Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Hi, Yes,I guess you could say it was a bit what we needed to hear.I understand each and every person is different and what they go through is different but it still is nice and comforting to know others have been through similar stuff and understand and are supportive.I thank you for your post.I know Jodi seems to be in " the hard time " right now of withdrawal,I am in a bit of a better or should I say different place.I am struggling with the mourning of my old body,old strong self,and trying to find some sort of acceptance of how things are for me now.Also not knowing how long all this will last or ever go away at all is enough to make anyone down.I used to be a very active person,both mentally and physically.Now I have psychical trouble doing anything and just regular household duties let alone other types of stuff like hiking or taking my dog for a long walk like I used to enjoy and be able to do.I am more of in a frustrating,angry place wanting to go and do and cant,and angry at the doctor that carelessly caused all this.I feel he should be accountable but don't know how to go about even that. I will try to give basics of my story as short as it is possible: I have been on and off MANY,MANY different kinds of meds over about maybe 5-6 years.Basically for mild depression,just from stress and having things get to me to a point of bringing me down.But really looking back on it all I was caught up in the medicine guinea pig cycle and being jerked around from one to another so it is no wonder I was having trouble.Anyway,I was off meds for a pretty good chunk of time at one point in 05 and was going through a very stressful time.Trying to sell a house,find another one,and move.LONG stories,but the stress was getting to me and stupid me listened to my councilor(at the time)who said maybe you should go back on melds,it might help,even for a while,I needed a " jump start " .HA Well,I listened to her,wish I didn't,went back to the guy(Dr.)in her office I really never liked from the start.He was the guy jerking me around on meds for a long time already. Anyway,in June of 05 he put me on LAMICTAL!He never should have,there was never enough reason to put me on such a med.In the first week of taking it my legs were hurting and I had trouble going up a flight of stairs when I was at the mall with my kids.I called him,of course it took 3 calls later to talk to him.He dismissed me,said " he never heard of that happening " and advised to keep taking it.Stupid me did,for about 3 months,I then weaned off as I could take the discomfort anymore and my legs and feet hurt.I was off by Sept.early Oct.of 05. I started going through hell,I didn't know at the time what was going on.My pain was escalating everywhere.My back was killing me like someone was stabbing me,my face,legs,arm,were tingling, things got worse and worse.Long short,I ended up in the hospital for 5 days,shaking(tremors),stuttering,couldn't walk,muscle weakness,pain.The doctors didn't know what the hell was going on,they still don't for that matter even though now I do.After 5 days I was discharged,they never did give me a diagnosis but did make psycho babble implications like a possible conversion reaction or disorder.Which I will say is TOTAL crap and I have read all about it and it isn't me!I was sent home to lick my wounds,no answers,and struggle to walk and very slowly get my strength back.No meds. In Feb 05 I had my period bad,a migraine headache,cramps,back hurt etc.At 1:30 in the afternoon Feb 2nd I took a 500mg Hydrocodine.I felt better and laid around all afternoon.At night it was all getting bad again.At 10:30 at night since I was going to bed and didn't think I needed anything as strong as before I took a 375mg Naproxin.Went to bed. I was JERKED AWAKE at 6 am in full anaphalatic shock. I made it to the kitchen floor,muffled to my son who was still sleeping.He came out and found me wheezing on the floor and called 911 BLESS HIS HEART! I made it to the bathroom and tried to get on the toilet but couldn't even stay upright.The paramedics found me on the floor,pants down(how humiliating),laying in my urine,feces,wheezing on the floor.In the ambulance I went,some shot slammed in my arm that hurt like hell and off to ER.Sent home the same afternoon after that ordeal,cannot take any pain meds at all,no NASAIDS,only Tylenol.NO MEDS. I had gone after that back to the doctor who dealt with me back on Nov.05 for a follow-up from the ER.She just pushed me off to a allergist.(I have since gotten my records from her and the page from when I came in after Feb. said " possible conversion reaction " ?)I almost flipped as if it wasn't for my son,poor kid 12 at the time,I wouldn't be here!I got a new doctor.(not much better though)No meds from Feb 06 to September.In response to my complaints of trouble sleeping,my doctor gave me 5-7 days of samples of Lunesta.She wrote a prescription but it never got filled.After taking it for the 5-7 days,I had no more.All of a sudden my legs were getting like bricks AGAIN,like what happened last November,it scared me and I ran back to my doctor.I said something is wrong,like what happened last year.She looked me over,my face was twitching again,my tongue quivering,fingers twitching back and forth,what they call fasculations. She then gets on the phone and speaks to a neurologist on the phone.She was thinking I had either secondary Parkinson's or early onset Parkinson's disease.WHATEVER! She put me on Sinemet!This was just this past October 06.The first week I had side effect,my neck was killing me,hot flashes,sweating,BUT the good side effects were the best " at the time " ,I had total euphoria,high,felt HAPPY, was even laughing for no reason and my daughter said what's so funny Mom " .LOL The withdrawal part when the meds started to wear off was the worst and worse then before I was given any,It was upped and upped.I got to 4X's a day every 5 hours and felt good.My legs were strong,I was cleaning my house,and then was sent to that stupid Neurologist from the phone. He said to stop taking the Sinemet one tab a day over 3 weeks.Geesh,so I go home and do as he says.As soon as I cut out one pill within a day my body was freaking.My face was twitching,that night after my med at 10 pm a got a rash on my left leg.I was like great,here we go again,I hadn't seen that rash in 3 years since I WAS ON EFFEXOR! I took Benadryl and went to bed.Well,don't ya know I was JERKED AWAKE AGAIN,the same way like in Feb.My head was spinning and pounding,I was soaked in sweat and passed out.I woke again at 6 am with swollen hands and hives! Yet I to this day have had 3 doctors say to me " I have prescribe Sinemet to hundreds of patients and none ever allergic to it " ! Like they don't believe me or something!I never took any more.I ended up in October at the ER 3 times with shortness of breath and difficulty breathing,heart palpitations and chest pain. In November,the last medication I have taken,and the last one I will ever take as far as I'm concerned,was Zythromax for a sinus infection,again a side effect of taking the other med.I took ONE 500 mg tablet and within an hour had trouble breathing,hour 1/2 chest pain,diarrhea.This went on for a week or so and Benadryl was my best friend again and still is. Here I am,now living with ALL the after math.I have terrible muscle cramps in my legs,my right worse than me left,the muscle above my knee is like a rock and is there hurting 24-7 all the time,nothing relieves it.I have vision trouble which I never had before Lamictal, always 20/20 vision and now cant read.My legs do not have normal strengh and tire very quickly and hurt all the time. I could go on and on but I'll spare you any more.This is where I am now.I am better than last year in October,but this Sinemet ordeal I feel damaged me more and set me back all over again.No doctor can even confirm what is wrong! Thanks for listening,sorry so long,that's another reason I dint post it before. Beth --- magnoliaig <LEstill491@...