Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Hello Lora: With all that's going on in your like it's good is see you still have a sense of humor, as they say when it rains it pours. Take care, Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Hello Lora: With all that's going on in your like it's good is see you still have a sense of humor, as they say when it rains it pours. Take care, Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 In a message dated 9/22/00 6:19:21 PM !!!First Boot!!!, LEST2001@... writes: << Hello Lora: With all that's going on in your like it's good is see you still have a sense of humor, as they say when it rains it pours. Take care, Les >> Now if I could only learn to write, LOL No! treatment hasn't left me a little crazy. Nevertheless good luck. Take care, Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 In a message dated 9/22/00 6:19:21 PM !!!First Boot!!!, LEST2001@... writes: << Hello Lora: With all that's going on in your like it's good is see you still have a sense of humor, as they say when it rains it pours. Take care, Les >> Now if I could only learn to write, LOL No! treatment hasn't left me a little crazy. Nevertheless good luck. Take care, Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Lora, Gee I was glad to hear they decreased your ribivirin so fast esp since your hgb was so low to begin with. Hope the colonoscopy turns out ok, not a fun test to have. Hang in there.. Suzy From: Lorad8@... Reply-Hepatitis Cegroups Hepatitis Cegroups Subject: Two Week Update Date: Fri, 22 Sep 2000 11:03:18 EDT Hi All, Well, it has now been two weeks since I started treatment. Although I am only taking two riba instead of 5 due to my hemoglobin...feel like I am cheating myself, but doc says NO until hemoglobin comes up to at least 10. I did not really have time to concentrate on my own aches and pains the first week, because my 16 year old ended up in the ER with 12 stitches in his foot---home from school for a week! My 13 year old ended up with a double ear infection that had blistered--home from school for a day, and husband, OF COURSE, was out of town. Now that the family's health is settling, I am realizing how generally blah I feel. BUT--it could be worse! I was told on Monday, at the doctors office that because my hemoglobin is sooo low-- 9, they are afraid there is some kind of internal bleeding going on. SO... instead of just concentrating on the hep and the liver, I am scheduled for the ever-fun, ever-anticipated COLONOSCOPY!!! Yeah!!!! I am sooo excited!. My husband told me that we will probably have to cross the colon off the list of what I can donate. Already crossed off the list are my liver (hep C), heart (artificial heart valve), ears (deaf in one ear), eyes(legally blind), and gallbladder (already removed). Isn't it ironic that I am one of the few people that are WILLING to be an organ donor, and I will probably have minimal organs that are donatable! We do get a goo laugh out of it. Suppose if I couldn't see some humor in it all, I would be crying every day. Anyway, just thought I would catch you all up on my progress. I am doing every other day injections. Doc will give me a prescription for a vial of intron(?) when my usage gets caught up to what the insurance will supply. I must say that I am totally pleased with my doc and his assistant! STILL POSITIVE, Lora _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Lora, Gee I was glad to hear they decreased your ribivirin so fast esp since your hgb was so low to begin with. Hope the colonoscopy turns out ok, not a fun test to have. Hang in there.. Suzy From: Lorad8@... Reply-Hepatitis Cegroups Hepatitis Cegroups Subject: Two Week Update Date: Fri, 22 Sep 2000 11:03:18 EDT Hi All, Well, it has now been two weeks since I started treatment. Although I am only taking two riba instead of 5 due to my hemoglobin...feel like I am cheating myself, but doc says NO until hemoglobin comes up to at least 10. I did not really have time to concentrate on my own aches and pains the first week, because my 16 year old ended up in the ER with 12 stitches in his foot---home from school for a week! My 13 year old ended up with a double ear infection that had blistered--home from school for a day, and husband, OF COURSE, was out of town. Now that the family's health is settling, I am realizing how generally blah I feel. BUT--it could be worse! I was told on Monday, at the doctors office that because my hemoglobin is sooo low-- 9, they are afraid there is some kind of internal bleeding going on. SO... instead of just concentrating on the hep and the liver, I am scheduled for the ever-fun, ever-anticipated COLONOSCOPY!!! Yeah!!!! I am sooo excited!. My husband told me that we will probably have to cross the colon off the list of what I can donate. Already crossed off the list are my liver (hep C), heart (artificial heart valve), ears (deaf in one ear), eyes(legally blind), and gallbladder (already removed). Isn't it ironic that I am one of the few people that are WILLING to be an organ donor, and I will probably have minimal organs that are donatable! We do get a goo laugh out of it. Suppose if I couldn't see some humor in it all, I would be crying every day. Anyway, just thought I