Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 Hi Lora...welcome to the group! Claudine is so helpful...I can't add a thing to what she's said but I wanted to say Hi :-} Carol Lora wrote: > > Wow! Thanx for such a timely response. I agree that just like HCV, the treatment is quite individual too...no real answer with this stuff. Thanx for the input on hypothyroid, I already am on levothyroid so will need to have that monitored. Praise God that I do have a wonderful doc! I sure have heard some sad stories of those that do not :-( > I appreciate your input, I have to say just what you said it right where I am. When I was first diagnosed, myself & my doc took the approach that I have time to wait for a better treatment option. But now that I am experiencing more of the psychological probs, to the point that just last week I went on a stress disability from work, just couldn't do anymore, seems like this is the time to do this. > I look forward to meeting others in the group & hope I can be a source of support too! > Take care, lora ;-) > > Because Jesus lives! > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.291 / Virus Database: 156 - Release Date: 10/25/01 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 Hi Lora...welcome to the group! Claudine is so helpful...I can't add a thing to what she's said but I wanted to say Hi :-} Carol Lora wrote: > > Wow! Thanx for such a timely response. I agree that just like HCV, the treatment is quite individual too...no real answer with this stuff. Thanx for the input on hypothyroid, I already am on levothyroid so will need to have that monitored. Praise God that I do have a wonderful doc! I sure have heard some sad stories of those that do not :-( > I appreciate your input, I have to say just what you said it right where I am. When I was first diagnosed, myself & my doc took the approach that I have time to wait for a better treatment option. But now that I am experiencing more of the psychological probs, to the point that just last week I went on a stress disability from work, just couldn't do anymore, seems like this is the time to do this. > I look forward to meeting others in the group & hope I can be a source of support too! > Take care, lora ;-) > > Because Jesus lives! > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.291 / Virus Database: 156 - Release Date: 10/25/01 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 <<But now that I am experiencing more of the psychological probs, to the point that just last week I went on a stress disability from work, >> Interferon, even the peg, will increase the emotional/stress/psyche problems. Interferon is a brain scrambler I call it. Messes with your brain chemistry. As a layperson who has done treatment, I would highly recomend you find a good antidepressant prior to doing treatment. But hey, we all have bad days, just happens! I found posting here, when I'd have a bad day on treatment, and chatting in hep c chatrooms online, were great stress relievers. I could rant, vent, whine, etc and not lay it all on hubby haha. Oh, that reminds me, do you have a spouse or someone to help you through treatment? If you can't work, what will you do? Have a " back up plan " for the worse case scenario. You may never need it, but easier to plan now than when exhausted on treatment. hugs alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 <<But now that I am experiencing more of the psychological probs, to the point that just last week I went on a stress disability from work, >> Interferon, even the peg, will increase the emotional/stress/psyche problems. Interferon is a brain scrambler I call it. Messes with your brain chemistry. As a layperson who has done treatment, I would highly recomend you find a good antidepressant prior to doing treatment. But hey, we all have bad days, just happens! I found posting here, when I'd have a bad day on treatment, and chatting in hep c chatrooms online, were great stress relievers. I could rant, vent, whine, etc and not lay it all on hubby haha. Oh, that reminds me, do you have a spouse or someone to help you through treatment? If you can't work, what will you do? Have a " back up plan " for the worse case scenario. You may never need it, but easier to plan now than when exhausted on treatment. hugs alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 After reading Pats post I thought of this. How about the Take Charge program from Schering. It is a no cost but extremly helpful. They have a nurse for you. My first Dr gave the brochure and phone # I no longer have it, maybe someone here might know Take Care, Connie --- AndromedaGurl <andromedagurl@...> wrote: > <<But now that I am experiencing more of the > psychological probs, to the > point that just last week I went on a stress > disability from work, >> > > Interferon, even the peg, will increase the > emotional/stress/psyche > problems. > > Interferon is a brain scrambler I call it. Messes > with your brain chemistry. > As a layperson who has done treatment, I would > highly recomend you find a > good antidepressant prior to doing treatment. > > But hey, we all have bad days, just happens! > > I found posting here, when I'd have a bad day on > treatment, and chatting in > hep c chatrooms online, were great stress relievers. > I could rant, vent, > whine, etc and not lay it all on hubby haha. > > Oh, that reminds me, do you have a spouse or someone > to help you through > treatment? If you can't work, what will you do? Have > a " back up plan " for > the worse case scenario. You may never need it, but > easier to plan now than > when exhausted on treatment. > > hugs > > alley > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 After reading Pats post I thought of this. How about the Take Charge program from Schering. It is a no cost but extremly helpful. They have a nurse for you. My first Dr gave the brochure and phone # I no longer have it, maybe someone here might know Take Care, Connie --- AndromedaGurl <andromedagurl@...