Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 Bev has been so kind to put this together and give her comments on her experiences with some of these people. Patty ----- Original Message ----- From: Bev Ezra Sent: Thursday, October 11, 2001 1:26 AM Subject: Info on websites Multiple Chemical Sensitivity by Lester ( put this in the search) it will bring up all the websites (this covers sick building syndrome)you can put that in search also and see what comes up.~ Has 20 websites Bill Moyer ( put in the search) it will bring up 7 websites http://www.pbs.org Pressroom/2001/spring/sub_releases.htm http://www.info-implants.com'>http://www.info-implants.com/blais/index.html'>http://www.info-implants.com'>http://www.info-implants.com/blais/index.html Bienvenue Pierre Blais Ph.D ~ 496 Westminster Ave. Ottawa, Ontario, Canada K2A 2VL Ph 1-613-728-8688 fax 1-613-728-0687 http://www.info-implants.com'>http://www.info-implants.com National Center for Policy Research for Women & families www.center4policy.org Zuckerman Ph.D 1444 Eye Street, NW. Suite 900 Washington, DC 20005 e-mail dz@... Vasey M.D. ( Rheumatologist) Univ of South FL. College of Medicine 12901 Bruce B Down Blvd. Box 19 Tampa, FL. 33612 Ph 813-974-2251 fax 813-974-5229 ~ Check area code could be 727 they split city S. Middleton PHD. M.D. ( Breast MRI ) 410 Dickinson St. San Diego, CA. 92103 Ph 619-543-6148 fax 543-3963 e-mail mri@... Ph~ Dr. 619-543-3913 Website http://www.ucsdmri.com Register for MRI 619-543-3961 Dr. Mactamera (spelling??) Cleveland OH. ( scan shows more silicone than Dr. Middleton) Bernard M.Patten M.D. ( neurologist) 5550 Fannin, Suite 1801 Houston TX. 77054 Baylor College of Medicine Ph 713-798-7417 fax 798- 6417 Britta- Oster- Meyer- Shoaib M.D. Research Assistant to Dr Patten ~ Baylor Ph 713-791-9311 fax 791-9236 Saul Puszkin ( professor of pathology, director of molecular and cellular pathology, health sciences) One Gustave Lane, Levy Place NY, NY. 10029 Ph 212-241-5635 fax 212-534-7491 Dr. Stuart Silverman ( UCLA ) Los Angeles CA Ph 310-358-2234 Wanted $500 plus $700 and $200 for rush (up front) to upgrade in 1999 S. Gluck, M.D., F.A.C.P.,, Arizona Rheumatology Center 6707 N. 19th Ave., Ste. 201 Phoenix, AZ 85015 ( Hwy 17--Glendale Ave-- Ex E Ph 602-246-1964 fax 246-0876 ~~ Wanted $500 ( up front ) to upgrade in 1999 Ivan Goldsmith 4845 S. Rainbow Las Vegas NV Ph 702-367-0808 4830 W. Lone Mountain Rd. Las Vegas NV Ph 702-645-8555 Wanted $1000 ( up front ) to up grade in 1999 Gunnar Heuser M.D., Ph.D., F.A.C.P. 28240 W. Agoura Rd., Ste. 203 Agoura Hills, CA. 91301 Ph 818-865-1858 fax 865-8814 ~ Wanted $2050 (up front) will testify in court for you Neuromed and Neurotox associates Neurotoxicology / Immunotoxocology , M.D. ( Immunotoxicologist ) 14441 Memorial Dr. Suite # 6 Houston, TX. 77079 Ph 1-800-972-7904 fax 713-497-0796 Medicare would not pay for tests~ they told me Nachman Brautbar M.D. ( toxicology / nephrology ) clinical prof of medicine, USC 2222 Ocean View Ave, Suite # 100 Los Angeles, CA. 90057 Ph 323-634-6500 fax ? No medicare~ wanted $525 up front 1999 Levine M.D. ( studying children of implanted women) Schneider Children's