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HELLO, YES I WAS ON HUMIRA FOR ABOUT 3 MONTHS AND IT MADE ME REALLY SICK

TWICE!! AND THE LAST TIME I SAID NO MORE!! AND ENBREL IS JUST THE SAME AS

HUMIRA. NEXT STEP IS INFUSIONS.

LOVE,

KIM

Joy <jhoorm01@...> wrote:

Have any of you that have been on enbrel and then Humira noticed

feeling actually worse on the Humira? Also anyone have problems with

their eyes focusing properly?

Joy

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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Joy, please call your rheumatologist. How long have you been on Humira? How

long have you been having this trouble with your eyes?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Humira

> Have any of you that have been on enbrel and then Humira noticed

> feeling actually worse on the Humira? Also anyone have problems with

> their eyes focusing properly?

>

>

> Joy

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I notice it when I am at work and working on the PC and looking for books. I

work

in the library. At first I was thinking maybe it was time for bifocals since I

will be

43 in Jan but I don't know it is more of the muscles in my eyes or

something... now I have

been off all weekend and no problems.

Joy

<Matsumura_Clan@...> wrote:

Joy, please call your rheumatologist. How long have you been on

Humira? How

long have you been having this trouble with your eyes?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Humira

> Have any of you that have been on enbrel and then Humira noticed

> feeling actually worse on the Humira? Also anyone have problems with

> their eyes focusing properly?

>

>

> Joy

Joy

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Visit Joy's Homepage and Reading Room!

http://jhoormann-ivil.tripod.com

Come see My Dog Salsa!

http://www.geocities.com/jhoorm01/Salsa.html

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How did it make you sick? What were your symptoms?

I am about to give up on all these dumb meds.

The only thing that seems to really help is the prednisone and

that blows me up like a balloon.

KIM SNYDER <foxybratgirlkm@...> wrote:

HELLO, YES I WAS ON HUMIRA FOR ABOUT 3 MONTHS AND IT MADE ME REALLY

SICK TWICE!! AND THE LAST TIME I SAID NO MORE!! AND ENBREL IS JUST THE SAME AS

HUMIRA. NEXT STEP IS INFUSIONS.

LOVE,

KIM

Joy <jhoorm01@...> wrote:

Have any of you that have been on enbrel and then Humira noticed

feeling actually worse on the Humira? Also anyone have problems with

their eyes focusing properly?

Joy

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Visit Joy's Homepage and Reading Room!

http://jhoormann-ivil.tripod.com

Come see My Dog Salsa!

http://www.geocities.com/jhoorm01/Salsa.html

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Joy,

If you noticed a change in vision after beginning Humira, you should contact

your rheumatologist about it.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Humira

>I notice it when I am at work and working on the PC and looking for books.

>I work

> in the library. At first I was thinking maybe it was time for bifocals

> since I will be

> 43 in Jan but I don't know it is more of the muscles in my eyes or

> something... now I have

> been off all weekend and no problems.

> Joy

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  • 4 months later...
Guest guest

I take Humira, and was warned to expect Blue Cross to want me to try Enbrel

first. But, surprise, no problem, they approved the Humira right away. I,

too, pay a percentage, so it's really expensive. (any self-injectables

except insulin fall outside the normal copay program) But worth every

penny! I take it once a week, pay $770 a month. They do have a program for

folks who can't afford to pay that much.

On 3/29/07, Vicki <vbucy@...> wrote:

>

> Hi everyone ... I'm the boob that posted a question about " humulin "

> instead of humira. Chalk one up for a big brain cramp. Does anyone here

> take humira and if so, have they had any problems with thier insurance

> paying for it. I'm also curious about what people are paying ... I

> don't have a set copay, it's a percentage.

>

> Thanks so much for your input.

>

>

>

>

--

Shoreview, MN, until April! brrrr!

South Pasadena, CA

You can see my galleries at http://www.pbase.com/arenared986

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Guest guest

No problems with my insurance, Blue Cross and I paid

15 for a month supply.

Joy

Vicki <vbucy@...> wrote:

Hi everyone ... I'm the boob that posted a question about " humulin "

instead of humira. Chalk one up for a big brain cramp. Does anyone here

take humira and if so, have they had any problems with thier insurance

paying for it. I'm also curious about what people are paying ... I

don't have a set copay, it's a percentage.

Thanks so much for your input.

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Guest guest

Hi Joy, thanks for the input. I have BCBS, but it's private as my

husband and I are self-employed. HOpefully, I'll be as lucky!

Did you find it helped you?

Thanks Vicki

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Guest guest

Hi Pat, thanks for the input. $770/month is very expensive. I don't

know that I can swing that! We'll just have to see.

