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Re: no pain per se, but neurological symptoms- To Debbie

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Hi Debbie

Wow, you and I sound very much alike.

Maybe you and I can exchange emails and keep in touch.

I met on this group and we try to keep in touch, although I am

very guilty of not writing since many times I am not up to it.

I don't live in Florida but my parents and oldest daughter does.

They live in Boynton Beach. I live in upstate New York. I try to

visit them in the winter and this winter spent 3 months there,

although it was very difficult for them to understand what I am going

through with the withdrawals and my neck. They always tell me to suck

it up, get out and just deal with it. But its not that easy as you

know.

I too try to distract myself but it is always with me and

distractions don't usually work.

I have a really tough time sleeping since my neck just tightens up so

much it feels like my skin is stretching and twisting, Now my

forehead feels this way too and it pushes down on my eyes and they

swell up and I get even more dizzy. It's the most horrible feeling,

About the incident with the benzos, wow, haven't heard that word used

except on my benzo support group, I too almost stopped cold turkey,

but not out of choice but because I couldn't get a doctor up here to

prescribe me more and I ran out, ended up in the ER in severe

withdrawals and they had to re-instate me. I was on the xanax for

only 3 months but because xanax is very short acting and tightly

binds to the neurons, addiction to it happens very quickly, usually

in as little as a few days.

I belong to the big benzo board and they told me I had to use valium

a long acting benzo to get off the xanax and I did a very slow 18

months taper to get down to practically 0 from 20mg of valium which

is the equivalency of 1mg of xanax. I am off now almost 7 months and

because benzos are very powerful muscle relaxers, especially valium,

the absence of taking them are causing my muscles to do weird things

and the w/d has affected my most weakest part of my body, my neck.

Since a lot of the things I have now I didn't have before ingesting

the benzos, I contribute to withdrawals and am hoping that within a

year or 18 months when most people recover, some of these crazy

symptoms will go away or diminish some and I can go back to having

what I had before. Not that they were fun to live with, but somehow I

managed.

So you would not suggest neck surgery for my symptoms which isn't

pain. I do ache alot there especially when the weather changes or a

storm is coming in. I told my husband that I should have been a

weather girl since I would get the forecast right everytime, lol

Maybe you, and I can correspond since we seem to have a lot in

common. That would be great.

Thank you so much for responding to my post.

Take care of yourself,

Love,

Nanci

P.S sorry to the group for taking up your time regarding the benzos.

> > > >

> > > >

> > > >

> > > > Hi everyone,

> > > >

> > > > I have had this awful neck problem for years and years and my

> MRI

> > > > shows loss of natural curve, disc problems in C-3 and C-4 and

> C-6

> > > and

> > > > 7 with arthritis and foramen narrowing.

> > > >

> > > > I have alot of neurological problems from dizziness,

> > > lightheadedness,

> > > > forehead tightness and spasms, muscle rigidity, neuralgia,

eye

> > > > involvement, spaced out feeling, photosensitivity, and so

many

> > more

> > > > neurological symptoms.

> > > >

> > > > My question is this...why do I not hear anyone talking about

> > these

> > > > problems? I understand that pinched nerves and bulging discs

> > cause

> > > > pain, but no one ever talks about other symptoms like I have.

> > > > Am I the only one?

> > > > Any why after all these years of chiropractic, PT, massage,

> > > > accupuncture, heat, ice therapy, epsom salt baths, hot

> showers,

> > > > gadgets galore, special neck pillows, etc, did I ever get any

> > > relief

> > > > of my symptoms?

> > > >

> > > > Am I a freak and can't understand why any of my neurological

> > > symptoms

> > > > ever go away? This morning I lifted my head off the pillow

and

> > the

> > > > room started to spin. The vertigo is the most awful feeling

in

> > the

> > > > world. If you ever had it, you understand how terrible it is.

> > > >

> > > > 2 neurologists, one a surgeon and 3 PT doctors, not just

> > > therapists,

> > > > told me that surgery was not warranted and it would only make

> > > things

> > > > worse and I would regret having it, but nothing has eased

> these

> > > > terrible sensations I have suffered from, from over 25 years.

> > > > It has stopped me from working and driving and being a proper

> > > mother

> > > > and wife.

> > > >

> > > > Add into the neck situation, a terrible valium withdrawal

> which I

> > > am

> > > > still going through now, and menopauase to boot.

> > > > It's just too much for me take most days and gets me so

> depressed

> > > > that crying is a daily event. Have thought of ending it many

> > times,

> > > > not because I want to die, but the misery of it all is just

> too

> > > much

> > > > to take and I just want some peace and relief.

> > > >

> > > > Does no one hear have neurological symptoms that the neck

> causes?

> > > > I am just curious because no one ever talks about having

> > symptoms,

> > > > just pain which is horribe in itself.

