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Katy, we knew a Ron from here, in Utah, many, many yrs

ago. Infact, he was the very first adult little person our

family met.

You know how new parents are, still not knowing what will happen,

and wanting to see how your little one will grow up.

If this is the same Ron , our family thinks the world of

this Man. He is a marvelous person. If my memory serves me

right, he married a woman from a European country, and they later

moved there. She was just as wonderful as he.

The greatest thing I remember about him was his smile and his

positive attitude. He was a first grade teacher I believe, and

handled those kids with the greatest of love and care I have ever

seen in a teacher.

I would love to get a hold of this book you mentioned. It would

have to be full of some good information from a man such as

himself.

With love,

Debi Hoggan

***********************

Cherish yesterday.

Dream tomorrow,

*LIVE TODAY***

************************

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Hello Debie Hoggan & List:

That's correct. Ron moved to Germany and worked within the education field

on or near U.S. military bases. He and his spouse (AS I Remember) were a

really great team working together. They were in LP terms a mixed marriage,

Ron being short stature and his lovely bride average in height. Ron, where

ever you are, I'd love to hear from you.

Sincerely,

Lee Gogin

Debbie Hoggan wrote:

> Katy, we knew a Ron from here, in Utah, many, many yrs

> ago. Infact, he was the very first adult little person our

> family met.

> You know how new parents are, still not knowing what will happen,

> and wanting to see how your little one will grow up.

> If this is the same Ron , our family thinks the world of

> this Man. He is a marvelous person. If my memory serves me

> right, he married a woman from a European country, and they later

> moved there. She was just as wonderful as he.

> The greatest thing I remember about him was his smile and his

> positive attitude. He was a first grade teacher I believe, and

> handled those kids with the greatest of love and care I have ever

> seen in a teacher.

> I would love to get a hold of this book you mentioned. It would

> have to be full of some good information from a man such as

> himself.

> With love,

> Debi Hoggan

>

> ***********************

> Cherish yesterday.

> Dream tomorrow,

> *LIVE TODAY***

> ************************

>

> ------------------------------------------------------------------------

> SHOPPING for DEALS? The merchants at BuyItOnline.com are offering up

> to 30% OFF great gear, wear, gadgets and more, now through April 15,

> 2000. Real stores. Real Deals. Real Easy. Go get something great!

> 1/3025/6/_/77518/_/957313007/

> ------------------------------------------------------------------------

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  • 2 years later...
  • 1 year later...
Guest guest

My wife's surgeon is Dr. Darius Kohan. His office is in NYC, manhattan.

Please e-mail if you would like the particulars. He was recommended to us by an

ENT on Staten Island, where we live. In addition, others online have used Dr.

Kohan and had only positive comments. So we are hoping all will go well.

Please feel free to ask any other questions you may have and I will do my best

to answer based upon our experiences.

Ron

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Guest guest

Hey Ron!

Who is her surgeon? You're probably using the insurance by your work

company. I'm currently looking into Beth Israel.

Let me know how it goes with your wife and beth israel.

> My wife is currently a patient at Beth Israel. The audiologists

are

> excellent. Her surgery is scheduled for April 16th at the Beth

Israel Ambulatory

> Surgery center, which I believe is near their Cochlear Implant

center. They have

> been superb in every way in answering our questions, providing

timely

> appointments, and filling out required paperwork for insurance

approvals. I would

> highly recommend this center.

>

> Ron

>

>

>

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Guest guest

> My wife's surgeon is Dr. Darius Kohan. His office is in NYC,

manhattan.

> Please e-mail if you would like the particulars. He was

recommended to us by an

> ENT on Staten Island, where we live. In addition, others online

have used Dr.

> Kohan and had only positive comments. So we are hoping all will go

well.

> Please feel free to ask any other questions you may have and I will

do my best

> to answer based upon our experiences.

> Ron

>

>

>

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  • 1 year later...

OH RON I’m so sorry..YES let your

wife take care of you. Thank Goodness she is there for you.

From: achalasia [mailto:achalasia ] On Behalf Of Brent & Bleasdale

Sent: Sunday, October 30, 2005

8:10 PM

achalasia

Subject: Ron

Hi Ron,

I'm sorry to

hear about your diet since surgery. It sounds like your wife knows what

she is doing, too bad we couldn't say the same about your nurses at the

hospital. Things will get better, you just need some gentle time for your

E.

