Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 I've been trying to formulate my question, and can't even get my thoughts clear on the questions I have about Procrit! There has been a repeated television commercial for Procrit, and it always catches my attention because the woman speaking says that her main problem as a result of chemotherapy is fatigue. I was wondering if Procrit might help some people with CFS. Is increasing RBC's helpful if the theories of low blood volume and or sticky blood (Dr. Bell and HEMEX respectively) hold true? Feedback please? Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 Procrit sounds similar to Amgen's blockbuster drug Epogen (epotein alfa). The drugs work to either enhance RBC health or increase RBC count. I think this is an extremely important area of research, and I know others who think RBC health is the key to recovering. RBCs carry oxygen to the tissues so the theory fits in well with the recent talk on this list about oxygen therapy and rebreather masks. The problem with EPO has been the elevated hematocrit (which I have no idea what it is), but personally I feel we could use some more guinea pigs to use these drugs. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Wierd, my gastro told me not to take Vitamin E on treatment and gave me a prescription for folic acid. Man sometimes I wish these guys would make up their collective minds! alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Wierd, my gastro told me not to take Vitamin E on treatment and gave me a prescription for folic acid. Man sometimes I wish these guys would make up their collective minds! alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 I was told not to take Vitamin E also. How are you, Pat? Connie --- <patriciajean@...> wrote: > Wierd, my gastro told me not to take Vitamin E on > treatment and gave me a > prescription for folic acid. Man sometimes I wish > these guys would make up > their collective minds! > > alley > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 I was told not to take Vitamin E also. How are you, Pat? Connie --- <patriciajean@...> wrote: > Wierd, my gastro told me not to take Vitamin E on > treatment and gave me a > prescription for folic acid. Man sometimes I wish > these guys would make up > their collective minds! > > alley > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2007 Report Share Posted May 27, 2007 YEP,, the NEUPO WILL cause more bone pain than the Procrit OR INF... but its worth it,, Jurydoctor@... wrote: In a message dated 5/27/2007 5:52:19 A.M. Eastern Daylight Time, Hepatitis C writes: don't remember procrit causing any long bone pain like the neupogen . The shot itself burns a little but is worth it because within a few hrs you will feel better and stronger . okay, will do.. I will let ya know hiow I am doing See what's free at AOL.com. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2007 Report Share Posted May 27, 2007 I hope everything went ok with your shot ? procrit In a message dated 5/27/2007 5:52:19 A.M. Eastern Daylight Time, Hepatitis C writes: don't remember procrit causing any long bone pain like the neupogen . The shot itself burns a little but is worth it because within a few hrs you will feel better and stronger . okay, will do.. I will let ya know hiow I am doing See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 hope you start feeling a lot better hon,, keep us updated too, ok?Jurydoctor@... wrote: week #7. took my first procrit shot and feeling much better. thanks to all for their encourageemt. amy See what's free at AOL.com. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 Wow that is such an improvement in numbers , way to go ! I am hoping my liver hangs in long enough for the fda approval of the protease inhibitor, it sounds like it's worth it .. PROCRIT Went to Dr. Schiff today: viral load is 70 (down from 1.2 million) at 8 weeks of treatment. I am on the schering protease inhibitor (study) for genotype 1. I got HCV over 20 years ago and also have non- alcoholic fatty liver disease.. so you can bet this virus was having a field day and becoming way too aggressive... Anyhoo, since I started taking the protease inhibitor, (4 weeks after I strated the pegintererferon and Ribavain) my Ribavarin rash and hemoglobin got worse. As a result of this study, they found that the protease inhibitor seems to multiply the effects of the ribavarin. Make a long story short: Schering is paying for my Procrit, just got a nice 4 week supply. The procrit is the only thing that gets my head off the pillow.. Also, seems as though the protease inbibitor multiplies the effects of the nausea, too.. However.. worth it.. The virus is dropping like flies, my viral load and liver enzymes are going down faster then you can say ' " We are gonna beat this HCV" Just wanted you guys to know. Amy See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2007 Report Share Posted June 22, 2007 Way to go Amy... Whatever it takes, we will beat it... You gotta stay possitive. My doctor told me a possitive attitude was worth more than the treatment in many cases. KTF Steve B. > > Went to Dr. Schiff today: viral load is 70 (down from 1.2 million) at 8 weeks > of treatment. > I am on the schering protease inhibitor (study) for genotype 1. > > I got HCV over 20 years ago and also have non- alcoholic fatty liver > disease.. so you can bet this virus