Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 I want to say something to everyone on this group that I think is really important and that is that we should all support eachother, and that means trying to respond to eachothers posts, it seems like we post and no one replies back and it kind of makes you feel bad and like no one cares. I try to give updates to let people know what is going on in my life and not one person responds, this kind of makes me feel like maybe no one reads them and no one cares. Maybe I am sensitive but I think it is realy important that a support group should be supportive. That means when someone posts an update or something good, or bad, we should try to take the time even to just say HI, that is great, or oh sorry, or whatever. I belong to another support group that is very very busy with people offering support and advise or simply saying hi to other members. I think that is what makes it such a special place. Maybe I am wrong and I certainly don't want to start any arguments, I think this is a great group of women here, but lets try to be more talkative, get things rolling, and just talk about things, I know personally I need to communicate with others who are going through what I am and not just answering medical questions but talking like friends who have been there, done that type stuff. If anyone agrees with me then lets get rolling on it, I think allot of women on this board have there reasons I am sure for not talking much or telling there stories, but I can assure you it makes for a much stronger bond and it makes life easier to know what others are going through. The scientific stuff is great but lets get personal, lets get to know eachother, lets talk about our lives a little, ok, just a suggestion. I thought about even starting my own group that maybe would be more support oriented, but I am just so busy I don't have the time right now, and since this one is already established I thought it would be allot easier just to post this and see if anyone else is in need of a little more personal posts and updates on how we are doing and whats going on. I would love to get to know everyone here better so come on ladies, lets talk! Love Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 HI , I agree, I would like to see more discussion here. I want to be able to offer suggestions for healing, but I don't want it to be totally focused on just that aspect, and I had hoped that there would be more synergy with the group since we are all experiencing this devastation to our health together. I would like to see more of this kind of interaction that you describe, and I had hoped that this would pretty much take off on its own. Some of the members are web only viewers, and maybe they don't check it that often. I know that I don't always get back to my e-mail as quickly as I would like either. It seems rather funny to me also, that for as long as I have been involved in the breast implant issue, I have seen women come and go, and some disappear altogether. I have yet to meet a woman who has healed completely and entirely from their implant experience, but it almost seems as if they want to move on and put all of this behind them. They just drop out of sight. I think alot of it has to do with personality types. One that I particularly was upset about is a woman that went through her explant only a few weeks before me. She was diagnosed with scleroderma, although it was not a full blown case. She had a nightmarish explant experience and we were in touch often at first, then sporadically throughout the first year or so. She was interviewed by the magazine First for Women, and her story appear in a fall issue of that magazine in 1998, I believe. We stayed in touch throughout the completion of her college degree, and the last letter I got from her she claimed that she was feeling great. I have written to her several times since then, but the silence has been very baffling! There are dozens of women who I have lost touch with. I know support groups have been formed and then fade into dust. It seems that nobody has the tenacity or energy to keep up with it. Maybe the founders get better, move on, and nobody else wants to take the reins. So, let's not let that happen to us! If I get to the point where I want someone else to take the reins, I will be looking for volunteers to pass the baton to. Until then, , I am thankful for your encouragement, and all your contributions. As for my own update, I am doing great, except for the foot pain that I just posted about. I feel great most of the time, have energy, am free of brain fog except when I eat the wrong foods, and I sleep soundly. I plan on starting some strength training at home, as well as more yoga. I also just bought a book called " The 7-Day Detox Miracle " and I will be reading that and getting into it. I can't wait to get into it. I want to do a juice program like the Gerson therapy, and my husband wants to do it with me. Detoxing, unfortunately, is getting to be a way of life around here, but we seem to be able to fit it into our schedules fairly easily. My husband has benefited so much from the detoxing that we have done! He had so much back pain 2 years ago that he could hardly walk right. Customers and employees (we own two businesses) were always making comments ( " Are you alright??? " ), and he was seeing a chiropracter for adjustments all the time. He was really bummed about it and it went on for months and months. He eventually had a colonoscopy, because he thought it had something to do with his digestion, and not his back. (The colonscopy was fine.) I had him do a kidney cleanse, and that helped, so he did another one, and changed his eating habits ALOT. He found that Pepsi, coffee, tea and heavy meals with meats made his back pain rear up. He started doing daily enemas and coffee enemas, juicing, eating lots of salads, taking supplements, and over time, all of his health problems have resolved! He is a new man, and he is ecstatic about it. I am so thankful....and we did it all without the help of a doctor. (who no doubt would have not addressed the problem from a dietary aspect.) Well, that's my update. I hope to hear from some of you. Lori Gilmour, what are you up to? Jackie up in Canada, how are you? You've been so quiet since your explant! God bless all, Love, Patty ----- Original Message ----- From: <cjheer@...