Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 Alley, I have just one thing to say. SH**!!!! Can't believe all you are going through. TRY to stay positive, Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 Alley, I have just one thing to say. SH**!!!! Can't believe all you are going through. TRY to stay positive, Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 Alley, I have just one thing to say. SH**!!!! Can't believe all you are going through. TRY to stay positive, Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 Alley, I have just one thing to say. SH**!!!! Can't believe all you are going through. TRY to stay positive, Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 --- " Ken & Pat @home " <alleypat@...> wrote: > > I'm in my 5th mo. So I should just dump the combo > and go back to feeling like I'm 100 years old again? What, does he think you should just stop after 5 months!! My doctor that I used to see, who was very good, quit too. What I soon realized was that he was the only doctor in that group who really knew anything about HCV. He had, until then, handled all their HCV cases. When I saw one of his ex-partners he told me to come back in 5 years, maybe there would be something new by then! Translated, that meant 'I really don't know anything about HCV and really don't want to learn! Go Away!!!' No, I say dump the doctor, not the combo. I'd get on the phone first thing Monday and start calling around looking for a new GI. Don't you have a support group? Maybe they know someone. Call your insurance co. To stop now is the same as them throwing away all the money they have spent so far. Good luck!! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 --- " Ken & Pat @home " <alleypat@...> wrote: > > I'm in my 5th mo. So I should just dump the combo > and go back to feeling like I'm 100 years old again? What, does he think you should just stop after 5 months!! My doctor that I used to see, who was very good, quit too. What I soon realized was that he was the only doctor in that group who really knew anything about HCV. He had, until then, handled all their HCV cases. When I saw one of his ex-partners he told me to come back in 5 years, maybe there would be something new by then! Translated, that meant 'I really don't know anything about HCV and really don't want to learn! Go Away!!!' No, I say dump the doctor, not the combo. I'd get on the phone first thing Monday and start calling around looking for a new GI. Don't you have a support group? Maybe they know someone. Call your insurance co. To stop now is the same as them throwing away all the money they have spent so far. Good luck!! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 --- " Ken & Pat @home " <alleypat@...> wrote: > > I'm in my 5th mo. So I should just dump the combo > and go back to feeling like I'm 100 years old again? What, does he think you should just stop after 5 months!! My doctor that I used to see, who was very good, quit too. What I soon realized was that he was the only doctor in that group who really knew anything about HCV. He had, until then, handled all their HCV cases. When I saw one of his ex-partners he told me to come back in 5 years, maybe there would be something new by then! Translated, that meant 'I really don't know anything about HCV and really don't want to learn! Go Away!!!' No, I say dump the doctor, not the combo. I'd get on the phone first thing Monday and start calling around looking for a new GI. Don't you have a support group? Maybe they know someone. Call your insurance co. To stop now is the same as them throwing away all the money they have spent so far. Good luck!! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 --- " Ken & Pat @home " <alleypat@...> wrote: > > I'm in my 5th mo. So I should just dump the combo > and go back to feeling like I'm 100 years old again? What, does he think you should just stop after 5 months!! My doctor that I used to see, who was very good, quit too. What I soon realized was that he was the only doctor in that group who really knew anything about HCV. He had, until then, handled all their HCV cases. When I saw one of his ex-partners he told me to come back in 5 years, maybe there would be something new by then! Translated, that meant 'I really don't know anything about HCV and really don't want to learn! Go Away!!!' No, I say dump the doctor, not the combo. I'd get on the phone first thing Monday and start calling around looking for a new GI. Don't you have a support group? Maybe they know someone. Call your insurance co. To stop now is the same as them throwing away all the money they have spent so far. Good luck!! Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 Alley. Look what happened to me when I was pulled at 5 1/2 months. My Viral load shot up to 29 million in 4 months from 350 thousand. Do you get mail from Hep C info? there is a link on the messages to go to there home page. It has a list of good Dr's maybe some in your area. DO NOT STOP. The Dr who did my last viral load was just about as competent as the one you are talking about. He told me to just wait till something new came along because I was a non responder after 5 1/2 months. I responded I went from 12.5 mill to 350 thous I am a 1a which needs to be treated longer than 6 months. I was mad as hell at him too....Take Care I wrote to Sheltie House but have not received a reply but left my address so maybe they will mail me an application, Thanks Again, Connie --- > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 Alley. Look what happened to me when I was pulled at 5 1/2 months. My Viral load shot up to 29 million in 4 months from 350 thousand. Do you get mail from Hep C info? there is a link on the messages to go to there home page. It has a list of good Dr's maybe some in your area. DO NOT STOP. The Dr who did my last viral load was just about as competent as the one you are talking about. He told me to just wait till something new came along because I was a non responder after 5 1/2 months. I responded I went from 12.5 mill to 350 thous I am a 1a which needs to be treated longer than 6 months. I was mad as hell at him too....Take Care I wrote to Sheltie House but have not received a reply but left my address so maybe they will mail me an application, Thanks Again, Connie --- > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 Alley. Look what happened to me when I was pulled at 5 1/2 months. My Viral load shot up to 29 million in 4 months from 350 thousand. Do you get mail from Hep C info? there is a link on the messages to go to there home page. It has a list of good Dr's maybe some in your area. DO NOT STOP. The Dr who did my last viral load was just about as competent as the one you are talking about. He told me to just wait till something new came along because I was a non responder after 5 1/2 months. I responded I went from 12.5 mill to 350 thous I am a 1a which needs to be treated longer than 6 months. I was mad as hell at him too....Take Care I wrote to Sheltie House but have not received a reply but left my address so maybe they will mail me an application, Thanks Again, Connie --- > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 Alley. Look what happened to me when I was pulled at 5 1/2 months. My Viral load shot up to 29 million in 4 months from 350 thousand. Do you get mail from Hep C info? there is a link on the messages to go to there home page. It has a list of good Dr's maybe some in your area. DO NOT STOP. The Dr who did my last viral load was just about as competent as the one you are talking about. He told me to just wait till something new came along because I was a non responder after 5 1/2 months. I responded I went from 12.5 mill to 350 thous I am a 1a which needs to be treated longer than 6 months. I was mad as hell at him too....Take Care I wrote to Sheltie House but have not received a reply but left my address so maybe they will mail me an application, Thanks Again, Connie --- > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 Thanks yall for being mad with me hahaha. Man, crackers and 7 Up are the meal of the day today. After having that sinus/migraine wed and getting those shots at ER, then dealing with this backwoods gastro (I'm trying to be nice and not cuss haha), I ended up doing the throne thing all nite and day. Ah well I needed a good cleaning out! Yes, I will not take this lying down. I will have to do my gastro shopping all over again. I've got a little over 2 months worth of combo left. My 6th month PCR is in Nov. Question - should I go ahead and do my PCR labwork now, instead of waiting a month? If I'm PCR negative, as a genotype 1B I would continue treatment, if I'm PCR positive, then it's a moot point to continue. What yall think? alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 Thanks yall for being mad with me hahaha. Man, crackers and 7 Up are the meal of the day today. After having that sinus/migraine wed and getting those shots at ER, then dealing with this backwoods gastro (I'm trying to be nice and not cuss haha), I ended up doing the throne thing all nite and day. Ah well I needed a good cleaning out! Yes, I will not take this lying down. I will have to do my gastro shopping all over again. I've got a little over 2 months worth of combo left. My 6th month PCR is in Nov. Question - should I go ahead and do my PCR labwork now, instead of waiting a month? If I'm PCR negative, as a genotype 1B I would continue treatment, if I'm PCR positive, then it's a moot point to continue. What yall think? alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 Thanks yall for being mad with me hahaha. Man, crackers and 7 Up are the meal of the day today. After having that sinus/migraine wed and getting those shots at ER, then dealing with this backwoods gastro (I'm trying to be nice and not cuss haha), I ended up doing the throne thing all nite and day. Ah well I needed a good cleaning out! Yes, I will not take this lying down. I will have to do my gastro shopping all over again. I've