Re: Has anyone had these symptoms?

July 15, 2001

Wow, Deb, you've had quite a life! Bull riding sounds.....jolting!

Sadly, I can relate to some of your symptoms, and have talked with many

other women who have had the same troubles.

The visual problems are common, although your description of them is worse

than any I have experienced! When I got sick, it seemed that everything

happened all at once, and the visual problems were one of the first signs.

I had a hard time just being comfortable with my eyes open at times, and I

remember the aggravation of driving the most. I would put on sunglasses and

have to take them off 5 minutes later, only to put them back on again soon

after that. On and on it went, on, off. My eyes just never felt

right--they ached, and were tired. I got into two car accidents in the

first year after explant. But an opthamologist declared that I had better

than perfect vision after an exam, and he looked at me very strange when I

told him I thought there was something wrong and that it had to do with my

saline implants. I'll never forget his look. It shouted " You must be a

stupid, crazy lady. "

I also can relate to the Bible episode, although mine had more to do with

comprehension and was very freaky. I went to read my Bible for comfort,

only to find out that I could not understand a single thing that I read! I

was reading, but it made no sense to me--it could have all been Greek, for

as much as I could comprehend it. I got so scared I went to watch TV with

my kids, only to find out I could not comprehend the TV show, either! That

was the day that my life changed, and I KNEW something was wrong.

The memory problems and lapses are all part of it....the aches, pains,

fatigue, frozen shoulder, dry eyes, thyroid problems....all common to women

with implant toxicity.

The exact mechanisms explaining the toxicity aren't fully understood yet,

but we do know that these symptoms are similar to what other chemically

toxic people have experienced. Therefore, the aim of healing is to detox

the body as fully as possible, and to support the immune system as it heals,

and help provide nutrients to rebuild healthy cells.

This means doing things that you wouldn't normally do, such as fasting,

colonics, enemas, cleanses, saunas or other sweating therapies, chelation

therapy, amalgam removal, changes in diet (this is vital), juicing, as well

as using supplements to help your body in the detoxification and rebuilding

process. It takes alot of effort at times.

There may be underlying viral or bacterial issues that should be addressed

as well. We have recently discussed the mycoplasma issue on the group.

There are also anti-viral foods and supplements that you can buy to reduce

your viral load.

I have to say the effort is time consuming, but all worth it. I have healed

tremendously in the last 3 years since explant. I have learned alot and am,

hopefully, a better person for it. They say everything happens for a

reason, and though I wouldn't wish anyone else to go through this, I have to

look at my experience in the light of what God wanted me to learn from it,

and I see where He wanted me to change direction.

I hope you will be encouraged in our group! Stay with us, ask questions,

and let us know how things go with your MRI and explant! Do you have a

doctor picked out yet? I do hope he helps you get your insurance to cover

it. Make sure you have a total capsulectomy done.

Take Care,

Patty

----- Original Message -----

From: " Deb " <wwjddeb_99@...>

< >

Sent: Saturday, July 14, 2001 9:59 AM

Subject: Has anyone had these symptoms?

> Hi,

> I just joined and I just woke up from 22 years of being sick and

> wondering why? It was not until a few weeks ago that I even

> connected that my saline implants could be the hidden cause of my

> troubles.

> I was implanted (and I still am.... yikes!) in 1979 with Heyer

> Schulte implants 1620 inflated with 175 cc of normal saline and 1630

> was filled with 250cc of NS with 20mg of SolUMedrol placed in each

> implant.

> A few years after this I started having problems with my left

> shoulder. I had a ton of pain and it would freeze up on me... I

> started with injections of cortisone and I have had them off and on

> through out the years when the soulder is too painful.

> In more recent years I have had a lot of visiual problems. I was

> reading my Bible at the kitchen table one day in 1996 all of a sudden

> the pages looked some what like this: " F od so l ved th w rld th

> H ga " the letters where gone! That freaked me out! But then what

> made this worse was the fact that the next thing that I remembered is

> that I was sitting on the floor in my bathroom with no clue as to how

> I got there... I wasn't sure if I could even talk at that time. The

> doctors told me I was having phantom migraine headaches this of

> course was better than the possible brain tumor they thought that I

> had at first.

> Now I am having double vision! " Every now and then " I my vision will

> become blurred or I will see a persons eyes on their cheeks!

> King couldn't come up with some of the freaky things that I've seen

> through my eyes lately! lol

> The doctor told me that I had " Atypcial MS " this was then ruled out

> by a specialist who only deals with MS patients after he reviewed my

> records... and this was also after I found out that I developed an

> allergy to Steroids... I had 1000 mg. of SolUMedrol given to me over

> 3 days it was continued with the use of Benedryl taken orally 1 hour

> before I got my 2nd and 3rd IV's because I started breaking out in

> hives before the first dose was finished. I cann't take the oral

> dose pack either it made me very very sick.

