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Re: Fw: Foot pain

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I have to interject something here. I feel that I have

all these repressed memories coming back....

On the topic of foot pain, I developed severe pain in my

L lateral foot, with the center of it being the little

toe and the space between my 4th and 5th toe. It

started off as mild pain, then eventually got worse and

worse. Then the redness developed, and spread. The

pain got so bad, that I could not wear a shoe, but I was

forced to because I was working in home health at the

time and wore dress clothes. My foot became so swollen

and painful, I cried everytime I walked. This was in

fall of 1997, a yr after my implants had been placed.

Needless to say, I developed increasing redness, edema,

and pain, and also a low grade fever. I had a friend

take me to and infectious disease doctor that we both

knew well and that I worked for part time. He said

there was some type of infection going on, and said I

probably had cellulitis. I was placed on Rocephin IV,

and was to be evaluated the next day. The Rocephin was

not working, so I was placed on Vanco, and this ID doc

suggested I be admitted to the hospital because this was

not the " typical " cellulitis. There was no broken skin,

no injury, nothing.

I was admitted to the hospital and had an MRI done of my

foot. Thank god it wasn't osteomyelitis, but there was

edema of the soft tissue and fluid. I was started on an

even higher dose of Vanco, and had a PICC line put in

for long term IV antibiotic therapy. It eventually got

better, but very slowly. My ID doc had to do an I & D,

meaning that he had to open the space between my toes

and clean it out. Very suprisingly, there was not fluid

and gook like we thought there would be. A culture was

sent off and to all of our suprise, it came back

positive for Klebsiella pneumoniae, which is typically a

bacteria found in respiratory infections!!! Everyone

was stumped.

Anyway, it eventually cleared up, but not completely.

The pain was better, but there was still some

tenderness. About 5 months later, I went back to the ID

doc and told him that it wasn't healing. He agreed and

sent me to an orthopedic surgeon who specialized in

feet. He did more tests and found that I had a

neuroma.

From what I can gather, a neuroma is a bunch of nerves

that have sort of gotten all jumbled together in one

big " ball. " They become hard and cause the pain. If

not treated, they can cause inflammation and severe

pain. So, I had to have the neuroma removed. Once it

was removed, I was much better. A small piece of bone

also had to be removed as the neuroma was sitting on the

bone and had caused some injury to the bone.

Now my foot pain is coming back, in the same foot. And

to this day, no one knows how I ended up with K.

pneumoniae in my foot. It was all very bizarre. But

again, this was after I'd had my implants in. I never

even related this to my implants, not until now. But I

have to wonder if that was one of the first signs of

future health problems.......It certainly had some of

the best docs in Denver stumped......

So, I want to ask you all who are having foot pain if

you've been checked to see if it's a neuroma. It could

very well be and a removal of the neuroma could

significantly help your pain. Unfortunately, neuromas

can come back, and with us, I suspect there's a high

probability.

e

> A few more replies I got on the foot pain post:

>

> ----- Original Message -----

> Patty

> Sent: Sunday, September 09, 2001 4:34 AM

> Subject: Re: Foot pain--please post

>

>

> Dear Pat:

>

> It's probably due to nerve damage. I am finding that many implant survivors

> still don't know that most of us have sustained some degree of nerve damage.

> This is what causes most of the symtoms we have from the chronic fatigue,

> flu-like symptoms, headaches, insomnia, depression, bodily pain impaired

> concentration, etc. There are some who are actually in wheelchairs because of

> this illness affecting their legs and their ability to be mobile.

>

> I had a similar experience with one of my legs last year. I have a pain that

> started in my right foot at the beginning of the week and it was painful and

> felt like electricity running through my foot and it gradually moved further

up

> my leg over the week until it was almost to mid-thigh. I was frightened about

> this but it eventually stopped. I asked my doctor if it was cause for concern

> and he said not if it stopped. If it had continued, then I don't know what we

> would have done.

>

> I do take Lamictal for nerve pain. I don't take it everyday but I do take it

if

> I'm having problems with the nerve pain in my head and body. Lamictal is the

> same type of drug as Neurontin but I couldn't take Neurontin (don't remember

the

> reason but I think it was because it made my headaches worse and I know it

> didn't really help me.) However, just because Neurontin didn't help me

doesn't

> mean it won't help you. Many doctors seem to prefer Neurontin to Lamictal.

>

> I also have trouble with my feet if I stay on them too long. They will swell

up

> to about four times their size and I don't feel them, all I feel is pinpricks

> and electricity running through them. It will take several days completely

off

> my feet to remedy the situation.

>

> I'm sure your problem will clear up soon. Wishing you the best. There are >

medications that I take that help me have a much better quality of life than I

> had prior to taking them. I won't under any circumstances go back to living

the

> kind of life I had before taking these medicines. I still have attacks and

get

> sick but I don't feel everyday as if I'm dying.

