Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 I believe Dr is in NYC, i have another friend who has gone to him also. I started the plaquenil to see if I can get my achiness under control, hopefully this will help, my last remainig symptoms. Love ya, In @y..., eRene@a... wrote: > a, > > Where is the doctor located? If he is that schooled in > silicone diseases, I just might want to fly out to see > him. > > e > > PATTY, MORE CHANGES HAVE OCCURED. I WENT TO SEE THIS DR SOLOMAN EALIER THIS > > WEEK HE IS A RHEUMATOLOGIST AND SILICONE DISORDER SPECIALIST. HE HAS TREATED > > OVER 500 WOMEN WITH SILICONE RELATED DISEASE. HE FEELS THAT A COMBINATION > > OF FACTORS HAVE CAUSED MY IMMUNE SYSTEM TO BECOME OVERACTIVED THE FIRST IS > > PARVO VIRUS , WHICH I CONTRACTED AFTER HAVING THE IMPLANTS IN FOR ONE MONTH. > > THIS VIRUS DAMAGES THE IMMUNE SYSTEM, THE SYMPTOMS ARE PAINS IN HANDS AND > > FEET, RASHES, LOW GRADE FEVER. THE SECOND CATALYST ARE THE IMPLANTS AND THE > > THIRD HE SAYS IS MY EBSTEIN BARR VIRUS. SO HE CALLED DR FENG (THEY ARE GOOD > > FRIENDS AND HAVE THE HIGHEST RESPECT FOR EACH OTHER. SHE SAYS HE IS THE ONLY > > DR. THAT UNDERSTANDS THE DISEASE). HE CALLED HER AND THEY DISCUSSED A PLAN > > FOR ME- HE THINKS I DONT HAVE TO HAVE THE SURGERY- HE WANTS TO PUT ME ON A > > TRIAL OF PLANAQUIL FOR 6WEEKS IF I DONT FEEL MUCH BETTER BY THEN- HE WILL > > RECOMMEND THE SURGERY WITH DR FENG. PATTY HE WAS SO PASSIONATE AND > > CONVINCING- I HAVE TO BELIEVE HIM. HE CALLED ME VARIOUS TIMES, HE CALLED DR > > FENG. HE IS CONVINCED THAT AFTER A YEAR ON THE PLANQUIL- I WILL BE FINE, > > AND THEN CAN RESUME A NORMAL LIFE - WITHOUT IT. HE SAID THAT ALL WOMEN WITH > > IMPLANT DISEASE ARE DIFFERENT, DUE TO AGE, AMOUNT OF TIME THEY WERE IN, TYPE > > OF IMPLANTS. HE SAID HE PROMISES ME THAT I WILL GET BETTER- AND IF I DONT > > BOTH DR'S AGREED THAT I WOULD HAVE THE SURGERY. SO I WILL TAKE A CHANCE AND > > TRY THE DRUG, AT THE SAME TIME I WILL CONTINUE WITH MY ACCUPUNCTURE THAT HAS > > HELPED ME VERY MUCH - TWICE A WEEK. > > > > HOPE ALL IS WELL WITH YOU- AND THANK YOU FOR YOUR CONCERN AND YOUR KIND > > WORDS. > > > > WARM REGARDS > > GABRIELA > > > > -----Original Message----- > > From: Patty [mailto:fdp@l...] > > Sent: September 28, 2001 12:57 AM > > @y... > > Subject: Re: Removal of scar capsule > > > > > > Hi a, > > I know this is a difficult thing to go through! You are not the first, but > > I am so very sorry that you have to go through another surgery at all. I am > > glad that you got an expert opinion from Dr. Feng regarding your situation. > > You've moved very quickly, and I applaud your willingness to do what you > > need to for your health. One thing is for certain.....after seeing Dr. > > Feng, you will not have to worry about having any residual ANYTHING in your > > body regarding implants. > > > > My thoughts will be with you as you prepare for this final surgery. You've > > had a very rough year...but be of good cheer, because it can only go up from > > here. > > Love, > > Patty > > > > > > > > ----- Original Message ----- > > From: DeHegedus, a <mailto:a_DeHegedus@p...> > > ' @y...' <mailto:' @y...'> > > > > Sent: Wednesday, September 26, 2001 7:43 AM > > Subject: RE: Removal of scar capsule > > > > hi patty, i will be having surgery again this time with dr feng. She feels > > confidant that my whole capscule was not removed based on reviewing my > > operative report and pathology report. I cant believe my other surgeon lied > > to me and told me she took everything out. > > > > Even though I had smooth saline for only 4 months -she thinks if i have all > > remaining tissue removed that i will feel significantly better- she is > > baffled that i dont feel better. Anyway i really do not want to have surgery > > again for the 4th time in one year- but I feel i have nothing to loose at > > this point and much to gain- of course it is a leep a faith. I am willing > > to take a chance in order to regain my health. I will be having surgery at > > the end of October. > > > > warm regards > > gabriela > > > > -----Original Message----- > > From: Patty [mailto:fdp@l...] > > Sent: September 25, 2001 9:49 PM > > @y... > > Subject: Removal of scar capsule > > > > > > Remember our discussion recently on the removal of scar tissue and Dr. Feng? > > I found this on the sosalines website. > > > > http://www.homestead.com/sosalines/Fengcaps.html > > <http://www.homestead.com/sosalines/Fengcaps.html> > > (Thanks very much to Dr. Lu-Feng of Cleveland Ohio for these remarks > > regarding capsule removal after saline implants) > > > > > > A biological capsule will form around any implant. Any saline implant > > removal will require a total capsulectomy. Like anything else in life, there > > are few exceptions. Here are the few exceptions which would have to be > > fulfilled before I would entertain the possibility of not removing the > > saline capsule. > > > > > > (1) The capsule has to be tissue paper thin and without contracture. > > (2) The patient has to be without any local or systemic symptoms. > > (3) The saline implant has to be smooth shelled. > > (4) There has to be no previous history of gel filled implant insertion. > > > > > > All these conditions have to be fulfilled before I would consider not taking > > the saline capsule out. As you can see, few patients would fulfill these > > criteria. Invariably, I take out the entire capsule around saline implants. > > > > > > Drfeng@a... > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 and everyone else, Is this Dr. really that good? Is he in NYC? I would really like any info anyone has on him. It's interesting that a mentioned parvo virus, because I heard from some other women (months ago) that they had been diagnosed with parvo. I would love to be tested for it, but really have no knowledge on how to test for it, i.e., is their a specific antibody test? Also, I wanted to let you all know that I got some lab results back yesterday. My ANA titer has more than quadrupled, and something called an ASMA was done and it came back +. Does anyone know what this is? I've never heard of it, and never had it done before. And, interestingly enough, my T4 and T4 uptake index were VERY low. But my TSH was not. I hope I can get some questions answered tomorrow!! I wonder if my doc will put me on thyroid medication. I think that may also explain why I'm gaining weight even though I exercise and am eating healthy, why I am so tired, and maybe explain part of the sweating. Anyway, any info on Dr. would be greatly appreciated. e > > I believe Dr is in NYC, i have another friend who has gone to > him also. I started the plaquenil to see if I can get my achiness > under control, hopefully this will help, my last remainig symptoms. > > Love ya, > > > > > > > In @y..., eRene@a... wrote: > > a, > > > > Where is the doctor located? If he is that schooled in > > silicone diseases, I just might want to fly out to see > > him. > > > > e > > > PATTY, MORE CHANGES HAVE OCCURED. I WENT TO SEE THIS DR SOLOMAN > EALIER THIS > > > WEEK HE IS A RHEUMATOLOGIST AND SILICONE DISORDER SPECIALIST. HE > HAS TREATED > > > OVER 500 WOMEN WITH SILICONE RELATED DISEASE. HE FEELS THAT A > COMBINATION > > > OF FACTORS HAVE CAUSED MY IMMUNE SYSTEM TO BECOME OVERACTIVED THE > FIRST IS > > > PARVO VIRUS , WHICH I CONTRACTED AFTER HAVING THE IMPLANTS IN FOR > ONE MONTH. > > > THIS VIRUS DAMAGES THE IMMUNE SYSTEM, THE SYMPTOMS ARE PAINS IN > HANDS AND > > > FEET, RASHES, LOW GRADE FEVER. THE SECOND CATALYST ARE THE > IMPLANTS AND THE > > > THIRD HE SAYS IS MY EBSTEIN BARR VIRUS. SO HE CALLED DR FENG > (THEY ARE GOOD > > > FRIENDS AND HAVE THE HIGHEST RESPECT FOR EACH OTHER. SHE SAYS HE > IS THE ONLY > > > DR. THAT UNDERSTANDS THE DISEASE). HE CALLED HER AND THEY > DISCUSSED A PLAN > > > FOR ME- HE THINKS I DONT HAVE TO HAVE THE SURGERY- HE WANTS TO > PUT ME ON A > > > TRIAL OF PLANAQUIL FOR 6WEEKS IF I DONT FEEL MUCH BETTER BY THEN- > HE WILL > > > RECOMMEND THE SURGERY WITH DR FENG. PATTY HE WAS SO PASSIONATE AND > > > CONVINCING- I HAVE TO BELIEVE HIM. HE CALLED ME VARIOUS TIMES, HE > CALLED DR > > > FENG. HE IS CONVINCED THAT AFTER A YEAR ON THE PLANQUIL- I WILL > BE FINE, > > > AND THEN CAN RESUME A NORMAL LIFE - WITHOUT IT. HE SAID THAT ALL > WOMEN WITH > > > IMPLANT DISEASE ARE DIFFERENT, DUE TO AGE, AMOUNT OF TIME THEY > WERE IN, TYPE > > > OF IMPLANTS. HE SAID HE PROMISES ME THAT I WILL GET BETTER- AND > IF I DONT > > > BOTH DR'S AGREED THAT I WOULD HAVE THE SURGERY. SO I WILL TAKE A > CHANCE AND > > > TRY THE DRUG, AT THE SAME TIME I WILL CONTINUE WITH MY > ACCUPUNCTURE THAT HAS > > > HELPED ME VERY MUCH - TWICE A WEEK. > > > > > > HOPE ALL IS WELL WITH YOU- AND THANK YOU FOR YOUR CONCERN AND > YOUR KIND > > > WORDS. > > > > > > WARM REGARDS > > > GABRIELA > > > > > > -----Original Message----- > > > From: Patty [mailto:fdp@l...] > > > Sent: September 28, 2001 12:57 AM > > > @y... > > > Subject: Re: Removal of scar capsule > > > > > > > > > Hi a, > > > I know this is a difficult thing to go through! You are not the > first, but > > > I am so very sorry that you have to go through another surgery at > all. I am > > > glad that you got an expert opinion from Dr. Feng regarding your > situation. > > > You've moved very quickly, and I applaud your willingness to do > what you > > > need to for your health. One thing is for certain.....after > seeing Dr. > > > Feng, you will not have to worry about having any residual > ANYTHING in your > > > body regarding implants. > > > > > > My thoughts will be with you as you prepare for this final > surgery. You've > > > had a very rough year...but be of good cheer, because it can only > go up from > > > here. > > > Love, > > > Patty > > > > > > > > > > > > ----- Original Message ----- > > > From: DeHegedus, a <mailto:a_DeHegedus@p...