Re: End of Treatment

May 22, 2000

Congratulations - enjoy your family you deserve it.

Winne

May 22, 2000

,

I am so happy that you finished your shots and pills. I hope and pray your blood

work turns out well. Keep up the positive thinking and keep smiling. You got

one from me. : )

Take Care,

virginia

May 22, 2000

,

I am so happy that you finished your shots and pills. I hope and pray your blood

work turns out well. Keep up the positive thinking and keep smiling. You got

one from me. : )

Take Care,

virginia

May 24, 2000

------Original Message------

From: Puente <fpuente@...>

i am done!!!!!!!!! last shot and pils last night so today was not noticeably

better but one day at a time is how i went through treatment and that is how

i will come back

Hope you stay sustained!

Gail

May 24, 2000

,

Congratulations on finishing your treatment! I've been off about 2 and half

months now. I'll be interested in hearing how it goes for you. I found that at

first I had a lot of energy and felt great. There were lot's of great things

going on around me too. Then I hit major burn out and was in bed for days. Now

I'm back to napping every day. I hope I didn't push too hard to start with.

And I hope you'll take it easy and not try to do too much too fast. Enjoy!!

Alison

end of treatment

can't believe that 26 weeks has finally passed. daily interferon(infergen) 9

mcg's and 1200 mg ribavirin has taken its toal. My hair is thinner, skin

rashier, brain fogier, energy level(non existant) lol, muscles achier, and the

list goes on, but ya know what? i am done!!!!!!!!! last shot and pils last

night so today was not noticeably better but one day at a time is how i went

through treatment and that is how i will come back. cant wait to get back to

surfing 3 or 4 days a week,or sleep a whole night, or be able to play with my

kids without running out of energy. yea!!!!!!!!! to all out there, just do it

one day at a time. it will end and there is lots of hope. i will write more

later when i get my final blood work. my love and support to all in treatment

Puente

May 25, 2000

Dear & Alison,

HOpe the treatment workied better for both of you than it did for me. I've

been off the combo for about a year, but continued with sort of a maintenance

dose of Interferon until February. I have days that I spend in bed and days

that I actually get something (we're not sure what) done. Good luck to you

both. I hope this means that you both have a non-dectable viral load.

Anne

July 8, 2000

Hi Darlene,

I'm also a 2b, and contemplating treatment. I see my Dr. on the 13th of

July....next week! Probably to set up the liver biopsy. My alt's also have

been up over 100. He said they go up and down and can't read too much into

them. 9 though.....what does that mean? Isn't 50 about normal? I havn't

had a pcr done yet. One step at a time. I'll be sure to ask about it.

It's good to know you made it through and I'll be waiting to hear how your

viral count comes out. Dee Dee

>From: darlene poulson <dpoulson_2000@...>

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: End of treatment

>Date: Sat, 8 Jul 2000 10:30:54 -0700 (PDT)

>

>Never have posted here before....read all the other

>posts though. Just completed 6 mos. combo (am a 2b)

>and am waiting patiently for the pcr results. Doc

>said my ALT is " 9 " . Had always been " 100 " before

>treatment. For the most part, my sides were fatigue,

>dry skin with itching, gradual hair loss the last 2

>mos. of treatment, initial depression (treated with

>Celexa). I got to the point where the shots were

>getting harder and harder to administer. The last

>month they burned. Glad it is over!!!!! I never did

>become anemic and my blood counts were slightly lower

>than before tx, but all tests every 6 wks. showed I

>was tolerating tx well. Just thought you'd like to

>know in case you are contemplating treatment. (My

>first shot was the worst .... like having flu). I'll

>let you know how viral count comes out. Enjoy reading

>the posts!

>

>__________________________________________________

>

July 8, 2000

--- darlene poulson <dpoulson_2000@...> wrote:

I got to the point where the shots were

> getting harder and harder to administer. The last

> month they burned.

The same with me. I was on for 53 weeks, and the last

3 months the shots seemed so much worse. I figured my

legs were just sick of it all, but couldn't do

abdominal injections. I had tried that previously,

and loved it, but the sides were much worse, and my

doc said I didn't have enough fat at that location and

the meds were being absorbed too quickly.

Good luck on your PCR!!!

Claudine

=====

Claudine

claudinecrews@...

__________________________________________________

July 8, 2000

--- darlene poulson <dpoulson_2000@...> wrote:

I got to the point where the shots were

> getting harder and harder to administer. The last

> month they burned.

The same with me. I was on for 53 weeks, and the last

3 months the shots seemed so much worse. I figured my

legs were just sick of it all, but couldn't do

abdominal injections. I had tried that previously,

and loved it, but the sides were much worse, and my

doc said I didn't have enough fat at that location and

the meds were being absorbed too quickly.

