Re: availability of peg meds

[Guest guest]

Yeah the news is that there isn't enough PEG for all the patients, some are

put on a waiting list. Hope you get yours soon (only in a good way, not

hoping anyone has to do it).

alley

[Guest guest]

Yeah the news is that there isn't enough PEG for all the patients, some are

put on a waiting list. Hope you get yours soon (only in a good way, not

hoping anyone has to do it).

alley

[Guest guest]

Brain fog doesn't always mean you got it on treatment or due to a failing

liver. The virus itself can be the culprit. There's been a few articles on

finding the virus in the brain, sorry I don't have them to quote from.

Yes, pre-menopausal will be a + in your favor. They usually say there are 5

items that MAY determine your outcome...

- the less liver damage the better

- female and premenopausal

- not a one genotype

- low viral load

- the younger the better

Anyway, I hit 3 out of the 5 - little liver damage, female and

premenopausal, and low viral load. The bad thing was that I was a genotype

1b.

From all that I've read, I get the impression that genotype weighs much more

heavily on possibly predicting the outcome of treatment. Even tho some

reports have PEG as giving better percentages, compared to others, it's

still lagging. Damned stubborn geno!

A lot of heppers have brain fog. I think whatever it is, the virus itself or

some kind of secondary thing, it's there for sure, regardless of whether a

doctor says it is or not I think it's important for us to know that we

aren't making things up, feeling hypochondriacal (new word I just made it up

.

It's like my joint pain and fatigue I've had get increasingly worse over the

past 15 years. Just last summer my doc decides I have fibro. Now whether it

really is or not, it's sort of a crap shoot and a process of elimination. So

we try a different approach. At least he isn't telling me to go aerobicize

I know thinking about treatment can be scary. But think of it this way,

there's a helluva lot of diseases and problems out there that are much much

worse than Peg/combo. I know it's hard to realize that when you're faced

with such unknowns, but this unknown is probably not as bad as say breast

cancer or HIV or polio or the hundreds of other things out there waiting for

a host.

I just try to keep telling myself, it could always be worse. For me it would

be worse if my spouse were going thru this than me. I can deal with me, but

the very thot of losing my husband or having him permanently disabled in

some way would devistate me.

And remember, combo is just a year out of a long long life. Whether it

eliminates the virus or not, you know you did your best. Sometimes we have

to take pride in the little things and the things that aren't quite so

visible

good luck,

alley

[Guest guest]

Brain fog doesn't always mean you got it on treatment or due to a failing

liver. The virus itself can be the culprit. There's been a few articles on

finding the virus in the brain, sorry I don't have them to quote from.

Yes, pre-menopausal will be a + in your favor. They usually say there are 5

items that MAY determine your outcome...

- the less liver damage the better

- female and premenopausal

- not a one genotype

- low viral load

- the younger the better

Anyway, I hit 3 out of the 5 - little liver damage, female and

premenopausal, and low viral load. The bad thing was that I was a genotype

1b.

From all that I've read, I get the impression that genotype weighs much more

heavily on possibly predicting the outcome of treatment. Even tho some

reports have PEG as giving better percentages, compared to others, it's

still lagging. Damned stubborn geno!

A lot of heppers have brain fog. I think whatever it is, the virus itself or

some kind of secondary thing, it's there for sure, regardless of whether a

doctor says it is or not I think it's important for us to know that we

aren't making things up, feeling hypochondriacal (new word I just made it up

.

It's like my joint pain and fatigue I've had get increasingly worse over the

past 15 years. Just last summer my doc decides I have fibro. Now whether it

really is or not, it's sort of a crap shoot and a process of elimination. So

we try a different approach. At least he isn't telling me to go aerobicize

I know thinking about treatment can be scary. But think of it this way,

there's a helluva lot of diseases and problems out there that are much much

worse than Peg/combo. I know it's hard to realize that when you're faced

with such unknowns, but this unknown is probably not as bad as say breast

cancer or HIV or polio or the hundreds of other things out there waiting for

a host.