I appreciate your time. Thanks again, Vicki

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Guest guest

Yes it did but I had to go off of it because of chronic sinus infections.

You can't take it if you have an infection for awhile.

joy

Vicki <vbucy@...> wrote:

Hi Joy, thanks for the input. I have BCBS, but it's private as my

husband and I are self-employed. HOpefully, I'll be as lucky!

Did you find it helped you?

Thanks Vicki

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Guest guest

Yes they do, visit their web page.

1-866-4-HUMIRA

Overell <patricia.overell@...> wrote:

I take Humira, and was warned to expect Blue Cross to want me to try

Enbrel

first. But, surprise, no problem, they approved the Humira right away. I,

too, pay a percentage, so it's really expensive. (any self-injectables

except insulin fall outside the normal copay program) But worth every

penny! I take it once a week, pay $770 a month. They do have a program for

folks who can't afford to pay that much.

On 3/29/07, Vicki <vbucy@...> wrote:

>

> Hi everyone ... I'm the boob that posted a question about " humulin "

> instead of humira. Chalk one up for a big brain cramp. Does anyone here

> take humira and if so, have they had any problems with thier insurance

> paying for it. I'm also curious about what people are paying ... I

> don't have a set copay, it's a percentage.

>

> Thanks so much for your input.

>

>

>

>

--

Shoreview, MN, until April! brrrr!

South Pasadena, CA

You can see my galleries at http://www.pbase.com/arenared986

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  • 7 months later...

Hi Marie,

I also went on Humira a month ago because of high liver enzymes. Mine

was caused by Arava.

It is going good so far for me as well. May be too soon to tell if

it's going to cause a bunch of infections and colds but it's working

for me already.

Hope it works for you as well!

Lori

--- In , " Marie Homan " <marieannett2269@...>

wrote:

>

> hello to all :)

> I was the one to write I am scared...well I am not so scared anymore.

> I tried the prednisone & it did not work for me, it made me feel like

> I was going to rip my hair out of my head & I couldn't stop itching

> all over. My Doc took me off right away. I was also going to take MTX

> but my liver enzymes were too high so instead he put me on Humira. I

> just took my first shot yesterday & so far so good :)

> I just want to say thank you again for being here for me & all the

> others. God bless you all.

> gentle hugs,

> Marie

>

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hello,

i have been on humira for a few months now and it does cuase alot of infections.

ive had kidney and lung infections. but it does work for my rhuematoid

arthritis. be careful with this med.

[ ] Re: Humira

Hi Marie,

I also went on Humira a month ago because of high liver enzymes. Mine

was caused by Arava.

It is going good so far for me as well. May be too soon to tell if

it's going to cause a bunch of infections and colds but it's working

for me already.

Hope it works for you as well!

Lori

--- In @gro ups.com, " Marie Homan " <marieannett2269@ ...>

wrote:

>

> hello to all :)

> I was the one to write I am scared...well I am not so scared anymore.

> I tried the prednisone & it did not work for me, it made me feel like

> I was going to rip my hair out of my head & I couldn't stop itching

> all over. My Doc took me off right away. I was also going to take MTX

> but my liver enzymes were too high so instead he put me on Humira. I

> just took my first shot yesterday & so far so good :)

> I just want to say thank you again for being here for me & all the

> others. God bless you all.

> gentle hugs,

> Marie

>

________________________________________________________________________________\

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  • 4 weeks later...

Welcome to the group Rammie,

I don't take Humera but I do take Enbrel inj once a week. I have fround if

I inj into my stomach and push the medicine over 30 sec or so keeps the pain

to a minimum.Hope it works for you.

Heidi M

On 12/29/07, copycat64 <copycat64@...> wrote:

>

> Hi, I am Tammie and new to the group.

>

> I am on Methetrexate and have been for yrs. Well since moving down

> south to MS the RA has gotten so much worse and the meds just are not

> working, so my wonderful doc, I say that cause he is great and i just

> love him, put me on Humira. The first injection did not go well since

> I had never done that before and the fact that it stung like heck when

> it went in, not warned about that. But anyway was wondering if anyone

> has used it and how long it takes before you see any difference. I am

> hoping this works since I am so tired of not being able to do simple

> things at this point. Any info would be great.

>

>

>

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Hi, Tammie, and welcome.

I've been taking Humira for about a year and a half, and it has helped

immensely. I took my first dose into my internist's office, and her

nurse taught me how to inject myself. (She also had me take the used

syringe and practice on an orange until I felt comfortable with doing

injections)

First, I take the Humira out of the fridge and let it warm up, 20-30

minutes. I always inject in the stomach area, because I have lots of

fat there, and fat doesn't have nerves! :) I lay the needle on it's

side against the skin, then in one quick motion, I rotate it upright

and it goes in very quickly and easily. I push the plunger verrrry

slowly, and stop if it starts to sting. I wait for the stinging to

stop, or at least go down a bit, before I start again. It can take a

while, but it doesn't hurt much at all this way. When I am done, I

hold a cotton ball against the injection spot, keeping pressure on

until any stinging stops, sometimes up to half an hour. I also take

the Humira right before bedtime, the few times I took it in the

morning moving around seemed to make it worse.