Hang in

there! :)

Hugs,

in BC

From: achalasia [mailto:achalasia ] On Behalf Of Ron Link

Sent: October 30, 2005 4:12 PM

achalasia

Subject: Re: Re: Post

Operative diet

Hi All,

Just had my surgery Wednesday at Cornell NYC. The operation went without a

problem. But from there it's been down hill. The first meal that was given to

me consisted of regular cereal ( Corn Flakes) and a regular corn muffin with

Milk and coffee. Lunch consisted of Meat Lasagna with red sause and bread and

coffee. What where they thinking? After this I complained. And was given a

menu. I chose fruit and yogurt. Yes fruit, thinking it would be bananas,

applesauce and possibly soft canned pears. Instead they gave me pineapple. I

thought they knew what they were doing so I ate some of it and it has been down

hill ever since. That is when I pressed them to discharge me home. And left NYP Hospital

at 5:00 p.m. on Friday night!! Thank god my wife is an RN and when we arrived

home she immediately put a stop to any mechanical soft diet, put me on a clear

liquid diet as soon as we left. I have taken two steps backwards. Ugh! Been on

clear liquids for 48 hours. Will be progressing to full liquids only (per my

wife!!) She says that she will be calling the doctor in the morning. Since the

liquids, things have gotten somewhat better. Minor regurg maybe its related to

the trauma to my E from the screw up at NY Presbyterian (dietary). Just major

frustration for me right now. My wife believes that things will calm down. I

can only pray. But no problems swallowing the liquids and no pain. Last week I

couldn't tolerate anything. Now, I can only hope,... If anyone has or had any

similar experiences I would like to know.

Ron

On Oct 28, 2005, at 4:55 PM, ykosworks wrote:

-Crystal,

My doctor

spent a lot of time with me about me diet and had a dietician

talk to me

in the hospital. I was on a clear fluid diet for 1 to 2 days

until he had

seen a barium swallow. Then he put me onto a pureed food

diet for 4

weeks. The pureed needs to be very smooth with no bits that

can damage

the E.

The

dietician gave me heaps of ideas and there are lots of foods you

can buy

already pureed or just need and seive.

I was

recommended to have small snacks in between meals like pureed

fruit,

custard, yoghurt, drinking yoghurt, frucke, etc.

I am not

getting our meals and pureeing each food separately and

putting on

my plate. They caqn be made more liquid with stock, milk,

sour cream,

tomato pastes or sauces, soups etc. One thing she also

recommended

is to get powdered skim milk. It has good protein levels

and other

goodies which we need. We can use it in food and to thicken

or add it to

juices to make smoothies. Skim though not normal powdered

milk which

has less protein.

If you want

more I can get my list and send more infor to you.

-- In achalasia , " Crystal " <chrissyl67@y...> wrote:

>

> Just a

general question...how long after the Heller Myotomy with

> partial

dor have you had to remain on a full liquid diet? My post

>

operative instrustions do not say, but everything I have read

indicates

> 1

week. I don't go to the MD until next week, so I was wondering if

2

> weeks

was a norm. THank you Crystal

>

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After my Heller at the hospital I was given a Ba swallow After that a tuna salad sandwich cup of soup and sent home to eat what I wanted Go figure

-- Ron

Hi Ron,

I'm sorry to hear about your diet since surgery. It sounds like your wife knows what she is doing, too bad we couldn't say the same about your nurses at the hospital. Things will get better, you just need some gentle time for your E.

Hang in there! :)

Hugs,

in BC

From: achalasia [mailto:achalasia ] On Behalf Of Ron LinkSent: October 30, 2005 4:12 PMachalasia Subject: Re: Re: Post Operative diet

Hi All,Just had my surgery Wednesday at Cornell NYC. The operation went without a problem. But from there it's been down hill. The first meal that was given to me consisted of regular cereal ( Corn Flakes) and a regular corn muffin with Milk and coffee. Lunch consisted of Meat Lasagna with red sause and bread and coffee. What where they thinking? After this I complained. And was given a menu. I chose fruit and yogurt. Yes fruit, thinking it would be bananas, applesauce and possibly soft canned pears. Instead they gave me pineapple. I thought they knew what they were doing so I ate some of it and it has been down hill ever since. That is when I pressed them to discharge me home. And left NYP Hospital at 5:00 p.m. on Friday night!! Thank god my wife is an RN and when we arrived home she immediately put a stop to any mechanical soft diet, put me on a clear liquid diet as soon as we left. I have taken two steps backwards. Ugh! Been on clear liquids for 48 hours. Will be progressing to full liquids only (per my wife!!) She says that she will be calling the doctor in the morning. Since the liquids, things have gotten somewhat better. Minor regurg maybe its related to the trauma to my E from the screw up at NY Presbyterian (dietary). Just major frustration for me right now. My wife believes that things will calm down. I can only pray. But no problems swallowing the liquids and no pain. Last week I couldn't tolerate anything. Now, I can only hope,... If anyone has or had any similar experiences I would like to know. RonOn Oct 28, 2005, at 4:55 PM, ykosworks wrote:

