Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 DR MISRA, I CHATTED BRIEFLY WITH YOU LAST CHAT(6TH). AS OF THIS MOMEN(LITERALLY) I AM AWAITIN A CALL FROM MY DOCTORS NURSING STAFF TO GO AND PICKUP MY COMBO MEDS. I AM 46 AND WAS DIAGNOSED WITH HEP C ON 7-26-99 WHILE IN THE HOSPITAL FOR REMOVAL OF A LUNG(WHICH WAS REMOVED) THAT WAS LEFT USELESS BY A BEGINE TUMOR. MY AST/ALT COUNTS WERE HIGH AT FIRST THEN HAVE BEEN NORMAL FOR THREE MONTHS.DOC SAID I HAD MILD FIBROSIS AND NO ONE WAS IN A HURRY TO GET STARTED ON TREATMENTS. I ASKED MY DOCTOR A MONTH AGO IF I NEEDED A BIOPSY AND HE SAID NO WE WOULD JUST START TREATMENTS IN JAN. I TOO AM WAITING FOR BETTER TREATMENTS SINCE I'VE HEARD SO MUCH NEGATIVE ABOUT THE STATUS QUO. KNOWING MY CONDITION, IS THERE ANYTHING EXTRA YOU COULD SUGGEST I NEED TO BE AWARE OF DURING TREATMENT? THANKS A LOT JWGUITAR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 DR MISRA, I CHATTED BRIEFLY WITH YOU LAST CHAT(6TH). AS OF THIS MOMEN(LITERALLY) I AM AWAITIN A CALL FROM MY DOCTORS NURSING STAFF TO GO AND PICKUP MY COMBO MEDS. I AM 46 AND WAS DIAGNOSED WITH HEP C ON 7-26-99 WHILE IN THE HOSPITAL FOR REMOVAL OF A LUNG(WHICH WAS REMOVED) THAT WAS LEFT USELESS BY A BEGINE TUMOR. MY AST/ALT COUNTS WERE HIGH AT FIRST THEN HAVE BEEN NORMAL FOR THREE MONTHS.DOC SAID I HAD MILD FIBROSIS AND NO ONE WAS IN A HURRY TO GET STARTED ON TREATMENTS. I ASKED MY DOCTOR A MONTH AGO IF I NEEDED A BIOPSY AND HE SAID NO WE WOULD JUST START TREATMENTS IN JAN. I TOO AM WAITING FOR BETTER TREATMENTS SINCE I'VE HEARD SO MUCH NEGATIVE ABOUT THE STATUS QUO. KNOWING MY CONDITION, IS THERE ANYTHING EXTRA YOU COULD SUGGEST I NEED TO BE AWARE OF DURING TREATMENT? THANKS A LOT JWGUITAR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 DR MISRA, I CHATTED BRIEFLY WITH YOU LAST CHAT(6TH). AS OF THIS MOMEN(LITERALLY) I AM AWAITIN A CALL FROM MY DOCTORS NURSING STAFF TO GO AND PICKUP MY COMBO MEDS. I AM 46 AND WAS DIAGNOSED WITH HEP C ON 7-26-99 WHILE IN THE HOSPITAL FOR REMOVAL OF A LUNG(WHICH WAS REMOVED) THAT WAS LEFT USELESS BY A BEGINE TUMOR. MY AST/ALT COUNTS WERE HIGH AT FIRST THEN HAVE BEEN NORMAL FOR THREE MONTHS.DOC SAID I HAD MILD FIBROSIS AND NO ONE WAS IN A HURRY TO GET STARTED ON TREATMENTS. I ASKED MY DOCTOR A MONTH AGO IF I NEEDED A BIOPSY AND HE SAID NO WE WOULD JUST START TREATMENTS IN JAN. I TOO AM WAITING FOR BETTER TREATMENTS SINCE I'VE HEARD SO MUCH NEGATIVE ABOUT THE STATUS QUO. KNOWING MY CONDITION, IS THERE ANYTHING EXTRA YOU COULD SUGGEST I NEED TO BE AWARE OF DURING TREATMENT? THANKS A LOT JWGUITAR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 DR MISRA, I CHATTED BRIEFLY WITH YOU LAST CHAT(6TH). AS OF THIS MOMEN(LITERALLY) I AM AWAITIN A CALL FROM MY DOCTORS NURSING STAFF TO GO AND PICKUP MY COMBO MEDS. I AM 46 AND WAS DIAGNOSED WITH HEP C ON 7-26-99 WHILE IN THE HOSPITAL FOR REMOVAL OF A LUNG(WHICH WAS REMOVED) THAT WAS LEFT USELESS BY A BEGINE TUMOR. MY AST/ALT COUNTS WERE HIGH AT FIRST THEN HAVE BEEN NORMAL FOR THREE MONTHS.DOC SAID I HAD MILD FIBROSIS AND NO ONE WAS IN A HURRY TO GET STARTED ON TREATMENTS. I ASKED MY DOCTOR A MONTH AGO IF I NEEDED A BIOPSY AND HE SAID NO WE WOULD JUST START TREATMENTS IN JAN. I TOO AM WAITING FOR BETTER TREATMENTS SINCE I'VE HEARD SO MUCH NEGATIVE ABOUT THE STATUS QUO. KNOWING MY CONDITION, IS THERE ANYTHING EXTRA YOU COULD SUGGEST I NEED TO BE AWARE OF DURING TREATMENT? THANKS A LOT JWGUITAR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 Hi Doc, I am Connie I was daidnosed last February with Hep C and had antibodies to Hep B in blood. After cat scan and liver biopsy I started meds in March 99. The hepatitus came from when I was in a burn unit in 91 and transfused with 28 pints of blood during grafting operation, (burned 70% grafted 40%). I lost my job 9/29/99 so I no longer have insurance. I have been off the combo treatment since beginning of October. The manufacturer of the combo will furnish the meds at no cost through Commitment to care, but, I have ITP so blood work was being followed weekly and was told to discontinue meds. At the last time bloodwork was done on 9/18/99 my viral load (I think that is what they called it)had dropped from 7.5 million to 350,000 and ALT and AST were in the 50 to 60 ranges. I had some pre op blood work done on 11/22/99 and ALT and AST had jumped up to 140 and 120 area. My bleeding time was 3 times more than normal so bilateral Carpal Tunnel syndrome surgery was not done. What I want to know how bad is it with the ALT and AST going up that much in about 6 weeks? I have no idea what levels are now, I have 2 weeks supply of the combo left but was told to stop. You must be a really nice person to do this because I can not get any Dr to even speak to me unless I pay for an appointment.....Thanks Connie --- Doc <gidoc@...