Good luck on your PCR!!!

Claudine

=====

Claudine

claudinecrews@...

__________________________________________________

July 9, 2000

Thanks for your post cause I'm starting combo on Wednesday!!!!!!!! Hoping it

won't be as bad as I think it will!! LOL! 'Prepare for the worst " , I say!

Then I'm nicely surprised if it's better than I thought! I'm crazy!! Probably

will be crazier soon...good thing I'm already on meds!! take care..gee

" We can do no great things; only small things with great Love. " Mother

July 9, 2000

hey good luck on combo! Hope it's as good to you as it has been to me so

far.

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

July 29, 2000

Claudine,

hi did you have low viral counts any time you were on treatment? cant

remember. whats going on with you now? are you on the high dose daily or

still wating got a new computer but couldnt get to my hot mail acccount

might have to take a computer class so i can figure some of this stuff out

See ya take care

Suzy

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

July 29, 2000

--- Suzy Balone <suzybalone@...> wrote:

> Claudine,

> hi did you have low viral counts any time you were

> on treatment? cant

> remember. whats going on with you now?

Hi Suzy!

It's nice to hear from you! It's hard to believe

that you're almost finished with your treatment.

The lowest that my viral load ever went to (this

was at my 4 week PCR) was 35,000. However, my

pretreatment viral load was only 110,000 so this

wasn't really much of a drop! It slowly started

climbing after that and stayed around 50,000. My

doctor put me on high dose, still 3 times a week

though, beginning my 9th month of treatment and my

viral load dropped initially back to about 35,000 if I

remember right, but then went back up again. It was

about 50,000 when I quit at week 53. The good thing

is that my LFT's dropped to normal about my 2nd month

and stayed normal the whole time, so my liver should

have gotten a nice break during the time I was on

treatment.

For now I am doing nothing. No doctor here would

prescribe high dose daily (I wanted to do Infergen) so

I will wait for the Roche pegylated interferon &

ribavirin to be available and give that a try.

Good luck!

=====

Claudine

claudinecrews@...

__________________________________________________

July 29, 2000

Suzy go to your search engine type in hotmail.com it

will give you a few links just go directly to

www.hotmail.com

enter your name and password and then make a desktop

icon for it so you can get to it easy...easiest way to

make a desktop icon is a right click on mouse and hit

shortcut, it will tell you it can not do it but, it

will.

You can also put it in your start up if you want, go

to start on bottom left of windows, go to settings and

then to taskbar and start menu, open it then click on

start menu options, hit add and you should be ok from

that point. You can also do a desk top icon there.

--- Suzy Balone <suzybalone@...> wrote:

>

> Claudine,

>

> hi did you have low viral counts any time you were

> on treatment? cant

> remember. whats going on with you now? are you on

> the high dose daily or

> still wating got a new computer but couldnt get to

> my hot mail acccount

> might have to take a computer class so i can figure

> some of this stuff out

>

> See ya take care

>

> Suzy

>

________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at

> http://www.hotmail.com

>

__________________________________________________

January 29, 2002

Hi Lora,

Congratulations! I think you have a fairly good chance of staying

undetectable if you've been undetectable since your 3rd month of

treatment. So I'm here thinking positive thoughts and sending them

your way. Hopefully the 'spot' turns out to be nothing, but I know

you must be worried. Be sure and keep us posted.

Good luck!

Claudine

__________________________________________________

January 29, 2002

Wow, congradulations! Keep positive thoughts. I will say a prayer for you.

Stay virus free!

Edie

Week 44 of Combo

End of Treatment

> Hello to you all,

> I have been on this list for about two years now. The past year, I have

> mostly just read the postings as I have felt like crap while doing the

> treatment. I began the combo in January 2001, I was doing injections of

> interfuron every other day, along with the Ribavirin. Anyway, wanted to

> share with people who understand. I am a 1b, had a before -treatment

viral

> count of 2 million, and have some cirhosis.I have been undetectable since

> month 3 on treatment. Got my 12 month viral count back and IT IS STILL

> UNDETECTABLE! So, I am now officially off treatment. Have to go in in

one

> month to have a CT scan (there is a " spot " on my liver AT that

time,

> I will have my one month post-treatment viral count done. I know my

chances

> of remaining hep c-free are not good, but not bad either.

> For NOW, I am rejoicing in getting off all these drugs. Think I might

stay

> on the Wellbutrin (anti-d) for a while, don't want to hurt the dog or

> anything.

> So, it can work and it does work.

> Good luck to all others either on treatment, off treatment or un treated.

> lora

>

January 29, 2002

Wow, congradulations! Keep positive thoughts. I will say a prayer for you.

