Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Les Love to hear your news of still being undetectable. My husband has been on the treatment for a year now and we are going to do daily dosing the next 2 months that the doctor wants him to stay on the treatment and hoping to get the same out come as you I wish that for everyone. It has been a bad time this past year with all the sides and the secondary infection he has of Porphyria but he says he would still have gone on the treatment no matter what. Thanks for your news it is inspiring to others. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 thanks for telling us your combo story Les. I'm waiting to start mine and its great to know whats in store. Hope your PCRs stay neg. love sylv Re: Two Week Update > > Well, now that I feel like making a fool out of my self, and showing off > my poor grammar & spelling skills. > I tell you all what it was like for me on my year of combo. The first six > months of treatment I was doing 5 million IU of IFN daily with 800 mg of RVI. > the first thing that gave me trouble were my eyes, they would blur badly all > the time, and were so dry I had to stay away from any open flame, I was > afraid they would burst into flame. > I should say that I have been legally blind all of my life, and with my > eyes so blurred I was really in trouble. The next thing was my skin got so > dry I thought if I moved I would crack. > Now I'll tell you, I was born with albinism a lack of pigment in my skin, > and hair, which while on treatment made it all most impossible for me to go > out in the sun, even if I sat to close to a window I could feel the sun > burning me, and of all places to live, I live in the desert in Southern > Calif. If I had to go out in the sun I had to ware long sleeve shirt with a > hood and a hat with sunglasses, I look something like the invisible man, and > felt like the mummy on bad drugs. > I started antidepressants just before treatment, but even with > antidepressants, I still felt really down most of the time, I'm a man so I > never cry, Ho! Ho! but while on treatment I would feel myself start to cry at > al most anything, I would find myself crying at sad commercials on TV, > especially dog food commercials, OK so I'm a little crazy, but those hungry > dogs made me so sad, I'm also a very easy going person, but on treatment I > found myself being short with people around me, to tell the truth if I had > the energy I'd like to slap them, just kidding, but really people could > really get on my nerves. > I could sleep 18 hours a day, and still be tired. One good thing I lost > 40 lb. while on treatment, one bad thing after treatment I found almost all > those lb. > The best part of all, I'm 15 months past end of treatment and still > undetectable, everything is back to normal, and I feel better then before I > started treatment. > So to all of you out there on combo, or thinking about starting > treatment, > " I say go for it. " > What's life without a little excitement? > Take care. > Les > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 thanks for telling us your combo story Les. I'm waiting to start mine and its great to know whats in store. Hope your PCRs stay neg. love sylv Re: Two Week Update > > Well, now that I feel like making a fool out of my self, and showing off > my poor grammar & spelling skills. > I tell you all what it was like for me on my year of combo. The first six > months of treatment I was doing 5 million IU of IFN daily with 800 mg of RVI. > the first thing that gave me trouble were my eyes, they would blur badly all > the time, and were so dry I had to stay away from any open flame, I was > afraid they would burst into flame. > I should say that I have been legally blind all of my life, and with my > eyes so blurred I was really in trouble. The next thing was my skin got so > dry I thought if I moved I would crack. > Now I'll tell you, I was born with albinism a lack of pigment in my skin, > and hair, which while on treatment made it all most impossible for me to go > out in the sun, even if I sat to close to a window I could feel the sun > burning me, and of all places to live, I live in the desert in Southern > Calif. If I had to go out in the sun I had to ware long sleeve shirt with a > hood and a hat with sunglasses, I look something like the invisible man, and > felt like the mummy on bad drugs. > I started antidepressants just before treatment, but even with > antidepressants, I still felt really down most of the time, I'm a man so I > never cry, Ho! Ho! but while on treatment I would feel myself start to cry at > al most anything, I would find myself crying at sad commercials on TV, > especially dog food commercials, OK so I'm a little crazy, but those hungry > dogs made me so sad, I'm also a very easy going person, but on treatment I > found myself being short with people around me, to tell the truth if I had > the energy I'd like to slap them, just kidding, but really people could > really get on my nerves. > I could sleep 18 hours a day, and still be tired. One good thing I lost > 40 lb. while on treatment, one bad thing after treatment I found almost all > those lb. > The best part of all, I'm 15 months past end of treatment and still > undetectable, everything is back to normal, and I feel better then before I > started treatment. > So to all of you out there on combo, or thinking about starting > treatment, > " I say go for it. " > What's life without a little excitement? > Take care. > Les > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 thanks for telling us your combo story Les. I'm waiting to start mine and its great to know whats in store. Hope your PCRs stay neg. love sylv Re: Two Week Update > > Well, now that I feel like making a fool out of my self, and showing off > my poor grammar & spelling skills. > I tell you all what it was like for me on my year of combo. The first six > months of treatment I was doing 5 million IU of IFN daily with 800 mg of RVI. > the first thing that gave me trouble were my eyes, they would blur badly all > the time, and were so dry I had to stay away from any open flame, I was > afraid they would burst into flame. > I should say that I have been legally blind all of my life, and with my > eyes so blurred I was really in trouble. The next