I just try to keep telling myself, it could always be worse. For me it would

be worse if my spouse were going thru this than me. I can deal with me, but

the very thot of losing my husband or having him permanently disabled in

some way would devistate me.

And remember, combo is just a year out of a long long life. Whether it

eliminates the virus or not, you know you did your best. Sometimes we have

to take pride in the little things and the things that aren't quite so

visible

good luck,

alley

[Guest guest]

----------

>From: " Pat Post " <phpost@...>

Regarding comments about brain fog, I

> already experience it and I have never been on TX before. It is scary, I

> asked my regular primary care Doc about it at my yearly check up, she hadn't

> heard of it

Brain fog is one of the symptoms of HCV, treatment just heightens it. I

used to have it before treatment, then REALLY bad during treatment, but

since adding malic acid to my supplement regimen, the fog is pretty much

gone. I think our sleep is of poor quality and what Pat said about the

virus affecting the brain. I am not surprised your doc hasn't heard of

it...sigh. This lousy virus wasn't even identified until the late 1980s or

early 1990s, can't remember which. Hope your treatment goes well, whenever

you start.

gail

[Guest guest]

----------

>From: " Pat Post " <phpost@...>

Regarding comments about brain fog, I

> already experience it and I have never been on TX before. It is scary, I

> asked my regular primary care Doc about it at my yearly check up, she hadn't

> heard of it

Brain fog is one of the symptoms of HCV, treatment just heightens it. I

used to have it before treatment, then REALLY bad during treatment, but

since adding malic acid to my supplement regimen, the fog is pretty much

gone. I think our sleep is of poor quality and what Pat said about the

virus affecting the brain. I am not surprised your doc hasn't heard of

it...sigh. This lousy virus wasn't even identified until the late 1980s or

early 1990s, can't remember which. Hope your treatment goes well, whenever

you start.

gail

[Guest guest]

yes , they are out of the peg combo, they started in oct, and are now out, they

told me if you arent on the list it will be at least another year before it

becomes vailable,they are in the process of building another plant, cause the

only plant they have cannot meet the demands.

Good luck

e

availability of peg meds

Hello All, I had expected to be able to start the long awaited peg combo tx

in Jan 2002. I received a letter from my Dr.s office the first week of Feb.

saying that there is not enough meds available to start all of their

patients on TX. They said it would probably be May before there would be

enough peg combo manufactured. Has anyone else had this experience? I am

not anxious to start but know that I need to do it and the sooner the

better, as I am not getting any younger, and it's supposed to be more

effective on pre-menopausal women. Regarding comments about brain fog, I

already experience it and I have never been on TX before. It is scary, I

asked my regular primary care Doc about it at my yearly check up, she hadn't

heard of it but assured me I didn't have early Alzenheimers. She said the

brain fog type symptoms can also be related to pre-menopausal stuff going

on. Take Care All, Pat

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[Guest guest]

yes , they are out of the peg combo, they started in oct, and are now out, they

told me if you arent on the list it will be at least another year before it

becomes vailable,they are in the process of building another plant, cause the

only plant they have cannot meet the demands.

Good luck

e

availability of peg meds

Hello All, I had expected to be able to start the long awaited peg combo tx

in Jan 2002. I received a letter from my Dr.s office the first week of Feb.

saying that there is not enough meds available to start all of their

patients on TX. They said it would probably be May before there would be

enough peg combo manufactured. Has anyone else had this experience? I am

not anxious to start but know that I need to do it and the sooner the

better, as I am not getting any younger, and it's supposed to be more

effective on pre-menopausal women. Regarding comments about brain fog, I

already experience it and I have never been on TX before. It is scary, I

asked my regular primary care Doc about it at my yearly check up, she hadn't

heard of it but assured me I didn't have early Alzenheimers. She said the

brain fog type symptoms can also be related to pre-menopausal stuff going

on. Take Care All, Pat

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com