> wrote: > > > > > > Thanks Beth I was wondering if there was anyone > on > > > this group who was > > > encouraging. I appreciate that. I too have a > story. > > > Typed so many times just can't > > > do it no more hahaha. I am on 7 days OFF. and I > > > still feel like crap and have > > > the brain waves. I will NEVER go on an > > > antidepressant again. EVER. Still > > > battling but winning the war. I just wish I knew > > > when the end would come. Thanks > > > again. Jodi > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > Owned By: > === message truncated === Owned By: U2 " Dori " (White Chicken) CAG " Oliver " Lovie " Peaches " Std.Poodle " " Katrina Mutt " Dixie " Hubby " " and 2 Rug Rats " Elisha & Ben " God Bless All Creatures Great & Small,We Too Love Them All! ________________________________________________________________________________\ ____ Want to start your own business? Learn how on Small Business. http://smallbusiness./r-index Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Hi, Yes,I guess you could say it was a bit what we needed to hear.I understand each and every person is different and what they go through is different but it still is nice and comforting to know others have been through similar stuff and understand and are supportive.I thank you for your post.I know Jodi seems to be in " the hard time " right now of withdrawal,I am in a bit of a better or should I say different place.I am struggling with the mourning of my old body,old strong self,and trying to find some sort of acceptance of how things are for me now.Also not knowing how long all this will last or ever go away at all is enough to make anyone down.I used to be a very active person,both mentally and physically.Now I have psychical trouble doing anything and just regular household duties let alone other types of stuff like hiking or taking my dog for a long walk like I used to enjoy and be able to do.I am more of in a frustrating,angry place wanting to go and do and cant,and angry at the doctor that carelessly caused all this.I feel he should be accountable but don't know how to go about even that. I will try to give basics of my story as short as it is possible: I have been on and off MANY,MANY different kinds of meds over about maybe 5-6 years.Basically for mild depression,just from stress and having things get to me to a point of bringing me down.But really looking back on it all I was caught up in the medicine guinea pig cycle and being jerked around from one to another so it is no wonder I was having trouble.Anyway,I was off meds for a pretty good chunk of time at one point in 05 and was going through a very stressful time.Trying to sell a house,find another one,and move.LONG stories,but the stress was getting to me and stupid me listened to my councilor(at the time)who said maybe you should go back on melds,it might help,even for a while,I needed a " jump start " .HA Well,I listened to her,wish I didn't,went back to the guy(Dr.)in her office I really never liked from the start.He was the guy jerking me around on meds for a long time already. Anyway,in June of 05 he put me on LAMICTAL!He never should have,there was never enough reason to put me on such a med.In the first week of taking it my legs were hurting and I had trouble going up a flight of stairs when I was at the mall with my kids.I called him,of course it took 3 calls later to talk to him.He dismissed me,said " he never heard of that happening " and advised to keep taking it.Stupid me did,for about 3 months,I then weaned off as I could take the discomfort anymore and my legs and feet hurt.I was off by Sept.early Oct.of 05. I started going through hell,I didn't know at the time what was going on.My pain was escalating everywhere.My back was killing me like someone was stabbing me,my face,legs,arm,were tingling, things got worse and worse.Long short,I ended up in the hospital for 5 days,shaking(tremors),stuttering,couldn't walk,muscle weakness,pain.The doctors didn't know what the hell was going on,they still don't for that matter even though now I do.After 5 days I was discharged,they never did give me a diagnosis but did make psycho babble implications like a possible conversion reaction or disorder.Which I will say is TOTAL crap and I have read all about it and it isn't me!I was sent home to lick my wounds,no answers,and struggle to walk and very slowly get my strength back.No meds. In Feb 05 I had my period bad,a migraine headache,cramps,back hurt etc.At 1:30 in the afternoon Feb 2nd I took a 500mg Hydrocodine.I felt better and laid around all afternoon.At night it was all getting bad again.At 10:30 at night since I was going to bed and didn't think I needed anything as strong as before I took a 375mg Naproxin.Went to bed. I was JERKED AWAKE at 6 am in full anaphalatic shock. I made it to the kitchen floor,muffled to my son who was still sleeping.He came out and found me wheezing on the floor and called 911 BLESS HIS HEART! I made it to the bathroom and tried to get on the toilet but couldn't even stay upright.The paramedics found me on the floor,pants down(how humiliating),laying in my urine,feces,wheezing on the floor.In the ambulance I went,some shot slammed in my arm that hurt like hell and off to ER.Sent home the same afternoon after that ordeal,cannot take any pain meds at all,no NASAIDS,only Tylenol.NO MEDS. I had gone after that back to the doctor who dealt with me back on Nov.05 for a follow-up from the ER.She just pushed me off to a allergist.(I have since gotten my records from her and the page from when I came in after Feb. said " possible conversion reaction " ?)I almost flipped as if it wasn't for my son,poor kid 12 at the time,I wouldn't be here!I got a new doctor.(not much better though)No meds from Feb 06 to September.In response to my complaints of trouble sleeping,my doctor gave me 5-7 days of samples of Lunesta.She wrote a prescription but it never got filled.After taking it for the 5-7 days,I had no more.All of a sudden my legs were getting like bricks AGAIN,like what happened last November,it scared me and I ran back to my doctor.I said something is wrong,like what happened last year.She looked me over,my face was twitching again,my tongue quivering,fingers twitching back and forth,what they call fasculations. She then gets on the phone and speaks to a neurologist on the phone.She was thinking I had either secondary Parkinson's or early onset Parkinson's disease.WHATEVER! She put me on Sinemet!This was just this past October 06.The first week I had side effect,my neck was killing me,hot flashes,sweating,BUT the good side effects were the best " at the time " ,I had total euphoria,high,felt HAPPY, was even laughing for no reason and my daughter said what's so funny Mom " .LOL The withdrawal part when the meds started to wear off was the worst and worse then before I was given any,It was upped and upped.I got to 4X's a day every 5 hours and felt good.My legs were strong,I was cleaning my house,and then was sent to that stupid Neurologist from the phone. He said to stop taking the Sinemet one tab a day over 3 weeks.Geesh,so I go home and do as he says.As soon as I cut out one pill within a day my body was freaking.My face was twitching,that night after my med at 10 pm a got a rash on my left leg.I was like great,here we go again,I hadn't seen that rash in 3 years since I WAS ON EFFEXOR! I took Benadryl and went to bed.Well,don't ya know I was JERKED AWAKE AGAIN,the same way like in Feb.My head was spinning and pounding,I was soaked in sweat and passed out.I woke again at 6 am with swollen hands and hives! Yet I to this day have had 3 doctors say to me " I have prescribe Sinemet to hundreds of patients and none ever allergic to it " ! Like they don't believe me or something!I never took any more.I ended up in October at the ER 3 times with shortness of breath and difficulty breathing,heart palpitations and chest pain. In November,the last medication I have taken,and the last one I will ever take as far as I'm concerned,was Zythromax for a sinus infection,again a side effect of taking the other med.I took ONE 500 mg tablet and within an hour had trouble breathing,hour 1/2 chest pain,diarrhea.This went on for a week or so and Benadryl was my best friend again and still is. Here I am,now living with ALL the after math.I have terrible muscle cramps in my legs,my right worse than me left,the muscle above my knee is like a rock and is there hurting 24-7 all the time,nothing relieves it.I have vision trouble which I never had before Lamictal, always 20/20 vision and now cant read.My legs do not have normal strengh and tire very quickly and hurt all the time. I could go on and on but I'll spare you any more.This is where I am now.I am better than last year in October,but this Sinemet ordeal I feel damaged me more and set me back all over again.No doctor can even confirm what is wrong! Thanks for listening,sorry so long,that's another reason I dint post it before. Beth --- magnoliaig <LEstill491@...> wrote: > > > > > > Thanks Beth I was wondering if there was anyone > on > > > this group who was > > > encouraging. I appreciate that. I too have a > story. > > > Typed so many times just can't > > > do it no more hahaha. I am on 7 days OFF. and I > > > still feel like crap and have > > > the brain waves. I will NEVER go on an > > > antidepressant again. EVER. Still > > > battling but winning the war. I just wish I knew > > > when the end would come. Thanks > > > again. Jodi > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > Owned By: > === message truncated === Owned By: U2 " Dori " (White Chicken) CAG " Oliver " Lovie " Peaches " Std.Poodle " " Katrina Mutt " Dixie " Hubby " " and 2 Rug Rats " Elisha & Ben " God Bless All Creatures Great & Small,We Too Love Them All! ________________________________________________________________________________\ ____ Want to start your own business? Learn how on Small Business. http://smallbusiness./r-index Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Hi, Yes,I guess you could say it was a bit what we needed to hear.I understand each and every person is different and what they go through is different but it still is nice and comforting to know others have been through similar stuff and understand and are supportive.I thank you for your post.I know Jodi seems to be in " the hard time " right now of withdrawal,I am in a bit of a better or should I say different place.I am struggling with the mourning of my old body,old strong self,and trying to find some sort of acceptance of how things are for me now.Also not knowing how long