> wrote: > <<But now that I am experiencing more of the > psychological probs, to the > point that just last week I went on a stress > disability from work, >> > > Interferon, even the peg, will increase the > emotional/stress/psyche > problems. > > Interferon is a brain scrambler I call it. Messes > with your brain chemistry. > As a layperson who has done treatment, I would > highly recomend you find a > good antidepressant prior to doing treatment. > > But hey, we all have bad days, just happens! > > I found posting here, when I'd have a bad day on > treatment, and chatting in > hep c chatrooms online, were great stress relievers. > I could rant, vent, > whine, etc and not lay it all on hubby haha. > > Oh, that reminds me, do you have a spouse or someone > to help you through > treatment? If you can't work, what will you do? Have > a " back up plan " for > the worse case scenario. You may never need it, but > easier to plan now than > when exhausted on treatment. > > hugs > > alley > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 I didn't mention the be in charge program cuz they really hosed up for me. I got one call right after I registered online and then nothing the rest of my treatment. So I said screw em lol. You can find them online http://www.rebetron.com I think alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 I agree with you Alley....I didn't have any success with the Be In Charge program either. They called me when I first started treatment and gave me some tips on dealing with some of the sides....like ginger for nausea, oatmeal baths for dry skin, etc. But they were common sense things that I already knew. The next month they called and I asked them about the brain fog....and exactly what the interferon or ribavarinn was doing to my neurotransmitters...why was I experiencing this brain fog and the anger. They hemmed and hawed and told me to talk to my doctor. Then I found this group and answers to all my questions. The next time they called I told them not to bother me any more. My feeling (my opinion only) is that they have set up that program as a means of free research....using us as guinea pigs for the benefit of Schering Plough and their product. Had they been able to answer any of the specific questions I asked, I might have a different opinion. But all they seemed to care about was the sides I was experiencing for their records...they didn't provide any answers to the questions I had. Tatezi > I didn't mention the be in charge program cuz they really hosed up for > me. I got one call right after I registered online and then nothing > the rest of my treatment. So I said screw em lol. -- " To restrict the art of healing to one class of men and deny equal privileges to others will constitute the Bastille of medical science. All such laws are un-American and despotic and have no place in a republic... " ~ Rush MD, signer of the Declaration of Independence, physician to Washington~ [image] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Tat said <<But all they seemed to care about was the sides I was experiencing for their records...they didn't provide any answers to the questions I had>> I think you are on to something there Tat! When the nurse called me from be in charge, I had just started treatment and she asked for side effects I said I feel much better, all my joint pain and muscle burn/aches are gone. And asked how long it will last. She didn't know and nobody called back so screw em. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Ah Alley...I sense a kindred soul in not trusting the medical and/or research people <g> > I think you are on to something there Tat! > > When the nurse called me from be in charge, I had just started > treatment and > she asked for side effects I said I feel much better, all my joint > pain and > muscle burn/aches are gone. And asked how long it will last. She > didn't know > and nobody called back so screw em. > > alley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Tat, Is why I like to stay informed as much as possible about this disease. And now I'm doing a crash course on malignant melanoma. Bought a book on it and reading on the web as well. I am not saying I know more than the specialists, but I like to work WITH my doctor, not against him and not instead of him (or her). It's MY body, dadgummit! So I guess you could say I am " pro choice " in many areas. picky alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Tat, Is why I like to stay informed as much as possible about this disease. And now I'm doing a crash course on malignant melanoma. Bought a book on it and reading on the web as well. I am not saying I know more than the specialists, but I like to work WITH my doctor, not against him and not instead of him (or her). It's MY body, dadgummit! So I guess you could say I am " pro choice " in many areas. picky alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 ---------- >From: Tatezi <tatezi@...> > > My feeling (my opinion only) is that they have set up that program as a > means of free research....using us as guinea pigs for the benefit of > Schering Plough and their product. Had they been able to answer any of > the specific questions I asked, I might have a different opinion. But > all they seemed to care about was the sides I was experiencing for their > records...they didn't provide any answers to the questions I had. Unfortunately, it is not an opinion, but truth. The study groups are rather narrow, and the pharmaceuticals really do not know how a new product will affect the general population. gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 ---------- >From: Tatezi <tatezi@...> > > My feeling (my opinion only) is that they have set up that program as a > means of free research....using us as guinea pigs for the benefit of > Schering Plough and their product. Had they been able to answer any of > the specific questions I asked, I might have a different opinion. But > all they seemed to care about was the sides I was experiencing for their > records...they didn't provide any answers to the questions I had. Unfortunately, it is not an opinion, but truth. The study groups are rather narrow, and the pharmaceuticals really do not know how a new product will affect the general population. gail Quote Link to comment Share on other sites More sharing options...
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