Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 By the way, Shirl, what meds do the doctors have you on for these symptoms? Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 I did go get massages for a little under 2 months, I did the fasting thing for a while, I did the Epsom salt baths for a while, I tried the digestive enzymes my chiropractor recommended, I did the liver flush, I tried yoga and I drank aloe Vera juice. I probably could have given the aloe a bit longer, it was hard to get down. I can't stomach very much garlic. Nothing seems to help. -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 If I remember correctly.... I started the yeast diet 2 or 3 months after my explant. I think I was off the diflucan about 2 months after my expalnt....something like that. -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2001 Report Share Posted November 10, 2001 dear shirl, I have been wondering about the minocycline. You have been taking it for a while. How much? I went to dr. sinnot who is mentioned in the books on scleroderma-the cure that can save your life. It said that the regular dose is 100 mg. 2 x day mon-wed.fri. It also said to use lederle Minocin for the best result. some people using generic minocycline wasted their time. It also said that EVERYONE WHO HAS SCLERODERMA MUST HAVE CLINDAMYCIN Iv's as an adjunct to therapy. If minocyclline doesn't work, other drugs can be used--doxycycline, cipro, zithromax,etc. I believe the clindamycin IV's are essential. have you done that? I have just started antibiotic protocol. Everytime I take it, I just ache and get worse, but them my skin feels different-=better-and my hands stop swelling. but then it wears off. Even at 50mg. of minocin, I notice an awful increase of symptoms--dr. says it is herxheimer reaction--I don't know--it scares me. anyway, I want to continure to try because I know it makes changes in my skin and why would it do that if it didn't help? I will do the IV's as soon as I can get five days in a row to go and do them. I hope that some of this info helps. let me know. love kathy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 I'm taking 50 mgs twice a day. I tried more but got too many yeast infections. My doctor said It ok to be on less it just takes longer to work. -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 --- shg713@... wrote: > I'm taking 50 mgs twice a day. I tried more but got > too many yeast > infections. My doctor said It ok to be on less it > just takes longer to work. > > -Shirl- > dear shirl, do you take 50mg 2 times a day, mon, wed, fri.? I still think you should do the clindamycin IV. EVERYONE who does the antibiotic protocol with alot of people say it is essential for scleroderma. Also, the minocyclline might not be the best choice. it sounds like you need someone willing to experiment. If the dosage is not right,it is not necessarily true that it will just take longer, it might not work at all. I think if you are going to try the protocol you might as well go all out and do it with someone willing to try everything possible to make it work. scleroderma is considered one of the hardest ones to treat and is taken very seriously. Check out the this website: www.roadback.com and also dr. Mercola's antibiotic protocol--they both recommend the iv antibiotic for scleroderma. Good luck with what ever you decide to do. On the website, tylynn had silicone implants and had scleroderma--she went to riverside arthritis center in calif. She did the iv's and she got better. Guess what though--she had her implants replaced with saline--she was told they were safe. take care, kathy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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