> > > >

> > > > Thanks so much

> > > > Wishing you all a very pleasant day

> > > >

> > > > Take care of yourselves,

> > > > Love,

> > > > Nanci

> > > >

> > >

> >

>

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Share on other sites

Guest guest

Hi Debbie

Wow, you and I sound very much alike.

Maybe you and I can exchange emails and keep in touch.

I met on this group and we try to keep in touch, although I am

very guilty of not writing since many times I am not up to it.

I don't live in Florida but my parents and oldest daughter does.

They live in Boynton Beach. I live in upstate New York. I try to

visit them in the winter and this winter spent 3 months there,

although it was very difficult for them to understand what I am going

through with the withdrawals and my neck. They always tell me to suck

it up, get out and just deal with it. But its not that easy as you

know.

I too try to distract myself but it is always with me and

distractions don't usually work.

I have a really tough time sleeping since my neck just tightens up so

much it feels like my skin is stretching and twisting, Now my

forehead feels this way too and it pushes down on my eyes and they

swell up and I get even more dizzy. It's the most horrible feeling,

About the incident with the benzos, wow, haven't heard that word used

except on my benzo support group, I too almost stopped cold turkey,

but not out of choice but because I couldn't get a doctor up here to

prescribe me more and I ran out, ended up in the ER in severe

withdrawals and they had to re-instate me. I was on the xanax for

only 3 months but because xanax is very short acting and tightly

binds to the neurons, addiction to it happens very quickly, usually

in as little as a few days.

I belong to the big benzo board and they told me I had to use valium

a long acting benzo to get off the xanax and I did a very slow 18

months taper to get down to practically 0 from 20mg of valium which

is the equivalency of 1mg of xanax. I am off now almost 7 months and

because benzos are very powerful muscle relaxers, especially valium,

the absence of taking them are causing my muscles to do weird things

and the w/d has affected my most weakest part of my body, my neck.

Since a lot of the things I have now I didn't have before ingesting

the benzos, I contribute to withdrawals and am hoping that within a

year or 18 months when most people recover, some of these crazy

symptoms will go away or diminish some and I can go back to having

what I had before. Not that they were fun to live with, but somehow I

managed.

So you would not suggest neck surgery for my symptoms which isn't

pain. I do ache alot there especially when the weather changes or a

storm is coming in. I told my husband that I should have been a

weather girl since I would get the forecast right everytime, lol

Maybe you, and I can correspond since we seem to have a lot in

common. That would be great.

Thank you so much for responding to my post.

Take care of yourself,

Love,

Nanci

P.S sorry to the group for taking up your time regarding the benzos.

> > > >

> > > >

> > > >

> > > > Hi everyone,

> > > >

> > > > I have had this awful neck problem for years and years and my

> MRI

> > > > shows loss of natural curve, disc problems in C-3 and C-4 and

> C-6

> > > and

> > > > 7 with arthritis and foramen narrowing.

> > > >

> > > > I have alot of neurological problems from dizziness,

> > > lightheadedness,

> > > > forehead tightness and spasms, muscle rigidity, neuralgia,

eye

> > > > involvement, spaced out feeling, photosensitivity, and so

many

> > more

> > > > neurological symptoms.

> > > >

> > > > My question is this...why do I not hear anyone talking about

> > these

> > > > problems? I understand that pinched nerves and bulging discs

> > cause

> > > > pain, but no one ever talks about other symptoms like I have.

> > > > Am I the only one?

> > > > Any why after all these years of chiropractic, PT, massage,

> > > > accupuncture, heat, ice therapy, epsom salt baths, hot

> showers,

> > > > gadgets galore, special neck pillows, etc, did I ever get any

> > > relief

> > > > of my symptoms?

> > > >

> > > > Am I a freak and can't understand why any of my neurological

> > > symptoms

> > > > ever go away? This morning I lifted my head off the pillow

and

> > the

> > > > room started to spin. The vertigo is the most awful feeling

in

> > the

> > > > world. If you ever had it, you understand how terrible it is.

> > > >

> > > > 2 neurologists, one a surgeon and 3 PT doctors, not just

> > > therapists,

> > > > told me that surgery was not warranted and it would only make

> > > things

> > > > worse and I would regret having it, but nothing has eased

> these

> > > > terrible sensations I have suffered from, from over 25 years.

> > > > It has stopped me from working and driving and being a proper

> > > mother

> > > > and wife.

> > > >

> > > > Add into the neck situation, a terrible valium withdrawal

> which I

> > > am

> > > > still going through now, and menopauase to boot.

> > > > It's just too much for me take most days and gets me so

> depressed

> > > > that crying is a daily event. Have thought of ending it many

> > times,

> > > > not because I want to die, but the misery of it all is just

> too

> > > much

> > > > to take and I just want some peace and relief.

> > > >

> > > > Does no one hear have neurological symptoms that the neck

> causes?

