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The Voices of Hepatitis

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http://well.blogs.nytimes.com/2010/12/14/the-voices-of-hepatitis/?partner=rss & em\

c=rss

December 14, 2010, 1:54 pm

The Voices of Hepatitis

By KAREN BARROW

Hey you all, check this out! Our Will Green is featured in articles on the New

York Times, an audio interview and a written blurb. There are others also

featured. We first met when Will was newly diagnosed and came to our very first

B Informed Patient Conference looking for information and support, as were the

rest of us. There is also info and audio presentations from people with

Hepatitis C too. Ahhh, I'll be darn! And, as I listened to this, here is an

audio from our list creator and Dad, Steve Bingham too!

Patient Voices on the NY Times:

http://www.nytimes.com/interactive/2010/12/15/health/healthguide/TE_HEPATITIS.ht\

ml

One in 20 people will come into contact with hepatitis virus at some point, but

fortunately, only a small percentage develop a lasting case of the disease.

Still, millions suffer from a chronic form of hepatitis.

The different forms of hepatitis virus are lettered hepatitis A, B, C, D and E —

with different courses and outcomes for each type of infection. In today’s

Patient Voices segment, we hear from six men and women who are living with

either hepatitis B or hepatitis C, which cause chronic hepatitis.

Gail Brown, 57, believes she contracted hepatitis C when she was actively using

intravenous drugs. It wasn’t until she became sober at age 39 that she realized

the damage hepatitis had done to her liver.

“The insidious part of the disease is that you are symptom free until your liver

becomes severely damaged,” she said. It took five years for Ms. Brown to receive

a liver transplant. That, and years of antiviral treatment, has helped her body

fight off the effects of the virus.

Arline Loh, 61, an Asian immigrant, contracted the hepatitis B virus from her

mother at birth. However, she was not tested for it until she was 39, after she

had already transmitted the virus to her three children. Now, Ms. Loh is as an

outreach volunteer for Cornell Medical Center in New York and works to educate

others about the importance of testing and vaccination against hepatitis B.

“The Asians don’t like to talk about the disease because of the stigma,” she

said. “They are so afraid if they tell anyone they will lose all their friends.”

The American Liver Foundation estimates that chronic hepatitis B affects one in

10 Asian-Americans, though the virus can be transmitted to anyone through blood

exchange or sexual relations.

To hear more, listen to all the voices of hepatitis.

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