> < > Sent: Wednesday, August 29, 2001 7:40 AM Subject: Support > I want to say something to everyone on this group that I think is > really important and that is that we should all support eachother, > and that means trying to respond to eachothers posts, it seems like > we post and no one replies back and it kind of makes you feel bad and > like no one cares. I try to give updates to let people know what is > going on in my life and not one person responds, this kind of makes > me feel like maybe no one reads them and no one cares. Maybe I am > sensitive but I think it is realy important that a support group > should be supportive. That means when someone posts an update or > something good, or bad, we should try to take the time even to just > say HI, that is great, or oh sorry, or whatever. I belong to another > support group that is very very busy with people offering support and > advise or simply saying hi to other members. I think that is what > makes it such a special place. Maybe I am wrong and I certainly don't > want to start any arguments, I think this is a great group of women > here, but lets try to be more talkative, get things rolling, and just > talk about things, I know personally I need to communicate with > others who are going through what I am and not just answering medical > questions but talking like friends who have been there, done that > type stuff. If anyone agrees with me then lets get rolling on it, I > think allot of women on this board have there reasons I am sure for > not talking much or telling there stories, but I can assure you it > makes for a much stronger bond and it makes life easier to know what > others are going through. The scientific stuff is great but lets get > personal, lets get to know eachother, lets talk about our lives a > little, ok, just a suggestion. I thought about even starting my own > group that maybe would be more support oriented, but I am just so > busy I don't have the time right now, and since this one is already > established I thought it would be allot easier just to post this and > see if anyone else is in need of a little more personal posts and > updates on how we are doing and whats going on. > > I would love to get to know everyone here better so come on ladies, > lets talk! > > Love > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 patty, I also read the " 7 day detox miracle " and it is wonderful. I think sometimes that the radical treatments that are sometimes posted here can be intimidating to some. I know I was intimidated by things like coffee enemas, and lengthy fasts. I think as the saying goes that there is more than one way to skin a cat. There are other treatments out their that work and are not as invassive. Juicing for example with the right mix of fruits and vegetables is a great way to detox. This you can incorporate into your everyday regimine. In addition, one thing that has personally worked wonders for me is accupuncture. This works if done by a skilled doctor not only to help detox but to help re-balance the immune system. I have been feeling pretty good lately I can work, etc, the only lingering problem is the brain fog. For this I get weekly shots of B-12 into my knees (a key accupuncture point) one on each knee. It works and sustains my life. Another thing that worked wonders for my fatigue and poor concentration is Green Tea. I swear that its the only way I can get through my days at work. I drink two cups of Green Tea in the morning and one in the afternoon. I buy the purest form of it in a japanese market in New York. I put the ground tea leaves in a cup, pour hot water and let the leaves steap to the bottom then I drink it. This has worked the best for me, now i have energy for a whole day, and am able to think more clearly and concentrate. I will post this weekand some scientific information on the benefits of green tea for the group to see. I your interested try it, if not then dont. It cant hurt. Furthermore, to your point I also feel its discouraging to hear all the time that noone makes a full recovery- that their are only problems and more problems. This creates at least for me feeling of desperation, hopelessness, so I sometimes dont want to read the e-mails. Lets share also positive stories (even small victories) of people who in one way or another are getting better. I myself am convinced (unless a Dr diagnosis me with a terminal disease) that I WILL make a full recovery. I am trying everything, vitamins, yoga-3x a week, craniosacral massage, lymphatic drainage massage, juicing, diet changes, sauna, hydrotherapy, accupuncture, b-12 shots, sunshine, psychotherpy, exercise and positive thinking AND IT WILL ALL WORK. It may seem like alot but its my life and I have to continue living. I make time for all these things on top of the fact that I work full time at a NY magazine, live alone, and have to organize my apartment, pay bills, etc, etc. I