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Re: Hep C Negative? - Viral Load advice needed

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Posted
Posted

Alley,

I appreciate your thinking of me while you're on your vacation in Holland. I

hope you're having a great time.

I got the printed test results in the mail today. This is what it says word

for word:

...... Hepatitis C RNA .....

HCV Qual Post NEGATIVE [NEGATIVE]

HCV Post Interp The test is done by TMA assay. The sensitivity of this assay

is 5 IU/mL. " This test was developed and its performance characteristics

determined by the Regional Laboratory. It has not been cleared or approved

by the FDA. "

So, I get it....that since this is qualitative it doesn't count the actual

viral load like the other PCR tests I've had done in the past, and since it's

only shows either " positive " = above 5, or " negative " = below 5, then it

means that I'm below 5, but it still doesn't necessarily mean I'm cured like

the doctor said to me....I could still have a very small amount of virus, 1,

2, 3 or 4, (and be what I call still " in remission " , and so it could flare up

again, although extremely unlikely that it will), or it could be zero (and

it's gone completely). There still is no test out there that shows the virus

has been totally eliminated and that the only way someone could have it again

is by being re-exposed, not just by it flaring up.

Did I understand and explain all that clearly and correctly?

Doc....any thoughts on this subject?

thanks,

Sara

Date: Tue, 11 Feb 2003 18:40:30 -0000

   From: " Alley <patriciajean@...> " <patriciajean@...>

Subject: Re: Hep C Negative? - Viral Load advice needed

Sara,

I'm sorry to hear about your Mom.

As for your viral load, find out what test she used and the limits

exactly, qualitative? quantitative? etc.

As for in general, it sounds like GREAT news!!!! Let us know what you

find out.

Take care

Alley

in Holland

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Posted
Posted

Alley,

I appreciate your thinking of me while you're on your vacation in Holland. I

hope you're having a great time.

I got the printed test results in the mail today. This is what it says word

for word:

...... Hepatitis C RNA .....

HCV Qual Post NEGATIVE [NEGATIVE]

HCV Post Interp The test is done by TMA assay. The sensitivity of this assay

is 5 IU/mL. " This test was developed and its performance characteristics

determined by the Regional Laboratory. It has not been cleared or approved

by the FDA. "

So, I get it....that since this is qualitative it doesn't count the actual

viral load like the other PCR tests I've had done in the past, and since it's

only shows either " positive " = above 5, or " negative " = below 5, then it

means that I'm below 5, but it still doesn't necessarily mean I'm cured like

the doctor said to me....I could still have a very small amount of virus, 1,

2, 3 or 4, (and be what I call still " in remission " , and so it could flare up

again, although extremely unlikely that it will), or it could be zero (and

it's gone completely). There still is no test out there that shows the virus

has been totally eliminated and that the only way someone could have it again

is by being re-exposed, not just by it flaring up.

Did I understand and explain all that clearly and correctly?

Doc....any thoughts on this subject?

thanks,

Sara

Date: Tue, 11 Feb 2003 18:40:30 -0000

   From: " Alley <patriciajean@...> " <patriciajean@...>

Subject: Re: Hep C Negative? - Viral Load advice needed

Sara,

I'm sorry to hear about your Mom.

As for your viral load, find out what test she used and the limits

exactly, qualitative? quantitative? etc.

As for in general, it sounds like GREAT news!!!! Let us know what you

find out.

Take care

Alley

in Holland

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Share on other sites
Guest guest

Guest guest

Posted
Posted

Alley,

I appreciate your thinking of me while you're on your vacation in Holland. I

hope you're having a great time.

I got the printed test results in the mail today. This is what it says word

for word:

...... Hepatitis C RNA .....

HCV Qual Post NEGATIVE [NEGATIVE]

HCV Post Interp The test is done by TMA assay. The sensitivity of this assay

is 5 IU/mL. " This test was developed and its performance characteristics

determined by the Regional Laboratory. It has not been cleared or approved

by the FDA. "

So, I get it....that since this is qualitative it doesn't count the actual

viral load like the other PCR tests I've had done in the past, and since it's

only shows either " positive " = above 5, or " negative " = below 5, then it

means that I'm below 5, but it still doesn't necessarily mean I'm cured like

the doctor said to me....I could still have a very small amount of virus, 1,

2, 3 or 4, (and be what I call still " in remission " , and so it could flare up

again, although extremely unlikely that it will), or it could be zero (and

it's gone completely). There still is no test out there that shows the virus

has been totally eliminated and that the only way someone could have it again

is by being re-exposed, not just by it flaring up.

