Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 hi meling can u give me some info on wot u have been throw with ur conn please...mandy x >From: " sandy lee " <wendy4ben@...> >Reply-hyperaldosteronism >hyperaldosteronism >Subject: RE: Re: Links >Date: Thu, 14 Sep 2006 15:25:45 +0100 > > >thank meling333 for ur help xx sandy > > >From: " meling333 " <meling333@...> > >Reply-hyperaldosteronism > >hyperaldosteronism > >Subject: Re: Links > >Date: Wed, 13 Sep 2006 18:28:59 -0000 > > > > > >HI Sandy > >Cholestyramine should really help it is a powder and i take one scoop in > >water every night so it does not bind or block my meds during the day. I > >would be trapped in the house with out it as well and have been in the > >past. ita > > > > > > > > > > > > > thank u meling333.... my dirraahea is realy bad,i get loads of acid > >sometime > > > i dont go out becouse of it. > > > > > > >From: " meling333 " <meling333@...> > > > >Reply-hyperaldosteronism > > > >hyperaldosteronism > > > >Subject: Re: Links > > > >Date: Wed, 13 Sep 2006 17:07:40 -0000 > > > > > > > > > > > > > > > > > > > >_________________________________________________________________ >Windows Live™ Messenger has arrived. Click here to download it for free! >http://imagine-msn.com/messenger/launch80/?locale=en-gb > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 You can read lots of stories in our old files. May your pressure be low! CE Grim MD Clinical Professor of Internal Medicine Professor of Epidemiology Board Certified in Internal Medicine, Geriatrics and Hypertension -----Ursprüngliche Mitteilung----- Von: wendy4ben@... An: hyperaldosteronism Verschickt: Fr., 15.Sept.2006, 10:10 Thema: RE: Re: Links hi meling can u give me some info on wot u have been throw with ur conn please...mandy x >From: "sandy lee" <wendy4ben@...> >Reply-hyperaldosteronism >hyperaldosteronism >Subject: RE: Re: Links >Date: Thu, 14 Sep 2006 15:25:45 +0100 > > >thank meling333 for ur help xx sandy > > >From: "meling333" <meling333@...> > >Reply-hyperaldosteronism > >hyperaldosteronism > >Subject: Re: Links > >Date: Wed, 13 Sep 2006 18:28:59 -0000 > > > > > >HI Sandy > >Cholestyramine should really help it is a powder and i take one scoop in > >water every night so it does not bind or block my meds during the day. I > >would be trapped in the house with out it as well and have been in the > >past. ita > > > > > > > > > > > > > thank u meling333.... my dirraahea is realy bad,i get loads of acid > >sometime > > > i dont go out becouse of it. > > > > > > >From: "meling333" <meling333@...> > > > >Reply-hyperaldosteronism > > > >hyperaldosteronism > > > >Subject: Re: Links > > > >Date: Wed, 13 Sep 2006 17:07:40 -0000 > > > > > > > > > > > > > > > > > > > >_________________________________________________________________ >Windows Live™ Messenger has arrived. Click here to download it for free! >http://imagine-msn.com/messenger/launch80/?locale=en-gb > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Hi Mandy Well i started out being able to walk miles one week and the next week HBP rapid heart beat and unable to walk miles any more. I was put on atenolol which helped the sweating but I was still not right.A year later 05 my thyroid went hypo and I requested Armour and I slowly got worse in months to come, really higher bood pressure an below range in K. I went through losing allot of hair due to the testosterone problem I also have. I was at the end of my rope last year and this year. I had seen 4 Endos in the last year with no luck at all untill I found dr. Grim in here. He seemed to know right off what I had. Labs confirmed Conns. My stomach has been grumpy since 2001 and is worse now that it has ever been. I am sure it is all adrenal hormones related as when I was on Hydrocortisone life become normal and well I could do things again. I am doing a dexamethsone surpression test sunday to see if I have GRA type like Dr. Grim thinks I could since I did so much better on HC.Feel free to ask away. How did you find out you had Conns? ita > > hi meling can u give me some info on wot u have been throw with ur conn > please...mandy x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 hi meling 333 thanx for ur info , i have been ill for along time about 15 years not realy noing wot i had . 