overwhelming

June 20, 2005

Hi ,

I have three kids, two have CI's ( 6 1/2 & Sebastian 3 1/2). I remember

having to make the decision about which implant to choose. It felt like one of

the hardest decisions we were faced with. One of the best things we did is

become very educated. We read all we could and asked a lot of questions to the

professionals and other users/families. Like what you are doing now. It took a

great deal of time and effort to learn the new terms and understand the

technology.

We liked the pediatric features of the CI for . We were very impressed by

the technology the implant offered. We loved the options for different

programming strategies. We really struggled trying to learn and understand

about the different ways the implant could deliver sound. We were especially

drawn to the company's dedication and commitment to the implant users and

families. We heard stories about how the employees went to implant centers to

assist children with a variety of issues.

and Sebastian's hearing journey has been extraordinary. We have never

had problems with their implants. Replacing cables happens rarely and we have

never had any difficulties with sweat or moisture. This is great because

sweats a lot and we live in Arizona (it was 106 today!!!).

I wish you luck during your exciting journey into the CI world. Please let me

know if you have specific questions.

Luanna

Mom to (C I, 5/00) & Sebastian (C II, 10/02)

luvinmyhonda <cindy4baskets@...> wrote:

Hi All,

I'm new to this forum and I have to say I'm overwhelmed by the variety

of messages posted in here.

I'm here to gather information and experiences on choosing a CI and

what it's like getting one. I've checked on line at the websites of

the manufacturers but where do I find ratings such as people do with

their cars? LOL!!!

My history? Started wearing hearing aid at 5 years (yep, thank the

school nurse!) My loss is genetic...my sister and I are both deaf, no

other deafness in the family; we were told we have Pendred's syndrome

(a thyroid condition that causes deafness). Anyway, to make a long

story short, in January I experienced a vertigo attack and have been

unable to wear my trusty old hearing aid since then because of

Tullio's Phenomenon (sound induced vertigo). I am having perilymphatic

fistula repair surgery in August...if that fails my last option is the

CI. (Or as my neurotologist put it, I can have the CI regardless) I

have bilateral tinnitus as well, with the worst occuring in my left

ear. I could wear a hearing aid in my left ear but it really doesn't

sound like things did in my right ear (which is the ear with the

suspected fistula). I'm now 48 years old, and do not want to spend the

last half of my life totally deaf if it can be helped. I did enjoy

hearing pretty good with my trusty BTE in the past.

So can anyone throw me their 2 cents??

I appreciate it

June 20, 2005

I've met Luanna and at a workshop last September. 's

such a bright child and adorable. I'm so grateful for those little

children to be implanted at a young age so they can hear and pick up

their language skills rapidly. The adult prelinguals wishes CI was

available back then but have no regret. It great to see you posted

in here.

Debbie B.

Auria--07/03

Prelingual

BEA Volunteer

------------------------------------

> I have three kids, two have CI's ( 6 1/2 & Sebastian 3 1/2).

I remember having to make the decision about which implant to

choose. It felt like one of the hardest decisions we were faced

with. One of the best things we did is become very educated. We

read all we could and asked a lot of questions to the professionals

and other users/families. Like what you are doing now. It took a

great deal of time and effort to learn the new terms and understand

the technology.

>

> We liked the pediatric features of the CI for . We were very

impressed by the technology the implant offered. We loved the

options for different programming strategies. We really struggled

trying to learn and understand about the different ways the implant

could deliver sound. We were especially drawn to the company's

dedication and commitment to the implant users and families. We

heard stories about how the employees went to implant centers to

assist children with a variety of issues.

>

> and Sebastian's hearing journey has been extraordinary. We

have never had problems with their implants. Replacing cables

happens rarely and we have never had any difficulties with sweat or

moisture. This is great because sweats a lot and we live in

Arizona (it was 106 today!!!).

>

> Luanna

> Mom to (C I, 5/00) & Sebastian (C II, 10/02)

>

August 10, 2009