Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 Did you say you know what the Anti-VCA (IgG), Anti-VCA (IgM) Anti-EBV-(Nuclear Ag) and the Anti- EBV (Early Ag) means? I had a Epstein barr test done and no doctor could ever explain what all this mean. Thanks CAren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 Caren, The IgG and IgM are indicators of whether you have antibodies to something. I can't remember exactly which one is which, but there are 3--IgG, IgM, and IgA. One of them is indicative of a recent infection, another is indicative of a previous infection, and you have developed antibodies to it, and I'm not sure what the third means. In addition, there is also an IgE and IgD. The EBV tests are tests to see if a)you have the virus, i.e., active infection w/ it; and b)whether you've been exposed to it and have antibodies to it. Most people do test positive for EBV as it is so common and at some point almost all of us have been exposed to it in some way, shape, or form. I had severe mono back in 1990 and developed a spontaneous splenic rupture from the mono. I was hospitalized, but refused to have my spleen removed. Didn't want to go through the surgery. Had had breast reduction less than a yr earlier, and wasn't ready for another major surgery. Needless to say, my EBV antibodies are very high, and always will be. Hope this answers your question. e > Did you say you know what the Anti-VCA (IgG), Anti-VCA (IgM) Anti-EBV-(Nuclear > Ag) and the Anti- EBV (Early Ag) means? I had a Epstein barr test done and no > doctor could ever explain what all this mean. > > Thanks > > CAren > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 I have alway wondered if my EBV titers are high because I have had the shingles twice. Thanks for your help. Caren ----- Original Message ----- From: <eRene@...> < > Sent: Thursday, August 30, 2001 8:19 PM Subject: Re: e > Caren, > > The IgG and IgM are indicators of whether you have > antibodies to something. I can't remember exactly which > one is which, but there are 3--IgG, IgM, and IgA. One > of them is indicative of a recent infection, another is > indicative of a previous infection, and you have > developed antibodies to it, and I'm not sure what the > third means. In addition, there is also an IgE and IgD. > > The EBV tests are tests to see if a)you have the virus, > i.e., active infection w/ it; and b)whether you've been > exposed to it and have antibodies to it. > > Most people do test positive for EBV as it is so common > and at some point almost all of us have been exposed to > it in some way, shape, or form. I had severe mono back > in 1990 and developed a spontaneous splenic rupture from > the mono. I was hospitalized, but refused to have my > spleen removed. Didn't want to go through the surgery. > Had had breast reduction less than a yr earlier, and > wasn't ready for another major surgery. Needless to > say, my EBV antibodies are very high, and always will be. > > Hope this answers your question. > > e > > Did you say you know what the Anti-VCA (IgG), Anti-VCA (IgM) Anti-EBV-(Nuclear > > Ag) and the Anti- EBV (Early Ag) means? I had a Epstein barr test done and no > > doctor could ever explain what all this mean. > > > > Thanks > > > > CAren > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 Caren, Absolutely!! EBV is the herpes virus, and shingles is herpes/EBV/varicella zoster. Chickenpox, shingles, herpes, mono, and some others are all part of the same family, and EBV is the virus that causes them. That is why so much of the population is + for EBV. But being + for EBV is not anything to worry about. It just means that your body has been exposed to the EBV and has antibodies against it. And I'd be willing to bet that since you've had shingles before, one of those Ig antibodies will always be high, and another Ig antibody is normal except when you have the shingles, then it probably is high. e > I have alway wondered if my EBV titers are high because I have had the > shingles twice. Thanks for your help. > > Caren > ----- Original Message ----- > From: <eRene@...> > < > > Sent: Thursday, August 30, 2001 8:19 PM > Subject: Re: e > > > > Caren, > > > > The IgG and IgM are indicators of whether you have > > antibodies to something. I can't remember exactly which > > one is which, but there are 3--IgG, IgM, and IgA. One > > of them is indicative of a recent infection, another is > > indicative of a previous infection, and you have > > developed antibodies to it, and I'm not sure what the > > third means. In addition, there is also an IgE and IgD. > > > > The EBV tests are tests to see if a)you have the virus, > > i.e., active infection w/ it; and b)whether you've been > > exposed to it and have antibodies to it. > > > > Most people do test positive for EBV as it is so common > > and at some point almost all of us have been exposed to > > it in some way, shape, or