My apolgies and more

[Guest guest]

I realize that I went to far in some recent posts and I am

apologizing to the group for being offensive to anyone and this

includes Dr Kolb. I miss this group, and really would like to start

posting again. I will behave and try not to let personal opinions

cause problems again.

I would also like to make a suggestion to the members of this group

who lurk but don't post or to others who read but don't get involved.

I see that many times someone will ask a question which no one ever

answers, maybe they do it privately, this is possible, but I think it

wouldbe great if more of us got involved. Patty asked the other day

how many of us had a diagnosis of lupus and I don't recall anyone

answering her. I think it is very improtant if we want to help each

other and the cause that we try to answer questions when asked to the

best of our ability so that we can truly be a support group. So in

answer to your question Patty here is my answer, they suspected lupus

but have so far ruled it out and the only true diagnosis I have is

mixed connective tissue disease which is really like say they don't

know what I have. I, too am able to tan in the sun now and even when

I had implants in, but when the implants were in I always had a red

chest, that is almost always gone now. What I notice about the sun is

if I wear good sunscreen I am ok usually, if I don't I will get a

great tan however, my spacey head and acheyness will usually be worse

the next day.

Lately I have been increasing my MSM and Malic acid which is one that

I got from immunesupport.com and is a combo multi vit and malic acid

as well as antother supplemment called super atp with malic acid and

magnesium and I have had tons of energy for working out and am

feeling really good, though still acey in the am's. I am working full

time and doing really really well so I am happy with where I have

come.

I feel bad I got so upset over the issue of implants and who still

has them etc...maybe part of me just wished that I could have kept

them as i do miss them when I am in certain situations, such as

trying to find sexy lingerie and summer clothes. But I am making the

best of it.

I never really meant to damage anyone or hurt anyone and I hope that

I will be welcomed back to this forum and that I can continue to

share my story since I feel I have lots to offer if not in actual

education then in my own life experience.

Ok I have to run to work now for a long 12 hour shift ....take care

and god bless everyone here today.

[Guest guest]

Hi ,

Welcome back, and thanks for your apologies. I think I may have missed the message about lupus, or perhaps I responded, I don't remember today. However, regardless of the amount of sunscreen you use, you cannot protect yourself against the lupus effects of the sun, so please consider giving it up. It's not worth what it may do to you a few years from now, as I have personally found out the hard way. The skin cancers will eventually come, and it can turn out to be nearly major surgery, like the tiny one on my back left lower calf last fall. It should have been a simple surgery, yet it turned out to be a major one, requiring a skin graft, major scar, and a 3-month recovery, instead of one week! It's not worth it!

Just go get some Clarins Self Tanning Milk, and be happy with those results --- it's great!

You can get all the Vitamin D your body requires to assimilate other vitamins by being in the sun a total of 3-full minutes per day. Any more than that is destructive to those of us with lupus, or lupus-like conditions!

Blessings,

Martha Murdock

NSIF

----- Original Message -----

From: cjheer@...

Sent: Saturday, August 11, 2001 9:45 AM

Subject: My apolgies and more

I realize that I went to far in some recent posts and I am apologizing to the group for being offensive to anyone and this includes Dr Kolb. I miss this group, and really would like to start posting again. I will behave and try not to let personal opinions cause problems again.I would also like to make a suggestion to the members of this group who lurk but don't post or to others who read but don't get involved. I see that many times someone will ask a question which no one ever answers, maybe they do it privately, this is possible, but I think it wouldbe great if more of us got involved. Patty asked the other day how many of us had a diagnosis of lupus and I don't recall anyone answering her. I think it is very improtant if we want to help each other and the cause that we try to answer questions when asked to the best of our ability so that we can truly be a support group. So in answer to your question Patty here is my answer, they suspected lupus but have so far ruled it out and the only true diagnosis I have is mixed connective tissue disease which is really like say they don't know what I have. I, too am able to tan in the sun now and even when I had implants in, but when the implants were in I always had a red chest, that is almost always gone now. What I notice about the sun is if I wear good sunscreen I am ok usually, if I don't I will get a great tan however, my spacey head and acheyness will usually be worse the next day.Lately I have been increasing my MSM and Malic acid which is one that I got from immunesupport.com and is a combo multi vit and malic acid as well as antother supplemment called super atp with malic acid and magnesium and I have had tons of energy for working out and am feeling really good, though still acey in the am's. I am working full time and doing really really well so I am happy with where I have come.I feel bad I got so upset over the issue of implants and who still has them etc...maybe part of me just wished that I could have kept them as i do miss them when I am in certain situations, such as trying to find sexy lingerie and summer clothes. But I am making the best of it.I never really meant to damage anyone or hurt anyone and I hope that I will be welcomed back to this forum and that I can continue to share my story since I feel I have lots to offer if not in actual education then in my own life experience.Ok I have to run to work now for a long 12 hour shift ....take care and god bless everyone here today.