Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Hey Pat....I am in my second year of treatment..hang in there Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Hey Pat....I am in my second year of treatment..hang in there Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Hey Pat....I am in my second year of treatment..hang in there Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Hey Pat....I am in my second year of treatment..hang in there Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Marty, Thank you for your thoughts. I understand how hard it must have been for you both. I am so happy your wife is undetected and finished with treatment! I would like to share your letter with my husband if I may? We discussed whether to do treatment or not to do treatment on the way home from work Friday, weighing the pros and cons. Lots of cons. However, two factors really stand out - I feel awful with this hep, and there's a chance to be rid of this virus. I'm 44, 45 in a few months. I'm premenopausal. I've many years left to live and enjoy my grandchildren. If I continue on as I have been, my hep symptoms making me so very tired and achey, I can see me quitting work in a year or two, just unable to maintain a regular job. I wish I could quit now. Many days I do not want to get out of bed. However, if I do treatment now, I've a chance to live the rest of my life hep free, to be able to return to some kind of " normalcy " . As a creative person, this means a lot to me. Then there are the cons of treatment - illness, possible thyroid, diabetes, heart or lung problems, etc. Yet those are small chances and most of them, if I understand what I read correctly, go away after treatment if they happen at all. When my husband first heard my gastro speak at our support group, he had tears in his eyes. I think it was the first time in 10 years he realized the mortality of this disease. He wouldn't discuss it with me for 2 weeks after, but finally did. I had been living with the symptoms since 89 and it amazed me that he was just now, in 99, beginning to understand the scope of hepatitis C. He's a wonderful husband, very loving and attentive, yet like anyone else who has not experienced a chronic disease, he just had no concept. I have a viral load of about 1.3 million. The doc says low viral load is good, easier to get into remission. My genotype is 1b, not great, but, like your wife, I do know some people with the same genotype who have gone into remission. My biopsy was " very mild fibrosis/inflamation " . So do I wait around perhaps 10 years and I'm 55 or older for treatment, still feeling so bad I can barely keep a job, already having to alter my career path from a stressful demanding exciting job I love to one where I sit on my bottom all day doing mindless work, or do I go for the treatment, giving me a chance to rid myself of this dibilitating virus, yet knowing the treatment is no fun ride? Yes, I'm scared to death of treatment. I haved talked to many many heppers over the years, both in person and online, and know pretty much all the sides. If I do treatment, I still must work. That I think will be the hardest part. Can I do it? Doc says if I want to do treatment, and then it gets too much for me, I can stop and wait for something else because I do have some time. That at least is an option " out " . I like having options. I'm so very tired of feeling crummy every day, of not doing things I could be doing. For someone who used to press 150 lbs 3 times a week and jazzercize when she discovered she had hep 10 years ago, today I'm in pretty sad shape. Marty, give your wife a big hug for me. Does she know you're on the list? I think we would all like to congratulate her. She's a hep hero as far as I'm concerned! Yall's comments are appreciated. I'm scared of treatment cause I know it will be hard to continue working with it, and I'm scared not to do treatment cause it's already hard to work everyday feeling so icky. Damned if ya do and damned if ya don't. Thanks for listening alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Marty, Thank you for your thoughts. I understand how hard it must have been for you both. I am so happy your wife is undetected and finished with treatment! I would like to share your letter with my husband if I may? We discussed whether to do treatment or not to do treatment on the way home from work Friday, weighing the pros and cons. Lots of cons. However, two factors really stand out - I feel awful with this hep, and there's a chance to be rid of this virus. I'm 44, 45 in a few months. I'm premenopausal. I've many years left to live and enjoy my grandchildren. If I continue on as I have been, my hep symptoms making me so very tired and achey, I can see me quitting work in a year or two, just unable to maintain a regular job. I wish I could quit now. Many days I do not want to get out of bed. However, if I do treatment now, I've a chance to live the rest of my