REAL pain in the neck/shoulder!!! ugh!

[Guest guest]

Amy, can you take short term disability for awhile.. some time off my

help..

Surgery may help you. It may not, but it sounds like you may need to give

it a try.. Do you have a primary physician??

He might suggest other options..

Your surgeon will not be your long term help unless this one surgery

corrects things.. While that is possible you need to look into all options..

I am sorry for your pain.. How much meds are you on.. Maybe that also needs

to be addressed..

Tom

In a message dated 11/3/2009 9:38:27 A.M. Mountain Standard Time,

newt2456@... writes:

Hey everyone. I'm not sure if this is just a vent or a set of serious

questions. I was involved in a car accident in '03 and another in '07 and all

doctors confirm that the C5/6 is definitely herniated (potentially 1 above

and 1 below as well, not as severe). I've tried just about every therapy

there is. I just had another EMG yesterday that came out normal. But I can't

stand the pain; mostly my right side!!! My neck hurts all the time and I

barely make it through a normal work day; usually by 1pm I'm needing to lie

down. I'm tired of popping pain pills but nothing else works and the pain

pills I really don't think work that well, they just distract my brain for a

bit. My shoulder is in pain, and over the last 8 months I have a " nerve " in

my neck that feels like a pinched nerve, or I slept wrong… but it's now

limiting my mobility. Ugh! This is just exhausting! I have another appointment

at the surgeon at the end of the month. He might still decide to do surgery

even though the EMG came out normal. Is it even going to help? Everything

I read makes it seem like it'll only help if I have severe arm pain,

numbing, tingling…. I have some but it's my neck/shoulder that's

excruciating!

And causing me such grief!

Has anyone had surgery with mostly neck pain and found relief after?

Please someone give me hope. I'm at the point that I'll try it just with the

hope that my neck pain will get better… but if it doesn't? Is it worth it to

go through all that and be in the same place?

This sucks! Amy

[Guest guest]

Amy, can you take short term disability for awhile.. some time off my

help..

Surgery may help you. It may not, but it sounds like you may need to give

it a try.. Do you have a primary physician??

He might suggest other options..

Your surgeon will not be your long term help unless this one surgery

corrects things.. While that is possible you need to look into all options..

I am sorry for your pain.. How much meds are you on.. Maybe that also needs

to be addressed..

Tom

In a message dated 11/3/2009 9:38:27 A.M. Mountain Standard Time,

newt2456@... writes:

Hey everyone. I'm not sure if this is just a vent or a set of serious

questions. I was involved in a car accident in '03 and another in '07 and all

doctors confirm that the C5/6 is definitely herniated (potentially 1 above

and 1 below as well, not as severe). I've tried just about every therapy

there is. I just had another EMG yesterday that came out normal. But I can't

stand the pain; mostly my right side!!! My neck hurts all the time and I

barely make it through a normal work day; usually by 1pm I'm needing to lie

down. I'm tired of popping pain pills but nothing else works and the pain

pills I really don't think work that well, they just distract my brain for a

bit. My shoulder is in pain, and over the last 8 months I have a " nerve " in

my neck that feels like a pinched nerve, or I slept wrong… but it's now

limiting my mobility. Ugh! This is just exhausting! I have another appointment

at the surgeon at the end of the month. He might still decide to do surgery

even though the EMG came out normal. Is it even going to help? Everything

I read makes it seem like it'll only help if I have severe arm pain,

numbing, tingling…. I have some but it's my neck/shoulder that's

excruciating!

And causing me such grief!

Has anyone had surgery with mostly neck pain and found relief after?

Please someone give me hope. I'm at the point that I'll try it just with the

hope that my neck pain will get better… but if it doesn't? Is it worth it to

go through all that and be in the same place?

This sucks! Amy

[Guest guest]

Hey everyone. I'm not sure if this is just a vent or a set of serious

questions. I was involved in a car accident in '03 and another in '07 and all

doctors confirm that the C5/6 is definitely herniated (potentially 1 above and 1

below as well, not as severe). I've tried just about every therapy there is. I

just had another EMG yesterday that came out normal. But I can't stand the

pain; mostly my right side!!! My neck hurts all the time and I barely make it

through a normal work day; usually by 1pm I'm needing to lie down. I'm tired of

popping pain pills but nothing else works and the pain pills I really don't

think work that well, they just distract my brain for a bit. My shoulder is in

pain, and over the last 8 months I have a " nerve " in my neck that feels like a

pinched nerve, or I slept wrong… but it's now limiting my mobility. Ugh! This

is just exhausting! I have another appointment at the surgeon at the end of the

month. He might still decide to do surgery even though the EMG came out normal.

Is it even going to help? Everything I read makes it seem like it'll only help

if I have severe arm pain, numbing, tingling…. I have some but it's my

neck/shoulder that's excruciating! And causing me such grief!

Has anyone had surgery with mostly neck pain and found relief after? Please

someone give me hope. I'm at the point that I'll try it just with the hope that

my neck pain will get better… but if it doesn't? Is it worth it to go through

all that and be in the same place?

This sucks! Amy

[Guest guest]

i had the exact same thing........surgery worked most for me. i'm still in pain

but not like i was and meds control most of the rest. i had 2 acf's Anterior

Cervical Fusion. i also have lumbar issues as well as severe spinal stenosis.

if i were you....i would probably opt for the surgery. it did get rid of all

the symptoms you are talking about. hope this helps

Danny

>

> Hey everyone. I'm not sure if this is just a vent or a set of serious

questions. I was involved in a car accident in '03 and another in '07 and all

doctors confirm that the C5/6 is definitely herniated (potentially 1 above and 1

below as well, not as severe). I've tried just about every therapy there is. I

just had another EMG yesterday that came out normal. But I can't stand the

pain; mostly my right side!!! My neck hurts all the time and I barely make it

through a normal work day; usually by 1pm I'm needing to lie down. I'm tired of

popping pain pills but nothing else works and the pain pills I really don't

think work that well, they just distract my brain for a bit. My shoulder is in

pain, and over the last 8 months I have a " nerve " in my neck that feels like a

pinched nerve, or I slept wrong… but it's now limiting my mobility. Ugh! This

is just exhausting! I have another appointment at the surgeon at the end of the

month. He might still decide to do surgery even though the EMG came out normal.