> > > > ' @y...' <mailto:' @y...'> > > > > > > Sent: Wednesday, September 26, 2001 7:43 AM > > > Subject: RE: Removal of scar capsule > > > > > > hi patty, i will be having surgery again this time with dr feng. > She feels > > > confidant that my whole capscule was not removed based on > reviewing my > > > operative report and pathology report. I cant believe my other > surgeon lied > > > to me and told me she took everything out. > > > > > > Even though I had smooth saline for only 4 months -she thinks if > i have all > > > remaining tissue removed that i will feel significantly better- > she is > > > baffled that i dont feel better. Anyway i really do not want to > have surgery > > > again for the 4th time in one year- but I feel i have nothing to > loose at > > > this point and much to gain- of course it is a leep a faith. I > am willing > > > to take a chance in order to regain my health. I will be having > surgery at > > > the end of October. > > > > > > warm regards > > > gabriela > > > > > > -----Original Message----- > > > From: Patty [mailto:fdp@l...] > > > Sent: September 25, 2001 9:49 PM > > > @y... > > > Subject: Removal of scar capsule > > > > > > > > > Remember our discussion recently on the removal of scar tissue > and Dr. Feng? > > > I found this on the sosalines website. > > > > > > http://www.homestead.com/sosalines/Fengcaps.html > > > <http://www.homestead.com/sosalines/Fengcaps.html> > > > (Thanks very much to Dr. Lu-Feng of Cleveland Ohio for these > remarks > > > regarding capsule removal after saline implants) > > > > > > > > > A biological capsule will form around any implant. Any saline > implant > > > removal will require a total capsulectomy. Like anything else in > life, there > > > are few exceptions. Here are the few exceptions which would have > to be > > > fulfilled before I would entertain the possibility of not > removing the > > > saline capsule. > > > > > > > > > (1) The capsule has to be tissue paper thin and without > contracture. > > > (2) The patient has to be without any local or systemic symptoms. > > > (3) The saline implant has to be smooth shelled. > > > (4) There has to be no previous history of gel filled implant > insertion. > > > > > > > > > All these conditions have to be fulfilled before I would consider > not taking > > > the saline capsule out. As you can see, few patients would > fulfill these > > > criteria. Invariably, I take out the entire capsule around saline > implants. > > > > > > > > > Drfeng@a... > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 <P> e, <P>I made contact with Dr. through e-mail and told him my history. You can not talk to him by phone. I live in NC and wanted to talk to him first to see if he thought he could help me. When I called to leave a phone number for a return call they would not hear of it. I found out his e-mail address and you would not believe his e-mail to me. First of all he was very quick to get back with me and he took the time to give me he thoughts on my history and e-mailed me a list of blood work that needed to be done along with a suggestion of taking plaqunil and a low dose of pednisone. I got a doctor at Duke to run the blood work and decided not to take the meds. Doctor at Duke went along with Dr. 's suggestion. I just waited it out to see if my immune system would kick in if given time. It did and I am glad I waited. Dr. was wonderful and he took the time to tell me what needed to be done. It saved me the time flying up to NY and the hassle of & nbsp; making arrangements for my five kids. I highly reccomend him. He is great!!!!! He understands women getting & nbsp; sick from implants. <P> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp\ ; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & \ nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; Debbie (durham nc) <P> & nbsp; <B><I>eRene@...</I></B> wrote: <BLOCKQUOTE style= " BORDER-LEFT: #1010ff 2px solid; MARGIN-LEFT: 5px; PADDING-LEFT: 5px " ><TT> and everyone else,<BR><BR>Is this Dr. really that good? & nbsp; Is he in NYC? & nbsp; I <BR>would really like any info anyone has on him. & nbsp; It's <BR>interesting that a mentioned parvo virus, because <BR>I heard from some other women (months ago) that they had <BR>been diagnosed with parvo. & nbsp; I would love to be tested <BR>for it, but really have no knowledge on how to test for <BR>it, i.e., is their a specific antibody test?<BR><BR>Also, I wanted to let you all know that I got some lab <BR>results back yesterday. & nbsp; My ANA titer has more than <BR>quadrupled, and something called an ASMA was done and it <BR>came back +. & nbsp; Does anyone know what this is? & nbsp; I've never <BR>heard of it, and never had it done before.