Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Hello, I've never posted on this group before.. I'm hoping you will be able to give me some info... I was on the Interferon/ribrivran treatment from 1998 to 2000.. went neg. then back to positive. My viral load is almost a million, however my alts are down to 65 My new dr. recommends my going back on 18 months of treatment, this time on the peg, w/ ribrivran. at least the injection is only once a week. I'm wondering if any of you have been or are on this treatment, and if the sides are as bad as the first treatment I was on Don't know if I can indure constant headaches, neck aches, nausua, and all the other wonderful sides I had.. also I have fibromyalgia.. so I'm in pain all the time anyway Thanks for any help you can give me Blessings Roseanne (Calif) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Roseanne, first I would ask, how is your liver? Cuz, in my opinion, for me, I will not do treatment again. I am a genotype 1b and I cleared while on treatment, but relapsed after and treatment left me with a lot of problems (fibromyalgia, chronic fatigue, hives, etc). My liver is mild fibrosis, so until something better comes along, or my liver gets worse, I'm not gonna mess with my health. Treatment can be worse for your health than the hep, in my opinion. You have to weigh your options. How bad is your liver? What is your genotype? Can you risk the sides both temp and permanent? etc. Good luck Let us know what you decide. We'll support you all the way, either way. Alley Grand Prairie, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Roseanne, first I would ask, how is your liver? Cuz, in my opinion, for me, I will not do treatment again. I am a genotype 1b and I cleared while on treatment, but relapsed after and treatment left me with a lot of problems (fibromyalgia, chronic fatigue, hives, etc). My liver is mild fibrosis, so until something better comes along, or my liver gets worse, I'm not gonna mess with my health. Treatment can be worse for your health than the hep, in my opinion. You have to weigh your options. How bad is your liver? What is your genotype? Can you risk the sides both temp and permanent? etc. Good luck Let us know what you decide. We'll support you all the way, either way. Alley Grand Prairie, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Roseanne, first I would ask, how is your liver? Cuz, in my opinion, for me, I will not do treatment again. I am a genotype 1b and I cleared while on treatment, but relapsed after and treatment left me with a lot of problems (fibromyalgia, chronic fatigue, hives, etc). My liver is mild fibrosis, so until something better comes along, or my liver gets worse, I'm not gonna mess with my health. Treatment can be worse for your health than the hep, in my opinion. You have to weigh your options. How bad is your liver? What is your genotype? Can you risk the sides both temp and permanent? etc. Good luck Let us know what you decide. We'll support you all the way, either way. Alley Grand Prairie, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Roseanne, first I would ask, how is your liver? Cuz, in my opinion, for me, I will not do treatment again. I am a genotype 1b and I cleared while on treatment, but relapsed after and treatment left me with a lot of problems (fibromyalgia, chronic fatigue, hives, etc). My liver is mild fibrosis, so until something better comes along, or my liver gets worse, I'm not gonna mess with my health. Treatment can be worse for your health than the hep, in my opinion. You have to weigh your options. How bad is your liver? What is your genotype? Can you risk the sides both temp and permanent? etc. Good luck Let us know what you decide. We'll support you all the way, either way. Alley Grand Prairie, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2003 Report Share Posted November 15, 2003 HI.Welcome Roseanne you hve made the right decision to join this group.You can get all the info and support here.Willem from the neteherlands ? re sides of Peg Hello, I've never posted on this group before.. I'm hoping you will be able to give me some info... I was on the Interferon/ribrivran treatment from 1998 to 2000.. went neg. then back to positive. My viral load is almost a million, however my alts are down to 65 My new dr. recommends my going back on 18 months of treatment, this time on the peg, w/ ribrivran. at least the injection is only once a week. I'm wondering if any of you have been or are on this treatment, and if the sides are as bad as the first treatment I was on Don't know if I can indure constant headaches, neck aches, nausua, and all the other wonderful sides I had.. also I have fibromyalgia.. so I'm in pain all the time anyway Thanks for any help you can give me Blessings Roseanne (Calif) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2003 Report Share Posted November 15, 2003 HI.Welcome Roseanne you hve made the right decision to join this group.You can get all the info and support here.Willem from the neteherlands ? re sides of Peg Hello, I've never posted on this group before.. I'm hoping you will be able to give me some info... I was on the Interferon/ribrivran treatment from 1998 to 2000.. went neg. then back to positive. My viral load is almost a million, however my alts are down to 65 My new dr. recommends my going back on 18 months of treatment, this time on the peg, w/ ribrivran. at least the injection is only once a week. I'm wondering if any of you have been or are on this treatment, and if the sides are as bad as the first treatment I was on Don't know if I can indure constant headaches, neck aches, nausua, and all the other wonderful sides I had.. also I have fibromyalgia.. so I'm in pain all the time anyway Thanks for any help you can give me Blessings Roseanne (Calif) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2003 Report Share Posted November 15, 2003 HI.Welcome Roseanne you hve made the right decision to join this group.You can get all the info and support here.Willem from the neteherlands ? re sides of Peg Hello, I've never posted on this group before.. I'm hoping you will be able to give me some info... I was on the Interferon/ribrivran treatment from 1998 to 2000.. went neg. then back to positive. My viral load is almost a million, however my alts are down to 65 My new dr. recommends my going back on 18 months of treatment, this time on the peg, w/ ribrivran. at least the injection is only once a week. I'm wondering if any of you have been or are on this treatment, and if the sides are as bad as the first treatment I was on Don't know if I can indure constant headaches, neck aches, nausua, and all the other wonderful sides I had.. also I have fibromyalgia.. so I'm in pain all the time anyway Thanks for any help you can give me Blessings Roseanne (Calif) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2003 Report Share Posted November 15, 2003 HI.Welcome Roseanne you hve made the right decision to join this group.You can get all the info and support here.Willem from the neteherlands ? re sides of Peg Hello, I've never posted on this group before.. I'm hoping you will be able to give me some info... I was on the Interferon/ribrivran treatment from 1998 to 2000.. went neg. then back to positive. My viral load is almost a million, however my alts are down to 65 My new dr. recommends my going back on 18 months of treatment, this time on the peg, w/ ribrivran. at least the injection is only once a week. I'm wondering if any of you have been or are on this treatment, and if the sides are as bad as the first treatment I was on Don't know if I can indure constant headaches, neck aches, nausua, and all the other wonderful sides I had.. also I have fibromyalgia.. so I'm in pain all the time anyway Thanks for any help you can give me Blessings Roseanne (Calif) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2003 Report Share Posted November 15, 2003 HI Roseanne, I did the peg-interferon with ribaviran for a year. It was tough with the sides, but that year is gone and behind me now. I think the Pegaysus has the least effects. I would check into that. My best wishes to you, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2003 Report Share Posted November 15, 2003 HI Roseanne, I did the peg-interferon with ribaviran for a year. It was tough with the sides, but that year is gone and behind me now. I think the Pegaysus has the least effects. I would check into that. My best wishes to you, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2003 Report Share Posted November 15, 2003 HI Roseanne, I did the peg-interferon with ribaviran for a year. It was tough with the sides, but that year is gone and behind me now. I think the Pegaysus has the least effects. I would check into that. My best wishes to you, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2003 Report Share Posted November 15, 2003 HI Roseanne, I did the peg-interferon with ribaviran for a year. It was tough with the sides, but that year is gone and behind me now. I think the Pegaysus has the least effects. I would check into that. My best wishes to you, Donna Quote Link to comment Share on other sites More sharing options...
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