thing was my skin got so > dry I thought if I moved I would crack. > Now I'll tell you, I was born with albinism a lack of pigment in my skin, > and hair, which while on treatment made it all most impossible for me to go > out in the sun, even if I sat to close to a window I could feel the sun > burning me, and of all places to live, I live in the desert in Southern > Calif. If I had to go out in the sun I had to ware long sleeve shirt with a > hood and a hat with sunglasses, I look something like the invisible man, and > felt like the mummy on bad drugs. > I started antidepressants just before treatment, but even with > antidepressants, I still felt really down most of the time, I'm a man so I > never cry, Ho! Ho! but while on treatment I would feel myself start to cry at > al most anything, I would find myself crying at sad commercials on TV, > especially dog food commercials, OK so I'm a little crazy, but those hungry > dogs made me so sad, I'm also a very easy going person, but on treatment I > found myself being short with people around me, to tell the truth if I had > the energy I'd like to slap them, just kidding, but really people could > really get on my nerves. > I could sleep 18 hours a day, and still be tired. One good thing I lost > 40 lb. while on treatment, one bad thing after treatment I found almost all > those lb. > The best part of all, I'm 15 months past end of treatment and still > undetectable, everything is back to normal, and I feel better then before I > started treatment. > So to all of you out there on combo, or thinking about starting > treatment, > " I say go for it. " > What's life without a little excitement? > Take care. > Les > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 thanks for telling us your combo story Les. I'm waiting to start mine and its great to know whats in store. Hope your PCRs stay neg. love sylv Re: Two Week Update > > Well, now that I feel like making a fool out of my self, and showing off > my poor grammar & spelling skills. > I tell you all what it was like for me on my year of combo. The first six > months of treatment I was doing 5 million IU of IFN daily with 800 mg of RVI. > the first thing that gave me trouble were my eyes, they would blur badly all > the time, and were so dry I had to stay away from any open flame, I was > afraid they would burst into flame. > I should say that I have been legally blind all of my life, and with my > eyes so blurred I was really in trouble. The next thing was my skin got so > dry I thought if I moved I would crack. > Now I'll tell you, I was born with albinism a lack of pigment in my skin, > and hair, which while on treatment made it all most impossible for me to go > out in the sun, even if I sat to close to a window I could feel the sun > burning me, and of all places to live, I live in the desert in Southern > Calif. If I had to go out in the sun I had to ware long sleeve shirt with a > hood and a hat with sunglasses, I look something like the invisible man, and > felt like the mummy on bad drugs. > I started antidepressants just before treatment, but even with > antidepressants, I still felt really down most of the time, I'm a man so I > never cry, Ho! Ho! but while on treatment I would feel myself start to cry at > al most anything, I would find myself crying at sad commercials on TV, > especially dog food commercials, OK so I'm a little crazy, but those hungry > dogs made me so sad, I'm also a very easy going person, but on treatment I > found myself being short with people around me, to tell the truth if I had > the energy I'd like to slap them, just kidding, but really people could > really get on my nerves. > I could sleep 18 hours a day, and still be tired. One good thing I lost > 40 lb. while on treatment, one bad thing after treatment I found almost all > those lb. > The best part of all, I'm 15 months past end of treatment and still > undetectable, everything is back to normal, and I feel better then before I > started treatment. > So to all of you out there on combo, or thinking about starting > treatment, > " I say go for it. " > What's life without a little excitement? > Take care. > Les > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 Claudine, thanks for the good wishes. Although I am bummed to find out that I cannot donate anything, I guess if I had thought about it I would have figured it out myself. Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 Thanks Les, to be honest with you I did not even notice any grammer or typing errors! What does that say about ME?????????? LOL, Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 Thanks Les, to be honest with you I did not even notice any grammer or typing errors! What does that say about ME?????????? LOL, Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 Winnie, You and your husband have been in my prayers for a long time. I appreciate yours as well. I have found out through this list, that because of the Hep C, I CANNOT donate anything anyway. What will we laugh about now? Oh well, can still keep the organ checklist handy. It is kind of funny to watch the list deteriorate. Even though my major organs are defective, I think I am in much better health than a LOT of " healthy " people. Life is Funny! Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 Congratulations on the undetectable virus!!!!! You give me hope and encouragement that I too could become undetectable. Keep up the spirits! Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 Congratulations on the undetectable virus!!!!! You give me hope and encouragement that I too could become undetectable. Keep up the spirits! Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 In a message dated 9/23/00 1:17:30 PM !!!First Boot!!!, suzybalone@... writes: << did you have any hair left? >> Yes Suzy I lost almost half my hair, but it all came back a month or two after the end of treatment. Take care, Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 In a message dated 9/23/00 1:17:30 PM !!!First Boot!!!, suzybalone@... writes: << did you have any hair left? >> Yes Suzy I lost almost half my hair, but it all came back a month or two after the end of treatment. Take care, Les Quote Link to comment Share on other sites More sharing options...
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