was having a field day and becoming way too > aggressive... > > Anyhoo, since I started taking the protease inhibitor, (4 weeks after I > strated the pegintererferon and Ribavain) my Ribavarin rash and hemoglobin got > worse. > > As a result of this study, they found that the protease inhibitor seems to > multiply the effects of the ribavarin. > Make a long story short: > Schering is paying for my Procrit, just got a nice 4 week supply. > The procrit is the only thing that gets my head off the pillow.. > > Also, seems as though the protease inbibitor multiplies the effects of the > nausea, too.. > > However.. > worth it.. The virus is dropping like flies, my viral load and liver enzymes > are going down faster then you can say ' " We are gonna beat this HCV " > > Just wanted you guys to know. > Amy > > > > ************************************** See what's free at http://www.aol.com. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2007 Report Share Posted June 24, 2007 That's aweful sweetie , I only had a small problem getting the neupogen procrit .But my doctor fought and won the appeal . Procrit I found out that procrit and neupogen are NOT going to be made available to me. It seems that the FDA is fighting it. My hematologist told me that his group (blood docs) and the FDA are in a battle, but no winner has emerged at present, so I can only take transfusions when I need them. arrgghh!! Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 thats odd,, why should YOU have to suffer because the FDA and your doc are in a fight? Why is the FDA fighting it,, YOUR insurance should cover this,, but at least you CAN get transfused if you need it, thats better than stopping treatment,,SHARON CROSBY <csharonxoxo@...> wrote: I found out that procrit and neupogen are NOT going to be made available to me. It seems that the FDA is fighting it. My hematologist told me that his group (blood docs) and the FDA are in a battle, but no winner has emerged at present, so I can only take transfusions when I need them. arrgghh!! Sharon Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 Oh Dorothy thats fantastic,, now you can get back on your tx.. Jackie Procrit Just got word from United Healthcare that they approved my Procrit RX on appeal and I have been approved for 6 months worth………..yippee!!! I guess the iron test was what they needed. Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 Oh Dorothy thats fantastic,, now you can get back on your tx.. Jackie Procrit Just got word from United Healthcare that they approved my Procrit RX on appeal and I have been approved for 6 months worth………..yippee!!! I guess the iron test was what they needed. Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 Procrit is a medication that you take by injection that helps your bone marrow to make more red blood cells which are depleted by the Ribavirin... there is another product called Neupogen that does the same thing for your white blood cells if you need it. Interferon depletes the white cells,, so thank God they have something to help with both of these.scwilson1972 <scwilson1972@...> wrote: May I ask what is procrit? I know what ribavarin and interfuron is, but I see people mention procrit a lot and I have no idea what that is.Thanks,StaceyJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 Procrit is a medication that you take by injection that helps your bone marrow to make more red blood cells which are depleted by the Ribavirin... there is another product called Neupogen that does the same thing for your white blood cells if you need it. Interferon depletes the white cells,, so thank God they have something to help with both of these.scwilson1972 <scwilson1972@...> wrote: May I ask what is procrit? I know what ribavarin and interfuron is, but I see people mention procrit a lot and I have no idea what that is.Thanks,StaceyJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 Hi Stacey, From what I know about Procrit it is a medication that comes in an injection that is precribed for people with real low blood platlets. In other words people with severe Anemia! Like myself, although my Doc. chose not to put me on it due to the side effects it could have. Iv'e had alot of sides from the TX. The common ones as well as the rare ones, so severe that they want to take me off the TX if I or my bloodwork don't improve. I also know people that are taking Chemo that have to be precribed Procrit due to low blood & Anemia. And of course I'm sure you already know that these TX that wer'e taking ( inter/riba ) are a form of Chemo. What we are taking is the same thing that people with Lukemia & other Cancers are taking! scwilson1972 <scwilson1972@...> wrote: May I ask what is procrit? I know what ribavarin and interfuron is, but I see people mention procrit a lot and I have no idea what that is.Thanks,Stacey __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 no elizabeth,, Procrit is given for anemia of RED BLOOD CELLS and for low hemoglobin,, what they give for platelets is something different. Neupogen is given for anemia of white blood cells..just want to make sure we give out absolutely correct information,, jaxelizabeth easterday <queenelizabethann1963@...