> > > > I am just curious because no one ever talks about having

> > symptoms,

> > > > just pain which is horribe in itself.

> > > >

> > > > Thanks so much

> > > > Wishing you all a very pleasant day

> > > >

> > > > Take care of yourselves,

> > > > Love,

> > > > Nanci

> > > >

> > >

> >

>

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Share on other sites

Guest guest

Hi Debbie

Wow, you and I sound very much alike.

Maybe you and I can exchange emails and keep in touch.

I met on this group and we try to keep in touch, although I am

very guilty of not writing since many times I am not up to it.

I don't live in Florida but my parents and oldest daughter does.

They live in Boynton Beach. I live in upstate New York. I try to

visit them in the winter and this winter spent 3 months there,

although it was very difficult for them to understand what I am going

through with the withdrawals and my neck. They always tell me to suck

it up, get out and just deal with it. But its not that easy as you

know.

I too try to distract myself but it is always with me and

distractions don't usually work.

I have a really tough time sleeping since my neck just tightens up so

much it feels like my skin is stretching and twisting, Now my

forehead feels this way too and it pushes down on my eyes and they

swell up and I get even more dizzy. It's the most horrible feeling,

About the incident with the benzos, wow, haven't heard that word used

except on my benzo support group, I too almost stopped cold turkey,

but not out of choice but because I couldn't get a doctor up here to

prescribe me more and I ran out, ended up in the ER in severe

withdrawals and they had to re-instate me. I was on the xanax for

only 3 months but because xanax is very short acting and tightly

binds to the neurons, addiction to it happens very quickly, usually

in as little as a few days.

I belong to the big benzo board and they told me I had to use valium

a long acting benzo to get off the xanax and I did a very slow 18

months taper to get down to practically 0 from 20mg of valium which

is the equivalency of 1mg of xanax. I am off now almost 7 months and

because benzos are very powerful muscle relaxers, especially valium,

the absence of taking them are causing my muscles to do weird things

and the w/d has affected my most weakest part of my body, my neck.

Since a lot of the things I have now I didn't have before ingesting

the benzos, I contribute to withdrawals and am hoping that within a

year or 18 months when most people recover, some of these crazy

symptoms will go away or diminish some and I can go back to having

what I had before. Not that they were fun to live with, but somehow I

managed.

So you would not suggest neck surgery for my symptoms which isn't

pain. I do ache alot there especially when the weather changes or a

storm is coming in. I told my husband that I should have been a

weather girl since I would get the forecast right everytime, lol

Maybe you, and I can correspond since we seem to have a lot in

common. That would be great.

Thank you so much for responding to my post.

Take care of yourself,

Love,

Nanci

P.S sorry to the group for taking up your time regarding the benzos.

> > > >

> > > >

> > > >

> > > > Hi everyone,

> > > >

> > > > I have had this awful neck problem for years and years and my

> MRI

> > > > shows loss of natural curve, disc problems in C-3 and C-4 and

> C-6

> > > and

> > > > 7 with arthritis and foramen narrowing.

> > > >

> > > > I have alot of neurological problems from dizziness,

> > > lightheadedness,

> > > > forehead tightness and spasms, muscle rigidity, neuralgia,

eye

> > > > involvement, spaced out feeling, photosensitivity, and so

many

> > more

> > > > neurological symptoms.

> > > >

> > > > My question is this...why do I not hear anyone talking about

> > these

> > > > problems? I understand that pinched nerves and bulging discs

> > cause

> > > > pain, but no one ever talks about other symptoms like I have.

> > > > Am I the only one?

> > > > Any why after all these years of chiropractic, PT, massage,

> > > > accupuncture, heat, ice therapy, epsom salt baths, hot

> showers,

> > > > gadgets galore, special neck pillows, etc, did I ever get any

> > > relief

> > > > of my symptoms?

> > > >

> > > > Am I a freak and can't understand why any of my neurological

> > > symptoms

> > > > ever go away? This morning I lifted my head off the pillow

and

> > the

> > > > room started to spin. The vertigo is the most awful feeling

in

> > the

> > > > world. If you ever had it, you understand how terrible it is.

> > > >

> > > > 2 neurologists, one a surgeon and 3 PT doctors, not just

> > > therapists,

> > > > told me that surgery was not warranted and it would only make

> > > things

> > > > worse and I would regret having it, but nothing has eased

> these

> > > > terrible sensations I have suffered from, from over 25 years.

> > > > It has stopped me from working and driving and being a proper

> > > mother

> > > > and wife.

> > > >

> > > > Add into the neck situation, a terrible valium withdrawal

> which I

> > > am

> > > > still going through now, and menopauase to boot.

> > > > It's just too much for me take most days and gets me so

> depressed

> > > > that crying is a daily event. Have thought of ending it many

> > times,

> > > > not because I want to die, but the misery of it all is just

> too

> > > much

> > > > to take and I just want some peace and relief.