<BR><BR>And, interestingly enough, my T4 and T4 uptake index <BR>were VERY low. & nbsp; But my TSH was not. & nbsp; I hope I can get <BR>some questions answered tomorrow!! & nbsp; I wonder if my doc <BR>will put me on thyroid medication. & nbsp; I think that may <BR>also explain why I'm gaining weight even though I <BR>exercise and am eating healthy, why I am so tired, and <BR>maybe explain part of the sweating.<BR><BR>Anyway, any info on Dr. would be greatly <BR>appreciated.<BR><BR>e<BR> & gt; <BR> & gt; I believe Dr is in NYC, i have another friend who has gone to <BR> & gt; him also. I started the plaquenil to see if I can get my achiness <BR> & gt; under control, hopefully this will help, my last remainig symptoms.<BR> & gt; <BR> & gt; Love ya, <BR> & gt; <BR> & gt; <BR> & gt; <BR> & gt; <BR> & gt; <BR> & gt; <BR> & gt; In @y..., eRene@a... wrote:<BR> & gt; & gt; a,<BR> & gt; & gt; <BR> & gt; & gt; Where is the doctor located? & nbsp; If he is that schooled in <BR> & gt; & gt; silicone diseases, I just might want to fly out to see <BR> & gt; & gt; him.<BR> & gt; & gt; <BR> & gt; & gt; e<BR> & gt; & gt; & gt; PATTY, MORE CHANGES HAVE OCCURED. I WENT TO SEE THIS DR SOLOMAN <BR> & gt; EALIER THIS<BR> & gt; & gt; & gt; WEEK HE IS A RHEUMATOLOGIST AND SILICONE DISORDER SPECIALIST. HE <BR> & gt; HAS TREATED<BR> & gt; & gt; & gt; OVER 500 WOMEN WITH SILICONE RELATED DISEASE. & nbsp; HE FEELS THAT A <BR> & gt; COMBINATION<BR> & gt; & gt; & gt; OF FACTORS HAVE CAUSED MY IMMUNE SYSTEM TO BECOME OVERACTIVED THE <BR> & gt; FIRST IS<BR> & gt; & gt; & gt; PARVO VIRUS , WHICH I CONTRACTED AFTER HAVING THE IMPLANTS IN FOR <BR> & gt; ONE MONTH.<BR> & gt; & gt; & gt; THIS VIRUS DAMAGES THE IMMUNE SYSTEM, THE SYMPTOMS ARE PAINS IN <BR> & gt; HANDS AND<BR> & gt; & gt; & gt; FEET, RASHES, LOW GRADE FEVER. THE SECOND CATALYST ARE THE <BR> & gt; IMPLANTS AND THE<BR> & gt; & gt; & gt; THIRD HE SAYS IS MY EBSTEIN BARR VIRUS. & nbsp; SO HE CALLED DR FENG <BR> & gt; (THEY ARE GOOD<BR> & gt; & gt; & gt; FRIENDS AND HAVE THE HIGHEST RESPECT FOR EACH OTHER. SHE SAYS HE <BR> & gt; IS THE ONLY<BR> & gt; & gt; & gt; DR. THAT UNDERSTANDS THE DISEASE). HE CALLED HER AND THEY <BR> & gt; DISCUSSED A PLAN<BR> & gt; & gt; & gt; FOR ME- HE THINKS I DONT HAVE TO HAVE THE SURGERY- HE WANTS TO <BR> & gt; PUT ME ON A<BR> & gt; & gt; & gt; TRIAL OF PLANAQUIL FOR 6WEEKS IF I DONT FEEL MUCH BETTER BY THEN- <BR> & gt; HE WILL<BR> & gt; & gt; & gt; RECOMMEND THE SURGERY WITH DR FENG. PATTY HE WAS SO PASSIONATE AND<BR> & gt; & gt; & gt; CONVINCING- I HAVE TO BELIEVE HIM. HE CALLED ME VARIOUS TIMES, HE <BR> & gt; CALLED DR<BR> & gt; & gt; & gt; FENG. & nbsp; HE IS CONVINCED THAT AFTER A YEAR ON THE PLANQUIL- I WILL <BR> & gt; BE FINE,<BR> & gt; & gt; & gt; AND THEN CAN RESUME A NORMAL LIFE - WITHOUT IT. & nbsp; HE SAID THAT ALL <BR> & gt; WOMEN WITH<BR> & gt; & gt; & gt; IMPLANT DISEASE ARE DIFFERENT, DUE TO AGE, AMOUNT OF TIME THEY <BR> & gt; WERE IN, TYPE<BR> & gt; & gt; & gt; OF IMPLANTS. HE SAID HE PROMISES ME THAT I WILL GET BETTER- AND <BR> & gt; IF I DONT<BR> & gt; & gt; & gt; BOTH DR'S AGREED THAT I WOULD HAVE THE SURGERY. SO I WILL TAKE A <BR> & gt; CHANCE AND<BR> & gt; & gt; & gt; TRY THE DRUG, AT THE SAME TIME I WILL CONTINUE WITH MY <BR> & gt; ACCUPUNCTURE THAT HAS<BR> & gt; & gt; & gt; HELPED ME VERY MUCH - TWICE A WEEK.<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; HOPE ALL IS WELL WITH YOU- AND THANK YOU FOR YOUR CONCERN AND <BR> & gt; YOUR KIND<BR> & gt; & gt; & gt; WORDS.<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; WARM REGARDS<BR> & gt; & gt; & gt; GABRIELA<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; -----Original Message-----<BR> & gt; & gt; & gt; From: Patty [mailto:fdp@l...]<BR> & gt; & gt; & gt; Sent: September 28, 2001 12:57 AM<BR> & gt; & gt; & gt; @y...<BR> & gt; & gt; & gt; Subject: Re: Removal of scar capsule<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; Hi a, <BR> & gt; & gt; & gt; I know this is a difficult thing to go through! & nbsp; You are not the <BR> & gt; first, but<BR> & gt; & gt; & gt; I am so very sorry that you have to go through another surgery at <BR> & gt; all. & nbsp; I am<BR> & gt; & gt; & gt; glad that you got an expert opinion from Dr. Feng regarding your <BR> & gt; situation. <BR> & gt; & gt; & gt; You've moved very quickly, and I applaud your willingness to do <BR> & gt; what you<BR> & gt; & gt; & gt; need to for your health. & nbsp; One thing is for certain.....after <BR> & gt; seeing Dr.<BR> & gt; & gt; & gt; Feng, you will not have to worry about having any residual <BR> & gt; ANYTHING in your<BR> & gt; & gt; & gt; body regarding implants. <BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; My thoughts will be with you as you prepare for this final <BR> & gt; surgery. & nbsp; You've<BR> & gt; & gt; & gt; had a very rough year...but be of good cheer, because it can only <BR> & gt; go up from<BR> & gt; & gt; & gt; here.