Re: bad news Thursday - whine whine whine

[Guest guest]

Edie said <<Caged animals have better accomodations at the pound!>>

Wonder if they have disabled parking too? hahha

Thanks Edie. By the time the judicial process for the complaint rolled

around it'll be a year at least from now. So, no I don't have the energy to

do anything other than file a complaint. Not after my day today!

I've decided tomorrow will be an easier day. Just work half a day, get my

reports done and go home, let daughter pick hubby up later.

alley

[Guest guest]

Edie said <<Caged animals have better accomodations at the pound!>>

Wonder if they have disabled parking too? hahha

Thanks Edie. By the time the judicial process for the complaint rolled

around it'll be a year at least from now. So, no I don't have the energy to

do anything other than file a complaint. Not after my day today!

I've decided tomorrow will be an easier day. Just work half a day, get my

reports done and go home, let daughter pick hubby up later.

alley

[Guest guest]

Edie said <<Caged animals have better accomodations at the pound!>>

Wonder if they have disabled parking too? hahha

Thanks Edie. By the time the judicial process for the complaint rolled

around it'll be a year at least from now. So, no I don't have the energy to

do anything other than file a complaint. Not after my day today!

I've decided tomorrow will be an easier day. Just work half a day, get my

reports done and go home, let daughter pick hubby up later.

alley

[Guest guest]

Edie said <<Caged animals have better accomodations at the pound!>>

Wonder if they have disabled parking too? hahha

Thanks Edie. By the time the judicial process for the complaint rolled

around it'll be a year at least from now. So, no I don't have the energy to

do anything other than file a complaint. Not after my day today!

I've decided tomorrow will be an easier day. Just work half a day, get my

reports done and go home, let daughter pick hubby up later.

alley

[Guest guest]

Alley,

Geesh! You'd THINK that law about disabilities and access applied to all

employers - not just to 'regular' (not temp) employees.

I think you got a lawsuit on your hands if you got the energy to pursue it.

See one of those lawyers in the phone book that works for free and takes

1/3rd of your settlement.

You have the right to have access to the place you work. You also have the

right to have it somewhat warm and not frigid at work. I live in San

and it was 25 degrees last night and only got up into the 40's

today. I could not imagine having no heat at work. No one should have to

put up with that.

Caged animals have better accomodations at the pound!

Edie

bad news Thursday - whine whine whine

> Today has just been a real bummer of a day for me.

>

> 4 freakin hours to get to work thanks to the ice ick.

>

> Found out that my husband may be in a layoff in Jan.

>

> There's no heat in the building I'm working in, no wheelchair ramp, no

disabled parking, so that makes it a bit of a challenge getting in to work.

I figured I'd work around it since I'm contract but when their HR person

said " well you're not permanently disabled so that's ok " , I just blew a

gasket. Not outside but inside, enough to call the state and file an

official complaint with the Disabled thingamajiggers (sorry I'm tired lol).

I won't be working there by the time the slow wheels of justice roll around

in a year or so, but at least it might help someone else later.

>

> And I got a call from my gastro on the way home from work tonight. (I'm

not used to hearing directly from a doctor, I forget it means bad news). My

6th month post treatment viral load is up and more than I had when I started

treatment. 855,000 IU (multiply that times 3 to get copies = about 2.6

million copies) and my thyroid is skyrocketing, thanks to treatment. I'm the

only person I know who GAINED weight on treatment! sheesh. It's up over 7

now and the normal he said was 6 something. He and I discussed my upcoming

melanoma treatment and how I needed to keep a close eye on the thyroid.

>

> And, if hubby gets laid off, I won't be able to do treatment for the

cancer anyway, no job/no insurance/no money/no nuttin.

>

> I wrote the hospital an email asking them if transportation was provided

for cancer patients. Not sure if I qualify or even if they have it but never

hurts to ask.

>

> So besides being cold, stiff and sore from having to walk from my car to

my desk across the frozen Texas tundra parking lot and warehouse and lots of

icky news, I'm still feeling lucky to be alive. I should be depressed, but

I'm mostly just frustrated. I got a flu shot today. Let's hope I don't get

the flu too! hahaha

>

> Thank goodness tomorrow is FRIDAY!