all this will last or ever go away at all is enough to make anyone down.I used to be a very active person,both mentally and physically.Now I have psychical trouble doing anything and just regular household duties let alone other types of stuff like hiking or taking my dog for a long walk like I used to enjoy and be able to do.I am more of in a frustrating,angry place wanting to go and do and cant,and angry at the doctor that carelessly caused all this.I feel he should be accountable but don't know how to go about even that. I will try to give basics of my story as short as it is possible: I have been on and off MANY,MANY different kinds of meds over about maybe 5-6 years.Basically for mild depression,just from stress and having things get to me to a point of bringing me down.But really looking back on it all I was caught up in the medicine guinea pig cycle and being jerked around from one to another so it is no wonder I was having trouble.Anyway,I was off meds for a pretty good chunk of time at one point in 05 and was going through a very stressful time.Trying to sell a house,find another one,and move.LONG stories,but the stress was getting to me and stupid me listened to my councilor(at the time)who said maybe you should go back on melds,it might help,even for a while,I needed a " jump start " .HA Well,I listened to her,wish I didn't,went back to the guy(Dr.)in her office I really never liked from the start.He was the guy jerking me around on meds for a long time already. Anyway,in June of 05 he put me on LAMICTAL!He never should have,there was never enough reason to put me on such a med.In the first week of taking it my legs were hurting and I had trouble going up a flight of stairs when I was at the mall with my kids.I called him,of course it took 3 calls later to talk to him.He dismissed me,said " he never heard of that happening " and advised to keep taking it.Stupid me did,for about 3 months,I then weaned off as I could take the discomfort anymore and my legs and feet hurt.I was off by Sept.early Oct.of 05. I started going through hell,I didn't know at the time what was going on.My pain was escalating everywhere.My back was killing me like someone was stabbing me,my face,legs,arm,were tingling, things got worse and worse.Long short,I ended up in the hospital for 5 days,shaking(tremors),stuttering,couldn't walk,muscle weakness,pain.The doctors didn't know what the hell was going on,they still don't for that matter even though now I do.After 5 days I was discharged,they never did give me a diagnosis but did make psycho babble implications like a possible conversion reaction or disorder.Which I will say is TOTAL crap and I have read all about it and it isn't me!I was sent home to lick my wounds,no answers,and struggle to walk and very slowly get my strength back.No meds. In Feb 05 I had my period bad,a migraine headache,cramps,back hurt etc.At 1:30 in the afternoon Feb 2nd I took a 500mg Hydrocodine.I felt better and laid around all afternoon.At night it was all getting bad again.At 10:30 at night since I was going to bed and didn't think I needed anything as strong as before I took a 375mg Naproxin.Went to bed. I was JERKED AWAKE at 6 am in full anaphalatic shock. I made it to the kitchen floor,muffled to my son who was still sleeping.He came out and found me wheezing on the floor and called 911 BLESS HIS HEART! I made it to the bathroom and tried to get on the toilet but couldn't even stay upright.The paramedics found me on the floor,pants down(how humiliating),laying in my urine,feces,wheezing on the floor.In the ambulance I went,some shot slammed in my arm that hurt like hell and off to ER.Sent home the same afternoon after that ordeal,cannot take any pain meds at all,no NASAIDS,only Tylenol.NO MEDS. I had gone after that back to the doctor who dealt with me back on Nov.05 for a follow-up from the ER.She just pushed me off to a allergist.(I have since gotten my records from her and the page from when I came in after Feb. said " possible conversion reaction " ?)I almost flipped as if it wasn't for my son,poor kid 12 at the time,I wouldn't be here!I got a new doctor.(not much better though)No meds from Feb 06 to September.In response to my complaints of trouble sleeping,my doctor gave me 5-7 days of samples of Lunesta.She wrote a prescription but it never got filled.After taking it for the 5-7 days,I had no more.All of a sudden my legs were getting like bricks AGAIN,like what happened last November,it scared me and I ran back to my doctor.I said something is wrong,like what happened last year.She looked me over,my face was twitching again,my tongue quivering,fingers twitching back and forth,what they call fasculations. She then gets on the phone and speaks to a neurologist on the phone.She was thinking I had either secondary Parkinson's or early onset Parkinson's disease.WHATEVER! She put me on Sinemet!This was just this past October 06.The first week I had side effect,my neck was killing me,hot flashes,sweating,BUT the good side effects were the best " at the time " ,I had total euphoria,high,felt HAPPY, was even laughing for no reason and my daughter said what's so funny Mom " .LOL The withdrawal part when the meds started to wear off was the worst and worse then before I was given any,It was upped and upped.I got to 4X's a day every 5 hours and felt good.My legs were strong,I was cleaning my house,and then was sent to that stupid Neurologist from the phone. He said to stop taking the Sinemet one tab a day over 3 weeks.Geesh,so I go home and do as he says.As soon as I cut out one pill within a day my body was freaking.My face was twitching,that night after my med at 10 pm a got a rash on my left leg.I was like great,here we go again,I hadn't seen that rash in 3 years since I WAS ON EFFEXOR! I took Benadryl and went to bed.Well,don't ya know I was JERKED AWAKE AGAIN,the same way like in Feb.My head was spinning and pounding,I was soaked in sweat and passed out.I woke again at 6 am with swollen hands and hives! Yet I to this day have had 3 doctors say to me " I have prescribe Sinemet to hundreds of patients and none ever allergic to it " ! Like they don't believe me or something!I never took any more.I ended up in October at the ER 3 times with shortness of breath and difficulty breathing,heart palpitations and chest pain. In November,the last medication I have taken,and the last one I will ever take as far as I'm concerned,was Zythromax for a sinus infection,again a side effect of taking the other med.I took ONE 500 mg tablet and within an hour had trouble breathing,hour 1/2 chest pain,diarrhea.This went on for a week or so and Benadryl was my best friend again and still is. Here I am,now living with ALL the after math.I have terrible muscle cramps in my legs,my right worse than me left,the muscle above my knee is like a rock and is there hurting 24-7 all the time,nothing relieves it.I have vision trouble which I never had before Lamictal, always 20/20 vision and now cant read.My legs do not have normal strengh and tire very quickly and hurt all the time. I could go on and on but I'll spare you any more.This is where I am now.I am better than last year in October,but this Sinemet ordeal I feel damaged me more and set me back all over again.No doctor can even confirm what is wrong! Thanks for listening,sorry so long,that's another reason I dint post it before. Beth --- magnoliaig <LEstill491@...> wrote: > > > > > > Thanks Beth I was wondering if there was anyone > on > > > this group who was > > > encouraging. I appreciate that. I too have a > story. > > > Typed so many times just can't > > > do it no more hahaha. I am on 7 days OFF. and I > > > still feel like crap and have > > > the brain waves. I will NEVER go on an > > > antidepressant again. EVER. Still > > > battling but winning the war. I just wish I knew > > > when the end would come. Thanks > > > again. Jodi > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > Owned By: > === message truncated === Owned By: U2 " Dori " (White Chicken) CAG " Oliver " Lovie " Peaches " Std.Poodle " " Katrina Mutt " Dixie " Hubby " " and 2 Rug Rats " Elisha & Ben " God Bless All Creatures Great & Small,We Too Love Them All! ________________________________________________________________________________\ ____ Want to start your own business? Learn how on Small Business. http://smallbusiness./r-index Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Hi, Yes,I guess you could say it was a bit what we needed to hear.I understand each and every person is different and what they go through is different but it still is nice and comforting to know others have been through similar stuff and understand and are supportive.I thank you for your post.I know Jodi seems to be in " the hard time " right now of withdrawal,I am in a bit of a better or should I say different place.I am struggling with the mourning of my old body,old strong self,and trying to find some sort of acceptance of how things are for me now.Also not knowing how long all this will last or ever go away at all is enough to make anyone down.I used to be a very active person,both mentally and physically.Now I have psychical trouble doing anything and just regular household duties let alone other types of stuff like hiking or taking my dog for a long walk like I used to enjoy and be able