FW: [hepati] Comments from ya'll

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From: GSTahoe@...

> I just thought maybe someone knows

> of somewhere you can get assistance. would appreciate any help. Oh yea she

> is in ohio in case maybe there is some type of help in that state.

>

Have your friend check with her Gastroenterologist about FDA research for the

approval of new Interferon drugs. The drug companies have programs where you

can volunteer to try new forms of interferon, i.e., pegylated interferon, and

they will pay for part or all of the bill.

*********************************

Contact Schering for Friend's Meds

From: jc2000inpa@...

Hi...have your friend call the Commitment to Care

Program @ Schering-Plough. It is a program to help

those who cannot afford their meds. Also go to

Hepatitis Neighborhood, go to the Priority Med Section

and they too, have a program to help with acquiring

meds, for low-income people. I do believe that both

will even handle the contacting the insurance company

and working out the details. The ordering physician

may also have to get involved, by writing a medically

necessary letter to the insurance company.

If you do not have the addresses, let me know and I

can send them to you...just to early to turn on all

those bright lights...didn't sleep well, and hoping to

answer a few mails and get a few more hours of

shuteye. Let me know, if I can help.

Remember we are never alone when we are here ....JUNE

*********************************

From: nightsky@...

Hello,

Schering Plough has programs to help people who cannot afford or do not

have insurance coverage. This was a couple of years ago but I don't think

that is a problem. Call: 1-800 222-7579 or 1-800-483-6760. Someone will lead

you in the right direction.

Good Luck,

*********************************

From: jdaly@...

Priority Health care works with my insurance directly to receive

payment. At first my insurance said they would not pay the costs at

all. At this time 11 months into treatment they have been paying. You can

reach Priority Healthcare Corp @ 877-761-4743, they are located in Lake

, FL 32746.

Good Luck to your friend, she is lucky to have you.

*********************************

From: objectivemedicine@...

In answer to the question about financial assistance, there is a helpful

link in the Hepatitis Database go to:

http://www.objectivemedicine.com/dbsearch.htm

Then select:

Support Groups

Financial Help

R

*********************************

From: Cozzzyyy@...

I am on treatment but my insurance covers 100% which I am very

fortunate......Let your friend know if she needs someone to talk with she can

with me. The first night will be her worst....but the next day it gets

better.

Cosy

*********************************

Drug Discovery Programs

<A HREF= " http://www.ptcbio.com/antiv.html " >http://www.ptcbio.com/antiv.html

</A>

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[hepati] Comments from ya'll

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From: GSTahoe@...

> I just thought maybe someone knows

> of somewhere you can get assistance. would appreciate any help. Oh yea she

> is in ohio in case maybe there is some type of help in that state.

>

Have your friend check with her Gastroenterologist about FDA research for the

approval of new Interferon drugs. The drug companies have programs where you

can volunteer to try new forms of interferon, i.e., pegylated interferon, and

they will pay for part or all of the bill.

*********************************

Contact Schering for Friend's Meds

From: jc2000inpa@...

Hi...have your friend call the Commitment to Care

Program @ Schering-Plough. It is a program to help

those who cannot afford their meds. Also go to

Hepatitis Neighborhood, go to the Priority Med Section

and they too, have a program to help with acquiring

meds, for low-income people. I do believe that both

will even handle the contacting the insurance company

and working out the details. The ordering physician

may also have to get involved, by writing a medically

necessary letter to the insurance company.

If you do not have the addresses, let me know and I

can send them to you...just to early to turn on all

those bright lights...didn't sleep well, and hoping to

answer a few mails and get a few more hours of

shuteye. Let me know, if I can help.

Remember we are never alone when we are here ....JUNE

*********************************

From: nightsky@...

Hello,

Schering Plough has programs to help people who cannot afford or do not

have insurance coverage. This was a couple of years ago but I don't think

that is a problem. Call: 1-800 222-7579 or 1-800-483-6760. Someone will lead

you in the right direction.

Good Luck,

*********************************

From: jdaly@...

Priority Health care works with my insurance directly to receive

payment. At first my insurance said they would not pay the costs at

all. At this time 11 months into treatment they have been paying. You can

reach Priority Healthcare Corp @ 877-761-4743, they are located in Lake

, FL 32746.

Good Luck to your friend, she is lucky to have you.

*********************************

From: objectivemedicine@...

In answer to the question about financial assistance, there is a helpful

link in the Hepatitis Database go to:

http://www.objectivemedicine.com/dbsearch.htm

Then select:

Support Groups

Financial Help

R

*********************************

From: Cozzzyyy@...

