new at this

[Guest guest]

In a message dated 9/29/2004 1:03:10 AM Eastern Daylight Time, c_pate45011@... writes:

i was diagnosed 1 year ago after having problems and tests for 4 years. i've had botox and dialation. botox lasted 3 months, dialation lasted 2 1/2 months. i go back to dr on the 16th. i am not having significant problems yet but i don't want it to get too far again. any advise anyone? much appreciated. christy in northern ky

Christy,

Where do you live? I also live in N. KY.!

Maybe we can meet up somewhere. I don't have achalasia, but, have learned about it alot since joining this board. I have had considerable problems with dysphagia, though. Do you have a good doctor? Is he/she in this area?

Jan from Northern KY

[Guest guest]

I am pretty

sure you are not her but I know a Christy in KY. I haven’t seen her in

years.

Besides that, my

surgeon told me that the 1st time dilation and/or Botox is done is

the longest it will last. So the 2nd time around it usually doesn’t

last as long as the first time. Also every time they go in there it causes

scarring which can hurt surgery later on.

Usually they

will do either another Botox or go for a Heller Myotomy (I am headed in for

mine in 8 days).

That is really

all I have for right now with my limited time. If I had more time I could write

a book. LOL!!

I hope this

helped!

new at this

i was diagnosed 1 year ago after having problems and

tests for 4

years. i've had botox and dialation.

botox lasted 3 months,

dialation lasted 2 1/2 months. i go back to

dr on the 16th. i am

not having significant problems yet but i don't

want it to get too

far again. any advise anyone? much

appreciated. christy in

northern ky

[Guest guest]

In a message dated 9/29/2004 3:58:53 PM Eastern Daylight Time, c_pate45011@... writes:

I go to Dr Salzman. Where in northern ky do you live?

Christy,

I live in Villa Hills, whereabouts do you live? Is Dr. Salzman in Northern KY?

Jan

[Guest guest]

Hi Christy,

Welcome to the group.

The current opinion is that surgery in the form of a Heller's myotomy is the best option and is the only option now that they have tried the others. Each time they do an dilatation or Botox there is added some a scar tissue which makes it harder for the Heller's operation to be a success.

Please make sure that the gastroenterologist who is treating you has a good knowledge of achalasia. The surgeon you choose must have experience in doing this very specialised surgery. He must have done more than 5 or 6 operations - more like 100 ! You will notice from the discussion on the board that many of the group will travel far to get to a place like Cleveland Clinic where the surgeons are very experienced. There are other centres of excellence as well in the USA..

Please feel free to ask questions - one of the group are sure to share your problems and reply

Joan

new at this

i was diagnosed 1 year ago after having problems and tests for 4 years. i've had botox and dialation. botox lasted 3 months, dialation lasted 2 1/2 months. i go back to dr on the 16th. i am not having significant problems yet but i don't want it to get too far again. any advise anyone? much appreciated. christy in northern ky

[Guest guest]

I go to Dr Salzman. Where in northern ky do you live?

>

> In a message dated 9/29/2004 1:03:10 AM Eastern Daylight Time,

> c_pate45011@y... writes:

>

> i was diagnosed 1 year ago after having problems and tests for 4

> years. i've had botox and dialation. botox lasted 3 months,

> dialation lasted 2 1/2 months. i go back to dr on the 16th. i am

> not having significant problems yet but i don't want it to get too

> far again. any advise anyone? much appreciated. christy in

> northern ky

>

>

>

>

> Christy,

> Where do you live? I also live in N. KY.!

> Maybe we can meet up somewhere. I don't have achalasia, but, have

learned

> about it alot since joining this board. I have had considerable

problems with

> dysphagia, though. Do you have a good doctor? Is he/she in this

area?

> Jan from Northern KY

[Guest guest]

thank you. i was seeing another dr who referred me to dr. salzman.

he seems to know what he is doing unlike his colleages (sp?). when i

go to see him on the 16th i'll make sure he knows what he is doing.

> Hi Christy,

> Welcome to the group.

