Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 Martha maybe you have been around a lot longer than some of us and have allot more experience and stuff but some of our " younger " newer members don't really think your post here is very helpful and may find it offensive. For most of us we aren't " Frying any fish " at this point we just want some answers for ourselves. patty and I are going to make a little poll, and you don't have to answer it if you feel it is meaningless but personaly I don't look at it that way and think it could be meaningful to us as far as looking at some of the things that are the same or different in our cases and maybe what it is that might have caused so many of us to get ill and others not as ill, and what is working to make us better, how can this be a waste of time? It is not, and we are not trying to change the insurance industry or the scientific communtity we are only women trying to help eachother, in this I say there is no wasting time. Sorry Martha but I think you need to think about what your saying, as maybe you are involved in some lawsuit, most of us signed our rights away a long time ago and besides, all I want is my health at this point, all the money in the world isnt going to make my pain go away, try to be a little nicer as we have new confused, young members still trying to come to terms with everything and need our support! Thankyou, Heer In @y..., " MARTHA-NSIF " <MAM-NSIF@P...> wrote: > Hi Patty, > > Speaking from my acutuarial backgrround in the insurance industry, I would like to remind all women & their families, etc., that there is absolutely no validity to numbers of this type unless there are at least 1,000 respondents, to scientifically designed questions --- and, those numbers have very little validity until you have scientifically designed questions answered by at least 10,000 people, then they become more reliable at 100,000 respondents ..... and 500,000 to one million are much more reliable, and meaningful. > > This is the reason I die laughing at the " Nuts & Sluts " studies (?)!!! > Those prove nothing whatsoever! And never will! > > Blessings, > Martha Murdock / NSIF > > Let's not waste time on meaningless questionairres when we have larger fish to fry! > > Yet I will help with anything you need me do, however, not on compiling useless information. I don't mean this personally towards anyone, as few people have worked in the area of statistics that I have, and don't comprehend the science. > > MM / NSOF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 Dear , I had no intentions of being offensive to anyone. I simply intended to to give accurate information regarding how 'statistics' work, and when they are & are not acceptable to any others you may present them to, in order to make a point. I personally have no objections to anything anyone else does in this issue, as long as it is productive information. My personal opinion is the more we can ALL do which is 'productive' for ALL, you will find I will gladly support and encourage others to do the same. My work in this issue has nothing to do with whether I have a personal lawsuit, or not. I had quite a different view when my daughter had a lawsuit working, however, I was able to help her get hers settled for more than 'peanuts' a couple of years ago. My dedication is to ALL women who have been harmed by breast implants, and that is why I write letters to our representatives, do interviews with the press, lobby in DC, and have testified at the FDA Hearings (more than once), and the IOM --- and will continue to do so. When there have been meetings in DC, which I could not attend due to other business, I have sent others in my place by paying their expenses to do so. I apologize for stating any facts that were offensive to you, however, I have devoted over 6-years of my time to the BI Issue, and over $100,000 of my own money to attempt to help others -- especially, the younger ladies like you from being disabled many years before their time! Blessings, Martha Murdock NSIF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 Dear Martha I also do not mean to be offensive to you and I appreciate all the work and effort you have put forth in your work, please know that and that I really do think your a wonderful woman, However, I also feel that a poll is harmless and while it may not be scientific it can still be useful to us and to new members. Remember that sometimes the most important work starts small and right here at home! Love > Dear , > > I had no intentions of being offensive to anyone. I simply intended to to > give accurate information regarding how 'statistics' work, and when they are > & are not acceptable to any others you may present them to, in order to make > a point. > > I personally have no objections to anything anyone else does in this issue, > as long as it is productive information. My personal opinion is the more we > can ALL do which is 'productive' for ALL, you will find I will gladly > support and encourage others to do the same. > > My work in this issue has nothing to do with whether I have a personal > lawsuit, or not. I had quite a different view when my daughter had a > lawsuit working, however, I was able to help her get hers settled for more > than 'peanuts' a couple of years ago. > > My dedication is to ALL women who have been harmed by breast implants, and > that is why I write letters to our representatives, do interviews with the > press, lobby in DC, and have testified at the FDA Hearings (more than