Hospital division of pediatric gastroenterology and nutrition 229 Hyde, NY 11042 Ph 718-470-343? Fax 718-962-2908 Dr Weil M.D. Tucson AZ. Ph 520-626-7222 ~ Neurotoxicology http://www.drweil.com Dr. Bernard Jensen died at 92 ~ 2001 Website http://www.dhi.com Iridology / Nutrition Dr. Teitelbaum M.D. http://www.endfatigue.com ( CFS / FM ) Natural remedies National Foundation for the Chemically Hypersensitive ~ Fred 517-689-6369 4407 Swinson Rd. , Mi 48652 ~ Nutrition ~ Sauna detox ~ detoxification http://www.fda.gov/cdrh/breastimplants/birisk.html U.S Food and Drug Administration FDA Hot Line 301-827-3990 push #2-#5 can leave message 1-888-463-6332 1-800-332-1088 Med Watch http://www.fda.gov/medwatch/ Leonard (FDA) 1-800-638-2041 ext 141 ~ very nice lady talked to her when they tried to put silicone back on the market 1999?? Health Industry Program Consummer Affairs 888-463-6332 push 1-3-2-4-1-5 and you should get someone to talk to?? http://www.info@... ~ http://www.toxicdiscovery.com kkjohnston@... ~ kathy@... Kathy L. ston R.N. 1906 Grant Lane Columbia, Mo. 65203 Toxic Discovery Network Ph 573-445-0861 fax 573-44504700 Sandy L. McDougal~ Champaign IL~ Ph 217-352-3754 ( works with toxic discovery) Cats ( children affected by toxic substances ) Silicone & Saline ~ breast-fed~born Jama Roussano 60 Oser Ave Hauppauge, NY 11788 Ph 516-273-2287 Fax 273-2375 e-mail jrussano@... Jama Russano 413 Ft. Salonga Rd. Northport, NY 11768 Ph 516-757-4829 fax 757-4827 Ilena Rosenthal Humantics Foundation for Women ilena@... 1380 Garnet Ave Suite 444 San Diego CA. 92109 Ph 619-270-0680 fax 858-270-0680 PJ Brent ~ Died May 29, 2000 ~ Memorial Day ~ Atlanta GA http://www.info-implants.com'>http://www.info-implants.com/brent/intro.html http://hometown.aol.com/kathynye/pjbrent.html Micheline B Lambert ~ E-mail implants@... Canada Website http://www.info-implants.com'>http://www.info-implants.com http://www.ehcd.com Environmental Health Center J. Rea M.D. 8345 Walnut Hill Lane, Suite 220 Dallas TX. 75231 Ph 214-368-4132 fax 214-691-8432 G. Huang M.D. 1578 Humboldt St Denver Co. Ph 303-830-7200 fax 303-830-7523 http://www.plastikos.com E. Kolb M.D., F.A.C.S. 4370 town Square Atlanta Ga. 30338 Ph 770-457-4677 fax 770-457-4428 http://www.drfeng.com ~ e-mail drfeng@... Ph 216-831-7007 fax 216-831-3115 Dr. Lu-Feng 31200 Pinetree Road Pepper Pike, OH 44124 Alan S. Levin M.D., J.D. P.O. Box 4703 Incline Village, NV 89450 Ph 775-831-5603 fax 775-831-9478 e-mail flitequack@... American Board of Allergy/ Immunology/ Pathology & Attorney at Law R. Shanklin, M.D. F.R.S.M. 1211 Union Ave, Memphis TN. 38163 Ph 901-448-6300 fax 901-448-6979 ~ University of TN. College of Medicine Office of the Governor Consumer Health Assistance 555 E. Washington Ave, Suite 5100 Las Vegas NV. 89101 Ph 702-486-3587 fax 486-3586 Consumer Health Assistance 1100 E. St, Suite 222 Carson City NV. 89701 Ph 775-687-3370 fax 775-687-3374 All ~ no help below 1.Consumer Health NV State 687-4750 2. county Health 385-1291 3.NV State Division of Health ( ) 687-6615 & 486-6515 4.Public response office (County) 455-4191 5.Epa county 798-2525 (Lorine Payne) Spelling?? 