> > > >

> > > > Does no one hear have neurological symptoms that the neck

> causes?

> > > > I am just curious because no one ever talks about having

> > symptoms,

> > > > just pain which is horribe in itself.

> > > >

> > > > Thanks so much

> > > > Wishing you all a very pleasant day

> > > >

> > > > Take care of yourselves,

> > > > Love,

> > > > Nanci

> > > >

> > >

> >

>

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Share on other sites

Guest guest

Hi Debbie

Wow, you and I sound very much alike.

Maybe you and I can exchange emails and keep in touch.

I met on this group and we try to keep in touch, although I am

very guilty of not writing since many times I am not up to it.

I don't live in Florida but my parents and oldest daughter does.

They live in Boynton Beach. I live in upstate New York. I try to

visit them in the winter and this winter spent 3 months there,

although it was very difficult for them to understand what I am going

through with the withdrawals and my neck. They always tell me to suck

it up, get out and just deal with it. But its not that easy as you

know.

I too try to distract myself but it is always with me and

distractions don't usually work.

I have a really tough time sleeping since my neck just tightens up so

much it feels like my skin is stretching and twisting, Now my

forehead feels this way too and it pushes down on my eyes and they

swell up and I get even more dizzy. It's the most horrible feeling,

About the incident with the benzos, wow, haven't heard that word used

except on my benzo support group, I too almost stopped cold turkey,

but not out of choice but because I couldn't get a doctor up here to

prescribe me more and I ran out, ended up in the ER in severe

withdrawals and they had to re-instate me. I was on the xanax for

only 3 months but because xanax is very short acting and tightly

binds to the neurons, addiction to it happens very quickly, usually

in as little as a few days.

I belong to the big benzo board and they told me I had to use valium

a long acting benzo to get off the xanax and I did a very slow 18

months taper to get down to practically 0 from 20mg of valium which

is the equivalency of 1mg of xanax. I am off now almost 7 months and

because benzos are very powerful muscle relaxers, especially valium,

the absence of taking them are causing my muscles to do weird things

and the w/d has affected my most weakest part of my body, my neck.

Since a lot of the things I have now I didn't have before ingesting

the benzos, I contribute to withdrawals and am hoping that within a

year or 18 months when most people recover, some of these crazy

symptoms will go away or diminish some and I can go back to having

what I had before. Not that they were fun to live with, but somehow I

managed.

So you would not suggest neck surgery for my symptoms which isn't

pain. I do ache alot there especially when the weather changes or a

storm is coming in. I told my husband that I should have been a

weather girl since I would get the forecast right everytime, lol

Maybe you, and I can correspond since we seem to have a lot in

common. That would be great.

Thank you so much for responding to my post.

Take care of yourself,

Love,

Nanci

P.S sorry to the group for taking up your time regarding the benzos.

> > > >

> > > >

> > > >

> > > > Hi everyone,

> > > >

> > > > I have had this awful neck problem for years and years and my

> MRI

> > > > shows loss of natural curve, disc problems in C-3 and C-4 and

> C-6

> > > and

> > > > 7 with arthritis and foramen narrowing.

> > > >

> > > > I have alot of neurological problems from dizziness,

> > > lightheadedness,

> > > > forehead tightness and spasms, muscle rigidity, neuralgia,

eye

> > > > involvement, spaced out feeling, photosensitivity, and so

many

> > more

> > > > neurological symptoms.

> > > >

> > > > My question is this...why do I not hear anyone talking about

> > these

> > > > problems? I understand that pinched nerves and bulging discs

> > cause

> > > > pain, but no one ever talks about other symptoms like I have.

> > > > Am I the only one?

> > > > Any why after all these years of chiropractic, PT, massage,

> > > > accupuncture, heat, ice therapy, epsom salt baths, hot

> showers,

> > > > gadgets galore, special neck pillows, etc, did I ever get any

> > > relief

> > > > of my symptoms?

> > > >

> > > > Am I a freak and can't understand why any of my neurological

> > > symptoms

> > > > ever go away? This morning I lifted my head off the pillow

and

> > the

> > > > room started to spin. The vertigo is the most awful feeling

in

> > the

> > > > world. If you ever had it, you understand how terrible it is.

> > > >

> > > > 2 neurologists, one a surgeon and 3 PT doctors, not just

> > > therapists,

> > > > told me that surgery was not warranted and it would only make

> > > things

> > > > worse and I would regret having it, but nothing has eased

> these

> > > > terrible sensations I have suffered from, from over 25 years.

> > > > It has stopped me from working and driving and being a proper

> > > mother

> > > > and wife.

> > > >

> > > > Add into the neck situation, a terrible valium withdrawal

> which I

> > > am

> > > > still going through now, and menopauase to boot.

> > > > It's just too much for me take most days and gets me so

> depressed

> > > > that crying is a daily event. Have thought of ending it many

> > times,

> > > > not because I want to die, but the misery of it all is just

> too

> > > much

> > > > to take and I just want some peace and relief.

