Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 Virginia, how long it lasts will depend on how much fryingyou do. I get the 5 gallon Expeller pressed. It lasts me about a year. It doest go bad for me stored in a cool closet. I dont think it matters how you get the oil.Some believe the VCO to be best. but if all you can take is the odorless kind It still gives you all the health benefits. It just doest have all the phytonutrients . IN NC Virginia Leonard <vleonard@...> wrote: I’ve been here for about a week trying to read everything that’s been posted from the beginning. Gawd, that’s a lot of information. I’ve ordered some coconut oil in a 29oz size. From what I’ve read, I need to take this about 3 times a day either from a spoon, on toast, in hot chocolate, in salad dressing, over pork chops, ribs, hamburgers…….you get my point. What’s the MOST effective way to get this in my system and what can I expect from it? If I buy in a larger quantity to fry with how long does it last and how do I store it? Wilkins http//:www.juiceplus.com/+lw55887 The Children's Research Foundation Children 6-15 FREE for 3 years --------------------------------- Find Great Deals on Holiday Gifts at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 I am sure everyone has their own special method. I eat a hamburger and an avocado each day for breakafst. I cook the burger in coconut oil and butter, then pour it over the burger in a bowl, add a tablespoon of apple cider vinegar and some low carb ketchup. When I eat the burger, I swirl each forkful around in the vinegar and coconut oil + butter before I eat it. If there is any left when the burger is done, I just drink it. Tastes yummy to me. I also make a chocolate treat I eat at night. I soften a 4 ounce bar of bitter baking chocolate in a pint of coconut oil, add a teaspoon of vanilla extract, a dash of salt, and a teaspoon of xylitol. I put all the ingedients in a small plastic bowl & sit the bowl in a larger b owl of hot water. With the xylitol the chocolate still tastes bitter but not nearly as bitter as it would be without the xylitol. Luckily I curben my swwert tooth some years ago, or I would not like this treat. Not nearly as sweet as a candy bar. Xylitol is a sweetener made from birch wood. I blend it all well with a blender stick, then pour into a shallow pan, then freeze. When frozen I break it up into 8 sections. I allow myself 1 section per day. Xylitol has half the impact of sugar in terms of pancreas stress, and is the same sweetness as sugar. I store it in the freezer but thaw before eating as it is very hard when frozen. Alobar On 12/15/05, Virginia Leonard <vleonard@...> wrote: > > > > > I've been here for about a week trying to read everything that's been posted > from the beginning. Gawd, that's a lot of information. I've ordered some > coconut oil in a 29oz size. From what I've read, I need to take this about > 3 times a day either from a spoon, on toast, in hot chocolate, in salad > dressing, over pork chops, ribs, hamburgers…….you get my point. What's the > MOST effective way to get this in my system and what can I expect from it? > If I buy in a larger quantity to fry with how long does it last and how do I > store it? > > ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 That sounds yummy. I'll have to try it. Re: New Member saying hello I am sure everyone has their own special method. I eat a hamburger and an avocado each day for breakafst. I cook the burger in coconut oil and butter, then pour it over the burger in a bowl, add a tablespoon of apple cider vinegar and some low carb ketchup. When I eat the burger, I swirl each forkful around in the vinegar and coconut oil + butter before I eat it. If there is any left when the burger is done, I just drink it. Tastes yummy to me. I also make a chocolate treat I eat at night. I soften a 4 ounce bar of bitter baking chocolate in a pint of coconut oil, add a teaspoon of vanilla extract, a dash of salt, and a teaspoon of xylitol. I put all the ingedients in a small plastic bowl & sit the bowl in a larger b owl of hot water. With the xylitol the chocolate still tastes bitter but not nearly as bitter as it would be without the xylitol. Luckily I curben my swwert tooth some years ago, or I would not like this treat. Not nearly as sweet as a candy bar. Xylitol is a sweetener made from birch wood. I blend it all well with a blender stick, then pour into a shallow pan, then freeze. When frozen I break it up into 8 sections. I allow myself 1 section per day. Xylitol has half the impact of sugar in terms of pancreas stress, and is the same sweetness as sugar. I store it in the freezer but thaw before eating as it is very hard when frozen. Alobar On 12/15/05, Virginia Leonard <vleonard@...> wrote: > > > > > I've been here for about a week trying to read everything that's been posted > from the beginning. Gawd, that's a lot of information. I've ordered some > coconut oil in a 29oz size. From what I've read, I need to take this about > 3 times a day either from a spoon, on toast, in hot chocolate, in salad > dressing, over pork chops, ribs, hamburgers…….you get my point. What's the > MOST effective way to get this in my system and what can I expect from it? > If I buy in a larger quantity to fry with how long does it last and how do I > store it? > > ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2005 Report Share Posted December 21, 2005 Dear , Yes you are right, that coconut oil can give you the benefits even the coconut cooking oil. However if there is some ailments we would want to address, do take VCO. If you are getting the expeller pressed oil, I advise you purchase is smaller quantities. Don't let it stay a year long in storage. tess Wilkins <montemomma2002@...