I am on treatment but my insurance covers 100% which I am very

fortunate......Let your friend know if she needs someone to talk with she can

with me. The first night will be her worst....but the next day it gets

better.

Cosy

*********************************

Drug Discovery Programs

<A HREF= " http://www.ptcbio.com/antiv.html " >http://www.ptcbio.com/antiv.html

</A>

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[hepati] Comments from ya'll

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From: energymc@...

Why on earth was this posted? What the hell does this person's opinion have

to do with reality? By the way, I thought the election was over. Silly me.

Carol

----- Original Message -----

> clinton's health care plan

>

> From: Neil315@...

>

DO NOT BELIEVE ME

> educate yourself.bill and hillary's health care plan had a cap on services

> and an age limit on transplant's- too old --tough.it was rationed health

care

> for us but not for her and bill and the rest of the washington crowd--they

> were exempt.

DO NOT BELIEVE HIM. Educate yourself. The above statement is not his opinion,

it’s a

fact. You should be able to find Hillary’s health care proposal on the

internet somewhere.

Merry Christmas,

Chuck Demastus

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From: energymc@...

Why on earth was this posted? What the hell does this person's opinion have

to do with reality? By the way, I thought the election was over. Silly me.

Carol

----- Original Message -----

> clinton's health care plan

>

> From: Neil315@...

>

DO NOT BELIEVE ME

> educate yourself.bill and hillary's health care plan had a cap on services

> and an age limit on transplant's- too old --tough.it was rationed health

care

> for us but not for her and bill and the rest of the washington crowd--they

> were exempt.

DO NOT BELIEVE HIM. Educate yourself. The above statement is not his opinion,

it’s a

fact. You should be able to find Hillary’s health care proposal on the

internet somewhere.

Merry Christmas,

Chuck Demastus

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[hepati] Comments from ya'll

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Hillary’s Health Care Plan

*****************************************

From: Angls4Hope@...

Thanks for this post Chuck and a reminder of educating and empowering

yourselves. Unfortunately, we are getting slammed from all sides by our

governement with our healthcare and personally I DO NOT TRUST any of them.

Angel Huggzz

~~~~~~~~~~~~~~~~~~~~~~~~

From: lewtom@...

Is this site a political forum or a health forum? Let's stick to HCV

info!!!!

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[hepati] Comments from ya'll

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Hillary’s Health Care Plan

*****************************************

From: Angls4Hope@...

Thanks for this post Chuck and a reminder of educating and empowering

yourselves. Unfortunately, we are getting slammed from all sides by our

governement with our healthcare and personally I DO NOT TRUST any of them.

Angel Huggzz

~~~~~~~~~~~~~~~~~~~~~~~~

From: lewtom@...

Is this site a political forum or a health forum? Let's stick to HCV

info!!!!

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[hepati] Comments from ya'll

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Re: Newly-Identified Virus May Cause Hepatitis

From: nightsky@...

Hi ,

I am sure not happy to see this. Remember the blood transfusion I had due to

the GI Bleed in Oct. Does this mean I could have gotten another Hepatitis??

This SEN-V doesn't have a screening test yet does it. Not panic, just

anxious.

**************************************

Re: Stealth Invaders

From: Neil315@...

great new's---after 3 month's of combo therapy my viral count is

undetectable.the dr.will still keep me on med's for the rest of the 48 week

treatment due to the amount of damage to my liver.

neil

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Re: Newly-Identified Virus May Cause Hepatitis

From: nightsky@...

Hi ,

I am sure not happy to see this. Remember the blood transfusion I had due to

the GI Bleed in Oct. Does this mean I could have gotten another Hepatitis??

This SEN-V doesn't have a screening test yet does it. Not panic, just

anxious.

**************************************

Re: Stealth Invaders

From: Neil315@...

great new's---after 3 month's of combo therapy my viral count is

undetectable.the dr.will still keep me on med's for the rest of the 48 week

treatment due to the amount of damage to my liver.

neil

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From: WKeller2@...

I have had Hep C for at least 16 years. They believe it could be even

longer. We are not sure how I contacted it, but out of three children, my 15

year old also has it. He had a liver biopsy last January and luckily it

showed no signs of liver damage (inflammation was present) This was done

because of fluxuating liver enzyme levels. Because this was so rare in a

child the doctor that was following my son and I together. He wanted to

start my son on treatment this past June, but would not agree to a biopsy.

I had to take him to two other doctors before I found one that would agree

to the biopsy. I wanted another opinion and the biopsy before I made the

decision on the treatment. I just didn't want to put him through it if we

could avoid it for now. It is a decision I will always be glad I made. At

least for now.

