Guest guest Posted August 22, 2001 Report Share Posted August 22, 2001 Does anyone here know what the heck this is? I apparently have it and I have no clue what it is, I am going to find out but was wondering if anyone around here has heard of it, maybe e? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2001 Report Share Posted August 22, 2001 , When were you told you have this? What lab work was indicative? Did you have large amounts of abnormal serum protein? Patty ----- Original Message ----- From: <cjheer@...> < > Sent: Tuesday, August 21, 2001 5:17 PM Subject: polyclonal gammopathy > Does anyone here know what the heck this is? I apparently have it and > I have no clue what it is, I am going to find out but was wondering > if anyone around here has heard of it, maybe e? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2001 Report Share Posted August 22, 2001 Yes exactly it was when I last saw my rheumy in CA and he told me I had abnormal total protein test indicative of this polyclonal gammopathy/ I don't know, I think I wasn't paying attention because when I got all my records yesterday I was really surprised to read this. I will quote some of this letter here " I told that while scientifically, statistically, and officially we cannot attribute anything to the implants that my own belief was that the implants caused something in some people and that she was one and since removal she does feel better. She has not wanted to start the plaquenil and as I indicated above that is fine at this time, however considering her positive antinuclear anitbody test and now what appears to be a polyclonal gammopathy that this would be the sensible thing to do. " It just goes on saying that I have the undifferentitated connective tissue disease and blah blah blah. I got the actual report of my brain MRI which also is a surprise, it says I have bilateral maxilary sinus disease, they never told me that either, of course that was a different Dr who was a total creep. But other than that my MRI all looks good, I notice I had high eosinophils, and low neutrophils but they are just barely out of the normal range and he never seemed to think this meant anything. I have 2 different positive EBV titers, one is the EBV Ab IgG and one is the EBV Capsid AB IgM whatever that is I do not know. I am hoping to get into see this Dr here and get a more indepth idea of these things. I wonder what if anything you or someone on this board can tell me about this, from what I have found on the net it is hard to understand and says that it is and I will cut and paste here polyclonal (adjective) gam- or gamo- (combining form) gam- or gamo- (combining form) -pathy (noun combining form) polyclonal-produced by or being cells derived from 2 or more cells of different ancestry or genetic constitution gamo-joined pathy-disorder if i would summarize it i'd say genetic cells abnormally joined... Well that doesn't tell me much and I have no clue what that means or how it is affecting me as far as the pain I have or the occasional spaciness I get(which is almost gone anyhow) The other thing I found funny is that when my ana was very low they said it meant nothing then it went high and they said it meant something, but when it went back dosn they told me it probably doesn't mean anything, how can that be? The last one I had was allot lower, this was a few months after explant, anyhow the whole thing is very confusing......any ideas most appreciated and I will keep you all informed. Thanks, In @y..., " Patty " <fdp@l...> wrote: > , > When were you told you have this? > > What lab work was indicative? Did you have large amounts of abnormal serum > protein? > Patty > ----- Original Message ----- > From: <cjheer@i...> > < @y...> > Sent: Tuesday, August 21, 2001 5:17 PM > Subject: polyclonal gammopathy > > > > Does anyone here know what the heck this is? I apparently have it and > > I have no clue what it is, I am going to find out but was wondering > > if anyone around here has heard of it, maybe e? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2001 Report Share Posted August 23, 2001 Hi e, I want to personally thank you for answering so many medical questions, etc., especially when you are working such long hours in a most stressful area of medicine. You are, indeed, a 'special lady', to continue to help BI Women with questions, after surely being exhausted when you get home. 'Just wanted to let you know how much you are appreciated in this arena of your life! Blessings, Martha Murdock NSIF ----- Original Message ----- From: eRene@... Sent: Thursday, August 23, 2001 12:38 AM Subject: Re: polyclonal gammopathy , Okay, I'm looking up in Taber's what polyclonal gammopathy is---a disease in which there is an increase in serum immunoglobulin which arises from different cell lines. These diseases include myeloma. Bence protein is not present in the urine. Hmmmmm......Have you ever had a urine test for Bence protein? It is not a common test.e> Does anyone here know what the heck this is? I apparently have it and > I have no clue what it is, I am going to find out but was wondering > if anyone around here has heard of it, maybe e?> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2001 Report Share Posted August 23, 2001 , I must have totally missed your msg about polyclonal gammopathy or whatever you were talking about. I have been working so much and so hard this wk, that I have sort of been skimming through my email, and deleting things without even realizing I'm doing it. That is how exhausted I am. I've been working 12+ hr shifts in the recovery room, and the trauma we get at the hospital is just emotionally starting to affect me. Lots of trauma involving children, and adults that is so severe, they lose limbs, parts of their faces, have degloving, etc. I took care of 3 pediatric pts today who were all trauma. One girl, 12 yrs old, had been in a car accident and had fx'd her pelvis, had a traumatic amputation of her arm, and ruptured her liver. Another woman had been run over (yes, run over) by a semi. She lost both arms and legs, broke her pelvis, broke her back, and had numerous other injuries. And the list goes on and on. Anyway, getting back to your question. I will have to get back to you on that. I have heard about it, but honestly don't know what it is. As for your IgG and IgA (or IgM--I can't remember which one), what these are indicative of are how old or how long you have had a disease. I forget which one is which, but for instance, when I had my lyme titer test, my IgG (I think it was IgG)came back positive, and the infectious disease docs I worked for said that that indicated that I had been infected/exposed to lyme disease at some point in my life, but that it wasn't a current infection. I will get back to you on the other question you had. e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2001 Report Share Posted August 23, 2001 , Okay, I'm looking up in Taber's what polyclonal gammopathy is---a disease in which there is an increase in serum immunoglobulin which arises from different cell lines. These diseases include myeloma. Bence protein is not present in the urine. Hmmmmm......Have you ever had a urine test for Bence protein? It is not a common test. e > Does anyone here know what the heck this is? I apparently have it and > I have no clue what it is, I am going to find out but was wondering > if anyone around here has heard of it, maybe e? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2001 Report Share Posted August 23, 2001 Martha, Thank you so much for your compliment. I really do appreciate it. And I just hope everyone knows how important it is to me to help women who need it. I am here for them no matter what. I know that when I was " freaking out " about my implants and had so many questions about explant, everyone was here for me and so supportive--more than even my own family. I know I never would have made it through that part of my life without the support of you all. e > Hi e, > > I want to personally thank you for answering so many medical questions, etc., > especially when you are working such long hours in a most stressful area of > medicine. You are, indeed, a 'special lady', to continue to help BI Women with > questions, after surely being exhausted when you get home. > > 'Just wanted to let you know how much you are appreciated in this arena of your > life! > > Blessings, > Martha Murdock > NSIF > > ----- Original Message ----- > From: eRene@... > > Sent: Thursday, August 23, 2001 12:38 AM > Subject: Re: polyclonal gammopathy > > > , > > Okay, I'm looking up in Taber's what polyclonal > gammopathy is---a disease in which there is an increase > in serum immunoglobulin which arises from different cell > lines. These diseases include myeloma. Bence > protein is not present in the urine. Hmmmmm......Have > you ever had a urine test for Bence protein? It > is not a common test. > > e > > Does anyone here know what the heck this is? I apparently have it and > > I have no clue what it is, I am going to find out but was wondering > > if anyone around here has heard of it, maybe e? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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