WILL NEVER GIVE UP HOPE TO MAKE A FULL RECOVERY. HOPEFULLY MY LONG E-MAIL CAN INSPIRE SOMEONE, AND BELIEVE ME I HAVE BEEN VERY, VERY SICK, AND NOW FEEL MUCH BETTER, NOT ONLY BECAUSE OF ALL THE TREATMENTS BUT BECAUSE I KNOW I WILL CONTINUE TO FIGHT AND GET THROUGH THIS. LOVE TO ALL GABRIELA -----Original Message----- From: Patty [mailto:fdp@...] Sent: August 29, 2001 11:31 AM Subject: Re: Support HI , I agree, I would like to see more discussion here. I want to be able to offer suggestions for healing, but I don't want it to be totally focused on just that aspect, and I had hoped that there would be more synergy with the group since we are all experiencing this devastation to our health together. I would like to see more of this kind of interaction that you describe, and I had hoped that this would pretty much take off on its own. Some of the members are web only viewers, and maybe they don't check it that often. I know that I don't always get back to my e-mail as quickly as I would like either. It seems rather funny to me also, that for as long as I have been involved in the breast implant issue, I have seen women come and go, and some disappear altogether. I have yet to meet a woman who has healed completely and entirely from their implant experience, but it almost seems as if they want to move on and put all of this behind them. They just drop out of sight. I think alot of it has to do with personality types. One that I particularly was upset about is a woman that went through her explant only a few weeks before me. She was diagnosed with scleroderma, although it was not a full blown case. She had a nightmarish explant experience and we were in touch often at first, then sporadically throughout the first year or so. She was interviewed by the magazine First for Women, and her story appear in a fall issue of that magazine in 1998, I believe. We stayed in touch throughout the completion of her college degree, and the last letter I got from her she claimed that she was feeling great. I have written to her several times since then, but the silence has been very baffling! There are dozens of women who I have lost touch with. I know support groups have been formed and then fade into dust. It seems that nobody has the tenacity or energy to keep up with it. Maybe the founders get better, move on, and nobody else wants to take the reins. So, let's not let that happen to us! If I get to the point where I want someone else to take the reins, I will be looking for volunteers to pass the baton to. Until then, , I am thankful for your encouragement, and all your contributions. As for my own update, I am doing great, except for the foot pain that I just posted about. I feel great most of the time, have energy, am free of brain fog except when I eat the wrong foods, and I sleep soundly. I plan on starting some strength training at home, as well as more yoga. I also just bought a book called " The 7-Day Detox Miracle " and I will be reading that and getting into it. I can't wait to get into it. I want to do a juice program like the Gerson therapy, and my husband wants to do it with me. Detoxing, unfortunately, is getting to be a way of life around here, but we seem to be able to fit it into our schedules fairly easily. My husband has benefited so much from the detoxing that we have done! He had so much back pain 2 years ago that he could hardly walk right. Customers and employees (we own two businesses) were always making comments ( " Are you alright??? " ), and he was seeing a chiropracter for adjustments all the time. He was really bummed about it and it went on for months and months. He eventually had a colonoscopy, because he thought it had something to do with his digestion, and not his back. (The colonscopy was fine.) I had him do a kidney cleanse, and that helped, so he did another one, and changed his eating habits ALOT. He found that Pepsi, coffee, tea and heavy meals with meats made his back pain rear up. He started doing daily enemas and coffee enemas, juicing, eating lots of salads, taking supplements, and over time, all of his health problems have resolved! He is a new man, and he is ecstatic about it. I am so thankful....and we did it all without the help of a doctor. (who no doubt would have not addressed the problem from a dietary aspect.) Well, that's my update. I hope to hear from some of you. Lori Gilmour, what are you up to? Jackie up in Canada, how are you? You've been so quiet since your explant! God bless all, Love, Patty ----- Original Message ----- From: <cjheer@...> < > Sent: Wednesday, August 29, 2001 7:40 AM Subject: Support > I want to say something to everyone on this group that I think is > really important and that is that we should all support eachother, > and that means trying to respond to eachothers posts, it seems like > we post and no one replies back and it kind of makes you feel bad and > like no one cares. I try to give updates to let people know what is > going on in my life and not one person responds, this kind of makes > me feel like maybe no one reads them and no one cares. Maybe I am > sensitive but I think it is realy important that a support group > should be supportive. That means when someone posts an update or > something good, or bad, we should try to take the time even to just > say HI, that is great, or oh sorry, or whatever. I belong to another > support group that is very very busy with people offering support and > advise or simply saying hi to other members. I think that is what > makes it such a special place. Maybe I am wrong and I certainly don't > want to start any arguments, I think this is a great group of women > here, but