Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 I find myself having no choice but to reply to this! I hope by doing so I'm not affending anybody. I have been undergoing these TX since April of this year, I had to restart all over again in Aug. of this year, due to some other complications. I'm on 180 Peg/1200 Riba & alot of other meds, due to other health issues. Not to metion I'm Bipolar, Manic, Phyicotic episodes with severe depression & Anxiety, which I've had most of my life. I'm a 1A Geno, Stage 2 possibly 3 now & probably MS. And beleive me I could go on. I have had & still have every common & rare side affect anyone could ever have from these TX. I'm constantly back & forth to the Hospital & Docs. every side you had I've had & worse. And yes it's unbarable & just about impossible. Every other day I say F___ it! I'm stopping the TX. It's not worth it, But than I have to tell myself it is worth it if it can save my life. See these TX are temporary as the side affects are. And if there just a slight chance that I could get well than I have to do this. And let me tell ya it is pure Hell for me everyday. Since I was diagnosed & started TX I have also reunited with my biological Father, after 30 yrs. Whom also after about 3 or 4 months decided he couldn't deal with it and basically is gone from my life again, I have 2 people dear to me to pass away. I was beside myself still am, I cannot describe the emotional & mental strain this has put on me. And my mother just informed me shes leaving next week to go out of the Country for 3 months, and it's the freakin Holidays of all times! I say this because I'm still here & I'm still on the TX. I can still walk, I can still breath, and I still have somewhat of my sight & mind! I feel that it is very discouraging for others that are on these TX fighting everyday for they're life, to come on here and read the post that I have just read. This is a place for encouragement & support, well at least it is for me. And when I read something like that it is very Depressing & Discouraging! My God I need all the Help, Positivness, Encouragement & Support I can get. And I totally depend on this site for that. Please forgive me if I have affended anyone, that wasn't the purpose of my reply! Thankyou, God be with you & yours, if you ever need to talk I'm always here as others are! Good Luck!!! michellerides <michellerides@...> wrote: I haven't posted to this site regularly, but thought someone out there might be interested...who knows. Two weeks ago, I quit taking all the drugs...ALL. Yep, no more, I quit. I am a quitter, after 5 months. Okay, now that is out of the way. In addition to the normal stuff, like feeling so exhausted that walking up a flight of stairs was not an option in my life....I was experiencing crushing chest pain, for over a week,pains shooting down my arms, joint pains that remained relentless over the course of the five months I took the treatment, my foggy mind which couldn't make a decision over anything, my incredibly unstable emotional state.... AND then there were weeks diarreah where I had to race to the toilet every twenty to thirty minutes, constant headaches, my hair was falling out by the handful, my fingernails started peeling off in layers like paper, my skin so dry it drove me crazy with itching, constant infections due to low white cell count, my eyes can't focus - I did get tested and there is no retinal detachment so the PA said not to worry...Yeah, right! Not to worry - I suppose she can see well enough to read, or make out patterns, or see dirt on the dishes? I used to have excellent vision. Not any more. Will it return? I don't know... Complain, complain, complain. After four months, my virus was undetectable - it will probably return, it does in most people... but I will never undergo this treatment again. I cannot endure the side effects...even drinking two gallons of water a day and an organic diet was not enough alleviate the symptoms for me... malo suerte? I was frightened. As is typically the case, it takes a few weeks to get in to see the PA who is in charge of my treatment - she only works two days a week. If I weren't so desperate for treatment many months ago, I would have waited for someone with whom I felt trust and confidence, but that wasn't the case. So, I took matters into my own hands, made my own judgement as to what to do, and I quit... After two weeks off the drugs, I am no longer scared, and my symptoms have abated. I am able to think more clearly, up and about like a normal person, with more energy than I have known over the course of this last year... My vision has not returned to normal, in fact, nothing is back to my norm, but it is better - and I have a sense of renewal about me.... I am going to see my PA today, FINALLY she had an opn appointment, but all I want is my blood work drawn.... Good luck to all of you still in treatment. I hope yhou have a lot of love and support as you endure this mess.... the drugs are a bugger! Fondly --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 > hi, this is joyce here and i don,t usually respond but i too thought id put in my 2 cents. i think we all have had that to weak to climb steps and that sucks also there was a time when all i wanted to do was sleep and when i had my blood work done the gastro said my red cell was way down to where i had to also give my self procritt shots cause my spinalcord was not producing like it should.to me that was scarry and was afraid that it would stay like that but now im done with treatment and the procritt helped my red count. my 6 month check up will be in