Guest guest Posted April 10, 1999 Report Share Posted April 10, 1999 Hi , and all, I wrote the last post before reading your response in a subsequent digested form of the list. Since I evidently was not following along with the posts from those who were asked to leave the list, or even the posts on Ampligen, I don't feel I can add anything further. I did wonder what you meant by leaving the subject alone for a couple of weeks...? Sincerely, Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2000 Report Share Posted January 15, 2000 It is out loss that is leaving the list. I look to the list as a great source of information on testing, research and treatment for CFS. I don't want to have to go look at an Ampligen list or someone's personal web site. That takes too much effort and energy for me! I want all the info possible in one place and I hope that the CFSMExperimental list can be the place. I want to know of the late breaking news. I want to know the anecdotal stuff. I want to know how each of you are doing on your respective treatments. I want to know about your wacky minor symptoms and how you deal with them. I do care about how you are doing, but my main motivation in following the list is how it relates to me. How can I cope or improve or be cured. Probably like many of you, I have a data base of almost a hundred interesting and/or helpful sites for CFS info. They are all bookmarked, do I have the energy to look at them on a regular basis? No. It is important that we keep getting the news on Ampligen on this list. has been a mainstay of my internet experience for the past three and a half years. Without the support and info that I received while participating in her DISINISSUES list and SASYFRAS list my life would be much worse off. also sent me some extremely helpful personal messages on topics related to treatment of CFS and Lyme. I understand that needs to take a breather from the internet and wish her all the best. Christie, it seems to me that you have been doing a very good job managing the list. Thick skin is probably necessary. I prefer a list that isn't overmanaged and sanitized, keep up the good work. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 In a message dated 8/14/2003 9:13:27 AM Pacific Standard Time, paco1@... writes: > Good luck in all you do, > Dawn Dawn, could you go to a no mail option.. that would allow you to still check in from time to time and give us an update on how YOU are doing. You have been a tremendous encouragement and support when we were trying to figure out what all was going on with Adrienne. I will very much miss your wisdom, experience and love you have share! I wish you all the best in what you are doing. And I will certainly look forward to hearing from you again one day! K Adrienne's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Hi Dawn, I have had to leave the list at times too. No explaination is necessary. We will be praying for you and waiting for your return, which I hope will be speedy. Take good care of yourself. All of us have benefited from your advice and information over the years, and we look forward to your return. Matt :-( (until you come back). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 I am leaving the list, mu husband passed away from complications due to the dreaded HEP C virus. I am glad that I belonged to this group you have all helped me tremendously. I always found terrific information and comforting words when I most needed them. I rarely posted to the list, I was more of a lurker. Blessings to all, keep on fighting the good fight. NoeLani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 I am leaving the list, mu husband passed away from complications due to the dreaded HEP C virus. I am glad that I belonged to this group you have all helped me tremendously. I always found terrific information and comforting words when I most needed them. I rarely posted to the list, I was more of a lurker. Blessings to all, keep on fighting the good fight. NoeLani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 NoeLani, I am really sorry and if I could would give you a great big hug. I will be praying for you and your family. leaving the list I am leaving the list, mu husband passed away from complications due to the dreaded HEP C virus. I am glad that I belonged to this group you have all helped me tremendously. I always found terrific information and comforting words when I most needed them. I rarely posted to the list, I was more of a lurker. Blessings to all, keep on fighting the good fight. NoeLani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 NoeLani, I am really sorry and if I could would give you a great big hug. I will be praying for you and your family. leaving the list I am leaving the list, mu husband passed away from complications due to the dreaded HEP C virus. I am glad that I belonged to this group you have all helped me tremendously. I always found terrific information and comforting words when I most needed them. I rarely posted to the list, I was more of a lurker. Blessings to all, keep on fighting the good fight. NoeLani Quote Link to comment Share on other sites More sharing options...
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