Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Hi Everyone, I just joined today and wanted everyone to know that I am thrilled to have found such a site. For the past five years I have been diagnosed with MS and have been taking injections daily. This past July I was told that I didn't have MS afterall! I have CMT. I do not know which type and don't know if it is that important to know the type. This disease is so new to me. My immediate question for now is how common are leg cramps with CMT and do others experience back and neck pain due to perhaps their gait problems. I have had horrible back and neck pain for the past several years and I think it is because my gait is messed up due to very weak feet. I would appreciate any feedback and advice. Thanks!! Karon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 In a message dated 12/14/01 11:51:46 PM, kedleson@... writes: << I think it is because my gait is messed up due to very weak feet. >> Do you have AFOs or custom made orthotics? They can correct one's gait and improve the quality of life. Kat Seattle USA http://www.mdausa.org/publications/Quest/q62bracing.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Hi Welcome to the site. I do read a lot of the info the people read on this site but usually don't ad much input myself. I to have been told I have CMT, I don't know what type, I don't think it really matters. I'm 29 and don't have any noticeable wasting of muscles to the untrained eye. My only problems are tremor in the hands and neck and back pain. People with Demylating neuropathy such as CMT can get thickening of the spinal nerves, which run down the center of the spinal cord, and this has been proven to me on an MRI scan. Apparently this is the cause of the back pain and neck pain. One word of advice Karon don't believe everything you read here will happen to you, some people just think everything that happens or goes wrong with there body must be related to CMT, they may be right they may be wrong. My only advice is to read and learn. Nobody here is really trained in the medical field. Hopes this helps a bit. Todd. -----Original Message----- From: kedleson [mailto:kedleson@...] Sent: Saturday, December 15, 2001 5:51 PM Subject: [] New to Hi Everyone, I just joined today and wanted everyone to know that I am thrilled to have found such a site. For the past five years I have been diagnosed with MS and have been taking injections daily. This past July I was told that I didn't have MS afterall! I have CMT. I do not know which type and don't know if it is that important to know the type. This disease is so new to me. My immediate question for now is how common are leg cramps with CMT and do others experience back and neck pain due to perhaps their gait problems. I have had horrible back and neck pain for the past several years and I think it is because my gait is messed up due to very weak feet. I would appreciate any feedback and advice. Thanks!! Karon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Thanks Judy!!! What a wonderful explanation of my problems! Thanks SO much! Quote Link to comment Share on other sites More sharing options...
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