feb. and will see what the out come will be. i just had my last blood work up done 3 months after my treatment to give time to let the meds get out out of my system. my ? to myself is that do i want to go thru it again like so many have gone thru it 2x,s and i don,t know if i want to go thru it. i too think i have bipolas and possible A.D.D i will find out on the 28 of this month so will see. i find myself somewhat like you as a quitter but i didn't on this have faith and please continue you said u quit after 5 months because of the weakness but i found that will subside if given time. give your body time to adjust. right now i am anticipating the resuts of my last test praying that thing will be good. so maybe rethink your decision and pray, cry, journal do what you have to do to get that crap that is bottled up inside out . thoughts and prayers are with you joyce > I find myself having no choice but to reply to this! I hope by doing so I'm not affending anybody. I have been undergoing these TX since April of this year, I had to restart all over again in Aug. of this year, due to some other complications. I'm on 180 Peg/1200 Riba & alot of other meds, due to other health issues. Not to metion I'm Bipolar, Manic, Phyicotic episodes with severe depression & Anxiety, which I've had most of my life. I'm a 1A Geno, Stage 2 possibly 3 now & probably MS. And beleive me I could go on. I have had & still have every common & rare side affect anyone could ever have from these TX. I'm constantly back & forth to the Hospital & Docs. every side you had I've had & worse. And yes it's unbarable & just about impossible. Every other day I say F___ it! I'm stopping the TX. It's not worth it, But than I have to tell myself it is worth it if it can save my life. See these TX are temporary as the side affects are. And if there just a slight chance > that I could get well than I have to do this. And let me tell ya it is pure Hell for me everyday. Since I was diagnosed & started TX I have also reunited with my biological Father, after 30 yrs. Whom also after about 3 or 4 months decided he couldn't deal with it and basically is gone from my life again, I have 2 people dear to me to pass away. I was beside myself still am, I cannot describe the emotional & mental strain this has put on me. And my mother just informed me shes leaving next week to go out of the Country for 3 months, and it's the freakin Holidays of all times! I say this because I'm still here & I'm still on the TX. I can still walk, I can still breath, and I still have somewhat of my sight & mind! I feel that it is very discouraging for others that are on these TX fighting everyday for they're life, to come on here and read the post that I have just read. This is a place for encouragement & support, well at least it is for me. And when I read something like > that it is very Depressing & Discouraging! My God I need all the Help, Positivness, Encouragement & Support I can get. And I totally depend on this site for that. Please forgive me if I have affended anyone, that wasn't the purpose of my reply! Thankyou, God be with you & yours, if you ever need to talk I'm always here as others are! Good Luck!!! > > michellerides <michellerides@...> wrote: I haven't posted to this site regularly, but thought someone out > there might be interested...who knows. Two weeks ago, I quit taking > all the drugs...ALL. Yep, no more, I quit. I am a quitter, after 5 > months. Okay, now that is out of the way. > > In addition to the normal stuff, like feeling so exhausted that > walking up a flight of stairs was not an option in my life....I was > experiencing crushing chest pain, for over a week,pains shooting down > my arms, joint pains that remained relentless over the course of the > five months I took the treatment, my foggy mind which couldn't make a > decision over anything, my incredibly unstable emotional state.... > AND then there were weeks diarreah where I had to race to the toilet > every twenty to thirty minutes, constant headaches, my hair was > falling out by the handful, my fingernails started peeling off in > layers like paper, my skin so dry it drove me crazy with itching, > constant infections due to low white cell count, my eyes can't focus - > I did get tested and there is no retinal detachment so the PA said > not to worry...Yeah, right! Not to worry - I suppose she can see > well enough to read, or make out patterns, or see dirt on the > dishes? I used to have excellent vision. Not any more. Will it > return? I don't know... > > Complain, complain, complain. After four months, my virus was > undetectable - it will probably return, it does in most people... but > I will never undergo this treatment again. I cannot endure the side > effects...even drinking two gallons of water a day and an organic > diet was not enough alleviate the symptoms for me... malo suerte? > > I was frightened. As is typically the case, it takes a few weeks to > get in to see the PA who is in charge of my treatment - she only > works two days a week. If I weren't so desperate for treatment many > months ago, I would have waited for someone with whom I felt trust > and confidence, but that wasn't the case. So, I took matters into my > own hands, made my own judgement as to what to do, and I quit... > > After two weeks off the drugs, I am no longer scared, and my symptoms > have abated. I am able to think more clearly, up and about like a > normal person, with more energy than I have known over the course of > this last year... My vision has not returned to normal, in fact, > nothing is back to my norm, but it is better - and I have