> wrote: Virginia, how long it lasts will depend on how much fryingyou do. I get the 5 gallon Expeller pressed. It lasts me about a year. It doest go bad for me stored in a cool closet. I dont think it matters how you get the oil.Some believe the VCO to be best. but if all you can take is the odorless kind It still gives you all the health benefits. It just doest have all the phytonutrients . IN NC Virginia Leonard <vleonard@...> wrote: I’ve been here for about a week trying to read everything that’s been posted from the beginning. Gawd, that’s a lot of information. I’ve ordered some coconut oil in a 29oz size. From what I’ve read, I need to take this about 3 times a day either from a spoon, on toast, in hot chocolate, in salad dressing, over pork chops, ribs, hamburgers…….you get my point. What’s the MOST effective way to get this in my system and what can I expect from it? If I buy in a larger quantity to fry with how long does it last and how do I store it? Wilkins http//:www.juiceplus.com/+lw55887 The Children's Research Foundation Children 6-15 FREE for 3 years --------------------------------- Find Great Deals on Holiday Gifts at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2009 Report Share Posted October 18, 2009 hi everyone, my name is wyldhunny and i live in the columbia river gorge between washington and oregon, on the washington side. i am on some pretty heavy meds and my memory and spelling skills are not very good so please go easy on me. i was mis-diagnosed 27 years ago with ankaloskingspondilitis (hunchback) that turned out to be degenerative disk. i currently get steroid/cortisone shots 3 cervical and 3 lumbar every year that are very helpful. if i could get them everymonth i think i could return to work but my dr says my bones would turn to jelly within 5 years but that might be worth it to feel better. i am not trying to live a long life, just a better quality of life for a shorter term if possible as the long term seems so bleak and painful. i also have had 3 knee surgeries that resulted in nerve damage and rsd/crps. rsd is reflex symethic dystraphy and crps is cronic regional pain syndrom. i now have a partial cervical disk that has shifted against the spinal cord and lots of bone spurs that have caused my right arm and hand to give me lots of problems. my dr says he cannot do anything to reduce my neck pain but thinks he can resore my use of my right hand but i risk the rsd moving to my neck. he would have to fuse c4/c5 and put in a cadavar disk, plate and screws. i am sure some of the people in this group have had this done and am wondering what this surgery and recovery are like and also if anyone in this group also has rsd/crps too? i live alone and do not have a support system and live out in the sticks, how much help will i need after the surgery? a friend suggested i find a on line support group and it looks like you are the right folks to ask as i have been reading up on some of your past posts but it will take me awhile to get thru all of them. thanks kindly for any help and suggestions, wyldhunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 The surgery and recovery is not bad.. The only issue is how helpful it will be.. But given you current circumstances I can not imagine not giving it a try.. I have seen a lot of post from new members over the last year. But, darlin yours seems to be the worst.. You shouldl not need a lot of post op care, but all situations are unique so ???.. it can be painful but what is that to you... Post often... It will be helpful.. : ) Tom In a message dated 10/18/2009 1:05:47 P.M. Mountain Daylight Time, wyld_hunny@... writes: hi everyone, my name is wyldhunny and i live in the columbia river gorge between washington and oregon, on the washington side. i am on some pretty heavy meds and my memory and spelling skills are not very good so please go easy on me. i was mis-diagnosed 27 years ago with ankaloskingspondili i was mis-diagnosed 27 years ago with ankaloskingspondi i currently get steroid/cortisone shots 3 cervical and 3 lumbar every year that are very helpful. if i could get them everymonth i think i could return to work but my dr says my bones would turn to jelly within 5 years but that might be worth it to feel better. i am not trying to live a long life, just a better quality of life for a shorter term if possible as the long term seems so bleak and painful. i also have had 3 knee surgeries that resulted in nerve damage and rsd/crps. rsd is reflex symethic dystraphy and crps is cronic regional pain syndrom. i now have a partial cervical disk that has shifted against the spinal cord and lots of bone spurs that have caused my right arm and hand to give me lots of problems. my dr says he cannot do anything to reduce my neck pain but thinks he can resore my use of my right hand but i risk the rsd moving to my neck. he would have to fuse c4/c5 and put in a cadavar disk, plate and screws. i am sure some of the people in this group have had this done and am wondering what this surgery and recovery are like and also if anyone in this group also has rsd/crps too? i live alone and do not have a support system and live out in the sticks, how much help will i need after the surgery? a friend suggested i find a on line support group and it looks like you are the right folks to ask as i have been reading up on some of your past posts but it will take me awhile to get thru all