>

> Deb

> ***************

> Hi Patty

>

> It's possible that you have a bone spur on your heel. I do have one and

> went into orthodics to help with the pain. Check " bone spur " on the net and

> it should help you understand it a little better. Good luck. andra

> **************************

>

> Patty,

>

> I have developed that foot pain also in the same area. I wasn't aware of

> other " Sisters " have the same problem.

>

> The foot doctor taped me around the area, supporting my arch and it

> immediately felted much better. I've done myself since and was able to

> walk without pain. He told me that I have a flat foot and wanted to make

> a cast of

> it for $400.00 to mold an inner sole. I refused.

>

> Have you tried the " Phase 4 Orthotics " innersoles?

>

> With much empathy and love,

> Georgianna

>

> (I have silicone induced)

>

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On the subject of neuroma's.....

I had a neuroma on my left foot prior to getting implants. It was between

my 4 and last toe of my left foot, and it was diagnosed quite easily. It

was a burning pain that was exacerbated the longer I stayed on my feet. So,

I conveniently scheduled the surgery for the neuroma to coincide with my

implant surgery, using the excuse for the neuroma surgery for taking off

work. I had the neuroma removed on May 22, 1997, and the implant surgery on

May 23, 1997. Worked out quite well, and I healed from both surgeries very

quickly. (ooh, but I will never forget the pain of the implant surgery! I

am sure all of you do too, how painful it was to get out of bed to even use

the bathroom, and how I screamed when my husband braced me with his arms to

help me get up...and then hobbling to the bathroom....) My co-workers knew

that something was up when I came back with a bandaged foot AND huge

breasts. There were some unspoken questions, I am sure.

Anyway, most of the women who have complained about foot pain say that it is

in the heel, and the arch area just befor the heel, while I think most

neuromas occur between the toes.

Patty

----- Original Message -----

From: <eRene@...>

< >

Sent: Sunday, September 09, 2001 4:23 PM

Subject: Re: Fw: Foot pain

> I have to interject something here. I feel that I have

> all these repressed memories coming back....

>

> On the topic of foot pain, I developed severe pain in my

> L lateral foot, with the center of it being the little

> toe and the space between my 4th and 5th toe. It

> started off as mild pain, then eventually got worse and

> worse. Then the redness developed, and spread. The

> pain got so bad, that I could not wear a shoe, but I was

> forced to because I was working in home health at the

> time and wore dress clothes. My foot became so swollen

> and painful, I cried everytime I walked. This was in

> fall of 1997, a yr after my implants had been placed.

>

> Needless to say, I developed increasing redness, edema,

> and pain, and also a low grade fever. I had a friend

> take me to and infectious disease doctor that we both

> knew well and that I worked for part time. He said

> there was some type of infection going on, and said I

> probably had cellulitis. I was placed on Rocephin IV,

> and was to be evaluated the next day. The Rocephin was

> not working, so I was placed on Vanco, and this ID doc

> suggested I be admitted to the hospital because this was

> not the " typical " cellulitis. There was no broken skin,

> no injury, nothing.

>

> I was admitted to the hospital and had an MRI done of my

> foot. Thank god it wasn't osteomyelitis, but there was

> edema of the soft tissue and fluid. I was started on an

> even higher dose of Vanco, and had a PICC line put in

> for long term IV antibiotic therapy. It eventually got

> better, but very slowly. My ID doc had to do an I & D,

> meaning that he had to open the space between my toes

> and clean it out. Very suprisingly, there was not fluid

> and gook like we thought there would be. A culture was

> sent off and to all of our suprise, it came back

> positive for Klebsiella pneumoniae, which is typically a

> bacteria found in respiratory infections!!! Everyone

> was stumped.

>

> Anyway, it eventually cleared up, but not completely.

> The pain was better, but there was still some

> tenderness. About 5 months later, I went back to the ID

> doc and told him that it wasn't healing. He agreed and

> sent me to an orthopedic surgeon who specialized in

> feet. He did more tests and found that I had a

> neuroma.

>

> From what I can gather, a neuroma is a bunch of nerves

> that have sort of gotten all jumbled together in one

> big " ball. " They become hard and cause the pain. If

> not treated, they can cause inflammation and severe

> pain. So, I had to have the neuroma removed. Once it

> was removed, I was much better. A small piece of bone

> also had to be removed as the neuroma was sitting on the

> bone and had caused some injury to the bone.

>

> Now my foot pain is coming back, in the same foot. And

> to this day, no one knows how I ended up with K.

> pneumoniae in my foot. It was all very bizarre. But

> again, this was after I'd had my implants in. I never

> even related this to my implants, not until now. But I

> have to wonder if that was one of the first signs of

> future health problems.......It certainly had some of

> the best docs in Denver stumped......