> The current opinion is that surgery in the form of a Heller's

myotomy is the best option and is the only option now that they have

tried the others. Each time they do an dilatation or Botox there is

added some a scar tissue which makes it harder for the Heller's

operation to be a success.

>

> Please make sure that the gastroenterologist who is treating you

has a good knowledge of achalasia. The surgeon you choose must have

experience in doing this very specialised surgery. He must have done

more than 5 or 6 operations - more like 100 ! You will notice from

the discussion on the board that many of the group will travel far to

get to a place like Cleveland Clinic where the surgeons are very

experienced. There are other centres of excellence as well in the

USA..

> Please feel free to ask questions - one of the group are sure to

share your problems and reply

> Joan

> new at this

>

>

> i was diagnosed 1 year ago after having problems and tests for 4

> years. i've had botox and dialation. botox lasted 3 months,

> dialation lasted 2 1/2 months. i go back to dr on the 16th. i

am

> not having significant problems yet but i don't want it to get

too

> far again. any advise anyone? much appreciated. christy in

> northern ky

>

>

>

[Guest guest]

erlanger. yes his office is on turkeyfoot.

>

> In a message dated 9/29/2004 3:58:53 PM Eastern Daylight Time,

> c_pate45011@y... writes:

>

> I go to Dr Salzman. Where in northern ky do you live?

>

>

>

> Christy,

> I live in Villa Hills, whereabouts do you live? Is Dr. Salzman in

Northern

> KY?

> Jan

[Guest guest]

In a message dated 9/29/2004 8:03:34 PM Eastern Daylight Time, c_pate45011@... writes:

erlanger. yes his office is on turkeyfoot.

It's great you were able to find a doctor who was experienced in dealing with achalasia. Most people report having alot of difficulty finding doctors who can recognize and know what the condition is, let alone know experienced doctors to treat with dilitations or surgery. Many people in the region find much success going to the cleveland clinic, where they are experienced at seeing and treating this condition successfully. I went there for my failed nissen fundoplication surgery and had surgery in August with Dr. Rice.

Jan in Villa Hills, NKY

[Guest guest]

Hi Narelle,

I am new to this too! (I only heard of Aspergers for

the first time a week ago today!)

Well, at least please know that you are not alone! If

you've read my recent posting you will see that I too

am having problems with sceptics. I have not had a

written evaluation yet, this all came out of a meeting

with the Educational Psychologist. So I have no

" documentary evidence " yet. It was picked up by his

teacher who tells me she spotted the signs because she

had an Aspergers child in her previous job in Perth.

(We are in Hong Kong.) Thank God for her! I spoke to

her today and thanked her, because it must have taken

a lot of courage to approach me and ask permission for

his evaluation. When I think about it I could have had

a really bad reaction to that (and to be honest my

first reaction was he is ok at home, maybe she needs

to be a better teacher??) But now I see that

has so many classic syptoms, I just can't beleive I

didn't spot it before. At least that has given me a

handle on forgiving my sister for her negative

comments - it is not her fault if all she knows of

autism is the " really bad " cases. No wonder she does

not see it in him and does not beleive me! If I could

not see it how can I expect her to?

I am so sorry you have had this negative reaction too,

because it is going to make it so much harder for

people to adapt their behaviour to accomodate your

child. But at least he has you as his champion!

Anybody with more experience out there got any

suggestions??

Does encouraging these people to read around the

subject help?

I know it helped me to see it. I would not have

belevied it before! I just thought he was my quirky

little guy. But now I look at him with all this

knowledge I can see just how much he displays the

attributes of this condition. I am reading a really

great book at the moment. There are loads of good

books around. (I would put up the title - but does

that constitute advertising???) Our Ed Psych promised

me a leaflet but he didn't have any with him so I

haven't received it yet. Anybody suggest a SIMPLE

explanantion of Aspergers? The criteria listed on the

Aspergers web site is a bit technical.

I did a tick list of behaviours at the Ed Psych

meeting. Is this available on a website somewhere?