<BR> & gt; & gt; & gt; Love,<BR> & gt; & gt; & gt; Patty<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; ----- Original Message ----- <BR> & gt; & gt; & gt; From: DeHegedus, a & lt;mailto:a_DeHegedus@p... & gt; & nbsp; <BR> & gt; & gt; & gt; ' @y...' & lt;mailto:' @y...' & gt;<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; Sent: Wednesday, September 26, 2001 7:43 AM<BR> & gt; & gt; & gt; Subject: RE: Removal of scar capsule<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; hi patty, i will be having surgery again this time with dr feng. <BR> & gt; She feels<BR> & gt; & gt; & gt; confidant that my whole capscule was not removed based on <BR> & gt; reviewing my<BR> & gt; & gt; & gt; operative report and pathology report. I cant believe my other <BR> & gt; surgeon lied<BR> & gt; & gt; & gt; to me and told me she took everything out.<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; Even though I had smooth saline for only 4 months -she thinks if <BR> & gt; i have all<BR> & gt; & gt; & gt; remaining tissue removed that i will feel significantly better- <BR> & gt; she is<BR> & gt; & gt; & gt; baffled that i dont feel better. Anyway i really do not want to <BR> & gt; have surgery<BR> & gt; & gt; & gt; again for the 4th time in one year- but I feel i have nothing to <BR> & gt; loose at<BR> & gt; & gt; & gt; this point and much to gain- of course it is a leep a faith. & nbsp; I <BR> & gt; am willing<BR> & gt; & gt; & gt; to take a chance in order to regain my health. & nbsp; I will be having <BR> & gt; surgery at<BR> & gt; & gt; & gt; the end of October.<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; warm regards<BR> & gt; & gt; & gt; gabriela<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; -----Original Message-----<BR> & gt; & gt; & gt; From: Patty [mailto:fdp@l...]<BR> & gt; & gt; & gt; Sent: September 25, 2001 9:49 PM<BR> & gt; & gt; & gt; To: @y...<BR> & gt; & gt; & gt; Subject: Removal of scar capsule<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; Remember our discussion recently on the removal of scar tissue <BR> & gt; and Dr. Feng?<BR> & gt; & gt; & gt; I found this on the sosalines website.<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; <A href= " http://www.homestead.com/sosalines/Fengcaps.html'>http://www.homestead.com/sosalines/Fengcaps.html " >http://www.homestead.com\'>http://www.homestead.com\ /sosalines/Fengcaps.html</A><BR> & gt; & gt; & gt; & lt;<A href= " http://www.homestead.com/sosalines/Fengcaps.html'>http://www.homestead.com/sosalines/Fengcaps.html " >http://www.homestead.com\'>http://www.homestead.com\ /sosalines/Fengcaps.html</A> & gt; <BR> & gt; & gt; & gt; (Thanks very much to Dr. Lu-Jean Feng of Cleveland Ohio for these <BR> & gt; remarks<BR> & gt; & gt; & gt; regarding capsule removal after saline implants)<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; A biological capsule will form around any implant. Any saline <BR> & gt; implant<BR> & gt; & gt; & gt; removal will require a total capsulectomy. Like anything else in <BR> & gt; life, there<BR> & gt; & gt; & gt; are few exceptions. Here are the few exceptions which would have <BR> & gt; to be<BR> & gt; & gt; & gt; fulfilled before I would entertain the possibility of not <BR> & gt; removing the<BR> & gt; & gt; & gt; saline capsule.<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; (1) The capsule has to be tissue paper thin and without <BR> & gt; contracture.<BR> & gt; & gt; & gt; (2) The patient has to be without any local or systemic symptoms.<BR> & gt; & gt; & gt; (3) The saline implant has to be smooth shelled.<BR> & gt; & gt; & gt; (4) There has to be no previous history of gel filled implant <BR> & gt; insertion.<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; All these conditions have to be fulfilled before I would consider <BR> & gt; not taking<BR> & gt; & gt; & gt; the saline capsule out. As you can see, few patients would <BR> & gt; fulfill these<BR> & gt; & gt; & gt; criteria. Invariably, I take out the entire capsule around saline <BR> & gt; implants.<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; Drfeng@a...<BR> & gt; & gt; & gt; & nbsp; & nbsp; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; For Healing Therapies and Detox info, and to view<BR> & gt; & gt; & gt; Testimonies of Victims, photos of explant, and Studies of harm by <BR> & gt; implants,<BR> & gt; & gt; & gt; go to:<BR> & gt; & gt; & gt; <A href= " /files/ " >http://groups..co\'>http://groups..co\ m/group/ /files/</A><BR> & gt; & gt; & gt; & lt;<A href= " /files/ " >http://groups..co\'>http://groups..co\ m/group/ /files/</A> & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; To view links to related websites on breast implants, go to:<BR> & gt; & gt; & gt; <A href= " /links " >http://\'>http://\ /group/ /links</A><BR> & gt; & gt; & gt; & lt;<A href= " /links " >http://\'>http://\ /group/ /links</A> & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; To search past messages in the Archives, go to<BR> & gt; & gt; & gt; <A href= " /messages " >http://groups..