Did I understand and explain all that clearly and correctly?

Doc....any thoughts on this subject?

thanks,

Sara

Date: Tue, 11 Feb 2003 18:40:30 -0000

   From: " Alley <patriciajean@...> " <patriciajean@...>

Subject: Re: Hep C Negative? - Viral Load advice needed

Sara,

I'm sorry to hear about your Mom.

As for your viral load, find out what test she used and the limits

exactly, qualitative? quantitative? etc.

As for in general, it sounds like GREAT news!!!! Let us know what you

find out.

Take care

Alley

in Holland

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Share on other sites
Guest guest

Guest guest

Posted
Posted

Alley,

I appreciate your thinking of me while you're on your vacation in Holland. I

hope you're having a great time.

I got the printed test results in the mail today. This is what it says word

for word:

...... Hepatitis C RNA .....

HCV Qual Post NEGATIVE [NEGATIVE]

HCV Post Interp The test is done by TMA assay. The sensitivity of this assay

is 5 IU/mL. " This test was developed and its performance characteristics

determined by the Regional Laboratory. It has not been cleared or approved

by the FDA. "

So, I get it....that since this is qualitative it doesn't count the actual

viral load like the other PCR tests I've had done in the past, and since it's

only shows either " positive " = above 5, or " negative " = below 5, then it

means that I'm below 5, but it still doesn't necessarily mean I'm cured like

the doctor said to me....I could still have a very small amount of virus, 1,

2, 3 or 4, (and be what I call still " in remission " , and so it could flare up

again, although extremely unlikely that it will), or it could be zero (and

it's gone completely). There still is no test out there that shows the virus

has been totally eliminated and that the only way someone could have it again

is by being re-exposed, not just by it flaring up.

Did I understand and explain all that clearly and correctly?

Doc....any thoughts on this subject?

thanks,

Sara

Date: Tue, 11 Feb 2003 18:40:30 -0000

   From: " Alley <patriciajean@...> " <patriciajean@...>

Subject: Re: Hep C Negative? - Viral Load advice needed

Sara,

I'm sorry to hear about your Mom.

As for your viral load, find out what test she used and the limits

exactly, qualitative? quantitative? etc.

As for in general, it sounds like GREAT news!!!! Let us know what you

find out.

Take care

Alley

in Holland

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Posted
Posted

Hi Sara,

You are now HCV-RNA -ve , so need to read between the lines, you do not have any

significant virus now, it will never give you a zero reading anyway.

Lets hope you stay that way for next six months , that is the most important

issue.

Best Wishes,

Dr Sharat Misra MD,DM,FACG

Re: Hep C Negative? - Viral Load advice needed

Sara,

I'm sorry to hear about your Mom.

As for your viral load, find out what test she used and the limits

exactly, qualitative? quantitative? etc.

As for in general, it sounds like GREAT news!!!! Let us know what you

find out.

Take care

Alley

in Holland

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Hi Sara,

You are now HCV-RNA -ve , so need to read between the lines, you do not have any

significant virus now, it will never give you a zero reading anyway.

Lets hope you stay that way for next six months , that is the most important

issue.

Best Wishes,

Dr Sharat Misra MD,DM,FACG

Re: Hep C Negative? - Viral Load advice needed

Sara,

I'm sorry to hear about your Mom.

As for your viral load, find out what test she used and the limits

exactly, qualitative? quantitative? etc.

As for in general, it sounds like GREAT news!!!! Let us know what you

find out.

Take care

Alley

in Holland

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Hi Sara,

You are now HCV-RNA -ve , so need to read between the lines, you do not have any

significant virus now, it will never give you a zero reading anyway.

Lets hope you stay that way for next six months , that is the most important

issue.

Best Wishes,

Dr Sharat Misra MD,DM,FACG

Re: Hep C Negative? - Viral Load advice needed

Sara,

I'm sorry to hear about your Mom.

As for your viral load, find out what test she used and the limits

exactly, qualitative? quantitative? etc.

As for in general, it sounds like GREAT news!!!! Let us know what you

find out.

Take care

Alley

in Holland

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Hi Sara,

You are now HCV-RNA -ve , so need to read between the lines, you do not have any

significant virus now, it will never give you a zero reading anyway.

Lets hope you stay that way for next six months , that is the most important

issue.