1day i was ok the next i was haveing some sort of fit, which was very scarey , i new there was something wrong but didnt know what it was , i went to the doctors time after time all they sed was i had depperstion. and gave me more taps but still my body was telling me something was not right i was a mess , i was a going out person with lots of friend to haveing none. i was locked away in my house . i was crying every day sweating like mad allway on edge . rapid heart beat my muscels had gone in my legs and harm from the fit. then after been ill for 15 years and and going up from a size 14 too a size 26 i went back 2 the docs and he put me on water tabs which was makeing go to the toilet every 5 mins i losted most of my k and ended up not be able 2 work and had to go into hospital my kidneys were packing up, there they founds out i had conns , sorry about the spelling i hope u can read it. ps the doctors cud not bring my blood pessure down at all i was on loads of tabs which made me fell very ill and dizzy . i had allso never had my bloodpessure taken at all by my the doctors, i found out becouse i tacken it myself they are loads more 2 tell lol but i wud be ere allnight . doctors have relly let me down , sandy x >From: " meling333 " <meling333@...> >Reply-hyperaldosteronism >hyperaldosteronism >Subject: Re: Links >Date: Sat, 16 Sep 2006 19:05:45 -0000 > >Hi Mandy >Well i started out being able to walk miles one week and the next week HBP >rapid heart beat and unable to walk miles any more. I was put on atenolol >which helped the sweating but I was still not right.A year later 05 my >thyroid went hypo and I requested Armour >and I slowly got worse in months to come, really higher bood pressure an >rapid heart beat range in K. I went through losing allot of hair due to >the testosterone problem I also have. I was at the end of my rope last year >and this year. I had seen 4 Endos in the last year with no luck at all >untill I found dr. Grim in here. He seemed to know right off what I had. >Labs confirmed Conns. My stomach has been grumpy since 2001 and is worse >now that it has ever been. I am sure it is all adrenal hormones related as >when I was on Hydrocortisone life become normal and well I could do things >again. I am doing a dexamethsone surpression test sunday to see if I have >GRA type like Dr. Grim thinks I could since I did so much better on HC.Feel >free to ask away. >How did you find out you had Conns? ita > > > > > hi meling can u give me some info on wot u have been throw with ur conn > > please...mandy x > > > > > > > > > > > > _________________________________________________________________ The new Windows Live Toolbar helps you guard against viruses http://toolbar.live.com/?mkt=en-gb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Hi Mandy I been sickly since 91 when I became sensitive to salt. I have told many dr.s about my all of a sudden blood pressure and swelling since 04. I dont trust any Endos in Sacramento as all 7 of them since 01 acted like I was some kind know nothing like I was not aware of my own body going hay wire. Yes I gained 40lbs not happy about that. I was even in ER with high blood pressure, very dizzy and low potassium last year and they told me to eat banannas. When my potassium got real low in may 06 I was so out of it I didnt even bother going to ER as like before they did nothing. I didnt know it was low potassium again. I just started taking hydrocortisone and got better, now I take spiro. Do you have a adrenal tumor like most of us? I do and figure one day it will have to be removed if I dont get better. I have been real sick 2 years now and cant take it for much longer. If it were my thumb doing this to me I would have chopped it off by now. Do you have other out of wack hormones? ita > > > > > > hi meling can u give me some info on wot u have been throw with ur conn > > > please...mandy_________________________________ > The new Windows Live Toolbar helps you guard against viruses > http://toolbar.live.com/?mkt=en-gb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Watery diarrhea linked to Adrenal gland mass producing Vasoactive Intestinal Peptide Mayo Clinic Proceedings Address:http://www.mayoclinicproceedings.com/inside.asp?AID=21 & UID= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 hi meling333 u got msn lol... yes i have a tuma which needs removeing but just carnt have the hop yet has my mined it not ready , i was also sick a lot and had very low potassium . i also sleep alot and walking is very hard ..i fined life very hard with conns and we dont get much help from enyone ..spiro>is good it helped me alot mandy x >hyperaldosteronism >Subject: Re: Links >Date: Sun, 17 Sep 2006 00:29:28 -0000 > >Hi Mandy >I been sickly since 91 when I became sensitive to salt. I have told many >dr.s about my all of a sudden blood pressure and swelling since 04. I dont >trust any Endos in Sacramento as all 7 of them since 01 acted like I was >some kind know nothing like I was not aware of my own body going hay wire. >Yes I gained 40lbs not happy about that. I was even in ER with high blood >pressure, very dizzy and low potassium last year and they told me to eat >banannas. When my potassium got real low in may 06 I was so out of it I >didnt even bother going to ER as like before they did nothing. I didnt know >it was low potassium again. I just started taking hydrocortisone and got >better, now I take spiro. Do you have