My levels (done every 6 months)have always read high in the normal range.

But for the past few months I have been tired, my bones aching and my memory

has gotten really bad off and on. I have just turned 40 and just believe

it's something besides getting older. I just read where Hep C can cause

these symptoms. My doctor (just like my son)does not feel cause for a

biopsy. Do you think I should try to find one that will agree to give me

one? I try to keep up with all the information your group sends, but

dealing with referrals, etc. makes it hard to decide whether I should pursue

a second opinion. I have read that just because the levels are normal, it

doesn't mean that there isn't damage occurring. Could it be that the

sluggishness, forgetfulness and aching bones are really a part of this

disease for me even though my levels are normal?

I appreciate any thoughts you have.

Thanks

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[hepati] Comments from ya'll

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From: WKeller2@...

I have had Hep C for at least 16 years. They believe it could be even

longer. We are not sure how I contacted it, but out of three children, my 15

year old also has it. He had a liver biopsy last January and luckily it

showed no signs of liver damage (inflammation was present) This was done

because of fluxuating liver enzyme levels. Because this was so rare in a

child the doctor that was following my son and I together. He wanted to

start my son on treatment this past June, but would not agree to a biopsy.

I had to take him to two other doctors before I found one that would agree

to the biopsy. I wanted another opinion and the biopsy before I made the

decision on the treatment. I just didn't want to put him through it if we

could avoid it for now. It is a decision I will always be glad I made. At

least for now.

My levels (done every 6 months)have always read high in the normal range.

But for the past few months I have been tired, my bones aching and my memory

has gotten really bad off and on. I have just turned 40 and just believe

it's something besides getting older. I just read where Hep C can cause

these symptoms. My doctor (just like my son)does not feel cause for a

biopsy. Do you think I should try to find one that will agree to give me

one? I try to keep up with all the information your group sends, but

dealing with referrals, etc. makes it hard to decide whether I should pursue

a second opinion. I have read that just because the levels are normal, it

doesn't mean that there isn't damage occurring. Could it be that the

sluggishness, forgetfulness and aching bones are really a part of this

disease for me even though my levels are normal?

I appreciate any thoughts you have.

Thanks

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[hepati] Comments from ya'll

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Re: Holistic Way

From: CANDACEMORAN@...

I read the first post. What is Coenzyme Q12? Bob

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Coenzyme Q10 (ubiquinone/ubiquinol) is a fat-soluble quinone with a structure

similar to

that of vitamin K. It is a powerful antioxidant both on its own and in

combination with

vitamin E and is vital in powering the body's energy production (ATP) cycle.

CoQ10 is

found throughout the body in cell membranes, especially in the mitochondrial

membranes

and is particularly abundant in the heart, lungs, liver, kidneys, spleen,

pancreas and adrenal

glands. The total body content of CoQ10 is only about 500-1500 mg and

decreases with

age(5).

http://www.yourhealthbase.com/coenzyme_Q10.html

****************************************

From: makwa@...

Please get another doctor asap. You need to know the condition of your

liver

to be able to make any treatment decisions. You can have normal lft's

and still develop fibrosis and cirrhosis.

My first doctor refused to do a biopsy.

He said I had a history of depression and wouldn't treat me so why do a

biopsy !!!

Four years later I get a biopsy and I have cirrhosis. My lft's were

never very high, 10-20 points above normal.

Please don't make the same mistake I did.... learn all you can and take

charge of your medical care. Remember the doctor

works for you.

hugs,

Judy

" He who knows others is wise; / He knows himself is

enlightened. "

--Lao-Tzu

**********************************************

From: deboerm@...

egroups

RE: Holistic article that was just posted.

Hmmm, well, I am wondering why they recommend

atleast 8 oz. of water a day on that article. Eight oz of water

a day would not be enough for anyone, especially those

of us with health concerns.

It's actually atleast 48 oz a day, if I remember right. Now some days I

don't drink quite that much, but pretty close, otherwise I feel bad.

I also think that CoQ10 is very important, I see it listed, but not in

the important list.

I've talked to alot of people that take CoQ10 and have hep c, and it

definetly improves our energy level.

Sometimes I forget mine, oops! well, that's when I forget to take

my Ginko Biloba, my brain pill.

Echinecea is a great one, I start taking mine at the first sign of a

cold and it nips it in the bud. I also give it to my kids when they need

it and all 3 that are in school have had perfect attendence this year so

far!!

Sometimes I take it just when I'm feeling blah.

I guess we can't take it long term, but here and there, so I settle for

that.

Anyway, I believe it's 6- 8oz glasses of water a day!!

Take care,

Sherry