Best Wishes,

Dr Sharat Misra MD,DM,FACG

Re: Hep C Negative? - Viral Load advice needed

Sara,

I'm sorry to hear about your Mom.

As for your viral load, find out what test she used and the limits

exactly, qualitative? quantitative? etc.

As for in general, it sounds like GREAT news!!!! Let us know what you

find out.

Take care

Alley

in Holland

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Claudine....thanks much for your response and well wishes.

Doc, thank you for your response too. You have confirmed what I already

thought this all meant. I call it and tell friends that ask about my hep

c.... " it's in remission " , because they can understand that terminology. The

don't understand " the virus is non-detectable " .

Like cancer (that I've also had), they think they got it all, and/or

repressed the amount down to a very very small level, and hopefully it will

not come back, but there is still the chance that some day it might.

I went through combo tx from 10/1999 - 4/2000, and the virus went

" non-detectable " after three months in 1/2000, and it has remained

non-detectable ever since....three years now.

I agree that this is very good news and cause to celebrate! I don't agree,

however, with this new doctor at Kaiser that said I was cured and don't need

to check it again unless I want to worry. I will have it checked every year,

at least for the next couple years...when I hit the 5 year mark perhaps I'll

stop or check it less often.

I truly wish the same good news for all of you someday...hopefully sooner

than later. You are all beautiful, caring people...and I appreciate you so

much.

I will continue to lurk and enjoy your fun and happy stories and feel for you

when you have sad or painful stories, and I'll contribute when it feels

right.

take good care,

Sara

Date: Thu, 13 Feb 2003 15:47:08 +0530

   From: " Doc " <gidoc@...>

Subject: Re: Hep C Negative? - Viral Load advice needed

Hi Sara,

You are now HCV-RNA -ve , so need to read between the lines, you do not have

any significant virus now, it will never give you a zero reading anyway.

Lets hope you stay that way for next six months , that is the most important

issue.

Best Wishes,

Dr Sharat Misra MD,DM,FACG

  ----- Original Message -----

  From: srw1954@...

  Alley,

  I appreciate your thinking of me while you're on your vacation in Holland. 

I

  hope you're having a great time.

  I got the printed test results in the mail today.  This is what it says

word

  for word:

  ..... Hepatitis C RNA .....

  HCV Qual Post  NEGATIVE  [NEGATIVE]

  HCV Post Interp The test is done by TMA assay.  The sensitivity of this

assay

  is 5 IU/mL.  " This test was developed and its performance characteristics

  determined by the Regional Laboratory.  It has not been cleared or approved

  by the FDA. "

  So, I get it....that since this is qualitative it doesn't count the actual

  viral load like the other PCR tests I've had done in the past, and since

it's

  only shows either " positive " = above 5, or " negative " = below 5, then it

  means that I'm below 5, but it still doesn't necessarily mean I'm cured

like

  the doctor said to me....I could still have a very small amount of virus,

1,

  2, 3 or 4, (and be what I call still " in remission " , and so it could flare

up

  again, although extremely unlikely that it will), or it could be zero (and

  it's gone completely).  There still is no test out there that shows the

virus

  has been totally eliminated and that the only way someone could have it

again

  is by being re-exposed, not just by it flaring up.

  Did I understand and explain all that clearly and correctly?

  Doc....any thoughts on this subject?

  thanks,

  Sara

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Guest guest

Posted
Posted

Claudine....thanks much for your response and well wishes.

Doc, thank you for your response too. You have confirmed what I already

thought this all meant. I call it and tell friends that ask about my hep

c.... " it's in remission " , because they can understand that terminology. The

don't understand " the virus is non-detectable " .

Like cancer (that I've also had), they think they got it all, and/or

repressed the amount down to a very very small level, and hopefully it will

not come back, but there is still the chance that some day it might.

I went through combo tx from 10/1999 - 4/2000, and the virus went

" non-detectable " after three months in 1/2000, and it has remained

non-detectable ever since....three years now.

I agree that this is very good news and cause to celebrate! I don't agree,

however, with this new doctor at Kaiser that said I was cured and don't need

to check it again unless I want to worry. I will have it checked every year,

at least for the next couple years...when I hit the 5 year mark perhaps I'll

stop or check it less often.

I truly wish the same good news for all of you someday...hopefully sooner

than later. You are all beautiful, caring people...and I appreciate you so

much.