> > > >

> > > > Does no one hear have neurological symptoms that the neck

> causes?

> > > > I am just curious because no one ever talks about having

> > symptoms,

> > > > just pain which is horribe in itself.

> > > >

> > > > Thanks so much

> > > > Wishing you all a very pleasant day

> > > >

> > > > Take care of yourselves,

> > > > Love,

> > > > Nanci

> > > >

> > >

> >

>

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Share on other sites

Guest guest

Hi Nanci,

I'm glad you wrote back! I can relate to everything you are

explaining that you're going through as well as every word you are

using! I am always saying that I could be a weather girl too!!

Certainly could use the money that's for sure!! It's hurricane

season here, as you know, and we've been getting daily storms (nice

out today though) I feel soo much pressure and it hurts my head bad

as well as my neck and body when they're moving in. Sometimes when

it doesn't look like rain yet and I'm saying it people will question

me...I always get a " told ya " in there!

Yes, we are very much alike! I would love to keep in touch with you.

It feels so good to be able to talk to others that understand me.

I have so many things going on that I should talk about but without

leaving the house much except to go to the doctor, on top of not

driving it's hard to keep or make friends, they think I'm blowing

them off or something because I can't keep plans or make plans

because of how I feel, but that doesn't mean that I don't still need

someone to talk to.

Surgery: EEEEKS! Unless you have to do it...and I mean HAVE to do

it, I wouldn't! It made me go from being like you...with definate

problems but not a lot of pain to having a " Successful " surgery and

being left with A LOT of pain that never went away. Of course this

is different with everyone but I have heard that many have gone in

with no pain and come out with pain that didn't leave. Not trying to

scare you about it, each case and each person is different and it

depends on what they want to do also.

Please do email me. I would love to talk some more! Lots to say and

I feel like I am being a board hog today!!

Email me at my address and I will give you my main email

address that I check more frequently...Cindi you too.

Are you on messenger?

Okay, enough babbling, I've gotta go beat myself up with the shower

massage!! Hurting!

DebbieCarlomagno@...

I'm home most of the time, but always forget to sign into the

instant messenger. Email first and I can sign on if you are on. Or

we will talk via email...just thinking of how you, I and can

talk at the same time and get to know one another since we have so

much in common.

Hugs to you, I understand!

Debbie

> > > > >

> > > > >

> > > > >

> > > > > Hi everyone,

> > > > >

> > > > > I have had this awful neck problem for years and years and

my

> > MRI

> > > > > shows loss of natural curve, disc problems in C-3 and C-4

and

> > C-6

> > > > and

> > > > > 7 with arthritis and foramen narrowing.

> > > > >

> > > > > I have alot of neurological problems from dizziness,

> > > > lightheadedness,

> > > > > forehead tightness and spasms, muscle rigidity, neuralgia,

> eye

> > > > > involvement, spaced out feeling, photosensitivity, and so

> many

> > > more

> > > > > neurological symptoms.

> > > > >

> > > > > My question is this...why do I not hear anyone talking

about

> > > these

> > > > > problems? I understand that pinched nerves and bulging

discs

> > > cause

> > > > > pain, but no one ever talks about other symptoms like I

have.

> > > > > Am I the only one?

> > > > > Any why after all these years of chiropractic, PT,

massage,

> > > > > accupuncture, heat, ice therapy, epsom salt baths, hot

> > showers,

> > > > > gadgets galore, special neck pillows, etc, did I ever get

any

> > > > relief

> > > > > of my symptoms?

> > > > >

> > > > > Am I a freak and can't understand why any of my

neurological

> > > > symptoms

> > > > > ever go away? This morning I lifted my head off the pillow

> and

> > > the

> > > > > room started to spin. The vertigo is the most awful

feeling

> in

> > > the

> > > > > world. If you ever had it, you understand how terrible it

is.

> > > > >

> > > > > 2 neurologists, one a surgeon and 3 PT doctors, not just

> > > > therapists,

> > > > > told me that surgery was not warranted and it would only

make

> > > > things

> > > > > worse and I would regret having it, but nothing has eased

> > these

> > > > > terrible sensations I have suffered from, from over 25

years.

> > > > > It has stopped me from working and driving and being a

proper

> > > > mother

> > > > > and wife.

> > > > >

> > > > > Add into the neck situation, a terrible valium withdrawal

> > which I

> > > > am

> > > > > still going through now, and menopauase to boot.

> > > > > It's just too much for me take most days and gets me so

> > depressed

> > > > > that crying is a daily event. Have thought of ending it

many

> > > times,

> > > > > not because I want to die, but the misery of it all is

just

> > too

> > > > much

> > > > > to take and I just want some peace and relief.

> > > > >

> > > > > Does no one hear have neurological symptoms that the neck

> > causes?