Is it even going to help? Everything I read makes it seem like it'll only help

if I have severe arm pain, numbing, tingling…. I have some but it's my

neck/shoulder that's excruciating! And causing me such grief!

> Has anyone had surgery with mostly neck pain and found relief after? Please

someone give me hope. I'm at the point that I'll try it just with the hope that

my neck pain will get better… but if it doesn't? Is it worth it to go through

all that and be in the same place?

>

> This sucks! Amy

>

[Guest guest]

i had the exact same thing........surgery worked most for me. i'm still in pain

but not like i was and meds control most of the rest. i had 2 acf's Anterior

Cervical Fusion. i also have lumbar issues as well as severe spinal stenosis.

if i were you....i would probably opt for the surgery. it did get rid of all

the symptoms you are talking about. hope this helps

Danny

>

> Hey everyone. I'm not sure if this is just a vent or a set of serious

questions. I was involved in a car accident in '03 and another in '07 and all

doctors confirm that the C5/6 is definitely herniated (potentially 1 above and 1

below as well, not as severe). I've tried just about every therapy there is. I

just had another EMG yesterday that came out normal. But I can't stand the

pain; mostly my right side!!! My neck hurts all the time and I barely make it

through a normal work day; usually by 1pm I'm needing to lie down. I'm tired of

popping pain pills but nothing else works and the pain pills I really don't

think work that well, they just distract my brain for a bit. My shoulder is in

pain, and over the last 8 months I have a " nerve " in my neck that feels like a

pinched nerve, or I slept wrong… but it's now limiting my mobility. Ugh! This

is just exhausting! I have another appointment at the surgeon at the end of the

month. He might still decide to do surgery even though the EMG came out normal.

Is it even going to help? Everything I read makes it seem like it'll only help

if I have severe arm pain, numbing, tingling…. I have some but it's my

neck/shoulder that's excruciating! And causing me such grief!

> Has anyone had surgery with mostly neck pain and found relief after? Please

someone give me hope. I'm at the point that I'll try it just with the hope that

my neck pain will get better… but if it doesn't? Is it worth it to go through

all that and be in the same place?

>

> This sucks! Amy

>

[Guest guest]

I've taken disability in the past just after both accidents. I'm actually in a

'pending' situation at work. I'm in the process of being hired as a perm.

employee so I need to wait on that before I can think about disability.

My primary physician is useless... I do see a pain management doctor for trigger

point injections which work...for a while for the muscle pain but it's the joint

pain that's makign me crazy! And I've tried epidural and facet injections which

stopped working last year. I know I could go on more meds but I really hate

being on so much medication. I'm on Hydrocodone for pain and Zanaflex for

muscle relaxer.

I appreciate your advice and your kind words. Bad days are outweighing the good

days when it comes to pain.

Thanks again,

Amy

>

> Amy, can you take short term disability for awhile.. some time off my

> help..

> Surgery may help you. It may not, but it sounds like you may need to give

> it a try.. Do you have a primary physician??

> He might suggest other options..

> Your surgeon will not be your long term help unless this one surgery

> corrects things.. While that is possible you need to look into all options..

> I am sorry for your pain.. How much meds are you on.. Maybe that also needs

> to be addressed..

> Tom

>

>

>

[Guest guest]

I've taken disability in the past just after both accidents. I'm actually in a

'pending' situation at work. I'm in the process of being hired as a perm.

employee so I need to wait on that before I can think about disability.

My primary physician is useless... I do see a pain management doctor for trigger

point injections which work...for a while for the muscle pain but it's the joint

pain that's makign me crazy! And I've tried epidural and facet injections which

stopped working last year. I know I could go on more meds but I really hate

being on so much medication. I'm on Hydrocodone for pain and Zanaflex for

muscle relaxer.

I appreciate your advice and your kind words. Bad days are outweighing the good

days when it comes to pain.

Thanks again,

Amy

>

> Amy, can you take short term disability for awhile.. some time off my

> help..

> Surgery may help you. It may not, but it sounds like you may need to give

> it a try.. Do you have a primary physician??

> He might suggest other options..

> Your surgeon will not be your long term help unless this one surgery

> corrects things.. While that is possible you need to look into all options..

> I am sorry for your pain.. How much meds are you on.. Maybe that also needs

> to be addressed..

> Tom

>

>

>

[Guest guest]

At 11:07 AM 11/3/2009, you wrote:

>

>

> My shoulder is in pain, and over the last 8

> months I have a " nerve " in my neck that feels

> like a pinched nerve, or I slept wrong… but

> it's now limiting my mobility. Ugh! This is

> just exhausting! I have another appointment at

> the surgeon at the end of the month. He might

> still decide to do surgery even though the EMG

> came out normal. Is it even going to help?

> Everything I read makes it seem like it'll only

> help if I have severe arm pain, numbing,

> tingling…. I have some but it's my

> neck/shoulder that's excruciating! And causing me such grief!

>Has anyone had surgery with mostly neck pain and

>found relief after? Please someone give me hope.

>I'm at the point that I'll try it just with the

>hope that my neck pain will get better… but if

>it doesn't? Is it worth it to go through all that and be in the same place?

>

>This sucks! Amy

Hi Amy, Dave here. I had severe neck shoulder

pain and was told that bone spurs pinching on

nerves and disk problems were the cause. Surgery

would fix this I was told. I had the surgery.

After the surgery I awoke with more pain than

before. I was told to give it time, but it never

improved. I tried all types of treatments now

helped. This included triggerpoint injections,

acupuncture, physical therapy you name it.