I will continue to lurk and enjoy your fun and happy stories and feel for you

when you have sad or painful stories, and I'll contribute when it feels

right.

take good care,

Sara

Date: Thu, 13 Feb 2003 15:47:08 +0530

   From: " Doc " <gidoc@...>

Subject: Re: Hep C Negative? - Viral Load advice needed

Hi Sara,

You are now HCV-RNA -ve , so need to read between the lines, you do not have

any significant virus now, it will never give you a zero reading anyway.

Lets hope you stay that way for next six months , that is the most important

issue.

Best Wishes,

Dr Sharat Misra MD,DM,FACG

  ----- Original Message -----

  From: srw1954@...

  Alley,

  I appreciate your thinking of me while you're on your vacation in Holland. 

I

  hope you're having a great time.

  I got the printed test results in the mail today.  This is what it says

word

  for word:

  ..... Hepatitis C RNA .....

  HCV Qual Post  NEGATIVE  [NEGATIVE]

  HCV Post Interp The test is done by TMA assay.  The sensitivity of this

assay

  is 5 IU/mL.  " This test was developed and its performance characteristics

  determined by the Regional Laboratory.  It has not been cleared or approved

  by the FDA. "

  So, I get it....that since this is qualitative it doesn't count the actual

  viral load like the other PCR tests I've had done in the past, and since

it's

  only shows either " positive " = above 5, or " negative " = below 5, then it

  means that I'm below 5, but it still doesn't necessarily mean I'm cured

like

  the doctor said to me....I could still have a very small amount of virus,

1,

  2, 3 or 4, (and be what I call still " in remission " , and so it could flare

up

  again, although extremely unlikely that it will), or it could be zero (and

  it's gone completely).  There still is no test out there that shows the

virus

  has been totally eliminated and that the only way someone could have it

again

  is by being re-exposed, not just by it flaring up.

  Did I understand and explain all that clearly and correctly?

  Doc....any thoughts on this subject?

  thanks,

  Sara

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Claudine....thanks much for your response and well wishes.

Doc, thank you for your response too. You have confirmed what I already

thought this all meant. I call it and tell friends that ask about my hep

c.... " it's in remission " , because they can understand that terminology. The

don't understand " the virus is non-detectable " .

Like cancer (that I've also had), they think they got it all, and/or

repressed the amount down to a very very small level, and hopefully it will

not come back, but there is still the chance that some day it might.

I went through combo tx from 10/1999 - 4/2000, and the virus went

" non-detectable " after three months in 1/2000, and it has remained

non-detectable ever since....three years now.

I agree that this is very good news and cause to celebrate! I don't agree,

however, with this new doctor at Kaiser that said I was cured and don't need

to check it again unless I want to worry. I will have it checked every year,

at least for the next couple years...when I hit the 5 year mark perhaps I'll

stop or check it less often.

I truly wish the same good news for all of you someday...hopefully sooner

than later. You are all beautiful, caring people...and I appreciate you so

much.

I will continue to lurk and enjoy your fun and happy stories and feel for you

when you have sad or painful stories, and I'll contribute when it feels

right.

take good care,

Sara

Date: Thu, 13 Feb 2003 15:47:08 +0530

   From: " Doc " <gidoc@...>

Subject: Re: Hep C Negative? - Viral Load advice needed

Hi Sara,

You are now HCV-RNA -ve , so need to read between the lines, you do not have

any significant virus now, it will never give you a zero reading anyway.

Lets hope you stay that way for next six months , that is the most important

issue.

Best Wishes,

Dr Sharat Misra MD,DM,FACG

  ----- Original Message -----

  From: srw1954@...

  Alley,

  I appreciate your thinking of me while you're on your vacation in Holland. 

I

  hope you're having a great time.

  I got the printed test results in the mail today.  This is what it says

word

  for word:

  ..... Hepatitis C RNA .....

  HCV Qual Post  NEGATIVE  [NEGATIVE]

  HCV Post Interp The test is done by TMA assay.  The sensitivity of this

assay

  is 5 IU/mL.  " This test was developed and its performance characteristics

  determined by the Regional Laboratory.  It has not been cleared or approved

  by the FDA. "

  So, I get it....that since this is qualitative it doesn't count the actual

  viral load like the other PCR tests I've had done in the past, and since

it's

  only shows either " positive " = above 5, or " negative " = below 5, then it

  means that I'm below 5, but it still doesn't necessarily mean I'm cured

like

  the doctor said to me....I could still have a very small amount of virus,

1,

  2, 3 or 4, (and be what I call still " in remission " , and so it could flare

up

  again, although extremely unlikely that it will), or it could be zero (and

  it's gone completely).  There still is no test out there that shows the

virus

  has been totally eliminated and that the only way someone could have it

again

  is by being re-exposed, not just by it flaring up.