>

> So, I want to ask you all who are having foot pain if

> you've been checked to see if it's a neuroma. It could

> very well be and a removal of the neuroma could

> significantly help your pain. Unfortunately, neuromas

> can come back, and with us, I suspect there's a high

> probability.

>

> e

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I don't know if there are different types of neuromas or

not, but I had a Morton's Neuroma.

e

> On the subject of neuroma's.....

>

> I had a neuroma on my left foot prior to getting implants. It was between

> my 4 and last toe of my left foot, and it was diagnosed quite easily. It

> was a burning pain that was exacerbated the longer I stayed on my feet. So,

> I conveniently scheduled the surgery for the neuroma to coincide with my

> implant surgery, using the excuse for the neuroma surgery for taking off

> work. I had the neuroma removed on May 22, 1997, and the implant surgery on

> May 23, 1997. Worked out quite well, and I healed from both surgeries very

> quickly. (ooh, but I will never forget the pain of the implant surgery! I

> am sure all of you do too, how painful it was to get out of bed to even use

> the bathroom, and how I screamed when my husband braced me with his arms to

> help me get up...and then hobbling to the bathroom....) My co-workers knew

> that something was up when I came back with a bandaged foot AND huge

> breasts. There were some unspoken questions, I am sure.

>

> Anyway, most of the women who have complained about foot pain say that it is

> in the heel, and the arch area just befor the heel, while I think most

> neuromas occur between the toes.

> Patty

> ----- Original Message -----

> From: <eRene@...>

> < >

> Sent: Sunday, September 09, 2001 4:23 PM

> Subject: Re: Fw: Foot pain

>

>

> > I have to interject something here. I feel that I have

> > all these repressed memories coming back....

> >

> > On the topic of foot pain, I developed severe pain in my

> > L lateral foot, with the center of it being the little

> > toe and the space between my 4th and 5th toe. It

> > started off as mild pain, then eventually got worse and

> > worse. Then the redness developed, and spread. The

> > pain got so bad, that I could not wear a shoe, but I was

> > forced to because I was working in home health at the

> > time and wore dress clothes. My foot became so swollen

> > and painful, I cried everytime I walked. This was in

> > fall of 1997, a yr after my implants had been placed.

> >

> > Needless to say, I developed increasing redness, edema,

> > and pain, and also a low grade fever. I had a friend

> > take me to and infectious disease doctor that we both

> > knew well and that I worked for part time. He said

> > there was some type of infection going on, and said I

> > probably had cellulitis. I was placed on Rocephin IV,

> > and was to be evaluated the next day. The Rocephin was

> > not working, so I was placed on Vanco, and this ID doc

> > suggested I be admitted to the hospital because this was

> > not the " typical " cellulitis. There was no broken skin,

> > no injury, nothing.

> >

> > I was admitted to the hospital and had an MRI done of my

> > foot. Thank god it wasn't osteomyelitis, but there was

> > edema of the soft tissue and fluid. I was started on an

> > even higher dose of Vanco, and had a PICC line put in

> > for long term IV antibiotic therapy. It eventually got

> > better, but very slowly. My ID doc had to do an I & D,

> > meaning that he had to open the space between my toes

> > and clean it out. Very suprisingly, there was not fluid

> > and gook like we thought there would be. A culture was

> > sent off and to all of our suprise, it came back

> > positive for Klebsiella pneumoniae, which is typically a

> > bacteria found in respiratory infections!!! Everyone

> > was stumped.

> >

> > Anyway, it eventually cleared up, but not completely.

> > The pain was better, but there was still some

> > tenderness. About 5 months later, I went back to the ID

> > doc and told him that it wasn't healing. He agreed and

> > sent me to an orthopedic surgeon who specialized in

> > feet. He did more tests and found that I had a

> > neuroma.

> >

> > From what I can gather, a neuroma is a bunch of nerves

> > that have sort of gotten all jumbled together in one

> > big " ball. " They become hard and cause the pain. If

> > not treated, they can cause inflammation and severe

> > pain. So, I had to have the neuroma removed. Once it

> > was removed, I was much better. A small piece of bone

> > also had to be removed as the neuroma was sitting on the

> > bone and had caused some injury to the bone.

> >

> > Now my foot pain is coming back, in the same foot. And

> > to this day, no one knows how I ended up with K.

> > pneumoniae in my foot. It was all very bizarre. But

> > again, this was after I'd had my implants in. I never

> > even related this to my implants, not until now. But I

> > have to wonder if that was one of the first signs of

> > future health problems.......It certainly had some of

> > the best docs in Denver stumped......

> >

> > So, I want to ask you all who are having foot pain if

> > you've been checked to see if it's a neuroma. It could

> > very well be and a removal of the neuroma could

> > significantly help your pain. Unfortunately, neuromas

> > can come back, and with us, I suspect there's a high

> > probability.

> >

> > e

>

>

>

>

>

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