> Now I am left with the diagnosis of Chronic Fatigue, Chronic Pain,

> Fibromyalgia and periperal neuropathy.

>

> I have pain daily since the early 1980's. I am more stiff and

> painful in the AM's. I have always contributed this to the fact that

> I was a womens professional bull rider for about 3 years before I

> broke my back in 4 places in 1991. But looking back over my medical

> records from years ago I realized that I had a lot of these symptoms

> and problems before I took up the sport of bull riding...

>

> It's like the things that seem so " normal " to me today came on very

> slowly and I didn't realize that things were changing for me. When I

> started doing the visual things a few years ago I couldn't shun those

> symptoms off and make excuses for them... basically they freaked me

> out big time and I had to tell someone about them.

>

> I forget things all of the time, I don't have memory of a lot of the

> years gone by and no I don't take drugs or drink... I have difficulty

> with speach sometimes by slurring my speach or forgetting what I was

> saying in the middle of a sentence or by not using the correct

> word.

> I remember being in the middle of an intersection a few years

> back and I couldn't figure out how to turn... horns started honking

> and I was in a fog just sitting in the intersection without a clue as

> to how I should get myself out of it. Lucky for me someone got angry

> and pulled around me and I followed that person through the

> intersection. (Thanks God! )

>

> My eyes are so dry that I can hardly wear my contacts well I do wear

> them sometimes and I have to " peel " them off of my eyes... ouch! My

> throat hurts so much that it is difficult to even drink water

> sometimes. My mouth is dry and I drink water all of the time I'm

> talking over a gallon a day. Of course I'm in the bathroom about

> every 15 to 30 minutes a day and at least 3 to 5 times at night. I

> had a nerve in my arm transposed (moved over) a few years ago and I

> still drop things with my left hand. I had a total hysterectomy two

> years ago because of fibroids thus I had the periods from the pit of

> hell. I have had cystic breasts for years and since I got married

> two years ago (right before my hysterectomy) I have continue to gain

> weight. I have gained over 60 pounds without changing my diet or my

> activies. I was in a car accident two years ago 2 months right

> before I got married and the air bag hit my chest so hard that my

> right breast was the color of an eggplant for almost 3 months. It

> also hit my transposed nerve in my left forearm and that trufully

> hurt worse than the breast because I didn't know about the breast

> until I got undressed later that night. Since this accident that

> former eggplant colored breast seems to have sagged to my knees... do

> you think that it ruptured? Eeeewww!

>

> Since that time my spinal tap was pretty normal except for basic

> mylin protiens were elevated other wise it was normal. My evoked

> potential eye test was a bit prolonged too. My T-7 showed a very low

> T-3 uptake on the thyroid... who knows what that all means or if it

> is related to the implants?

>

> As I wait to see if my insurance will pay for an MRI of my breast and

> or send me to a plastic surgeon for explantation I sit in awe of how

> much I don't know about any of this.

> Please feel free to email me if you too have had any of these

> symptoms and let me know what you found out about them.

>

> Thanks to all of you for being here for others and me... it's nice to

> know I'm not crazy or alone and if I am nuts then it's nice to be

> nuts with the rest of you nice ladies... validation is a wonderful

> healing tool isn't it? God Bless and keep you all. Keep in touch!

> Deb

> wwjddeb_99@...

>

July 16, 2001

Deb,

My name is e and I am a registered nurse who also

had saline implants and had them removed in Feb. Many

of my symptoms were similar to yours. In fact, many of

them were identical.

My first question to you is have you had a FLAIR MRI of

the brain? Many of your symptoms sound similar to a

stroke. I know that you don't want to hear that, but I

had several MRI's of my brain trying to rule out MS, and

nothing ever showed up until I had the FLAIR MRI. It

was then that I was diagnosed with a left cerebellar

stroke. I was also having forgetfulness and forgetting

where I was driving to, or where I'd parked my car, etc.

I also want to know if you've been tested for lupus.

The dry eyes is classic of Sjogren's Syndrome, which

usually goes hand in hand with lupus. It is a disease

characterized by dry eyes, mouth, and mucous membranes

and also by being very thirsty and drinking a lot, but

the dryness never goes away. I would insist on being

tested for lupus if you haven't already.

You're the first woman I've heard about that had

solumedrol placed in her implants. I had betadine

placed in mine. But your allergy to solumedrol can

probably be related to the fact that it was placed in

your implants, and your body has developed a sensitivity

to it.

Please write to me if you need any info on what lab

tests to request or if you have any further questions.

e