Guest guest Posted September 4, 2001 Report Share Posted September 4, 2001 I tore out an advertisement in the newspaper yesterday about a company in MN who makes bedding for FMS sufferers. Check out their website. They are expensive, but if it helps decrease the pain, then maybe it's worth it. Plus they have a 90 day money back guarantee. The website is www.cuddleewe.com e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2005 Report Share Posted March 23, 2005 Hi again , I was 'diagnosed' with CFS many years ago. I have had the flu for the past 20 something years..LOL I had the fatigue under wraps for a while. I had to as I was on my feet and running 70 hours a week but once I stopped so did all else. I literally can fall asleep most days on a slab of concrete..ha bad example but just saying how tired I am all the time. Ironic thing is too that my body clocks it's sleep usually at 4 hours regardless of how tired I am. I think that one is just the fact that we were never allowed to sleep as there was a day to get on with and I am just programmed. I generally have a very good disposition inspite of it all though this week I am just downright crabby lol Thankyou for that info Toni p.s. another reason I am looking for an exercise bike as my body was so used to constantly moving. Fibromyalgia is a muscular/ligaminet related to arthritis which is bones and joints. FMS has bout 18 tender points where there is usually pain present. A person who has this aches like they have the flu - every day. Accompanied by chronic fatigue. There are other symptoms and different people have different ones, but the key is the tenderpoints. When you mentioned flu - it made my think of Fibromyalgia (FMS) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 , Actually, FMS is a neuroendocrine syndrome and is not at all related to arthritis. Fibromyalgia vs. Myofascial Pain Syndrome " Fibromyalgia is a neuroendocrine disorder while myofascial pain is a neuromuscular condition. The similarities between the two conditions and a physician's lack of skill in administering the Tender Point Index test can often lead to a misdiagnosis. If we were given a choice of which condition to have, most likely we all would choose myofascial pain syndrome. It is easier to treat with massage, stretching, and exercise, or even trigger point injections. " http://www.healingwell.com/library/fibro/webber3.asp Oh, how I wish it were ONLY muscular/ligament/bones and joints..... Kit > > Fibromyalgia is a muscular/ligaminet related to arthritis which is bones and joints. > FMS has bout 18 tender points where there is usually pain present. A person who has this aches like they have the flu - every day. Accompanied by chronic fatigue. There are other symptoms and different people have different ones, but the key is the tenderpoints. > > When you mentioned flu - it made my think of Fibromyalgia (FMS) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 Kit, As I understand it, like bones and joints are to arthritis, muscles and ligaments are to FMS. It is in the same family according to my rheumatologist. I know there is a lot more to it than just muscles and ligaments. I have been living with this for about 10 years. I have read many books, articles and been involved on lists so I have an idea of what I am talking about. My doctor studied under the doctor who named it. Thanks for the link to the article - I will go there next. I am always interested in learning more. , Actually, FMS is a neuroendocrine syndrome and is not at all relatedto arthritis. Fibromyalgia vs. Myofascial Pain Syndrome"Fibromyalgia is a neuroendocrine disorder while myofascial pain is a neuromuscular condition. The similarities between the two conditions and a physician's lack of skill in administering the Tender Point Index test can often lead to a misdiagnosis. If we were given a choice of which condition to have, most likely we all would choose myofascial pain syndrome. It is easier to treat with massage, stretching, and exercise, or even trigger point injections."http://www.healingwell.com/library/fibro/webber3.aspOh, how I wish it were ONLY muscular/ligament/bones and joints.....Kit For the Lord God helps Me; therefore have I not been ashamed or confounded. Therefore have I set My face like a flint, and I know that I shall not be put to shame. Isa 50:7__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 Good Morning Everyone, I pray this day finds you all well. Cold and messy out there today but here I sit so no complaining , you said that sometimes your skin and hair hurt. How does your hair hurt? I am asking because I have frequent bouts of scalp pain. I went to the doctor a few years ago as it was literally unbearable. He went to touch my head and I grabbed his arm! LOL So he "diagnosed" it as a probable cranial nerve infection. It flares up from time to time where I also notice I tend to lose more hair at that time too. It gets so painful that I am unable to even shampoo it without being in tears and being that it is to my mid back, makes it all the worse. I am not comparing here at all, just wondering what you meant and sharing my very own version. I know I searched the world wide web in search of some answers then and found many with unexplainable scalp pain. I truly hope that you find relief from all your pain. Wishing you a beautiful and blessed day Toni Sometimes even my skin and hair hurt. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 Hi , Sorry to hear you are a fellow 'sufferer'. Hopefully, you have also discovered that many doctors and health practitioners don't know squat about this syndrome....specialists can sometimes be the worst, due to their narrow scope. Naming a disease doesn't hold much sway for me...nor the number of credentials anyone has if he doesn't indicate a working knowledge of the subject. There are so many symptoms that fall outside the realm of a rheumatologist that to narrow it to just muscles and ligaments is a huge disservice to the patient. I have learned so much more from other patients than I ever learned from any one 'authority'. I have subscribed to many lists and quickly unsubscribed when there was too much dedication to whining and how to get on disability. The best I found is FMS-RECOVERY@.... Tho, they are not very active right now....seems most of us are doing well. Might I suggest adrenal exhaustion as one area of in-depth study...it is a major factor in all FMS/CFS....and, holds the key to keeping your symptoms in check. I believe it to be the most valuable place to start. The key, of course, is diet and lifestyle. I'll check the archives for earlier adrenal posts and other links I might have. " Something is happening in the FMS central nervous system that doesn't happen to healthy people. Fibromyalgia can be a source of substantial disability (Kaplan, Schmidt and Cronan, 2000). This is especially true if you have had it for a long period of time without adequate medical support. Nearly everyone with FMS exhibits reduced coordination skills and decreased endurance abilities, although some of this may be due to co-existing chronic myofascial pain (CMP). Fibromyalgia is a complex syndrome characterized by pain amplification, musculoskeletal discomfort, and systemic symptoms. In FMS, there is a generalized disturbance of the way pain is processed by the body (, Cruwys and Kidd, 1998). I think the definition of FMS as widespread allodynia and hyperalgesia (, 1998) describes it well. Allodynia means nonpainful sensations are translated into pain sensations. Hyperalgesia means that your pain sensations are amplified. These changes in the way your central nervous system processes pain seem to be worse if there is a physically traumatic initiating event. You may be sensitive to odors, sounds, lights, and vibrations that others don't even notice. The noise emitted by fluorescent lights might drive you to distraction. Your body may at times interpret touch, light, or even sound as pain. Sleep, or the lack thereof, plays a crucial role in FMS. Sleep disturbances, a swollen feeling, and exercise intolerance are significantly related to FMS (sen, sen and Danneskiold-Samsoe, 1993). " " What Fibromyalgia Isn't. Fibromyalgia is not musculoskeletal disorder (Simms, 1998). It should have been called " Central Nervous System-myalgia " (New Research). That is where the dysfunction is. It has nothing to do with the fibers of your muscles. In FMS, muscle fibers are not causing the problem, although there may be cellular changes caused by biochemical FMS dysfunction. Fibromyalgia is a biochemical disorder, and these biochemicals affect the whole body. You can't have FMS only in your back or your hands. You either have it all over or you don't have it at all. If you have localized complaints, they are probably not caused by FMS, although FMS may be amplifying the local symptoms. Fibromyalgia is not progressive (Wolfe, , Harkness et al.1997). If your illness is getting significantly worse with time, there is some perpetuating or aggravating factor or a co-existing condition that has not been addressed. If you identify it and deal with it thoroughly and promptly, your symptoms should ease considerably. Fibromyalgia is not a diagnosis of exclusivity. You may have co-existing conditions, such as MS, arthritis, and/or myofascial pain, and still have FMS amplification. Fibromyalgia is not a catchall, wastebasket diagnosis. It is a specific, chronic non-degenerative, non-inflammatory syndrome. It is not a disease. Diseases have known causes and well-understood mechanisms for producing symptoms. A syndrome is a specific set of signs and symptoms that occur together are also classified as syndromes. Rheumatoid arthritis, lupus, and many other serious conditions are also syndromes. " " Fibromyalgia is not homogenous. The cause of muscle pain and allodynia may not be the same in all persons fulfilling the American College of Rheumatology (ACR) criteria for FMS (Henriksson, 1999). Fibromyalgia seems to include patients with different pain processing mechanisms (Sorensen, Bengtsson, Ahlner, et al.1997). There are many subsets of FMS. One study has separated some subsets into meaningful categories (Eisinger, Starlanyl, Blatman, 2000), and this separation may help decide which treatment regimens are more likely to help specific patients. " " In FMS, we believe that there is often an initiating event that activates biochemical changes, causing a cascade of symptoms. For example, unremitting grief of six months or longer can trigger FMS. In many ways, FMS is sort of like a Survivor's Syndrome. Cumulative trauma, protracted labor in pregnancy, open-heart surgery, and even inguinal hernia repair have all been initiating events for FMS. The start of each case of FMS probably has multiple causes ( and sen,1994. Not all cases of FMS cases have a known triggering event that initiates the first obvious flare. During a flare, current symptoms become more intense, and new symptoms frequently develop. Fibromyalgia seems to be the result of many neurotransmitter cascades (Fibromyalgia Advocate, Chapter 2). A neurotransmitter cascade is like a waterfall that starts at the top and bounces off rocks and ridges on the way down, wearing down rock, moving gravel, and changing the river as it goes. The neurotransmitter cascade can cause changes throughout your body, and many of these changes start cascades of their own. Once they get going, a combination of peripheral and central factors join in to make the changes chronic, and the result is what we call fibromyalgia. Every patient may have different " informational substances " disrupted in different ways " . " http://www.sover.net/%7Edevstar/fmsdef.htm All the best, Kit > Kit, As I understand it, like bones and joints are to arthritis, muscles and ligaments are to FMS. It is in the same family according to my rheumatologist. I know there is a lot more to it than just muscles and ligaments. I have been living with this for about 10 years. I have read many books, articles and been involved on lists so I have an idea of what I am talking about. > > My doctor studied under the doctor who named it. > > Thanks for the link to the article - I will go there next. I am always interested in learning more. > > , Quote Link to comment Share on other sites More sharing options...
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