Good luck Narelle. Please know that you are not alone

in this and that there are people all around the world

who know what you are going through.

***Hugs***

Lesley

Hong Kong

--- jarred_regan <njcrowe@...> wrote:

>

> Well were do I start.... my 5yr old has recently had

> a diagnoses of

> Aspergers, and I am the only one getting it, my

> husband is still in

> denial, my family seem to think that there is

> nothing wrong, he is

> just a boy who needs to be disciplined. I am going

> around the

> twist!! I am carrying all this baggage & the

> financial burden as

> well, his OT & speech therapy are costing a

> packet... Any suggestions

> Narelle, Geelong, , Australia

>

>

>

>

>

___________________________________________________________ALL-NEW

Messenger - all new features - even more fun! http://uk.messenger.

[Guest guest]

I wish I could help with financial advice, but I know nothing about Australia's system. Here in Texas, I was able to get Cameron on Supplimental Social Income (money from the government once a money), which also made him eligible for Medicaid (health insurance). If they have anything like that, you might look into it.

As far as support from family members, I know first hand what you are going through. Since that scary word "autism" was mentioned to me a year ago, I did all kinds of research on it. I saw many things that my son did that fit in the spectrum. And since then, I've been saying Cameron has Autism and NO one has agreed with me. My husband thinks I make more out of it than what it is, my mom thinks Cameron will grow out of it. And then in July, we went to Oklahoma, and spent 4 days and 3 nights on vacation with hubby's family, which includes his sister who used to be head of special ed at her school. After spending 24 hours a day with him for 4 days, she said "OMG, yes I definitely see the signs now." FINALLY someone who doesn't think I'm way out in left field! It's so frustrating!!! I've found that the vest support is right here on the internet with parents who know what I'm going through. It's hard, especially at first, but I tell myself that it could be SO much worse than mild Autism. I'm LUCKY. Cameron could have a terminal disease instead, and that would kill me. I just try to look at it like that. He's a special little boy with alot of talent and very smart, and I'm thankful for that and just deal with everything else.

Anne

-- New at this

Well were do I start.... my 5yr old has recently had a diagnoses of Aspergers, and I am the only one getting it, my husband is still in denial, my family seem to think that there is nothing wrong, he is just a boy who needs to be disciplined. I am going around the twist!! I am carrying all this baggage & the financial burden as well, his OT & speech therapy are costing a packet... Any suggestionsNarelle, Geelong, , Australia

[Guest guest]

I've started telling family members, "I'm on this group on , and this lady said she has a child with behaviors just like Cameron" and things to that effect. Also, printing articles, and I recommended a book to my mom (Asperger's Syndrome: A Guide for Parents and Professionals by Tony Attwood- no parent of a child with AS should be without it). A simple explanation I use is Asperger's is a mild form of Autism- Cameron has problems with social skills and sensory issues.