>

> I hope yall's day was MUCH better! and WARMER!

>

> Be safe yall.

>

> alley

>

>

>

[Guest guest]

Alley,

Geesh! You'd THINK that law about disabilities and access applied to all

employers - not just to 'regular' (not temp) employees.

I think you got a lawsuit on your hands if you got the energy to pursue it.

See one of those lawyers in the phone book that works for free and takes

1/3rd of your settlement.

You have the right to have access to the place you work. You also have the

right to have it somewhat warm and not frigid at work. I live in San

and it was 25 degrees last night and only got up into the 40's

today. I could not imagine having no heat at work. No one should have to

put up with that.

Caged animals have better accomodations at the pound!

Edie

bad news Thursday - whine whine whine

> Today has just been a real bummer of a day for me.

>

> 4 freakin hours to get to work thanks to the ice ick.

>

> Found out that my husband may be in a layoff in Jan.

>

> There's no heat in the building I'm working in, no wheelchair ramp, no

disabled parking, so that makes it a bit of a challenge getting in to work.

I figured I'd work around it since I'm contract but when their HR person

said " well you're not permanently disabled so that's ok " , I just blew a

gasket. Not outside but inside, enough to call the state and file an

official complaint with the Disabled thingamajiggers (sorry I'm tired lol).

I won't be working there by the time the slow wheels of justice roll around

in a year or so, but at least it might help someone else later.

>

> And I got a call from my gastro on the way home from work tonight. (I'm

not used to hearing directly from a doctor, I forget it means bad news). My

6th month post treatment viral load is up and more than I had when I started

treatment. 855,000 IU (multiply that times 3 to get copies = about 2.6

million copies) and my thyroid is skyrocketing, thanks to treatment. I'm the

only person I know who GAINED weight on treatment! sheesh. It's up over 7

now and the normal he said was 6 something. He and I discussed my upcoming

melanoma treatment and how I needed to keep a close eye on the thyroid.

>

> And, if hubby gets laid off, I won't be able to do treatment for the

cancer anyway, no job/no insurance/no money/no nuttin.

>

> I wrote the hospital an email asking them if transportation was provided

for cancer patients. Not sure if I qualify or even if they have it but never

hurts to ask.

>

> So besides being cold, stiff and sore from having to walk from my car to

my desk across the frozen Texas tundra parking lot and warehouse and lots of

icky news, I'm still feeling lucky to be alive. I should be depressed, but

I'm mostly just frustrated. I got a flu shot today. Let's hope I don't get

the flu too! hahaha

>

> Thank goodness tomorrow is FRIDAY!

>

> I hope yall's day was MUCH better! and WARMER!

>

> Be safe yall.

>

> alley

>

>

>

[Guest guest]

Alley,

Geesh! You'd THINK that law about disabilities and access applied to all

employers - not just to 'regular' (not temp) employees.

I think you got a lawsuit on your hands if you got the energy to pursue it.

See one of those lawyers in the phone book that works for free and takes

1/3rd of your settlement.

You have the right to have access to the place you work. You also have the

right to have it somewhat warm and not frigid at work. I live in San

and it was 25 degrees last night and only got up into the 40's

today. I could not imagine having no heat at work. No one should have to

put up with that.

Caged animals have better accomodations at the pound!

Edie

bad news Thursday - whine whine whine

> Today has just been a real bummer of a day for me.

>

> 4 freakin hours to get to work thanks to the ice ick.

>

> Found out that my husband may be in a layoff in Jan.

>

> There's no heat in the building I'm working in, no wheelchair ramp, no

disabled parking, so that makes it a bit of a challenge getting in to work.

I figured I'd work around it since I'm contract but when their HR person

said " well you're not permanently disabled so that's ok " , I just blew a

gasket. Not outside but inside, enough to call the state and file an

official complaint with the Disabled thingamajiggers (sorry I'm tired lol).

I won't be working there by the time the slow wheels of justice roll around

in a year or so, but at least it might help someone else later.