of them. thanks kindly for any help and suggestions, wyldhunny [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 The surgery and recovery is not bad.. The only issue is how helpful it will be.. But given you current circumstances I can not imagine not giving it a try.. I have seen a lot of post from new members over the last year. But, darlin yours seems to be the worst.. You shouldl not need a lot of post op care, but all situations are unique so ???.. it can be painful but what is that to you... Post often... It will be helpful.. : ) Tom In a message dated 10/18/2009 1:05:47 P.M. Mountain Daylight Time, wyld_hunny@... writes: hi everyone, my name is wyldhunny and i live in the columbia river gorge between washington and oregon, on the washington side. i am on some pretty heavy meds and my memory and spelling skills are not very good so please go easy on me. i was mis-diagnosed 27 years ago with ankaloskingspondili i was mis-diagnosed 27 years ago with ankaloskingspondi i currently get steroid/cortisone shots 3 cervical and 3 lumbar every year that are very helpful. if i could get them everymonth i think i could return to work but my dr says my bones would turn to jelly within 5 years but that might be worth it to feel better. i am not trying to live a long life, just a better quality of life for a shorter term if possible as the long term seems so bleak and painful. i also have had 3 knee surgeries that resulted in nerve damage and rsd/crps. rsd is reflex symethic dystraphy and crps is cronic regional pain syndrom. i now have a partial cervical disk that has shifted against the spinal cord and lots of bone spurs that have caused my right arm and hand to give me lots of problems. my dr says he cannot do anything to reduce my neck pain but thinks he can resore my use of my right hand but i risk the rsd moving to my neck. he would have to fuse c4/c5 and put in a cadavar disk, plate and screws. i am sure some of the people in this group have had this done and am wondering what this surgery and recovery are like and also if anyone in this group also has rsd/crps too? i live alone and do not have a support system and live out in the sticks, how much help will i need after the surgery? a friend suggested i find a on line support group and it looks like you are the right folks to ask as i have been reading up on some of your past posts but it will take me awhile to get thru all of them. thanks kindly for any help and suggestions, wyldhunny [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Hi, I don't know what to call you, but welcome to the group. I only have a couple of the same problems that you have, I've had both knees replaced with still lingering pain from the one that was done about 6 years ago. Also had an anterior/posterior lumbar fusion with cadaver disk and all the metal that comes with it. I had complications, so I was in the hospital longer than what the dr. had said I would be-they had to split up the surgery and do it in stages, with a couple days to heal in between due to blood loss. But after that, recuperation went well. I had physical therapy, and before I was able to do that, I had a home nurse come a couple times to check on me. I had a different insurance other than Medicare at that time, so it covered almost everything. But-the surgery didn't help all that much, 5 years later, I am on opiates and muscle relaxers, and medication for breakthrough pain. Two years after that, I had a neck fusion, which really helped-I had bone spurs and pinched nerves, which were affecting the strength in right arm and hand, and I wasn't able to drive because I couldn't turn my neck enough to be a safe driver. That's all better now. I guess everyone will have a different story on how effective their fusions are. I hope if you end up having one that it gives you pain relief. Sincerely Jeannie ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Hi, I don't know what to call you, but welcome to the group. I only have a couple of the same problems that you have, I've had both knees replaced with still lingering pain from the one that was done about 6 years ago. Also had an anterior/posterior lumbar fusion with cadaver disk and all the metal that comes with it. I had complications, so I was in the hospital longer than what the dr. had said I would be-they had to split up the surgery and do it in stages, with a couple days to heal in between due to blood loss. But after that, recuperation went well. I had physical therapy, and before I was able to do that, I had a home nurse come a couple times to check on me. I had a different insurance other than Medicare at that time, so it covered almost everything. But-the surgery didn't help all that much, 5 years later, I am on opiates and muscle relaxers, and medication for breakthrough pain. Two years after that, I had a neck fusion, which really helped-I had bone spurs and pinched nerves, which were affecting the strength in right arm and hand, and I wasn't able to drive because I couldn't turn my neck enough to be a safe driver. That's all better now. I guess everyone will have a different story on how effective their fusions are. I hope if you end up having one that it gives you pain relief. Sincerely Jeannie ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 hi jean, ya all can call me wyld, i am not much of a hunny when i am in pain. i sure appreciate ALL of you that have welcomed me to the group and have shared your surgeries and outcomes with me. i still have not decided if i will go ahead with the surgery but i did see my gp doctor today for the first pre-surgery tests, more to follow on wednesday at the hospital, oh joy. i also got a referral to see my neurologist for a chat before i decide. i have so many things that cannot be fixed that i got so excited when i heard that my arm might be helped that i had not considered my rsd/crps and forgot i guess that it can attack other areas of the body so i think it is a good idea to run it by him also. i also find there are a lot more re surgery test they want to do now that i have passed the old 50 mark it seems. thanks again for the warm welcome and wishes, wyld From: Abbott <jeannieboo1@...