to do.I am more of in a frustrating,angry place wanting to go and do and cant,and angry at the doctor that carelessly caused all this.I feel he should be accountable but don't know how to go about even that. I will try to give basics of my story as short as it is possible: I have been on and off MANY,MANY different kinds of meds over about maybe 5-6 years.Basically for mild depression,just from stress and having things get to me to a point of bringing me down.But really looking back on it all I was caught up in the medicine guinea pig cycle and being jerked around from one to another so it is no wonder I was having trouble.Anyway,I was off meds for a pretty good chunk of time at one point in 05 and was going through a very stressful time.Trying to sell a house,find another one,and move.LONG stories,but the stress was getting to me and stupid me listened to my councilor(at the time)who said maybe you should go back on melds,it might help,even for a while,I needed a " jump start " .HA Well,I listened to her,wish I didn't,went back to the guy(Dr.)in her office I really never liked from the start.He was the guy jerking me around on meds for a long time already. Anyway,in June of 05 he put me on LAMICTAL!He never should have,there was never enough reason to put me on such a med.In the first week of taking it my legs were hurting and I had trouble going up a flight of stairs when I was at the mall with my kids.I called him,of course it took 3 calls later to talk to him.He dismissed me,said " he never heard of that happening " and advised to keep taking it.Stupid me did,for about 3 months,I then weaned off as I could take the discomfort anymore and my legs and feet hurt.I was off by Sept.early Oct.of 05. I started going through hell,I didn't know at the time what was going on.My pain was escalating everywhere.My back was killing me like someone was stabbing me,my face,legs,arm,were tingling, things got worse and worse.Long short,I ended up in the hospital for 5 days,shaking(tremors),stuttering,couldn't walk,muscle weakness,pain.The doctors didn't know what the hell was going on,they still don't for that matter even though now I do.After 5 days I was discharged,they never did give me a diagnosis but did make psycho babble implications like a possible conversion reaction or disorder.Which I will say is TOTAL crap and I have read all about it and it isn't me!I was sent home to lick my wounds,no answers,and struggle to walk and very slowly get my strength back.No meds. In Feb 05 I had my period bad,a migraine headache,cramps,back hurt etc.At 1:30 in the afternoon Feb 2nd I took a 500mg Hydrocodine.I felt better and laid around all afternoon.At night it was all getting bad again.At 10:30 at night since I was going to bed and didn't think I needed anything as strong as before I took a 375mg Naproxin.Went to bed. I was JERKED AWAKE at 6 am in full anaphalatic shock. I made it to the kitchen floor,muffled to my son who was still sleeping.He came out and found me wheezing on the floor and called 911 BLESS HIS HEART! I made it to the bathroom and tried to get on the toilet but couldn't even stay upright.The paramedics found me on the floor,pants down(how humiliating),laying in my urine,feces,wheezing on the floor.In the ambulance I went,some shot slammed in my arm that hurt like hell and off to ER.Sent home the same afternoon after that ordeal,cannot take any pain meds at all,no NASAIDS,only Tylenol.NO MEDS. I had gone after that back to the doctor who dealt with me back on Nov.05 for a follow-up from the ER.She just pushed me off to a allergist.(I have since gotten my records from her and the page from when I came in after Feb. said " possible conversion reaction " ?)I almost flipped as if it wasn't for my son,poor kid 12 at the time,I wouldn't be here!I got a new doctor.(not much better though)No meds from Feb 06 to September.In response to my complaints of trouble sleeping,my doctor gave me 5-7 days of samples of Lunesta.She wrote a prescription but it never got filled.After taking it for the 5-7 days,I had no more.All of a sudden my legs were getting like bricks AGAIN,like what happened last November,it scared me and I ran back to my doctor.I said something is wrong,like what happened last year.She looked me over,my face was twitching again,my tongue quivering,fingers twitching back and forth,what they call fasculations. She then gets on the phone and speaks to a neurologist on the phone.She was thinking I had either secondary Parkinson's or early onset Parkinson's disease.WHATEVER! She put me on Sinemet!This was just this past October 06.The first week I had side effect,my neck was killing me,hot flashes,sweating,BUT the good side effects were the best " at the time " ,I had total euphoria,high,felt HAPPY, was even laughing for no reason and my daughter said what's so funny Mom " .LOL The withdrawal part when the meds started to wear off was the worst and worse then before I was given any,It was upped and upped.I got to 4X's a day every 5 hours and felt good.My legs were strong,I was cleaning my house,and then was sent to that stupid Neurologist from the phone. He said to stop taking the Sinemet one tab a day over 3 weeks.Geesh,so I go home and do as he says.As soon as I cut out one pill within a day my body was freaking.My face was twitching,that night after my med at 10 pm a got a rash on my left leg.I was like great,here we go again,I hadn't seen that rash in 3 years since I WAS ON EFFEXOR! I took Benadryl and went to bed.Well,don't ya know I was JERKED AWAKE AGAIN,the same way like in Feb.My head was spinning and pounding,I was soaked in sweat and passed out.I woke again at 6 am with swollen hands and hives! Yet I to this day have had 3 doctors say to me " I have prescribe Sinemet to hundreds of patients and none ever allergic to it " ! Like they don't believe me or something!I never took any more.I ended up in October at the ER 3 times with shortness of breath and difficulty breathing,heart palpitations and chest pain. In November,the last medication I have taken,and the last one I will ever take as far as I'm concerned,was Zythromax for a sinus infection,again a side effect of taking the other med.I took ONE 500 mg tablet and within an hour had trouble breathing,hour 1/2 chest pain,diarrhea.This went on for a week or so and Benadryl was my best friend again and still is. Here I am,now living with ALL the after math.I have terrible muscle cramps in my legs,my right worse than me left,the muscle above my knee is like a rock and is there hurting 24-7 all the time,nothing relieves it.I have vision trouble which I never had before Lamictal, always 20/20 vision and now cant read.My legs do not have normal strengh and tire very quickly and hurt all the time. I could go on and on but I'll spare you any more.This is where I am now.I am better than last year in October,but this Sinemet ordeal I feel damaged me more and set me back all over again.No doctor can even confirm what is wrong! Thanks for listening,sorry so long,that's another reason I dint post it before. Beth --- magnoliaig <LEstill491@...> wrote: > > > > > > Thanks Beth I was wondering if there was anyone > on > > > this group who was > > > encouraging. I appreciate that. I too have a > story. > > > Typed so many times just can't > > > do it no more hahaha. I am on 7 days OFF. and I > > > still feel like crap and have > > > the brain waves. I will NEVER go on an > > > antidepressant again. EVER. Still > > > battling but winning the war. I just wish I knew > > > when the end would come. Thanks > > > again. Jodi > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > Owned By: > === message truncated === Owned By: U2 " Dori " (White Chicken) CAG " Oliver " Lovie " Peaches " Std.Poodle " " Katrina Mutt " Dixie " Hubby " " and 2 Rug Rats " Elisha & Ben " God Bless All Creatures Great & Small,We Too Love Them All! ________________________________________________________________________________\ ____ Want to start your own business? Learn how on Small Business. http://smallbusiness./r-index Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Hi Beth, I completely understand. Personally if all that happened to me I wouldn't go near a doctor until I had a broken bone or needed some stitches. And I would filter any drug recommended through my heavy duty bullshit detector before going near any of it. I very much want you to be better. Maybe do a little before going all out. I broke my back in the early 90s and it was two years before I could run 25 yards, now I can run several miles. Before long you might be jogging with your dog again! There was a study posted here a while back that had exercise as effective or better than Zoloft!! Best, Jim Hi, Yes,I guess you could say it was a bit what we needed to hear.I understand each and every person is different and what they go through is different but it still is nice and comforting to know others have been through similar stuff and understand and are supportive.I thank you for your post.I know Jodi seems to be in " the hard time " right now of withdrawal,I am in a bit of a better or should I say different place.I am struggling with the mourning of my old body,old strong self,and trying to find some sort of acceptance of how things are for me now.Also not knowing how long all this will last or ever go