>

> And I got a call from my gastro on the way home from work tonight. (I'm

not used to hearing directly from a doctor, I forget it means bad news). My

6th month post treatment viral load is up and more than I had when I started

treatment. 855,000 IU (multiply that times 3 to get copies = about 2.6

million copies) and my thyroid is skyrocketing, thanks to treatment. I'm the

only person I know who GAINED weight on treatment! sheesh. It's up over 7

now and the normal he said was 6 something. He and I discussed my upcoming

melanoma treatment and how I needed to keep a close eye on the thyroid.

>

> And, if hubby gets laid off, I won't be able to do treatment for the

cancer anyway, no job/no insurance/no money/no nuttin.

>

> I wrote the hospital an email asking them if transportation was provided

for cancer patients. Not sure if I qualify or even if they have it but never

hurts to ask.

>

> So besides being cold, stiff and sore from having to walk from my car to

my desk across the frozen Texas tundra parking lot and warehouse and lots of

icky news, I'm still feeling lucky to be alive. I should be depressed, but

I'm mostly just frustrated. I got a flu shot today. Let's hope I don't get

the flu too! hahaha

>

> Thank goodness tomorrow is FRIDAY!

>

> I hope yall's day was MUCH better! and WARMER!

>

> Be safe yall.

>

> alley

>

>

>

[Guest guest]

Alley,

Geesh! You'd THINK that law about disabilities and access applied to all

employers - not just to 'regular' (not temp) employees.

I think you got a lawsuit on your hands if you got the energy to pursue it.

See one of those lawyers in the phone book that works for free and takes

1/3rd of your settlement.

You have the right to have access to the place you work. You also have the

right to have it somewhat warm and not frigid at work. I live in San

and it was 25 degrees last night and only got up into the 40's

today. I could not imagine having no heat at work. No one should have to

put up with that.

Caged animals have better accomodations at the pound!

Edie

bad news Thursday - whine whine whine

> Today has just been a real bummer of a day for me.

>

> 4 freakin hours to get to work thanks to the ice ick.

>

> Found out that my husband may be in a layoff in Jan.

>

> There's no heat in the building I'm working in, no wheelchair ramp, no

disabled parking, so that makes it a bit of a challenge getting in to work.

I figured I'd work around it since I'm contract but when their HR person

said " well you're not permanently disabled so that's ok " , I just blew a

gasket. Not outside but inside, enough to call the state and file an

official complaint with the Disabled thingamajiggers (sorry I'm tired lol).

I won't be working there by the time the slow wheels of justice roll around

in a year or so, but at least it might help someone else later.

>

> And I got a call from my gastro on the way home from work tonight. (I'm

not used to hearing directly from a doctor, I forget it means bad news). My

6th month post treatment viral load is up and more than I had when I started

treatment. 855,000 IU (multiply that times 3 to get copies = about 2.6

million copies) and my thyroid is skyrocketing, thanks to treatment. I'm the

only person I know who GAINED weight on treatment! sheesh. It's up over 7

now and the normal he said was 6 something. He and I discussed my upcoming

melanoma treatment and how I needed to keep a close eye on the thyroid.

>

> And, if hubby gets laid off, I won't be able to do treatment for the

cancer anyway, no job/no insurance/no money/no nuttin.

>

> I wrote the hospital an email asking them if transportation was provided

for cancer patients. Not sure if I qualify or even if they have it but never

hurts to ask.

>

> So besides being cold, stiff and sore from having to walk from my car to

my desk across the frozen Texas tundra parking lot and warehouse and lots of

icky news, I'm still feeling lucky to be alive. I should be depressed, but

I'm mostly just frustrated. I got a flu shot today. Let's hope I don't get

the flu too! hahaha

>

> Thank goodness tomorrow is FRIDAY!

>

> I hope yall's day was MUCH better! and WARMER!

>

> Be safe yall.

