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Shirl

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  • 4 weeks later...

I did go get massages for a little under 2 months, I did the fasting thing for a while, I did the Epsom salt baths for a while, I tried the digestive enzymes my chiropractor recommended, I did the liver flush, I tried yoga and I drank aloe Vera juice. I probably could have given the aloe a bit longer, it was hard to get down. I can't stomach very much garlic. Nothing seems to help.

-Shirl-

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If I remember correctly.... I started the yeast diet 2 or 3 months after my explant. I think I was off the diflucan about 2 months after my expalnt....something like that.

-Shirl-

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dear shirl,

I have been wondering about the minocycline. You have

been taking it for a while. How much? I went to dr.

sinnot who is mentioned in the books on

scleroderma-the cure that can save your life. It said

that the regular dose is 100 mg. 2 x day mon-wed.fri.

It also said to use lederle Minocin for the best

result. some people using generic minocycline wasted

their time. It also said that EVERYONE WHO HAS

SCLERODERMA MUST HAVE CLINDAMYCIN Iv's as an adjunct

to therapy. If minocyclline doesn't work, other drugs

can be used--doxycycline, cipro, zithromax,etc. I

believe the clindamycin IV's are essential. have you

done that? I have just started antibiotic protocol.

Everytime I take it, I just ache and get worse, but

them my skin feels different-=better-and my hands stop

swelling. but then it wears off. Even at 50mg. of

minocin, I notice an awful increase of symptoms--dr.

says it is herxheimer reaction--I don't know--it

scares me. anyway, I want to continure to try because

I know it makes changes in my skin and why would it do

that if it didn't help? I will do the IV's as soon as

I can get five days in a row to go and do them. I

hope that some of this info helps. let me know.

love kathy

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--- shg713@... wrote:

> I'm taking 50 mgs twice a day. I tried more but got

> too many yeast

> infections. My doctor said It ok to be on less it

> just takes longer to work.

>

> -Shirl-

>

dear shirl,

do you take 50mg 2 times a day, mon, wed, fri.? I

still think you should do the clindamycin IV.

EVERYONE who does the antibiotic protocol with alot of

people say it is essential for scleroderma. Also, the

minocyclline might not be the best choice. it sounds

like you need someone willing to experiment. If the

dosage is not right,it is not necessarily true that it

will just take longer, it might not work at all. I

think if you are going to try the protocol you might

as well go all out and do it with someone willing to

try everything possible to make it work. scleroderma

is considered one of the hardest ones to treat and is

taken very seriously. Check out the this website:

www.roadback.com and also dr. Mercola's antibiotic

protocol--they both recommend the iv antibiotic for

scleroderma. Good luck with what ever you decide to

do. On the website, tylynn had silicone implants and

had scleroderma--she went to riverside arthritis

center in calif. She did the iv's and she got better.

Guess what though--she had her implants replaced with

saline--she was told they were safe.

take care,

kathy

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