Anne

-- Re: New at this

Hi Narelle, I am new to this too! (I only heard of Aspergers forthe first time a week ago today!)Well, at least please know that you are not alone! Ifyou've read my recent posting you will see that I tooam having problems with sceptics. I have not had awritten evaluation yet, this all came out of a meetingwith the Educational Psychologist. So I have no"documentary evidence" yet. It was picked up by histeacher who tells me she spotted the signs because shehad an Aspergers child in her previous job in Perth.(We are in Hong Kong.) Thank God for her! I spoke toher today and thanked her, because it must have takena lot of courage to approach me and ask permission forhis evaluation. When I think about it I could have hada really bad reaction to that (and to be honest myfirst reaction was he is ok at home, maybe she needsto be a better teacher??) But now I see that has so many classic syptoms, I just can't beleive Ididn't spot it before. At least that has given me ahandle on forgiving my sister for her negativecomments - it is not her fault if all she knows ofautism is the "really bad" cases. No wonder she doesnot see it in him and does not beleive me! If I couldnot see it how can I expect her to?I am so sorry you have had this negative reaction too,because it is going to make it so much harder forpeople to adapt their behaviour to accomodate yourchild. But at least he has you as his champion! Anybody with more experience out there got anysuggestions??Does encouraging these people to read around thesubject help?I know it helped me to see it. I would not havebelevied it before! I just thought he was my quirkylittle guy. But now I look at him with all thisknowledge I can see just how much he displays theattributes of this condition. I am reading a reallygreat book at the moment. There are loads of goodbooks around. (I would put up the title - but doesthat constitute advertising???) Our Ed Psych promisedme a leaflet but he didn't have any with him so Ihaven't received it yet. Anybody suggest a SIMPLEexplanantion of Aspergers? The criteria listed on theAspergers web site is a bit technical.I did a tick list of behaviours at the Ed Psychmeeting. Is this available on a website somewhere?Good luck Narelle. Please know that you are not alonein this and that there are people all around the worldwho know what you are going through. ***Hugs***LesleyHong Kong--- jarred_regan <njcrowe@...> wrote: > > Well were do I start.... my 5yr old has recently had> a diagnoses of > Aspergers, and I am the only one getting it, my> husband is still in > denial, my family seem to think that there is> nothing wrong, he is > just a boy who needs to be disciplined. I am going> around the > twist!! I am carrying all this baggage & the> financial burden as > well, his OT & speech therapy are costing a> packet... Any suggestions> Narelle, Geelong, , Australia> > > > > ___________________________________________________________ALL-NEW Messenger - all new features - even more fun! http://uk.messenger.

[Guest guest]

Hi Jody, and welcome. I understand about not wanting anymore children. Cameron's "issues" are one reason (and there is a list- like bad pregnancy problems and delivery) that we don't want anymore naturally. We've talked about adopting some day, but we have 2 kids and I'm going to college full time, so now is not the time for us to be adopting. But maybe that would be an opinion for you some day. I know it's hard when you first find out that there is something wrong with your child. I was so angry with God because when Cameron was born, hubby and I were so thankful for such a wonderful, healthy baby, and by the time Cameron was 2, we were seeing so many problems. I felt betrayed that I had felt so thankful and prayed by thanks, and then this. But Cameron's problems have put me on a path to becoming a special ed. teacher, something I never would have thought of doing if I hadn't learned that I COULD do it in my own home, so I've come full circle back to everything happens for a reason, and we may not know what that reason is, but it's a good one. In the middle of the night, when Cameron sleeps, I'm not thinking that, but when I'm in my own peace and quiet, I'm thinking of how grateful I am to have such a wonderful and special little boy! I've discovered that groups like this are the best place for questions and support. Parent who go through the same thing are the best sounding boards, shoulders to cry on, etc.... Glad you joined.

Anne

-- new at this

I am new at this posting messages. My son has not officially been diagnosed with aspergers yet. But me and my wife have read and researched and we do believe that he does have aspergers. He is our only child and we are scared to have any more because of this. I just need to find other parents out there who can help answer questions and just give advice.Thanks Jody

[Guest guest]

http://www.aspergia.com/index.htm

really good website that explains aspergers in more simple

terminology

www.aspergersyndrome.org

O.A.S.I.S. website. Lots of info on aspergers

http://www.tonyattwood.com.au/

Tony Attwood's site

These links are good for finding out information that you can pass

on to people who you feel should know more. My experience is that

you can't change other people's minds very often, but it never hurts

to try and give more information. I still try to explain things to

other's about my kids and autism, but not many are receptive to

learning more. I know my children best and I just don't listen to

others comments anymore or get mad about it, because they don't know

my children like i do.

Ginnene Stone

http://www.specialneedschildrennetwork.com

> >

> > Well were do I start.... my 5yr old has recently had

> > a diagnoses of

> > Aspergers, and I am the only one getting it, my

> > husband is still in

> > denial, my family seem to think that there is

> > nothing wrong, he is

> > just a boy who needs to be disciplined. I am going

> > around the

> > twist!! I am carrying all this baggage & the

> > financial burden as

> > well, his OT & speech therapy are costing a

> > packet... Any suggestions

> > Narelle, Geelong, , Australia

> >

> >

> >

> >

> >

>

>

>

>

>

> ___________________________________________________________ALL-NEW

Messenger - all new features - even more fun!

http://uk.messenger.