>

> alley

>

>

>

[Guest guest]

Hi alley,

You really have had a bad day! I am so sorry to

hear that you have relapsed! I have to admit, I was

afraid that you might have, with all the problems you

have been having since you stopped treatment. Between

relapsing and your thyroid, that really explains a

whole lot of how you have been feeling. That thyroid

can really make you feel sick when it fails, and it

sounds like your's is doing kind of like what mine

did, although mine went way south during treatment. It

has just continued to fail since then. GET TO AN

ENDOCRINOLOGIST!!! The sooner you can get those

thyroid hormones back in normal range (and don't let

them tell you 6 is normal! - not women it's not - get

it down to at least a 2 or so. I like my TSH at 1.0!)

the sooner you will start to feel better. And you need

to do that before you start the interferon. You will

be shocked at how much better just getting that TSH

down will make you feel. I had no idea the thyroid

could affect so much of how I feel. It's a REALLY big

deal! And at least the medication for THAT is cheap!

It's normal for your viral load to go sky-high when

you stop treatment and relapse (or in non-responders).

In fact, I've seen it stated in a study that it's like

going through the acute phase all over again. Don't

let it panic you (it did me until someone told me it

was normal too.) I didn't have a viral load test done

until 11 months post treatment, and mine was something

like 8 or 9 times it's pretreatment level then! Even

if you did NOTHING your viral load would eventually

drop back down to pre-treatment levels however. It

took me about a year and a half, but then it was back

down. One thing to your advantage is that you DID

respond, and people who respond, and then relapse,

have a much better chance of having a sustained

response with more aggressive treatment. And the

interferon you will be on for the melanoma is

definitely much more aggressive than what you were on

before!!! You may be able to get rid of the melanoma

AND your HCV at the same time! Can you take ribavirin

too? (Doesn't hurt to ask.) Another good thing is that

you will be seeing an oncologist, and they are very

experienced at dealing with side effects, and that

will be to your advantage too. They are used to using

things like Neupogen, Procrit, pain meds, etc.

Hopefully your husband will not get laid off, but

maybe he should be on the lookout for another job now,

just in case. Don't forget though that these drug

companies have the free meds programs for those who

need them, and where you live it seems like they would

have some sort of medical aid programs. In San

they have a program called 'Carelink', I think is the

name. It's not medicaid, more can qualify.

And the weather will get better. Everything will work

out somehow.

Take care and good luck,

Claudine

__________________________________________________

[Guest guest]

Hi alley,

You really have had a bad day! I am so sorry to

hear that you have relapsed! I have to admit, I was

afraid that you might have, with all the problems you

have been having since you stopped treatment. Between

relapsing and your thyroid, that really explains a

whole lot of how you have been feeling. That thyroid

can really make you feel sick when it fails, and it

sounds like your's is doing kind of like what mine

did, although mine went way south during treatment. It

has just continued to fail since then. GET TO AN

ENDOCRINOLOGIST!!! The sooner you can get those

thyroid hormones back in normal range (and don't let

them tell you 6 is normal! - not women it's not - get

it down to at least a 2 or so. I like my TSH at 1.0!)

the sooner you will start to feel better. And you need

to do that before you start the interferon. You will

be shocked at how much better just getting that TSH

down will make you feel. I had no idea the thyroid

could affect so much of how I feel. It's a REALLY big

deal! And at least the medication for THAT is cheap!

It's normal for your viral load to go sky-high when

you stop treatment and relapse (or in non-responders).

In fact, I've seen it stated in a study that it's like

going through the acute phase all over again. Don't

let it panic you (it did me until someone told me it

was normal too.) I didn't have a viral load test done

until 11 months post treatment, and mine was something

like 8 or 9 times it's pretreatment level then! Even

if you did NOTHING your viral load would eventually

drop back down to pre-treatment levels however. It

took me about a year and a half, but then it was back

down. One thing to your advantage is that you DID

respond, and people who respond, and then relapse,

have a much better chance of having a sustained

response with more aggressive treatment. And the

interferon you will be on for the melanoma is

definitely much more aggressive than what you were on

before!!! You may be able to get rid of the melanoma

AND your HCV at the same time! Can you take ribavirin

too? (Doesn't hurt to ask.) Another good thing is that

you will be seeing an oncologist, and they are very

experienced at dealing with side effects, and that

will be to your advantage too. They are used to using

things like Neupogen, Procrit, pain meds, etc.

