Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 There are two options (that I know of) open to the surgeon at the time of operating - Canal Wall Up and Canal Wall Down. I had a CWD mastoidectomy, tympanoplasty and ossiculoplasty in November 1999 and to date, have had no recurrence. Due to the fact that the meatoplasty (widening of the ear canal) together with the CWD leaves a big enough area for the surgeon to be able to succesfully inspect the mastoid bowl for signs of recurrence and/or infection debris and 'hoover' these out with the suction toilet procedure, this vastly reduces the numbers of patients with CWD (vs CWU) who have recurrence. HTH Kazzy Is there a cure? My niece has severe hearing loss from cholesteatoma and now my 10 year old son has been diagnosed. My niece has had numerous surgeries and after almost 2 years of no surgery will now have to return to the " table " . I am concerned about my son having a similar experience and I am looking for a " cure " . does anyone know of anyone having success in treating cholesteatoma with no reoccurence???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 The option with opening the ear canal up is great. But when you are dealing with children and they are still growing the opening that was large enough at a younger age will soon become to small as well. My son has had two surgeries one when he was five they did not open canal bigger at that time. He had another at the age of nine and opened the canal bigger. But due to the growth in his body he is thirteen and will have a third surgery to remove c-toma and open the canal bigger again. His doctor thinks he will not have to have it done again. Good Luck, Is there a cure? > > > My niece has severe hearing loss from cholesteatoma and now my 10 year > old son has been diagnosed. > My niece has had numerous surgeries and after almost 2 years of no > surgery will now have to return to the " table " . > I am concerned about my son having a similar experience and I am > looking for a " cure " . > does anyone know of anyone having success in treating cholesteatoma > with no reoccurence???? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 To me the CWD is the best option, I had mine in 1979 and have been c-toma free ever since. I was 20 at the time of my CWD... tom hansen --- Dragoo <adragoo2@...> wrote: > The option with opening the ear canal up is great. > But when you are dealing > with children and they are still growing the opening > that was large enough > at a younger age will soon become to small as well. > My son has had two > surgeries one when he was five they did not open > canal bigger at that time. > He had another at the age of nine and opened the > canal bigger. But due to > the growth in his body he is thirteen and will have > a third surgery to > remove c-toma and open the canal bigger again. His > doctor thinks he will > not have to have it done again. > > Good Luck, > > Is there a cure? > > > > > > My niece has severe hearing loss from > cholesteatoma and now my 10 year > > old son has been diagnosed. > > My niece has had numerous surgeries and after > almost 2 years of no > > surgery will now have to return to the " table " . > > I am concerned about my son having a similar > experience and I am > > looking for a " cure " . > > does anyone know of anyone having success in > treating cholesteatoma > > with no reoccurence???? > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 To me the CWD is the best option, I had mine in 1979 and have been c-toma free ever since. I was 20 at the time of my CWD... tom hansen --- Dragoo <adragoo2@...> wrote: > The option with opening the ear canal up is great. > But when you are dealing > with children and they are still growing the opening > that was large enough > at a younger age will soon become to small as well. > My son has had two > surgeries one when he was five they did not open > canal bigger at that time. > He had another at the age of nine and opened the > canal bigger. But due to > the growth in his body he is thirteen and will have > a third surgery to > remove c-toma and open the canal bigger again. His > doctor thinks he will > not have to have it done again. > > Good Luck, > > Is there a cure? > > > > > > My niece has severe hearing loss from > cholesteatoma and now my 10 year > > old son has been diagnosed. > > My niece has had numerous surgeries and after > almost 2 years of no > > surgery will now have to return to the " table " . > > I am concerned about my son having a similar > experience and I am > > looking for a " cure " . > > does anyone know of anyone having success in > treating cholesteatoma > > with no reoccurence???? > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 To me the CWD is the best option, I had mine in 1979 and have been c-toma free ever since. I was 20 at the time of my CWD... tom hansen --- Dragoo <adragoo2@...