6.NV State EPA 486-2850 () 7.Environmental Protection Agency 798-2100 (Deloris) 8.Division of Enviromental protection NV State 486-2851 ~ Adras 486-2854 9.State Health Protection Service 486-5068 10. Depart of Human Resources 486-3530 & 486-3545 (Clarence) Epa ~ GA 404-562-9355 ~ 562-9093 (Rayna Brown) ( & Fox) 404-562-9070 Federal EPA LasVegas is under region 9 ~ San Francisco ~ 415-744-1500 ~ e-mail r9.info@... http://www.epa.gov/region09/lib-hot.html http://dev.healthfinder.gov ~ go to search enter ~ what ever ?? 415-744-1702 Jeff Woodley ~ 415-744-1170 Rosenblum ~ 415-744-1132 Barbara Sparks 415-744-1046 Louise Hill ~ Nivolon 415-744-1824 Dr. Randy Todd State Epidemiologist 775-684-5900 County Medical Society 2590 E. Rd. Las Vegas NV. 89120 Ph 702-739-9989 fax 739-6345 American Medical Association 515 N. State Street Chicago, IL 60610 Ph 312-464-5000 Nevada Board of Medical Examiners P.O. Box 7238 Reno NV. 89510 Ph 1-888-890-8210 Medicare~ NV . 1-800-444-4606 Talked to Gloria--Jackie-- Marie (all very nice) all called me back trying to help in some way. http://www.healthfinder.gov/orgs/hr2473.htm National Institute of Environmental Health Services http://www.ourlittleplace.com This one info on allergy tests MITD testing. Call--ask if someone knows where you can go to get test for blood and allergy. Info under (reason for allergy explosion). Look at MITD testing, Spect Scans, Detox bath, Then go to the top and click Health risks of perfume (20 most common chemicals in perfume)It tells you centeral nervous system, also gives you other reactions from each chemical. These are also used in cleaning supply, laundry, and the list goes on. http://www.ameliaww.com/fpin/fpin.htm This one gives info on about everything, workplace policies, neurological, respiratory, Halifax, asthma, phthalates and more. http://community-1.webtv.net/lany25 Chemicals found in implants ~ Silicone ~ Saline ~ medical test ~ reconstruction http://www.ncchem.com'>http://www.ncchem.com Medical clinics familiar with Sick Building Syndrome or MCS. Americans with disibilities act. http://www.lawinfo.com http://www.toxconsultants.com http://www.expertox.com Wants $3000 up front~ does not bill medicare or any insurance companys American Civil Liberties Union( put that the search also) it will bring up law --legal--council-- medical. http://www.siliconeholocaust.org/chemicals.html Resources for the chemically injured http://www.snowcrest.net/lassen/mcsei.html Doctors for MCS Work group members ~~Lester Ph.D. is~ 9th down http://www.health.gov/environment/mcs/xiii.htm Grace Ziem and Albert Donnay http://www.mcsrr.org/pressreleases/prmcs98.html'>http://www.mcsrr.org/pressreleases/prmcs98.html North Carolina Chemical Injury Network http://www.ncchem.com'>http://www.ncchem.com MCS Information Louisville KY http://unix.adept.net/~mcsinfo/ Washington State MCS Network http://wsmcsn.homestead.com/index~ns4.html Ohio Network for the Chemical Injured http://1freespace.com/onfci/ Human Ecology Action League Inc (HEAL) Legal info http://members.aol.com/healnatnl/index.html Chemical Injury Information Network P.O. Box 301 White Sulphur Springs, MT 59645 Ph 406-547-2255 fax 