Hopefully your husband will not get laid off, but

maybe he should be on the lookout for another job now,

just in case. Don't forget though that these drug

companies have the free meds programs for those who

need them, and where you live it seems like they would

have some sort of medical aid programs. In San

they have a program called 'Carelink', I think is the

name. It's not medicaid, more can qualify.

And the weather will get better. Everything will work

out somehow.

Take care and good luck,

Claudine

__________________________________________________

[Guest guest]

Hi alley,

You really have had a bad day! I am so sorry to

hear that you have relapsed! I have to admit, I was

afraid that you might have, with all the problems you

have been having since you stopped treatment. Between

relapsing and your thyroid, that really explains a

whole lot of how you have been feeling. That thyroid

can really make you feel sick when it fails, and it

sounds like your's is doing kind of like what mine

did, although mine went way south during treatment. It

has just continued to fail since then. GET TO AN

ENDOCRINOLOGIST!!! The sooner you can get those

thyroid hormones back in normal range (and don't let

them tell you 6 is normal! - not women it's not - get

it down to at least a 2 or so. I like my TSH at 1.0!)

the sooner you will start to feel better. And you need

to do that before you start the interferon. You will

be shocked at how much better just getting that TSH

down will make you feel. I had no idea the thyroid

could affect so much of how I feel. It's a REALLY big

deal! And at least the medication for THAT is cheap!

It's normal for your viral load to go sky-high when

you stop treatment and relapse (or in non-responders).

In fact, I've seen it stated in a study that it's like

going through the acute phase all over again. Don't

let it panic you (it did me until someone told me it

was normal too.) I didn't have a viral load test done

until 11 months post treatment, and mine was something

like 8 or 9 times it's pretreatment level then! Even

if you did NOTHING your viral load would eventually

drop back down to pre-treatment levels however. It

took me about a year and a half, but then it was back

down. One thing to your advantage is that you DID

respond, and people who respond, and then relapse,

have a much better chance of having a sustained

response with more aggressive treatment. And the

interferon you will be on for the melanoma is

definitely much more aggressive than what you were on

before!!! You may be able to get rid of the melanoma

AND your HCV at the same time! Can you take ribavirin

too? (Doesn't hurt to ask.) Another good thing is that

you will be seeing an oncologist, and they are very

experienced at dealing with side effects, and that

will be to your advantage too. They are used to using

things like Neupogen, Procrit, pain meds, etc.

Hopefully your husband will not get laid off, but

maybe he should be on the lookout for another job now,

just in case. Don't forget though that these drug

companies have the free meds programs for those who

need them, and where you live it seems like they would

have some sort of medical aid programs. In San

they have a program called 'Carelink', I think is the

name. It's not medicaid, more can qualify.

And the weather will get better. Everything will work

out somehow.

Take care and good luck,

Claudine

__________________________________________________

[Guest guest]

Hi alley,

You really have had a bad day! I am so sorry to

hear that you have relapsed! I have to admit, I was

afraid that you might have, with all the problems you

have been having since you stopped treatment. Between

relapsing and your thyroid, that really explains a

whole lot of how you have been feeling. That thyroid

can really make you feel sick when it fails, and it

sounds like your's is doing kind of like what mine

did, although mine went way south during treatment. It

has just continued to fail since then. GET TO AN

ENDOCRINOLOGIST!!! The sooner you can get those

thyroid hormones back in normal range (and don't let

them tell you 6 is normal! - not women it's not - get

it down to at least a 2 or so. I like my TSH at 1.0!)

the sooner you will start to feel better. And you need

to do that before you start the interferon. You will

be shocked at how much better just getting that TSH

down will make you feel. I had no idea the thyroid

could affect so much of how I feel. It's a REALLY big

deal! And at least the medication for THAT is cheap!

It's normal for your viral load to go sky-high when

you stop treatment and relapse (or in non-responders).