away at all is enough to make anyone down.I used to be a very active person,both mentally and physically.Now I have psychical trouble doing anything and just regular household duties let alone other types of stuff like hiking or taking my dog for a long walk like I used to enjoy and be able to do.I am more of in a frustrating,angry place wanting to go and do and cant,and angry at the doctor that carelessly caused all this.I feel he should be accountable but don't know how to go about even that. I will try to give basics of my story as short as it is possible: I have been on and off MANY,MANY different kinds of meds over about maybe 5-6 years.Basically for mild depression,just from stress and having things get to me to a point of bringing me down.But really looking back on it all I was caught up in the medicine guinea pig cycle and being jerked around from one to another so it is no wonder I was having trouble.Anyway,I was off meds for a pretty good chunk of time at one point in 05 and was going through a very stressful time.Trying to sell a house,find another one,and move.LONG stories,but the stress was getting to me and stupid me listened to my councilor(at the time)who said maybe you should go back on melds,it might help,even for a while,I needed a " jump start " .HA Well,I listened to her,wish I didn't,went back to the guy(Dr.)in her office I really never liked from the start.He was the guy jerking me around on meds for a long time already. Anyway,in June of 05 he put me on LAMICTAL!He never should have,there was never enough reason to put me on such a med.In the first week of taking it my legs were hurting and I had trouble going up a flight of stairs when I was at the mall with my kids.I called him,of course it took 3 calls later to talk to him.He dismissed me,said " he never heard of that happening " and advised to keep taking it.Stupid me did,for about 3 months,I then weaned off as I could take the discomfort anymore and my legs and feet hurt.I was off by Sept.early Oct.of 05. I started going through hell,I didn't know at the time what was going on.My pain was escalating everywhere.My back was killing me like someone was stabbing me,my face,legs,arm,were tingling, things got worse and worse.Long short,I ended up in the hospital for 5 days,shaking(tremors),stuttering,couldn't walk,muscle weakness,pain.The doctors didn't know what the hell was going on,they still don't for that matter even though now I do.After 5 days I was discharged,they never did give me a diagnosis but did make psycho babble implications like a possible conversion reaction or disorder.Which I will say is TOTAL crap and I have read all about it and it isn't me!I was sent home to lick my wounds,no answers,and struggle to walk and very slowly get my strength back.No meds. In Feb 05 I had my period bad,a migraine headache,cramps,back hurt etc.At 1:30 in the afternoon Feb 2nd I took a 500mg Hydrocodine.I felt better and laid around all afternoon.At night it was all getting bad again.At 10:30 at night since I was going to bed and didn't think I needed anything as strong as before I took a 375mg Naproxin.Went to bed. I was JERKED AWAKE at 6 am in full anaphalatic shock. I made it to the kitchen floor,muffled to my son who was still sleeping.He came out and found me wheezing on the floor and called 911 BLESS HIS HEART! I made it to the bathroom and tried to get on the toilet but couldn't even stay upright.The paramedics found me on the floor,pants down(how humiliating),laying in my urine,feces,wheezing on the floor.In the ambulance I went,some shot slammed in my arm that hurt like hell and off to ER.Sent home the same afternoon after that ordeal,cannot take any pain meds at all,no NASAIDS,only Tylenol.NO MEDS. I had gone after that back to the doctor who dealt with me back on Nov.05 for a follow-up from the ER.She just pushed me off to a allergist.(I have since gotten my records from her and the page from when I came in after Feb. said " possible conversion reaction " ?)I almost flipped as if it wasn't for my son,poor kid 12 at the time,I wouldn't be here!I got a new doctor.(not much better though)No meds from Feb 06 to September.In response to my complaints of trouble sleeping,my doctor gave me 5-7 days of samples of Lunesta.She wrote a prescription but it never got filled.After taking it for the 5-7 days,I had no more.All of a sudden my legs were getting like bricks AGAIN,like what happened last November,it scared me and I ran back to my doctor.I said something is wrong,like what happened last year.She looked me over,my face was twitching again,my tongue quivering,fingers twitching back and forth,what they call fasculations. She then gets on the phone and speaks to a neurologist on the phone.She was thinking I had either secondary Parkinson's or early onset Parkinson's disease.WHATEVER! She put me on Sinemet!This was just this past October 06.The first week I had side effect,my neck was killing me,hot flashes,sweating,BUT the good side effects were the best " at the time " ,I had total euphoria,high,felt HAPPY, was even laughing for no reason and my daughter said what's so funny Mom " .LOL The withdrawal part when the meds started to wear off was the worst and worse then before I was given any,It was upped and upped.I got to 4X's a day every 5 hours and felt good.My legs were strong,I was cleaning my house,and then was sent to that stupid Neurologist from the phone. He said to stop taking the Sinemet one tab a day over 3 weeks.Geesh,so I go home and do as he says.As soon as I cut out one pill within a day my body was freaking.My face was twitching,that night after my med at 10 pm a got a rash on my left leg.I was like great,here we go again,I hadn't seen that rash in 3 years since I WAS ON EFFEXOR! I took Benadryl and went to bed.Well,don't ya know I was JERKED AWAKE AGAIN,the same way like in Feb.My head was spinning and pounding,I was soaked in sweat and passed out.I woke again at 6 am with swollen hands and hives! Yet I to this day have had 3 doctors say to me " I have prescribe Sinemet to hundreds of patients and none ever allergic to it " ! Like they don't believe me or something!I never took any more.I ended up in October at the ER 3 times with shortness of breath and difficulty breathing,heart palpitations and chest pain. In November,the last medication I have taken,and the last one I will ever take as far as I'm concerned,was Zythromax for a sinus infection,again a side effect of taking the other med.I took ONE 500 mg tablet and within an hour had trouble breathing,hour 1/2 chest pain,diarrhea.This went on for a week or so and Benadryl was my best friend again and still is. Here I am,now living with ALL the after math.I have terrible muscle cramps in my legs,my right worse than me left,the muscle above my knee is like a rock and is there hurting 24-7 all the time,nothing relieves it.I have vision trouble which I never had before Lamictal, always 20/20 vision and now cant read.My legs do not have normal strengh and tire very quickly and hurt all the time. I could go on and on but I'll spare you any more.This is where I am now.I am better than last year in October,but this Sinemet ordeal I feel damaged me more and set me back all over again.No doctor can even confirm what is wrong! Thanks for listening,sorry so long,that's another reason I dint post it before. Beth --- magnoliaig <LEstill491@...> wrote: > > > > > > Thanks Beth I was wondering if there was anyone > on > > > this group who was > > > encouraging. I appreciate that. I too have a > story. > > > Typed so many times just can't > > > do it no more hahaha. I am on 7 days OFF. and I > > > still feel like crap and have > > > the brain waves. I will NEVER go on an > > > antidepressant again. EVER. Still > > > battling but winning the war. I just wish I knew > > > when the end would come. Thanks > > > again. Jodi > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > Owned By: > === message truncated === Owned By: U2 " Dori " (White Chicken) CAG " Oliver " Lovie " Peaches " Std.Poodle " " Katrina Mutt " Dixie " Hubby " " and 2 Rug Rats " Elisha & Ben " God Bless All Creatures Great & Small,We Too Love Them All! ________________________________________________________________________________\ ____ Want to start your own business? Learn how on Small Business. http://smallbusiness./r-index Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Hi Beth, I completely understand. Personally if all that happened to me I wouldn't go near a doctor until I had a broken bone or needed some stitches. And I would filter any drug recommended through my heavy duty bullshit detector before going near any of it. I very much want you to be better. Maybe do a little before going all out. I broke my back in the early 90s and it was two years before I could run 25 yards, now I can run several miles. Before long you might be jogging with your dog again! There was a study posted here a while back that had exercise as effective or better than Zoloft!! Best, Jim Hi, Yes,I guess you could say it was a bit what we needed to hear.I understand each and every person is different and what they go through is different but it still is nice and comforting to know others have been through similar stuff and understand and are supportive.I thank you for your post.I know Jodi seems to be in " the