a adrenal tumor like most of us? >I do and figure one day it will have to be removed if I dont get better. I >have been real sick 2 years now and cant take it for much longer. If it >were my thumb doing this to me I would have chopped it off by now. >Do you have other out of wack hormones? ita > > > > > > > > > > > hi meling can u give me some info on wot u have been throw with ur >conn > > > > please...mandy_________________________________ > > The new Windows Live Toolbar helps you guard against viruses > > http://toolbar.live.com/?mkt=en-gb > > > > > > _________________________________________________________________ Windows Live™ Messenger has arrived. Click here to download it for free! http://imagine-msn.com/messenger/launch80/?locale=en-gb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Just wanted to remind you all of my guide to difficult HTN which you should sent to all your old Drs who missed the problem so they can help the new pts coming to them. In a message dated 9/17/06 4:14:26 AM, wendy4ben@... writes: hi meling333 u got msn lol... yes i have a tuma which needs removeing but just carnt have the hop yet has my mined it not ready , i was also sick a lot and had very low potassium . i also sleep alot and walking is very hard ..i fined life very hard with conns and we dont get much help from enyone ..spiro>is good it helped me alot mandy x Have you been tested for sleep Apnea?? >hyperaldosteronism >Subject: Re: Links >Date: Sun, 17 Sep 2006 00:29:28 -0000 > >Hi Mandy >I been sickly since 91 when I became sensitive to salt. I have told many >dr.s about my all of a sudden blood pressure and swelling since 04. I dont >trust any Endos in Sacramento as all 7 of them since 01 acted like I was >some kind know nothing like I was not aware of my own body going hay wire. >Yes I gained 40lbs not happy about that. I was even in ER with high blood >pressure, very dizzy and low potassium last year and they told me to eat >banannas. When my potassium got real low in may 06 I was so out of it I >didnt even bother going to ER as like before they did nothing. I didnt know >it was low potassium again. I just started taking hydrocortisone and got >better, now I take spiro. Do you have a adrenal tumor like most of us? >I do and figure one day it will have to be removed if I dont get better. I >have been real sick 2 years now and cant take it for much longer. If it >were my thumb doing this to me I would have chopped it off by now. >Do you have other out of wack hormones?    ita > > > > > > > > > > > hi meling can u give me some info on wot u have been throw with ur >conn > > > > please...mandy_________________________________ > > The new Windows Live Toolbar helps you guard against viruses > > http://toolbar.live.com/?mkt=en-gb > > > > > > _________________________________________________________________ Windows Live™ Messenger has arrived. Click here to download it for free! http://imagine-msn.com/messenger/launch80/?locale=en-gb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 In a message dated 9/17/06 9:55:41 AM, shahall@... writes: I've never been able to open any of the files in the Difficult Hypertension folder. a Hmm maybe someone can help. Not my area of expertise. May your pressure be low! C.E. Grim, B.S., M.S., M.D. Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Here it is and it is files at bloodpressureline in both .doc and .txt format. What happens when you try to access it? In a message dated 9/17/06 9:55:41 AM, shahall@... writes: I've never been able to open any of the files in the Difficult Hypertension folder. a Difficult Hypertension CE Grim, BS, MS, MD, Hypertension Research, Medical College of Wisconsin 414-374-2733 lowerbp2@... 1. Review patient history; esp for low K problems. 2. PE for café-au-lait spots, fundi, heart, chest, upper abd for bruits. 3. Labs * Lytes, urine albumin, Plasma aldosterone/plasma renin ratio-to screen for excess aldosterone or mineralocorticoid production. 4. Review BP device. If they don't have one, have them get an Omron or AND device with right sized cuff (arm circum >33 use large cuff). 5. Instruct on self BP measurement: sit 5 min, take 3 write them all down and average last 2. * Take BP in am before taking Rx and then any other time they feel like BP is up or they are dizzy. * Record in book and bring in. 6. Have the pt get the DASH Diet for Hypertension Book by , read it and use it for the 14 day test. They may wish to go to bloodpressureline for support. I run this site. 7. Review medications * If not on a diuretic ALWAYS start one-HCTZ 1/2 25 mg (costs $8/100) have them buy this. * Consider stopping all other RX and placing on the following combination * Lotrel 2.5/10 bid * Bisoprolol 2.5 / HCZ 6.25 each am or bid. * Have pt call with BPs in 2-3 days. * If not at goal increase Lotrel two am( and two pm and BIS to two am, two pm. * If