form. I had severe mono back > > in 1990 and developed a spontaneous splenic rupture from > > the mono. I was hospitalized, but refused to have my > > spleen removed. Didn't want to go through the surgery. > > Had had breast reduction less than a yr earlier, and > > wasn't ready for another major surgery. Needless to > > say, my EBV antibodies are very high, and always will be. > > > > Hope this answers your question. > > > > e > > > Did you say you know what the Anti-VCA (IgG), Anti-VCA (IgM) > Anti-EBV-(Nuclear > > > Ag) and the Anti- EBV (Early Ag) means? I had a Epstein barr test done > and no > > > doctor could ever explain what all this mean. > > > > > > Thanks > > > > > > CAren > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 e Do you know anything about the Thyroid. The TSH ? Caren ----- Original Message ----- From: <eRene@...> < > Sent: Thursday, August 30, 2001 11:12 PM Subject: Re: e > Caren, > > Absolutely!! EBV is the herpes virus, and shingles is > herpes/EBV/varicella zoster. Chickenpox, shingles, > herpes, mono, and some others are all part of the same > family, and EBV is the virus that causes them. That is > why so much of the population is + for EBV. But being + > for EBV is not anything to worry about. It just means > that your body has been exposed to the EBV and has > antibodies against it. And I'd be willing to bet that > since you've had shingles before, one of those Ig > antibodies will always be high, and another Ig antibody > is normal except when you have the shingles, then it > probably is high. > > e > > I have alway wondered if my EBV titers are high because I have had the > > shingles twice. Thanks for your help. > > > > Caren > > ----- Original Message ----- > > From: <eRene@...> > > < > > > Sent: Thursday, August 30, 2001 8:19 PM > > Subject: Re: e > > > > > > > Caren, > > > > > > The IgG and IgM are indicators of whether you have > > > antibodies to something. I can't remember exactly which > > > one is which, but there are 3--IgG, IgM, and IgA. One > > > of them is indicative of a recent infection, another is > > > indicative of a previous infection, and you have > > > developed antibodies to it, and I'm not sure what the > > > third means. In addition, there is also an IgE and IgD. > > > > > > The EBV tests are tests to see if a)you have the virus, > > > i.e., active infection w/ it; and b)whether you've been > > > exposed to it and have antibodies to it. > > > > > > Most people do test positive for EBV as it is so common > > > and at some point almost all of us have been exposed to > > > it in some way, shape, or form. I had severe mono back > > > in 1990 and developed a spontaneous splenic rupture from > > > the mono. I was hospitalized, but refused to have my > > > spleen removed. Didn't want to go through the surgery. > > > Had had breast reduction less than a yr earlier, and > > > wasn't ready for another major surgery. Needless to > > > say, my EBV antibodies are very high, and always will be. > > > > > > Hope this answers your question. > > > > > > e > > > > Did you say you know what the Anti-VCA (IgG), Anti-VCA (IgM) > > Anti-EBV-(Nuclear > > > > Ag) and the Anti- EBV (Early Ag) means? I had a Epstein barr test done > > and no > > > > doctor could ever explain what all this mean. > > > > > > > > Thanks > > > > > > > > CAren > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 Caren I know a little bit. The thyroid is not my strongest area, but I can try to answer your questions. e > e > > Do you know anything about the Thyroid. The TSH ? > > Caren > ----- Original Message ----- > From: <eRene@...> > < > > Sent: Thursday, August 30, 2001 11:12 PM > Subject: Re: e > > > > Caren, > > > > Absolutely!! EBV is the herpes virus, and shingles is > > herpes/EBV/varicella zoster. Chickenpox, shingles, > > herpes, mono, and some others are all part of the same > > family, and EBV is the virus that causes them. That is > > why so much of the population is + for EBV. But being + > > for EBV is not anything to worry about. It just means > > that your body has been exposed to the EBV and has > > antibodies against it. And I'd be willing to bet that > > since you've had shingles before, one of those Ig > > antibodies will always be high, and another Ig antibody > > is normal except when you have the shingles, then it > > probably is high. > > > > e > > > I have alway wondered if my EBV titers are high because I have had the > > > shingles twice. Thanks for your help. > > > > > > Caren > > > ----- Original Message ----- > > > From: <eRene@...