\'>http://groups..\ com/group/ /messages</A><BR> & gt; & gt; & gt; & lt;<A href= " /messages " >http://groups..\'>http://groups..\ com/group/ /messages</A> & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; To post a message to this group, send an e-mail to:<BR> & gt; & gt; & gt; @y...<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Debbie, Do you have his email address? I would like to shoot off an email to him with some questions. Thanks, e > <P> e, > <P>I made contact with Dr. through e-mail and > told him my history. You can not talk to him by phone. > I live in NC and wanted to talk to him first to see if > he thought he could help me. When I called to leave a > phone number for a return call they would not hear of > it. I found out his e-mail address and you would not > believe his e-mail to me. First of all he was very > quick to get back with me and he took the time to give > me he thoughts on my history and e-mailed me a list of > blood work that needed to be done along with a > suggestion of taking plaqunil and a low dose of > pednisone. I got a doctor at Duke to run the blood > work and decided not to take the meds. Doctor at Duke > went along with Dr. 's suggestion. I just > waited it out to see if my immune system would kick in > if given time. It did and I am glad I waited. Dr. > was wonderful and he took the time to tell me > what needed to be done. It saved me the time flying up > to NY and the hassle of & nbsp; making arrangements for > my five kids. I highly reccomend him. He is great!!!!! > He understands women getting & nbsp; sick from implants. > <P> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp > ; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & > nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; > Debbie (durham nc) > <P> & nbsp; <B><I>eRene@...</I></B> wrote: > <BLOCKQUOTE style= " BORDER-LEFT: #1010ff 2px solid; > MARGIN-LEFT: 5px; PADDING-LEFT: 5px " ><TT> and > everyone else,<BR><BR>Is this Dr. really that > good? & nbsp; Is he in NYC? & nbsp; I <BR>would really > like any info anyone has on him. & nbsp; It's > <BR>interesting that a mentioned parvo virus, > because <BR>I heard from some other women (months ago) > that they had <BR>been diagnosed with parvo. & nbsp; I > would love to be tested <BR>for it, but really have no > knowledge on how to test for <BR>it, i.e., is their a > specific antibody test?<BR><BR>Also, I wanted to let > you all know that I got some lab <BR>results back > yesterday. & nbsp; My ANA titer has more than > <BR>quadrupled, and something called an ASMA was done > and it <BR>came back +. & nbsp; Does anyone know what > this is? & nbsp; I've never <BR>heard of it, and never > had it done before.<BR><BR>And, interestingly enough, > my T4 and T4 uptake index <BR>were VERY low. & nbsp; But > my TSH was not. & nbsp; I hope I can get <BR>some > questions answered tomorrow!! & nbsp; I wonder if my doc > <BR>will put me on thyroid medication. & nbsp; I think > that may <BR>also explain why I'm gaining weight even > though I <BR>exercise and am eating healthy, why I am > so tired, and <BR>maybe explain part of the > sweating.<BR><BR>Anyway, any info on Dr. would > be greatly <BR>appreciated.<BR><BR>e<BR> & gt; > <BR> & gt; I believe Dr is in NYC, i have > another friend who has gone to <BR> & gt; him also. I > started the plaquenil to see if I can get my achiness > <BR> & gt; under control, hopefully this will help, my > last remainig symptoms.<BR> & gt; <BR> & gt; Love ya, > <BR> & gt; <BR> & gt; <BR> & gt; <BR> & gt; <BR> & gt; > <BR> & gt; <BR> & gt; In @y..., > eRene@a... wrote:<BR> & gt; & gt; a,<BR> & gt; > & gt; <BR> & gt; & gt; Where is the doctor located? & nbsp; > If he is that schooled in <BR> & gt; & gt; silicone > diseases, I just might want to fly out to see <BR> & gt; > & gt; him.<BR> & gt; & gt; <BR> & gt; & gt; e<BR> & gt; > & gt; & gt; PATTY, MORE CHANGES HAVE OCCURED. I WENT TO > SEE THIS DR SOLOMAN <BR> & gt; EALIER THIS<BR> & gt; & gt; > & gt; WEEK HE IS A RHEUMATOLOGIST AND SILICONE DISORDER > SPECIALIST. HE <BR> & gt; HAS TREATED<BR> & gt; & gt; & gt; > OVER 500 WOMEN WITH SILICONE RELATED DISEASE. & nbsp; HE > FEELS THAT A <BR> & gt; COMBINATION<BR> & gt; & gt; & gt; OF > FACTORS HAVE CAUSED MY IMMUNE SYSTEM TO BECOME > OVERACTIVED THE <BR> & gt; FIRST IS<BR> & gt; & gt; & gt; > PARVO VIRUS , WHICH I CONTRACTED AFTER HAVING THE > IMPLANTS IN FOR <BR> & gt; ONE MONTH.