547-2455 http://www.ciin.org/ Multiple Chemical Sensitivity ~ Referral and Resources http://www.mcsrr.org/ Environmental Health Network ~ Betty Bridges R.N. ~ P.O. Box 1155 Larkspur, CA. 94977 e-mail wilworks@... ~ http://www.landminds.com/~wilworks/ehnindex.htm American Academy of Environmental Medicine 7701 E. Kellogg, Suite 625 Wichita, KS 67207 Ph 316-684-5500 fax 684-5709 e-mail adminstrator@... They will send you a list of doctors and clinics ~ all over the US ~ for a donation http://www.cdc.gov/nceh/dls CDC Nation Center for Environmental Health 4770 Buford Highway, N. E. Atlanta, Ga. 30341 E-mail ncehdls@... Fishman 770-488-7957 fax 488-4839 jfishman@... Jim Pirkle 770-488-7950 ~( Lester told me to call Jim) Atlanta Ga Center for Disease Control Toxic Chemical 1-888-422-8737 ~ 404-369-6300 Dr. Alferd Dorsey 404-639-5092 fax 404-639-6315 Great Smokies Diagnostic Laboratory 63 Zillicoa Street Asheville, NC 28801(Joyce Trace) Ph 1-800-522-4762 fax 828-252-9303 e-mail cs@... ~ Medicare website ~ wysiwyg://2/http://www.gsdl.com http://www.accuchemlabs.com Accu-Chem Laboratories 990 N. Bowser Rd, Suite 800 , TX. 75081 Ph 972-234-5412 ( Besey)Sp? ~ Medicare http://.www.wtv-zone.com/infchoice/health_assessments.html The Agency for Toxic Substances and Disease Registry (ATSDR) How much does industry and politics influence our health agencies? Pesticides are Poisons designed to kill ! http://www.autoimmune.com/links.html'>http://www.autoimmune.com/links.html AutoimmuneTechnologies 144 Elks Place, Suite 1402, New Orleans, Louisiana, 70112 Ph 504-529-9944 fax 504-568-0634 E-mail mailbox@... Home page http://www.autoimmune.com Test for fibromyalgia and silicone.~ They told me 50% FM have MCS http://www.pactox.com Pacific Toxicology Laboratoties 6160 Variel Ave, Woodland Hills Ca, 91367 Testing 1-800-328-6942 Ph 818-598-3110 ext. 107 S. Aston, Ph.D E-mail laston@... fax 818-598-3116 $25 per test (group over 100 a discount ) will not bill medicare ~ 105 different chemicals and metals ( group 40 diff chemicals together , not individual) http://www.sonic.net/melissk/supportgrps.html Finding CFS/FM/MCS Support Groups, Doctors, Attorneys and Social Security Reps http://www.tennessean.com/sii/longterm/oakridge/part3/stories/names.shtml The sick who were interviewed http://ncchem.com/cfids_doc.htm 1999 Health Professionals Listing ~ Name - address - ph - fax - e-mail - website http://www.elsonhaas.com/center/center.html Preventive Medical Center Dr. Elson Haas 25 Blvd, Suite 8 San Ca. 95903 Ph 415-472-2343 fax 415-472-7636 UCSF Medical Center Allergy Dept 415-353-2725 (Chris) Toxicology Dept (Lara) ~ San Francisco General Hospital 415-206-8590 ~Dr. No new patients Micheal Rosenbraum ~ Mill Valley 415-927-9450 ( lin) Great Smokies sent me this list 1. Leonardi M.D. 851 S Rampart Blvd Suite 260 LV 89145 ~ 240-4200~ No medicare 2. Brumfield M.D. 601 S Rancho 16B LV 89106 ~ 380-8470 ~ Medicare talked to him said he couldn't help on silicone or MCS 3.Carolyn Barlow M.D. 2225 E Flamingo Rd 301 LV 89119 ~ 731-3117 ~ medicare will only see you if you are one of her allergy patients taking shots or tests 4. Milne M.D. 2110 Pinto Ln LV 