once), > and the IOM --- and will continue to do so. > > When there have been meetings in DC, which I could not attend due to other > business, I have sent others in my place by paying their expenses to do so. > > I apologize for stating any facts that were offensive to you, however, I > have devoted over 6-years of my time to the BI Issue, and over $100,000 of > my own money to attempt to help others -- especially, the younger ladies > like you from being disabled many years before their time! > > Blessings, > Martha Murdock > NSIF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 Hi , I just remembered I have a comprehensive questionnaire done by some Houston attorneys and my personal internist from about '95, which would probably be very helpful. The answers to these many questions have been compiled once, although mostly dealing with Silicone Gel implanted women. The compilation results were very consistent with what we all believed & later, proven to be true. I will even see if I cannot get the compilation results for you, if I cannot locate them in my files. I feel certain they will be very similar, however, I expect the saline results to be even worse, based on what I personally know. I will be happy to provide you all with this questionnaire, and suggested questions to add to it, for saline implanted women. Although I received a 'scanner' for Christmas - last year; it is not yet 'out of the box & hooked up to my computer'! Therefore, I will have to re-type the questions for you, which will take me a couple of days - plus add a few additional 'saline related' questions for you all to use. This questionnaire was designed to satisfy the MDL, so it should have some merit for saline implanted women, and might be very insightful to many. I apologize for not thinking of this sooner, however, my mind is simply not as fast at retreiving information as it once was, and that is not because I am old, as I am not nearly as old as I think you think I am. I simply had BIs at a rather young age, and they have taken a toll on my health. I'm not yet old enough to be a 'woman', however, my beautiful mother is! AHa! Love & Blessings, Martha M. / NSIF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Personally, I don't find your posts offensive, as a matter of fact I like to see other peoples points of views and I have enjoyed reading yours. Keep posting. Kimmie rheumatic offensive > Apparently I have offended someone or a few people I don't know how many, maybe just one in the group. Apparently my liberal use of the word " crap " and quite possibly " hell " (who knows, it's the only other possibly profane word that I've used here) has upset the apple cart. > > I thought that I was " giving back " by posting here about my experiences but apparently I would have to walk on egg shells to avoid giving someone (or some people) heart burn or whatever. > > I do want to clarify a few things. > > First, everything that I have written is just my opinion. > > I do not advocate the use of perscription drugs without a doctor's supervision, I just personally have had no luck with going the direct way ( through my doc) getting what I'd like to try. I'm probably luckier than most here because I have access outside of the normal channels but I don't think that it's a good idea to just go out and experiment on your own without having someone with professional knowledge guiding you. > > I don't think that all supplements are " crap " . However I do believe that there are a lot of snake oil salesmen making a killing on our niavety and desperation. I have tried quite a few of the supplements that have been mentioned in the group some with noticable success and some ... well... hmmm. That " c " word comes to mind again. > > I think that one of the reasons that some respond to one med while others don't is a by product of the way we are diagnosed and maybe our individual body chemistry. As I said before I think a lot of these diseases are merely dumpster diseases. If the docs can't figure out what you have they just put you in a category and move on. What a caring profession it has become to be a doc these days. I don't blame them for this, they are merely pawns of the insurance industry and probably even us consumers. > > As for the biologics, well I think that they are probably the most dangerous things that have been pushed in our general direction but... There have been cases in which they have been highly effective or so I've read. My doc friend seems to think that they are merely a stop gap measure and that waiting, for those of us who can, for long term evidence of their dangers/effectiveness and possibly better research, is the way to go. As I've said in the past, I believe that this is a quality of life issue for most of us. Personally, I won't settle for a long painful life over a shorter, more enjoyable and productive life. So, if biologics work in that equation well, I guess that will be the choice. To each his/her own as always. > > I thoughly believe in the possibilty that this group of diseases is being caused by an infection of some sort or an environmental problem that has yet to be fully studied but I accept that it's also very possible that the factory screwed up while assembling my code and that I broke earlier than the next model. > > What can you do about the warranty on these darned things? > > Sue the manufacturer? > > > > Bye > > > > > > Quote Link to comment Share on other sites More sharing options...
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