lets try to be more talkative, get things rolling, and just > talk about things, I know personally I need to communicate with > others who are going through what I am and not just answering medical > questions but talking like friends who have been there, done that > type stuff. If anyone agrees with me then lets get rolling on it, I > think allot of women on this board have there reasons I am sure for > not talking much or telling there stories, but I can assure you it > makes for a much stronger bond and it makes life easier to know what > others are going through. The scientific stuff is great but lets get > personal, lets get to know eachother, lets talk about our lives a > little, ok, just a suggestion. I thought about even starting my own > group that maybe would be more support oriented, but I am just so > busy I don't have the time right now, and since this one is already > established I thought it would be allot easier just to post this and > see if anyone else is in need of a little more personal posts and > updates on how we are doing and whats going on. > > I would love to get to know everyone here better so come on ladies, > lets talk! > > Love > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 It's interesting what you said Patty about people just disappearing and not being active on the group(s) anymore. Ever since I linked my health problems to my implants, I have been so active trying to help women with all the various emotions they go through, as well as the medical questions they have and insurance issues that come up. But interestingly enough, now that I've had my implants removed, and am feeling so much better, some of my doctors have suggested that I " just move on and let it go. " I have thought of doing that many times, but then I think of the women who need all of our help, and I just can't " let go. " One doc told me that the whole issue was consuming my life, and in the end, I would be worse off emotionally. Well, I made the decision that if I wasn't available to help women, I would be just as bad off emotionally. I don't have the time to post as often, because my work schedule is so demanding, but I try to post at least 2- 3x/wk. I also look at the fact that I am able to work 5 days a wk at a very physically and emotionally demanding job as having succeeded in some sort of way. This time last yr, I was barely able to get out of bed, let alone go to work for 8+ hrs/day. That is why I think it is so important for women to keep in touch just to let all of us know of your progress, and what works for you and what doesn't. We all learn from one another and support one another, and I know I'd like to hear from explanted women every once in a while just to hear how things are going. Anyway, just my thoughts on yet another topic. e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 Hi e, I want to personally tell you how happy I am that you made the choice you did -- to continue to help others with this travesty. I went though similar thoughts of "getting on with my life, etc.". However, it was my Internist that encouraged me to continue with what I was doing, and assuring me he would 'help me' to be able to have the endurance it takes to continue with this work. There is 'no doubt' in my mind that God called me to this mission and directed me to physicians that support me physically and emotionally with this work. Therefore, I know I cannot dare to quit unless I'm finally on my 'death bed'! Of course some days I feel that's where I'm headed then I bounce back! Blessings always, Martha Murdock NSIF ----- Original Message ----- From: eRene@... Sent: Wednesday, August 29, 2001 9:28 PM Subject: Re: Support It's interesting what you said Patty about people just disappearing and not being active on the group(s) anymore. Ever since I linked my health problems to my implants, I have been so active trying to help women with all the various emotions they go through, as well as the medical questions they have and insurance issues that come up.But interestingly enough, now that I've had my implants removed, and am feeling so much better, some of my doctors have suggested that I "just move on and let it go." I have thought of doing that many times, but then I think of the women who need all of our help, and I just can't "let go." One doc told me that the whole issue was consuming my life, and in the end, I would be worse off emotionally. Well, I made the decision that if I wasn't available to help women, I would be just as bad off emotionally.I don't have the time to post as often, because my work schedule is so demanding, but I try to post at least 2-3x/wk. I also look at the fact that I am able to work 5 days a wk at a very physically and emotionally demanding job as having succeeded in some sort of way. This time last yr, I was barely able to get out of bed, let alone go to work for 8+ hrs/day. That is why I think it is so important for women to keep in touch just to let all of us know of your progress, and what works for you and what doesn't. We all learn from one another and support one another, and I know I'd like to hear from explanted women every once in a while just to hear how things are going.Anyway, just my thoughts on yet another topic.e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2001 Report Share Posted September 4, 2001 HI LADIES HAS ANYONE FROM THE GROUP WHO IS EXPERIENCING THE " BRAIN FOG " HAD A EEG(MEASURES BRAIN WAVES) & MRI, SPINAL TAP DONE BY THEIR NUEROLOGIST. IF SO, WHAT HAVE BEEN YOUR RESULTS. I ONLY HAD SMOOTH SALINE IMPLANTS IN FOR 4 1/2 MONTHS AND BEGAN TO EXPERIENCE SEVERE BRAIN FOG ONE MONTH LATER. SINCE I HAVE HAD THEM