> > > > < > > > > Sent: Thursday, August 30, 2001 8:19 PM > > > Subject: Re: e > > > > > > > > > > Caren, > > > > > > > > The IgG and IgM are indicators of whether you have > > > > antibodies to something. I can't remember exactly which > > > > one is which, but there are 3--IgG, IgM, and IgA. One > > > > of them is indicative of a recent infection, another is > > > > indicative of a previous infection, and you have > > > > developed antibodies to it, and I'm not sure what the > > > > third means. In addition, there is also an IgE and IgD. > > > > > > > > The EBV tests are tests to see if a)you have the virus, > > > > i.e., active infection w/ it; and b)whether you've been > > > > exposed to it and have antibodies to it. > > > > > > > > Most people do test positive for EBV as it is so common > > > > and at some point almost all of us have been exposed to > > > > it in some way, shape, or form. I had severe mono back > > > > in 1990 and developed a spontaneous splenic rupture from > > > > the mono. I was hospitalized, but refused to have my > > > > spleen removed. Didn't want to go through the surgery. > > > > Had had breast reduction less than a yr earlier, and > > > > wasn't ready for another major surgery. Needless to > > > > say, my EBV antibodies are very high, and always will be. > > > > > > > > Hope this answers your question. > > > > > > > > e > > > > > Did you say you know what the Anti-VCA (IgG), Anti-VCA (IgM) > > > Anti-EBV-(Nuclear > > > > > Ag) and the Anti- EBV (Early Ag) means? I had a Epstein barr test > done > > > and no > > > > > doctor could ever explain what all this mean. > > > > > > > > > > Thanks > > > > > > > > > > CAren > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 I had a TSH test done when I first got sick and it was at .94 my range is ..50-5.00 . I was exercising some then I got more tired and can't even exercise now and I went and got my TSH done again and it dropped to .64. I have the anxiety, heart palpatations, have had 3 light periods this month that last 4-7 days each. I have had the period problem for 7 months. My T3 is at 83. The range for that one is 60-174 and my T4 is at10.9 and the range there is 5.0 to 13.0. I have seen so many doctors and they say my numbers are normal. My Ob-Gyn said my TSH is low and wanted to send me to a specialist but then told me he couldn't give me the referral because they were dropping my insurance. I have heard by 3 or 4 homopathics that my TSH is low. I go to a different OB-Gyn next week and I hope he will run some more tests. I have this feeling in my gut that this is some of my problems. I really appreciate your help Caren ----- Original Message ----- From: <eRene@...> < > Sent: Friday, August 31, 2001 10:56 PM Subject: Re: e > Caren > > I know a little bit. The thyroid is not my strongest > area, but I can try to answer your questions. > > e > > e > > > > Do you know anything about the Thyroid. The TSH ? > > > > Caren > > ----- Original Message ----- > > From: <eRene@...> > > < > > > Sent: Thursday, August 30, 2001 11:12 PM > > Subject: Re: e > > > > > > > Caren, > > > > > > Absolutely!! EBV is the herpes virus, and shingles is > > > herpes/EBV/varicella zoster. Chickenpox, shingles, > > > herpes, mono, and some others are all part of the same > > > family, and EBV is the virus that causes them. That is > > > why so much of the population is + for EBV. But being + > > > for EBV is not anything to worry about. It just means > > > that your body has been exposed to the EBV and has > > > antibodies against it. And I'd be willing to bet that > > > since you've had shingles before, one of those Ig > > > antibodies will always be high, and another Ig antibody > > > is normal except when you have the shingles, then it > > > probably is high. > > > > > > e > > > > I have alway wondered if my EBV titers are high because I have had the > > > > shingles twice. Thanks for your help. > > > > > > > > Caren > > > > ----- Original Message ----- > > > > From: <eRene@...> > > > > < > > > > > Sent: Thursday, August 30, 2001 8:19 PM > > > > Subject: Re: e > > > > > > > > > > > > > Caren, > > > > > > > > > > The IgG and IgM are indicators of whether you have > > > > > antibodies to something. I can't remember exactly which > > > > > one is which, but there are 3--IgG, IgM, and IgA. One > > > > > of them is indicative of a recent infection, another is > > > > > indicative of a previous infection, and you have > > > > > developed antibodies to it, and I'm not sure what the > > > > > third means. In addition, there is also an IgE and IgD. > > > > > > > > > > The EBV tests are tests to see if a)you have the virus, > > > > > i.e., active infection w/ it; and b)whether you've been > > > > > exposed to it and have antibodies to it. > > > > > > > > > > Most people do test positive for EBV as it is so common > > > > > and at some point almost all of us have been exposed to > > > > > it in some way, shape, or form. I had severe mono back > > > > > in 1990 and developed a spontaneous splenic rupture from > > > > > the mono. I was hospitalized, but refused to have my > > > > > spleen removed. Didn't want to go through the surgery. > > > > > Had had breast reduction less than a yr earlier, and > > > > > wasn't ready for another