> wrote: > The option with opening the ear canal up is great. > But when you are dealing > with children and they are still growing the opening > that was large enough > at a younger age will soon become to small as well. > My son has had two > surgeries one when he was five they did not open > canal bigger at that time. > He had another at the age of nine and opened the > canal bigger. But due to > the growth in his body he is thirteen and will have > a third surgery to > remove c-toma and open the canal bigger again. His > doctor thinks he will > not have to have it done again. > > Good Luck, > > Is there a cure? > > > > > > My niece has severe hearing loss from > cholesteatoma and now my 10 year > > old son has been diagnosed. > > My niece has had numerous surgeries and after > almost 2 years of no > > surgery will now have to return to the " table " . > > I am concerned about my son having a similar > experience and I am > > looking for a " cure " . > > does anyone know of anyone having success in > treating cholesteatoma > > with no reoccurence???? > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 It was my impression that canal wall down is the more drastic measure, and a last option if the surgeon thinks the infection is too serious to try to leave more of the middle ear intact. My ENT told me he would only do a canal wall down if he had to. Does't a canal wall down basically mean a life of going to the ENT every few months to get it cleaned out? I'm just asking, since this is all new to me. Thanks, Gerry > > My niece has severe hearing loss from cholesteatoma and now my 10 year > old son has been diagnosed. > My niece has had numerous surgeries and after almost 2 years of no > surgery will now have to return to the " table " . > I am concerned about my son having a similar experience and I am > looking for a " cure " . > does anyone know of anyone having success in treating cholesteatoma > with no reoccurence???? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 How good is your hearing in the ear(s) that had the canal wall down? Does anyone know if the canal wall up saves more of your hearing than a canal wall down? These are questions I need to get answered before my surgery. I only want them to do the canal wall down if they have to. Gerry > > > The option with opening the ear canal up is great. > > But when you are dealing > > with children and they are still growing the opening > > that was large enough > > at a younger age will soon become to small as well. > > My son has had two > > surgeries one when he was five they did not open > > canal bigger at that time. > > He had another at the age of nine and opened the > > canal bigger. But due to > > the growth in his body he is thirteen and will have > > a third surgery to > > remove c-toma and open the canal bigger again. His > > doctor thinks he will > > not have to have it done again. > > > > Good Luck, > > > > Is there a cure? > > > > > > > > > My niece has severe hearing loss from > > cholesteatoma and now my 10 year > > > old son has been diagnosed. > > > My niece has had numerous surgeries and after > > almost 2 years of no > > > surgery will now have to return to the " table " . > > > I am concerned about my son having a similar > > experience and I am > > > looking for a " cure " . > > > does anyone know of anyone having success in > > treating cholesteatoma > > > with no reoccurence???? > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 You are correct. My child goes to the doctor at least every three months to have it cleaned out. He had a radical done so this option was the best. Re: Is there a cure? It was my impression that canal wall down is the more drastic measure, and a last option if the surgeon thinks the infection is too serious to try to leave more of the middle ear intact. My ENT told me he would only do a canal wall down if he had to. Does't a canal wall down basically mean a life of going to the ENT every few months to get it cleaned out? I'm just asking, since this is all new to me. Thanks,Gerry>> My niece has severe hearing loss from cholesteatoma and now my 10 year > old son has been diagnosed.> My niece has had numerous surgeries and after almost 2 years of no > surgery will now have to return to the "table".> I am concerned about my son having a similar experience and I am > looking for a "cure".> does anyone know of anyone having success in treating cholesteatoma > with no reoccurence????> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 My c-toma started in 1974, I had 2 removal attempts prior to my CWD in 1979. I had about a 30% loss on the removal attempts and about another 10% with my CWD. In 1983 I had a reconstruction that brought my hearing back up to about 80 to 85%. In the past 3 years my hearing started to fall off to about 50% or there abouts. My Otologist said doing another reconstruction was not an option at this time so I got a BTE hearing aid which put me back up to about 92% hearing. I was a 15 on the 1st, 16 on the 2nd, and 20 for my CWD. I was out on my own at the time of my CWD so the choice was mine on which way to go. These operations can be very painfull to go through and recover from. To me, the best route is the CWD as you have a 85% chance of never having c-toma coming back. I feel for those who have what I feel is too many ops due to the pain part of it. Your ear can be rebuilt in most case's with a CWD. Most Otologist's who know what they are doing go by 2 removal attempts then a CWD if needed, I was lucky I fell into that pattern. My heart goes out who have had more than this, even more so for the kids...... tom hansen --- Gerry <gerrydel@...