In fact, I've seen it stated in a study that it's like

going through the acute phase all over again. Don't

let it panic you (it did me until someone told me it

was normal too.) I didn't have a viral load test done

until 11 months post treatment, and mine was something

like 8 or 9 times it's pretreatment level then! Even

if you did NOTHING your viral load would eventually

drop back down to pre-treatment levels however. It

took me about a year and a half, but then it was back

down. One thing to your advantage is that you DID

respond, and people who respond, and then relapse,

have a much better chance of having a sustained

response with more aggressive treatment. And the

interferon you will be on for the melanoma is

definitely much more aggressive than what you were on

before!!! You may be able to get rid of the melanoma

AND your HCV at the same time! Can you take ribavirin

too? (Doesn't hurt to ask.) Another good thing is that

you will be seeing an oncologist, and they are very

experienced at dealing with side effects, and that

will be to your advantage too. They are used to using

things like Neupogen, Procrit, pain meds, etc.

Hopefully your husband will not get laid off, but

maybe he should be on the lookout for another job now,

just in case. Don't forget though that these drug

companies have the free meds programs for those who

need them, and where you live it seems like they would

have some sort of medical aid programs. In San

they have a program called 'Carelink', I think is the

name. It's not medicaid, more can qualify.

And the weather will get better. Everything will work

out somehow.

Take care and good luck,

Claudine

__________________________________________________

[Guest guest]

Alley,

You sure had a bad day.. I hope tomorrow is warmer and brighter :-)

((((((((((((((Alley))))))))))))))))))))

Judy

From the land of 10,000 lakes covered with ice.. Brrrrrrrrrrrrrrrr

[Guest guest]

Not here the poor little boogers they lay on wet

concrete and is just cages of fencing they do not even

give them old blankets or anything. If I had the

money and a lot of land have a barn built for them and

adopt every one so they have somewhere warm to sleep.

Ally you have every right to whine after the day you

had. If you want or if it is feasible maybe we can

help with the complaint?

Connie

> Caged animals have better accomodations at the

> pound!

>

__________________________________________________

[Guest guest]

Not here the poor little boogers they lay on wet

concrete and is just cages of fencing they do not even

give them old blankets or anything. If I had the

money and a lot of land have a barn built for them and

adopt every one so they have somewhere warm to sleep.

Ally you have every right to whine after the day you

had. If you want or if it is feasible maybe we can

help with the complaint?

Connie

> Caged animals have better accomodations at the

> pound!

>

__________________________________________________

[Guest guest]

How I know of there treatment here, I go see them and

give them treats, do not even want to know what

happened to ones I see gone. Cats are indoors.

--- Constance Dickson

<constance_clearwater_florida@...> wrote:

> Not here the poor little boogers they lay on wet

> concrete and is just cages of fencing they do not

> even

> give them old blankets or anything. If I had the

> money and a lot of land have a barn built for them

> and

> adopt every one so they have somewhere warm to

> sleep.

> Ally you have every right to whine after the day

> you

> had. If you want or if it is feasible maybe we can

> help with the complaint?

> Connie

>

> > Caged animals have better accomodations at the

> > pound!

> >

>

>

> __________________________________________________

>

[Guest guest]

How I know of there treatment here, I go see them and

give them treats, do not even want to know what

happened to ones I see gone. Cats are indoors.

--- Constance Dickson

<constance_clearwater_florida@...> wrote:

> Not here the poor little boogers they lay on wet

> concrete and is just cages of fencing they do not

> even

> give them old blankets or anything. If I had the

> money and a lot of land have a barn built for them

> and

> adopt every one so they have somewhere warm to

> sleep.

> Ally you have every right to whine after the day

> you

> had. If you want or if it is feasible maybe we can

> help with the complaint?

> Connie

>

> > Caged animals have better accomodations at the

> > pound!

> >

>

>

> __________________________________________________

>

[Guest guest]

Oh Alley, what a day you had. Operative word is HAD. Honey, the law

of averages says it just has to get better. I've been telling myself

that for a long time and still waiting lol. Hope it gets back to

normal for you SOON, like right NOW.

Huggggggs

Carol

AndromedaGurl wrote:

>

> Today has just been a real bummer of a day for me.

