Re: hi yall

[Guest guest]

<<I still say, with how you are feeling WORSE off treatment that you

should get checked for cryoglobulinemia. Good luck!>>

Thanks Claudine!

Well I was exactly like this before treatent so it's not anything

new. I've been this way for years and I'm just to the end of my rope

with it.

You know how with the every day stuff, I can deal with it for a

while, and if it was just one day a week I could handle it, wouldn't

be worth bothering with. So part of my problem is, after being free

of most of this crap for the 48 weeks I was on treatment, I am

dreading living my life aching like this every day.

You don't know how bad you are till you don't hurt for a while then

you say wow!

(Hey Im at work, not doing anything haha, catching up on email)

I'm glad it works for you and gives me some hope too. But what do I

do inbetween, while I'm waiting for the Elavil to work. hmmm..

(thinking out loud). Maybe I'll call the doc back and ask for some

therapy to go along with it, SOMETHING you know?

I'm one of those who like to be doing something about a problem, not

just waiting. Patience is a virtue, but not one of MY virtues hahahha.

alley

http://clubs./clubs/happyheppers

icq 12631861

[Guest guest]

<<I still say, with how you are feeling WORSE off treatment that you

should get checked for cryoglobulinemia. Good luck!>>

Thanks Claudine!

Well I was exactly like this before treatent so it's not anything

new. I've been this way for years and I'm just to the end of my rope

with it.

You know how with the every day stuff, I can deal with it for a

while, and if it was just one day a week I could handle it, wouldn't

be worth bothering with. So part of my problem is, after being free

of most of this crap for the 48 weeks I was on treatment, I am

dreading living my life aching like this every day.

You don't know how bad you are till you don't hurt for a while then

you say wow!

(Hey Im at work, not doing anything haha, catching up on email)

I'm glad it works for you and gives me some hope too. But what do I

do inbetween, while I'm waiting for the Elavil to work. hmmm..

(thinking out loud). Maybe I'll call the doc back and ask for some

therapy to go along with it, SOMETHING you know?

I'm one of those who like to be doing something about a problem, not

just waiting. Patience is a virtue, but not one of MY virtues hahahha.

alley

http://clubs./clubs/happyheppers

icq 12631861

[Guest guest]

<<I still say, with how you are feeling WORSE off treatment that you

should get checked for cryoglobulinemia. Good luck!>>

Thanks Claudine!

Well I was exactly like this before treatent so it's not anything

new. I've been this way for years and I'm just to the end of my rope

with it.

You know how with the every day stuff, I can deal with it for a

while, and if it was just one day a week I could handle it, wouldn't

be worth bothering with. So part of my problem is, after being free

of most of this crap for the 48 weeks I was on treatment, I am

dreading living my life aching like this every day.

You don't know how bad you are till you don't hurt for a while then

you say wow!

(Hey Im at work, not doing anything haha, catching up on email)

I'm glad it works for you and gives me some hope too. But what do I

do inbetween, while I'm waiting for the Elavil to work. hmmm..

(thinking out loud). Maybe I'll call the doc back and ask for some

therapy to go along with it, SOMETHING you know?

I'm one of those who like to be doing something about a problem, not

just waiting. Patience is a virtue, but not one of MY virtues hahahha.

alley

http://clubs./clubs/happyheppers

icq 12631861

[Guest guest]

<andromedagurl@...> wrote:

Yep you are right Alley. They gave me 28 pints of blood was told at least 1 of

the pints and probably more were tainted. I was told also that I had antibodies

for B also, and that my body fought the B off.

We can all look back and say " what if " , but it's too late now to

worry about that. What matters is moving on with our lives, not

feeling guilty for mistakes we made or situations we had no control

over.

We be heppers A sad way to help pioneer a new age isn't it? But I

think my stars it isn't cancer or HIV or MS, etc.

Just my way of looking at it.

alley

[Guest guest]

<andromedagurl@...> wrote:

Yep you are right Alley. They gave me 28 pints of blood was told at least 1 of

the pints and probably more were tainted. I was told also that I had antibodies

for B also, and that my body fought the B off.

We can all look back and say " what if " , but it's too late now to

worry about that. What matters is moving on with our lives, not

feeling guilty for mistakes we made or situations we had no control

over.

We be heppers A sad way to help pioneer a new age isn't it? But I

think my stars it isn't cancer or HIV or MS, etc.

Just my way of looking at it.

alley

[Guest guest]

<andromedagurl@...> wrote:

Yep you are right Alley. They gave me 28 pints of blood was told at least 1 of

the pints and probably more were tainted. I was told also that I had antibodies

for B also, and that my body fought the B off.