got a little over 2 months worth of combo left. My 6th month PCR is in Nov. Question - should I go ahead and do my PCR labwork now, instead of waiting a month? If I'm PCR negative, as a genotype 1B I would continue treatment, if I'm PCR positive, then it's a moot point to continue. What yall think? alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 Thanks yall for being mad with me hahaha. Man, crackers and 7 Up are the meal of the day today. After having that sinus/migraine wed and getting those shots at ER, then dealing with this backwoods gastro (I'm trying to be nice and not cuss haha), I ended up doing the throne thing all nite and day. Ah well I needed a good cleaning out! Yes, I will not take this lying down. I will have to do my gastro shopping all over again. I've got a little over 2 months worth of combo left. My 6th month PCR is in Nov. Question - should I go ahead and do my PCR labwork now, instead of waiting a month? If I'm PCR negative, as a genotype 1B I would continue treatment, if I'm PCR positive, then it's a moot point to continue. What yall think? alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 alleypat@... Pat writes: >>>>>>>> NOW they gave me a gastro who doesn't believe in treating people with normal liver enzymes and mild liver damage. << <<< Obviously this physician is uninformed about the current research studies that provide massive information regarding " liver function test and their significance in treating HCV. " (Claudine is so very right when she says this doctor is clueless!!) Quoting just one recent study (although there are several dozen I could have chosen from!) ..... Significance of baseline serum alanine aminotransferase (ALT) levels. The demographics of patients with mild chronic hepatitis C have not been well characterized. Stuart Gordon and colleagues identified 105 individuals with baseline serum ALT levels £1.3 x the upper limit of normal (ULN) from a pool of 1,744 patients with chronic hepatitis C who had taken part in antiviral studies. Although lower baseline histologic activity index scores were found in these 105 patients, the baseline serum ALT level was not related to either serum viral levels or HCV genotype. Also, no difference in sustained response to antiviral therapy was found between patients with baseline serum ALT levels £1.3 x ULN and those with baseline serum ALT levels >1.3 x ULN. These results suggest that patients with minimally elevated ALT levels have milder histologic disease but a similar sustained response rate to patients with higher ALT levels. (Gordon SC, et al. Hepatology 2000;32:400-404) We who study patients who are in end stage liver disease see no correlation between the standard acceptable ALT and enzyme levels and the patient's true liver health. This is one of the reasons that WE SUGGEST EVERYONE GET A LIVER BIOPSY! However evasive some believe it to be, unfortunately this is the best diagnostic tool available. This will change in the future! There are better MRI/ultra sound type machines being developed to aid in diagnostic capabilities. The future is looking brighter. We also are fighting to make sure that EVERY HMO or managed health care system realizes the potential in delaying these important tests and treatments. Sure your viral count may not be undetectable right now, but the research shows that at least your probably not progressing onto the next level or stage of liver disease while on combo. What I fear most is that your new 'DOC' may have a clue but is trying to save money. Some insurance plans give cash or other incentives for Doctors to delay treatment, even wait for a patients death (in some cases) hoping to save on their quarterly expenditures. Then last month I saw an internal memo from a very large health insurance company who said they are wanting patients to wait for PEG/Ribavirin to be available. And I quote... " Since over 60% of Hepatitis C patients identified by enrollment statistics have not benefited from the current mode of therapy, REBETRON, it is advised that physicians delay treatment until 2001 " Now since this was given to me by a discruntled patient, I am uncertain of it's authenticity, but I don't doubt this is the thought process of many patients and physicians from talking to many of them about their frustrations with Rebetron and anemia. >>>>>>I'm in my 5th mo. So I should just dump the combo and go back to feeling like I'm 100 years old again? <<<<< What I suggest you do if you want to continue on Rebetron is go to the Administrator if your health insurance company and respectfully, but sternly, suggest that you need to finish your 24 weeks or 48 weeks (which ever you are under) of combo that was prescribed by your former doctor! This is the health path you want to continue with and by law should be able to do! Start by calling them. Then follow up with a letter to EVERYONE INVOLVED! Your former doctor, your current doctor, your health plan administrator, the CEO of the company and if the results are the