> wrote: Hi Stacey, From what I know about Procrit it is a medication that comes in an injection that is precribed for people with real low blood platlets. In other words people with severe Anemia! Like myself, although my Doc. chose not to put me on it due to the side effects it could have. Iv'e had alot of sides from the TX. The common ones as well as the rare ones, so severe that they want to take me off the TX if I or my bloodwork don't improve. I also know people that are taking Chemo that have to be precribed Procrit due to low blood & Anemia. And of course I'm sure you already know that these TX that wer'e taking ( inter/riba ) are a form of Chemo. What we are taking is the same thing that people with Lukemia & other Cancers are taking! scwilson1972 <scwilson1972 > wrote: May I ask what is procrit? I know what ribavarin and interfuron is, but I see people mention procrit a lot and I have no idea what that is.Thanks,Stacey __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 no elizabeth,, Procrit is given for anemia of RED BLOOD CELLS and for low hemoglobin,, what they give for platelets is something different. Neupogen is given for anemia of white blood cells..just want to make sure we give out absolutely correct information,, jaxelizabeth easterday <queenelizabethann1963@...> wrote: Hi Stacey, From what I know about Procrit it is a medication that comes in an injection that is precribed for people with real low blood platlets. In other words people with severe Anemia! Like myself, although my Doc. chose not to put me on it due to the side effects it could have. Iv'e had alot of sides from the TX. The common ones as well as the rare ones, so severe that they want to take me off the TX if I or my bloodwork don't improve. I also know people that are taking Chemo that have to be precribed Procrit due to low blood & Anemia. And of course I'm sure you already know that these TX that wer'e taking ( inter/riba ) are a form of Chemo. What we are taking is the same thing that people with Lukemia & other Cancers are taking! scwilson1972 <scwilson1972 > wrote: May I ask what is procrit? I know what ribavarin and interfuron is, but I see people mention procrit a lot and I have no idea what that is.Thanks,Stacey __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 BUILDING YOUR OWN RED BLOOD CELLS Procrit® (Epoetin alfa)1 is a medication used in anemic patients undergoing elective surgery. It is a natural substance identical to one your body produces and helps stimulate your body�s ability to produce red blood cells. By increasing the red blood cell supply before surgery, the hemoglobin level is increased and remains higher during and after surgery. When PROCRIT is given before surgery, patients produce additional red blood cells and have a significant increase in hemoglobin by day of surgery. Medical studies show that patients who use PROCRIT require fewer transfusion than patients who do not. Essentially, they are able to build the red blood cells within their bodies and even after surgery have higher hemoglobin than patients receiving placebo. PROCRIT is used for elective, noncardiac, nonvascular surgery with a likelihood of significant blood loss. Your Hb level must be greater than 10 but less than or equal to 13 g/dL before you start PROCRIT therapy. PROCRIT is not indicated for anemic patients who are willing to give their own blood. Re: Procrit no elizabeth,, Procrit is given for anemia of RED BLOOD CELLS and for low hemoglobin,, what they give for platelets is something different. Neupogen is given for anemia of white blood cells..just want to make sure we give out absolutely correct information,, jaxelizabeth easterday <queenelizabethann1963 > wrote: Hi Stacey, From what I know about Procrit it is a medication that comes in an injection that is precribed for people with real low blood platlets. In other words people with severe Anemia! Like myself, although my Doc. chose not to put me on it due to the side effects it could have. Iv'e had alot of sides from the TX. The common ones as well as the rare ones, so severe that they want to take me off the TX if I or my bloodwork don't improve. I also know people that are taking Chemo that have to be precribed Procrit due to low blood & Anemia. And of course I'm sure you already know that these TX that wer'e taking ( inter/riba ) are a form of Chemo. What we are taking is the same thing that people with Lukemia & other Cancers are taking! scwilson1972 <scwilson1972 > wrote: May I ask what is procrit? I know what ribavarin and interfuron is, but I see people mention procrit a lot and I have no idea what that is.Thanks,Stacey __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Jackie it increases rbc's Re: Procrit no elizabeth,, Procrit is given for anemia of RED BLOOD CELLS and for low hemoglobin,, what they give for platelets is something different. Neupogen is given for anemia of white blood cells..just want to make sure we give out absolutely correct information,, jaxelizabeth easterday <queenelizabethann1963 > wrote: Hi Stacey, From what I know about Procrit it is a medication that comes in an injection that is precribed for people with real low blood platlets. In other words people with severe Anemia! Like myself, although my Doc. chose not to put me on it due to the side effects it could have. Iv'e had alot of sides from the TX. The common ones as well as the rare ones, so severe that they want to take me off the TX if I or my bloodwork don't improve. I also know people that are taking Chemo that have to be precribed Procrit due to low blood & Anemia. And of course I'm sure you already know that these TX that wer'e taking ( inter/riba ) are a form of Chemo. What we are taking is the same thing that people with Lukemia & other Cancers are taking! scwilson1972 <scwilson1972 > wrote: May I ask what is procrit? I know what ribavarin and interfuron is, but I see people mention procrit a lot and I have no idea what that is.Thanks,Stacey __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 thats exactly what I said Liz,, Procrit is for RBC's and neupo is for WBC.. but procrit is not for platelets...right?elizabethnv1 <elizabethnv1@...