Guest guest Posted August 23, 2001 Report Share Posted August 23, 2001 I would be interested in this study but doubt anyone is doing it here in Idaho. I also have relentless pain, the only thing that works for me is lortab and just getting up and doing things, the more lazy I am the more my pain increases. I too have severe insomnia and take klonopin for sleep, and I am not to thrilled with the thought of going of it, so I can relate to that issue. keep us posted about your expreiences In @y..., eRene@a... wrote: > I had an appt with a rheumy in Seattle yesterday to see > if I qualified for a fibro study. I have such severe > pain at times, and nothing seems to help that I thought > I'd see what this was all about. So I went for a 4 hr > appt. What I found out was very interesting, esp since > there isn't much out there that effectively treats fibro. > > The study is being done across the country at major > medical centers and is being conducted by Eli Lily. The > drug is called Duloxetine, which is very similar to > Effexor, but more like an Effexor Plus. It is an > antidepressant which works more on norepinephrine than > serotonin. 200 people have tried it already and have > had very promising results with decreasing the amt of > tender points, stiffness, achiness, fatigue, anxiety, > and depression. It works through pain pathways instead > of typical neurotransmitter pathways. I currently take > Effexor for depression and was told that if Effexor > works, then I will probably respond very favorably to > duloxetine. I had to undergo a psychiatric exam (MINI), > a physical exam by the doc, a H & P, and an EKG. I have > to come back next wk to finish the paperwork and have > blood drawn and urine obtained. > > The catch, though, is that there has to be a washout of > all other meds, including my sleepers Ambien and > Klonopin. I have had severe insomnia since high school, > and I don't know how this will pan out. So, at this > point, I'm torn between wanting to partake in the study > and saying no to it because I can't see myself not > sleeping but more than 2 hrs/night for 17 wks (the > length of the study). Of course, there is the chance > that the med can regulate my sleep patterns and I will > be able to sleep okay. > > This particular doc is very involved in studies related > to fibro and CFS. Apparently a nationwide study was > done about 8 months ago on a med also used to treat > fibro and CFS. It did well in the studies and is due to > come out in spring. I was given a list of the stats > that they had. Of 50 pts involved in the study, 78% had > a significant decrease in their symptoms with min side > effects. > > For those of us where nothing seems to help our pain, > these new drugs may be promising. Also, there is > apparently a national registry of fibro sufferers who > provide a blood sample and this company then runs tests > to determine if fibro is genetically linked, medication > induced, or falls under the category of " other. " > > If any of you are interested, and you are near a major > medical center, you might want to contact the research > dept of the hospital and see if they have been chosen to > participate in the study. > > I will keep you updated as to what I decide to do about > joining the study. > > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 -hi-- In , Peake <peaketeresa@...> wrote: > > Hello ladies, > I went to an appointment today here in Hawaii to see if I am eligible for a medical study group for Fibro. New medication that is awaiting FDA approval. They have 900 women in the study, The medicine has been used in Europe for many years with great success for depression. They have found that it does wonders for Fibro (supposedly). I am skeptical though,funny thing they had never heard of a link to breast implants. I couldn't believe they are studying 900 women and this has not even come up. I took in alot of reasearch and some letters from online support groups I have read and they were shocked about the connection. Maybe it is just because we are in Hawaii. I did find it refreshing that they were so concerned about all of my illness. They listened to me for almost an hour before they gave me tests. I just wanted to share with you girls, > Terri P > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 My sister is doing that study, has been for 6 months. No side effects to date, and great relief from her fibromyalgia. Lynda At 04:30 AM 7/19/2006, you wrote: >Hello ladies, >I went to an appointment today here in Hawaii to see if I am >eligible for a medical study group for Fibro. New medication that is >awaiting FDA approval. They have 900 women in the study, The >medicine has been used in Europe for many years with great success >for depression. They have found that it does wonders for Fibro >(supposedly). I am skeptical though,funny thing they had never heard >of a link to breast implants. I couldn't believe they are studying >900 women and this has not even come up. I took in alot of reasearch >and some letters from online support groups I have read and they >were shocked about the connection. Maybe it is just because we are >in Hawaii. I did find it refreshing that they were so concerned >about all of my illness. They listened to me for almost an hour >before they gave me tests. I just wanted to share with you girls, >Terri P > >__________________________________________________ >Do Yo u ? >Tired of spam? has the best spam protection around >http://mail. > Quote Link to comment Share on other sites More sharing options...
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