same, go to the media. You can print out several studies that will show that most patient's ALT and enzyme levels can return to 'normal' after beginning treatment! DUH.... the interferon can help your liver function ... that's the reason it's a treatment option for HCV!!!!!!!!!!! (Sorry, I just get so mad when I think about the thousands of patients like you who are fighting an ignorant system!) If you need assistance, write me and I can help! > Question - should I go ahead and do my PCR labwork > now, instead of waiting a > month? If I'm PCR negative, as a genotype 1B I would > continue treatment, if > I'm PCR positive, then it's a moot point to > continue. >> There is some speculation about the value of the PCR testing right after treatment stops. Even if it is reduced or undetectable, the tell tale sign will be the follow up testing... such as the first 6 months, the first year and the very valuable test the second year. (However, I have seen patients 'relapse' after 3 years, but it's usually after trauma or a dramatic health change regarding another health issue or immune system breakdown) If you just want to see what your viral count is and if the PCR comes back positive... DO it! (curiosity may get the best of you!) But the chances of a 1A or 1B patient having total success after just over 5 months of combo is slim (not impossible, mind you so stay hopeful). However, since you say you are feeling better since starting combo, then maybe this was the trick to get your immune system to attack the virus in earnest. Maybe you are slaying the dragon! Sharon Nicholson Hepatitis Education & Patient Coalition (H. E. P. C. in AZ) Executive Director <A HREF= " http://www.suite101.com/welcome.cfm/hepatitis_abc " >Hepatitis A, B, C's - Editor</A> http://www.suite101.com/welcome.cfm/hepatitis_abc Are you in ARIZONA? Then Join our e-group mailing list online! <A HREF= " ArizonaHepatitis C " >eGroups : ArizonaHepatitis C</A> ArizonaHepatitis C PS: Smiling releases tension and stress! But beware ... it can be contagious! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 alleypat@... Pat writes: >>>>>>>> NOW they gave me a gastro who doesn't believe in treating people with normal liver enzymes and mild liver damage. << <<< Obviously this physician is uninformed about the current research studies that provide massive information regarding " liver function test and their significance in treating HCV. " (Claudine is so very right when she says this doctor is clueless!!) Quoting just one recent study (although there are several dozen I could have chosen from!) ..... Significance of baseline serum alanine aminotransferase (ALT) levels. The demographics of patients with mild chronic hepatitis C have not been well characterized. Stuart Gordon and colleagues identified 105 individuals with baseline serum ALT levels £1.3 x the upper limit of normal (ULN) from a pool of 1,744 patients with chronic hepatitis C who had taken part in antiviral studies. Although lower baseline histologic activity index scores were found in these 105 patients, the baseline serum ALT level was not related to either serum viral levels or HCV genotype. Also, no difference in sustained response to antiviral therapy was found between patients with baseline serum ALT levels £1.3 x ULN and those with baseline serum ALT levels >1.3 x ULN. These results suggest that patients with minimally elevated ALT levels have milder histologic disease but a similar sustained response rate to patients with higher ALT levels. (Gordon SC, et al. Hepatology 2000;32:400-404) We who study patients who are in end stage liver disease see no correlation between the standard acceptable ALT and enzyme levels and the patient's true liver health. This is one of the reasons that WE SUGGEST EVERYONE GET A LIVER BIOPSY! However evasive some believe it to be, unfortunately this is the best diagnostic tool available. This will change in the future! There are better MRI/ultra sound type machines being developed to aid in diagnostic capabilities. The future is looking brighter. We also are fighting to make sure that EVERY HMO or managed health care system realizes the potential in delaying these important tests and treatments. Sure your viral count may not be undetectable right now, but the research shows that at least your probably not progressing onto the next level or stage of liver disease while on combo. What I fear most is that your new 'DOC' may have a clue but is trying to save money. Some insurance plans give cash or other incentives for Doctors to delay treatment, even wait for a patients death (in some cases) hoping to save on their quarterly expenditures. Then last month I saw an internal memo from a very large health insurance company who said they are wanting patients to wait for PEG/Ribavirin to be available. And I quote... " Since over 60% of Hepatitis C patients identified by enrollment statistics have not benefited from the current mode of therapy, REBETRON, it is advised that physicians delay treatment