Nothing has worked except pain management through

narcotics & muscle relaxers etc. One thing I'd

like to see you explore is a good medical massage

therapist. I recently started seeing one and he

has been most helpful. I've experienced the most

pain relief ever. When I was looking for relief I

had every test under the sun and they couldn't

find the source of my pain. All they could offer

was exploratory surgery. My medical massage

therapist couldn't believe that no one ever

suggested medical massage. He believes all of my

problems are muscle based or the transition of

where the muscles attach to the bone. By giving

me intense therapy he is breaking up areas of

what can be imagined as gristle that has built up

on the muscle that causes pain. I suggest you

check it out before you give into surgery,

especially if your EMG's come out as normal. You

may not have any nerve damage. Just my opinion from 10 years experience. Dave

Oh, one other thing that really helps me and gets

me through the night are ice packs store bought

gell type that we keep frozen in the freezer. I

wrap them in light towels to avoid frost-bite.

These really help numb the pain. Another thing

that helps is my wife gives me a massage with a

handheld percussion massager made by Homedics.

This breaks up tension in the area of my shoulder

blade, spine and neck. My largest area of pain

is my scapula / shoulder blade more than my

shoulder per se. My neck also hurts a lot, it

feels like it is a big chore to hold up my head. Dave

[Guest guest]

At 11:07 AM 11/3/2009, you wrote:

>

>

> My shoulder is in pain, and over the last 8

> months I have a " nerve " in my neck that feels

> like a pinched nerve, or I slept wrong… but

> it's now limiting my mobility. Ugh! This is

> just exhausting! I have another appointment at

> the surgeon at the end of the month. He might

> still decide to do surgery even though the EMG

> came out normal. Is it even going to help?

> Everything I read makes it seem like it'll only

> help if I have severe arm pain, numbing,

> tingling…. I have some but it's my

> neck/shoulder that's excruciating! And causing me such grief!

>Has anyone had surgery with mostly neck pain and

>found relief after? Please someone give me hope.

>I'm at the point that I'll try it just with the

>hope that my neck pain will get better… but if

>it doesn't? Is it worth it to go through all that and be in the same place?

>

>This sucks! Amy

Hi Amy, Dave here. I had severe neck shoulder

pain and was told that bone spurs pinching on

nerves and disk problems were the cause. Surgery

would fix this I was told. I had the surgery.

After the surgery I awoke with more pain than

before. I was told to give it time, but it never

improved. I tried all types of treatments now

helped. This included triggerpoint injections,

acupuncture, physical therapy you name it.

Nothing has worked except pain management through

narcotics & muscle relaxers etc. One thing I'd

like to see you explore is a good medical massage

therapist. I recently started seeing one and he

has been most helpful. I've experienced the most

pain relief ever. When I was looking for relief I

had every test under the sun and they couldn't

find the source of my pain. All they could offer

was exploratory surgery. My medical massage

therapist couldn't believe that no one ever

suggested medical massage. He believes all of my

problems are muscle based or the transition of

where the muscles attach to the bone. By giving

me intense therapy he is breaking up areas of

what can be imagined as gristle that has built up

on the muscle that causes pain. I suggest you

check it out before you give into surgery,

especially if your EMG's come out as normal. You

may not have any nerve damage. Just my opinion from 10 years experience. Dave

Oh, one other thing that really helps me and gets

me through the night are ice packs store bought

gell type that we keep frozen in the freezer. I

wrap them in light towels to avoid frost-bite.

These really help numb the pain. Another thing

that helps is my wife gives me a massage with a

handheld percussion massager made by Homedics.

This breaks up tension in the area of my shoulder

blade, spine and neck. My largest area of pain

is my scapula / shoulder blade more than my

shoulder per se. My neck also hurts a lot, it

feels like it is a big chore to hold up my head. Dave

[Guest guest]

Thanks, Dave. I've been looking for a new massage therapist. My old one

disappeared... been looking for her for the last year! So, I'm hunting for one.

And I agree with the ice thing. Ice does help numb the pain.

I appreciate the advice. Good luck and good health to you

Amy

[Guest guest]

Thanks, Dave. I've been looking for a new massage therapist. My old one

disappeared... been looking for her for the last year! So, I'm hunting for one.

And I agree with the ice thing. Ice does help numb the pain.

I appreciate the advice. Good luck and good health to you

Amy

[Guest guest]

Amy,

I had a really good result with a neck fusion, my surgeon had found pinched

nerves and bone spurs-it was getting so bad in my right arm especially-with

tingling and unable to lift anything heavy, or unscrew lids. I am so much better

now since I had the fusion. It's been about 3 years I think. I still have some

problems trying to lift-I'm not supposed to lift over 7 pounds, but most of my

problems are due to my back now. I don't think I had enough pain medication

right after surgery, in hurt like heck, but was ok after a few hours. I don't

regret it at all. I was at the point I couldn't turn to look over my shoulder,

or roll up my car window-all due to bone spurs and pinched nerves. But as you

can tell, others haven't had the same result, but I felt I had nothing to lose

and had to give it a try. Of course I had physical therapy afterwards too.

Good luck to you.

 

Jeannie

________________________________

[Guest guest]

Amy,

I had a really good result with a neck fusion, my surgeon had found pinched

nerves and bone spurs-it was getting so bad in my right arm especially-with

tingling and unable to lift anything heavy, or unscrew lids. I am so much better

now since I had the fusion. It's been about 3 years I think. I still have some

problems trying to lift-I'm not supposed to lift over 7 pounds, but most of my

problems are due to my back now. I don't think I had enough pain medication

right after surgery, in hurt like heck, but was ok after a few hours. I don't

regret it at all. I was at the point I couldn't turn to look over my shoulder,

or roll up my car window-all due to bone spurs and pinched nerves. But as you

can tell, others haven't had the same result, but I felt I had nothing to lose

and had to give it a try. Of course I had physical therapy afterwards too.

Good luck to you.

 

Jeannie

________________________________

[Guest guest]

hi jeannie, i know you were writing amy but those were the words i needed to

hear also. thank you so much, wyld

From: Abbott <jeannieboo1@...>

Subject: Re: REAL pain in the neck/shoulder!!! ugh!

neck pain

Date: Wednesday, November 4, 2009, 9:26 PM

 

Amy,

I had a really good result with a neck fusion, my surgeon had found pinched

nerves and bone spurs-it was getting so bad in my right arm especially-with

tingling and unable to lift anything heavy, or unscrew lids. I am so much better

now since I had the fusion. It's been about 3 years I think. I still have some

problems trying to lift-I'm not supposed to lift over 7 pounds, but most of my

problems are due to my back now. I don't think I had enough pain medication

right after surgery, in hurt like heck, but was ok after a few hours. I don't

regret it at all. I was at the point I couldn't turn to look over my shoulder,

or roll up my car window-all due to bone spurs and pinched nerves. But as you

can tell, others haven't had the same result, but I felt I had nothing to lose

and had to give it a try. Of course I had physical therapy afterwards too.