> Subject: Re: new member saying hello neck pain Date: Monday, October 19, 2009, 10:22 AM Hi, I don't know what to call you, but welcome to the group. I only have a couple of the same problems that you have, I've had both knees replaced with still lingering pain from the one that was done about 6 years ago. Also had an anterior/posterior lumbar fusion with cadaver disk and all the metal that comes with it. I had complications, so I was in the hospital longer than what the dr. had said I would be-they had to split up the surgery and do it in stages, with a couple days to heal in between due to blood loss. But after that, recuperation went well. I had physical therapy, and before I was able to do that, I had a home nurse come a couple times to check on me. I had a different insurance other than Medicare at that time, so it covered almost everything. But-the surgery didn't help all that much, 5 years later, I am on opiates and muscle relaxers, and medication for breakthrough pain. Two years after that, I had a neck fusion, which really helped-I had bone spurs and pinched nerves, which were affecting the strength in right arm and hand, and I wasn't able to drive because I couldn't turn my neck enough to be a safe driver. That's all better now. I guess everyone will have a different story on how effective their fusions are. I hope if you end up having one that it gives you pain relief. Sincerely Jeannie ____________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 hi jean, ya all can call me wyld, i am not much of a hunny when i am in pain. i sure appreciate ALL of you that have welcomed me to the group and have shared your surgeries and outcomes with me. i still have not decided if i will go ahead with the surgery but i did see my gp doctor today for the first pre-surgery tests, more to follow on wednesday at the hospital, oh joy. i also got a referral to see my neurologist for a chat before i decide. i have so many things that cannot be fixed that i got so excited when i heard that my arm might be helped that i had not considered my rsd/crps and forgot i guess that it can attack other areas of the body so i think it is a good idea to run it by him also. i also find there are a lot more re surgery test they want to do now that i have passed the old 50 mark it seems. thanks again for the warm welcome and wishes, wyld From: Abbott <jeannieboo1@...> Subject: Re: new member saying hello neck pain Date: Monday, October 19, 2009, 10:22 AM Hi, I don't know what to call you, but welcome to the group. I only have a couple of the same problems that you have, I've had both knees replaced with still lingering pain from the one that was done about 6 years ago. Also had an anterior/posterior lumbar fusion with cadaver disk and all the metal that comes with it. I had complications, so I was in the hospital longer than what the dr. had said I would be-they had to split up the surgery and do it in stages, with a couple days to heal in between due to blood loss. But after that, recuperation went well. I had physical therapy, and before I was able to do that, I had a home nurse come a couple times to check on me. I had a different insurance other than Medicare at that time, so it covered almost everything. But-the surgery didn't help all that much, 5 years later, I am on opiates and muscle relaxers, and medication for breakthrough pain. Two years after that, I had a neck fusion, which really helped-I had bone spurs and pinched nerves, which were affecting the strength in right arm and hand, and I wasn't able to drive because I couldn't turn my neck enough to be a safe driver. That's all better now. I guess everyone will have a different story on how effective their fusions are. I hope if you end up having one that it gives you pain relief. Sincerely Jeannie ____________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Hi Wyld I was 50 when I had my back surgery, 40 when I had my first knee surgery. The old good thing about me able to have surgery was that I've never smoked. Maybe I'd better cancel that statement as I have COPD due to second-hand smoke, as I worked in a casino for 20 years, and both my parents smoked-indoors. My first knee surgery went ok, despite the fact I weighed 250 pounds. By the time I had back surgery, I was down to 90 pounds, as I had a gastric bypass, plus my gallbladder had begun to happen-I couldn't stop losing weight. I was given Prednisone to try in order to put some weight on-didn't work. Then, I was given some sort of pills that have whatever is in pot that gives you the munchies, all that did was make me very woozy, and I was warned if I drove while taking them and got in an accident, I could be arrested for being under the influence. They went down the toilet, to the dismay of a lot of people! Not one dr. did any major blood work to see what was causing all the weight loss, I was in heaven being able to eat anything I wanted and not gain an ounce-then my husband looked at my one nite while in the