would catch you all up on my progress. I am doing every other day injections. Doc will give me a prescription for a vial of intron(?) when my usage gets caught up to what the insurance will supply. I must say that I am totally pleased with my doc and his assistant! STILL POSITIVE, Lora _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Les, What a year!! My sides don't seem bad at alll and actually haven't been too bad esp compared to everyone that has lots of sides, not saying i don't feel like crap a lot of time, but have been able to work so far, go out in the sun, although have paid for that a time or two with litlle bumps all over but not always, liked your invisible man comment, gave me a chuckle and we need those, did you have any hair left? Now that it is getting to be fall here my skin is really starting to dry, so know what you mean there, hurts to move, can't get enough lotion, hubby says you just took a showere Why are you greasing yourself up? Just doesn't get it, but does make me laugh, asking me if he'll have to put lotion on my back when I get old? gee I thought I was already old. LOL irritability with people?? oh yeah and then to top it off I work with people that I consider derelicts. not at all helpful, been there for years and they keep saying " I never knew that " to all sorts of policies and procedures that are common sense. My eyes too have been blurry then I wear contacts which compounds the issue lucky my eyes aren't too bad and I can go without a lot esp at home and still see. well thanks for sharing and the best part of your message You are undetectable!!!!!!! Hang in there gald about your success story Suzy _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Les, What a year!! My sides don't seem bad at alll and actually haven't been too bad esp compared to everyone that has lots of sides, not saying i don't feel like crap a lot of time, but have been able to work so far, go out in the sun, although have paid for that a time or two with litlle bumps all over but not always, liked your invisible man comment, gave me a chuckle and we need those, did you have any hair left? Now that it is getting to be fall here my skin is really starting to dry, so know what you mean there, hurts to move, can't get enough lotion, hubby says you just took a showere Why are you greasing yourself up? Just doesn't get it, but does make me laugh, asking me if he'll have to put lotion on my back when I get old? gee I thought I was already old. LOL irritability with people?? oh yeah and then to top it off I work with people that I consider derelicts. not at all helpful, been there for years and they keep saying " I never knew that " to all sorts of policies and procedures that are common sense. My eyes too have been blurry then I wear contacts which compounds the issue lucky my eyes aren't too bad and I can go without a lot esp at home and still see. well thanks for sharing and the best part of your message You are undetectable!!!!!!! Hang in there gald about your success story Suzy _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Les, What a year!! My sides don't seem bad at alll and actually haven't been too bad esp compared to everyone that has lots of sides, not saying i don't feel like crap a lot of time, but have been able to work so far, go out in the sun, although have paid for that a time or two with litlle bumps all over but not always, liked your invisible man comment, gave me a chuckle and we need those, did you have any hair left? Now that it is getting to be fall here my skin is really starting to dry, so know what you mean there, hurts to move, can't get enough lotion, hubby says you just took a showere Why are you greasing yourself up? Just doesn't get it, but does make me laugh, asking me if he'll have to put lotion on my back when I get old? gee I thought I was already old. LOL irritability with people?? oh yeah and then to top it off I work with people that I consider derelicts. not at all helpful, been there for years and they keep saying " I never knew that " to all sorts of policies and procedures that are common sense. My eyes too have been blurry then I wear contacts which compounds the issue lucky my eyes aren't too bad and I can go without a lot esp at home and still see. well thanks for sharing and the best part of your message You are undetectable!!!!!!! Hang in there gald about your success story Suzy _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Les, What a year!! My sides don't seem bad at alll and actually haven't been too bad esp compared to everyone that has lots of sides, not saying i don't feel like crap a lot of time, but have been able to work so far, go out in the sun, although have paid for that a time or two with litlle bumps all over but not always, liked your invisible man comment, gave me a chuckle and we need those, did you have any hair left? Now that it is getting to be fall here my skin is really starting to dry, so know what you mean there, hurts to move, can't get enough lotion, hubby says you just took a showere Why are you greasing yourself up? Just doesn't get it, but does make me laugh, asking me if he'll have to put lotion on my back when I get old? gee I thought I was already old. LOL irritability