hard time " right now of withdrawal,I am in a bit of a better or should I say different place.I am struggling with the mourning of my old body,old strong self,and trying to find some sort of acceptance of how things are for me now.Also not knowing how long all this will last or ever go away at all is enough to make anyone down.I used to be a very active person,both mentally and physically.Now I have psychical trouble doing anything and just regular household duties let alone other types of stuff like hiking or taking my dog for a long walk like I used to enjoy and be able to do.I am more of in a frustrating,angry place wanting to go and do and cant,and angry at the doctor that carelessly caused all this.I feel he should be accountable but don't know how to go about even that. I will try to give basics of my story as short as it is possible: I have been on and off MANY,MANY different kinds of meds over about maybe 5-6 years.Basically for mild depression,just from stress and having things get to me to a point of bringing me down.But really looking back on it all I was caught up in the medicine guinea pig cycle and being jerked around from one to another so it is no wonder I was having trouble.Anyway,I was off meds for a pretty good chunk of time at one point in 05 and was going through a very stressful time.Trying to sell a house,find another one,and move.LONG stories,but the stress was getting to me and stupid me listened to my councilor(at the time)who said maybe you should go back on melds,it might help,even for a while,I needed a " jump start " .HA Well,I listened to her,wish I didn't,went back to the guy(Dr.)in her office I really never liked from the start.He was the guy jerking me around on meds for a long time already. Anyway,in June of 05 he put me on LAMICTAL!He never should have,there was never enough reason to put me on such a med.In the first week of taking it my legs were hurting and I had trouble going up a flight of stairs when I was at the mall with my kids.I called him,of course it took 3 calls later to talk to him.He dismissed me,said " he never heard of that happening " and advised to keep taking it.Stupid me did,for about 3 months,I then weaned off as I could take the discomfort anymore and my legs and feet hurt.I was off by Sept.early Oct.of 05. I started going through hell,I didn't know at the time what was going on.My pain was escalating everywhere.My back was killing me like someone was stabbing me,my face,legs,arm,were tingling, things got worse and worse.Long short,I ended up in the hospital for 5 days,shaking(tremors),stuttering,couldn't walk,muscle weakness,pain.The doctors didn't know what the hell was going on,they still don't for that matter even though now I do.After 5 days I was discharged,they never did give me a diagnosis but did make psycho babble implications like a possible conversion reaction or disorder.Which I will say is TOTAL crap and I have read all about it and it isn't me!I was sent home to lick my wounds,no answers,and struggle to walk and very slowly get my strength back.No meds. In Feb 05 I had my period bad,a migraine headache,cramps,back hurt etc.At 1:30 in the afternoon Feb 2nd I took a 500mg Hydrocodine.I felt better and laid around all afternoon.At night it was all getting bad again.At 10:30 at night since I was going to bed and didn't think I needed anything as strong as before I took a 375mg Naproxin.Went to bed. I was JERKED AWAKE at 6 am in full anaphalatic shock. I made it to the kitchen floor,muffled to my son who was still sleeping.He came out and found me wheezing on the floor and called 911 BLESS HIS HEART! I made it to the bathroom and tried to get on the toilet but couldn't even stay upright.The paramedics found me on the floor,pants down(how humiliating),laying in my urine,feces,wheezing on the floor.In the ambulance I went,some shot slammed in my arm that hurt like hell and off to ER.Sent home the same afternoon after that ordeal,cannot take any pain meds at all,no NASAIDS,only Tylenol.NO MEDS. I had gone after that back to the doctor who dealt with me back on Nov.05 for a follow-up from the ER.She just pushed me off to a allergist.(I have since gotten my records from her and the page from when I came in after Feb. said " possible conversion reaction " ?)I almost flipped as if it wasn't for my son,poor kid 12 at the time,I wouldn't be here!I got a new doctor.(not much better though)No meds from Feb 06 to September.In response to my complaints of trouble sleeping,my doctor gave me 5-7 days of samples of Lunesta.She wrote a prescription but it never got filled.After taking it for the 5-7 days,I had no more.All of a sudden my legs were getting like bricks AGAIN,like what happened last November,it scared me and I ran back to my doctor.I said something is wrong,like what happened last year.She looked me over,my face was twitching again,my tongue quivering,fingers twitching back and forth,what they call fasculations. She then gets on the phone and speaks to a neurologist on the phone.She was thinking I had either secondary Parkinson's or early onset Parkinson's disease.WHATEVER! She put me on Sinemet!This was just this past October 06.The first week I had side effect,my neck was killing me,hot flashes,sweating,BUT the good side effects were the best " at the time " ,I had total euphoria,high,felt HAPPY, was even laughing for no reason and my daughter said what's so funny Mom " .LOL The withdrawal part when the meds started to wear off was the worst and worse then before I was given any,It was upped and upped.I got to 4X's a day every 5 hours and felt good.My legs were strong,I was cleaning my house,and then was sent to that stupid Neurologist from the phone. He said to stop taking the Sinemet one tab a day over 3 weeks.Geesh,so I go home and do as he says.As soon as I cut out one pill within a day my body was freaking.My face was twitching,that night after my med at 10 pm a got a rash on my left leg.I was like great,here we go again,I hadn't seen that rash in 3 years since I WAS ON EFFEXOR! I took Benadryl and went to bed.Well,don't ya know I was JERKED AWAKE AGAIN,the same way like in Feb.My head was spinning and pounding,I was soaked in sweat and passed out.I woke again at 6 am with swollen hands and hives! Yet I to this day have had 3 doctors say to me " I have prescribe Sinemet to hundreds of patients and none ever allergic to it " ! Like they don't believe me or something!I never took any more.I ended up in October at the ER 3 times with shortness of breath and difficulty breathing,heart palpitations and chest pain. In November,the last medication I have taken,and the last one I will ever take as far as I'm concerned,was Zythromax for a sinus infection,again a side effect of taking the other med.I took ONE 500 mg tablet and within an hour had trouble breathing,hour 1/2 chest pain,diarrhea.This went on for a week or so and Benadryl was my best friend again and still is. Here I am,now living with ALL the after math.I have terrible muscle cramps in my legs,my right worse than me left,the muscle above my knee is like a rock and is there hurting 24-7 all the time,nothing relieves it.I have vision trouble which I never had before Lamictal, always 20/20 vision and now cant read.My legs do not have normal strengh and tire very quickly and hurt all the time. I could go on and on but I'll spare you any more.This is where I am now.I am better than last year in October,but this Sinemet ordeal I feel damaged me more and set me back all over again.No doctor can even confirm what is wrong! Thanks for listening,sorry so long,that's another reason I dint post it before. Beth --- magnoliaig <LEstill491@...> wrote: > > > > > > Thanks Beth I was wondering if there was anyone > on > > > this group who was > > > encouraging. I appreciate that. I too have a > story. > > > Typed so many times just can't > > > do it no more hahaha. I am on 7 days OFF. and I > > > still feel like crap and have > > > the brain waves. I will NEVER go on an > > > antidepressant again. EVER. Still > > > battling but winning the war. I just wish I knew > > > when the end would come. Thanks > > > again. Jodi > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > Owned By: > === message truncated === Owned By: U2 " Dori " (White Chicken) CAG " Oliver " Lovie " Peaches " Std.Poodle " " Katrina Mutt " Dixie " Hubby " " and 2 Rug Rats " Elisha & Ben " God Bless All Creatures Great & Small,We Too Love Them All! ________________________________________________________________________________\ ____ Want to start your own business? Learn how on Small Business. http://smallbusiness./r-index Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Hi Beth, I completely understand. Personally if all that happened to me I wouldn't go near a doctor until I had a broken bone or needed some stitches. And I would filter any drug recommended through my heavy duty bullshit detector before going near any of it. I very much want you to be better. Maybe do a little before going all out. I broke my back in the early 90s and it was two years before I could run 25 yards, now I can run several miles. Before long you might be jogging with your dog again! There was a study posted here a while back that had exercise as effective or better than Zoloft!! Best, Jim Hi, Yes,I guess you could say it was