> wrote: > > How good is your hearing in the ear(s) that had the > canal wall down? > Does anyone know if the canal wall up saves more of > your hearing than > a canal wall down? These are questions I need to > get answered before > my surgery. I only want them to do the canal wall > down if they have > to. > > Gerry > > > > > > > The option with opening the ear canal up is > great. > > > But when you are dealing > > > with children and they are still growing the > opening > > > that was large enough > > > at a younger age will soon become to small as > well. > > > My son has had two > > > surgeries one when he was five they did not open > > > canal bigger at that time. > > > He had another at the age of nine and opened the > > > canal bigger. But due to > > > the growth in his body he is thirteen and will > have > > > a third surgery to > > > remove c-toma and open the canal bigger again. > His > > > doctor thinks he will > > > not have to have it done again. > > > > > > Good Luck, > > > > > > Is there a cure? > > > > > > > > > > > > My niece has severe hearing loss from > > > cholesteatoma and now my 10 year > > > > old son has been diagnosed. > > > > My niece has had numerous surgeries and after > > > almost 2 years of no > > > > surgery will now have to return to the > " table " . > > > > I am concerned about my son having a similar > > > experience and I am > > > > looking for a " cure " . > > > > does anyone know of anyone having success in > > > treating cholesteatoma > > > > with no reoccurence???? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Hi Tom, I had my CWD Sep last year, and am always worry of ctoma recurrent. Its nice to hear your good story of ctoma free since 1979. Do you live a normal life all these year? ie. able to swim, no more worry of water gets into your ear during shower etc..? I had been extremely careful not to allow any water into my ear since the surgery, I miss swimming a lot. I don't know when can I live a normal life. Any idea? Best wishes to all ctoma members. Irene Tom Hansen <pingmn123@...> wrote: My c-toma started in 1974, I had 2 removal attemptsprior to my CWD in 1979. I had about a 30% loss onthe removal attempts and about another 10% with myCWD. In 1983 I had a reconstruction that brought myhearing back up to about 80 to 85%. In the past 3years my hearing started to fall off to about 50% orthere abouts. My Otologist said doing anotherreconstruction was not an option at this time so I gota BTE hearing aid which put me back up to about 92%hearing. I was a 15 on the 1st, 16 on the 2nd, and 20for my CWD. I was out on my own at the time of my CWDso the choice was mine on which way to go. Theseoperations can be very painfull to go through andrecover from. To me, the best route is the CWD as youhave a 85% chance of never having c-toma coming back. I feel for those who have what I feel is too many opsdue to the pain part of it. Your ear can be rebuiltin most case's with a CWD. Most Otologist's who knowwhat they are doing go by 2 removal attempts then aCWD if needed, I was lucky I fell into that pattern.My heart goes out who have had more than this, evenmore so for the kids......tom hansen --- Gerry <gerrydel@...> wrote:> > How good is your hearing in the ear(s) that had the> canal wall down? > Does anyone know if the canal wall up saves more of> your hearing than > a canal wall down? These are questions I need to> get answered before > my surgery. I only want them to do the canal wall> down if they have > to.> > Gerry> > > > > > > The option with opening the ear canal up is> great. > > > But when you are dealing > > > with children and they are still growing the> opening> > > that was large enough > > > at a younger age will soon become to small as> well. > > > My son has had two > > > surgeries one when he was five they did not open> > > canal bigger at that time. > > > He had another at the age of nine and opened the> > > canal bigger. But due to > > > the growth in his body he is thirteen and will> have> > > a third surgery to > > > remove c-toma and open the canal bigger again. > His> > > doctor thinks he will > > > not have to have it done again.> > > > > > Good Luck,> > > > > > Is there a cure?> > > >> > > >> > > > My niece has severe hearing loss from> > > cholesteatoma and now my 10 year> > > > old son has been diagnosed.> > > > My niece has had numerous surgeries and after> > > almost 2 years of no> > > > surgery will now have to return to the> "table".> > > > I am concerned about my son having a similar> > > experience and I am> > > > looking for a "cure".> > > > does anyone know of anyone having success in> > > treating cholesteatoma> > > > with no reoccurence????> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Although scuba diving and sky diving are out of the question, I have had no restictions on what I can or can not do. I do swim a lot, we are currently buying a house with a pool and plan on swimming with the grand kids. About the only thing that I can say is that some of the side affects still happen. Once in a while I still get that dull acking pain in my mastoid area Alive generally take care of that. Shooting pains where the nerve endings are waking up a few times a year. I get a loud tone sound that lasts for about 30 seconds then goes away as fast as it comes a few times a year. Those are about the side affects that I get Despite of all of this to me the CWD was worth it as I don't have the endless surgerys that some go through. tom --- wafi kumo <wafikumo@...