> > > > > I am just curious because no one ever talks about having

> > > symptoms,

> > > > > just pain which is horribe in itself.

> > > > >

> > > > > Thanks so much

> > > > > Wishing you all a very pleasant day

> > > > >

> > > > > Take care of yourselves,

> > > > > Love,

> > > > > Nanci

> > > > >

> > > >

> > >

> >

>

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Share on other sites

Guest guest

Hi Nanci,

I'm glad you wrote back! I can relate to everything you are

explaining that you're going through as well as every word you are

using! I am always saying that I could be a weather girl too!!

Certainly could use the money that's for sure!! It's hurricane

season here, as you know, and we've been getting daily storms (nice

out today though) I feel soo much pressure and it hurts my head bad

as well as my neck and body when they're moving in. Sometimes when

it doesn't look like rain yet and I'm saying it people will question

me...I always get a " told ya " in there!

Yes, we are very much alike! I would love to keep in touch with you.

It feels so good to be able to talk to others that understand me.

I have so many things going on that I should talk about but without

leaving the house much except to go to the doctor, on top of not

driving it's hard to keep or make friends, they think I'm blowing

them off or something because I can't keep plans or make plans

because of how I feel, but that doesn't mean that I don't still need

someone to talk to.

Surgery: EEEEKS! Unless you have to do it...and I mean HAVE to do

it, I wouldn't! It made me go from being like you...with definate

problems but not a lot of pain to having a " Successful " surgery and

being left with A LOT of pain that never went away. Of course this

is different with everyone but I have heard that many have gone in

with no pain and come out with pain that didn't leave. Not trying to

scare you about it, each case and each person is different and it

depends on what they want to do also.

Please do email me. I would love to talk some more! Lots to say and

I feel like I am being a board hog today!!

Email me at my address and I will give you my main email

address that I check more frequently...Cindi you too.

Are you on messenger?

Okay, enough babbling, I've gotta go beat myself up with the shower

massage!! Hurting!

DebbieCarlomagno@...

I'm home most of the time, but always forget to sign into the

instant messenger. Email first and I can sign on if you are on. Or

we will talk via email...just thinking of how you, I and can

talk at the same time and get to know one another since we have so

much in common.

Hugs to you, I understand!

Debbie

> > > > >

> > > > >

> > > > >

> > > > > Hi everyone,

> > > > >

> > > > > I have had this awful neck problem for years and years and

my

> > MRI

> > > > > shows loss of natural curve, disc problems in C-3 and C-4

and

> > C-6

> > > > and

> > > > > 7 with arthritis and foramen narrowing.

> > > > >

> > > > > I have alot of neurological problems from dizziness,

> > > > lightheadedness,

> > > > > forehead tightness and spasms, muscle rigidity, neuralgia,

> eye

> > > > > involvement, spaced out feeling, photosensitivity, and so

> many

> > > more

> > > > > neurological symptoms.

> > > > >

> > > > > My question is this...why do I not hear anyone talking

about

> > > these

> > > > > problems? I understand that pinched nerves and bulging

discs

> > > cause

> > > > > pain, but no one ever talks about other symptoms like I

have.

> > > > > Am I the only one?

> > > > > Any why after all these years of chiropractic, PT,

massage,

> > > > > accupuncture, heat, ice therapy, epsom salt baths, hot

> > showers,

> > > > > gadgets galore, special neck pillows, etc, did I ever get

any

> > > > relief

> > > > > of my symptoms?

> > > > >

> > > > > Am I a freak and can't understand why any of my

neurological

> > > > symptoms

> > > > > ever go away? This morning I lifted my head off the pillow

> and

> > > the

> > > > > room started to spin. The vertigo is the most awful

feeling

> in

> > > the

> > > > > world. If you ever had it, you understand how terrible it

is.

> > > > >

> > > > > 2 neurologists, one a surgeon and 3 PT doctors, not just

> > > > therapists,

> > > > > told me that surgery was not warranted and it would only

make

> > > > things

> > > > > worse and I would regret having it, but nothing has eased

> > these

> > > > > terrible sensations I have suffered from, from over 25

years.

> > > > > It has stopped me from working and driving and being a

proper

> > > > mother

> > > > > and wife.

> > > > >

> > > > > Add into the neck situation, a terrible valium withdrawal

> > which I

> > > > am

> > > > > still going through now, and menopauase to boot.

> > > > > It's just too much for me take most days and gets me so

> > depressed

> > > > > that crying is a daily event. Have thought of ending it

many

> > > times,

> > > > > not because I want to die, but the misery of it all is

just

> > too

> > > > much

> > > > > to take and I just want some peace and relief.

> > > > >

> > > > > Does no one hear have neurological symptoms that the neck

> > causes?

> > > > > I am just curious because no one ever talks about having

> > > symptoms,

> > > > > just pain which is horribe in itself.