REMOVED IN EARLY JUNE, THE BRAIN FOG HAS IS NOT AS SEVERE ALTHOUGH NOT YET 100% OR EVEN 80%. THE PROGRESS IS SO GRADUAL. PLEASE SOMEONE LET ME KNOW SINCE I AM HAVING BOTH THE EEG AND MRI DONE THIS WEEK THANKS GABRIELA -----Original Message----- From: Patty [mailto:fdp@...] Sent: August 29, 2001 11:31 AM Subject: Re: Support HI , I agree, I would like to see more discussion here. I want to be able to offer suggestions for healing, but I don't want it to be totally focused on just that aspect, and I had hoped that there would be more synergy with the group since we are all experiencing this devastation to our health together. I would like to see more of this kind of interaction that you describe, and I had hoped that this would pretty much take off on its own. Some of the members are web only viewers, and maybe they don't check it that often. I know that I don't always get back to my e-mail as quickly as I would like either. It seems rather funny to me also, that for as long as I have been involved in the breast implant issue, I have seen women come and go, and some disappear altogether. I have yet to meet a woman who has healed completely and entirely from their implant experience, but it almost seems as if they want to move on and put all of this behind them. They just drop out of sight. I think alot of it has to do with personality types. One that I particularly was upset about is a woman that went through her explant only a few weeks before me. She was diagnosed with scleroderma, although it was not a full blown case. She had a nightmarish explant experience and we were in touch often at first, then sporadically throughout the first year or so. She was interviewed by the magazine First for Women, and her story appear in a fall issue of that magazine in 1998, I believe. We stayed in touch throughout the completion of her college degree, and the last letter I got from her she claimed that she was feeling great. I have written to her several times since then, but the silence has been very baffling! There are dozens of women who I have lost touch with. I know support groups have been formed and then fade into dust. It seems that nobody has the tenacity or energy to keep up with it. Maybe the founders get better, move on, and nobody else wants to take the reins. So, let's not let that happen to us! If I get to the point where I want someone else to take the reins, I will be looking for volunteers to pass the baton to. Until then, , I am thankful for your encouragement, and all your contributions. As for my own update, I am doing great, except for the foot pain that I just posted about. I feel great most of the time, have energy, am free of brain fog except when I eat the wrong foods, and I sleep soundly. I plan on starting some strength training at home, as well as more yoga. I also just bought a book called " The 7-Day Detox Miracle " and I will be reading that and getting into it. I can't wait to get into it. I want to do a juice program like the Gerson therapy, and my husband wants to do it with me. Detoxing, unfortunately, is getting to be a way of life around here, but we seem to be able to fit it into our schedules fairly easily. My husband has benefited so much from the detoxing that we have done! He had so much back pain 2 years ago that he could hardly walk right. Customers and employees (we own two businesses) were always making comments ( " Are you alright??? " ), and he was seeing a chiropracter for adjustments all the time. He was really bummed about it and it went on for months and months. He eventually had a colonoscopy, because he thought it had something to do with his digestion, and not his back. (The colonscopy was fine.) I had him do a kidney cleanse, and that helped, so he did another one, and changed his eating habits ALOT. He found that Pepsi, coffee, tea and heavy meals with meats made his back pain rear up. He started doing daily enemas and coffee enemas, juicing, eating lots of salads, taking supplements, and over time, all of his health problems have resolved! He is a new man, and he is ecstatic about it. I am so thankful....and we did it all without the help of a doctor. (who no doubt would have not addressed the problem from a dietary aspect.) Well, that's my update. I hope to hear from some of you. Lori Gilmour, what are you up to? Jackie up in Canada, how are you? You've been so quiet since your explant! God bless all, Love, Patty ----- Original Message ----- From: <cjheer@...> < > Sent: Wednesday, August 29, 2001 7:40 AM Subject: Support > I want to say something to everyone on this group that I think is > really important and that is that we should all support eachother, > and that means trying to respond to eachothers posts, it seems like > we post and no one replies back and it kind of makes you feel bad and > like no one cares. I try to give updates to let people know what is > going on in my life and not one person responds, this kind of makes > me feel like maybe no one reads them and no one cares. Maybe I am > sensitive but I think it is realy important that a support group > should be supportive. That means when someone posts an update or > something good, or bad, we should try to take the time even to just > say HI, that is great, or oh sorry, or whatever. I belong to another > support group that is very very busy with people offering support and > advise or simply saying hi to other members. I think that is what > makes it such a special place. Maybe I am wrong and I certainly don't > want to start any arguments, I think this is a great group of women > here, but lets try to be more talkative, get things rolling, and just > talk about