> wrote: > Hi Tom, > > I had my CWD Sep last year, and am always worry of > ctoma recurrent. > Its nice to hear your good story of ctoma free > since 1979. > Do you live a normal life all these year? ie. able > to swim, no more worry of water gets into your ear > during shower etc..? I had been extremely careful > not to allow any water into my ear since the > surgery, I miss swimming a lot. I don't know when > can I live a normal life. Any idea? > > Best wishes to all ctoma members. > Irene > > > > > > Tom Hansen <pingmn123@...> wrote: > My c-toma started in 1974, I had 2 removal > attempts > prior to my CWD in 1979. I had about a 30% loss on > the removal attempts and about another 10% with my > CWD. In 1983 I had a reconstruction that brought my > hearing back up to about 80 to 85%. In the past 3 > years my hearing started to fall off to about 50% or > there abouts. My Otologist said doing another > reconstruction was not an option at this time so I > got > a BTE hearing aid which put me back up to about 92% > hearing. I was a 15 on the 1st, 16 on the 2nd, and > 20 > for my CWD. I was out on my own at the time of my > CWD > so the choice was mine on which way to go. These > operations can be very painfull to go through and > recover from. To me, the best route is the CWD as > you > have a 85% chance of never having c-toma coming > back. > I feel for those who have what I feel is too many > ops > due to the pain part of it. Your ear can be rebuilt > in most case's with a CWD. Most Otologist's who > know > what they are doing go by 2 removal attempts then a > CWD if needed, I was lucky I fell into that pattern. > My heart goes out who have had more than this, even > more so for the kids...... > > tom hansen > > > > --- Gerry <gerrydel@...> wrote: > > > > > How good is your hearing in the ear(s) that had > the > > canal wall down? > > Does anyone know if the canal wall up saves more > of > > your hearing than > > a canal wall down? These are questions I need to > > get answered before > > my surgery. I only want them to do the canal wall > > down if they have > > to. > > > > Gerry > > > > > > > > > > > The option with opening the ear canal up is > > great. > > > > But when you are dealing > > > > with children and they are still growing the > > opening > > > > that was large enough > > > > at a younger age will soon become to small as > > well. > > > > My son has had two > > > > surgeries one when he was five they did not > open > > > > canal bigger at that time. > > > > He had another at the age of nine and opened > the > > > > canal bigger. But due to > > > > the growth in his body he is thirteen and will > > have > > > > a third surgery to > > > > remove c-toma and open the canal bigger again. > > > His > > > > doctor thinks he will > > > > not have to have it done again. > > > > > > > > Good Luck, > > > > > > > > Is there a cure? > > > > > > > > > > > > > > > My niece has severe hearing loss from > > > > cholesteatoma and now my 10 year > > > > > old son has been diagnosed. > > > > > My niece has had numerous surgeries and > after > > > > almost 2 years of no > > > > > surgery will now have to return to the > > " table " . > > > > > I am concerned about my son having a similar > > > > experience and I am > > > > > looking for a " cure " . > > > > > does anyone know of anyone having success in > > > > treating cholesteatoma > > > > > with no reoccurence???? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Hi,I had Canal Wall Down done in August. It was my first, and hopefully last ear surgery. I have no water restrictions other than scuba diving. You don't choose CWU or CWD- your doc does based on your anatomy and the c-toma. Personally I am so thankful I had a CWD. I would be horrified to have to do CWU over and over again, and for what, to avoid having the doc painlessly clean your ear once or twice a yr? Even with CWU you will have to have the doc peeking in your ears anyway. Cholesteatomas form when there is a pocket retraction that forms a little sac that starts collecting skin and debris. With a newly grafted eardrum you don't have a pocket retraction. That doesn't mean you have proper eustation tube function. You could still have the underlying issue that makes it so there is persistant negative pressure in your middle ear that pulls you new eardrum inward and forms another pocket retraction. This is why some people have surgery several times. This is also why many people have more "success" with CWD surgery. If you go get your ears cleaned out, the dead skin and debris cannot collect in any "pocket" and become larger.There is no rule that your first surgery or your second your 5th have to be CWU before they try CWD. It has nothing to do with whether your surgeon is good. It has to do with your anatomy and the c-toma location. If the c-toma is extensive enough there will be