> > > > >

> > > > > Thanks so much

> > > > > Wishing you all a very pleasant day

> > > > >

> > > > > Take care of yourselves,

> > > > > Love,

> > > > > Nanci

> > > > >

> > > >

> > >

> >

>

Link to comment
Share on other sites

Guest guest

Hi Nanci,

I'm glad you wrote back! I can relate to everything you are

explaining that you're going through as well as every word you are

using! I am always saying that I could be a weather girl too!!

Certainly could use the money that's for sure!! It's hurricane

season here, as you know, and we've been getting daily storms (nice

out today though) I feel soo much pressure and it hurts my head bad

as well as my neck and body when they're moving in. Sometimes when

it doesn't look like rain yet and I'm saying it people will question

me...I always get a " told ya " in there!

Yes, we are very much alike! I would love to keep in touch with you.

It feels so good to be able to talk to others that understand me.

I have so many things going on that I should talk about but without

leaving the house much except to go to the doctor, on top of not

driving it's hard to keep or make friends, they think I'm blowing

them off or something because I can't keep plans or make plans

because of how I feel, but that doesn't mean that I don't still need

someone to talk to.

Surgery: EEEEKS! Unless you have to do it...and I mean HAVE to do

it, I wouldn't! It made me go from being like you...with definate

problems but not a lot of pain to having a " Successful " surgery and

being left with A LOT of pain that never went away. Of course this

is different with everyone but I have heard that many have gone in

with no pain and come out with pain that didn't leave. Not trying to

scare you about it, each case and each person is different and it

depends on what they want to do also.

Please do email me. I would love to talk some more! Lots to say and

I feel like I am being a board hog today!!

Email me at my address and I will give you my main email

address that I check more frequently...Cindi you too.

Are you on messenger?

Okay, enough babbling, I've gotta go beat myself up with the shower

massage!! Hurting!

DebbieCarlomagno@...

I'm home most of the time, but always forget to sign into the

instant messenger. Email first and I can sign on if you are on. Or

we will talk via email...just thinking of how you, I and can

talk at the same time and get to know one another since we have so

much in common.

Hugs to you, I understand!

Debbie

> > > > >

> > > > >

> > > > >

> > > > > Hi everyone,

> > > > >

> > > > > I have had this awful neck problem for years and years and

my

> > MRI

> > > > > shows loss of natural curve, disc problems in C-3 and C-4

and

> > C-6

> > > > and

> > > > > 7 with arthritis and foramen narrowing.

> > > > >

> > > > > I have alot of neurological problems from dizziness,

> > > > lightheadedness,

> > > > > forehead tightness and spasms, muscle rigidity, neuralgia,

> eye

> > > > > involvement, spaced out feeling, photosensitivity, and so

> many

> > > more

> > > > > neurological symptoms.

> > > > >

> > > > > My question is this...why do I not hear anyone talking

about

> > > these

> > > > > problems? I understand that pinched nerves and bulging

discs

> > > cause

> > > > > pain, but no one ever talks about other symptoms like I

have.

> > > > > Am I the only one?

> > > > > Any why after all these years of chiropractic, PT,

massage,

> > > > > accupuncture, heat, ice therapy, epsom salt baths, hot

> > showers,

> > > > > gadgets galore, special neck pillows, etc, did I ever get

any

> > > > relief

> > > > > of my symptoms?

> > > > >

> > > > > Am I a freak and can't understand why any of my

neurological

> > > > symptoms

> > > > > ever go away? This morning I lifted my head off the pillow

> and

> > > the

> > > > > room started to spin. The vertigo is the most awful

feeling

> in

> > > the

> > > > > world. If you ever had it, you understand how terrible it

is.

> > > > >

> > > > > 2 neurologists, one a surgeon and 3 PT doctors, not just

> > > > therapists,

> > > > > told me that surgery was not warranted and it would only

make

> > > > things

> > > > > worse and I would regret having it, but nothing has eased

> > these

> > > > > terrible sensations I have suffered from, from over 25

years.

> > > > > It has stopped me from working and driving and being a

proper

> > > > mother

> > > > > and wife.

> > > > >

> > > > > Add into the neck situation, a terrible valium withdrawal

> > which I

> > > > am

> > > > > still going through now, and menopauase to boot.

> > > > > It's just too much for me take most days and gets me so

> > depressed

> > > > > that crying is a daily event. Have thought of ending it

many

> > > times,

> > > > > not because I want to die, but the misery of it all is

just

> > too

> > > > much

> > > > > to take and I just want some peace and relief.

> > > > >

> > > > > Does no one hear have neurological symptoms that the neck

> > causes?

> > > > > I am just curious because no one ever talks about having

> > > symptoms,

> > > > > just pain which is horribe in itself.