[Guest guest]

http://www.aspergia.com/index.htm

really good website that explains aspergers in more simple

terminology

www.aspergersyndrome.org

O.A.S.I.S. website. Lots of info on aspergers

http://www.tonyattwood.com.au/

Tony Attwood's site

These links are good for finding out information that you can pass

on to people who you feel should know more. My experience is that

you can't change other people's minds very often, but it never hurts

to try and give more information. I still try to explain things to

other's about my kids and autism, but not many are receptive to

learning more. I know my children best and I just don't listen to

others comments anymore or get mad about it, because they don't know

my children like i do.

Ginnene Stone

http://www.specialneedschildrennetwork.com

> >

> > Well were do I start.... my 5yr old has recently had

> > a diagnoses of

> > Aspergers, and I am the only one getting it, my

> > husband is still in

> > denial, my family seem to think that there is

> > nothing wrong, he is

> > just a boy who needs to be disciplined. I am going

> > around the

> > twist!! I am carrying all this baggage & the

> > financial burden as

> > well, his OT & speech therapy are costing a

> > packet... Any suggestions

> > Narelle, Geelong, , Australia

> >

> >

> >

> >

> >

>

>

>

>

>

> ___________________________________________________________ALL-NEW

Messenger - all new features - even more fun!

http://uk.messenger.

[Guest guest]

jodywaggoner wrote:

>

> I am new at this posting messages. My son has not officially

> been diagnosed with aspergers yet. But me and my wife have read and

> researched and we do believe that he does have aspergers. He is our

> only child and we are scared to have any more because of this. I just

> need to find other parents out there who can help answer questions

> and just give advice. Thanks Jody

Hi, and welcome! Don't worry so much about having more kids. While it

is genetic it's not a given that all kids in a family will turn up with

it. Our son Louie (24 now) was diagnosed at 2.5 (PDD with autistic

features), 6 (High Functioning Autism), and 12 (HFA/Aspergers Syndrome).

Our daughter (now 35) on the other hand, was as typical as the child of

2 old hippies could be (well, she *was* the 1st Goth in Tulsa, OK).

She was diagnosed just this year with Adult-onset ADHD, but that didn't

show up really till she hit her middle 20's. And Louie is the only

autistic person in my entire family, which is huge and numerous (I have

5 younger brothers & sisters, all married with their own kids, some of

whom also have kids now, and 300+ relatives on my mom's side).

Besides, while autism is a shock at first, it's not the end of the

world. Many autistic people and Asperger's people have fulfilling lives

and/or careers; read some Dr. Temple Grandin (available at most public

libraries) and you'll see. She's an autistic person who is also a full

professor at Colorado University!

Hang in there. There are lots worse things that can happen to a child

than autism. You are starting on a great adventure where you will learn

more than you ever thought you could about things you do not yet know,

where you will discover your own depths of love and caring more than the

parents of typical kids, and where you will feel real triumph at steps

forward and advances later on. As I say, our Louie is 24 now, and

raising him was a challenge, but I wouldn't trade the experience for all

the tea in China!

Annie, who loves ya annie@...

--

The only nice thing about being imperfect is the joy it brings to

others. -- Doug Larson

[Guest guest]

Well this is definately the place for support and information! Welcome to the group! My name is and I live in NY with husband Jay, and 3 sons Alonzo (High Functioning Autism) (5) and Lucas (3).

While the incidence of Autism is more common in siblings of an autistic child it is not definate. As far as I know my other two are nuerotypical. Neither one of them has real social problems except that my youngest is very shy with adults. We did not know Alonzo was autistic until just 6 or so months ago, but I am glad he has siblings...it allows him to learn social skills from the other boys who have no choice but to accept him unlike the kids at school. If we had known, I will admit, I would have questioned having another child too though so by no means am I questioning your fears!