major surgery. Needless to > > > > > say, my EBV antibodies are very high, and always will be. > > > > > > > > > > Hope this answers your question. > > > > > > > > > > e > > > > > > Did you say you know what the Anti-VCA (IgG), Anti-VCA (IgM) > > > > Anti-EBV-(Nuclear > > > > > > Ag) and the Anti- EBV (Early Ag) means? I had a Epstein barr test > > done > > > > and no > > > > > > doctor could ever explain what all this mean. > > > > > > > > > > > > Thanks > > > > > > > > > > > > CAren > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 Caren, Give me some time to look up in my medical references about thyroid problems. Your numbers are all WNL (within normal limits), yet the symptoms you describe are symptomatic of hypothyroidism. However, there are other things that could be causing your problems. So let me do some research and see what I can come up with. If I don't get back to you tonight, I will get back to you this wknd. e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 la is the one who knows him best and his advice to her seems sound but I don't know anything about him, she says he has treated many many silicone harmed women so I think he must know something and also the way he has treated her seems fantastic compared to what most of them say to us. I think another girl I know went to him to.....we will have to see what la says, I will email her, also Dr Feng and him are good friends and that tells me he is in touch with the issues we are all dealing with.....I know right now there are lots of women joining this group who still have implants so let make sure we really give out accurate information so that they get the best advice possible ok! e is it possible that the methotrexate could mess up some of your labs ? I don't know what the test your talking about it, but I can ask at the hospital today. Also, from what I understand about ANA's and as you are probably aware of once you have a positive one it will always be positve, I mean this is what I was told, that at times of disease activity it can go up or down, because all those anitbodies can be busy working somewhere in the body rather than in the blood, that was what my last rheumy told me.....so the titer I was told, being high or low doesn't necesarily mean much...number wise. Am I right about this? hope you feel better! In @y..., eRene@a... wrote: > and everyone else, > > Is this Dr. really that good? Is he in NYC? I > would really like any info anyone has on him. It's > interesting that a mentioned parvo virus, because > I heard from some other women (months ago) that they had > been diagnosed with parvo. I would love to be tested > for it, but really have no knowledge on how to test for > it, i.e., is their a specific antibody test? > > Also, I wanted to let you all know that I got some lab > results back yesterday. My ANA titer has more than > quadrupled, and something called an ASMA was done and it > came back +. Does anyone know what this is? I've never > heard of it, and never had it done before. > > And, interestingly enough, my T4 and T4 uptake index > were VERY low. But my TSH was not. I hope I can get > some questions answered tomorrow!! I wonder if my doc > will put me on thyroid medication. I think that may > also explain why I'm gaining weight even though I > exercise and am eating healthy, why I am so tired, and > maybe explain part of the sweating. > > Anyway, any info on Dr. would be greatly > appreciated. > > e > > > > I believe Dr is in NYC, i have another friend who has gone to > > him also. I started the plaquenil to see if I can get my achiness > > under control, hopefully this will help, my last remainig symptoms. > > > > Love ya, > > > > > > > > > > > > > > In @y..., eRene@a... wrote: > > > a, > > > > > > Where is the doctor located? If he is that schooled in > > > silicone diseases, I just might want to fly out to see > > > him. > > > > > > e > > > > PATTY, MORE CHANGES HAVE OCCURED. I WENT TO SEE THIS DR SOLOMAN > > EALIER THIS > > > > WEEK HE IS A RHEUMATOLOGIST AND SILICONE DISORDER SPECIALIST. HE > > HAS TREATED > > > > OVER 500 WOMEN WITH SILICONE RELATED DISEASE. HE FEELS THAT A > > COMBINATION > > > > OF FACTORS HAVE CAUSED MY IMMUNE SYSTEM TO BECOME OVERACTIVED THE > > FIRST IS > > > > PARVO VIRUS , WHICH I CONTRACTED AFTER HAVING THE IMPLANTS IN FOR > > ONE MONTH. > > > > THIS VIRUS DAMAGES THE IMMUNE SYSTEM, THE SYMPTOMS ARE PAINS IN > > HANDS AND > > > > FEET, RASHES, LOW GRADE FEVER. THE SECOND CATALYST ARE THE > > IMPLANTS AND THE > > > > THIRD HE SAYS IS MY EBSTEIN BARR VIRUS. SO HE CALLED DR FENG > > (THEY ARE GOOD > > > > FRIENDS AND HAVE THE HIGHEST RESPECT FOR EACH OTHER. SHE SAYS HE > > IS THE ONLY > > > > DR. THAT UNDERSTANDS THE DISEASE). HE CALLED HER AND THEY > > DISCUSSED A PLAN > > > > FOR ME- HE THINKS I DONT HAVE TO HAVE THE SURGERY- HE WANTS TO > > PUT ME ON A > > > > TRIAL OF PLANAQUIL FOR 6WEEKS IF I