things, I know personally I need to communicate with > others who are going through what I am and not just answering medical > questions but talking like friends who have been there, done that > type stuff. If anyone agrees with me then lets get rolling on it, I > think allot of women on this board have there reasons I am sure for > not talking much or telling there stories, but I can assure you it > makes for a much stronger bond and it makes life easier to know what > others are going through. The scientific stuff is great but lets get > personal, lets get to know eachother, lets talk about our lives a > little, ok, just a suggestion. I thought about even starting my own > group that maybe would be more support oriented, but I am just so > busy I don't have the time right now, and since this one is already > established I thought it would be allot easier just to post this and > see if anyone else is in need of a little more personal posts and > updates on how we are doing and whats going on. > > I would love to get to know everyone here better so come on ladies, > lets talk! > > Love > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 I had an MRI and complete neuro work up, no eeg or spinal tap though, didn't see the point, I did have a nerve conduction study done and that was it, I had severe brain fog that has only recently been noticably better and that is now that I am 9 months post explant. My brain fog started at 2 months post implantation with textured implants, it has never been completely gone but I must say it is 90% better. You will get better give it time and try to be patient. So smooth implants are just as bad I guess......... hang in there In @y..., " DeHegedus, a " <a_DeHegedus@p...> wrote: > HI LADIES > HAS ANYONE FROM THE GROUP WHO IS EXPERIENCING THE " BRAIN FOG " HAD A > EEG(MEASURES BRAIN WAVES) & MRI, SPINAL TAP DONE BY THEIR NUEROLOGIST. IF > SO, WHAT HAVE BEEN YOUR RESULTS. I ONLY HAD SMOOTH SALINE IMPLANTS IN FOR 4 > 1/2 MONTHS AND BEGAN TO EXPERIENCE SEVERE BRAIN FOG ONE MONTH LATER. SINCE I > HAVE HAD THEM REMOVED IN EARLY JUNE, THE BRAIN FOG HAS IS NOT AS SEVERE > ALTHOUGH NOT YET 100% OR EVEN 80%. THE PROGRESS IS SO GRADUAL. > > PLEASE SOMEONE LET ME KNOW SINCE I AM HAVING BOTH THE EEG AND MRI DONE THIS > WEEK > > THANKS > GABRIELA > > -----Original Message----- > From: Patty [mailto:fdp@l...] > Sent: August 29, 2001 11:31 AM > @y... > Subject: Re: Support > > > HI , > I agree, I would like to see more discussion here. I want to be able to > offer suggestions for healing, but I don't want it to be totally focused on > just that aspect, and I had hoped that there would be more synergy with the > group since we are all experiencing this devastation to our health together. > I would like to see more of this kind of interaction that you describe, and > I had hoped that this would pretty much take off on its own. > > Some of the members are web only viewers, and maybe they don't check it that > often. I know that I don't always get back to my e-mail as quickly as I > would like either. > > It seems rather funny to me also, that for as long as I have been involved > in the breast implant issue, I have seen women come and go, and some > disappear altogether. I have yet to meet a woman who has healed completely > and entirely from their implant experience, but it almost seems as if they > want to move on and put all of this behind them. They just drop out of > sight. I think alot of it has to do with personality types. > > One that I particularly was upset about is a woman that went through her > explant only a few weeks before me. She was diagnosed with scleroderma, > although it was not a full blown case. She had a nightmarish explant > experience and we were in touch often at first, then sporadically throughout > the first year or so. She was interviewed by the magazine First for Women, > and her story appear in a fall issue of that magazine in 1998, I believe. We > stayed in touch throughout the completion of her college degree, and the > last letter I got from her she claimed that she was feeling great. I have > written to her several times since then, but the silence has been very > baffling! There are dozens of women who I have lost touch with. > > I know support groups have been formed and then fade into dust. It seems > that nobody has the tenacity or energy to keep up with it. Maybe the > founders get better, move on, and nobody else wants to take the reins. So, > let's not let that happen to us! If I get to the point where I want someone > else to take the reins, I will be looking for volunteers to pass the baton > to. Until then, , I am thankful for your encouragement, and all your > contributions. > > As for my own update, I am doing great, except for the foot pain that I just > posted about. I feel great most of the time, have energy, am free of brain > fog except when I eat the wrong foods, and I sleep soundly. I plan on > starting some strength training at home, as well as more yoga. I also just > bought a book called " The 7-Day Detox Miracle " and I will be reading that > and getting into it. I can't wait to get into it. I want to do a juice > program like the Gerson therapy, and my husband wants to do it with me. > Detoxing, unfortunately, is getting to be a way of life around here, but we > seem to be able to fit it into our schedules fairly easily. > > My husband has benefited so much from the detoxing that we have done! He > had so much back pain 2 years ago that he could hardly walk right. > Customers and employees (we own two businesses) were always making comments > ( " Are you alright??? " ), and he was seeing a chiropracter