Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Hi Patty, I definitely prefer this site to remain the way you have it! That's my 2-cents worth! Blessings, MM / NSIF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 I think that it would be great in some respects and I worry in others like if women started getting on here hacking on us because we basically are against implants. Is there a way that it can be read by the public but that you have to join to post? That would be a good solution, I think it might help more women get the information that I certainly wish I had known before I got implanted, had I read this stuff I don't think I would have even considered implants. I think we need to help save others from the same fate in everyway we can, but I also want to make sure people feel safe and comfortable coming here and expressing there issues. Tough debate In @y..., " Patty " <fdp@l...> wrote: > Well, I can do this. I guess I would like to have input from all the group > members regarding this idea and find out what you all would like to do. > > Maybe we can get pros and cons for both sides. > Patty > ----- Original Message ----- > From: <cjheer@i...> > < @y...> > Sent: Sunday, September 30, 2001 5:59 PM > Subject: Re: open to the public > > > > I agree with you completely i would have to ask Patty how we can do > > that. > > > > > > > > > > > > In @y..., " S. Leret " <lsleret@a...> wrote: > > > I would like to make a suggestion to the support group. I have > > participated > > > in others chat groups like this one but on different subjects and > > they > > > allow the public or anybody to read the internal messages even > > though the > > > person has not signed in. In other words, the messages are open to > > the > > > public for only reading but nobody can write to the forum unless > > she has > > > signed in. In this way it will be easier for more women to learn > > about the > > > risks of breast surgery. It will be easier for the search tools to > > find our > > > stories and subsequently the web site. > > > > > > Best regards, > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 This forum is set up so that nobody can post unless they are a member, so that is not really the issue. The issue is how widely we want these messages available. Specifically, I am thinking about Ilena's posts, which she has given me her blessing on--she doesn't mind her posts appearing on this forum. However, we need to be aware of the reason for the privacy of Ilena's group in the first place--it is a group of women who want to stay in contact with each other, with Ilena being the go-between in order to protect their identity. Some have had legal cases in which it is important that their identity remain unknown or face severe repercussions from the manufacturers, including the loss of any monetary award. Gag orders have prevented them from speaking publicy about the atrocities of their experience. I know that is not possible in this group, due to the configuration of groups. This is a public forum...anyone can join. Members identities are available on the member list, at this time, for my eyes only. (I can make that public, but chose not to.) I realize that anyone can create a bogus email id and join this list to infiltrate it, so that is something that cannot be avoided. The real advantage of having a list owner/moderator is that anyone that creates dissension and harrasses us can be banned permanently. So, back to the question....do we want our posts available to all the world to see, or just our members? I don't mind if the letters are available, but how do you all feel? Patty ----- Original Message ----- From: <cjheer@...> < > Sent: Monday, October 01, 2001 7:09 AM Subject: Re: open to the public > I think that it would be great in some respects and I worry in others > like if women started getting on here hacking on us because we > basically are against implants. > > Is there a way that it can be read by the public but that you have to > join to post? That would be a good solution, I think it might help > more women get the information that I certainly wish I had known > before I got implanted, had I read this stuff I don't think I would > have even considered implants. I think we need to help save others > from the same fate in everyway we can, but I also want to make sure > people feel safe and comfortable coming here and expressing there > issues. > > Tough debate > > > > > > > > In @y..., " Patty " <fdp@l...> wrote: > > Well, I can do this. I guess I would like to have input from all > the group > > members regarding this idea and find out what you all would like to > do. > > > > Maybe we can get pros and cons for both sides. > > Patty > > ----- Original Message ----- > > From: <cjheer@i...> > > < @y...> > > Sent: Sunday, September 30, 2001 5:59 PM > > Subject: Re: open to the public > > > > > > > I agree with you completely i would have to ask Patty how we can > do > > > that. > > > > > > > > > > > > > > > > > > In @y..., " S. Leret " <lsleret@a...