>

[Guest guest]

So sorry you had such a terrible day. Seems like the Americans

Disability Act should be able to take care of the handicapped issue.

I'll be sending you lots of good energies so your husband doesn't get

laid off. I'll tell you....the economy is in the toilet and it wouldn't

surprise me if more people were unemployed than employed at this point

in thime.

Seems to me there would also be some way to get the cancer treatment

even without insurance. Talk to the social service department at the

hospital.

And I " m so sorry about your viral load. that must have been devasting

when you heard it. But stay strong....responders who relapse are having

outstanding success with the pegylated version....

Blessings

Tatezi

> Today has just been a real bummer of a day for me....My 6th month post

> treatment viral load is up and more than I had when I started

> treatment. 855,000 IU (multiply that times 3 to get copies = about 2.6

> million copies) and my thyroid is skyrocketing, thanks to treatment.

> ....And, if hubby gets laid off, I won't be able to do treatment for

> the cancer anyway, no job/no insurance/no money/no nuttin.

[Guest guest]

So sorry you had such a terrible day. Seems like the Americans

Disability Act should be able to take care of the handicapped issue.

I'll be sending you lots of good energies so your husband doesn't get

laid off. I'll tell you....the economy is in the toilet and it wouldn't

surprise me if more people were unemployed than employed at this point

in thime.

Seems to me there would also be some way to get the cancer treatment

even without insurance. Talk to the social service department at the

hospital.

And I " m so sorry about your viral load. that must have been devasting

when you heard it. But stay strong....responders who relapse are having

outstanding success with the pegylated version....

Blessings

Tatezi

> Today has just been a real bummer of a day for me....My 6th month post

> treatment viral load is up and more than I had when I started

> treatment. 855,000 IU (multiply that times 3 to get copies = about 2.6

> million copies) and my thyroid is skyrocketing, thanks to treatment.

> ....And, if hubby gets laid off, I won't be able to do treatment for

> the cancer anyway, no job/no insurance/no money/no nuttin.

[Guest guest]

Claudine said<<. Between relapsing and your thyroid, that really explains a

whole lot of how you have been feeling>>

Yep and as I watched my thyroid creep higher on treatment I kept asking the

gastro nurse if I should do something about it and they said no it hasn't

gone over the 6 mark yadda yadda. Nevermind I felt like warm dog poo.

<<!!! You may be able to get rid of the melanoma AND your HCV at the same

time! Can you take ribavirin too?>>

Yep I think those massive doses of interferon just might do the trick and

not only NO but HADES no, I'm not doin riba again unless I get cirrhosis and

they tell me I'm gonna die unless I take it. lol.

<<Another good thing is that you will be seeing an oncologist, and they are

very

experienced at dealing with side effects, and that will be to your advantage

too>>

I think so too. I've had other cancer patients say they get good treatment

and medications for sides, much better than we usually get with hep c

treatment. It was like I had to be dead first before I could get something

for a treatment-induced migraine.

Judy thanks for the good thots!!! And you can keep the cold weather!

Carol said <<Operative word is HAD>>

Yeah, I figure hit me all at once, cuz I want to get it over with lol.

Tat said <<responders who relapse are having outstanding success with the

pegylated version....>>

I won't be doing the hep c treatment again anytime soon, if ever. I doubt

the peg version would be that much better than what I was doing, every other

day shots nonstop, no breaks. I hope tho for everyone else who does it, it

IS better! With a genotype 1b relapse wasn't a surprise. I had started

thinking of myself as someone without hep c, trying to gear my mind away

from the disease and the sides and go on. Still gotta go on, but time to

work on the sides and get those squared away (the thyroid, fibro, fatigue,

stuff) and see what I can tolerate in the way of cancer treatment. I am glad

in a way that I am not walking into melanoma treatment " cold " . I at least

have some idea of what it's like and can kinda prepare. And like Claudine

said earlier, the help for the sides should be better. Let's face it folks,

heppers just aren't treated with respect and " understanding " even from their

gastros, for the most part. I think of my gastro as a great doc, but as for

helping me with the sides, it was an uphill battle and I had just a few

sides.