for adjustments all > the time. He was really bummed about it and it went on for months and > months. He eventually had a colonoscopy, because he thought it had something > to do with his digestion, and not his back. (The colonscopy was fine.) I > had him do a kidney cleanse, and that helped, so he did another one, and > changed his eating habits ALOT. He found that Pepsi, coffee, tea and heavy > meals with meats made his back pain rear up. He started doing daily enemas > and coffee enemas, juicing, eating lots of salads, taking supplements, and > over time, all of his health problems have resolved! He is a new man, and > he is ecstatic about it. I am so thankful....and we did it all without the > help of a doctor. (who no doubt would have not addressed the problem from a > dietary aspect.) > > Well, that's my update. I hope to hear from some of you. Lori Gilmour, > what are you up to? Jackie up in Canada, how are you? You've been so quiet > since your explant! > God bless all, > Love, > Patty > > > > > ----- Original Message ----- > From: <cjheer@i...> > < @y...> > Sent: Wednesday, August 29, 2001 7:40 AM > Subject: Support > > > > I want to say something to everyone on this group that I think is > > really important and that is that we should all support eachother, > > and that means trying to respond to eachothers posts, it seems like > > we post and no one replies back and it kind of makes you feel bad and > > like no one cares. I try to give updates to let people know what is > > going on in my life and not one person responds, this kind of makes > > me feel like maybe no one reads them and no one cares. Maybe I am > > sensitive but I think it is realy important that a support group > > should be supportive. That means when someone posts an update or > > something good, or bad, we should try to take the time even to just > > say HI, that is great, or oh sorry, or whatever. I belong to another > > support group that is very very busy with people offering support and > > advise or simply saying hi to other members. I think that is what > > makes it such a special place. Maybe I am wrong and I certainly don't > > want to start any arguments, I think this is a great group of women > > here, but lets try to be more talkative, get things rolling, and just > > talk about things, I know personally I need to communicate with > > others who are going through what I am and not just answering medical > > questions but talking like friends who have been there, done that > > type stuff. If anyone agrees with me then lets get rolling on it, I > > think allot of women on this board have there reasons I am sure for > > not talking much or telling there stories, but I can assure you it > > makes for a much stronger bond and it makes life easier to know what > > others are going through. The scientific stuff is great but lets get > > personal, lets get to know eachother, lets talk about our lives a > > little, ok, just a suggestion. I thought about even starting my own > > group that maybe would be more support oriented, but I am just so > > busy I don't have the time right now, and since this one is already > > established I thought it would be allot easier just to post this and > > see if anyone else is in need of a little more personal posts and > > updates on how we are doing and whats going on. > > > > I would love to get to know everyone here better so come on ladies, > > lets talk! > > > > Love > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 a, I have had an MRI, EEG, EMG, nerve conduction studies, blah, blah, blah. Everything was normal except my MRI which showed that I have had a cerebellar stroke. And my EMG showed that I had mild carpal tunnel. However, the MRI and EMG were all done several yrs ago. The EEG was just done this past March, as well as a repeat EMG. My EEG was also a sleep deprived EEG. e > HI LADIES > HAS ANYONE FROM THE GROUP WHO IS EXPERIENCING THE " BRAIN FOG " HAD A > EEG(MEASURES BRAIN WAVES) & MRI, SPINAL TAP DONE BY THEIR NUEROLOGIST. IF > SO, WHAT HAVE BEEN YOUR RESULTS. I ONLY HAD SMOOTH SALINE IMPLANTS IN FOR 4 > 1/2 MONTHS AND BEGAN TO EXPERIENCE SEVERE BRAIN FOG ONE MONTH LATER. SINCE I > HAVE HAD THEM REMOVED IN EARLY JUNE, THE BRAIN FOG HAS IS NOT AS SEVERE > ALTHOUGH NOT YET 100% OR EVEN 80%. THE PROGRESS IS SO GRADUAL. > > PLEASE SOMEONE LET ME KNOW SINCE I AM HAVING BOTH THE EEG AND MRI DONE THIS > WEEK > > THANKS > GABRIELA > > -----Original Message----- > From: Patty [mailto:fdp@...] > Sent: August 29, 2001 11:31 AM > > Subject: Re: Support > > > HI , > I agree, I would like to see more discussion here. I want to be able to > offer suggestions for healing, but I don't want it to be totally focused on > just that aspect, and I had hoped that there would be more synergy with the > group since we are all experiencing this devastation to our health together. > I would like to see more of this kind of interaction that you describe, and > I had hoped that this would pretty much take off on its own. > > Some of the members are web only viewers, and maybe they don't check it that > often. I know that I don't always get back to my e-mail as quickly as I > would like either. > > It seems rather funny to me also, that for as long as I have been involved > in the breast implant issue, I have seen women come and go, and some > disappear altogether. I have yet to meet a woman who has healed completely > and entirely from their implant experience, but it almost seems as if they > want to move on and put all of this behind them. They just drop out of > sight. I think alot of it has to do with personality types. > > One that I particularly was upset about