Good luck to you.

 

Jeannie

____________ _________ _________ __

[Guest guest]

hi jeannie, i know you were writing amy but those were the words i needed to

hear also. thank you so much, wyld

From: Abbott <jeannieboo1@...>

Subject: Re: REAL pain in the neck/shoulder!!! ugh!

neck pain

Date: Wednesday, November 4, 2009, 9:26 PM

 

Amy,

I had a really good result with a neck fusion, my surgeon had found pinched

nerves and bone spurs-it was getting so bad in my right arm especially-with

tingling and unable to lift anything heavy, or unscrew lids. I am so much better

now since I had the fusion. It's been about 3 years I think. I still have some

problems trying to lift-I'm not supposed to lift over 7 pounds, but most of my

problems are due to my back now. I don't think I had enough pain medication

right after surgery, in hurt like heck, but was ok after a few hours. I don't

regret it at all. I was at the point I couldn't turn to look over my shoulder,

or roll up my car window-all due to bone spurs and pinched nerves. But as you

can tell, others haven't had the same result, but I felt I had nothing to lose

and had to give it a try. Of course I had physical therapy afterwards too.

Good luck to you.

 

Jeannie

____________ _________ _________ __

[Guest guest]

Hi Wyld

Glad to be of help-even unknowingly! Those are some cool pics you have of you

and your family on the bikes. I am full of admiration for you. I tried to be a

passenger behind my ex-husband when he had a motorcycle, and I was forever

banned from doing that again with him. He made me so nervous.

I just got my tickets for Xmas in Washington-actually in Puyallup. Really

shouldn't do it with the way money is so tight, but I can't go over a year w/o

seeing my daughter and my grandkids. I'm doing a little happy dance!!!It's weird

that I don't get the same kind of bone problem when I go up there, or maybe I'm

so distracted because of me being there, I'm not so focused on my pain. Am

clueless, but I'll have 3 weeks up there. Hurray!!!!

Take care, thanks for sharing your pictures

Jeannie

________________________________

[Guest guest]

Hi Wyld

Glad to be of help-even unknowingly! Those are some cool pics you have of you

and your family on the bikes. I am full of admiration for you. I tried to be a

passenger behind my ex-husband when he had a motorcycle, and I was forever

banned from doing that again with him. He made me so nervous.

I just got my tickets for Xmas in Washington-actually in Puyallup. Really

shouldn't do it with the way money is so tight, but I can't go over a year w/o

seeing my daughter and my grandkids. I'm doing a little happy dance!!!It's weird

that I don't get the same kind of bone problem when I go up there, or maybe I'm

so distracted because of me being there, I'm not so focused on my pain. Am

clueless, but I'll have 3 weeks up there. Hurray!!!!

Take care, thanks for sharing your pictures

Jeannie

________________________________

[Guest guest]

hi jeannie, i am soooo happy for you and don't feel bad about spending the $$.

gosh, we all got to have a some joy to look forward to and help get us thru all

the dark days and pain. give those grandkids extra hugs and kisses for me as i

cannot give mine any. doctor told me today i should move south and would

probably feel better without all the cold weather but i could not take the

stress of moving, finding new doctors, can't afford it, who would pack and move

my stuff, etc. i guess people with money have no clue what it is like to have to

make a gallon of milk last a whole month or live on $33 food stamps and a

charity food box per month. oh well, lost 70 lbs so far this year, not starving

but not eating well for improving or maintaining health either. a disabled

friend of mine has water bill going up so she now doesn't flush the toilet

unless she poops. gotta cut back where ever you can to get by. no ss raise next

year i hear. i just stay in my

bedroom so i don't have to heat any other rooms and will put a drop light under

the kitchen sink when it is freezing so the pipes won't. i got a new rx that is

not covered and is $5 per pill and is for 40 pills, i'm sure my landlord would

not understand if i don't pay my rent so i can get meds, he has bills to pay

also. no easy answers and i think things will get much worse b4 they get better.

cannot sell my bike as it is not in my name, i cannot own anything or lose my

insurance and it is set up to be sold to pay for my cremation costs since i also

am not allowed to have a burial policy or life ins policy. kids said they could

just leave me at the dog track in a wheel chair or something, lol. i don't want

my kids to have to pay for me when i'm dead and they might not be able to

anyway, so what happens to you then? when i see that pix with me and my bike it

is amazing how much i have gone down hill in the last 2 years, not the same

person at all

anymore. now i am 51 feeling like 80 years old. at least i had some fun for a

while.  you have a fantastic time with your family, it is good medicine, the

best thing for you. hugs, wyld

From: Abbott <jeannieboo1@...>

Subject: Re: REAL pain in the neck/shoulder!!! ugh!

neck pain

Date: Friday, November 6, 2009, 12:26 PM

 

Hi Wyld

Glad to be of help-even unknowingly! Those are some cool pics you have of you

and your family on the bikes. I am full of admiration for you. I tried to be a

passenger behind my ex-husband when he had a motorcycle, and I was forever

banned from doing that again with him. He made me so nervous.

I just got my tickets for Xmas in Washington-actually in Puyallup. Really

shouldn't do it with the way money is so tight, but I can't go over a year w/o

seeing my daughter and my grandkids. I'm doing a little happy dance!!!It's weird

that I don't get the same kind of bone problem when I go up there, or maybe I'm

so distracted because of me being there, I'm not so focused on my pain. Am

clueless, but I'll have 3 weeks up there. Hurray!!!!