<BR> & gt; & gt; & gt; > THIS VIRUS DAMAGES THE IMMUNE SYSTEM, THE SYMPTOMS ARE > PAINS IN <BR> & gt; HANDS AND<BR> & gt; & gt; & gt; FEET, > RASHES, LOW GRADE FEVER. THE SECOND CATALYST ARE THE > <BR> & gt; IMPLANTS AND THE<BR> & gt; & gt; & gt; THIRD HE > SAYS IS MY EBSTEIN BARR VIRUS. & nbsp; SO HE CALLED DR > FENG <BR> & gt; (THEY ARE GOOD<BR> & gt; & gt; & gt; FRIENDS > AND HAVE THE HIGHEST RESPECT FOR EACH OTHER. SHE SAYS > HE <BR> & gt; IS THE ONLY<BR> & gt; & gt; & gt; DR. THAT > UNDERSTANDS THE DISEASE). HE CALLED HER AND THEY > <BR> & gt; DISCUSSED A PLAN<BR> & gt; & gt; & gt; FOR ME- HE > THINKS I DONT HAVE TO HAVE THE SURGERY- HE WANTS TO > <BR> & gt; PUT ME ON A<BR> & gt; & gt; & gt; TRIAL OF > PLANAQUIL FOR 6WEEKS IF I DONT FEEL MUCH BETTER BY > THEN- <BR> & gt; HE WILL<BR> & gt; & gt; & gt; RECOMMEND THE > SURGERY WITH DR FENG. PATTY HE WAS SO PASSIONATE > AND<BR> & gt; & gt; & gt; CONVINCING- I HAVE TO BELIEVE > HIM. HE CALLED ME VARIOUS TIMES, HE <BR> & gt; CALLED > DR<BR> & gt; & gt; & gt; FENG. & nbsp; HE IS CONVINCED THAT > AFTER A YEAR ON THE PLANQUIL- I WILL <BR> & gt; BE > FINE,<BR> & gt; & gt; & gt; AND THEN CAN RESUME A NORMAL > LIFE - WITHOUT IT. & nbsp; HE SAID THAT ALL <BR> & gt; > WOMEN WITH<BR> & gt; & gt; & gt; IMPLANT DISEASE ARE > DIFFERENT, DUE TO AGE, AMOUNT OF TIME THEY <BR> & gt; > WERE IN, TYPE<BR> & gt; & gt; & gt; OF IMPLANTS. HE SAID > HE PROMISES ME THAT I WILL GET BETTER- AND <BR> & gt; IF > I DONT<BR> & gt; & gt; & gt; BOTH DR'S AGREED THAT I WOULD > HAVE THE SURGERY. SO I WILL TAKE A <BR> & gt; CHANCE > AND<BR> & gt; & gt; & gt; TRY THE DRUG, AT THE SAME TIME I > WILL CONTINUE WITH MY <BR> & gt; ACCUPUNCTURE THAT > HAS<BR> & gt; & gt; & gt; HELPED ME VERY MUCH - TWICE A > WEEK.<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; HOPE > ALL IS WELL WITH YOU- AND THANK YOU FOR YOUR CONCERN > AND <BR> & gt; YOUR KIND<BR> & gt; & gt; & gt; > WORDS.<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; WARM > REGARDS<BR> & gt; & gt; & gt; GABRIELA<BR> & gt; & gt; & gt; > <BR> & gt; & gt; & gt; -----Original Message-----<BR> & gt; > & gt; & gt; From: Patty [mailto:fdp@l...]<BR> & gt; & gt; > & gt; Sent: September 28, 2001 12:57 AM<BR> & gt; & gt; > & gt; @y...<BR> & gt; & gt; & gt; Subject: > Re: Removal of scar capsule<BR> & gt; > & gt; & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; Hi > a, <BR> & gt; & gt; & gt; I know this is a > difficult thing to go through! & nbsp; You are not the > <BR> & gt; first, but<BR> & gt; & gt; & gt; I am so very > sorry that you have to go through another surgery at > <BR> & gt; all. & nbsp; I am<BR> & gt; & gt; & gt; glad that > you got an expert opinion from Dr. Feng regarding your > <BR> & gt; situation. <BR> & gt; & gt; & gt; You've moved > very quickly, and I applaud your willingness to do > <BR> & gt; what you<BR> & gt; & gt; & gt; need to for your > health. & nbsp; One thing is for certain.....after > <BR> & gt; seeing Dr.<BR> & gt; & gt; & gt; Feng, you will > not have to worry about having any residual <BR> & gt; > ANYTHING in your<BR> & gt; & gt; & gt; body regarding > implants. <BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; > My thoughts will be with you as you prepare for this > final <BR> & gt; surgery. & nbsp; You've<BR> & gt; & gt; & gt; > had a very rough year...but be of good cheer, because > it can only <BR> & gt; go up from<BR> & gt; & gt; & gt; > here.<BR> & gt; & gt; & gt; Love,<BR> & gt; & gt; & gt; > Patty<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; & nbsp; > <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; ----- Original > Message ----- <BR> & gt; & gt; & gt; From: DeHegedus, > a & lt;mailto:a_DeHegedus@p... & gt; & nbsp; > <BR> & gt; & gt; & gt; ' @y...' > & lt;mailto:' @y...' & gt;<BR> & gt; & gt; & gt; > <BR> & gt; & gt; & gt; Sent: Wednesday, September 26, 2001 > 7:43 AM<BR> & gt; & gt; & gt; Subject: RE: > Removal of scar capsule<BR> & gt; & gt; & gt; <BR> & gt; > & gt; & gt; hi patty, i will be having surgery again > this time with dr feng. <BR> & gt; She feels<BR> & gt; > & gt; & gt; confidant that my whole capscule was not > removed based on <BR> & gt; reviewing my<BR> & gt; & gt; > & gt; operative report and pathology report. I cant > believe my other <BR> & gt; surgeon lied<BR> & gt; & gt; > & gt; to me and told me she took everything > out.<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; Even > though I had smooth saline for only 4 months -she > thinks if <BR> & gt; i have all<BR> & gt; & gt; & gt; > remaining tissue removed that i will feel > significantly better- <BR> & gt; she is<BR> & gt; & gt; > & gt; baffled that i dont feel better. Anyway i really > do not want to <BR> & gt; have surgery<BR> & gt; & gt; & gt; > again for the 4th time in one year- but I feel i have > nothing to <BR> & gt; loose at<BR> & gt; & gt; & gt; this > point and much to gain- of course it is a leep a > faith. & nbsp; I <BR> & gt; am willing<BR> & gt; & gt; & gt; > to take a chance in order to regain my health. & nbsp; I > will be having <BR> & gt; surgery at<BR> & gt; & gt; & gt; > the end of October.