BP not at goal in two weeks then add Minoxidil 5 mg each am. Increase every few days by using 5 mg am, 5 pm, 10 mg am, 10 pm etc. Pt needs to weigh daily. If weight goes up then add furosemide 40 bid and increase. If still edema add metolazone 10 each am. 8. If BP not at goal and Aldo/Renin ratio high then add Spironolactone, 50 mg/day and may increase to 300 mg per day. 9. If the patient fails this combo do: * 24 hr urine for catecholamines , Na, K and creatinine. * Review diet for sodium should be less than 80 mM Na per day about 1500 mg. * Consider regular renal arteriogram-not MRA or Nuclear scan, the only way to exclude renal artery stenosis as a cause of HTN is by selective transfemoral angiography to get good details of main and branch renal arteries. RAPID BP CONTROL IN THE HOSPITAL 1. Take BP every hour. 2. Give HCTZ 25 po q 12 hours. If edema or Cr >2 use furosemide 40 q 12. ------------------------------------------------------------------------------- | Diuretic | Lotrel | Bisoprolol/HCTZ ------------------------------------------------------------------------------- 1st dose | 25 HCTZ or 40 furosemide | 2.5/10 | 2.5/6.25 8 AM | | | ------------------------------------------------------------------------------- 2 PM | BP not at goal give | 5/10 | 5/6.25 | At goal repeat | 2.5/10 | 2.5/6.25 -------------------------------------------------------------------------------- 8 PM | At goal | 2.5/10 q 12hr | 2.5/6.25 q 12 hr | Not at goal Repeat diuretic + | 5/20 | 5/6.25 ------------------------------------------------------------------------------- 2 AM | Not at goal | 10/20 | 10/6.25 | At goal | None | None ------------------------------------------------------------------------------- 8 AM |At goal -HCZ 12.5 or 25 q am |Give last dose q am |Give last dose q am | Not at goal | Minoxidil 5 |Lotrel 10/20 q am+ | | | Bis 10/6.25 q am ------------------------------------------------------------------------------- 2 PM | Not at goal | Minoxidil 10 | | At Goal | Minoxidil 5 mg q d | ------------------------------------------------------------------------------- 8 PM | Not at goal | Minoxidil 15 | | At Goal | Minoxidil 10 q d | ------------------------------------------------------------------------------- 2 AM | Not at goal | Minoxidil 20 mg | | At goal | Minoxidil 20 mg q d | -------------------------------------------------------------------------------- 8 AM | At goal Watch weight for | Repeat last dose |Lotrel 10/20 q am | increase on Minoxidil. May | of Minoxidil q day |Bis 10/6.25 q am, | need to add furosemide and | |Consider: | metolazone | |Lotrel 5/10 bid | | |Bis 5/6.25 bid -------------------------------------------------------------------------------- * Others to add as outpatient.: Spironolactone up to 300/day Cough-->ARB DRUG RESISTANT HTN, A SPECIALIST'S APPROACH: VD Alla, SJ Murtaza, C E Grim*, Medial College of Wisconsin, Milwaukee, WI. Presented at Am. Soc. HTN, 2000. Many hypertensive patients who fail to achieve goal blood pressure (BP) or have side effects are referred to special clinics for management. In our experience many will need 4 or more BP meds for control. In the last 3 years we have evolved an effective approach to control BP in this outpatient setting. The near simultaneous release of two new long acting drug combinations, Ziac, which contains the long acting beta blocker bisoprolol (2.5, 5 and 10 mg) combined with 6.25 mg of hydrochlorothiazide (HCTZ) and Lotrel which contains the calcium channel blocker amlodipine and the ACEI benazapril (2.5/10, 5/10 and 5/20) suggested a useful way to approach these difficult patients. This "LoZi" cocktail combined the administration of 4 classes of drugs in only two pills once a day with the ability to start at a low dose and titrate up. HCTZ was usually added at 25 mg/d. LoZi produces increasing blockade of the 4 major BP control systems: vasoconstriction, RAAS, SNS and sodium retention. We used this cocktail in 21 referred patients who had a BP of 183±24(SD)/108±12 on their referral medications at first consultation. At the second visit (2-4 weeks) the BP had decreased to 152±7/90±10. The combination has been effective in patients with severe HTN due to renal artery stenosis, mineralocorticoid excess and in HTN with resistant CHF. In 10% of the pts the ACEI was stopped because of cough and in 5% the Ziac because of BB side effects. Our impression is that LoZi is a simple and effective combination to improve BP control in this group of patients. Controlled trials comparing this "combination of combinations " approach to others will be of interest in patients with "drug resistant" hypertension. Difficult Hypertension and the Combination of Combinations Page 2 of 2 May your pressure be low! C.E. Grim, B.S., M.S., M.D. Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 I've never been able to open any of the files in the Difficult Hypertension folder. a --- lowerbp2@... wrote: > Just wanted to remind you all of my guide to > difficult HTN which you should > sent to all your old Drs who missed the problem so > they can help the new pts > coming to them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 a, I can't open them either......none of them and they are a mix of power point, txt, .doc files. Perhaps there is a broken link problem with these files. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Mandy When did you find out you had conns and go on spiro? I found out in June of this year when I found this news group. Its amazing how dr. grim knew what is wrong with me after seeing so many dr.s in the last year and feeling so desperite as I knew I was not well and had a almost knock down fight with one Endo as she dont know what she is doing and the other one in the same office is no better. I will take my chances without them as they were on their way to kill me and I cannot trust their judgement at all no more. I do have a very good family nurse practioner who has done more than the 4 Endos i seen in the last year, like put me on spiro and did the labs to prove I have Conns. This has been the most scary horrible place in my life and I cant wait to get well some day one way or another. I am also hypothyroid and cant take enough thyroid meds to be well thyroid wise as when I do it about kills me and I start really releasing hormones from my tumor. I am so sick and tired of being sick and tired. It take time to recover from a low potassium experience weeks for me. Are you in the U.S. I am in Calif 1 hour from sacramento. I got msn on my main computer but I kick back in bed on pilows on this reciever called webtv and now its called MSNtv. It makes accessing newsgroups so easy compared to the real computer. I can run them both for 19.95 a month. ita m, " sandy lee " <wendy4ben@...> wrote: hi meling333 u got msn lol... yes i have a tuma which needs removeing but just carnt have the hop yet has my mined it not ready , i was also sick a lot and had very low potassium . i also sleep alot and walking is very hard.i fined life very hard with conns and we dont get much help from enyone > .spiro>is good it helped me alot mandy x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Thank you. If I try to access it from the PA site by clicking on the files within the folder I get a " page cannot be found " error for each link. I'm the one that got the $27,000 bill for AVS from U of M and it was no error, that's what they billed to my insurance company. Fortunately the hospital accepted my insurance so they had to accept what Blue Cross paid them, which if I remember right was about $1,600. The only bill I received was for $300 which was my portion of the physician's fee for doing the AVS. The U of M drs. don't accept my insurance but the hospital does. Seems sort of strange since the two doctors I saw were hospital employees and not in private practice. And it still blows me away to think that if I did not have health insurance I would be liable for the entire $27,000 bill! a > both .doc and .txt format. > What happens when you try to access it? > > > In a message dated 9/17/06 9:55:41 AM, > shahall@... writes: > > > > > > I've never been able to open any of the files in > the > > Difficult Hypertension folder. > > > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 a That is odd with your computer something is not on to allow you to open such stuff. If you call your ISP or computer manifacture they might be able to walk you through it. Any way in the mean time I can fax you the Evolution of Diagnostic Criteria for Primary aldosteronism written by dr. Grim if you want, write me at meling333@... ita > > Thank you. If I try to access it from the PA site by > clicking on the files within the folder I get a " page > cannot be found " error for each link. I'm the one > that got the $27,000 bill for AVS from U of M and it > was no error, that's what they billed to my insurance > company. Fortunately the hospital accepted my > insurance so they had to accept what Blue Cross paid > them, which if I remember right was about $1,600. The > only bill I received was for $300 which was my portion > of the physician's fee for doing the AVS. The U of M > drs. don't accept my insurance but the hospital does. > Seems sort of strange since the two doctors I saw were > hospital employees and not in private practice. And > it still blows me away to think that if I did not have > health insurance I would be liable for the entire > $27,000 bill! > > a > > > > both .doc and .txt format. > > What happens when you try to access it? > > > > > > In a message dated 9/17/06 9:55:41 AM, > > shahall@... writes: > > > > > > > > > > I've never been able to open any of the files in > > the > > > Difficult Hypertension folder. > > > > > > a > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 ita, Thanks for offering but I can open the Evolution of PA paper just fine. It's the files in the folder labeled Difficult Hypertension that I can't open and Dr. Grim posted them. a --- meling333 <meling333@...