  Did I understand and explain all that clearly and correctly?

  Doc....any thoughts on this subject?

  thanks,

  Sara

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Claudine....thanks much for your response and well wishes.

Doc, thank you for your response too. You have confirmed what I already

thought this all meant. I call it and tell friends that ask about my hep

c.... " it's in remission " , because they can understand that terminology. The

don't understand " the virus is non-detectable " .

Like cancer (that I've also had), they think they got it all, and/or

repressed the amount down to a very very small level, and hopefully it will

not come back, but there is still the chance that some day it might.

I went through combo tx from 10/1999 - 4/2000, and the virus went

" non-detectable " after three months in 1/2000, and it has remained

non-detectable ever since....three years now.

I agree that this is very good news and cause to celebrate! I don't agree,

however, with this new doctor at Kaiser that said I was cured and don't need

to check it again unless I want to worry. I will have it checked every year,

at least for the next couple years...when I hit the 5 year mark perhaps I'll

stop or check it less often.

I truly wish the same good news for all of you someday...hopefully sooner

than later. You are all beautiful, caring people...and I appreciate you so

much.

I will continue to lurk and enjoy your fun and happy stories and feel for you

when you have sad or painful stories, and I'll contribute when it feels

right.

take good care,

Sara

Date: Thu, 13 Feb 2003 15:47:08 +0530

   From: " Doc " <gidoc@...>

Subject: Re: Hep C Negative? - Viral Load advice needed

Hi Sara,

You are now HCV-RNA -ve , so need to read between the lines, you do not have

any significant virus now, it will never give you a zero reading anyway.

Lets hope you stay that way for next six months , that is the most important

issue.

Best Wishes,

Dr Sharat Misra MD,DM,FACG

  ----- Original Message -----

  From: srw1954@...

  Alley,

  I appreciate your thinking of me while you're on your vacation in Holland. 

I

  hope you're having a great time.

  I got the printed test results in the mail today.  This is what it says

word

  for word:

  ..... Hepatitis C RNA .....

  HCV Qual Post  NEGATIVE  [NEGATIVE]

  HCV Post Interp The test is done by TMA assay.  The sensitivity of this

assay

  is 5 IU/mL.  " This test was developed and its performance characteristics

  determined by the Regional Laboratory.  It has not been cleared or approved

  by the FDA. "

  So, I get it....that since this is qualitative it doesn't count the actual

  viral load like the other PCR tests I've had done in the past, and since

it's

  only shows either " positive " = above 5, or " negative " = below 5, then it

  means that I'm below 5, but it still doesn't necessarily mean I'm cured

like

  the doctor said to me....I could still have a very small amount of virus,

1,

  2, 3 or 4, (and be what I call still " in remission " , and so it could flare

up

  again, although extremely unlikely that it will), or it could be zero (and

  it's gone completely).  There still is no test out there that shows the

virus

  has been totally eliminated and that the only way someone could have it

again

  is by being re-exposed, not just by it flaring up.

  Did I understand and explain all that clearly and correctly?

  Doc....any thoughts on this subject?

  thanks,

  Sara

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Posted
Posted

Sara,

So sorry to hear about your mother will say some prayers for you and your

family, I hope that she didn't suffer but know that she is free from all

pain now

Suzy

_________________________________________________________________

The new MSN 8: advanced junk mail protection and 2 months FREE*

http://join.msn.com/?page=features/junkmail

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Posted
Posted

Sara,

So sorry to hear about your mother will say some prayers for you and your

family, I hope that she didn't suffer but know that she is free from all

pain now

Suzy

_________________________________________________________________

The new MSN 8: advanced junk mail protection and 2 months FREE*

http://join.msn.com/?page=features/junkmail

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Sara,

So sorry to hear about your mother will say some prayers for you and your

family, I hope that she didn't suffer but know that she is free from all

pain now

Suzy

_________________________________________________________________

The new MSN 8: advanced junk mail protection and 2 months FREE*

http://join.msn.com/?page=features/junkmail

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Sara,

So sorry to hear about your mother will say some prayers for you and your

family, I hope that she didn't suffer but know that she is free from all

pain now

Suzy

_________________________________________________________________

The new MSN 8: advanced junk mail protection and 2 months FREE*

http://join.msn.com/?page=features/junkmail

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