a bit what we needed to hear.I understand each and every person is different and what they go through is different but it still is nice and comforting to know others have been through similar stuff and understand and are supportive.I thank you for your post.I know Jodi seems to be in " the hard time " right now of withdrawal,I am in a bit of a better or should I say different place.I am struggling with the mourning of my old body,old strong self,and trying to find some sort of acceptance of how things are for me now.Also not knowing how long all this will last or ever go away at all is enough to make anyone down.I used to be a very active person,both mentally and physically.Now I have psychical trouble doing anything and just regular household duties let alone other types of stuff like hiking or taking my dog for a long walk like I used to enjoy and be able to do.I am more of in a frustrating,angry place wanting to go and do and cant,and angry at the doctor that carelessly caused all this.I feel he should be accountable but don't know how to go about even that. I will try to give basics of my story as short as it is possible: I have been on and off MANY,MANY different kinds of meds over about maybe 5-6 years.Basically for mild depression,just from stress and having things get to me to a point of bringing me down.But really looking back on it all I was caught up in the medicine guinea pig cycle and being jerked around from one to another so it is no wonder I was having trouble.Anyway,I was off meds for a pretty good chunk of time at one point in 05 and was going through a very stressful time.Trying to sell a house,find another one,and move.LONG stories,but the stress was getting to me and stupid me listened to my councilor(at the time)who said maybe you should go back on melds,it might help,even for a while,I needed a " jump start " .HA Well,I listened to her,wish I didn't,went back to the guy(Dr.)in her office I really never liked from the start.He was the guy jerking me around on meds for a long time already. Anyway,in June of 05 he put me on LAMICTAL!He never should have,there was never enough reason to put me on such a med.In the first week of taking it my legs were hurting and I had trouble going up a flight of stairs when I was at the mall with my kids.I called him,of course it took 3 calls later to talk to him.He dismissed me,said " he never heard of that happening " and advised to keep taking it.Stupid me did,for about 3 months,I then weaned off as I could take the discomfort anymore and my legs and feet hurt.I was off by Sept.early Oct.of 05. I started going through hell,I didn't know at the time what was going on.My pain was escalating everywhere.My back was killing me like someone was stabbing me,my face,legs,arm,were tingling, things got worse and worse.Long short,I ended up in the hospital for 5 days,shaking(tremors),stuttering,couldn't walk,muscle weakness,pain.The doctors didn't know what the hell was going on,they still don't for that matter even though now I do.After 5 days I was discharged,they never did give me a diagnosis but did make psycho babble implications like a possible conversion reaction or disorder.Which I will say is TOTAL crap and I have read all about it and it isn't me!I was sent home to lick my wounds,no answers,and struggle to walk and very slowly get my strength back.No meds. In Feb 05 I had my period bad,a migraine headache,cramps,back hurt etc.At 1:30 in the afternoon Feb 2nd I took a 500mg Hydrocodine.I felt better and laid around all afternoon.At night it was all getting bad again.At 10:30 at night since I was going to bed and didn't think I needed anything as strong as before I took a 375mg Naproxin.Went to bed. I was JERKED AWAKE at 6 am in full anaphalatic shock. I made it to the kitchen floor,muffled to my son who was still sleeping.He came out and found me wheezing on the floor and called 911 BLESS HIS HEART! I made it to the bathroom and tried to get on the toilet but couldn't even stay upright.The paramedics found me on the floor,pants down(how humiliating),laying in my urine,feces,wheezing on the floor.In the ambulance I went,some shot slammed in my arm that hurt like hell and off to ER.Sent home the same afternoon after that ordeal,cannot take any pain meds at all,no NASAIDS,only Tylenol.NO MEDS. I had gone after that back to the doctor who dealt with me back on Nov.05 for a follow-up from the ER.She just pushed me off to a allergist.(I have since gotten my records from her and the page from when I came in after Feb. said " possible conversion reaction " ?)I almost flipped as if it wasn't for my son,poor kid 12 at the time,I wouldn't be here!I got a new doctor.(not much better though)No meds from Feb 06 to September.In response to my complaints of trouble sleeping,my doctor gave me 5-7 days of samples of Lunesta.She wrote a prescription but it never got filled.After taking it for the 5-7 days,I had no more.All of a sudden my legs were getting like bricks AGAIN,like what happened last November,it scared me and I ran back to my doctor.I said something is wrong,like what happened last year.She looked me over,my face was twitching again,my tongue quivering,fingers twitching back and forth,what they call fasculations. She then gets on the phone and speaks to a neurologist on the phone.She was thinking I had either secondary Parkinson's or early onset Parkinson's disease.WHATEVER! She put me on Sinemet!This was just this past October 06.The first week I had side effect,my neck was killing me,hot flashes,sweating,BUT the good side effects were the best " at the time " ,I had total euphoria,high,felt HAPPY, was even laughing for no reason and my daughter said what's so funny Mom " .LOL The withdrawal part when the meds started to wear off was the worst and worse then before I was given any,It was upped and upped.I got to 4X's a day every 5 hours and felt good.My legs were strong,I was cleaning my house,and then was sent to that stupid Neurologist from the phone. He said to stop taking the Sinemet one tab a day over 3 weeks.Geesh,so I go home and do as he says.As soon as I cut out one pill within a day my body was freaking.My face was twitching,that night after my med at 10 pm a got a rash on my left leg.I was like great,here we go again,I hadn't seen that rash in 3 years since I WAS ON EFFEXOR! I took Benadryl and went to bed.Well,don't ya know I was JERKED AWAKE AGAIN,the same way like in Feb.My head was spinning and pounding,I was soaked in sweat and passed out.I woke again at 6 am with swollen hands and hives! Yet I to this day have had 3 doctors say to me " I have prescribe Sinemet to hundreds of patients and none ever allergic to it " ! Like they don't believe me or something!I never took any more.I ended up in October at the ER 3 times with shortness of breath and difficulty breathing,heart palpitations and chest pain. In November,the last medication I have taken,and the last one I will ever take as far as I'm concerned,was Zythromax for a sinus infection,again a side effect of taking the other med.I took ONE 500 mg tablet and within an hour had trouble breathing,hour 1/2 chest pain,diarrhea.This went on for a week or so and Benadryl was my best friend again and still is. Here I am,now living with ALL the after math.I have terrible muscle cramps in my legs,my right worse than me left,the muscle above my knee is like a rock and is there hurting 24-7 all the time,nothing relieves it.I have vision trouble which I never had before Lamictal, always 20/20 vision and now cant read.My legs do not have normal strengh and tire very quickly and hurt all the time. I could go on and on but I'll spare you any more.This is where I am now.I am better than last year in October,but this Sinemet ordeal I feel damaged me more and set me back all over again.No doctor can even confirm what is wrong! Thanks for listening,sorry so long,that's another reason I dint post it before. Beth --- magnoliaig <LEstill491@...