I was feeling > better before the last scope, since then not so good. > I envy you with the Remicade. I know it was working for me, but unless > I > go to anothe Rheumy my is not going to allow it. I don't want to change > doctors, I like this guy. I was hoping if we got the stomach thing fixed, > he would change his mind. > He did mention the Arava, but I don't know if he going to do that. Did > I > read somewhere you can loss your hair? I see it can cause weight loss, I > don't think I can get any thinner. Are all your posts going through, I > don't think mine are but I am not sure. > I'm glad you are feeling better, I was worried about you. I knew you > had > a serious bug. I think I will call my insurance company and ask them what > the charge for the > Remicade was, I don't think they will send me papers. The last infusion I > had was in September, I will let you know if they tell me. > Have a good day, > Me Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Hi Rainy, My doctors feel that the trip to the U. of P. was a second opinion. I don't because I didn't pick the doctor. He was very nice and told me, he had heard a lot about my condition. He also called my GI doctor the day of the test, even before I got home. Which I thought was great. They say the U. of P. is as good as it gets but I want to go see this other doctor. She has come highly recommended by my sons father-in-law who knows her. My primary ask me if I was going to go from one doctor to another until I found the one that would tell me what I wanted to hear. That is not the case, but I don't want the surgery. Taking 10 inches of the large intestines and some of the pancreatic organ, is scary. I don't feel great and feel better when I don't eat. The bile duct must have something to do with digestion. The primary said the whole area is sensitive and has to do with digestion. I have to laugh all these years I have watched my diet. I didn't eat fried foods, dairy, cakes or candy. I really tried hard to eat well and teach my kids. My sister and brothers eat anything and they are fine. My sister puts cheese and gravy on all her food. So I have to wonder who is the fool. They also don't have the stress I have lived with for a long time now. They tell me none of this has to do with stress, I don't agree all together. Now I am getting to be a pain. I will call and let you know what the insurance company says, I am anxious to know. I will try to do it tomorrow but I have a morning class and evening class plus I have to watch my little granddaughter. She is sick and my daughter-in-law took today off, so she needs to get back to work. Hope you have a good night, Me Mom ---------- > From: Rysu19@... > > Subject: Re: [ ] Remicade Cost > Date: Monday, January 29, 2001 6:54 PM > > Hello Me Mom ! > > How many docs have you seen now? As far as second opinions? I'm sorry, so > much has been going on I can't remember everything that everyone says, though > I do read EVERY message posted. Are you still continuing to lose weight? I > hope not! > > A side effect of the Arava is some hair loss, but I have a full head! I guess > it depends on the person. I know some people have lost lots of hair on Arava. > But I have done great on it. I don't know for sure about the Arava causing me > to lose the weight I did when I first went on it. I think I had some weird > virus. Once I was well, I didn't lose anymore weight. > > Let me know what you hear about the Remicade cost. I am curious. > > Feel better SOON! Darn it! > Love, Rainy Sue > > > > Hi Rainy, > > I wish it would go away too, but I don't think it will. I have to get > > the > > stent removed soon, I am just holding off. I don't do too well after the > > ERCP'S. Plus once the stent is out I am back to square one. I was feeling > > better before the last scope, since then not so good. > > I envy you with the Remicade. I know it was working for me, but unless > > I > > go to anothe Rheumy my is not going to allow it. I don't want to change > > doctors, I like this guy. I was hoping if we got the stomach thing fixed, > > he would change his mind. > > He did mention the Arava, but I don't know if he going to do that. Did > > I > > read somewhere you can loss your hair? I see it can cause weight loss, I > > don't think I can get any thinner. Are all your posts going through, I > > don't think mine are but I am not sure. > > I'm glad you are feeling better, I was worried about you. I knew you > > had > > a serious bug. I think I will call my insurance company and ask them what > > the charge for the > > Remicade was, I don't think they will send me papers. The last infusion I > > had was in September, I will let you know if they tell me. > > Have a good day, > > Me Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2001 Report Share Posted February 7, 2001 Hi Rainy Sue, You know I thought that and ask the man. He told me no that it was the cost per infusion. I ask him twice, he said it cost over $40,000.00 so far. I am wondering if the cost is higher because I have the insurance with personal choice. My mom told me, years ago her friend who had insurance had gall bladder surgery. My mother some months later had the same surgery but she didn't have any insurance and her surgery was a 1/3 of what her friends was. They used the same doctor same hospital. This was a long time ago and I don't know if they can do this now or not. I have never gotten a breakdown on this and I always do. I ask the man why I had no gotten any break down, and he didn't know. I don't know what to think. He did tell me it is an expensive drug. Me Mom ---------- > From: Rysu19@... > > Subject: [ ] Remicade Cost > Date: Tuesday, February 06, 2001 4:43 PM > > OK. Got a new Medicare Summary of my last Remicade appointment, December 12, > 2000. That other one I sent was way off! > > The Infliximab injection - $2,539.58 > > ~RainySu > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2001 Report Share Posted February 7, 2001 Hi RAiny Sue, I saw the Rheumy today, I told him about the cost of the remicade. That is the highest he has heard. He told me it is getting so expensive that, that is one of reason he decided to do it at his office. He is going to a conference next week, with the Dr. who brought about remicade. He is taking my file with him to talk to him about my case. He wants to know this man's feelings on all that has happened to me in the recent months. He told me we can try the remicade again, as long as there are no infections anywhere in my body. He wants both my son and I to understand I will be a guinea pig. There is only one way to find out if the remicade played any part in all of this. Provided this other doctor thinks it is okay. I told him that your doctor had told you it could mess up you pancreatis. I don't see him again for six weeks, so there is time. He told me, he would never have the surgery they are talking about and that is what the primary told me. They both told me to go with the stents being put in and taken out. Anyway I wanted to tell you not to count me out yet with remicade. Me Mom ---------- > From: Rysu19@... > > Subject: [ ] Remicade Cost > Date: Tuesday, February 06, 2001 4:43 PM > > OK. Got a new Medicare Summary of my last Remicade appointment, December 12, > 2000. That other one I sent was way off! > > The Infliximab injection - $2,539.58 > > ~RainySu > > > Quote Link to comment Share on other sites More sharing options...
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