kitchen, and said I looked like I was turning yellow. I went once again to my primary care dr. who sent me to the emergency room, and a week later had my gallbladder out. I got to stay in the hospital for 18 days. But now I'm at a healthy weight of 114 pounds(but still thinking I look fat-it doesn't help having an apron of skin hanging down from being overweight) and I concentrate on ways to keep away the pain and try to get some sleep, and spend hours online when I can, writing endless emails like this one is becoming! I remember having to have the heart test with the treadmill, I guess I passed, but my lungs were not happy, I was panting so hard. I hadn't yet known I have COPD. But I passed all the tests to have the lumbar fusion. I don't regret having it, I wanted a chance at having the pain go away, even though I was warned it may not happen completely. I had to try-didn't want a spine stimulator or morphine pump, which were other options. The neck fusion was the biggest success, all pain is gone. Let us know what you decide, there's so much to learn from other people's experiences. Take care-hope you get some " hunny " days soon. By the way, I'm not always so long-winded with my messages! Jeannie ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Hi Wyld I was 50 when I had my back surgery, 40 when I had my first knee surgery. The old good thing about me able to have surgery was that I've never smoked. Maybe I'd better cancel that statement as I have COPD due to second-hand smoke, as I worked in a casino for 20 years, and both my parents smoked-indoors. My first knee surgery went ok, despite the fact I weighed 250 pounds. By the time I had back surgery, I was down to 90 pounds, as I had a gastric bypass, plus my gallbladder had begun to happen-I couldn't stop losing weight. I was given Prednisone to try in order to put some weight on-didn't work. Then, I was given some sort of pills that have whatever is in pot that gives you the munchies, all that did was make me very woozy, and I was warned if I drove while taking them and got in an accident, I could be arrested for being under the influence. They went down the toilet, to the dismay of a lot of people! Not one dr. did any major blood work to see what was causing all the weight loss, I was in heaven being able to eat anything I wanted and not gain an ounce-then my husband looked at my one nite while in the kitchen, and said I looked like I was turning yellow. I went once again to my primary care dr. who sent me to the emergency room, and a week later had my gallbladder out. I got to stay in the hospital for 18 days. But now I'm at a healthy weight of 114 pounds(but still thinking I look fat-it doesn't help having an apron of skin hanging down from being overweight) and I concentrate on ways to keep away the pain and try to get some sleep, and spend hours online when I can, writing endless emails like this one is becoming! I remember having to have the heart test with the treadmill, I guess I passed, but my lungs were not happy, I was panting so hard. I hadn't yet known I have COPD. But I passed all the tests to have the lumbar fusion. I don't regret having it, I wanted a chance at having the pain go away, even though I was warned it may not happen completely. I had to try-didn't want a spine stimulator or morphine pump, which were other options. The neck fusion was the biggest success, all pain is gone. Let us know what you decide, there's so much to learn from other people's experiences. Take care-hope you get some " hunny " days soon. By the way, I'm not always so long-winded with my messages! Jeannie ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 hi jeannie, you can write me anytime you feel you want to get long winded, i tend to run on as i have few people sometimes to chat with and fewer that would understand or that are not tired of hearing about it so i just don't say anything. my standard answer is " I'm fine, don't worry about me " . i think there is ever a line in a song something like that, lol. oh yeah, it is in sissy's song by alan jackson, i want that played on my final cd. I'm not gonna have a funeral, just a cd with some pic's and some of my favorite songs, premade and labeled , make it easy for the kids to mail out and be done with it when i finally get to leave this pain filled world. anyway, as long as my rsd doc can calm my fears, everything else i have researched and heard from others sounds like a go on the surgery. i passed my breathing test today even though i've been a smoker since grade school and a pot smoker since middle school and am now on medical pot which helps a lot on cutting down on the meds. i am allergic to aspirin and ibuprofen due to overuse back in the day when they would not give me Tylenol 3's, yet i had to work and raise 4 kids, so as not to make me an addict, so now i cannot take any of the arthritis or antiinflammatory meds they have that would help and am stuck with morphine and vicodin (lortab ), unless i want major gi bleeds and blood coming out from everywhere there is an opening. my new gp doc thought i should be able to tolerate a baby asprin and should have one or two a day now that i am " over 50 " , like something strange happens overnite at that age i guess, but no go even on the baby asprin,, i was bleeding in 2 days. see, your not alone in the run on and on department and i am sure glad you all are out there to chat with and learn from. thanks kindly, wyld From: Abbott <jeannieboo1@...