DONT FEEL MUCH BETTER BY THEN- > > HE WILL > > > > RECOMMEND THE SURGERY WITH DR FENG. PATTY HE WAS SO PASSIONATE AND > > > > CONVINCING- I HAVE TO BELIEVE HIM. HE CALLED ME VARIOUS TIMES, HE > > CALLED DR > > > > FENG. HE IS CONVINCED THAT AFTER A YEAR ON THE PLANQUIL- I WILL > > BE FINE, > > > > AND THEN CAN RESUME A NORMAL LIFE - WITHOUT IT. HE SAID THAT ALL > > WOMEN WITH > > > > IMPLANT DISEASE ARE DIFFERENT, DUE TO AGE, AMOUNT OF TIME THEY > > WERE IN, TYPE > > > > OF IMPLANTS. HE SAID HE PROMISES ME THAT I WILL GET BETTER- AND > > IF I DONT > > > > BOTH DR'S AGREED THAT I WOULD HAVE THE SURGERY. SO I WILL TAKE A > > CHANCE AND > > > > TRY THE DRUG, AT THE SAME TIME I WILL CONTINUE WITH MY > > ACCUPUNCTURE THAT HAS > > > > HELPED ME VERY MUCH - TWICE A WEEK. > > > > > > > > HOPE ALL IS WELL WITH YOU- AND THANK YOU FOR YOUR CONCERN AND > > YOUR KIND > > > > WORDS. > > > > > > > > WARM REGARDS > > > > GABRIELA > > > > > > > > -----Original Message----- > > > > From: Patty [mailto:fdp@l...] > > > > Sent: September 28, 2001 12:57 AM > > > > @y... > > > > Subject: Re: Removal of scar capsule > > > > > > > > > > > > Hi a, > > > > I know this is a difficult thing to go through! You are not the > > first, but > > > > I am so very sorry that you have to go through another surgery at > > all. I am > > > > glad that you got an expert opinion from Dr. Feng regarding your > > situation. > > > > You've moved very quickly, and I applaud your willingness to do > > what you > > > > need to for your health. One thing is for certain.....after > > seeing Dr. > > > > Feng, you will not have to worry about having any residual > > ANYTHING in your > > > > body regarding implants. > > > > > > > > My thoughts will be with you as you prepare for this final > > surgery. You've > > > > had a very rough year...but be of good cheer, because it can only > > go up from > > > > here. > > > > Love, > > > > Patty > > > > > > > > > > > > > > > > ----- Original Message ----- > > > > From: DeHegedus, a <mailto:a_DeHegedus@p...> > > > > ' @y...' <mailto:' @y...'> > > > > > > > > Sent: Wednesday, September 26, 2001 7:43 AM > > > > Subject: RE: Removal of scar capsule > > > > > > > > hi patty, i will be having surgery again this time with dr feng. > > She feels > > > > confidant that my whole capscule was not removed based on > > reviewing my > > > > operative report and pathology report. I cant believe my other > > surgeon lied > > > > to me and told me she took everything out. > > > > > > > > Even though I had smooth saline for only 4 months -she thinks if > > i have all > > > > remaining tissue removed that i will feel significantly better- > > she is > > > > baffled that i dont feel better. Anyway i really do not want to > > have surgery > > > > again for the 4th time in one year- but I feel i have nothing to > > loose at > > > > this point and much to gain- of course it is a leep a faith. I > > am willing > > > > to take a chance in order to regain my health. I will be having > > surgery at > > > > the end of October. > > > > > > > > warm regards > > > > gabriela > > > > > > > > -----Original Message----- > > > > From: Patty [mailto:fdp@l...] > > > > Sent: September 25, 2001 9:49 PM > > > > @y... > > > > Subject: Removal of scar capsule > > > > > > > > > > > > Remember our discussion recently on the removal of scar tissue > > and Dr. Feng? > > > > I found this on the sosalines website. > > > > > > > > http://www.homestead.com/sosalines/Fengcaps.html > > > > <http://www.homestead.com/sosalines/Fengcaps.html> > > > > (Thanks very much to Dr. Lu-Feng of Cleveland Ohio for these > > remarks > > > > regarding capsule removal after saline implants) > > > > > > > > > > > > A biological capsule will form around any implant. Any saline > > implant > > > > removal will require a total capsulectomy. Like anything else in > > life, there > > > > are few exceptions. Here are the few exceptions which would have > > to be > > > > fulfilled before I would entertain the possibility of not > > removing the > > > > saline capsule. > > > > > > > > > > > > (1) The capsule has to be tissue paper thin and without > > contracture. > > > > (2) The patient has to be without any local or systemic symptoms. > > > > (3) The saline implant has to be smooth shelled. > > > > (4) There has to be no previous history of gel filled implant > > insertion. > > > > > > > > > > > > All these conditions have to be fulfilled before I would consider > > not taking > > > > the saline capsule out. As you can see, few patients would > > fulfill these > > > > criteria. Invariably, I take out the entire capsule around saline > > implants. > > > > > > > > > > > > Drfeng@a... > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 I would love his email address too....but I am already doing the plaquenil so maybe I am on the right track, I absolutely refuse to take prednisone @y..., dc l <dclfive@y...