We can all look back and say " what if " , but it's too late now to

worry about that. What matters is moving on with our lives, not

feeling guilty for mistakes we made or situations we had no control

over.

We be heppers A sad way to help pioneer a new age isn't it? But I

think my stars it isn't cancer or HIV or MS, etc.

Just my way of looking at it.

alley

[Guest guest]

<andromedagurl@...> wrote:

Yep you are right Alley. They gave me 28 pints of blood was told at least 1 of

the pints and probably more were tainted. I was told also that I had antibodies

for B also, and that my body fought the B off.

We can all look back and say " what if " , but it's too late now to

worry about that. What matters is moving on with our lives, not

feeling guilty for mistakes we made or situations we had no control

over.

We be heppers A sad way to help pioneer a new age isn't it? But I

think my stars it isn't cancer or HIV or MS, etc.

Just my way of looking at it.

alley

[Guest guest]

--- <andromedagurl@...> wrote:

> I'm glad it works for you and gives me some hope

> too. But what do I

> do inbetween, while I'm waiting for the Elavil to

> work. hmmm..

> (thinking out loud). Maybe I'll call the doc back

> and ask for some

> therapy to go along with it, SOMETHING you know?

>

> I'm one of those who like to be doing something

> about a problem, not

> just waiting. Patience is a virtue, but not one of

> MY virtues hahahha.

Physical therapy is a very good idea. If your

problems, which have been ongoing for years, are due

to muscle and joint problems, NOTHING is going to

solve the problem overnight. Drugs for pain to mask

the problem maybe, but not eliminate or improve

whatever is causing the problem. If your pains are due

to cryo though, then interferon is considered the

treatment for that. And of course, it could be a

combination of problems, and no one answer. Good

luck. I'm glad my chiropractor wasn't like yours! I

did have some problems with muscle spasms at first

(afterall, those muscles had been pulled out of place

for years, they did resist!), right after the

adjustments, but valium got rid of that problem. The

ultrasound massage they did after an adjustment was

WONDERFUL. (I want one of those machines!) Some

physical therapy places do ultrasound too.

Claudine

__________________________________________________

[Guest guest]

--- <andromedagurl@...> wrote:

> I'm glad it works for you and gives me some hope

> too. But what do I

> do inbetween, while I'm waiting for the Elavil to

> work. hmmm..

> (thinking out loud). Maybe I'll call the doc back

> and ask for some

> therapy to go along with it, SOMETHING you know?

>

> I'm one of those who like to be doing something

> about a problem, not

> just waiting. Patience is a virtue, but not one of

> MY virtues hahahha.

Physical therapy is a very good idea. If your

problems, which have been ongoing for years, are due

to muscle and joint problems, NOTHING is going to

solve the problem overnight. Drugs for pain to mask

the problem maybe, but not eliminate or improve

whatever is causing the problem. If your pains are due

to cryo though, then interferon is considered the

treatment for that. And of course, it could be a

combination of problems, and no one answer. Good

luck. I'm glad my chiropractor wasn't like yours! I

did have some problems with muscle spasms at first

(afterall, those muscles had been pulled out of place

for years, they did resist!), right after the

adjustments, but valium got rid of that problem. The

ultrasound massage they did after an adjustment was

WONDERFUL. (I want one of those machines!) Some

physical therapy places do ultrasound too.

Claudine

__________________________________________________

[Guest guest]

--- <andromedagurl@...> wrote:

> I'm glad it works for you and gives me some hope

> too. But what do I

> do inbetween, while I'm waiting for the Elavil to

> work. hmmm..

> (thinking out loud). Maybe I'll call the doc back

> and ask for some

> therapy to go along with it, SOMETHING you know?

>

> I'm one of those who like to be doing something

> about a problem, not

> just waiting. Patience is a virtue, but not one of

> MY virtues hahahha.

Physical therapy is a very good idea. If your

problems, which have been ongoing for years, are due

to muscle and joint problems, NOTHING is going to

solve the problem overnight. Drugs for pain to mask

the problem maybe, but not eliminate or improve

whatever is causing the problem. If your pains are due

to cryo though, then interferon is considered the

treatment for that. And of course, it could be a

combination of problems, and no one answer. Good

luck. I'm glad my chiropractor wasn't like yours! I

did have some problems with muscle spasms at first

(afterall, those muscles had been pulled out of place

for years, they did resist!), right after the

adjustments, but valium got rid of that problem. The

ultrasound massage they did after an adjustment was

WONDERFUL. (I want one of those machines!) Some

physical therapy places do ultrasound too.