until 2001 " Now since this was given to me by a discruntled patient, I am uncertain of it's authenticity, but I don't doubt this is the thought process of many patients and physicians from talking to many of them about their frustrations with Rebetron and anemia. >>>>>>I'm in my 5th mo. So I should just dump the combo and go back to feeling like I'm 100 years old again? <<<<< What I suggest you do if you want to continue on Rebetron is go to the Administrator if your health insurance company and respectfully, but sternly, suggest that you need to finish your 24 weeks or 48 weeks (which ever you are under) of combo that was prescribed by your former doctor! This is the health path you want to continue with and by law should be able to do! Start by calling them. Then follow up with a letter to EVERYONE INVOLVED! Your former doctor, your current doctor, your health plan administrator, the CEO of the company and if the results are the same, go to the media. You can print out several studies that will show that most patient's ALT and enzyme levels can return to 'normal' after beginning treatment! DUH.... the interferon can help your liver function ... that's the reason it's a treatment option for HCV!!!!!!!!!!! (Sorry, I just get so mad when I think about the thousands of patients like you who are fighting an ignorant system!) If you need assistance, write me and I can help! > Question - should I go ahead and do my PCR labwork > now, instead of waiting a > month? If I'm PCR negative, as a genotype 1B I would > continue treatment, if > I'm PCR positive, then it's a moot point to > continue. >> There is some speculation about the value of the PCR testing right after treatment stops. Even if it is reduced or undetectable, the tell tale sign will be the follow up testing... such as the first 6 months, the first year and the very valuable test the second year. (However, I have seen patients 'relapse' after 3 years, but it's usually after trauma or a dramatic health change regarding another health issue or immune system breakdown) If you just want to see what your viral count is and if the PCR comes back positive... DO it! (curiosity may get the best of you!) But the chances of a 1A or 1B patient having total success after just over 5 months of combo is slim (not impossible, mind you so stay hopeful). However, since you say you are feeling better since starting combo, then maybe this was the trick to get your immune system to attack the virus in earnest. Maybe you are slaying the dragon! Sharon Nicholson Hepatitis Education & Patient Coalition (H. E. P. C. in AZ) Executive Director <A HREF= " http://www.suite101.com/welcome.cfm/hepatitis_abc " >Hepatitis A, B, C's - Editor</A> http://www.suite101.com/welcome.cfm/hepatitis_abc Are you in ARIZONA? Then Join our e-group mailing list online! <A HREF= " ArizonaHepatitis C " >eGroups : ArizonaHepatitis C</A> ArizonaHepatitis C PS: Smiling releases tension and stress! But beware ... it can be contagious! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 --- " Ken & Pat @home " <alleypat@...> wrote: > Question - should I go ahead and do my PCR labwork > now, instead of waiting a > month? If I'm PCR negative, as a genotype 1B I would > continue treatment, if > I'm PCR positive, then it's a moot point to > continue. Dear alley, I think you have a good point here. If you are not negative now, then the chance of becoming negative within one month is so very slim it would probably not be worth the hassle of finding a new doc fast. I'm sure you know the odds as well as I do. At least by doing a PCR now it does give you one more piece of info to work with a month earlier than you would have had it. And if you are negative, that will be a very good point to validate your position of wanting to stay on treatment. I'd still be looking for another doctor though. Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 --- " Ken & Pat @home " <alleypat@...> wrote: > Question - should I go ahead and do my PCR labwork > now, instead of waiting a > month? If I'm PCR negative, as a genotype 1B I would > continue treatment, if > I'm PCR positive, then it's a moot point to > continue. Dear alley, I think you have a good point here. If you are not negative now, then the chance of becoming negative within one month is so very slim it would probably not be worth the hassle of finding a new doc fast. I'm sure you know the odds as well as I do. At least by doing a PCR now it does give you one more piece of info to work with a month earlier than you would have had it. And if you are negative, that will be a very good point to validate your position of wanting to stay on treatment. I'd still be looking for another doctor though. Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 No Alley.......This is your decision. I'm a normal enzyme hepper too...but my diseae has progressed from the 1st -2nd biopsy I have moderate fibrosis and a viral load of 5,000,000. Hepc just doesn't affect the liver! I think it affects every part of my body....so that's an OLD thought he has. GRRRRRR!!! I hear you!!!! gee " We can do no great things; only small things with great Love. " Mother Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 Sharon thanks for your post With your permission I will cut and paste it to my PA who is a wonderful lady and doesn't agree with this gastro who will forward it to the gastro. I have had a biopsy - mild portal inflamation. Im working on getting copies of labs. My PA shows me my " chart " every time I see her and man, I gotta tell ya, if nobody knew I was on treatment, you couldn't tell it much by my labwork. Everything still pretty " normal " . I think the most change is in the thyroid and that only by 0.X points up and it makes me hotter than most people lol. But hey, I'm a hot woman! I doubt he's trying to save money. Heck, I don't have an HMO, I'm allergic to HMO's! And I've never met this guy. He told the PA when I asked to speak to him on the fone cause I felt so bad this past week from a sinus infection and headache, that he " doesn't talk to patients on the fone " . Well, I had a lot of 4 letter words for her to relay to him!!! Does the term " ANAL GASTRO " mean anything? haaaaaaaaaaaaaaa OK.. I'm venting more.. I should calm down hehe but man... some people! Well... if I am PCR zero at the 6th mo, they wil let me continue treatment. If I am PCR positive at 6th mo, they will pull me off treatment. So I'm wondering what a few weeks in my 5th month difference it would make. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 Sharon thanks for your post With your permission I will cut and paste it to my PA who is a wonderful lady and doesn't agree with this gastro who will forward it to the gastro. I have had a biopsy - mild portal inflamation. Im working on getting copies of labs. My PA shows me my " chart " every time I see her and man, I gotta tell ya, if nobody knew I was on treatment, you couldn't tell it much by my labwork. Everything still pretty " normal " . I think the most change is in the thyroid and that only by 0.X points up and it makes me hotter than most people lol. But hey, I'm a hot woman! I doubt he's trying to save money. Heck, I don't have an HMO, I'm allergic to HMO's! And I've never met this guy. He told the PA when I asked to speak to him on the fone cause I felt so bad this past week from a sinus infection and headache, that he " doesn't talk to patients on the fone " . Well, I had a lot of 4 letter words for her to relay to him!!! Does the term " ANAL GASTRO " mean anything? haaaaaaaaaaaaaaa OK.. I'm venting more.. I should calm down hehe but man... some people! Well... if I am PCR zero at the 6th mo, they wil let me continue treatment. If I am PCR positive at 6th mo, they will pull me off treatment. So I'm wondering what a few weeks in my 5th month difference it would make. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 In a message dated 10/14/00 5:03:40 PM Eastern Daylight Time, Hepatitis CinAZ@... writes: << You can print out several studies that will show that most patient's ALT and enzyme levels can return to 'normal' after beginning treatment! DUH.... the interferon can help your liver function ... that's the reason it's a treatment option for HCV!!!!!!!!!!! >> Excellent post, Sharon. Time to be a bit proactive in continuing your tx, Pat. I don't think it's wise to stop early. Your monthly viral counts have been undetectable so far, right? The six month test just gives you a more precise viral load count. It's sent to a lab that measures it to under 1000 parts per something <~~forgive me. I'm no nurse. I had that test in Aug. If you quit now, it might all be for naught. That's my opinion. You've come so far... It's wearing, for sure. But we have our moments of pep, right? Not right now...been staring at this screen...expect extreme dullness in your 8th(?) mo...hehe. Peace, Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 In a message dated 10/14/00 5:03:40 PM Eastern Daylight Time, Hepatitis CinAZ@... writes: << You can print out several studies that will show that most patient's ALT and enzyme levels can return to 'normal' after beginning treatment! DUH.... the interferon can help your liver function ... that's the reason it's a treatment option for HCV!!!!!!!!!!! >> Excellent post, Sharon. Time to be a bit proactive in continuing your tx, Pat. I don't think it's wise to stop early. Your monthly viral counts have been undetectable so far, right? The six month test just gives you a more precise viral load count. It's sent to a lab that measures it to under 1000 parts per something <~~forgive me. I'm no nurse. I had that test in Aug. If you quit now, it might all be for naught. That's my opinion. You've come so far... It's wearing, for sure. But we have our moments of pep, right? Not right now...been staring at this screen...expect extreme dullness in your 8th(?) mo...hehe. Peace, Jane Quote Link to comment Share on other sites More sharing options...
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