> wrote: > <P> e, > <P>I made contact with Dr. through e-mail and > told him my history. You can not talk to him by phone. > I live in NC and wanted to talk to him first to see if > he thought he could help me. When I called to leave a > phone number for a return call they would not hear of > it. I found out his e-mail address and you would not > believe his e-mail to me. First of all he was very > quick to get back with me and he took the time to give > me he thoughts on my history and e-mailed me a list of > blood work that needed to be done along with a > suggestion of taking plaqunil and a low dose of > pednisone. I got a doctor at Duke to run the blood > work and decided not to take the meds. Doctor at Duke > went along with Dr. 's suggestion. I just > waited it out to see if my immune system would kick in > if given time. It did and I am glad I waited. Dr. > was wonderful and he took the time to tell me > what needed to be done. It saved me the time flying up > to NY and the hassle of & nbsp; making arrangements for > my five kids. I highly reccomend him. He is great!!!!! > He understands women getting & nbsp; sick from implants. > <P> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp ; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nb sp; & nbsp; & nbsp; & nbsp; & nbsp; > Debbie (durham nc) > <P> & nbsp; <B><I>eRene@a...</I></B> wrote: > <BLOCKQUOTE style= " BORDER-LEFT: #1010ff 2px solid; > MARGIN-LEFT: 5px; PADDING-LEFT: 5px " ><TT> and > everyone else,<BR><BR>Is this Dr. really that > good? & nbsp; Is he in NYC? & nbsp; I <BR>would really > like any info anyone has on him. & nbsp; It's > <BR>interesting that a mentioned parvo virus, > because <BR>I heard from some other women (months ago) > that they had <BR>been diagnosed with parvo. & nbsp; I > would love to be tested <BR>for it, but really have no > knowledge on how to test for <BR>it, i.e., is their a > specific antibody test?<BR><BR>Also, I wanted to let > you all know that I got some lab <BR>results back > yesterday. & nbsp; My ANA titer has more than > <BR>quadrupled, and something called an ASMA was done > and it <BR>came back +. & nbsp; Does anyone know what > this is? & nbsp; I've never <BR>heard of it, and never > had it done before.<BR><BR>And, interestingly enough, > my T4 and T4 uptake index <BR>were VERY low. & nbsp; But > my TSH was not. & nbsp; I hope I can get <BR>some > questions answered tomorrow!! & nbsp; I wonder if my doc > <BR>will put me on thyroid medication. & nbsp; I think > that may <BR>also explain why I'm gaining weight even > though I <BR>exercise and am eating healthy, why I am > so tired, and <BR>maybe explain part of the > sweating.<BR><BR>Anyway, any info on Dr. would > be greatly <BR>appreciated.<BR><BR>e<BR> & gt; > <BR> & gt; I believe Dr is in NYC, i have > another friend who has gone to <BR> & gt; him also. I > started the plaquenil to see if I can get my achiness > <BR> & gt; under control, hopefully this will help, my > last remainig symptoms.<BR> & gt; <BR> & gt; Love ya, > <BR> & gt; <BR> & gt; <BR> & gt; <BR> & gt; <BR> & gt; > <BR> & gt; <BR> & gt; In @y..., > eRene@a... wrote:<BR> & gt; & gt; a,<BR> & gt; > & gt; <BR> & gt; & gt; Where is the doctor located? & nbsp; > If he is that schooled in <BR> & gt; & gt; silicone > diseases, I just might want to fly out to see <BR> & gt; > & gt; him.<BR> & gt; & gt; <BR> & gt; & gt; e<BR> & gt; > & gt; & gt; PATTY, MORE CHANGES HAVE OCCURED. I WENT TO > SEE THIS DR SOLOMAN <BR> & gt; EALIER THIS<BR> & gt; & gt; > & gt; WEEK HE IS A RHEUMATOLOGIST AND SILICONE DISORDER > SPECIALIST. HE <BR> & gt; HAS TREATED<BR> & gt; & gt; & gt; > OVER 500 WOMEN WITH SILICONE RELATED DISEASE. & nbsp; HE > FEELS THAT A <BR> & gt; COMBINATION<BR> & gt; & gt; & gt; OF > FACTORS HAVE CAUSED MY IMMUNE SYSTEM TO BECOME > OVERACTIVED THE <BR> & gt; FIRST IS<BR> & gt; & gt; & gt; > PARVO VIRUS , WHICH I CONTRACTED AFTER HAVING THE > IMPLANTS IN FOR <BR> & gt; ONE MONTH.<BR> & gt; & gt; & gt; > THIS VIRUS DAMAGES THE IMMUNE SYSTEM, THE SYMPTOMS ARE > PAINS IN <BR> & gt; HANDS AND<BR> & gt; & gt; & gt; FEET, > RASHES, LOW GRADE FEVER. THE SECOND CATALYST ARE THE > <BR> & gt; IMPLANTS AND THE<BR> & gt; & gt; & gt; THIRD HE > SAYS IS MY EBSTEIN BARR VIRUS. & nbsp; SO HE CALLED DR > FENG <BR> & gt; (THEY ARE GOOD<BR> & gt; & gt; & gt; FRIENDS > AND HAVE THE HIGHEST RESPECT FOR EACH OTHER. SHE SAYS > HE <BR> & gt; IS THE ONLY<BR> & gt; & gt; & gt; DR. THAT > UNDERSTANDS THE DISEASE). HE CALLED HER AND THEY > <BR> & gt; DISCUSSED A PLAN<BR> & gt; & gt; & gt; FOR ME- HE > THINKS I DONT HAVE TO HAVE THE SURGERY- HE WANTS TO > <BR> & gt; PUT ME ON A<BR> & gt; & gt; & gt; TRIAL OF > PLANAQUIL FOR 6WEEKS IF I DONT FEEL MUCH BETTER BY > THEN- <BR> & gt; HE WILL<BR> & gt; & gt; & gt; RECOMMEND THE > SURGERY WITH DR FENG. PATTY HE WAS SO PASSIONATE > AND<BR> & gt; & gt; & gt; CONVINCING- I HAVE TO BELIEVE > HIM. HE