> Subject: Re: new member saying hello neck pain Date: Monday, October 19, 2009, 5:26 PM Hi Wyld I was 50 when I had my back surgery, 40 when I had my first knee surgery. The old good thing about me able to have surgery was that I've never smoked. Maybe I'd better cancel that statement as I have COPD due to second-hand smoke, as I worked in a casino for 20 years, and both my parents smoked-indoors. My first knee surgery went ok, despite the fact I weighed 250 pounds. By the time I had back surgery, I was down to 90 pounds, as I had a gastric bypass, plus my gallbladder had begun to happen-I couldn't stop losing weight. I was given Prednisone to try in order to put some weight on-didn't work. Then, I was given some sort of pills that have whatever is in pot that gives you the munchies, all that did was make me very woozy, and I was warned if I drove while taking them and got in an accident, I could be arrested for being under the influence. They went down the toilet, to the dismay of a lot of people! Not one dr. did any major blood work to see what was causing all the weight loss, I was in heaven being able to eat anything I wanted and not gain an ounce-then my husband looked at my one nite while in the kitchen, and said I looked like I was turning yellow. I went once again to my primary care dr. who sent me to the emergency room, and a week later had my gallbladder out. I got to stay in the hospital for 18 days. But now I'm at a healthy weight of 114 pounds(but still thinking I look fat-it doesn't help having an apron of skin hanging down from being overweight) and I concentrate on ways to keep away the pain and try to get some sleep, and spend hours online when I can, writing endless emails like this one is becoming! I remember having to have the heart test with the treadmill, I guess I passed, but my lungs were not happy, I was panting so hard. I hadn't yet known I have COPD. But I passed all the tests to have the lumbar fusion. I don't regret having it, I wanted a chance at having the pain go away, even though I was warned it may not happen completely. I had to try-didn't want a spine stimulator or morphine pump, which were other options. The neck fusion was the biggest success, all pain is gone. Let us know what you decide, there's so much to learn from other people's experiences. Take care-hope you get some " hunny " days soon. By the way, I'm not always so long-winded with my messages! Jeannie ____________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 hi jeannie, you can write me anytime you feel you want to get long winded, i tend to run on as i have few people sometimes to chat with and fewer that would understand or that are not tired of hearing about it so i just don't say anything. my standard answer is " I'm fine, don't worry about me " . i think there is ever a line in a song something like that, lol. oh yeah, it is in sissy's song by alan jackson, i want that played on my final cd. I'm not gonna have a funeral, just a cd with some pic's and some of my favorite songs, premade and labeled , make it easy for the kids to mail out and be done with it when i finally get to leave this pain filled world. anyway, as long as my rsd doc can calm my fears, everything else i have researched and heard from others sounds like a go on the surgery. i passed my breathing test today even though i've been a smoker since grade school and a pot smoker since middle school and am now on medical pot which helps a lot on cutting down on the meds. i am allergic to aspirin and ibuprofen due to overuse back in the day when they would not give me Tylenol 3's, yet i had to work and raise 4 kids, so as not to make me an addict, so now i cannot take any of the arthritis or antiinflammatory meds they have that would help and am stuck with morphine and vicodin (lortab ), unless i want major gi bleeds and blood coming out from everywhere there is an opening. my new gp doc thought i should be able to tolerate a baby asprin and should have one or two a day now that i am " over 50 " , like something strange happens overnite at that age i guess, but no go even on the baby asprin,, i was bleeding in 2 days. see, your not alone in the run on and on department and i am sure glad you all are out there to chat with and learn from. thanks kindly, wyld From: Abbott <jeannieboo1@...> Subject: Re: new member saying hello neck pain Date: Monday, October 19, 2009, 5:26 PM Hi Wyld I was 50 when I had my back surgery, 40 when I had my first knee surgery. The old good thing about me able to have surgery was that I've never smoked. Maybe I'd better cancel that statement as I have COPD due to second-hand smoke, as I worked in a casino for 20 years, and both my parents smoked-indoors. My first knee surgery went ok, despite the fact I weighed 250 pounds. By the time I had back surgery, I was down to 90 pounds, as I had a gastric bypass, plus my gallbladder had begun to happen-I couldn't stop losing weight. I was given Prednisone to try in order to put some weight on-didn't work. Then, I was given some sort of pills that have whatever is in pot that gives you the munchies, all that did was make me very woozy, and I was warned if I drove while taking them and got in an accident, I could be arrested for being under the influence. They went down the toilet, to the dismay of a lot of people! Not one dr. did any major blood work to see what was causing all the weight loss, I was in heaven being able to eat anything I wanted and not gain an ounce-then my husband looked at my one nite while in the kitchen, and said I looked like I was turning yellow. I went once again to my primary care dr. who sent me to the emergency room, and a week later had my