> wrote: Jackie it increases rbc's Re: Procrit no elizabeth,, Procrit is given for anemia of RED BLOOD CELLS and for low hemoglobin,, what they give for platelets is something different. Neupogen is given for anemia of white blood cells..just want to make sure we give out absolutely correct information,, jaxelizabeth easterday <queenelizabethann1963 > wrote: Hi Stacey, From what I know about Procrit it is a medication that comes in an injection that is precribed for people with real low blood platlets. In other words people with severe Anemia! Like myself, although my Doc. chose not to put me on it due to the side effects it could have. Iv'e had alot of sides from the TX. The common ones as well as the rare ones, so severe that they want to take me off the TX if I or my bloodwork don't improve. I also know people that are taking Chemo that have to be precribed Procrit due to low blood & Anemia. And of course I'm sure you already know that these TX that wer'e taking ( inter/riba ) are a form of Chemo. What we are taking is the same thing that people with Lukemia & other Cancers are taking! scwilson1972 <scwilson1972 > wrote: May I ask what is procrit? I know what ribavarin and interfuron is, but I see people mention procrit a lot and I have no idea what that is.Thanks,Stacey __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 It is for the red cells only , I think they transfuse with severly low platelets but I am not 100% sure . Re: Procrit no elizabeth,, Procrit is given for anemia of RED BLOOD CELLS and for low hemoglobin,, what they give for platelets is something different. Neupogen is given for anemia of white blood cells..just want to make sure we give out absolutely correct information,, jaxelizabeth easterday <queenelizabethann1963 > wrote: Hi Stacey, From what I know about Procrit it is a medication that comes in an injection that is precribed for people with real low blood platlets. In other words people with severe Anemia! Like myself, although my Doc. chose not to put me on it due to the side effects it could have. Iv'e had alot of sides from the TX. The common ones as well as the rare ones, so severe that they want to take me off the TX if I or my bloodwork don't improve. I also know people that are taking Chemo that have to be precribed Procrit due to low blood & Anemia. And of course I'm sure you already know that these TX that wer'e taking ( inter/riba ) are a form of Chemo. What we are taking is the same thing that people with Lukemia & other Cancers are taking! scwilson1972 <scwilson1972 > wrote: May I ask what is procrit? I know what ribavarin and interfuron is, but I see people mention procrit a lot and I have no idea what that is.Thanks,Stacey __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 well said that procrit was FOR PLATELETS,, thats why I corrected her and explained that procrit is for RBC's and neupo is for WBC's... I think you mis-read what I said, we both said the same thing, lol,, how ya doing today?elizabethnv1 <elizabethnv1@...> wrote: It is for the red cells only , I think they transfuse with severly low platelets but I am not 100% sure . ----- Original Message ----- From: Jackie on Hepatitis C Sent: Sunday, October 28, 2007 2:07 PM Subject: Re: Procrit thats exactly what I said Liz,, Procrit is for RBC's and neupo is for WBC.. but procrit is not for platelets...right?elizabethnv1 <elizabethnv1earthlink (DOT) net> wrote: Jackie it increases rbc's Re: Procrit no elizabeth,, Procrit is given for anemia of RED BLOOD CELLS and for low hemoglobin,, what they give for platelets is something different. Neupogen is given for anemia of white blood cells..just want to make sure we give out absolutely correct information,, jaxelizabeth easterday <queenelizabethann1963 > wrote: Hi Stacey, From what I know about Procrit it is a medication that comes in an injection that is precribed for people with real low blood platlets. In other words people with severe Anemia! Like myself, although my Doc. chose not to put me on it due to the side effects it could have. Iv'e had alot of sides from the TX. The common ones as well as the rare ones, so severe that they want to take me off the TX if I or my bloodwork don't improve. I also know people that are taking Chemo that have to be precribed Procrit due to low blood & Anemia. And of course I'm sure you already know that these TX that wer'e taking ( inter/riba ) are a form of Chemo. What we are taking is the same thing that people with Lukemia & other Cancers are taking! scwilson1972 <scwilson1972 > wrote: May I ask what is procrit? I know what ribavarin and interfuron is, but I see people mention procrit a lot and I have no idea what that is.Thanks,Stacey __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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