life hep free, to be able to return to some kind of " normalcy " . As a creative person, this means a lot to me. Then there are the cons of treatment - illness, possible thyroid, diabetes, heart or lung problems, etc. Yet those are small chances and most of them, if I understand what I read correctly, go away after treatment if they happen at all. When my husband first heard my gastro speak at our support group, he had tears in his eyes. I think it was the first time in 10 years he realized the mortality of this disease. He wouldn't discuss it with me for 2 weeks after, but finally did. I had been living with the symptoms since 89 and it amazed me that he was just now, in 99, beginning to understand the scope of hepatitis C. He's a wonderful husband, very loving and attentive, yet like anyone else who has not experienced a chronic disease, he just had no concept. I have a viral load of about 1.3 million. The doc says low viral load is good, easier to get into remission. My genotype is 1b, not great, but, like your wife, I do know some people with the same genotype who have gone into remission. My biopsy was " very mild fibrosis/inflamation " . So do I wait around perhaps 10 years and I'm 55 or older for treatment, still feeling so bad I can barely keep a job, already having to alter my career path from a stressful demanding exciting job I love to one where I sit on my bottom all day doing mindless work, or do I go for the treatment, giving me a chance to rid myself of this dibilitating virus, yet knowing the treatment is no fun ride? Yes, I'm scared to death of treatment. I haved talked to many many heppers over the years, both in person and online, and know pretty much all the sides. If I do treatment, I still must work. That I think will be the hardest part. Can I do it? Doc says if I want to do treatment, and then it gets too much for me, I can stop and wait for something else because I do have some time. That at least is an option " out " . I like having options. I'm so very tired of feeling crummy every day, of not doing things I could be doing. For someone who used to press 150 lbs 3 times a week and jazzercize when she discovered she had hep 10 years ago, today I'm in pretty sad shape. Marty, give your wife a big hug for me. Does she know you're on the list? I think we would all like to congratulate her. She's a hep hero as far as I'm concerned! Yall's comments are appreciated. I'm scared of treatment cause I know it will be hard to continue working with it, and I'm scared not to do treatment cause it's already hard to work everyday feeling so icky. Damned if ya do and damned if ya don't. Thanks for listening alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Marty, Thank you for your thoughts. I understand how hard it must have been for you both. I am so happy your wife is undetected and finished with treatment! I would like to share your letter with my husband if I may? We discussed whether to do treatment or not to do treatment on the way home from work Friday, weighing the pros and cons. Lots of cons. However, two factors really stand out - I feel awful with this hep, and there's a chance to be rid of this virus. I'm 44, 45 in a few months. I'm premenopausal. I've many years left to live and enjoy my grandchildren. If I continue on as I have been, my hep symptoms making me so very tired and achey, I can see me quitting work in a year or two, just unable to maintain a regular job. I wish I could quit now. Many days I do not want to get out of bed. However, if I do treatment now, I've a chance to live the rest of my life hep free, to be able to return to some kind of " normalcy " . As a creative person, this means a lot to me. Then there are the cons of treatment - illness, possible thyroid, diabetes, heart or lung problems, etc. Yet those are small chances and most of them, if I understand what I read correctly, go away after treatment if they happen at all. When my husband first heard my gastro speak at our support group, he had tears in his eyes. I think it was the first time in 10 years he realized the mortality of this disease. He wouldn't discuss it with me for 2 weeks after, but finally did. I had been living with the symptoms since 89 and it amazed me that he was just now, in 99, beginning to understand the scope of hepatitis C. He's a wonderful husband, very loving and attentive, yet like anyone else who has not experienced a chronic disease, he just had no concept. I have a viral load of about 1.3 million. The doc says low viral load is good, easier to get into remission. My genotype is 1b, not great, but, like your wife, I do know some people with the same genotype who have gone into remission. My biopsy was " very mild fibrosis/inflamation " . So do I wait around perhaps 10 years and I'm 55 or older for treatment, still feeling so bad I can barely keep a job, already having to alter my career path from a stressful demanding exciting job I love to one where I sit on