-Crystal,My doctor spent a lot of time with me about me diet and had a dietician talk to me in the hospital. I was on a clear fluid diet for 1 to 2 days until he had seen a barium swallow. Then he put me onto a pureed fooddiet for 4 weeks. The pureed needs to be very smooth with no bits that can damage the E. The dietician gave me heaps of ideas and there are lots of foods you can buy already pureed or just need and seive.I was recommended to have small snacks in between meals like pureed fruit, custard, yoghurt, drinking yoghurt, frucke, etc.I am not getting our meals and pureeing each food separately and putting on my plate. They caqn be made more liquid with stock, milk, sour cream, tomato pastes or sauces, soups etc. One thing she also recommended is to get powdered skim milk. It has good protein levels and other goodies which we need. We can use it in food and to thicken or add it to juices to make smoothies. Skim though not normal powdered milk which has less protein.If you want more I can get my list and send more infor to you.-- In achalasia , "Crystal" <chrissyl67@y...> wrote:>> Just a general question...how long after the Heller Myotomy with > partial dor have you had to remain on a full liquid diet? My post > operative instrustions do not say, but everything I have readindicates > 1 week. I don't go to the MD until next week, so I was wondering if 2 > weeks was a norm. THank you Crystal>

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Ron,

I am also very sorry to hear about the

issues surrounding your surgery.

I don’t understand what they are

thinking. It certainly isn’t the fault of your nurses or the dietary

staff – if your orders don’t reflect a liquid diet, than they may

not know any better (although one would think the nurses would, since they have

access to your chart and know they type of surgery you had, even if they aren’t

familiar with Achalasia specifically). I find the whole thing rather odd, but

the real bone to pick over the whole thing would be with your doctor, as he

should have put orders in your chart for a liquid diet.

Hope it all turns around for you, and

thank goodness for your wife!!

Good luck,

in NY

From: achalasia [mailto:achalasia ] On Behalf Of Brent & Bleasdale

Sent: Sunday, October 30, 2005 8:10 PM

achalasia

Subject: Ron

Hi Ron,

I'm sorry to

hear about your diet since surgery. It sounds like your wife knows what

she is doing, too bad we couldn't say the same about your nurses at the

hospital. Things will get better, you just need some gentle time for your

E.

Hang in

there! :)

Hugs,

in BC

From: achalasia [mailto:achalasia ] On Behalf Of Ron Link

Sent: October 30, 2005 4:12 PM

achalasia

Subject: Re: Re: Post

Operative diet

Hi All,

Just had my surgery Wednesday at Cornell NYC. The operation went without a

problem. But from there it's been down hill. The first meal that was given to

me consisted of regular cereal ( Corn Flakes) and a regular corn muffin with

Milk and coffee. Lunch consisted of Meat Lasagna with red sause and bread and

coffee. What where they thinking? After this I complained. And was given a

menu. I chose fruit and yogurt. Yes fruit, thinking it would be bananas,

applesauce and possibly soft canned pears. Instead they gave me pineapple. I

thought they knew what they were doing so I ate some of it and it has been down

hill ever since. That is when I pressed them to discharge me home. And left NYP Hospital

at 5:00 p.m. on Friday night!! Thank god my wife is an RN and when we arrived

home she immediately put a stop to any mechanical soft diet, put me on a clear

liquid diet as soon as we left. I have taken two steps backwards. Ugh! Been on

clear liquids for 48 hours. Will be progressing to full liquids only (per my

wife!!) She says that she will be calling the doctor in the morning. Since the

liquids, things have gotten somewhat better. Minor regurg maybe its related to

the trauma to my E from the screw up at NY Presbyterian (dietary). Just major

frustration for me right now. My wife believes that things will calm down. I

can only pray. But no problems swallowing the liquids and no pain. Last week I

couldn't tolerate anything. Now, I can only hope,... If anyone has or had any

similar experiences I would like to know.

Ron

On Oct 28, 2005,

at 4:55 PM, ykosworks

wrote:

-Crystal,

My doctor

spent a lot of time with me about me diet and had a dietician

talk to me

in the hospital. I was on a clear fluid diet for 1 to 2 days

until he had

seen a barium swallow. Then he put me onto a pureed food

diet for 4

weeks. The pureed needs to be very smooth with no bits that

can damage

the E.

The

dietician gave me heaps of ideas and there are lots of foods you

can buy

already pureed or just need and seive.

I was

recommended to have small snacks in between meals like pureed

fruit,

custard, yoghurt, drinking yoghurt, frucke, etc.

I am not

getting our meals and pureeing each food separately and

putting on

my plate. They caqn be made more liquid with stock, milk,

sour cream,

tomato pastes or sauces, soups etc. One thing she also

recommended

is to get powdered skim milk. It has good protein levels

and other

goodies which we need. We can use it in food and to thicken

or add it to

juices to make smoothies. Skim though not normal powdered

milk which

has less protein.

If you want

more I can get my list and send more infor to you.

-- In achalasia , " Crystal " <chrissyl67@y...> wrote:

>

> Just a

general question...how long after the Heller Myotomy with

> partial

dor have you had to remain on a full liquid diet? My post

>

operative instrustions do not say, but everything I have read

indicates

> 1

week. I don't go to the MD until next week, so I was wondering if

2

> weeks

was a norm. THank you Crystal

>

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  • 3 years later...

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