> wrote: > My opinion is as follows: > > No need to despair but naturopathy/homeo is not the > treatment of choice > here. > > >After reading about interferon and the side effects > and the rate of > success, > I decided NOT to take it and went to a > nutritionist/homeopath who put me > on><snip> > >My counts never go down more than that, but never > go up either. My PCR > last > October was at 7 million. I had a biopsy last > January which showed a > mild > fibrosis, moderate inflammation>The hepatologist > wants me to go on combo > treatment, I don't. I am feeling > well, and my counts haven't moved up in the last 5 > years..><snip> > > > >What I would like to know is: > 1. what are the chances of my liver getting more > damaged, knowing that > the > LFTs are under control and the PCR hasn't gone up in > the last five > years?> > > Hep C is a slowly progressive disease and produces > no symptoms thus > lulling you to believe that you are getting well. > You have a high HCV > load , low AST/ALT, your genotype is not known, you > are thus going to be > difficult to treat . Nothing may happen now if you > do not take therapy > but slowly and surely you run the risk of developing > cirrhosis / HCC. > > >2. keeping my liver free of toxic residues (as much > as possible) - > could > that help the liver heal?> > > Continue your present mode of therapy, that may help > in this. > > >3. is there any new treatment coming up soon with > less side effects and > more response than the ones available at the > moment?> > You should have a genotyping done, then consider > IFN +Ribavirin > with or without high dose daily induction therapy, > depending upon > genotype of HCV. > Initial aggressive therapy is best for naive > patients like you. > > >4. do you believe in alternative treatments and do > you have any > experience > in that matter?> > Not for Hep C , there is nothing that I know of but > I am open to any > suggestions. Treatment you are on now is like a > placebo and is not > likely to effect a cure, which is what you should > aim for nothing less. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 Hi Doc, I am Connie I was daidnosed last February with Hep C and had antibodies to Hep B in blood. After cat scan and liver biopsy I started meds in March 99. The hepatitus came from when I was in a burn unit in 91 and transfused with 28 pints of blood during grafting operation, (burned 70% grafted 40%). I lost my job 9/29/99 so I no longer have insurance. I have been off the combo treatment since beginning of October. The manufacturer of the combo will furnish the meds at no cost through Commitment to care, but, I have ITP so blood work was being followed weekly and was told to discontinue meds. At the last time bloodwork was done on 9/18/99 my viral load (I think that is what they called it)had dropped from 7.5 million to 350,000 and ALT and AST were in the 50 to 60 ranges. I had some pre op blood work done on 11/22/99 and ALT and AST had jumped up to 140 and 120 area. My bleeding time was 3 times more than normal so bilateral Carpal Tunnel syndrome surgery was not done. What I want to know how bad is it with the ALT and AST going up that much in about 6 weeks? I have no idea what levels are now, I have 2 weeks supply of the combo left but was told to stop. You must be a really nice person to do this because I can not get any Dr to even speak to me unless I pay for an appointment.....Thanks Connie --- Doc <gidoc@...> wrote: > My opinion is as follows: > > No need to despair but naturopathy/homeo is not the > treatment of choice > here. > > >After reading about interferon and the side effects > and the rate of > success, > I decided NOT to take it and went to a > nutritionist/homeopath who put me > on><snip> > >My counts never go down more than that, but never > go up either. My PCR > last > October was at 7 million. I had a biopsy last > January which showed a > mild > fibrosis, moderate inflammation>The hepatologist > wants me to go on combo > treatment, I don't. I am feeling > well, and my counts haven't moved up in the last 5 > years..