> wrote: > > > > > > Thanks Beth I was wondering if there was anyone > on > > > this group who was > > > encouraging. I appreciate that. I too have a > story. > > > Typed so many times just can't > > > do it no more hahaha. I am on 7 days OFF. and I > > > still feel like crap and have > > > the brain waves. I will NEVER go on an > > > antidepressant again. EVER. Still > > > battling but winning the war. I just wish I knew > > > when the end would come. Thanks > > > again. Jodi > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > Owned By: > === message truncated === Owned By: U2 " Dori " (White Chicken) CAG " Oliver " Lovie " Peaches " Std.Poodle " " Katrina Mutt " Dixie " Hubby " " and 2 Rug Rats " Elisha & Ben " God Bless All Creatures Great & Small,We Too Love Them All! ________________________________________________________________________________\ ____ Want to start your own business? Learn how on Small Business. http://smallbusiness./r-index Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Hi Beth, I completely understand. Personally if all that happened to me I wouldn't go near a doctor until I had a broken bone or needed some stitches. And I would filter any drug recommended through my heavy duty bullshit detector before going near any of it. I very much want you to be better. Maybe do a little before going all out. I broke my back in the early 90s and it was two years before I could run 25 yards, now I can run several miles. Before long you might be jogging with your dog again! There was a study posted here a while back that had exercise as effective or better than Zoloft!! Best, Jim Hi, Yes,I guess you could say it was a bit what we needed to hear.I understand each and every person is different and what they go through is different but it still is nice and comforting to know others have been through similar stuff and understand and are supportive.I thank you for your post.I know Jodi seems to be in " the hard time " right now of withdrawal,I am in a bit of a better or should I say different place.I am struggling with the mourning of my old body,old strong self,and trying to find some sort of acceptance of how things are for me now.Also not knowing how long all this will last or ever go away at all is enough to make anyone down.I used to be a very active person,both mentally and physically.Now I have psychical trouble doing anything and just regular household duties let alone other types of stuff like hiking or taking my dog for a long walk like I used to enjoy and be able to do.I am more of in a frustrating,angry place wanting to go and do and cant,and angry at the doctor that carelessly caused all this.I feel he should be accountable but don't know how to go about even that. I will try to give basics of my story as short as it is possible: I have been on and off MANY,MANY different kinds of meds over about maybe 5-6 years.Basically for mild depression,just from stress and having things get to me to a point of bringing me down.But really looking back on it all I was caught up in the medicine guinea pig cycle and being jerked around from one to another so it is no wonder I was having trouble.Anyway,I was off meds for a pretty good chunk of time at one point in 05 and was going through a very stressful time.Trying to sell a house,find another one,and move.LONG stories,but the stress was getting to me and stupid me listened to my councilor(at the time)who said maybe you should go back on melds,it might help,even for a while,I needed a " jump start " .HA Well,I listened to her,wish I didn't,went back to the guy(Dr.)in her office I really never liked from the start.He was the guy jerking me around on meds for a long time already. Anyway,in June of 05 he put me on LAMICTAL!He never should have,there was never enough reason to put me on such a med.In the first week of taking it my legs were hurting and I had trouble going up a flight of stairs when I was at the mall with my kids.I called him,of course it took 3 calls later to talk to him.He dismissed me,said " he never heard of that happening " and advised to keep taking it.Stupid me did,for about 3 months,I then weaned off as I could take the discomfort anymore and my legs and feet hurt.I was off by Sept.early Oct.of 05. I started going through hell,I didn't know at the time what was going on.My pain was escalating everywhere.My back was killing me like someone was stabbing me,my face,legs,arm,were tingling, things got worse and worse.Long short,I ended up in the hospital for 5 days,shaking(tremors),stuttering,couldn't walk,muscle weakness,pain.The doctors didn't know what the hell was going on,they still don't for that matter even though now I do.After 5 days I was discharged,they never did give me a diagnosis but did make psycho babble implications like a possible conversion reaction or disorder.Which I will say is TOTAL crap and I have read all about it and it isn't me!I was sent home to lick my wounds,no answers,and struggle to walk and very slowly get my strength back.No meds. In Feb 05 I had my period bad,a migraine headache,cramps,back hurt etc.At 1:30 in the afternoon Feb 2nd I took a 500mg Hydrocodine.I felt better and laid around all afternoon.At night it was all getting bad again.At 10:30 at night since I was going to bed and didn't think I needed anything as strong as before I took a 375mg Naproxin.Went to bed. I was JERKED AWAKE at 6 am in full anaphalatic shock. I made it to the kitchen floor,muffled to my son who was still sleeping.He came out and found me wheezing on the floor and called 911 BLESS HIS HEART! I made it to the bathroom and tried to get on the toilet but couldn't even stay upright.The paramedics found me on the floor,pants down(how humiliating),laying in my urine,feces,wheezing on the floor.In the ambulance I went,some shot slammed in my arm that hurt like hell and off to ER.Sent home the same afternoon after that ordeal,cannot take any pain meds at all,no NASAIDS,only Tylenol.NO MEDS. I had gone after that back to the doctor who dealt with me back on Nov.05 for a follow-up from the ER.She just pushed me off to a allergist.(I have since gotten my records from her and the page from when I came in after Feb. said " possible conversion reaction " ?)I almost flipped as if it wasn't for my son,poor kid 12 at the time,I wouldn't be here!I got a new doctor.(not much better though)No meds from Feb 06 to September.In response to my complaints of trouble sleeping,my doctor gave me 5-7 days of samples of Lunesta.She wrote a prescription but it never got filled.After taking it for the 5-7 days,I had no more.All of a sudden my legs were getting like bricks AGAIN,like what happened last November,it scared me and I ran back to my doctor.I said something is wrong,like what happened last year.She looked me over,my face was twitching again,my tongue quivering,fingers twitching back and forth,what they call fasculations. She then gets on the phone and speaks to a neurologist on the phone.She was thinking I had either secondary Parkinson's or early onset Parkinson's disease.WHATEVER! She put me on Sinemet!This was just this past October 06.The first week I had side effect,my neck was killing me,hot flashes,sweating,BUT the good side effects were the best " at the time " ,I had total euphoria,high,felt HAPPY, was even laughing for no reason and my daughter said what's so funny Mom " .LOL The withdrawal part when the meds started to wear off was the worst and worse then before I was given any,It was upped and upped.I got to 4X's a day every 5 hours and felt good.My legs were strong,I was cleaning my house,and then was sent to that stupid Neurologist from the phone. He said to stop taking the Sinemet one tab a day over 3 weeks.Geesh,so I go home and do as he says.As soon as I cut out one pill within a day my body was freaking.My face was twitching,that night after my med at 10 pm a got a rash on my left leg.I was like great,here we go again,I hadn't seen that rash in 3 years since I WAS ON EFFEXOR! I took Benadryl and went to bed.Well,don't ya know I was JERKED AWAKE AGAIN,the same way like in Feb.My head was spinning and pounding,I was soaked in sweat and passed out.I woke again at 6 am with swollen hands and hives! Yet I to this day have had 3 doctors say to me " I have prescribe Sinemet to hundreds of patients and none ever allergic to it " ! Like they don't believe me or something!I never took any more.I ended up in October at the ER 3 times with shortness of breath and difficulty breathing,heart palpitations and chest pain. In November,the last medication I have taken,and the last one I will ever take as far as I'm concerned,was Zythromax for a sinus infection,again a side effect of taking the other med.I took ONE 500 mg tablet and within an hour had trouble breathing,hour 1/2 chest pain,diarrhea.This went on for a week or so and Benadryl was my best friend again and still is. Here I am,now living with ALL the after math.I have terrible muscle cramps in my legs,my right worse than me left,the muscle above my knee is like a rock and is there hurting 24-7 all the time,nothing relieves it.I have vision trouble which I never had before Lamictal, always 20/20 vision and now cant read.My legs do not have normal strengh and tire very quickly and hurt all the time. I could go on and on but I'll spare you any more.This is where I am now.I am better than last year in October,but this Sinemet ordeal I feel damaged me more and set me back all over again.No doctor can even confirm what is wrong! Thanks for listening,sorry so long,that's another reason I dint post it before. Beth --- magnoliaig <LEstill491@...> wrote: > > > > > > Thanks Beth I was wondering if there was anyone > on > > > this group who was > > > encouraging. I appreciate that. I too have a > story. > > > Typed so many times just can't > > > do it no more hahaha. I am on 7 days OFF. and I > > > still feel like crap and have > > > the brain waves. I will NEVER go on an > > > antidepressant again. EVER. Still > > > battling but winning the war. I just wish I knew > > > when the end would come. Thanks > > > again. Jodi > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > Owned By: > === message truncated === Owned By: U2 " Dori " (White Chicken) CAG " Oliver " Lovie " Peaches " Std.Poodle " " Katrina Mutt " Dixie " Hubby " " and 2 Rug Rats " Elisha & Ben " God Bless All Creatures Great & Small,We Too Love Them All! ________________________________________________________________________________\ ____ Want to start your own business? Learn how on Small Business. http://smallbusiness./r-index Quote Link to comment Share on other sites More sharing options...
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