Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 December 2009 Volume 6 Issue 4 B News...You Can Use The e-newsletter of the Hepatitis B Foundation <http://www.baldwinpublishing.com/home/siteCode/HepBInform/> www.hepb.org Online Survey for Parents of Children with Hepatitis B Please help HBF collect this important information!! http://www.zoomerang.com/Survey/WEB229Q2LUXL26 The Hepatitis B Foundation has initiated an important program that focuses on the needs of children with hepatitis, a group that is too often overlooked. In an effort to better identify the specific information needs of these children and their parents we are gathering information through an online survey and need YOUR help! If you are a parent, please take just a few minutes to complete our short, user-friendly online survey. Questions include type of care your child receives, barriers to care, treatment issues, and possible adverse experiences. If you know someone who is a parent, then please forward this request to them for their help! http://www.zoomerang.com/Survey/WEB229Q2LUXL26 Please know that all responses will be kept strictly confidential and no personal information will be included in our published results. If you have any questions, feel free to contact Chari Cohen. Thank you so much for your time and best wishes for a healthy, happy holiday season! Your Friends at the Hepatitis B Foundation U.S. Legislator Battling Hepatitis C Congressman Hank , of the 4th congressional district in Atlanta, announced on December 7 that he has been battling a chronic hepatitis C infection for over a decade. He learned of his infection in 1998, and is currently undergoing an experimental treatment to put the virus into remission. Although he does not know how he contracted his infection, the hepatitis C virus (HCV) is transmitted through direct contact with infected blood. It is believed that at least 4 million people in the U.S. have HCV, though many infections continue to be undiagnosed due to the silent nature of the infection. Mr. is the first member of Congress to publicly acknowledge having hepatitis C and has voiced his active support of the current Viral Hepatitis and Liver Cancer Prevention and Control Act (HR 3974) that was recently introduced in Congress. Liver Cancer Still Rising in Both Men and Women Interventions needed to reduce death rates For the third consecutive year, liver cancer incidence (new cases) and mortality (deaths) rates both increased, according to the recently published Annual Report to the Nation on the Status of Cancer which offers detailed results of a collaborative effort to provide updated information regarding cancer trends in the U.S. by the American Cancer Society (ACS), the Centers for Disease Control and Prevention (CDC), the National Cancer Institute (NCI), and the North American Association of Central Cancer Registries (NAACCR). Liver cancer was the second cause of cancer death for Asian and Pacific Islander men (behind lung cancer). Liver cancer was also the only cancer whose death rate increased among both men and women. Because of this, the sponsoring organizations conclude that we need to " identify and implement interventions that can reduce mortality from this cancer. " HBF 2009 Annual Report Download it now!! The Hepatitis B Foundation's 2009 Annual Report celebrates that today we have become a primary resource for information about HBV and our website www.hepb.org receives 1 million visits from 180 countries. We also probably have the largest concentration of HBV scientists working together through the creation of our research institute - the Institute for Hepatitis and Virus Research (IHVR) - and partnership with Drexel University. With 23 principal investigators (13 working in IHVR labs and 10 sponsored by HBF in Drexel labs) and additional research support staff, we are now under one roof in the PA Biotechnology Center that we created to accelerate our research mission. Although the economy took a dip this year, the need for helping those with HBV remained constant. We did not relax nor reduce our effort. Please enjoy reading about our achievements this year, and know that we look forward to the new opportunities in 2010! Surveillance for Liver Cancer Improves Survival in Asian Patients with Hepatitis B Recently reported results of a study in the U.S. found that Asian American patients with chronic HBV who underwent surveillance for primary liver cancer (hepatocellular carcinoma, HCC) using alpha-fetoprotein (AFP blood test) and ultrasound had improved survival over patients who had no history of surveillance. The study looked at individuals between 1991 to 2008 who visited a community clinic in California. Surveillance identified tumors at earlier stages in patients who had better liver function. This related to improved 1,3, and 5-year survival over those who presented to the clinic already with HCC. The researchers conclude that HCC surveillance should be included as standard of care for chronic HBV patients. [Journal of Digestive Diseases and Sciences, Online Early] Must Reads Hepatitis B publications you don't want to miss!! ·Treatment of viral hepatitis in pregnancy. Expert Opinion on Pharmacotherapy. December 2009;10(17):2801-2809. ·Hepatitis B therapies and antiviral resistance detection and management. Expert Review of Gastroenterology & Hepatology. December 2009;3(6): 693-699. ·Peginterferon-alpha-2a: A review of its use in chronic hepatitis B. Drugs. 2009;69(18):2633-60. ·Recommendation for screening, monitoring and referral of pediatric chronic hepatitis B. Pediatrics, November 2009;124:e1007-e1013. Boost Your " B " Knowledge · Downloadable Slideset: Beyond the Tip of the Iceberg: Strategies to Ensure Optimal HBV Screening, Diagnosis and Initial Therapy. Clinical Care Options for Hepatitis. · Recommendations for Identification and Public Health Management of Persons with Chronic Hepatitis B Virus Infection. Centers for Disease Control and Prevention Continuing Medical Education Program continuing education course offering free online CME, CNE, CEU, and CECH credits. Expires Sept. 19, 2010. Calendar of Events ·February 5, 2010 - Southeastern Viral Hepatitis Summit, Research Triangle Park, N.C. Hosted by Hepatitis Foundation International. ·February 20, 2010 - AWARE for All - Clinical Research Education Day! Nashville, TN. Hosted by the Center for Information and Study on Clinical Research Participation (CISCRP). ·March 25-28, 2010 - APASL 2010, Beijing, China. Hosted by the Asian Pacific Association for the Study of the Liver. Dr. Block, HBF president, has been invited to give a talk at APASL. ·April 10, 2010 - Annual Crystal Ball Gala, Lansdale, Pennsylvania. Hosted by the Hepatitis B Foundation. Distinguished Scientist 2010 Award Recipient: R. Palmer Beasley, MD, Professor and Dean Emeritus, School of Public Health, The University of Texas Health Science Center at Houston. Quote Link to comment Share on other sites More sharing options...
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