Claudine said <<. When my thyroid quit I couldn't walk from one room to the

next without stopping to rest. It was awful! >>

Sucks doesn't it? Yep I will be checkin things out for sure. And I'll let

yall know how it goes.

As for helping with the complaint, I dunno. I would think you would need to

actually have experienced the building being complained about. There's a

Wherehouse store (music) that I frequent and I've written to their

management about their disabled parking. Several years ago, they moved their

front doors from the center of the building to one end, but the disabled

parking and ramp is still in the center of the building. I figure I'll give

them the benefit of the doubt on the disabled parking, but may still file

later just because they need to understand what's going on. There are a lot

of rules on it tho and they may be within certain time limits as to how long

they have to change things etc. Lots of rules and stuff when I was reading

the website this morning on archetectural disability laws in Texas.

But I think it is a good thing that we are aware of these problems and can

help get them fixed. So many people who NEED the ramps and special access

are too tired to complain or tired of complaining, knowing it's months to

years before anything is actually changed.

On one website there are actually pages you can print to place on the

windshield of a vehicle that is illegally parked in a disabled parking

space, telling them what's wrong. Good idea, but some people think if you

are not in a wheelchair, you are not disabled.

Hep C and its sides are actually considered a " hidden disability " . I met

someone recently who was a lawyer, now is on disability due to fibro and

things, and her husband is a lawyer so I may be talking to her about how I

can go ahead and start on something. It'll take a few years but who knows.

Tat said <<a series of seminars on identifying your skills, resume writing

and fine tuning, marketing yourself and interview techniques>>

Oh I know how those go, been thru those for sure! You know I'd love to do

some advanced training in graphics, particularly web graphics and design.

I've taught myself some on an older version of Photoshop (4) and can do some

basic html, but the cost of taking actual classes around here in these

subjects is astronomical and usually targeted to industry. Anyway, had I the

money, I'd be training in that.

Tat said <<Tomorrow I interview with a them/perm job placement place in the

am and the outplacement center in the afternoon. >>

Good luck! Let us know how it goes )

Thanks for letting me whine yall! Have a GREAT Friday!!

alley

[Guest guest]

I worked for the Government in Pinellas County, FL.

before a business can be opened it has to have

approval given on ramps, parking, and bathroom

facilities, also existing business had to get

approval. Call the Building department and also

Public Works and see if they will help you. If you

are under county rules or cities find out............

Heres a for instance, The Dome was built in St

sburg FL and got approval for the handicap

facilities, but after the opening event they had to go

in and spend lots of money to fix it. The ones in

wheelchairs were in walking area and they complained

which I would too having people walking by you

constantly.

The dome was under cities rules. Is in St sburg

(city).

Connie

__________________________________________________

[Guest guest]

Well somebody got the message cuz as I sat there at my desk today freezin',

the maintenance guy and some other guy came up and told me they would be

opening the door the ramp goes to, and putting a placard in front of the

ramp for me to park. That doesn't exactly meet with code (at least one main

entrance has to be handicap accessible depending on size/number of people at

the company) but it's a start.

I kept getting this " Well you're not permanently disabled. " As if the

problem will go away when I do? Very frustrating and very shortsighted.

alley

[Guest guest]

Thats good they did that, but what about some heat?

Laws are so different state to state like here

sometimes you have to have your own fridge and stove.

Never seen that before

In FL they have to provide you a place to cook,

refrigeration, and heat, also running water.

Connie

--- AndromedaGurl <andromedagurl@...> wrote:

> Well somebody got the message cuz as I sat there at

> my desk today freezin',

> the maintenance guy and some other guy came up and

> told me they would be

> opening the door the ramp goes to, and putting a

> placard in front of the

> ramp for me to park. That doesn't exactly meet with

> code (at least one main

> entrance has to be handicap accessible depending on

> size/number of people at

> the company) but it's a start.

>

> I kept getting this " Well you're not permanently

> disabled. " As if the

> problem will go away when I do? Very frustrating and

> very shortsighted.

>

> alley

>

>

__________________________________________________

[Guest guest]

at work?