Stay virus free!

Edie

Week 44 of Combo

End of Treatment

> Hello to you all,

> I have been on this list for about two years now. The past year, I have

> mostly just read the postings as I have felt like crap while doing the

> treatment. I began the combo in January 2001, I was doing injections of

> interfuron every other day, along with the Ribavirin. Anyway, wanted to

> share with people who understand. I am a 1b, had a before -treatment

viral

> count of 2 million, and have some cirhosis.I have been undetectable since

> month 3 on treatment. Got my 12 month viral count back and IT IS STILL

> UNDETECTABLE! So, I am now officially off treatment. Have to go in in

one

> month to have a CT scan (there is a " spot " on my liver AT that

time,

> I will have my one month post-treatment viral count done. I know my

chances

> of remaining hep c-free are not good, but not bad either.

> For NOW, I am rejoicing in getting off all these drugs. Think I might

stay

> on the Wellbutrin (anti-d) for a while, don't want to hurt the dog or

> anything.

> So, it can work and it does work.

> Good luck to all others either on treatment, off treatment or un treated.

> lora

>

January 29, 2002

lora, way to go!!!!!!!!!!!!! I'm so proud of you!

I'm a 1B too. Tuff suckers huh?

Good luck on your next PCR!

Definitely I think staying on the Welbutrin for a bit after treatment is a

good idea. Bad enough we gotta flush the rat poison out without dealing with

no anti-d. Remember to wean off the anti-d when you do decide to stop.

<<don't want to hurt the dog or anything.>>

No joke!!! )

good luck!

alley

http://clubs./clubs/happyheppers

January 29, 2002

lora, way to go!!!!!!!!!!!!! I'm so proud of you!

I'm a 1B too. Tuff suckers huh?

Good luck on your next PCR!

Definitely I think staying on the Welbutrin for a bit after treatment is a

good idea. Bad enough we gotta flush the rat poison out without dealing with

no anti-d. Remember to wean off the anti-d when you do decide to stop.

<<don't want to hurt the dog or anything.>>

No joke!!! )

good luck!

alley

http://clubs./clubs/happyheppers

January 29, 2002

Congrats Lora, now don't you go hurting the

dog....lol...haven't you threatened that poor dog

before?

Well I was on a short break of no meds, to clear up

health problems, or to at least make it possible for

me to stay on them. Tonight I started back on them.

Daily shot of 5miu Interferon and the Riba. Sometimes

I wonder what I will do with myself at night if I ever

get off this stuff. Has kind of become a habit.

Found out today they have approved me for 6 more

months !?!?! has been a year of total this time and 9

months of agressive meds. Are we suppose to live on

this stuff forever? Someday, I too will be glad when

I can say I came back undetectable.

Connie

__________________________________________________

January 29, 2002

Congrats Lora, now don't you go hurting the

dog....lol...haven't you threatened that poor dog

before?

Well I was on a short break of no meds, to clear up

health problems, or to at least make it possible for

me to stay on them. Tonight I started back on them.

Daily shot of 5miu Interferon and the Riba. Sometimes

I wonder what I will do with myself at night if I ever

get off this stuff. Has kind of become a habit.

Found out today they have approved me for 6 more

months !?!?! has been a year of total this time and 9

months of agressive meds. Are we suppose to live on

this stuff forever? Someday, I too will be glad when

I can say I came back undetectable.

Connie

__________________________________________________

January 29, 2002

YIPPEE Lora....you stay undectable ya hear? I hope the spot on your liver is

nothing serious...probably something from the treatment. I'm starting treatment

in 2 weeks, I'm a 1b also....so I loved your story....thanks for sharing.

Carol

Lorad8@... wrote:

> Hello to you all,

> I have been on this list for about two years now. The past year, I have

> mostly just read the postings as I have felt like crap while doing the

> treatment. I began the combo in January 2001, I was doing injections of

> interfuron every other day, along with the Ribavirin. Anyway, wanted to

> share with people who understand. I am a 1b, had a before -treatment viral

> count of 2 million, and have some cirhosis.I have been undetectable since

> month 3 on treatment. Got my 12 month viral count back and IT IS STILL

> UNDETECTABLE! So, I am now officially off treatment. Have to go in in one

> month to have a CT scan (there is a " spot " on my liver AT that time,

> I will have my one month post-treatment viral count done. I know my chances

> of remaining hep c-free are not good, but not bad either.

> For NOW, I am rejoicing in getting off all these drugs. Think I might stay

> on the Wellbutrin (anti-d) for a while, don't want to hurt the dog or

> anything.

> So, it can work and it does work.

> Good luck to all others either on treatment, off treatment or un treated.

> lora

>

January 29, 2002