Take care, thanks for sharing your pictures

Jeannie

____________ _________ _________ __

[Guest guest]

hi jeannie, i am soooo happy for you and don't feel bad about spending the $$.

gosh, we all got to have a some joy to look forward to and help get us thru all

the dark days and pain. give those grandkids extra hugs and kisses for me as i

cannot give mine any. doctor told me today i should move south and would

probably feel better without all the cold weather but i could not take the

stress of moving, finding new doctors, can't afford it, who would pack and move

my stuff, etc. i guess people with money have no clue what it is like to have to

make a gallon of milk last a whole month or live on $33 food stamps and a

charity food box per month. oh well, lost 70 lbs so far this year, not starving

but not eating well for improving or maintaining health either. a disabled

friend of mine has water bill going up so she now doesn't flush the toilet

unless she poops. gotta cut back where ever you can to get by. no ss raise next

year i hear. i just stay in my

bedroom so i don't have to heat any other rooms and will put a drop light under

the kitchen sink when it is freezing so the pipes won't. i got a new rx that is

not covered and is $5 per pill and is for 40 pills, i'm sure my landlord would

not understand if i don't pay my rent so i can get meds, he has bills to pay

also. no easy answers and i think things will get much worse b4 they get better.

cannot sell my bike as it is not in my name, i cannot own anything or lose my

insurance and it is set up to be sold to pay for my cremation costs since i also

am not allowed to have a burial policy or life ins policy. kids said they could

just leave me at the dog track in a wheel chair or something, lol. i don't want

my kids to have to pay for me when i'm dead and they might not be able to

anyway, so what happens to you then? when i see that pix with me and my bike it

is amazing how much i have gone down hill in the last 2 years, not the same

person at all

anymore. now i am 51 feeling like 80 years old. at least i had some fun for a

while.  you have a fantastic time with your family, it is good medicine, the

best thing for you. hugs, wyld

From: Abbott <jeannieboo1@...>

Subject: Re: REAL pain in the neck/shoulder!!! ugh!

neck pain

Date: Friday, November 6, 2009, 12:26 PM

 

Hi Wyld

Glad to be of help-even unknowingly! Those are some cool pics you have of you

and your family on the bikes. I am full of admiration for you. I tried to be a

passenger behind my ex-husband when he had a motorcycle, and I was forever

banned from doing that again with him. He made me so nervous.

I just got my tickets for Xmas in Washington-actually in Puyallup. Really

shouldn't do it with the way money is so tight, but I can't go over a year w/o

seeing my daughter and my grandkids. I'm doing a little happy dance!!!It's weird

that I don't get the same kind of bone problem when I go up there, or maybe I'm

so distracted because of me being there, I'm not so focused on my pain. Am

clueless, but I'll have 3 weeks up there. Hurray!!!!

Take care, thanks for sharing your pictures

Jeannie

____________ _________ _________ __

[Guest guest]

Dear Wyld,

My memory is terribly bad with the pill I take, but are you just living on SSDI?

I just wanted to cry after reading your letter. You're actually in Washington,

right? I know my daughter and her family couldn't exist on welfare, for the 4 of

them it's something like $600/month. But because my grandson has SSI because of

Autism, it adds another $600. Plus they get food stamps. I try to find all these

places that can help her out, their rent is $750., they live in a dump that has

no insulation and the power bill is huge. So we're trying to help them out as

much as possible, which led to our finances going down the drain, but I can't

let them be homeless, shelters are full everywhere. Your dr. dosn't know what

he's talking about to have you move to a warmer climate, not now anyway, Both

Nevada and Arizona are poverty stricken, plus my pain is on the same level as

everyone's who lives in a state with four seasons. I just have some days better

than others.

It's pretty dismal here. I want my daughter here, at least I wouldn't worry

about her ending up on the street, but we'd have to find a house to live in and

rent it, and come up with the deposits to even get into one. I guess they get

more money because of the kids. How do they expect you to eat on $33. a month?

My daughter has a car and drives w/o insurance, her husband has a suspended

license, so they're eating up gas driving him back and forth to school. Instaed

of working, he 's going to school for computers. He had a good job that he quit

because he didn't like it and was getting depressed. He has almost no teeth, had

a chance to get them fixed, and didn't take it. He's such a loser. I try not to

stress, I have an ulcer already, but sometimes I just want to run and hide, it

gets to be a bit much. I'm sorry you're going through all that you are. I

thought I would have a good life after I turned 50. Wrong! So I turn to this

group where I can vent, and

feel better when I know I'm not the only one going through the things I'm going

through. Bless this group.

I wonder if things will ever get better?

I wish I could win Megabucks and help all these people in the group. The stories

are heart-breaking.

Well, am suppsed to go to a wedding rehearsal for my step son, so I guess I'd

better get ready. Just found out today my husband has Deep Vein Thrombosis, and

if he doesn't stop smoking and eating so much, he'll lose his leg.

Life goes on...

 

Jeannie

________________________________

[Guest guest]

hi jeannie, i am on ssi and medicare. i don't like morphine because of the

memory issues, i was an accountant and could remember financial numbers from

several previous seasons, hundreds of phone numbers, names, dates, etc. now i

could not tell you my checking balance without looking except that it is under

$10. but i looked at it yesterday and should be able to remember exactly what it

is, but do not. drives me crazy. i have to write everything down then forget

where the notes are. i use to be one of those super organized people and now my

paperwork is a mess. i work on it but it is still messed up.  

 

 i was trying to fill out all the paper work at the hospital this morning at 6

am.  i decided i am going to go thru all my medical files and complete a

outline, print copies, and from now on just hand them one. i have files in

multiple dr offices 6 " thick and i am suppose to remember all that and put it on

2 pages with tiny lines after 3 hrs sleep, a 1.5 hr van ride with no pain meds

(wont stay down on empty stomach), and then remember dates and fill out forms? i

suggested they mail them a few days in advance to people at home. the volunteer

said the nurses would help me fill them out in the back, yeah right, like they

don't have anything else to do or even know my medical history. i try to use

how old my kids were when something happened, like a surgery to help

figure date stuff out.  no biggie i guess, they never went over my paperwork

with me at all anyway.