><snip> > > > >What I would like to know is: > 1. what are the chances of my liver getting more > damaged, knowing that > the > LFTs are under control and the PCR hasn't gone up in > the last five > years?> > > Hep C is a slowly progressive disease and produces > no symptoms thus > lulling you to believe that you are getting well. > You have a high HCV > load , low AST/ALT, your genotype is not known, you > are thus going to be > difficult to treat . Nothing may happen now if you > do not take therapy > but slowly and surely you run the risk of developing > cirrhosis / HCC. > > >2. keeping my liver free of toxic residues (as much > as possible) - > could > that help the liver heal?> > > Continue your present mode of therapy, that may help > in this. > > >3. is there any new treatment coming up soon with > less side effects and > more response than the ones available at the > moment?> > You should have a genotyping done, then consider > IFN +Ribavirin > with or without high dose daily induction therapy, > depending upon > genotype of HCV. > Initial aggressive therapy is best for naive > patients like you. > > >4. do you believe in alternative treatments and do > you have any > experience > in that matter?> > Not for Hep C , there is nothing that I know of but > I am open to any > suggestions. Treatment you are on now is like a > placebo and is not > likely to effect a cure, which is what you should > aim for nothing less. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 Hi Doc, I am Connie I was daidnosed last February with Hep C and had antibodies to Hep B in blood. After cat scan and liver biopsy I started meds in March 99. The hepatitus came from when I was in a burn unit in 91 and transfused with 28 pints of blood during grafting operation, (burned 70% grafted 40%). I lost my job 9/29/99 so I no longer have insurance. I have been off the combo treatment since beginning of October. The manufacturer of the combo will furnish the meds at no cost through Commitment to care, but, I have ITP so blood work was being followed weekly and was told to discontinue meds. At the last time bloodwork was done on 9/18/99 my viral load (I think that is what they called it)had dropped from 7.5 million to 350,000 and ALT and AST were in the 50 to 60 ranges. I had some pre op blood work done on 11/22/99 and ALT and AST had jumped up to 140 and 120 area. My bleeding time was 3 times more than normal so bilateral Carpal Tunnel syndrome surgery was not done. What I want to know how bad is it with the ALT and AST going up that much in about 6 weeks? I have no idea what levels are now, I have 2 weeks supply of the combo left but was told to stop. You must be a really nice person to do this because I can not get any Dr to even speak to me unless I pay for an appointment.....Thanks Connie --- Doc <gidoc@...> wrote: > My opinion is as follows: > > No need to despair but naturopathy/homeo is not the > treatment of choice > here. > > >After reading about interferon and the side effects > and the rate of > success, > I decided NOT to take it and went to a > nutritionist/homeopath who put me > on><snip> > >My counts never go down more than that, but never > go up either. My PCR > last > October was at 7 million. I had a biopsy last > January which showed a > mild > fibrosis, moderate inflammation>The hepatologist > wants me to go on combo > treatment, I don't. I am feeling > well, and my counts haven't moved up in the last 5 > years..><snip> > > > >What I would like to know is: > 1. what are the chances of my liver getting more > damaged, knowing that > the > LFTs are under control and the PCR hasn't gone up in > the last five > years?> > > Hep C is a slowly progressive disease and produces > no symptoms thus > lulling you to believe that you are getting well. > You have a high HCV > load , low AST/ALT, your genotype is not known, you > are thus going to be > difficult to treat . Nothing may happen now if you > do not take therapy > but slowly and surely you run the risk of developing > cirrhosis / HCC. > > >2. keeping my liver free of toxic residues (as much > as possible) - > could > that help the liver heal?