Leaving group for a short while/ Thanks for support and Prayers

[Guest guest]

Dear Friends;

I need to put my email on limits. I will be

leaving town and unable to take care of the email

load. I will go on reading at the site but taking

my mail off recieving daily digests.

Thank you so much; You are an inspiration; I

appreciate your concerns for my granddaughter (5

yrs old) too;(Open heart Surgery takes place on

Mar 28) I will keep you posted on how she is

doing; We leave Sunday for Tampa FL to go through

surgery with her and her Mom and (step) Father.

I do understand about having to rearrange your

life; I too have had to give up things I strived

and worked hard to build my own businesses, no

longer able to drive safely, so I'm losing my

independance, and unable to volunteer and do

things I used to help others to do, and taught

school and loved teaching but had to give that

up; I am in the process of finding things I can

still do to feel useful and productive; I don't

travel well anymore, use a TENS unit so I can

when my family NEEDS me to.

I am recieving P.T. twice a week, for now which I

hope medicare will cover most of it. I get warm

water therapy for 30 minutes and massage therapy

for 30 minutes. (depending on others to transport

me there regularly)

I, at least, have been able to do some things, in

the past, and have wonderful experiences to

reflect on; (I hiked to the bottom of the Grand

Canyon and back in a day, used to run five miles

a day and even won a cross country race; taught

aerobic dance for a few years for YMCA )in my

younger days, and I appreciate and am thankful

for those experiences.

But, life itself is a series of opportunities

(some,even normal folks, let those opportunites

pass them by unnoticed) and I intend to continue

to seize them (finding a way to do them if I CAN)

for you never know where they will lead you!

I am sorry for you that are affected younger, and

can understand, and empathize that you haven't

got to do allot in your life and it may have

ruined so many goals and plans but remember that

sometimes things happen for a reason and it

forces us to find talents and abilities we

wouldn't know (or develop) we had otherwise.

I am learning about myself and building my self

esteem in ways I never dreamed. If it weren't for

the CMT progression (forcing me to look for new

things to do and what I can still do) I might not

be finding those parts of myself that I find so

dear now!

I hope I inspire others in the process. . .and

teach my children to continue to find ways to be

ABLE not allow limits and disability to be their

WAY of life or copping out! I find " The GREATEST

Disability is in your mind or attitude! "

I have developed my singing voice and share music

with others, (going to nursing homes and schools

etc.)writing articles to help others, poetry and

song lyrics,learning about web design (I'd never

turned on a computer, let alone knew how to use

it) and working on my page to share with others

and inspire them to search for a " new and better "

person inside themselves! What we ARE or become

isn't synonomous with what we CAN DO! But, my CMT

has forced me to GROW in things I probably never

would have pursued!

This is WHY I believe, " I HAVE CMT,it doesn't

HAVE ME! " And, my FAITH and TRUST in a HIGHER

POWER, knowing what is best for me in the end;

MY CMT weakness (physically) makes me a stronger

person in character! " My GREATEST WEAKNESS,

becomes MY GREATEST STRENGTH! " I pray I become a

better person and become an instrument in HIS

hands, for HIS purposes!

Remember how much we are all loved and do love

and support one another!

" Love isn't about what we are expecting to get,

but what we are expecting to give! " GOD IS LOVE!

Thank you for your friendship and support! You

are encouraging me to continue on, and lately I

have been depressed (I had severe reaction to

medicine and can't take any for pain or

depression) and wasn't coping well! You have been

an instrument to change all that!

Lots of Hugs, Friendship and Prayers;

Libby

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" I THANK GOD FOR MY HANDICAPS, FOR, THROUGH THEM, I HAVE FOUND MYSELF, MY WORK,

AND MY GOD. " - Helen Keller

" A friend is someone who knows the song in your heart and can sing it back to

you when you have forgotten the words. "

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Living w/CMT http://www.geocities.com/charcot_marie_tooth

" Nobody can make you feel inferior without your permission. " -Eleanor Roosevelt-

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