CALLED ME VARIOUS TIMES, HE <BR> & gt; CALLED > DR<BR> & gt; & gt; & gt; FENG. & nbsp; HE IS CONVINCED THAT > AFTER A YEAR ON THE PLANQUIL- I WILL <BR> & gt; BE > FINE,<BR> & gt; & gt; & gt; AND THEN CAN RESUME A NORMAL > LIFE - WITHOUT IT. & nbsp; HE SAID THAT ALL <BR> & gt; > WOMEN WITH<BR> & gt; & gt; & gt; IMPLANT DISEASE ARE > DIFFERENT, DUE TO AGE, AMOUNT OF TIME THEY <BR> & gt; > WERE IN, TYPE<BR> & gt; & gt; & gt; OF IMPLANTS. HE SAID > HE PROMISES ME THAT I WILL GET BETTER- AND <BR> & gt; IF > I DONT<BR> & gt; & gt; & gt; BOTH DR'S AGREED THAT I WOULD > HAVE THE SURGERY. SO I WILL TAKE A <BR> & gt; CHANCE > AND<BR> & gt; & gt; & gt; TRY THE DRUG, AT THE SAME TIME I > WILL CONTINUE WITH MY <BR> & gt; ACCUPUNCTURE THAT > HAS<BR> & gt; & gt; & gt; HELPED ME VERY MUCH - TWICE A > WEEK.<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; HOPE > ALL IS WELL WITH YOU- AND THANK YOU FOR YOUR CONCERN > AND <BR> & gt; YOUR KIND<BR> & gt; & gt; & gt; > WORDS.<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; WARM > REGARDS<BR> & gt; & gt; & gt; GABRIELA<BR> & gt; & gt; & gt; > <BR> & gt; & gt; & gt; -----Original Message-----<BR> & gt; > & gt; & gt; From: Patty [mailto:fdp@l...]<BR> & gt; & gt; > & gt; Sent: September 28, 2001 12:57 AM<BR> & gt; & gt; > & gt; @y...<BR> & gt; & gt; & gt; Subject: > Re: Removal of scar capsule<BR> & gt; > & gt; & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; Hi > a, <BR> & gt; & gt; & gt; I know this is a > difficult thing to go through! & nbsp; You are not the > <BR> & gt; first, but<BR> & gt; & gt; & gt; I am so very > sorry that you have to go through another surgery at > <BR> & gt; all. & nbsp; I am<BR> & gt; & gt; & gt; glad that > you got an expert opinion from Dr. Feng regarding your > <BR> & gt; situation. <BR> & gt; & gt; & gt; You've moved > very quickly, and I applaud your willingness to do > <BR> & gt; what you<BR> & gt; & gt; & gt; need to for your > health. & nbsp; One thing is for certain.....after > <BR> & gt; seeing Dr.<BR> & gt; & gt; & gt; Feng, you will > not have to worry about having any residual <BR> & gt; > ANYTHING in your<BR> & gt; & gt; & gt; body regarding > implants. <BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; > My thoughts will be with you as you prepare for this > final <BR> & gt; surgery. & nbsp; You've<BR> & gt; & gt; & gt; > had a very rough year...but be of good cheer, because > it can only <BR> & gt; go up from<BR> & gt; & gt; & gt; > here.<BR> & gt; & gt; & gt; Love,<BR> & gt; & gt; & gt; > Patty<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; & nbsp; > <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; ----- Original > Message ----- <BR> & gt; & gt; & gt; From: DeHegedus, > a & lt;mailto:a_DeHegedus@p... & nbsp; > <BR> & gt; & gt; & gt; ' @y...' > & lt;mailto:' @y...' & gt;<BR> & gt; & gt; & gt; > <BR> & gt; & gt; & gt; Sent: Wednesday, September 26, 2001 > 7:43 AM<BR> & gt; & gt; & gt; Subject: RE: > Removal of scar capsule<BR> & gt; & gt; & gt; <BR> & gt; > & gt; & gt; hi patty, i will be having surgery again > this time with dr feng. <BR> & gt; She feels<BR> & gt; > & gt; & gt; confidant that my whole capscule was not > removed based on <BR> & gt; reviewing my<BR> & gt; & gt; > & gt; operative report and pathology report. I cant > believe my other <BR> & gt; surgeon lied<BR> & gt; & gt; > & gt; to me and told me she took everything > out.<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; & gt; & gt; Even > though I had smooth saline for only 4 months -she > thinks if <BR> & gt; i have all<BR> & gt; & gt; & gt; > remaining tissue removed that i will feel > significantly better- <BR> & gt; she is<BR> & gt; & gt; > & gt; baffled that i dont feel better. Anyway i really > do not want to <BR> & gt; have surgery<BR> & gt; & gt; & gt; > again for the 4th time in one year- but I feel i have > nothing to <BR> & gt; loose at<BR> & gt; & gt; & gt; this > point and much to gain- of course it is a leep a > faith. & nbsp; I <BR> & gt; am willing<BR> & gt; & gt; & gt; > to take a chance in order to regain my health. & nbsp; I > will be having <BR> & gt; surgery at<BR> & gt; & gt; & gt; > the end of October.<BR> & gt; & gt; & gt; & nbsp; <BR> & gt; > & gt; & gt; warm regards<BR> & gt; & gt; & gt; > gabriela<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; > -----Original Message-----<BR> & gt; & gt; & gt; From: > Patty [mailto:fdp@l...]<BR> & gt; & gt; & gt; Sent: > September 25, 2001 9:49 PM<BR> & gt; & gt; & gt; To: > @y...<BR> & gt; & gt; & gt; Subject: > Removal of scar capsule<BR> & gt; & gt; > & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; Remember > our discussion recently on the removal of scar tissue > <BR> & gt; and Dr. Feng?<BR> & gt; & gt; & gt; I found this > on the sosalines website.