Claudine

__________________________________________________

[Guest guest]

--- <andromedagurl@...> wrote:

> I'm glad it works for you and gives me some hope

> too. But what do I

> do inbetween, while I'm waiting for the Elavil to

> work. hmmm..

> (thinking out loud). Maybe I'll call the doc back

> and ask for some

> therapy to go along with it, SOMETHING you know?

>

> I'm one of those who like to be doing something

> about a problem, not

> just waiting. Patience is a virtue, but not one of

> MY virtues hahahha.

Physical therapy is a very good idea. If your

problems, which have been ongoing for years, are due

to muscle and joint problems, NOTHING is going to

solve the problem overnight. Drugs for pain to mask

the problem maybe, but not eliminate or improve

whatever is causing the problem. If your pains are due

to cryo though, then interferon is considered the

treatment for that. And of course, it could be a

combination of problems, and no one answer. Good

luck. I'm glad my chiropractor wasn't like yours! I

did have some problems with muscle spasms at first

(afterall, those muscles had been pulled out of place

for years, they did resist!), right after the

adjustments, but valium got rid of that problem. The

ultrasound massage they did after an adjustment was

WONDERFUL. (I want one of those machines!) Some

physical therapy places do ultrasound too.

Claudine

__________________________________________________

[Guest guest]

Oh.. and i wanted to ask...

My idea here is to also have the doc document my symptoms, treatment,

responses etc. so that if, when I get older, if I can't work, I can

apply for some financial help.

do you think that is sensible or lazy?

I know how hard it can be to get financial help when you need it and

gawd forbid I should ever get that bad! hahhhaha

alley

[Guest guest]

Oh.. and i wanted to ask...

My idea here is to also have the doc document my symptoms, treatment,

responses etc. so that if, when I get older, if I can't work, I can

apply for some financial help.

do you think that is sensible or lazy?

I know how hard it can be to get financial help when you need it and

gawd forbid I should ever get that bad! hahhhaha

alley

[Guest guest]

Oh.. and i wanted to ask...

My idea here is to also have the doc document my symptoms, treatment,

responses etc. so that if, when I get older, if I can't work, I can

apply for some financial help.

do you think that is sensible or lazy?

I know how hard it can be to get financial help when you need it and

gawd forbid I should ever get that bad! hahhhaha

alley

[Guest guest]

Oh.. and i wanted to ask...

My idea here is to also have the doc document my symptoms, treatment,

responses etc. so that if, when I get older, if I can't work, I can

apply for some financial help.

do you think that is sensible or lazy?

I know how hard it can be to get financial help when you need it and

gawd forbid I should ever get that bad! hahhhaha

alley

[Guest guest]

> We be heppers A sad way to help pioneer a new age isn't it? But I

>think my stars it isn't cancer or HIV or MS, etc.

> Just my way of looking at it.

> alley

Alley:

I thought I'd let you know that I appreciated ....your way of looking at

it!

My DH is picking up a copy of his most recent bloodwork today. Guess I'm

kinda anxious as to what the 'next step' is gonna look like for us.

Elin

[Guest guest]

> We be heppers A sad way to help pioneer a new age isn't it? But I

>think my stars it isn't cancer or HIV or MS, etc.

> Just my way of looking at it.

> alley

Alley:

I thought I'd let you know that I appreciated ....your way of looking at

it!

My DH is picking up a copy of his most recent bloodwork today. Guess I'm

kinda anxious as to what the 'next step' is gonna look like for us.

Elin

[Guest guest]

> We be heppers A sad way to help pioneer a new age isn't it? But I

>think my stars it isn't cancer or HIV or MS, etc.

> Just my way of looking at it.

> alley

Alley:

I thought I'd let you know that I appreciated ....your way of looking at

it!

My DH is picking up a copy of his most recent bloodwork today. Guess I'm

kinda anxious as to what the 'next step' is gonna look like for us.

Elin

[Guest guest]

> We be heppers A sad way to help pioneer a new age isn't it? But I

>think my stars it isn't cancer or HIV or MS, etc.

> Just my way of looking at it.

> alley

Alley:

I thought I'd let you know that I appreciated ....your way of looking at

it!

My DH is picking up a copy of his most recent bloodwork today. Guess I'm

kinda anxious as to what the 'next step' is gonna look like for us.

Elin

[Guest guest]

Nix the valum! For some reason, valium maks me angry. I try to avoid

it. Sometimes it's given with other meds after surgery and I remember

getting it after I had my first kid, and I wanted to rip people's

heads off haha. I knew what it was cuz my Mom gave me a valium one

day (when I was a teen) for a really bad migraine (I was desparate)

and it just made the headache worse it seemed.

Weird how we all react differently!