> > > Continue your present mode of therapy, that may help > in this. > > >3. is there any new treatment coming up soon with > less side effects and > more response than the ones available at the > moment?> > You should have a genotyping done, then consider > IFN +Ribavirin > with or without high dose daily induction therapy, > depending upon > genotype of HCV. > Initial aggressive therapy is best for naive > patients like you. > > >4. do you believe in alternative treatments and do > you have any > experience > in that matter?> > Not for Hep C , there is nothing that I know of but > I am open to any > suggestions. Treatment you are on now is like a > placebo and is not > likely to effect a cure, which is what you should > aim for nothing less. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 Hi Doc, I am Connie I was daidnosed last February with Hep C and had antibodies to Hep B in blood. After cat scan and liver biopsy I started meds in March 99. The hepatitus came from when I was in a burn unit in 91 and transfused with 28 pints of blood during grafting operation, (burned 70% grafted 40%). I lost my job 9/29/99 so I no longer have insurance. I have been off the combo treatment since beginning of October. The manufacturer of the combo will furnish the meds at no cost through Commitment to care, but, I have ITP so blood work was being followed weekly and was told to discontinue meds. At the last time bloodwork was done on 9/18/99 my viral load (I think that is what they called it)had dropped from 7.5 million to 350,000 and ALT and AST were in the 50 to 60 ranges. I had some pre op blood work done on 11/22/99 and ALT and AST had jumped up to 140 and 120 area. My bleeding time was 3 times more than normal so bilateral Carpal Tunnel syndrome surgery was not done. What I want to know how bad is it with the ALT and AST going up that much in about 6 weeks? I have no idea what levels are now, I have 2 weeks supply of the combo left but was told to stop. You must be a really nice person to do this because I can not get any Dr to even speak to me unless I pay for an appointment.....Thanks Connie --- Doc <gidoc@...> wrote: > My opinion is as follows: > > No need to despair but naturopathy/homeo is not the > treatment of choice > here. > > >After reading about interferon and the side effects > and the rate of > success, > I decided NOT to take it and went to a > nutritionist/homeopath who put me > on><snip> > >My counts never go down more than that, but never > go up either. My PCR > last > October was at 7 million. I had a biopsy last > January which showed a > mild > fibrosis, moderate inflammation>The hepatologist > wants me to go on combo > treatment, I don't. I am feeling > well, and my counts haven't moved up in the last 5 > years..><snip> > > > >What I would like to know is: > 1. what are the chances of my liver getting more > damaged, knowing that > the > LFTs are under control and the PCR hasn't gone up in > the last five > years?> > > Hep C is a slowly progressive disease and produces > no symptoms thus > lulling you to believe that you are getting well. > You have a high HCV > load , low AST/ALT, your genotype is not known, you > are thus going to be > difficult to treat . Nothing may happen now if you > do not take therapy > but slowly and surely you run the risk of developing > cirrhosis / HCC. > > >2. keeping my liver free of toxic residues (as much > as possible) - > could > that help the liver heal?> > > Continue your present mode of therapy, that may help > in this. > > >3. is there any new treatment coming up soon with > less side effects and > more response than the ones available at the > moment?> > You should have a genotyping done, then consider > IFN +Ribavirin > with or without high dose daily induction therapy, > depending upon > genotype of HCV. > Initial aggressive therapy is best for naive > patients like you. > > >4. do you believe in alternative treatments and do > you have any > experience > in that matter?> > Not for Hep C , there is nothing that I know of but > I am open to any > suggestions. Treatment you are on now is like a > placebo and is not > likely to effect a cure, which is what you should > aim for nothing less. > > Quote Link to comment Share on other sites More sharing options...
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