 

 i was told by my doctors office i would be there an hour, i have to tell my

county senior office when i request a driver how long i'll be as if possible

several clients ride into town together and we all wait for everyone to get done

or sometimes a driver will be needed to take someone else to a different town,

etc. so i started getting upset when i had been there 1.5 hrs and had not had

the mri yet, no purse or money with me (bring no valuables) thinking my drivers

not going to be able to wait for me. i asked a nurse if she could check on how

much longer until i would go home and why i needed to get an estimate so i could

call the drivers cell phone and she never came back so i got out of bed,

unhooked my iv bag from the bed and went out to the desk. this was now another

20 minutes later. she said if i miss my ride i can take a taxi, i said, i live

in the freakin gorge, it will have to be a greyhound bus and 4x4 to get up my

driveway. i wish i had a

camera for the look on her face. thankfully she was not my assigned nurse. the

one i had was fantastic as was the one i had wednesday at my pain mgmt dr. and

thankfully my driver could wait because i didn't get out of there until 1 pm and

home until 2:30.

 

i have an ulcer also. yes i am in washington and sorry about the money whining.

on the way in we were talking about politician's retirement benefits. i'd like

to see them survive on what some of us have to.  i am very thankful i get help

at all, have lived with less and no medical ins. how to eat on $33? well i have

lost 70 lbs this year. typical day is i have a piece of toast when i get up so i

can take my pills. an egg for the next round of pills, and a p & j or pancake

for final round of pills. i might get a can of fruit in the food box or mac n

cheese or soup to mix it up a bit. but mac n cheese means i also have to have

milk and butter too.  i am hurting so bad lately i really am not hungry anyway

so it does not matter. i am thankful i do not have kids to feed and am sorry you

have to be so worried about your family. there are some wonderful programs out

there to help people but you cannot make people help themselves. they have to

want to get

help. it is hard for some people to get past their pride. many people today

have to get help for the first time and feel ashamed and that is so sad. i would

do anything if my kids were hungry to take care of them. 

 

my daughter is also with a loser and i want so much better for her but she has

to want better for her before anything will change. i filed a police report when

he assaulted me, again when he vandalized my car, and with children protective

services for the second known drunken tug of war with my grandson, he would not

let my daughter leave the apartment when she was in labor because he was so

drunk he knew they would not let him into the hospital, i tried to call the cops

and he assaulted me. 6 months b4 he came home drunk and swung my grandson around

by the ankle hitting his head on hardwood floor, my daughter got away with my

grandson, got her own apt, but after the second child was born with major heart

problems she went back to him. she will not tell cops and child protective

services what goes on, he has her totally under his control, brain washed.

 

sorry to hear the news about your hubby, but he also has to make his own

choices. you are so right about this group, i have learned so much and feel so

much better just being able to chat with others who have similar pains in the

neck and back, or vent instead of talking to myself thinking im going crazy and

nobody cares. i am glad someone suggested i join. take care, wyld

 

From: Abbott <jeannieboo1@...>

Subject: Re: REAL pain in the neck/shoulder!!! ugh!

neck pain

Date: Friday, November 6, 2009, 4:23 PM

 

Dear Wyld,

My memory is terribly bad with the pill I take, but are you just living on SSDI?

I just wanted to cry after reading your letter. You're actually in Washington,

right? I know my daughter and her family couldn't exist on welfare, for the 4 of

them it's something like $600/month. But because my grandson has SSI because of

Autism, it adds another $600. Plus they get food stamps. I try to find all these

places that can help her out, their rent is $750., they live in a dump that has

no insulation and the power bill is huge. So we're trying to help them out as

much as possible, which led to our finances going down the drain, but I can't

let them be homeless, shelters are full everywhere. Your dr. dosn't know what

he's talking about to have you move to a warmer climate, not now anyway, Both

Nevada and Arizona are poverty stricken, plus my pain is on the same level as

everyone's who lives in a state with four seasons. I just have some days better

than others.

It's pretty dismal here. I want my daughter here, at least I wouldn't worry

about her ending up on the street, but we'd have to find a house to live in and

rent it, and come up with the deposits to even get into one. I guess they get

more money because of the kids. How do they expect you to eat on $33. a month?

My daughter has a car and drives w/o insurance, her husband has a suspended

license, so they're eating up gas driving him back and forth to school. Instaed

of working, he 's going to school for computers. He had a good job that he quit

because he didn't like it and was getting depressed. He has almost no teeth, had

a chance to get them fixed, and didn't take it. He's such a loser. I try not to

stress, I have an ulcer already, but sometimes I just want to run and hide, it

gets to be a bit much. I'm sorry you're going through all that you are. I

thought I would have a good life after I turned 50. Wrong! So I turn to this

group where I can vent, and

feel better when I know I'm not the only one going through the things I'm going

through. Bless this group.

I wonder if things will ever get better?

I wish I could win Megabucks and help all these people in the group. The stories

are heart-breaking.

Well, am suppsed to go to a wedding rehearsal for my step son, so I guess I'd

better get ready. Just found out today my husband has Deep Vein Thrombosis, and

if he doesn't stop smoking and eating so much, he'll lose his leg.

Life goes on...

 

Jeannie

____________ _________ _________ __

[Guest guest]

hi jeannie, i am on ssi and medicare. i don't like morphine because of the

memory issues, i was an accountant and could remember financial numbers from

several previous seasons, hundreds of phone numbers, names, dates, etc. now i

could not tell you my checking balance without looking except that it is under

$10. but i looked at it yesterday and should be able to remember exactly what it

is, but do not. drives me crazy. i have to write everything down then forget

where the notes are. i use to be one of those super organized people and now my

paperwork is a mess. i work on it but it is still messed up.  

 

 i was trying to fill out all the paper work at the hospital this morning at 6

am.  i decided i am going to go thru all my medical files and complete a

outline, print copies, and from now on just hand them one. i have files in

multiple dr offices 6 " thick and i am suppose to remember all that and put it on

2 pages with tiny lines after 3 hrs sleep, a 1.5 hr van ride with no pain meds

(wont stay down on empty stomach), and then remember dates and fill out forms? i

suggested they mail them a few days in advance to people at home. the volunteer

said the nurses would help me fill them out in the back, yeah right, like they

don't have anything else to do or even know my medical history. i try to use

how old my kids were when something happened, like a surgery to help

figure date stuff out.  no biggie i guess, they never went over my paperwork

with me at all anyway.