a sense of > renewal about me.... > > I am going to see my PA today, FINALLY she had an opn appointment, > but all I want is my blood work drawn.... > > Good luck to all of you still in treatment. I hope yhou have a lot > of love and support as you endure this mess.... the drugs are a > bugger! > > Fondly > > > > > > > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 . I have not taken tx yet. For one reason is because I have done a hell of alot of research on the tx and side effects, and I refuse to take the tx. Over half of the people who take tx it doesnt help, they get serverly depressed, cant eat, sleep in constant pain lose vision, get arthitis and they get so depressed that some actually try to commit sucide. I dont need all of this.For one It is just me and my daughter and I cant afford to go through all the side effects. So, dont consider yourself a quitter. You are the only person in control of how you live your life. So if you choose to quit tx that is up to you. elizabeth easterday <queenelizabethann1963@...> wrote: I find myself having no choice but to reply to this! I hope by doing so I'm not affending anybody. I have been undergoing these TX since April of this year, I had to restart all over again in Aug. of this year, due to some other complications. I'm on 180 Peg/1200 Riba & alot of other meds, due to other health issues. Not to metion I'm Bipolar, Manic, Phyicotic episodes with severe depression & Anxiety, which I've had most of my life. I'm a 1A Geno, Stage 2 possibly 3 now & probably MS. And beleive me I could go on. I have had & still have every common & rare side affect anyone could ever have from these TX. I'm constantly back & forth to the Hospital & Docs. every side you had I've had & worse. And yes it's unbarable & just about impossible. Every other day I say F___ it! I'm stopping the TX. It's not worth it, But than I have to tell myself it is worth it if it can save my life. See these TX are temporary as the side affects are. And if there just a slight chance that I could get well than I have to do this. And let me tell ya it is pure Hell for me everyday. Since I was diagnosed & started TX I have also reunited with my biological Father, after 30 yrs. Whom also after about 3 or 4 months decided he couldn't deal with it and basically is gone from my life again, I have 2 people dear to me to pass away. I was beside myself still am, I cannot describe the emotional & mental strain this has put on me. And my mother just informed me shes leaving next week to go out of the Country for 3 months, and it's the freakin Holidays of all times! I say this because I'm still here & I'm still on the TX. I can still walk, I can still breath, and I still have somewhat of my sight & mind! I feel that it is very discouraging for others that are on these TX fighting everyday for they're life, to come on here and read the post that I have just read. This is a place for encouragement & support, well at least it is for me. And when I read something like that it is very Depressing & Discouraging! My God I need all the Help, Positivness, Encouragement & Support I can get. And I totally depend on this site for that. Please forgive me if I have affended anyone, that wasn't the purpose of my reply! Thankyou, God be with you & yours, if you ever need to talk I'm always here as others are! Good Luck!!! michellerides <michellerides@...> wrote: I haven't posted to this site regularly, but thought someone out there might be interested...who knows. Two weeks ago, I quit taking all the drugs...ALL. Yep, no more, I quit. I am a quitter, after 5 months. Okay, now that is out of the way. In addition to the normal stuff, like feeling so exhausted that walking up a flight of stairs was not an option in my life....I was experiencing crushing chest pain, for over a week,pains shooting down my arms, joint pains that remained relentless over the course of the five months I took the treatment, my foggy mind which couldn't make a decision over anything, my incredibly unstable emotional state.... AND then there were weeks diarreah where I had to race to the toilet every twenty to thirty minutes, constant headaches, my hair was falling out by the handful, my fingernails started peeling off in layers like paper, my skin so dry it drove me crazy with itching, constant infections due to low white cell count, my eyes can't focus - I did get tested and there is no retinal detachment so the PA said not to worry...Yeah, right! Not to worry - I suppose she can see well enough to read, or make out patterns, or see dirt on the dishes? I used to have excellent vision. Not any more. Will it return? I don't know... Complain, complain, complain. After four months, my virus was undetectable - it will probably return, it does in most people... but I will never undergo this treatment again. I cannot endure the side effects...even drinking two gallons of water a day and an organic diet was not enough alleviate the symptoms for me... malo suerte? I was frightened. As is typically the case, it takes a few weeks to get in to see the PA who is in charge of my treatment - she only works two days a week. If I weren't so desperate for treatment many months ago, I would have waited for someone with whom I felt trust and confidence, but that wasn't the case. So, I took matters into my own hands, made my own judgement as to what to do, and I quit... After two weeks off the drugs, I am no longer scared, and my symptoms have abated. I am able to think more clearly, up and about like a normal person, with more energy than I have known over the course of this last year... My vision has not