my bottom all day doing mindless work, or do I go for the treatment, giving me a chance to rid myself of this dibilitating virus, yet knowing the treatment is no fun ride? Yes, I'm scared to death of treatment. I haved talked to many many heppers over the years, both in person and online, and know pretty much all the sides. If I do treatment, I still must work. That I think will be the hardest part. Can I do it? Doc says if I want to do treatment, and then it gets too much for me, I can stop and wait for something else because I do have some time. That at least is an option " out " . I like having options. I'm so very tired of feeling crummy every day, of not doing things I could be doing. For someone who used to press 150 lbs 3 times a week and jazzercize when she discovered she had hep 10 years ago, today I'm in pretty sad shape. Marty, give your wife a big hug for me. Does she know you're on the list? I think we would all like to congratulate her. She's a hep hero as far as I'm concerned! Yall's comments are appreciated. I'm scared of treatment cause I know it will be hard to continue working with it, and I'm scared not to do treatment cause it's already hard to work everyday feeling so icky. Damned if ya do and damned if ya don't. Thanks for listening alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Marty, Thank you for your thoughts. I understand how hard it must have been for you both. I am so happy your wife is undetected and finished with treatment! I would like to share your letter with my husband if I may? We discussed whether to do treatment or not to do treatment on the way home from work Friday, weighing the pros and cons. Lots of cons. However, two factors really stand out - I feel awful with this hep, and there's a chance to be rid of this virus. I'm 44, 45 in a few months. I'm premenopausal. I've many years left to live and enjoy my grandchildren. If I continue on as I have been, my hep symptoms making me so very tired and achey, I can see me quitting work in a year or two, just unable to maintain a regular job. I wish I could quit now. Many days I do not want to get out of bed. However, if I do treatment now, I've a chance to live the rest of my life hep free, to be able to return to some kind of " normalcy " . As a creative person, this means a lot to me. Then there are the cons of treatment - illness, possible thyroid, diabetes, heart or lung problems, etc. Yet those are small chances and most of them, if I understand what I read correctly, go away after treatment if they happen at all. When my husband first heard my gastro speak at our support group, he had tears in his eyes. I think it was the first time in 10 years he realized the mortality of this disease. He wouldn't discuss it with me for 2 weeks after, but finally did. I had been living with the symptoms since 89 and it amazed me that he was just now, in 99, beginning to understand the scope of hepatitis C. He's a wonderful husband, very loving and attentive, yet like anyone else who has not experienced a chronic disease, he just had no concept. I have a viral load of about 1.3 million. The doc says low viral load is good, easier to get into remission. My genotype is 1b, not great, but, like your wife, I do know some people with the same genotype who have gone into remission. My biopsy was " very mild fibrosis/inflamation " . So do I wait around perhaps 10 years and I'm 55 or older for treatment, still feeling so bad I can barely keep a job, already having to alter my career path from a stressful demanding exciting job I love to one where I sit on my bottom all day doing mindless work, or do I go for the treatment, giving me a chance to rid myself of this dibilitating virus, yet knowing the treatment is no fun ride? Yes, I'm scared to death of treatment. I haved talked to many many heppers over the years, both in person and online, and know pretty much all the sides. If I do treatment, I still must work. That I think will be the hardest part. Can I do it? Doc says if I want to do treatment, and then it gets too much for me, I can stop and wait for something else because I do have some time. That at least is an option " out " . I like having options. I'm so very tired of feeling crummy every day, of not doing things I could be doing. For someone who used to press 150 lbs 3 times a week and jazzercize when she discovered she had hep 10 years ago, today I'm in pretty sad shape. Marty, give your wife a big hug for me. Does she know you're on the list? I think we would all like to congratulate her. She's a hep hero as far as I'm concerned! Yall's comments are appreciated. I'm scared of treatment cause I know it will be hard to continue working with it, and I'm scared not to do treatment cause it's already hard to work everyday feeling so icky. Damned if ya do and damned if ya don't. Thanks for listening alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
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