 

 i was told by my doctors office i would be there an hour, i have to tell my

county senior office when i request a driver how long i'll be as if possible

several clients ride into town together and we all wait for everyone to get done

or sometimes a driver will be needed to take someone else to a different town,

etc. so i started getting upset when i had been there 1.5 hrs and had not had

the mri yet, no purse or money with me (bring no valuables) thinking my drivers

not going to be able to wait for me. i asked a nurse if she could check on how

much longer until i would go home and why i needed to get an estimate so i could

call the drivers cell phone and she never came back so i got out of bed,

unhooked my iv bag from the bed and went out to the desk. this was now another

20 minutes later. she said if i miss my ride i can take a taxi, i said, i live

in the freakin gorge, it will have to be a greyhound bus and 4x4 to get up my

driveway. i wish i had a

camera for the look on her face. thankfully she was not my assigned nurse. the

one i had was fantastic as was the one i had wednesday at my pain mgmt dr. and

thankfully my driver could wait because i didn't get out of there until 1 pm and

home until 2:30.

 

i have an ulcer also. yes i am in washington and sorry about the money whining.

on the way in we were talking about politician's retirement benefits. i'd like

to see them survive on what some of us have to.  i am very thankful i get help

at all, have lived with less and no medical ins. how to eat on $33? well i have

lost 70 lbs this year. typical day is i have a piece of toast when i get up so i

can take my pills. an egg for the next round of pills, and a p & j or pancake

for final round of pills. i might get a can of fruit in the food box or mac n

cheese or soup to mix it up a bit. but mac n cheese means i also have to have

milk and butter too.  i am hurting so bad lately i really am not hungry anyway

so it does not matter. i am thankful i do not have kids to feed and am sorry you

have to be so worried about your family. there are some wonderful programs out

there to help people but you cannot make people help themselves. they have to

want to get

help. it is hard for some people to get past their pride. many people today

have to get help for the first time and feel ashamed and that is so sad. i would

do anything if my kids were hungry to take care of them. 

 

my daughter is also with a loser and i want so much better for her but she has

to want better for her before anything will change. i filed a police report when

he assaulted me, again when he vandalized my car, and with children protective

services for the second known drunken tug of war with my grandson, he would not

let my daughter leave the apartment when she was in labor because he was so

drunk he knew they would not let him into the hospital, i tried to call the cops

and he assaulted me. 6 months b4 he came home drunk and swung my grandson around

by the ankle hitting his head on hardwood floor, my daughter got away with my

grandson, got her own apt, but after the second child was born with major heart

problems she went back to him. she will not tell cops and child protective

services what goes on, he has her totally under his control, brain washed.

 

sorry to hear the news about your hubby, but he also has to make his own

choices. you are so right about this group, i have learned so much and feel so

much better just being able to chat with others who have similar pains in the

neck and back, or vent instead of talking to myself thinking im going crazy and

nobody cares. i am glad someone suggested i join. take care, wyld

 

From: Abbott <jeannieboo1@...>

Subject: Re: REAL pain in the neck/shoulder!!! ugh!

neck pain

Date: Friday, November 6, 2009, 4:23 PM

 

Dear Wyld,

My memory is terribly bad with the pill I take, but are you just living on SSDI?

I just wanted to cry after reading your letter. You're actually in Washington,

right? I know my daughter and her family couldn't exist on welfare, for the 4 of

them it's something like $600/month. But because my grandson has SSI because of

Autism, it adds another $600. Plus they get food stamps. I try to find all these

places that can help her out, their rent is $750., they live in a dump that has

no insulation and the power bill is huge. So we're trying to help them out as

much as possible, which led to our finances going down the drain, but I can't

let them be homeless, shelters are full everywhere. Your dr. dosn't know what

he's talking about to have you move to a warmer climate, not now anyway, Both

Nevada and Arizona are poverty stricken, plus my pain is on the same level as

everyone's who lives in a state with four seasons. I just have some days better

than others.

It's pretty dismal here. I want my daughter here, at least I wouldn't worry

about her ending up on the street, but we'd have to find a house to live in and

rent it, and come up with the deposits to even get into one. I guess they get

more money because of the kids. How do they expect you to eat on $33. a month?

My daughter has a car and drives w/o insurance, her husband has a suspended

license, so they're eating up gas driving him back and forth to school. Instaed

of working, he 's going to school for computers. He had a good job that he quit

because he didn't like it and was getting depressed. He has almost no teeth, had

a chance to get them fixed, and didn't take it. He's such a loser. I try not to

stress, I have an ulcer already, but sometimes I just want to run and hide, it

gets to be a bit much. I'm sorry you're going through all that you are. I

thought I would have a good life after I turned 50. Wrong! So I turn to this

group where I can vent, and

feel better when I know I'm not the only one going through the things I'm going

through. Bless this group.

I wonder if things will ever get better?

I wish I could win Megabucks and help all these people in the group. The stories

are heart-breaking.

Well, am suppsed to go to a wedding rehearsal for my step son, so I guess I'd

better get ready. Just found out today my husband has Deep Vein Thrombosis, and

if he doesn't stop smoking and eating so much, he'll lose his leg.

Life goes on...

 

Jeannie

____________ _________ _________ __

[Guest guest]

Boy can I relate to both of you two! We were at no fault in an accident 14

months ago. MRI of the neck and shoulder do reveal some issues (bulging disks

between C5/6 and C6/7 and cartilage damage in my right shoulder). Docs won't do

ANYTHING for me...even the cartilage damage. They don't think sugery will help

or make it better. They want me to " wait it out " and the doc that is the doc on

record (we've had to hire a lawyer over this mess) is NOT a surgeon and he

doesn't want me to have to wait it out any longer. So...I'm pretty much stuck at

this point.The surgeons just want me to keep going to PT...been doing that for

MORE than 6 months now. I'm seeing the doc of record Tues AM. I hope he has some

ideas for me. I can't take the anti-inflammatory I was on...I need

something...I'm also at the end of my rope...