> wrote: > > > > I would like to make a suggestion to the support group. I have > > > participated > > > > in others chat groups like this one but on different subjects > and > > > they > > > > allow the public or anybody to read the internal messages even > > > though the > > > > person has not signed in. In other words, the messages are open > to > > > the > > > > public for only reading but nobody can write to the forum unless > > > she has > > > > signed in. In this way it will be easier for more women to learn > > > about the > > > > risks of breast surgery. It will be easier for the search tools > to > > > find our > > > > stories and subsequently the web site. > > > > > > > > Best regards, > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 yes this is true, and look at how we have grown in numbers I am amazed and of course I have been here from the very begining in July 2000 and it has grown to over 100, barely ha ha...but I think we need to be linked to more sites, I wrote to at implant info and asked her to link us to her site since she gets tons of women researching implants, but she never did it and blew me off.....Patty can we try again to get her to link us? I mean she says she is open to all sides so she should be willing.....then again so many of those women call us ANIT BA WOMEN......it is so easy to ignore us when you are feeling well, you cannot imagine the hell it is to really be ill till it happens to you, it is like being a kid you think you will never ever be a teenager and then it happens, ha haha In @y..., eRene@a... wrote: > Patty, > > I have to agree w/ Martha. While it is definately a > good idea to have our information more readily > available, I cringe to think what would happen if it got > in the wrong hands. > > e > > Hi Patty, > > > > I definitely prefer this site to remain the way you have it! > > > > That's my 2-cents worth! > > > > Blessings, > > MM / NSIF > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 Hmmm, I wonder what would do....I ran into her at the March 2000 FDA meeting in Washington, and asked her why she wouldn't let us post our stories on her website. This was right in front of Hager, the NBC news reporter who was about to do my interview. She acted all nicey nice and denied that she wasn't letting us post our stories, but I have experienced nothing but abuse there since then. Also, she has her own group cult following, if you've checked it out. They do monthly groups for those anticipating implant surgery. There was the August Angels, then the September Superstars, now the October Pumpkins. They don't want to hear from victims like us, and their verbal abuse is merciless. I hate the generalize, because there have been some women sincerely seeking more valid information, but for the most part I have found the women on 's groups to be giggling, giddy, foolish bimbos, with no desire to be informed of the real risks that we have already been through. It is sad. If any of you desire to politely ask her if she would entertain the thought of putting our link on her website, please do. She already knows who I am, and even though I have done nothing wrong to offend her, I highly doubt that she would comply with my request. Patty ----- Original Message ----- From: <cjheer@...> < > Sent: Tuesday, October 02, 2001 8:41 AM Subject: Re: open to the public > yes this is true, and look at how we have grown in numbers I am > amazed and of course I have been here from the very begining in July > 2000 and it has grown to over 100, barely ha ha...but I think we need > to be linked to more sites, I wrote to at implant info and > asked her to link us to her site since she gets tons of women > researching implants, but she never did it and blew me off.....Patty > can we try again to get her to link us? I mean she says she is open > to all sides so she should be willing.....then again so many of those > women call us ANIT BA WOMEN......it is so easy to ignore us when you > are feeling well, you cannot imagine the hell it is to really be ill > till it happens to you, it is like being a kid you think you will > never ever be a teenager and then it happens, ha haha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 Well I will do this cause I have nothing to lose anyhow and I don't care what they say ...the funny thing Patty is I was on there today and I noticed that all the names have changed, wonder where all the regulars went off to? I used to go there all the time while I still had my implants, so that was a year and five months of being on there pretty much everyday so I knew allot of the same people posted, I was there today and didn't recognize one name. The problem is, and I was once there too, I didn't want to hear anything when I was getting my implants, I was closed minded about the entire thing I just thought, it isn't going to happen to me and if I dwell on it I will chicken out. I think that is the thinking of most of those women, I don't necessarily think they are bimbos, it may seem that way, I think they are just like i was naive and wanting big boobs and feeling like it has to be safe, and with the lack of real info presented in a non threatening way it would appear that way. It is unfortunate that implants are seen as safe devices and that the FDA put the seal of approval on them making them even more attractive to so many. The biggest problem also is that many of the sites set up by some of the for lack of a better work...Anit BA women are not put together in a manner that is professional. Example, to me the silicone holacaust site is awful, I mean it has little gouls and things on it...that just makes our message seem silly and unbelievable, and the photos on there in my own opinion do not look like they were recent or would apply to most situation with todays medical technology. I think that a realistic and mature mesage without scare tactics and with stories and real people and real pictures like ours on this site is a much more productive way to inform women than to frighten them. While it is tempting to want to scare someone out of what we have been through, at the same time it is much the same as telling a teenager not to date a certain person or something like that, it almost pushes them to do it. I think by being open minded, honest, and not pushy with scare tactics we have a much better chance of informing women of dangers of implants. Anyhow it is hard to do this and i am still trying to find ways of spreading the message without offending anyone. God bless In @y..., " Patty " <fdp@l...