> > > > >

> > > > > Thanks so much

> > > > > Wishing you all a very pleasant day

> > > > >

> > > > > Take care of yourselves,

> > > > > Love,

> > > > > Nanci

> > > > >

> > > >

> > >

> >

>

Link to comment
Share on other sites

Guest guest

Hi Nanci,

I'm glad you wrote back! I can relate to everything you are

explaining that you're going through as well as every word you are

using! I am always saying that I could be a weather girl too!!

Certainly could use the money that's for sure!! It's hurricane

season here, as you know, and we've been getting daily storms (nice

out today though) I feel soo much pressure and it hurts my head bad

as well as my neck and body when they're moving in. Sometimes when

it doesn't look like rain yet and I'm saying it people will question

me...I always get a " told ya " in there!

Yes, we are very much alike! I would love to keep in touch with you.

It feels so good to be able to talk to others that understand me.

I have so many things going on that I should talk about but without

leaving the house much except to go to the doctor, on top of not

driving it's hard to keep or make friends, they think I'm blowing

them off or something because I can't keep plans or make plans

because of how I feel, but that doesn't mean that I don't still need

someone to talk to.

Surgery: EEEEKS! Unless you have to do it...and I mean HAVE to do

it, I wouldn't! It made me go from being like you...with definate

problems but not a lot of pain to having a " Successful " surgery and

being left with A LOT of pain that never went away. Of course this

is different with everyone but I have heard that many have gone in

with no pain and come out with pain that didn't leave. Not trying to

scare you about it, each case and each person is different and it

depends on what they want to do also.

Please do email me. I would love to talk some more! Lots to say and

I feel like I am being a board hog today!!

Email me at my address and I will give you my main email

address that I check more frequently...Cindi you too.

Are you on messenger?

Okay, enough babbling, I've gotta go beat myself up with the shower

massage!! Hurting!

DebbieCarlomagno@...

I'm home most of the time, but always forget to sign into the

instant messenger. Email first and I can sign on if you are on. Or

we will talk via email...just thinking of how you, I and can

talk at the same time and get to know one another since we have so

much in common.

Hugs to you, I understand!

Debbie

> > > > >

> > > > >

> > > > >

> > > > > Hi everyone,

> > > > >

> > > > > I have had this awful neck problem for years and years and

my

> > MRI

> > > > > shows loss of natural curve, disc problems in C-3 and C-4

and

> > C-6

> > > > and

> > > > > 7 with arthritis and foramen narrowing.

> > > > >

> > > > > I have alot of neurological problems from dizziness,

> > > > lightheadedness,

> > > > > forehead tightness and spasms, muscle rigidity, neuralgia,

> eye

> > > > > involvement, spaced out feeling, photosensitivity, and so

> many

> > > more

> > > > > neurological symptoms.

> > > > >

> > > > > My question is this...why do I not hear anyone talking

about

> > > these

> > > > > problems? I understand that pinched nerves and bulging

discs

> > > cause

> > > > > pain, but no one ever talks about other symptoms like I

have.

> > > > > Am I the only one?

> > > > > Any why after all these years of chiropractic, PT,

massage,

> > > > > accupuncture, heat, ice therapy, epsom salt baths, hot

> > showers,

> > > > > gadgets galore, special neck pillows, etc, did I ever get

any

> > > > relief

> > > > > of my symptoms?

> > > > >

> > > > > Am I a freak and can't understand why any of my

neurological

> > > > symptoms

> > > > > ever go away? This morning I lifted my head off the pillow

> and

> > > the

> > > > > room started to spin. The vertigo is the most awful

feeling

> in

> > > the

> > > > > world. If you ever had it, you understand how terrible it

is.

> > > > >

> > > > > 2 neurologists, one a surgeon and 3 PT doctors, not just

> > > > therapists,

> > > > > told me that surgery was not warranted and it would only

make

> > > > things

> > > > > worse and I would regret having it, but nothing has eased

> > these

> > > > > terrible sensations I have suffered from, from over 25

years.

> > > > > It has stopped me from working and driving and being a

proper

> > > > mother

> > > > > and wife.

> > > > >

> > > > > Add into the neck situation, a terrible valium withdrawal

> > which I

> > > > am

> > > > > still going through now, and menopauase to boot.

> > > > > It's just too much for me take most days and gets me so

> > depressed

> > > > > that crying is a daily event. Have thought of ending it

many

> > > times,

> > > > > not because I want to die, but the misery of it all is

just

> > too

> > > > much

> > > > > to take and I just want some peace and relief.

> > > > >

> > > > > Does no one hear have neurological symptoms that the neck

> > causes?

> > > > > I am just curious because no one ever talks about having

> > > symptoms,

> > > > > just pain which is horribe in itself.

> > > > >

> > > > > Thanks so much

> > > > > Wishing you all a very pleasant day

> > > > >

> > > > > Take care of yourselves,

> > > > > Love,

> > > > > Nanci

> > > > >

> > > >

> > >

> >

>

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