Dangling,

Joi

> >

> >

> > My shoulder is in pain, and over the last 8

> > months I have a " nerve " in my neck that feels

> > like a pinched nerve, or I slept wrong… but

> > it's now limiting my mobility. Ugh! This is

> > just exhausting! I have another appointment at

> > the surgeon at the end of the month. He might

> > still decide to do surgery even though the EMG

> > came out normal. Is it even going to help?

> > Everything I read makes it seem like it'll only

> > help if I have severe arm pain, numbing,

> > tingling…. I have some but it's my

> > neck/shoulder that's excruciating! And causing me such grief!

> >Has anyone had surgery with mostly neck pain and

> >found relief after? Please someone give me hope.

> >I'm at the point that I'll try it just with the

> >hope that my neck pain will get better… but if

> >it doesn't? Is it worth it to go through all that and be in the same place?

> >

> >This sucks! Amy

>

> Hi Amy, Dave here. I had severe neck shoulder

> pain and was told that bone spurs pinching on

> nerves and disk problems were the cause. Surgery

> would fix this I was told. I had the surgery.

> After the surgery I awoke with more pain than

> before. I was told to give it time, but it never

> improved. I tried all types of treatments now

> helped. This included triggerpoint injections,

> acupuncture, physical therapy you name it.

> Nothing has worked except pain management through

> narcotics & muscle relaxers etc. One thing I'd

> like to see you explore is a good medical massage

> therapist. I recently started seeing one and he

> has been most helpful. I've experienced the most

> pain relief ever. When I was looking for relief I

> had every test under the sun and they couldn't

> find the source of my pain. All they could offer

> was exploratory surgery. My medical massage

> therapist couldn't believe that no one ever

> suggested medical massage. He believes all of my

> problems are muscle based or the transition of

> where the muscles attach to the bone. By giving

> me intense therapy he is breaking up areas of

> what can be imagined as gristle that has built up

> on the muscle that causes pain. I suggest you

> check it out before you give into surgery,

> especially if your EMG's come out as normal. You

> may not have any nerve damage. Just my opinion from 10 years experience.

Dave

>

> Oh, one other thing that really helps me and gets

> me through the night are ice packs store bought

> gell type that we keep frozen in the freezer. I

> wrap them in light towels to avoid frost-bite.

> These really help numb the pain. Another thing

> that helps is my wife gives me a massage with a

> handheld percussion massager made by Homedics.

> This breaks up tension in the area of my shoulder

> blade, spine and neck. My largest area of pain

> is my scapula / shoulder blade more than my

> shoulder per se. My neck also hurts a lot, it

> feels like it is a big chore to hold up my head. Dave

>

[Guest guest]

Boy can I relate to both of you two! We were at no fault in an accident 14

months ago. MRI of the neck and shoulder do reveal some issues (bulging disks

between C5/6 and C6/7 and cartilage damage in my right shoulder). Docs won't do

ANYTHING for me...even the cartilage damage. They don't think sugery will help

or make it better. They want me to " wait it out " and the doc that is the doc on

record (we've had to hire a lawyer over this mess) is NOT a surgeon and he

doesn't want me to have to wait it out any longer. So...I'm pretty much stuck at

this point.The surgeons just want me to keep going to PT...been doing that for

MORE than 6 months now. I'm seeing the doc of record Tues AM. I hope he has some

ideas for me. I can't take the anti-inflammatory I was on...I need

something...I'm also at the end of my rope...

Dangling,

Joi

> >

> >

> > My shoulder is in pain, and over the last 8

> > months I have a " nerve " in my neck that feels

> > like a pinched nerve, or I slept wrong… but

> > it's now limiting my mobility. Ugh! This is

> > just exhausting! I have another appointment at

> > the surgeon at the end of the month. He might

> > still decide to do surgery even though the EMG

> > came out normal. Is it even going to help?

> > Everything I read makes it seem like it'll only

> > help if I have severe arm pain, numbing,

> > tingling…. I have some but it's my

> > neck/shoulder that's excruciating! And causing me such grief!

> >Has anyone had surgery with mostly neck pain and

> >found relief after? Please someone give me hope.

> >I'm at the point that I'll try it just with the

> >hope that my neck pain will get better… but if

> >it doesn't? Is it worth it to go through all that and be in the same place?

> >

> >This sucks! Amy

>

> Hi Amy, Dave here. I had severe neck shoulder

> pain and was told that bone spurs pinching on

> nerves and disk problems were the cause. Surgery

> would fix this I was told. I had the surgery.

> After the surgery I awoke with more pain than

> before. I was told to give it time, but it never

> improved. I tried all types of treatments now

> helped. This included triggerpoint injections,

> acupuncture, physical therapy you name it.

> Nothing has worked except pain management through

> narcotics & muscle relaxers etc. One thing I'd

> like to see you explore is a good medical massage

> therapist. I recently started seeing one and he

> has been most helpful. I've experienced the most

> pain relief ever. When I was looking for relief I

> had every test under the sun and they couldn't

> find the source of my pain. All they could offer

> was exploratory surgery. My medical massage

> therapist couldn't believe that no one ever

> suggested medical massage. He believes all of my

> problems are muscle based or the transition of

> where the muscles attach to the bone. By giving

> me intense therapy he is breaking up areas of

> what can be imagined as gristle that has built up

> on the muscle that causes pain. I suggest you

> check it out before you give into surgery,

> especially if your EMG's come out as normal. You

> may not have any nerve damage. Just my opinion from 10 years experience.

Dave

>

> Oh, one other thing that really helps me and gets

> me through the night are ice packs store bought

> gell type that we keep frozen in the freezer. I

> wrap them in light towels to avoid frost-bite.

> These really help numb the pain. Another thing

> that helps is my wife gives me a massage with a

> handheld percussion massager made by Homedics.

> This breaks up tension in the area of my shoulder

> blade, spine and neck. My largest area of pain

> is my scapula / shoulder blade more than my

> shoulder per se. My neck also hurts a lot, it

> feels like it is a big chore to hold up my head. Dave

>