no choice but to make the canal wall bigger and go in from both sides. If its small enough they can do it without making the canal bigger. Its that simple. Some ppl have many CWU surgeries because the c-toma gets caught when its smaller and less extensive, but since the underlying condition remains, the c-toma keeps reforming. Eventually the doc and patient agree a CWD will have a better result since monitoring and cleaning can occur easier/ more frequently. Some have water restrictions for life after, and some don't. Again it depends on the individual anatomy. My c-toma was attic, and when water gets in my ear it drains out no problem. For someone whos mastoid bowl is on the bottom, water may sit in there and contribute to a pocket retraction so that person wears plugs.As far as hearing goes. Reconstruction can occur after a CWU or CWD. Usually done in a 2nd surgery, though in my case he lowered the new eardrum onto the stapes directly. My hearing is decent and improving every day. There is an 18 month healing curve on hearing, my surgery was 6 mos ago, so I expect my hearing to continue to improve a bit. My otologist doesnt talk about hearing in terms of percentage. He tests the ability to hear sounds in both ears using different sound frequencies at different volumes. There is a chart that shows the levels my hearing is at and its like a graph with me being able to hear some sounds easier than others. He shows me what my normal ear is like and my bad ear isnt too far below it. He shows that if my hearing improves to certain levels on the chart that no hearing reconstruction will be able to improve upon it. I'm not too far from it, but if comes to the 18month point and he feels he can improve my hearing then I will have artifical ossicles put in. Hope it helps, Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 CWD does mean going to the doctors for regular cleanings; but on the other hand, CWD patients (usually!) only get the one tumour. " Six of one, half a dozen of the other " , some would say. Personally, I would go with the CWD any day. Kazzy xx Re: Is there a cure? It was my impression that canal wall down is the more drastic measure, and a last option if the surgeon thinks the infection is too serious to try to leave more of the middle ear intact. My ENT told me he would only do a canal wall down if he had to. Does't a canal wall down basically mean a life of going to the ENT every few months to get it cleaned out? I'm just asking, since this is all new to me. Thanks, Gerry > > My niece has severe hearing loss from cholesteatoma and now my 10 year > old son has been diagnosed. > My niece has had numerous surgeries and after almost 2 years of no > surgery will now have to return to the " table " . > I am concerned about my son having a similar experience and I am > looking for a " cure " . > does anyone know of anyone having success in treating cholesteatoma > with no reoccurence???? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 I had a prosthesis inserted - hearing bones made by my surgeon (from cadaver bone, I believe, though I may be wrong) and inserted in the gap where the tumour had eaten my own hearing bones. This lasted almost four years before a really bad infection and perforation destroyed it. After this I was offered BAHA, and this, for me at least, has been the best thing since sliced bread. My personal story is on my webpage, if you would like to read it: http://www.kazbat.co.uk. Kazzy xx Re: Is there a cure? How good is your hearing in the ear(s) that had the canal wall down? Does anyone know if the canal wall up saves more of your hearing than a canal wall down? These are questions I need to get answered before my surgery. I only want them to do the canal wall down if they have to. Gerry > > > The option with opening the ear canal up is great. > > But when you are dealing > > with children and they are still growing the opening > > that was large enough > > at a younger age will soon become to small as well. > > My son has had two > > surgeries one when he was five they did not open > > canal bigger at that time. > > He had another at the age of nine and opened the > > canal bigger. But due to > > the growth in his body he is thirteen and will have > > a third surgery to > > remove c-toma and open the canal bigger again. His > > doctor thinks he will > > not have to have it done again. > > > > Good Luck, > > > > Is there a cure? > > > > > > > > > My niece has severe hearing loss from > > cholesteatoma and now my 10 year > > > old son has been diagnosed. > > > My niece has had numerous surgeries and after > > almost 2 years of no > > > surgery will now have to return to the " table " . > > > I am concerned about my son having a similar > > experience and I am > > > looking for a " cure " . > > > does anyone know of anyone having success in > > treating cholesteatoma > > > with no reoccurence???? > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 My new bones where made with the cartilage from the tip of outside the ear canel. I go in to see the once a year, what did you mean by regular cleanings? More often than that, less often than that? Thanks tom hansen --- kazbat <kazbat@...