is a woman that went through her > explant only a few weeks before me. She was diagnosed with scleroderma, > although it was not a full blown case. She had a nightmarish explant > experience and we were in touch often at first, then sporadically throughout > the first year or so. She was interviewed by the magazine First for Women, > and her story appear in a fall issue of that magazine in 1998, I believe. We > stayed in touch throughout the completion of her college degree, and the > last letter I got from her she claimed that she was feeling great. I have > written to her several times since then, but the silence has been very > baffling! There are dozens of women who I have lost touch with. > > I know support groups have been formed and then fade into dust. It seems > that nobody has the tenacity or energy to keep up with it. Maybe the > founders get better, move on, and nobody else wants to take the reins. So, > let's not let that happen to us! If I get to the point where I want someone > else to take the reins, I will be looking for volunteers to pass the baton > to. Until then, , I am thankful for your encouragement, and all your > contributions. > > As for my own update, I am doing great, except for the foot pain that I just > posted about. I feel great most of the time, have energy, am free of brain > fog except when I eat the wrong foods, and I sleep soundly. I plan on > starting some strength training at home, as well as more yoga. I also just > bought a book called " The 7-Day Detox Miracle " and I will be reading that > and getting into it. I can't wait to get into it. I want to do a juice > program like the Gerson therapy, and my husband wants to do it with me. > Detoxing, unfortunately, is getting to be a way of life around here, but we > seem to be able to fit it into our schedules fairly easily. > > My husband has benefited so much from the detoxing that we have done! He > had so much back pain 2 years ago that he could hardly walk right. > Customers and employees (we own two businesses) were always making comments > ( " Are you alright??? " ), and he was seeing a chiropracter for adjustments all > the time. He was really bummed about it and it went on for months and > months. He eventually had a colonoscopy, because he thought it had something > to do with his digestion, and not his back. (The colonscopy was fine.) I > had him do a kidney cleanse, and that helped, so he did another one, and > changed his eating habits ALOT. He found that Pepsi, coffee, tea and heavy > meals with meats made his back pain rear up. He started doing daily enemas > and coffee enemas, juicing, eating lots of salads, taking supplements, and > over time, all of his health problems have resolved! He is a new man, and > he is ecstatic about it. I am so thankful....and we did it all without the > help of a doctor. (who no doubt would have not addressed the problem from a > dietary aspect.) > > Well, that's my update. I hope to hear from some of you. Lori Gilmour, > what are you up to? Jackie up in Canada, how are you? You've been so quiet > since your explant! > God bless all, > Love, > Patty > > > > > ----- Original Message ----- > From: <cjheer@...> > < > > Sent: Wednesday, August 29, 2001 7:40 AM > Subject: Support > > > > I want to say something to everyone on this group that I think is > > really important and that is that we should all support eachother, > > and that means trying to respond to eachothers posts, it seems like > > we post and no one replies back and it kind of makes you feel bad and > > like no one cares. I try to give updates to let people know what is > > going on in my life and not one person responds, this kind of makes > > me feel like maybe no one reads them and no one cares. Maybe I am > > sensitive but I think it is realy important that a support group > > should be supportive. That means when someone posts an update or > > something good, or bad, we should try to take the time even to just > > say HI, that is great, or oh sorry, or whatever. I belong to another > > support group that is very very busy with people offering support and > > advise or simply saying hi to other members. I think that is what > > makes it such a special place. Maybe I am wrong and I certainly don't > > want to start any arguments, I think this is a great group of women > > here, but lets try to be more talkative, get things rolling, and just > > talk about things, I know personally I need to communicate with > > others who are going through what I am and not just answering medical > > questions but talking like friends who have been there, done that > > type stuff. If anyone agrees with me then lets get rolling on it, I > > think allot of women on this board have there reasons I am sure for > > not talking much or telling there stories, but I can assure you it > > makes for a much stronger bond and it makes life easier to know what > > others are going through. The scientific stuff is great but lets get > > personal, lets get to know eachother, lets talk about our lives a > > little, ok, just a suggestion. I thought about even starting my own > > group that maybe would be more support oriented, but I am just so > > busy I don't have the time right now, and since this one is already > > established I thought it would be allot easier just to post this and > > see if anyone else is in need of a little more personal posts and > > updates on how we are doing and whats going on. > > > > I would love to get to know everyone here better so come on ladies, > > lets talk! > > > > Love > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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