gallbladder out. I got to stay in the hospital for 18 days. But now I'm at a healthy weight of 114 pounds(but still thinking I look fat-it doesn't help having an apron of skin hanging down from being overweight) and I concentrate on ways to keep away the pain and try to get some sleep, and spend hours online when I can, writing endless emails like this one is becoming! I remember having to have the heart test with the treadmill, I guess I passed, but my lungs were not happy, I was panting so hard. I hadn't yet known I have COPD. But I passed all the tests to have the lumbar fusion. I don't regret having it, I wanted a chance at having the pain go away, even though I was warned it may not happen completely. I had to try-didn't want a spine stimulator or morphine pump, which were other options. The neck fusion was the biggest success, all pain is gone. Let us know what you decide, there's so much to learn from other people's experiences. Take care-hope you get some " hunny " days soon. By the way, I'm not always so long-winded with my messages! Jeannie ____________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 hi tom, well i am a pretty tough old bird and don't have much choice but to get on with it. i may moan and groan but there is no one here to hear me except a stray cat ol sneaky pete who might be around. i have been dealing with these issues for so long that you kinda get use to them and figure out what you can do and what you cannot do, but then it does give you a surprise from time to time just to keep you on your toes and keep you from thinking you know what your doing and are in control of anything. i just don't plan anything as i don't know how i will feel that day until my feet get into my slippers or what part or parts of my body are gonna give me trouble that day and to what degree. amazingly i do stay pretty active and have always done so and i think that has helped me over the years. i had to raise 4 kids and work, it didn't matter if i felt well or was in pain or not. i just took it one day, hour or minute at a time as needed. and even with all my troubles and pains i did ride my harley 2000 miles last year but only 10 miles this year. now 2000 miles is nothing to a healthy person to ride, some ride 500 a day or in a weekend no problem, but heck, i was still riding, but i feel better on my bike than in my car or in my truck, more comfortable but i have been riding 30+ years. i cannot ride if i cannot grip the throttle and twist the grip and that is probably my main goal in risking the rsd attacking my neck if i have the surgery but if it does i will probably never ride again. i have to feel very good and only need minor meds and have excellent weather to be able to ride, it does not happen often.i have given up so many activities, snowboarding, snowmobiling, hiking, horseback riding, kayaking, dirt bike riding, 4x4ing, etc, and now without my right arm and hand, even quilting!! gads, what else must i give up? thanks for letting me vent and for your encouraging words, wyld From: tomhfsu@... <tomhfsu@...> Subject: Re: new member saying hello neck pain Date: Monday, October 19, 2009, 7:01 AM The surgery and recovery is not bad.. The only issue is how helpful it will be.. But given you current circumstances I can not imagine not giving it a try.. I have seen a lot of post from new members over the last year. But, darlin yours seems to be the worst.. You shouldl not need a lot of post op care, but all situations are unique so ???.. it can be painful but what is that to you... Post often... It will be helpful.. : ) Tom In a message dated 10/18/2009 1:05:47 P.M. Mountain Daylight Time, wyld_hunny (DOT) com writes: hi everyone, my name is wyldhunny and i live in the columbia river gorge between washington and oregon, on the washington side. i am on some pretty heavy meds and my memory and spelling skills are not very good so please go easy on me. i was mis-diagnosed 27 years ago with ankaloskingspondili i was mis-diagnosed 27 years ago with ankaloskingspondi i currently get steroid/cortisone shots 3 cervical and 3 lumbar every year that are very helpful. if i could get them everymonth i think i could return to work but my dr says my bones would turn to jelly within 5 years but that might be worth it to feel better. i am not trying to live a long life, just a better quality of life for a shorter term if possible as the long term seems so bleak and painful. i also have had 3 knee surgeries that resulted in nerve damage and rsd/crps. rsd is reflex symethic dystraphy and crps is cronic regional pain syndrom. i now have a partial cervical disk that has shifted against the spinal cord and lots of bone spurs that have caused my right arm and hand to give me lots of problems. my dr says he cannot do anything to reduce my neck pain but thinks he can resore my use of my right hand but i risk the rsd moving to my neck. he would have to fuse c4/c5 and put in a cadavar disk, plate and screws. i am sure some of the people in this group have had this done and am wondering what this surgery and recovery are like and also if anyone in this group also has rsd/crps too? i live alone and do not have a support system and live out in the sticks, how much help will i need after the surgery? a friend suggested i find a on line support group and it looks like you are the right folks to ask as i have been reading up on some of your past posts but it will take me awhile to get thru all of them. thanks kindly for any help and suggestions, wyldhunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 hi tom, well i am a