Are you going thru the process of an evalutaion yet?

jodywaggoner <jodywaggoner@...> wrote:

I am new at this posting messages. My son has not officially been diagnosed with aspergers yet. But me and my wife have read and researched and we do believe that he does have aspergers. He is our only child and we are scared to have any more because of this. I just need to find other parents out there who can help answer questions and just give advice.Thanks Jody__________________________________________________

[Guest guest]

I have not been able to get a copy of this as the

supplier says it is reprinting. Guess I will have to

comb some shops in Australia next week!

Lesley

Hong Kong

--- Anne <Lady_Anne76@...> wrote:

> I've started telling family members, " I'm on this

> group on , and this

> lady said she has a child with behaviors just like

> Cameron " and things to

> that effect. Also, printing articles, and I

> recommended a book to my mom

> (Asperger's Syndrome: A Guide for Parents and

> Professionals by Tony Attwood-

> no parent of a child with AS should be without it).

> A simple explanation I

> use is Asperger's is a mild form of Autism- Cameron

> has problems with social

> skills and sensory issues.

>

> Anne

>

> -- Re: New at this

>

> Hi Narelle,

>

> I am new to this too! (I only heard of Aspergers for

> the first time a week ago today!)

>

> Well, at least please know that you are not alone!

> If

> you've read my recent posting you will see that I

> too

> am having problems with sceptics. I have not had a

> written evaluation yet, this all came out of a

> meeting

> with the Educational Psychologist. So I have no

> " documentary evidence " yet. It was picked up by his

> teacher who tells me she spotted the signs because

> she

> had an Aspergers child in her previous job in Perth.

> (We are in Hong Kong.) Thank God for her! I spoke to

> her today and thanked her, because it must have

> taken

> a lot of courage to approach me and ask permission

> for

> his evaluation. When I think about it I could have

> had

> a really bad reaction to that (and to be honest my

> first reaction was he is ok at home, maybe she needs

> to be a better teacher??) But now I see that

> has so many classic syptoms, I just can't beleive I

> didn't spot it before. At least that has given me a

> handle on forgiving my sister for her negative

> comments - it is not her fault if all she knows of

> autism is the " really bad " cases. No wonder she does

> not see it in him and does not beleive me! If I

> could

> not see it how can I expect her to?

>

> I am so sorry you have had this negative reaction

> too,

> because it is going to make it so much harder for

> people to adapt their behaviour to accomodate your

> child. But at least he has you as his champion!

>

> Anybody with more experience out there got any

> suggestions??

>

> Does encouraging these people to read around the

> subject help?

>

> I know it helped me to see it. I would not have

> belevied it before! I just thought he was my quirky

> little guy. But now I look at him with all this

> knowledge I can see just how much he displays the

> attributes of this condition. I am reading a really

> great book at the moment. There are loads of good

> books around. (I would put up the title - but does

> that constitute advertising???) Our Ed Psych

> promised

> me a leaflet but he didn't have any with him so I

> haven't received it yet. Anybody suggest a SIMPLE

> explanantion of Aspergers? The criteria listed on

> the

> Aspergers web site is a bit technical.

>

> I did a tick list of behaviours at the Ed Psych

> meeting. Is this available on a website somewhere?

>

> Good luck Narelle. Please know that you are not

> alone

> in this and that there are people all around the

> world

> who know what you are going through.

>

> ***Hugs***

> Lesley

> Hong Kong

>

>

>

> --- jarred_regan <njcrowe@...> wrote:

> >

> > Well were do I start.... my 5yr old has recently

> had

> > a diagnoses of

> > Aspergers, and I am the only one getting it, my

> > husband is still in

> > denial, my family seem to think that there is

> > nothing wrong, he is

> > just a boy who needs to be disciplined. I am

> going

> > around the

> > twist!! I am carrying all this baggage & the

> > financial burden as

> > well, his OT & speech therapy are costing a

> > packet... Any suggestions

> > Narelle, Geelong, , Australia

> >

> >

> >

> >

> >

>

>

>

>

>

>

___________________________________________________________ALL-NEW

>

> Messenger - all new features - even more fun!