<BR> & gt; & gt; & gt; & nbsp; > <BR> & gt; & gt; & gt; <A > href= " http://www.hom'>http://www.homestead.com/sosalines/Fengcaps.html'>http://www.hom'>http://www.homestead.com/sosalines/Fengcaps.html " >http://www.hom'>http://www.hom estead.com/sosalines/Fengcaps.html</A><BR> & gt; > & gt; & gt; & lt;<A > href= " http://www.hom'>http://www.homestead.com/sosalines/Fengcaps.html'>http://www.hom'>http://www.homestead.com/sosalines/Fengcaps.html " >http://www.hom'>http://www.hom estead.com/sosalines/Fengcaps.html</A> & gt; > <BR> & gt; & gt; & gt; (Thanks very much to Dr. Lu-Jean > Feng of Cleveland Ohio for these <BR> & gt; > remarks<BR> & gt; & gt; & gt; regarding capsule removal > after saline implants)<BR> & gt; & gt; & gt; <BR> & gt; & gt; > & gt; <BR> & gt; & gt; & gt; A biological capsule will form > around any implant. Any saline <BR> & gt; > implant<BR> & gt; & gt; & gt; removal will require a total > capsulectomy. Like anything else in <BR> & gt; life, > there<BR> & gt; & gt; & gt; are few exceptions. Here are > the few exceptions which would have <BR> & gt; to > be<BR> & gt; & gt; & gt; fulfilled before I would > entertain the possibility of not <BR> & gt; removing > the<BR> & gt; & gt; & gt; saline capsule.<BR> & gt; & gt; > & gt; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; (1) The > capsule has to be tissue paper thin and without > <BR> & gt; contracture.<BR> & gt; & gt; & gt; (2) The > patient has to be without any local or systemic > symptoms.<BR> & gt; & gt; & gt; (3) The saline implant has > to be smooth shelled.<BR> & gt; & gt; & gt; (4) There has > to be no previous history of gel filled implant > <BR> & gt; insertion.<BR> & gt; & gt; & gt; <BR> & gt; & gt; > & gt; <BR> & gt; & gt; & gt; All these conditions have to > be fulfilled before I would consider <BR> & gt; not > taking<BR> & gt; & gt; & gt; the saline capsule out. As > you can see, few patients would <BR> & gt; fulfill > these<BR> & gt; & gt; & gt; criteria. Invariably, I take > out the entire capsule around saline <BR> & gt; > implants.<BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; > <BR> & gt; & gt; & gt; Drfeng@a...<BR> & gt; & gt; > & gt; & nbsp; & nbsp; <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; > <BR> & gt; & gt; & gt; For Healing Therapies and Detox > info, and to view<BR> & gt; & gt; & gt; Testimonies of > Victims, photos of explant, and Studies of harm by > <BR> & gt; implants,<BR> & gt; & gt; & gt; go to:<BR> & gt; > & gt; & gt; <A > href= " /files/ " >http://gro'>http://group'>http://gro'>http://group'>http://gro'>http://group'>http://gro'>http://group s./group/ /files/</A><BR> & gt; > & gt; & gt; & lt;<A > href= " /files/ " >http://gro'>http://group'>http://gro'>http://group'>http://gro'>http://group'>http://gro'>http://group s./group/ /files/</A> & gt; > <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; To view links to > related websites on breast implants, go to:<BR> & gt; > & gt; & gt; <A > href= " /links " >http://gro'>http://group'>http://gro'>http://group'>http://gro'>http://group'>http://gro'>http://groups ../group/ /links</A><BR> & gt; > & gt; & gt; & lt;<A > href= " /links " >http://gro'>http://group'>http://gro'>http://group'>http://gro'>http://group'>http://gro'>http://groups ../group/ /links</A> & gt; > <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; To search past > messages in the Archives, go to<BR> & gt; & gt; & gt; <A > href= " /messages " >http://gro'>http://gro ups./group/ /messages</A><BR> & gt; > & gt; & gt; & lt;<A > href= " /messages " >http://gro'>http://gro ups./group/ /messages</A> & gt; > <BR> & gt; & gt; & gt; <BR> & gt; & gt; & gt; To post a > message to this group, send an e-mail to:<BR> & gt; & gt; > & gt; @y...<BR> & gt; & gt; & gt; <BR> & gt; > & gt; & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 > Thank you for the information. I have them for 3 months and I am planning to take them out as soon as possible, around January next year. , > > Polyvinyl is in the plastic that comes in the plastic > covering the TV dinners, soups, etc. It is also what > some IV bags are made out of. Studies have found that > polyvinyl leeches out and can very easily get into the > human body. With IV bags, it leeches out and into the > IV fluid, which then, obviously, goes into you via a > peripheral IV or central line. With the plastic over > microwaveable products, it leeches out during the > heating/warming process and we then eat it. > > There have been several studies out proving that > polyvinyl causes health problems. The first such > studies (that I am aware of or where there was actually > media coverage and concern) was back in 1997. Just > recently, I read in a medical journal that continuing > studies show that it is dangerous. As a result, > polyvinyl IV bags are no longer being used, and it has > been recommended that they be discontinued completely. > > e Quote Link to comment Share on other sites More sharing options...
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