Good luck, I hope the Humira helps you as much as it did me.

On Dec 29, 2007 5:46 AM, copycat64 <copycat64@...> wrote:

>

> Hi, I am Tammie and new to the group.

>

> I am on Methetrexate and have been for yrs. Well since moving down

> south to MS the RA has gotten so much worse and the meds just are not

> working, so my wonderful doc, I say that cause he is great and i just

> love him, put me on Humira. The first injection did not go well since

> I had never done that before and the fact that it stung like heck when

> it went in, not warned about that. But anyway was wondering if anyone

> has used it and how long it takes before you see any difference. I am

> hoping this works since I am so tired of not being able to do simple

> things at this point. Any info would be great.

>

--

South Pasadena, CA / Lilydale, MN

You can see my galleries at http://www.pbase.com/arenared986

M. Schulz - " All you need is love. But a little chocolate now

and then doesn't hurt. "

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Hello Tammie!

Humira worked pretty quickly for me. I started feeling better in about two

weeks, but just a little bit. Still, I progressed and have come to feel a whole

lot better than before I was on it. It has given me a lot of my life back. I'm

not 100%, but I'm nowhere near as bad as I was. I use the Humira pen, which is

predosed. I don't see the needle at all! But, it does help to let the medicine

come up to room temperature before you inject as it burns like acid if you

don't. I hope this works for you and that you start feeling better soon.

Humira also has a patient assistance program, which will reimburse you for your

copays up to around $2100 for a year. I got the information for this from my

doctor.

HTH,

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

[ ] Humira

Hi, I am Tammie and new to the group.

I am on Methetrexate and have been for yrs. Well since moving down

south to MS the RA has gotten so much worse and the meds just are not

working, so my wonderful doc, I say that cause he is great and i just

love him, put me on Humira. The first injection did not go well since

I had never done that before and the fact that it stung like heck when

it went in, not warned about that. But anyway was wondering if anyone

has used it and how long it takes before you see any difference. I am

hoping this works since I am so tired of not being able to do simple

things at this point. Any info would be great.

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Hi Tammie and welcome. I'm another Enbrel girl and I second the suggestion to

let it warm up a bit. I also ice the site which helps a lot. For site

reactions keep some benadryl or Tagamet on hand. I make my husband or a

coworker do my shot b/c I'm a wuss, although I agree with Heidi that the stomach

is the least painful (by far!) site. As I'm getting the shot I focus on the

fact that it's 15 seconds of pain in exchange for a pretty good week. I hope

the Humira works great for you, best, Kate F

Re: [ ] Humira

Welcome to the group Rammie,

I don't take Humera but I do take Enbrel inj once a week. I have fround if

I inj into my stomach and push the medicine over 30 sec or so keeps the pain

to a minimum.Hope it works for you.

Heidi M

On 12/29/07, copycat64 <copycat64 (DOT) com> wrote:

>

> Hi, I am Tammie and new to the group.

>

> I am on Methetrexate and have been for yrs. Well since moving down

> south to MS the RA has gotten so much worse and the meds just are not

> working, so my wonderful doc, I say that cause he is great and i just

> love him, put me on Humira. The first injection did not go well since

> I had never done that before and the fact that it stung like heck when

> it went in, not warned about that. But anyway was wondering if anyone

> has used it and how long it takes before you see any difference. I am

> hoping this works since I am so tired of not being able to do simple

> things at this point. Any info would be great.

>

>

>

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Thanks to all, I have been on it 1 week and have not felt any

different. Mine is also one of the epi pen types. I did take it out

of the fridge, maybe not long enough, I did it in my leg also, will

have to try the stomach as one said, its fatty there, lol. Luckily

our insurance pays for all but 9 dollars and my doc gave me the

assistance card. I think that is great especially for people who

really need it.

>

> Hello Tammie!

> Humira worked pretty quickly for me. I started feeling better in

about two weeks, but just a little bit. Still, I progressed and have

come to feel a whole lot better than before I was on it. It has

given me a lot of my life back. I'm not 100%, but I'm nowhere near

as bad as I was. I use the Humira pen, which is predosed. I don't

see the needle at all! But, it does help to let the medicine come up

to room temperature before you inject as it burns like acid if you

don't. I hope this works for you and that you start feeling better

soon. Humira also has a patient assistance program, which will

reimburse you for your copays up to around $2100 for a year. I got

the information for this from my doctor.