> wrote: > > a > That is odd with your computer something is not on > to allow you to open such stuff. If you call your > ISP or computer manifacture they might be able to > walk you through it. Any way in the mean time I can > fax you the Evolution of Diagnostic Criteria for > Primary aldosteronism written by dr. Grim if you > want, write me at meling333@... > ita > > > > > > Thank you. If I try to access it from the PA site > by > > clicking on the files within the folder I get a > " page > > cannot be found " error for each link. I'm the one > > that got the $27,000 bill for AVS from U of M and > it > > was no error, that's what they billed to my > insurance > > company. Fortunately the hospital accepted my > > insurance so they had to accept what Blue Cross > paid > > them, which if I remember right was about $1,600. > The > > only bill I received was for $300 which was my > portion > > of the physician's fee for doing the AVS. The U > of M > > drs. don't accept my insurance but the hospital > does. > > Seems sort of strange since the two doctors I saw > were > > hospital employees and not in private practice. > And > > it still blows me away to think that if I did not > have > > health insurance I would be liable for the entire > > $27,000 bill! > > > > a > > > > > > > both .doc and .txt format. > > > What happens when you try to access it? > > > > > > > > > In a message dated 9/17/06 9:55:41 AM, > > > shahall@... writes: > > > > > > > > > > > > > > I've never been able to open any of the files > in > > > the > > > > Difficult Hypertension folder. > > > > > > > > a > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 >I checked with our Radiology billing office and was told this must have been due to a billing person going crazy and billing for things they should not have billed for--for exampel the right side and then separtely for the left side. and for renal veins as well as adrenal. I would suggest you request an investigation of this billing by your local medical board and by your insurance company. May your pressure be low! CE Grim MD Clinical Professor of Internal Medicine Professor of Epidemiology Board Certified in Internal Medicine, Geriatrics and Hypertension Re: Links a That is odd with your computer something is not on to allow you to open such stuff. If you call your ISP or computer manifacture they might be able to walk you through it. Any way in the mean time I can fax you the Evolution of Diagnostic Criteria for Primary aldosteronism written by dr. Grim if you want, write me at meling333webtv (DOT) net ita > > Thank you. If I try to access it from the PA site by > clicking on the files within the folder I get a "page > cannot be found" error for each link. I'm the one > that got the $27,000 bill for AVS from U of M and it > was no error, that's what they billed to my insurance > company. Fortunately the hospital accepted my > insurance so they had to accept what Blue Cross paid > them, which if I remember right was about $1,600. The > only bill I received was for $300 which was my portion > of the physician's fee for doing the AVS. The U of M > drs. don't accept my insurance but the hospital does. > Seems sort of strange since the two doctors I saw were > hospital employees and not in private practice. And > it still blows me away to think that if I did not have > health insurance I would be liable for the entire > $27,000 bill! > > a > > > > both .doc and .txt format. > > What happens when you try to access it? > > > > > > In a message dated 9/17/06 9:55:41 AM, > > shahall@... writes: > > > > > > > > > > I've never been able to open any of the files in > > the > > > Difficult Hypertension folder. > > > > > > a > > > Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 _The beauty of Conn' s is that if you have only 1 sided disase then all of your Sx will likley be cured. You story is on I have been hearing for 40 years. One of the reasons that I like HTN is that we frequently find a cure for those that have been suffering for years. Not too many diseases you can say this about. May your pressure be low! CE Grim MD Clinical Professor of Internal Medicine Professor of Epidemiology Board Certified in Internal Medicine, Geriatrics and Hypertension Re: Links Mandy When did you find out you had conns and go on spiro? I found out in June of this year when I found this news group. Its amazing how dr. grim knew what is wrong with me after seeing so many dr.s in the last year and feeling so desperite as I knew I was not well and had a almost knock down fight with one Endo as she dont know what she is doing and the other one in the