returned to normal, in fact, nothing is back to my norm, but it is better - and I have a sense of renewal about me.... I am going to see my PA today, FINALLY she had an opn appointment, but all I want is my blood work drawn.... Good luck to all of you still in treatment. I hope yhou have a lot of love and support as you endure this mess.... the drugs are a bugger! Fondly --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 . I have not taken tx yet. For one reason is because I have done a hell of alot of research on the tx and side effects, and I refuse to take the tx. Over half of the people who take tx it doesnt help, they get serverly depressed, cant eat, sleep in constant pain lose vision, get arthitis and they get so depressed that some actually try to commit sucide. I dont need all of this.For one It is just me and my daughter and I cant afford to go through all the side effects. So, dont consider yourself a quitter. You are the only person in control of how you live your life. So if you choose to quit tx that is up to you. elizabeth easterday <queenelizabethann1963@...> wrote: I find myself having no choice but to reply to this! I hope by doing so I'm not affending anybody. I have been undergoing these TX since April of this year, I had to restart all over again in Aug. of this year, due to some other complications. I'm on 180 Peg/1200 Riba & alot of other meds, due to other health issues. Not to metion I'm Bipolar, Manic, Phyicotic episodes with severe depression & Anxiety, which I've had most of my life. I'm a 1A Geno, Stage 2 possibly 3 now & probably MS. And beleive me I could go on. I have had & still have every common & rare side affect anyone could ever have from these TX. I'm constantly back & forth to the Hospital & Docs. every side you had I've had & worse. And yes it's unbarable & just about impossible. Every other day I say F___ it! I'm stopping the TX. It's not worth it, But than I have to tell myself it is worth it if it can save my life. See these TX are temporary as the side affects are. And if there just a slight chance that I could get well than I have to do this. And let me tell ya it is pure Hell for me everyday. Since I was diagnosed & started TX I have also reunited with my biological Father, after 30 yrs. Whom also after about 3 or 4 months decided he couldn't deal with it and basically is gone from my life again, I have 2 people dear to me to pass away. I was beside myself still am, I cannot describe the emotional & mental strain this has put on me. And my mother just informed me shes leaving next week to go out of the Country for 3 months, and it's the freakin Holidays of all times! I say this because I'm still here & I'm still on the TX. I can still walk, I can still breath, and I still have somewhat of my sight & mind! I feel that it is very discouraging for others that are on these TX fighting everyday for they're life, to come on here and read the post that I have just read. This is a place for encouragement & support, well at least it is for me. And when I read something like that it is very Depressing & Discouraging! My God I need all the Help, Positivness, Encouragement & Support I can get. And I totally depend on this site for that. Please forgive me if I have affended anyone, that wasn't the purpose of my reply! Thankyou, God be with you & yours, if you ever need to talk I'm always here as others are! Good Luck!!! michellerides <michellerides@...> wrote: I haven't posted to this site regularly, but thought someone out there might be interested...who knows. Two weeks ago, I quit taking all the drugs...ALL. Yep, no more, I quit. I am a quitter, after 5 months. Okay, now that is out of the way. In addition to the normal stuff, like feeling so exhausted that walking up a flight of stairs was not an option in my life....I was experiencing crushing chest pain, for over a week,pains shooting down my arms, joint pains that remained relentless over the course of the five months I took the treatment, my foggy mind which couldn't make a decision over anything, my incredibly unstable emotional state.... AND then there were weeks diarreah where I had to race to the toilet every twenty to thirty minutes, constant headaches, my hair was falling out by the handful, my fingernails started peeling off in layers like paper, my skin so dry it drove me crazy with itching, constant infections due to low white cell count, my eyes can't focus - I did get tested and there is no retinal detachment so the PA said not to worry...Yeah, right! Not to worry - I suppose she can see well enough to read, or make out patterns, or see dirt on the dishes? I used to have excellent vision. Not any more. Will it return? I don't know... Complain, complain, complain. After four months, my virus was undetectable - it will probably return, it does in most people... but I will never undergo this treatment again. I cannot endure the side effects...even drinking two gallons of water a day and an organic diet was not enough alleviate the symptoms for me... malo suerte? I was frightened. As is typically the case, it takes a few weeks to get in to see the PA who is in charge of my treatment - she only works two days a week. If I weren't so desperate for treatment many months ago, I would have waited for someone with whom I felt trust and confidence, but that wasn't the case. So, I took matters into my own hands, made my own judgement as to what to do, and I quit... After two weeks off the drugs, I am no longer scared, and my symptoms have abated. I am able to think more clearly, up and about like a normal person, with more energy than I have known