> wrote: > I had a prosthesis inserted - hearing bones made by > my surgeon (from > cadaver bone, I believe, though I may be wrong) and > inserted in the gap > where the tumour had eaten my own hearing bones. > This lasted almost > four years before a really bad infection and > perforation destroyed it. > After this I was offered BAHA, and this, for me at > least, has been the > best thing since sliced bread. > > My personal story is on my webpage, if you would > like to read it: > http://www.kazbat.co.uk. > > Kazzy > xx > > > Re: Is there a cure? > > > > How good is your hearing in the ear(s) that had the > canal wall down? > Does anyone know if the canal wall up saves more of > your hearing than > a canal wall down? These are questions I need to > get answered before > my surgery. I only want them to do the canal wall > down if they have > to. > > Gerry > > > > > > > The option with opening the ear canal up is > great. > > > But when you are dealing > > > with children and they are still growing the > opening > > > that was large enough > > > at a younger age will soon become to small as > well. > > > My son has had two > > > surgeries one when he was five they did not open > > > canal bigger at that time. > > > He had another at the age of nine and opened the > > > canal bigger. But due to > > > the growth in his body he is thirteen and will > have > > > a third surgery to > > > remove c-toma and open the canal bigger again. > His > > > doctor thinks he will > > > not have to have it done again. > > > > > > Good Luck, > > > > > > Is there a cure? > > > > > > > > > > > > My niece has severe hearing loss from > > > cholesteatoma and now my 10 year > > > > old son has been diagnosed. > > > > My niece has had numerous surgeries and after > > > almost 2 years of no > > > > surgery will now have to return to the > " table " . > > > > I am concerned about my son having a similar > > > experience and I am > > > > looking for a " cure " . > > > > does anyone know of anyone having success in > > > treating cholesteatoma > > > > with no reoccurence???? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 On the whole, I get to see the consultants (and a hoover!) approximately once every 9 months (I've not yet made it to the 12 months point without needing a hoover). I'm 5½ years post-Cholesteatoma removal and still having infections, though these are far less than I was (infection every 5 or so weeks before surgery). These days, I mostly suffer dermatitis of the pinna or the canal, and occasionally otitis externa, both of which are far less severe than middle ear/inner ear infection, but they're still very annoying and quite painful. I have had approximately 50-60 bouts of dermatitis in all, many of them infected and needing spray, ointment and/or antibiotic tablets. It can sometimes seem that, if it's not one thing it's another and it can be a never-ending run of illness, but things are definitely better since surgery for removal of the Cholesteatoma, and since implant for BAHA, too. Kazzy xx Re: Is there a cure? > > > > How good is your hearing in the ear(s) that had the > canal wall down? > Does anyone know if the canal wall up saves more of > your hearing than > a canal wall down? These are questions I need to > get answered before > my surgery. I only want them to do the canal wall > down if they have > to. > > Gerry > > > > > > > The option with opening the ear canal up is > great. > > > But when you are dealing > > > with children and they are still growing the > opening > > > that was large enough > > > at a younger age will soon become to small as > well. > > > My son has had two > > > surgeries one when he was five they did not open > > > canal bigger at that time. > > > He had another at the age of nine and opened the > > > canal bigger. But due to > > > the growth in his body he is thirteen and will > have > > > a third surgery to > > > remove c-toma and open the canal bigger again. > His > > > doctor thinks he will > > > not have to have it done again. > > > > > > Good Luck, > > > > > > Is there a cure? > > > > > > > > > > > > My niece has severe hearing loss from > > > cholesteatoma and now my 10 year > > > > old son has been diagnosed. > > > > My niece has had numerous surgeries and after > > > almost 2 years of no > > > > surgery will now have to return to the > " table " . > > > > I am concerned about my son having a similar > > > experience and I am > > > > looking for a " cure " . > > > > does anyone know of anyone having success in > > > treating cholesteatoma > > > > with no reoccurence???? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 My husband has hepatitic c and his dr. has him on pills and shots for 6 months. Does this stuff really work? I mean if you get cured are you cured for life? Does it ever come back later on? Does anyone know the answer to these questions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 My husband has hepatitic c and his dr. has him on pills and shots for 6 months. Does this stuff really work? I mean if you get cured are you cured for life? Does it ever come back later on? Does anyone know the answer to these questions? Quote Link to comment Share on other sites More sharing options...
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