with people?? oh yeah and then to top it off I work with people that I consider derelicts. not at all helpful, been there for years and they keep saying " I never knew that " to all sorts of policies and procedures that are common sense. My eyes too have been blurry then I wear contacts which compounds the issue lucky my eyes aren't too bad and I can go without a lot esp at home and still see. well thanks for sharing and the best part of your message You are undetectable!!!!!!! Hang in there gald about your success story Suzy _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Well, now that I feel like making a fool out of my self, and showing off my poor grammar & spelling skills. I tell you all what it was like for me on my year of combo. The first six months of treatment I was doing 5 million IU of IFN daily with 800 mg of RVI. the first thing that gave me trouble were my eyes, they would blur badly all the time, and were so dry I had to stay away from any open flame, I was afraid they would burst into flame. I should say that I have been legally blind all of my life, and with my eyes so blurred I was really in trouble. The next thing was my skin got so dry I thought if I moved I would crack. Now I'll tell you, I was born with albinism a lack of pigment in my skin, and hair, which while on treatment made it all most impossible for me to go out in the sun, even if I sat to close to a window I could feel the sun burning me, and of all places to live, I live in the desert in Southern Calif. If I had to go out in the sun I had to ware long sleeve shirt with a hood and a hat with sunglasses, I look something like the invisible man, and felt like the mummy on bad drugs. I started antidepressants just before treatment, but even with antidepressants, I still felt really down most of the time, I'm a man so I never cry, Ho! Ho! but while on treatment I would feel myself start to cry at al most anything, I would find myself crying at sad commercials on TV, especially dog food commercials, OK so I'm a little crazy, but those hungry dogs made me so sad, I'm also a very easy going person, but on treatment I found myself being short with people around me, to tell the truth if I had the energy I'd like to slap them, just kidding, but really people could really get on my nerves. I could sleep 18 hours a day, and still be tired. One good thing I lost 40 lb. while on treatment, one bad thing after treatment I found almost all those lb. The best part of all, I'm 15 months past end of treatment and still undetectable, everything is back to normal, and I feel better then before I started treatment. So to all of you out there on combo, or thinking about starting treatment, " I say go for it. " What's life without a little excitement? Take care. Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Well, now that I feel like making a fool out of my self, and showing off my poor grammar & spelling skills. I tell you all what it was like for me on my year of combo. The first six months of treatment I was doing 5 million IU of IFN daily with 800 mg of RVI. the first thing that gave me trouble were my eyes, they would blur badly all the time, and were so dry I had to stay away from any open flame, I was afraid they would burst into flame. I should say that I have been legally blind all of my life, and with my eyes so blurred I was really in trouble. The next thing was my skin got so dry I thought if I moved I would crack. Now I'll tell you, I was born with albinism a lack of pigment in my skin, and hair, which while on treatment made it all most impossible for me to go out in the sun, even if I sat to close to a window I could feel the sun burning me, and of all places to live, I live in the desert in Southern Calif. If I had to go out in the sun I had to ware long sleeve shirt with a hood and a hat with sunglasses, I look something like the invisible man, and felt like the mummy on bad drugs. I started antidepressants just before treatment, but even with antidepressants, I still felt really down most of the time, I'm a man so I never cry, Ho! Ho! but while on treatment I would feel myself start to cry at al most anything, I would find myself crying at sad commercials on TV, especially dog food commercials, OK so I'm a little crazy, but those hungry dogs made me so sad, I'm also a very easy going person, but on treatment I found myself being short with people around me, to tell the truth if I had the energy I'd like to slap them, just kidding, but really people could really get on my nerves. I could sleep 18 hours a day, and still be tired. One good thing I lost 40 lb. while on treatment, one bad thing after treatment I found almost all those lb. The best part of all, I'm 15 months past end of treatment and still undetectable, everything is back to normal, and I feel better then before I started treatment. So to all of you out there on combo, or thinking about starting treatment, " I say go for it. " What's life without a little excitement? Take care. Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Lora My goodness! Keep up the great attitude. My family has been sick too and I've been taking care of them. I'm so very tired from the treatment, now have strep/sinus infection and taking care of hubby. Do men " ever " grow up? hahahahaha just kidding alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Lora My goodness! Keep up the great attitude. My family has been sick too and I've been taking care of them. I'm so very tired from the treatment, now have strep/sinus infection and taking care of hubby. Do men " ever " grow up? hahahahaha just kidding alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Lora So glad that you are happy with your doctor and his assistant that is a very important thing. Takes some of the stress off of you and we know stress is not good for you. My husbnd has always had a organ donor card in his wallet and now like you he has few organs left that he can donate after his death and we comment on that as you and your husband do. Good luck on the COLONOSCOPY I know that will not be much fun. Staying positive is the best medicine of all and you are doing a good job of that. You are in our prayers. Staying positive ourselves her in old MS. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Lora So glad that you are happy with your doctor and his assistant that is a very important thing. Takes some of the stress off of you and we know stress is not good for you. My husbnd has always had a organ donor card in his wallet and now like you he has few organs left that he can donate after his death and we comment on that as you and your husband do. Good luck on the COLONOSCOPY I know that will not be much fun. Staying positive is the best medicine of all and you are doing a good job of that. You are in our prayers. Staying positive ourselves her in old MS. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 --- Lorad8@... wrote: Isn't it ironic that > I am one of the few people that are WILLING to be an > organ donor, and I will > probably have minimal organs that are donatable! Dear Lora, Unless someday they have a 100% cure for HCV you will not be able to donate ANY organs! The risk of infecting the donee with HCV is too great. I'm glad to hear you are doing ok on the treatment so far. I hope they figure out why your Hgb. is so low without doing a million tests! Good luck! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 --- Lorad8@... wrote: Isn't it ironic that > I am one of the few people that are WILLING to be an > organ donor, and I will > probably have minimal organs that are donatable! Dear Lora, Unless someday they have a 100% cure for HCV you will not be able to donate ANY organs! The risk of infecting the donee with HCV is too great. I'm glad to hear you are doing ok on the treatment so far. I hope they figure out why your Hgb. is so low without doing a million tests! Good luck! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Alley Pat, Nahhhhh, I don't think men EVER grow up! LOL...... Hope your weekend turns out better than it started. Good luck with those headaches. Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Alley Pat, Nahhhhh, I don't think men EVER grow up! LOL...... Hope your weekend turns out better than it started. Good luck with those headaches. Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Alley Pat, Nahhhhh, I don't think men EVER grow up! LOL...... Hope your weekend turns out better than it started. Good luck with those headaches. Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Alley Pat, Nahhhhh, I don't think men EVER grow up! LOL...... Hope your weekend turns out better than it started. Good luck with those headaches. Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Les Love to hear your news of still being undetectable. My husband has been on the treatment for a year now and we are going to do daily dosing the next 2 months that the doctor wants him to stay on the treatment and hoping to get the same out come as you I wish that for everyone. It has been a bad time this past year with all the sides and the secondary infection he has of Porphyria but he says he would still have gone on the treatment no matter what. Thanks for your news it is inspiring to others. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Les Love to hear your news of still being undetectable. My husband has been on the treatment for a year now and we are going to do daily dosing the next 2 months that the doctor wants him to stay on the treatment and hoping to get the same out come as you I wish that for everyone. It has been a bad time this past year with all the sides and the secondary infection he has of Porphyria but he says he would still have gone on the treatment no matter what. Thanks for your news it is inspiring to others. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Les Love to hear your news of still being undetectable. My husband has been on the treatment for a year now and we are going to do daily dosing the next 2 months that the doctor wants him to stay on the treatment and hoping to get the same out come as you I wish that for everyone. It has been a bad time this past year with all the sides and the secondary infection he has of Porphyria but he says he would still have gone on the treatment no matter what. Thanks for your news it is inspiring to others. Winne Quote Link to comment Share on other sites More sharing options...
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