Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 It's a shame that some doc's are still so close minded about Hep C. Sounds like you are on the right track about putting together reports. Don't give up! Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 It's a shame that some doc's are still so close minded about Hep C. Sounds like you are on the right track about putting together reports. Don't give up! Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 It's a shame that some doc's are still so close minded about Hep C. Sounds like you are on the right track about putting together reports. Don't give up! Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 It's a shame that some doc's are still so close minded about Hep C. Sounds like you are on the right track about putting together reports. Don't give up! Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Gofriend, maybe a new doc is in order. I know, easier said than done. But I sure wouldn't want to do treatment if I didn't have to or need to. Course, I say that and liver-wise, I didn't have to, but I did do treatment, however, I also knew my genotype (1b). So does your doc think no liver damage and normal alt's with a pos pcr should do tx too? / Alley alleypat@... oshidori@... http://www.alleypat.com My ICQ#:12631861 I can't think of a worse way to start a day than by waking up Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Gofriend, maybe a new doc is in order. I know, easier said than done. But I sure wouldn't want to do treatment if I didn't have to or need to. Course, I say that and liver-wise, I didn't have to, but I did do treatment, however, I also knew my genotype (1b). So does your doc think no liver damage and normal alt's with a pos pcr should do tx too? / Alley alleypat@... oshidori@... http://www.alleypat.com My ICQ#:12631861 I can't think of a worse way to start a day than by waking up Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Gofriend, maybe a new doc is in order. I know, easier said than done. But I sure wouldn't want to do treatment if I didn't have to or need to. Course, I say that and liver-wise, I didn't have to, but I did do treatment, however, I also knew my genotype (1b). So does your doc think no liver damage and normal alt's with a pos pcr should do tx too? / Alley alleypat@... oshidori@... http://www.alleypat.com My ICQ#:12631861 I can't think of a worse way to start a day than by waking up Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Gofriend, maybe a new doc is in order. I know, easier said than done. But I sure wouldn't want to do treatment if I didn't have to or need to. Course, I say that and liver-wise, I didn't have to, but I did do treatment, however, I also knew my genotype (1b). So does your doc think no liver damage and normal alt's with a pos pcr should do tx too? / Alley alleypat@... oshidori@... http://www.alleypat.com My ICQ#:12631861 I can't think of a worse way to start a day than by waking up Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Dear Go Friend, Your problem is that the genotype test is very expensive. They don't want to pay for it, plain and simple. Try looking for info at the CDC and the NIH web sites. What you are looking for is government recommended disease management guidelines. Check this out too: http://www.niddk.nih.gov/health/digest/pubs/chrnhepc/chrnhepc.htm This is from a division of NIH. Good luck, this may be a loosing battle, but I hope not! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Dear Go Friend, Your problem is that the genotype test is very expensive. They don't want to pay for it, plain and simple. Try looking for info at the CDC and the NIH web sites. What you are looking for is government recommended disease management guidelines. Check this out too: http://www.niddk.nih.gov/health/digest/pubs/chrnhepc/chrnhepc.htm This is from a division of NIH. Good luck, this may be a loosing battle, but I hope not! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2001 Report Share Posted March 11, 2001 Hi, I had the same kind of specialist at first, so I changed him fast for one who does the standard tests. Good luck with the battle ahead! love Sylv Genotyping and Peg > Thanks Arkhepcgal and Claudine for the information on > Peg and genotypes, it was just what I was looking > for. I saved it this time. > > The difficulty I am having is that the specialist I > have been refered to doesn't do genotyping. You > either have HCV or you don't, and if you do, you > should take the combo. Very unopen to discussing any > details. Average visit about 5 minutes, and he starts > looking at the door if you ask any questions. If it > wasn't for the internet, I wouldn't know anything > about HCV. Anyway, he said no genotyping, bah bye, > basically. > > I tried talking to his nurse, explaining how I > could understand his position , but could she > understand mine, if genotype one, a year's worth > of adverse side effects for a 20% chance of SVR, I > already have fatigue from the HCV, but need to > continue to work to support my family, so I would > rather wait, but with a 60% chance with peg alone for > genotype 2/3, and no ribavarin side effects, I'm > ready to roll the dice. She just said, he won't do it, > but I could ask the primary. > > As I have no health insurance, but make too much for > government health aid, I go to a clinic paid for by > volunteer labor and donations, so I don't really have > a specific primary. I called the clinic and asked and > they just basically said no genotyping, so I am > putting together a report showing that genotyping is a > procedure recommended by authorities in the field and > why it impacts my decision to try the Peg. > > If genotype 2/3 I will try it, if 1 I might still > wait a while. > > Anyway, thanks for the help. > > Gofriend > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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