Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 I too have started the plaquenil and will give it more time than I did last time, it takes from what I have found out through my friends on the lupus support site, from 6 months to a year to actually work, so you cannot expect it to help at all in the beginning, it needs to build up in your system. The side effects don't seem too bad and it is pretty safe, I think that at this point it is something I need to give a shot because the natural therapies are not getting at the source of my pain and I feel my immune system needs more that what it has been getting. I also need to change my diet, it has been pretty bad lately, and get off the vanilla latte's for sure, but they are so good and I believe sometimes we must enjoy lifes simple pleasures, like vanilla late's to feel normal and good. Well, I am reading lots of contoversy about the celebrex I am taking and one of them is that it can actually flair up lupus symptoms, so I am thinking I may have to stop it, since I feel my illness is lupus like more than anything else. I am so glad for this group and when we get rolling here I think we are a good support for eachother. Now if I could just find a good accupuncturist in this darned town, the one I saw today sure didn't seem that great, I was a bit dissappointed, blah. Ok then, take care Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 I'm glad the plaquenil is working so well for you. It's the first (and only) DMARD I was put on right when I was diagnosed. It took about 6 weeks but it made a big difference in how I felt. Much better. It's been 3.5 years and I'm still on it. Went through a period a while ago where my hands were hurting....the RD changed my NSAID from Celebrex to Arthrotec 75 and there was a big improvement. The only thing you have to watch with Plaquenil is vision. In some people (rarely), it can change how your eyes see colour. Evidently, everything goes back to normal if you get off it or sometimes if you just lower the dosage. That's why we have to have regular eye exams by an opthamologist. Continued good luck with it! ----- Original Message ----- From: justliloleme51 Rheumatoid Arthritis Sent: Friday, August 30, 2002 12:18 AM Subject: plaquenil hello everyone...hope you all are doing ok...i just wanted to ask if anyone has had any success with plaquenil...i started taking them a week ago and i can't believe how fast they are working....my rheumy prescribed them to me a long time ago, and i kept putting off taking them...i was in denial because my bloodwork was negative.. and didn't think i needed anything like that...last week i got scared because i could hardly walk because my feet were so tender when they touched the floor and my knees were so swollen...i decided i didn't want to end up staying in bed so i broke down and took the plaquenil about 7 days ago..i'm walking much better and my knees don't seem as swollen..i feel better except the chronic fatigue still follows me around all day long and i'd love to wake up one morning feeling rested. just wondering if plaquenil has helped any of you and if there are side effects to look out for...thanks for listening and i really wish you all strength to bear your pain..patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2002 Report Share Posted September 14, 2002 Hi Patty, that is one I have not heard about. The vioxx I take seems to help me a lot. I ran out a couple of days ago, but have an appt. on Monday morning, but today I can hardly move without the pain, glad you are feeling better, Joy ----- Original Message ----- From: justliloleme51 Rheumatoid Arthritis Sent: Friday, August 30, 2002 3:18 AM Subject: plaquenil hello everyone...hope you all are doing ok...i just wanted to ask if anyone has had any success with plaquenil...i started taking them a week ago and i can't believe how fast they are working....my rheumy prescribed them to me a long time ago, and i kept putting off taking them...i was in denial because my bloodwork was negative.. and didn't think i needed anything like that...last week i got scared because i could hardly walk because my feet were so tender when they touched the floor and my knees were so swollen...i decided i didn't want to end up staying in bed so i broke down and took the plaquenil about 7 days ago..i'm walking much better and my knees don't seem as swollen..i feel better except the chronic fatigue still follows me around all day long and i'd love to wake up one morning feeling rested. just wondering if plaquenil has helped any of you and if there are side effects to look out for...thanks for listening and i really wish you all strength to bear your pain..patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 I was on Plaquenil for about 10 months along with Methotrexate and Neoral. None of it seemed to do me much good. Now I'm on Enbrel with a lower dose of Methotrexate and am doing much better. Good luck. gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Hi Brad, I've been on Plaquenil for almost 6 months. The doctor told me to expect it to take a full 6 months to start working. I know that's a long time when we're in pain. The one thing I like about it though is that it's been around since the turn of the 1900's. I don't like taking new drugs that come on the market. I don't want to be a pharmaceutical company's ginny pig. I usually refuse drugs that have been on the market less than 5 years. That's not easy to do with RA though, but i try. Judy > Anybody here ever been on Plaquenil for their RA? I was just switched > from Sulfasalazine to it and am concerned about how long it takes for > this med. to start working. Any help appreciated. > > Brad ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
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