> http://uk.messenger.

>

>

[Guest guest]

Thanks Lesley,

It was lovely to hear from someone in the same boat…I am getting

a copy of Tony Attwood’s book from the local Uni library when it is free,

and I have given my family articles from Autism ’s Web site

(autismvictoria.org.au), which explained it the same way as our psyc explained

it to us, but they keep saying that I have nothing to worry about! Jarred’s

not that bad

Thanks again Lesley.. you

made my day

HUGS

Narelle

Vic AUST

[Guest guest]

I am off to Brisbane tonight to visit my other sister

(the supportive one!) and I wish she lived in

so I could come round and maybe collect that hug! Take

care

Lesley

Hong Kong

--- Narelle Crowe <njcrowe@...> wrote:

> Thanks Lesley,

>

> It was lovely to hear from someone in the same

> boat.I am getting a copy

> of Tony Attwood's book from the local Uni library

> when it is free, and I

> have given my family articles from Autism 's

> Web site

> (autismvictoria.org.au), which explained it the same

> way as our psyc

> explained it to us, but they keep saying that I have

> nothing to worry

> about! Jarred's not that bad

>

> Thanks again Lesley.. you made my day

>

> HUGS

> Narelle

> Vic AUST

>

>

>

>

<http://us.adserver./l?M=315388.5497957.6576270.3001176/D=grphe

> alth/S=:HM/A=2372354/rand=884298035>

>

>

>

>

___________________________________________________________ALL-NEW

Messenger - all new features - even more fun! http://uk.messenger.

[Guest guest]

Hi Lesley,

>

> I have not been able to get a copy of this as the

> supplier says it is reprinting. Guess I will have to

> comb some shops in Australia next week!

>

>> Also, printing articles, and I

>> recommended a book to my mom

>> (Asperger's Syndrome: A Guide for Parents and

>> Professionals by Tony Attwood-

>> no parent of a child with AS should be without it).

You should be able to get this book from Amazon, or from the UK publisher

Kingsley, or try the NAS (UK).

http://www.nas.org.uk/

http://www.jkp.com/

in England

[Guest guest]

Enjoy your trip and after what just went

though this am at swimming lessons I would you that hug too.

I am learning that people just don’t

get what we deal with every day!!!!

I took Jarred to swimming this am, as I have

done all year, only for him (not me) to be told move into the other pool with

the other teacher and away from the only friend he has made!!

When I don’t them that is won’t

work & that I wasn’t good enough (they knew about the AS & said

that they have other AS children) they al just looked at me when he threw a tantrum

for the whole lesson.

Have a great trip, enjoy your sister, that

another thing I wished I had, a sister!!!

Get a hug from her & if you ever get

to Vic there will be always one waiting for you

Narelle

RE:

New at this

I am off to Brisbane tonight

to visit my other sister

(the supportive one!) and I wish she lived in

so I could come round and maybe collect that hug!

Take

care

Lesley

Hong Kong

--- Narelle Crowe <njcrowe@...>

wrote:

> Thanks Lesley,

>

> It was lovely to hear from someone in the

same

> boat.I am getting a copy

> of Tony Attwood's book from the local Uni

library

> when it is free, and I

> have given my family articles from Autism

's

> Web site

> (autismvictoria.org.au), which explained it

the same

> way as our psyc

> explained it to us, but they keep saying that

I have

> nothing to worry

> about! Jarred's not that bad

>

> Thanks again Lesley.. you made my day

>

> HUGS

> Narelle

> Vic AUST

>

>

>

>

<http://us.adserver./l?M=315388.5497957.6576270.3001176/D=grphe

> alth/S=:HM/A=2372354/rand=884298035>

>

>

>

>

___________________________________________________________ALL-NEW

Messenger - all new features - even more fun! http://uk.messenger.