<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; > & gt; & gt; warm regards<BR> & gt; & gt; & gt; > gabriela<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; > -----Original Message-----<BR> & gt; & gt; & gt; From: > Patty [mailto:fdp@l...]<BR> & gt; & gt; & gt; Sent: > September 25, 2001 9:49 PM<BR> & gt; & gt; & gt; To: > @y...<BR> & gt; & gt; & gt; Subject: > Removal of scar capsule<BR> & gt; & gt; > & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; Remember > our discussion recently on the removal of scar tissue > <BR> & gt; and Dr. Feng?<BR> & gt; & gt; & gt; I found this > on the sosalines website.<BR> & gt; & gt; & gt; & nbsp; > <BR> & gt; & gt; & gt; <A > href= " http://www.homestead.com'>http://www.homestead.com/sosalines/Fengcaps.html'>http://www.homestead.com'>http://www.homestead.com/sosalines/Fengcaps.html " >http://www.homestead.com'>http://www.homestead.com > /sosalines/Fengcaps.html</A><BR> & gt; > & gt; & gt; & lt;<A > href= " http://www.homestead.com'>http://www.homestead.com/sosalines/Fengcaps.html'>http://www.homestead.com'>http://www.homestead.com/sosalines/Fengcaps.html " >http://www.homestead.com'>http://www.homestead.com > /sosalines/Fengcaps.html</A> & gt; > <BR> & gt; & gt; & gt; (Thanks very much to Dr. Lu-Jean > Feng of Cleveland Ohio for these <BR> & gt; > remarks<BR> & gt; & gt; & gt; regarding capsule removal > after saline implants)<BR> & gt; & gt; & gt; <BR> & gt; & gt; > & gt; <BR> & gt; & gt; & gt; A biological capsule will form > around any implant. Any saline <BR> & gt; > implant<BR> & gt; & gt; & gt; removal will require a total > capsulectomy. Like anything else in <BR> & gt; life, > there<BR> & gt; & gt; & gt; are few exceptions. Here are > the few exceptions which would have <BR> & gt; to > be<BR> & gt; & gt; & gt; fulfilled before I would > entertain the possibility of not <BR> & gt; removing > the<BR> & gt; & gt; & gt; saline capsule.<BR> & gt; & gt; > & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; (1) The > capsule has to be tissue paper thin and without > <BR> & gt; contracture.<BR> & gt; & gt; & gt; (2) The > patient has to be without any local or systemic > symptoms.<BR> & gt; & gt; & gt; (3) The saline implant has > to be smooth shelled.<BR> & gt; & gt; & gt; (4) There has > to be no previous history of gel filled implant > <BR> & gt; insertion.<BR> & gt; & gt; & gt; <BR> & gt; & gt; > & gt; <BR> & gt; & gt; & gt; All these conditions have to > be fulfilled before I would consider <BR> & gt; not > taking<BR> & gt; & gt; & gt; the saline capsule out. As > you can see, few patients would <BR> & gt; fulfill > these<BR> & gt; & gt; & gt; criteria. Invariably, I take > out the entire capsule around saline <BR> & gt; > implants.<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; > <BR> & gt; & gt; & gt; Drfeng@a...<BR> & gt; & gt; > & gt; & nbsp; & nbsp; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; > <BR> & gt; & gt; & gt; For Healing Therapies and Detox > info, and to view<BR> & gt; & gt; & gt; Testimonies of > Victims, photos of explant, and Studies of harm by > <BR> & gt; implants,<BR> & gt; & gt; & gt; go to:<BR> & gt; > & gt; & gt; <A > href= " /files/ " >http://groups.'>http://groups..co'>http://groups.'>http://groups..co'>http://groups.'>http://groups..co'>http://groups.'>http://groups..co > m/group/ /files/</A><BR> & gt; > & gt; & gt; & lt;<A > href= " /files/ " >http://groups.'>http://groups..co'>http://groups.'>http://groups..co'>http://groups.'>http://groups..co'>http://groups.'>http://groups..co > m/group/ /files/</A> & gt; > <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; To view links to > related websites on breast implants, go to:<BR> & gt; > & gt; & gt; <A > href= " /links " >http:// > /group/ /links</A><BR> & gt; > & gt; & gt; & lt;<A > href= " /links " >http:// > /group/ /links</A> & gt; > <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; To search past > messages in the Archives, go to<BR> & gt; & gt; & gt; <A > href= " /messages " >http://groups.'>http://groups.. > com/group/ /messages</A><BR> & gt; > & gt; & gt; & lt;<A > href= " /messages " >http://groups.'>http://groups.. > com/group/ /messages</A> & gt; > <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; To post a > message to this group, send an e-mail to:<BR> & gt; & gt; > & gt; @y...<BR> & gt; & gt; & gt; <BR> & gt; > & gt; & gt; Quote Link to comment Share on other sites More sharing options...
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