And that massage table with the rollers for your back? EW! It HURT! I

hated that thing along with the electrode thing. Felt like bugs

crawling up my back. Maybe cuz I already hurt constantly, my patience

I think was just totally gone with everything and everything seemed

to hurt tremendously more than maybe it should have.

Kinda how I feel now. The longer I ache without relief, the more

every little thing seems to hurt when intellectually, I know it

shouldn't.

Well, that is if i had a brain hahahaha

alley

[Guest guest]

Nix the valum! For some reason, valium maks me angry. I try to avoid

it. Sometimes it's given with other meds after surgery and I remember

getting it after I had my first kid, and I wanted to rip people's

heads off haha. I knew what it was cuz my Mom gave me a valium one

day (when I was a teen) for a really bad migraine (I was desparate)

and it just made the headache worse it seemed.

Weird how we all react differently!

And that massage table with the rollers for your back? EW! It HURT! I

hated that thing along with the electrode thing. Felt like bugs

crawling up my back. Maybe cuz I already hurt constantly, my patience

I think was just totally gone with everything and everything seemed

to hurt tremendously more than maybe it should have.

Kinda how I feel now. The longer I ache without relief, the more

every little thing seems to hurt when intellectually, I know it

shouldn't.

Well, that is if i had a brain hahahaha

alley

[Guest guest]

Hi Alley

Gosh you make me laugh so much with some of your posts :-} I think it's very

wise to document everything about your illness. I recently tried for full

disability and was turned down....although I did qualify for level 1.

Like Connie said, I am not able to work now in a 9-5 job....maybe something

at home....but I've been declared unemployable by my Doc for 4 years. It is

hard to find financial help when you need it, fortunately I'm doing ok thanks

to my son who lives with me, he pays the rent and most of the bills, I buy

the groceries etc etc. This ain't going to last forever though...he's

getting rather serious with new girlfriend ;-}

Alley, I also agree we can't go around kicking ourselves about how we got

HepC. It isn't going to help, just make us feel worse. All the " ifs " in the

word, hindsight is 20-20.

Connie, thanx for the welcome....and I appreciate your advice and

you're right about Canada....we have a good medical system in the fact that

it's free to see the doc, hosptilization, tests etc are all free. But Canada

is also behind on a lot of things, probably due to the money paid for the

free med services.

I've been on anti-depressants on and off since 92...I'm taking Effexor

now...I'm still having a hard time getting into level 4 sleep. But then I've

had a horrific week too, car accident, my car is a write-off, waiting to see

what government insurance will give me for my wrecked car, making a

settlement for pain and suffering due to accident etc etc it just goes on and

on. I am declaring this weekend a vacation...turning off the phone and not

answering the door....ordering a bunch of chinese food and just going to

veggie out all weekend....can we say " brain fog " ....all together now....BRAIN

FOG. Hey Connie, I'm outta my cage all weekend.

lol

Hugggs

Carol

wrote:

> Oh.. and i wanted to ask...

>

> My idea here is to also have the doc document my symptoms, treatment,

> responses etc. so that if, when I get older, if I can't work, I can

> apply for some financial help.

>

> do you think that is sensible or lazy?

>

> I know how hard it can be to get financial help when you need it and

> gawd forbid I should ever get that bad! hahhhaha

>

> alley

>

>

>

[Guest guest]

Hi Alley

Gosh you make me laugh so much with some of your posts :-} I think it's very

wise to document everything about your illness. I recently tried for full

disability and was turned down....although I did qualify for level 1.

Like Connie said, I am not able to work now in a 9-5 job....maybe something

at home....but I've been declared unemployable by my Doc for 4 years. It is

hard to find financial help when you need it, fortunately I'm doing ok thanks

to my son who lives with me, he pays the rent and most of the bills, I buy

the groceries etc etc. This ain't going to last forever though...he's

getting rather serious with new girlfriend ;-}

Alley, I also agree we can't go around kicking ourselves about how we got

HepC. It isn't going to help, just make us feel worse. All the " ifs " in the

word, hindsight is 20-20.

Connie, thanx for the welcome....and I appreciate your advice and

you're right about Canada....we have a good medical system in the fact that

it's free to see the doc, hosptilization, tests etc are all free. But Canada

is also behind on a lot of things, probably due to the money paid for the

free med services.

I've been on anti-depressants on and off since 92...I'm taking Effexor

now...I'm still having a hard time getting into level 4 sleep. But then I've

had a horrific week too, car accident, my car is a write-off, waiting to see

what government insurance will give me for my wrecked car, making a

settlement for pain and suffering due to accident etc etc it just goes on and

on. I am declaring this weekend a vacation...turning off the phone and not

answering the door....ordering a bunch of chinese food and just going to

veggie out all weekend....can we say " brain fog " ....all together now....BRAIN

FOG. Hey Connie, I'm outta my cage all weekend.

lol

Hugggs

Carol

wrote:

> Oh.. and i wanted to ask...