> wrote: > Hmmm, I wonder what would do....I ran into her at the March 2000 FDA > meeting in Washington, and asked her why she wouldn't let us post our > stories on her website. This was right in front of Hager, the NBC > news reporter who was about to do my interview. She acted all nicey nice > and denied that she wasn't letting us post our stories, but I have > experienced nothing but abuse there since then. > > Also, she has her own group cult following, if you've checked it out. > They do monthly groups for those anticipating implant surgery. There was > the August Angels, then the September Superstars, now the October Pumpkins. > They don't want to hear from victims like us, and their verbal abuse is > merciless. > > I hate the generalize, because there have been some women sincerely seeking > more valid information, but for the most part I have found the women on > 's groups to be giggling, giddy, foolish bimbos, with no desire to be > informed of the real risks that we have already been through. It is sad. > > If any of you desire to politely ask her if she would entertain the thought > of putting our link on her website, please do. She already knows who I am, > and even though I have done nothing wrong to offend her, I highly doubt that > she would comply with my request. > Patty > > > ----- Original Message ----- > From: <cjheer@i...> > < @y...> > Sent: Tuesday, October 02, 2001 8:41 AM > Subject: Re: open to the public > > > > yes this is true, and look at how we have grown in numbers I am > > amazed and of course I have been here from the very begining in July > > 2000 and it has grown to over 100, barely ha ha...but I think we need > > to be linked to more sites, I wrote to at implant info and > > asked her to link us to her site since she gets tons of women > > researching implants, but she never did it and blew me off.....Patty > > can we try again to get her to link us? I mean she says she is open > > to all sides so she should be willing.....then again so many of those > > women call us ANIT BA WOMEN......it is so easy to ignore us when you > > are feeling well, you cannot imagine the hell it is to really be ill > > till it happens to you, it is like being a kid you think you will > > never ever be a teenager and then it happens, ha haha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 I agree, , I think some of the webpages are more emotionally based on fear and scare tactics that frighten women away rather than presenting the truth about implants in a way that draws them in. I know that when I first saw some of the implant sites I flat out rejected the idea that implants were as bad as they were making them out to be, because if they were, why was the media telling us implants were safe? Why were they allowed to be put into women's bodies? Alot of times women just aren't ready to hear that implants are as bad as they truthfully are. That's what makes this so hard. Patty ----- Original Message ----- From: <cjheer@...> < > Sent: Wednesday, October 03, 2001 10:03 AM Subject: Re: open to the public > Well I will do this cause I have nothing to lose anyhow and I don't > care what they say ...the funny thing Patty is I was on there today > and I noticed that all the names have changed, wonder where all the > regulars went off to? I used to go there all the time while I still > had my implants, so that was a year and five months of being on there > pretty much everyday so I knew allot of the same people posted, I was > there today and didn't recognize one name. The problem is, and I was > once there too, I didn't want to hear anything when I was getting my > implants, I was closed minded about the entire thing I just thought, > it isn't going to happen to me and if I dwell on it I will chicken > out. > > I think that is the thinking of most of those women, I don't > necessarily think they are bimbos, it may seem that way, I think they > are just like i was naive and wanting big boobs and feeling like it > has to be safe, and with the lack of real info presented in a non > threatening way it would appear that way. It is unfortunate that > implants are seen as safe devices and that the FDA put the seal of > approval on them making them even more attractive to so many. > > The biggest problem also is that many of the sites set up by some of > the for lack of a better work...Anit BA women are not put together in > a manner that is professional. Example, to me the silicone holacaust > site is awful, I mean it has little gouls and things on it...that > just makes our message seem silly and unbelievable, and the photos on > there in my own opinion do not look like they were recent or would > apply to most situation with todays medical technology. I think that > a realistic and mature mesage without scare tactics and with stories > and real people and real pictures like ours on this site is a much > more productive way to inform women than to frighten them. > > While it is tempting to want to scare someone out of what we have > been through, at the same time it is much the same as telling a > teenager not to date a certain person or something like that, it > almost pushes them to do it. > > I think by being open minded, honest, and not pushy with scare > tactics we have a much better chance of informing women of dangers of > implants. > > Anyhow it is hard to do this and i am still trying to find ways of > spreading the message without offending anyone. > > God bless > > > Quote Link to comment Share on other sites More sharing options...
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