same office is no better. I will take my chances without them as they were on their way to kill me and I cannot trust their judgement at all no more. I do have a very good family nurse practioner who has done more than the 4 Endos i seen in the last year, like put me on spiro and did the labs to prove I have Conns. This has been the most scary horrible place in my life and I cant wait to get well some day one way or another. I am also hypothyroid and cant take enough thyroid meds to be well thyroid wise as when I do it about kills me and I start really releasing hormones from my tumor. I am so sick and tired of being sick and tired. It take time to recover from a low potassium experience weeks for me. Are you in the U.S. I am in Calif 1 hour from sacramento. I got msn on my main computer but I kick back in bed on pilows on this reciever called webtv and now its called MSNtv. It makes accessing newsgroups so easy compared to the real computer. I can run them both for 19.95 a month. ita m, "sandy lee" <wendy4ben@...> wrote: hi meling333 u got msn lol... yes i have a tuma which needs removeing but just carnt have the hop yet has my mined it not ready , i was also sick a lot and had very low potassium . i also sleep alot and walking is very hard.i fined life very hard with conns and we dont get much help from enyone > .spiro>is good it helped me alot mandy x Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 -where abouts in UK are you. I know many of the HTN experts there and might know one to refer you to. May your pressure be low! C.E. Grim, B.S., M.S., M.D. Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 hi meling i found out i had connsnydrome in october last year but t didnt start spiro untill jun this year when i went too see a conns doctor ,, and had more test done 2 see if i had 2 tumas or 1. i was in hospital for a week .who is doctor grim , i am from the uk west yourkshie .i have not yet recoverd from low potassium am still finding it very hard 2 walk .but i dont give up i carnt i have 3 kids 2 look after . i dont have eny family 2 help so i have 2 to do a lot by myself. conns as relly done my head in and there something i still carnt 2 i dont like going out by myself becouse of all the funny things that has happen 2 me when i have been out , i dint like the lost of control u have with conns the way u fell sometime it was like i was drunk lol i dont drink by the way . dizzy and my head felt like it was not mine . i also forget a lot of things and need remineding . mandy >From: " meling333 " <meling333@...> >Reply-hyperaldosteronism >hyperaldosteronism >Subject: Re: Links >Date: Sun, 17 Sep 2006 20:51:48 -0000 > >Mandy >When did you find out you had conns and go on spiro? I found out in June >of this year when I found this news group. >Its amazing how dr. >grim knew what is wrong >with me after seeing so many dr.s in the last year and feeling so desperite >as I >knew I was not well and had a almost knock down fight with one Endo as she >dont know what she is doing and the other one in the same office is no >better. >I will take my chances without them as they were on their way to kill me >and I cannot trust their judgement at all no more. >I do have a very good family nurse practioner who has done more than the 4 >Endos i seen in the last year, like put me on spiro and did the labs to >prove I have Conns. This has been the most scary horrible place in my life >and I cant wait to get well some day one way or another. I am also >hypothyroid and cant take enough thyroid meds to be well thyroid wise as >when I do it about kills me and I start really releasing hormones from my >tumor. I am so sick and tired of being sick and tired. >It take time to recover from a low potassium experience weeks for me. Are >you in the U.S. >I am in Calif 1 hour from sacramento. >I got msn on my main computer but I kick back in bed on pilows on this >reciever called webtv and now its called MSNtv. It makes accessing >newsgroups so easy compared to the real computer. >I can run them both for 19.95 a month. ita > > >m, " sandy lee " <wendy4ben@...> wrote: hi meling333 u got msn lol... yes i >have a tuma which needs removeing but >just carnt have the hop yet has my mined it not ready , i was also sick a >lot and had very low potassium . i also sleep alot and walking is very >hard.i fined life very hard with conns and we dont get much help from >enyone > > .spiro>is good it helped me alot mandy x > > > > > _________________________________________________________________ Be the first to hear what's new at MSN - sign up to our free newsletters! http://www.msn.co.uk/newsletters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 In a message dated 9/18/06 1:12:36 PM, meling333@... writes: Mandy Dr. Grim is lowerbloodpressure ID in here he is a expert on Conns and has Conns himself. He created this news group for people line us. It is a shame you were not put on spiro last year. I was at a point where I would not go out alone either. Too risky as I was feeling like I would fall over or pass out. Now I am better but still sick. Have no energy or motivation. I only do what is necessary and lay around like a beached whale. ita Well actually I don't have Conn's myself but have cared for perhaps 100 patients with this. My BP is excellent and glucose and cholesterol are excellent but I struggle with my weight all the time. May your pressure be low! C.E. Grim, B.S., M.S., M.D. Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Mandy Dr. Grim is lowerbloodpressure ID in here he is a expert on Conns and has Conns himself. He created this news group for people line us. It is a shame you were not put on spiro last year. I was at a point where I would not go out alone either. Too risky as I was feeling like I would fall over or pass out. Now I am better but still sick. Have no energy or motivation. I only do what is necessary and lay around like a beached whale. ita hi meling333 u got msn lol... yes i > >have a tuma which needs removeing but > >just carnt have the hop yet has my mined it not ready , i was also sick a > >lot and had very low potassium . i also sleep alot and walking is very > >hard.i fined life very hard with conns and we dont get much help from > >enyone > > > .spiro>is good it helped me alot mandy x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 - Sorry Dr. Grim I dont know where I got the idea you had Conns 10 years ago. Must have been brain fog before I went on spiro. ita -- In hyperaldosteronism , lowerbp2@... wrote: > > > In a message dated 9/18/06 1:12:36 PM, meling333@... writes: > > > > > > Mandy > > Dr. Grim is lowerbloodpressure ID in here he is a expert on Conns and has > > Conns himself. He created this news group for people line us. It is a shame you > > were not put on spiro last year. I was at a point where I would not go out > > alone either. Too risky as I was feeling like I would fall over or pass out. > > Now I am better but still sick. > > Have no energy or motivation. > > I only do what is necessary and lay around like a beached whale. > > ita > > > > > > > > Well actually I don't have Conn's myself but have cared for perhaps 100 > patients with this. My BP is excellent and glucose and cholesterol are excellent > but I struggle with my weight all the time. > May your pressure be low! > > C.E. Grim, B.S., M.S., M.D. > Specializing in Difficult to Control High Blood Pressure > and the Physiology and History of Survival During > Hard Times and Heart Disease today. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 lol ..yes that sounds like me 2 lol i just pray one day i can take my son to school like other mothers do . i just wont too be normale , did u get the felling you wud fall over as well like u were drunk . and can u now go out and fell ok........ mandy x >From: " meling333 " <meling333@...> >Reply-hyperaldosteronism >hyperaldosteronism >Subject: Re: Links >Date: Mon, 18 Sep 2006 17:54:33 -0000 > >Mandy > Dr. Grim is lowerbloodpressure ID in here he is a expert on Conns and has >Conns himself. He created this news group for people line us. It is a shame >you were not put on spiro last year. I was at a point where I would not go >out alone either. Too risky as I was feeling like I would fall over or pass >out. >Now I am better but still sick. >Have no energy or motivation. >I only do what is necessary and lay around like a beached whale. > ita > > hi meling333 u got msn lol... yes i > > >have a tuma which needs removeing but > > >just carnt have the hop yet has my mined it not ready , i was also >sick a > > >lot and had very low potassium . i also sleep alot and walking is very > > >hard.i fined life very hard with conns and we dont get much help from > > >enyone > > > > .spiro>is good it helped me alot mandy x > > > > > > _________________________________________________________________ Be the first to hear what's new at MSN - sign up to our free newsletters! http://www.msn.co.uk/newsletters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 hi am from west yourshire huddersfeild . mandy >From: lowerbp2@... >Reply-hyperaldosteronism >hyperaldosteronism >Subject: Re: Re: Links >Date: Mon, 18 Sep 2006 12:15:29 EDT > >-where abouts in UK are you. I know many of the HTN experts there >and >might know one to refer you to. > > > >May your pressure be low! > >C.E. Grim, B.S., M.S., M.D. >Specializing in Difficult to Control High Blood Pressure >and the Physiology and History of Survival During >Hard Times and Heart Disease today. _________________________________________________________________ Windows Live™ Messenger has arrived. Click here to download it for free! http://imagine-msn.com/messenger/launch80/?locale=en-gb Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.