>

> My idea here is to also have the doc document my symptoms, treatment,

> responses etc. so that if, when I get older, if I can't work, I can

> apply for some financial help.

>

> do you think that is sensible or lazy?

>

> I know how hard it can be to get financial help when you need it and

> gawd forbid I should ever get that bad! hahhhaha

>

> alley

>

>

>

[Guest guest]

Hi Alley

Gosh you make me laugh so much with some of your posts :-} I think it's very

wise to document everything about your illness. I recently tried for full

disability and was turned down....although I did qualify for level 1.

Like Connie said, I am not able to work now in a 9-5 job....maybe something

at home....but I've been declared unemployable by my Doc for 4 years. It is

hard to find financial help when you need it, fortunately I'm doing ok thanks

to my son who lives with me, he pays the rent and most of the bills, I buy

the groceries etc etc. This ain't going to last forever though...he's

getting rather serious with new girlfriend ;-}

Alley, I also agree we can't go around kicking ourselves about how we got

HepC. It isn't going to help, just make us feel worse. All the " ifs " in the

word, hindsight is 20-20.

Connie, thanx for the welcome....and I appreciate your advice and

you're right about Canada....we have a good medical system in the fact that

it's free to see the doc, hosptilization, tests etc are all free. But Canada

is also behind on a lot of things, probably due to the money paid for the

free med services.

I've been on anti-depressants on and off since 92...I'm taking Effexor

now...I'm still having a hard time getting into level 4 sleep. But then I've

had a horrific week too, car accident, my car is a write-off, waiting to see

what government insurance will give me for my wrecked car, making a

settlement for pain and suffering due to accident etc etc it just goes on and

on. I am declaring this weekend a vacation...turning off the phone and not

answering the door....ordering a bunch of chinese food and just going to

veggie out all weekend....can we say " brain fog " ....all together now....BRAIN

FOG. Hey Connie, I'm outta my cage all weekend.

lol

Hugggs

Carol

wrote:

> Oh.. and i wanted to ask...

>

> My idea here is to also have the doc document my symptoms, treatment,

> responses etc. so that if, when I get older, if I can't work, I can

> apply for some financial help.

>

> do you think that is sensible or lazy?

>

> I know how hard it can be to get financial help when you need it and

> gawd forbid I should ever get that bad! hahhhaha

>

> alley

>

>

>

[Guest guest]

Hi Alley

Gosh you make me laugh so much with some of your posts :-} I think it's very

wise to document everything about your illness. I recently tried for full

disability and was turned down....although I did qualify for level 1.

Like Connie said, I am not able to work now in a 9-5 job....maybe something

at home....but I've been declared unemployable by my Doc for 4 years. It is

hard to find financial help when you need it, fortunately I'm doing ok thanks

to my son who lives with me, he pays the rent and most of the bills, I buy

the groceries etc etc. This ain't going to last forever though...he's

getting rather serious with new girlfriend ;-}

Alley, I also agree we can't go around kicking ourselves about how we got

HepC. It isn't going to help, just make us feel worse. All the " ifs " in the

word, hindsight is 20-20.

Connie, thanx for the welcome....and I appreciate your advice and

you're right about Canada....we have a good medical system in the fact that

it's free to see the doc, hosptilization, tests etc are all free. But Canada

is also behind on a lot of things, probably due to the money paid for the

free med services.

I've been on anti-depressants on and off since 92...I'm taking Effexor

now...I'm still having a hard time getting into level 4 sleep. But then I've

had a horrific week too, car accident, my car is a write-off, waiting to see

what government insurance will give me for my wrecked car, making a

settlement for pain and suffering due to accident etc etc it just goes on and

on. I am declaring this weekend a vacation...turning off the phone and not

answering the door....ordering a bunch of chinese food and just going to

veggie out all weekend....can we say " brain fog " ....all together now....BRAIN

FOG. Hey Connie, I'm outta my cage all weekend.

lol

Hugggs

Carol

wrote:

> Oh.. and i wanted to ask...

>

> My idea here is to also have the doc document my symptoms, treatment,

> responses etc. so that if, when I get older, if I can't work, I can

> apply for some financial help.

>

> do you think that is sensible or lazy?

>

> I know how hard it can be to get financial help when you need it and

> gawd forbid I should ever get that bad! hahhhaha

>

> alley

>

>

>