[Guest guest]

Sorry it took so long to reply but I have been away

for 2 weeks. (Just catching up on the 204 emails in my

in box - must remember to switch to the digest option

next time!! ha ha) Yes, I ordered it from Amazon UK

but as I live in Hong Kong now it cost me almost as

much for postage as the book! Oh well, hopefully it

will be worth it!

Lesley

--- Rowell <nancy@...> wrote:

> Hi Lesley,

>

> >

> > I have not been able to get a copy of this as the

> > supplier says it is reprinting. Guess I will have

> to

> > comb some shops in Australia next week!

> >

> >> Also, printing articles, and I

> >> recommended a book to my mom

> >> (Asperger's Syndrome: A Guide for Parents and

> >> Professionals by Tony Attwood-

> >> no parent of a child with AS should be without

> it).

>

> You should be able to get this book from Amazon, or

> from the UK publisher

> Kingsley, or try the NAS (UK).

>

> http://www.nas.org.uk/

>

> http://www.jkp.com/

>

> in England

>

>

___________________________________________________________ALL-NEW

Messenger - all new features - even more fun! http://uk.messenger.

[Guest guest]

Sorry it took so long to reply but I have been away

for 2 weeks. (Just catching up on the 204 emails in my

in box - must remember to switch to the digest option

next time!! ha ha) Yes, I ordered it from Amazon UK

but as I live in Hong Kong now it cost me almost as

much for postage as the book! Oh well, hopefully it

will be worth it!

Lesley

--- Rowell <nancy@...> wrote:

> Hi Lesley,

>

> >

> > I have not been able to get a copy of this as the

> > supplier says it is reprinting. Guess I will have

> to

> > comb some shops in Australia next week!

> >

> >> Also, printing articles, and I

> >> recommended a book to my mom

> >> (Asperger's Syndrome: A Guide for Parents and

> >> Professionals by Tony Attwood-

> >> no parent of a child with AS should be without

> it).

>

> You should be able to get this book from Amazon, or

> from the UK publisher

> Kingsley, or try the NAS (UK).

>

> http://www.nas.org.uk/

>

> http://www.jkp.com/

>

> in England

>

>

___________________________________________________________ALL-NEW

Messenger - all new features - even more fun! http://uk.messenger.

[Guest guest]

Hi,

I had none of the classic symptoms other than deafness, which was something I'd suffered on and off since about the age of 4. It was while I was trying to get my ENT to do something about my hearing that the ctoma was discovered.

,

Milton Keynes, UK> > Hello......I'm glad to have found this board!! I am a 48 year old > female that was diagnosed yesterday with a cholesteatoma in my left > ear!! My ear feels full all the time......and rings...and i have > hearing loss in it........however i have never had any discharge of > any kind out of it.....I was wondering if anyone else who has been > diagnosed with this problem actually had one but didn't have any > discharge or infections that are typical with the problem? I'm very > nervous and of course probably trying to figure out how to get out of > this thing!! I'm tentatively supposed to have surgery the day after > thanksgiving, however i am requesting a ct scan since my doctor > didn't order one!! Thanks> Whatever you WanadooThis email has been checked for most known viruses - find out more here

[Guest guest]

If you want help from us, you have to provide stats and meal examples -

otherwise we can't really help.

Increase your potassium intake and you'll stop retaining water.

To put on weight one needs to eat at least 15x your lbs in calories. So

a 100lbs person would consume 1500 calories a day.

ABO Specifics Inc. - http://www.foodforyourblood.com

new at this

I would like to try this eat 4 your life. 2 years ago i had beratric

surgery and lost too much weight, i could stand to gain at least 25

lbs. So i'm i understanding that if i try this ,i won't loose weight

,my body will build itself up to where it should be ? Also i like the

sea salt but i retain water. Is that because of what i eat that i

retain water and once i start this way of eating does that mean that

eventualy i'll be able to have some salt and it won't cause me to

retain water ? In the past week i've been making small changes in eating

..