pretty tough old bird and don't have much choice but to get on with it. i may moan and groan but there is no one here to hear me except a stray cat ol sneaky pete who might be around. i have been dealing with these issues for so long that you kinda get use to them and figure out what you can do and what you cannot do, but then it does give you a surprise from time to time just to keep you on your toes and keep you from thinking you know what your doing and are in control of anything. i just don't plan anything as i don't know how i will feel that day until my feet get into my slippers or what part or parts of my body are gonna give me trouble that day and to what degree. amazingly i do stay pretty active and have always done so and i think that has helped me over the years. i had to raise 4 kids and work, it didn't matter if i felt well or was in pain or not. i just took it one day, hour or minute at a time as needed. and even with all my troubles and pains i did ride my harley 2000 miles last year but only 10 miles this year. now 2000 miles is nothing to a healthy person to ride, some ride 500 a day or in a weekend no problem, but heck, i was still riding, but i feel better on my bike than in my car or in my truck, more comfortable but i have been riding 30+ years. i cannot ride if i cannot grip the throttle and twist the grip and that is probably my main goal in risking the rsd attacking my neck if i have the surgery but if it does i will probably never ride again. i have to feel very good and only need minor meds and have excellent weather to be able to ride, it does not happen often.i have given up so many activities, snowboarding, snowmobiling, hiking, horseback riding, kayaking, dirt bike riding, 4x4ing, etc, and now without my right arm and hand, even quilting!! gads, what else must i give up? thanks for letting me vent and for your encouraging words, wyld From: tomhfsu@... <tomhfsu@...> Subject: Re: new member saying hello neck pain Date: Monday, October 19, 2009, 7:01 AM The surgery and recovery is not bad.. The only issue is how helpful it will be.. But given you current circumstances I can not imagine not giving it a try.. I have seen a lot of post from new members over the last year. But, darlin yours seems to be the worst.. You shouldl not need a lot of post op care, but all situations are unique so ???.. it can be painful but what is that to you... Post often... It will be helpful.. : ) Tom In a message dated 10/18/2009 1:05:47 P.M. Mountain Daylight Time, wyld_hunny (DOT) com writes: hi everyone, my name is wyldhunny and i live in the columbia river gorge between washington and oregon, on the washington side. i am on some pretty heavy meds and my memory and spelling skills are not very good so please go easy on me. i was mis-diagnosed 27 years ago with ankaloskingspondili i was mis-diagnosed 27 years ago with ankaloskingspondi i currently get steroid/cortisone shots 3 cervical and 3 lumbar every year that are very helpful. if i could get them everymonth i think i could return to work but my dr says my bones would turn to jelly within 5 years but that might be worth it to feel better. i am not trying to live a long life, just a better quality of life for a shorter term if possible as the long term seems so bleak and painful. i also have had 3 knee surgeries that resulted in nerve damage and rsd/crps. rsd is reflex symethic dystraphy and crps is cronic regional pain syndrom. i now have a partial cervical disk that has shifted against the spinal cord and lots of bone spurs that have caused my right arm and hand to give me lots of problems. my dr says he cannot do anything to reduce my neck pain but thinks he can resore my use of my right hand but i risk the rsd moving to my neck. he would have to fuse c4/c5 and put in a cadavar disk, plate and screws. i am sure some of the people in this group have had this done and am wondering what this surgery and recovery are like and also if anyone in this group also has rsd/crps too? i live alone and do not have a support system and live out in the sticks, how much help will i need after the surgery? a friend suggested i find a on line support group and it looks like you are the right folks to ask as i have been reading up on some of your past posts but it will take me awhile to get thru all of them. thanks kindly for any help and suggestions, wyldhunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Dear Wyld, Funny you should mention medical pot-just watched a show on tv called " Pot City, USA " . Did you catch it? Was pretty interesting, seeing both sides and how misuse is making a small town die. I'm not supposed to use tylenol stuff because of an ulcer. Also can't use anything to help with osteoporosis for same reason, unless there's something new that won't kill my stomach. Do you have a surgery date yet? Glad to hear you passed breathing tests. Nite-sleep good Jeannie ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Dear Wyld, Funny you should mention medical pot-just watched a show on tv called " Pot City, USA " . Did you catch it? Was pretty interesting, seeing both sides and how misuse is making a small town die. I'm not supposed to use tylenol stuff because of an ulcer. Also can't use anything to help with osteoporosis for same reason, unless there's something new that won't kill my stomach. Do you have a surgery date yet? Glad to hear you passed breathing tests. Nite-sleep good Jeannie ________________________________ Quote Link to comment Share on other sites More sharing options...
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