> HTH,

> Lori

> http://home.comcast.net/~queenstitcher/

> http://stitchingqueen.multiply.com

>

>

>

> [ ] Humira

>

>

> Hi, I am Tammie and new to the group.

>

> I am on Methetrexate and have been for yrs. Well since moving

down

> south to MS the RA has gotten so much worse and the meds just are

not

> working, so my wonderful doc, I say that cause he is great and i

just

> love him, put me on Humira. The first injection did not go well

since

> I had never done that before and the fact that it stung like heck

when

> it went in, not warned about that. But anyway was wondering if

anyone

> has used it and how long it takes before you see any difference.

I am

> hoping this works since I am so tired of not being able to do

simple

> things at this point. Any info would be great.

>

>

>

>

>

>

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I do mine in the stomach as well, it is not as painful as when I have tried in

my legs. I do not use the epi pen. I'm on the prefilled sringes. Its much

easier for me to use considering I am a very visual person who lives with

someone who has no sight at all.

--------- Re: [ ] Humira

Welcome to the group Rammie,

I don't take Humera but I do take Enbrel inj once a week. I have fround if

I inj into my stomach and push the medicine over 30 sec or so keeps the pain

to a minimum.Hope it works for you.

Heidi M

On 12/29/07, copycat64 <copycat64 (DOT) com> wrote:

>

> Hi, I am Tammie and new to the group.

>

> I am on Methetrexate and have been for yrs. Well since moving down

> south to MS the RA has gotten so much worse and the meds just are not

> working, so my wonderful doc, I say that cause he is great and i just

> love him, put me on Humira. The first injection did not go well since

> I had never done that before and the fact that it stung like heck when

> it went in, not warned about that. But anyway was wondering if anyone

> has used it and how long it takes before you see any difference. I am

> hoping this works since I am so tired of not being able to do simple

> things at this point. Any info would be great.

>

>

>

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I forgot to say that I am on enbrel not humira

--------- Re: [ ] Humira

Welcome to the group Rammie,

I don't take Humera but I do take Enbrel inj once a week. I have fround if

I inj into my stomach and push the medicine over 30 sec or so keeps the pain

to a minimum.Hope it works for you.

Heidi M

On 12/29/07, copycat64 <copycat64 (DOT) com> wrote:

>

> Hi, I am Tammie and new to the group.

>

> I am on Methetrexate and have been for yrs. Well since moving down

> south to MS the RA has gotten so much worse and the meds just are not

> working, so my wonderful doc, I say that cause he is great and i just

> love him, put me on Humira. The first injection did not go well since

> I had never done that before and the fact that it stung like heck when

> it went in, not warned about that. But anyway was wondering if anyone

> has used it and how long it takes before you see any difference. I am

> hoping this works since I am so tired of not being able to do simple

> things at this point. Any info would be great.

>

>

>

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  • 6 months later...
Guest guest

No bad side efffects...sometimes the injections sting a bit, but that does not

last long.

Cheryle

--

" The path before all of us sometimes is strewn with shards of glass and this

world does not always provide strong, protective shoes. So as the poem

" Footprints " says, God will carry me, when I cannot carry myself. He loves me

enough to do that for me...I surrender this struggle and am crawling up into His

arms. " ~ cjb, 1/14/2008

-------------- Original message --------------

From: " sunshine01098 " <tammy9692@...>

For those on Humira......did you have any bad side effects? I'm

supposed to be starting it. Tammy

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Guest guest

No bad side effects but I've only had two shots. It did sting once but I'd

forgotten to pinch up my skin - I'm not sure that's why it stung, though.

ez

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  • 1 month later...

I some of mine expired and I threw it away. The rest I just threw in the

trash. It was a waste. I did contact my rheummy and he stated due to safety

concerns I could bring it to them and they would destroy it. They claim once

prescibed and its left the pharmacy that they can not gaurentee its safety as

well as how it was handled so they throw it in the trash.

Toni

______________________________________________________________________

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deal here.

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i gave it to my doctor,i have been on enbrel for 10 years now.not working

like it use too,wears off faster.i take on thurs.by tues.feeling pain all

over.never had

any side effects,good luck

hope everyone is feeling good

 

ann

 

 

 

 

From: susybee3 <susybee3@...>

Subject: [ ] Humira

Date: Tuesday, August 19, 2008, 9:49 PM

I've read many posts about people starting Humira and it not working.

That was my situation. The drug is so expensive I can not just shoot

it away. I'm curious what everyone else did with their very expensive

medicine that they did not use.

Currently on Enbrel and it has made a world of difference.

Thanks Susy

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