89106 ~ 385-1393 ~ No Medicare 5.Dan Royal DO. 2501 N Green Valley Pkwy Ste D 132 NV 89014 ~ 433-8800 ~ Medicare I called and asked if he would see me ( twice) but he did not call back Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Gretchen, Thank you so much for the info you have been sending, it is really wonderful to have the help. I ordered " Genetics for Dummies " . Hopefully with the info you are passing along and the book I'll be able to understand this whole thing. Good information about CMT, diagnosis, gene mutations, etc. http://www.neurocas t.com/site/ content/sessions _06_2002. asp <!-- #ygrp-mlmsg {font-size:13px;font-family:arial,helvetica,clean,sans-serif;} #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg select, input, textarea {font:99% arial,helvetica,clean,sans-serif;} #ygrp-mlmsg pre, code {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} #ygrp-text{ font-family:Georgia; } #ygrp-text p{ margin:0 0 1em 0; } #ygrp-tpmsgs{ font-family:Arial; clear:both; } #ygrp-vitnav{ padding-top:10px; font-family:Verdana; font-size:77%; margin:0; } #ygrp-vitnav a{ padding:0 1px; } #ygrp-actbar{ clear:both; margin:25px 0; white-space:nowrap; color:#666; text-align:right; } #ygrp-actbar .left{ float:left; white-space:nowrap; } ..bld{font-weight:bold;} #ygrp-grft{ font-family:Verdana; font-size:77%; padding:15px 0; } #ygrp-ft{ font-family:verdana; font-size:77%; border-top:1px solid #666; padding:5px 0; } #ygrp-mlmsg #logo{ padding-bottom:10px; } #ygrp-vital{ background-color:#e0ecee; margin-bottom:20px; padding:2px 0 8px 8px; } #ygrp-vital #vithd{ font-size:77%; font-family:Verdana; font-weight:bold; color:#333; text-transform:uppercase; } #ygrp-vital ul{ padding:0; margin:2px 0; } #ygrp-vital ul li{ list-style-type:none; clear:both; border:1px solid #e0ecee; } #ygrp-vital ul li .ct{ font-weight:bold; color:#ff7900; float:right; width:2em; text-align:right; padding-right:.5em; } #ygrp-vital ul li .cat{ font-weight:bold; } #ygrp-vital a { text-decoration:none; } #ygrp-vital a:hover{ text-decoration:underline; } #ygrp-sponsor #hd{ color:#999; font-size:77%; } #ygrp-sponsor #ov{ padding:6px 13px; background-color:#e0ecee; margin-bottom:20px; } #ygrp-sponsor #ov ul{ padding:0 0 0 8px; margin:0; } #ygrp-sponsor #ov li{ list-style-type:square; padding:6px 0; font-size:77%; } #ygrp-sponsor #ov li a{ text-decoration:none; font-size:130%; } #ygrp-sponsor #nc { background-color:#eee; margin-bottom:20px; padding:0 8px; } #ygrp-sponsor .ad{ padding:8px 0; } #ygrp-sponsor .ad #hd1{ font-family:Arial; font-weight:bold; color:#628c2a; font-size:100%; line-height:122%; } #ygrp-sponsor .ad a{ text-decoration:none; } #ygrp-sponsor .ad a:hover{ text-decoration:underline; } #ygrp-sponsor .ad p{ margin:0; } o {font-size:0;} ..MsoNormal { margin:0 0 0 0; } #ygrp-text tt{ font-size:120%; } blockquote{margin:0 0 0 4px;} ..replbq {margin:4;} --> ________________________________________________________________________________\ ____ Cheap talk? Check out Messenger's low PC-to-Phone call rates. http://voice. Quote Link to comment Share on other sites More sharing options...
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