over the course of this last year... My vision has not returned to normal, in fact, nothing is back to my norm, but it is better - and I have a sense of renewal about me.... I am going to see my PA today, FINALLY she had an opn appointment, but all I want is my blood work drawn.... Good luck to all of you still in treatment. I hope yhou have a lot of love and support as you endure this mess.... the drugs are a bugger! Fondly --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Hi I just had to respond to this too I don't have Hep C, my Hubby does and I have watched him do TX twice, the first time he was on 1 shot a week and riboviron,, we don't even know if he responded or not, his doc tested him at 12 wks and his VL went from 190,000 to 157, the doc said thats great, and did not do another VL till end of treatment, which was 48 wks,, the VL at the end of TX was around 370,00. we then were recomended to a top HepC specialist, top 5 in nation, and he is the one that said we don't know if you relapsed or just didnt clear,, lets try again.. His first TX wasn't that bad for sides,, he had them but was able to continue working through treatment,, this time around the doc wanted to put him on an FDA unapproved dosage of infergen once a day,, not a week, but one shot a day, and the usual dosage of ribiviron,, and start the 48 week count AFTER his VL went to 0, he was on TX for just under 62 wks. the sides this time around were horrable, worse than his first time around,, he had to stop working about 3/4 way through TX, but he finished the TX he had every side there is and it was a very bad time for him, his VL dropped to 0 by week10 this time and he has finished TX about 2 months ago, he still has some fatigue,. but other than that, he is doing great,, if he relapses would he go throught the TX again, even after the horrable time he had with sides??? he says YES without hesitation I know how hard this time around was for him and asked him why would he try again,, his answer,, because I have to keep trying, and I can't give up, I've watched my hubby fight for his life, he is, and always will be my real hero, to watch him struggle through this has been hard for me, but I will never know how hard it is for him. Bonnie . I have not taken tx yet. For one reason is because I have done a hell of alot of research on the tx and side effects, and I refuse to take the tx. Over half of the people who take tx it doesnt help, they get serverly depressed, cant eat, sleep in constant pain lose vision, get arthitis and they get so depressed that some actually try to commit sucide. I dont need all of this.For one It is just me and my daughter and I cant afford to go through all the side effects. So, dont consider yourself a quitter. You are the only person in control of how you live your life. So if you choose to quit tx that is up to you. elizabeth easterday <queenelizabethann1963@...> wrote: I find myself having no choice but to reply to this! I hope by doing so I'm not affending anybody. I have been undergoing these TX since April of this year, I had to restart all over again in Aug. of this year, due to some other complications. I'm on 180 Peg/1200 Riba & alot of other meds, due to other health issues. Not to metion I'm Bipolar, Manic, Phyicotic episodes with severe depression & Anxiety, which I've had most of my life. I'm a 1A Geno, Stage 2 possibly 3 now & probably MS. And beleive me I could go on. I have had & still have every common & rare side affect anyone could ever have from these TX. I'm constantly back & forth to the Hospital & Docs. every side you had I've had & worse. And yes it's unbarable & just about impossible. Every other day I say F___ it! I'm stopping the TX. It's not worth it, But than I have to tell myself it is worth it if it can save my life. See these TX are temporary as the side affects are. And if there just a slight chance that I could get well than I have to do this. And let me tell ya it is pure Hell for me everyday. Since I was diagnosed & started TX I have also reunited with my biological Father, after 30 yrs. Whom also after about 3 or 4 months decided he couldn't deal with it and basically is gone from my life again, I have 2 people dear to me to pass away. I was beside myself still am, I cannot describe the emotional & mental strain this has put on me. And my mother just informed me shes leaving next week to go out of the Country for 3 months, and it's the freakin Holidays of all times! I say this because I'm still here & I'm still on the TX. I can still walk, I can still breath, and I still have somewhat of my sight & mind! I feel that it is very discouraging for others that are on these TX fighting everyday for they're life, to come on here and read the post that I have just read. This is a place for encouragement & support, well at least it is for me. And when I read something like that it is very Depressing & Discouraging! My God I need all the Help, Positivness, Encouragement & Support I can get. And I totally depend on this site for that. Please forgive me if I have affended anyone, that wasn't the purpose of my reply! Thankyou, God be with you & yours, if you ever need to talk I'm always here as others are! Good Luck!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Hi I just had to respond to this too I don't have Hep C, my Hubby does and I have watched him do TX twice, the first time he was on 1 shot a week and riboviron,, we don't even know if he responded or not, his doc tested him at 12 wks and his VL went from 190,000 to 157, the doc said thats great, and did not do another VL till end of treatment, which was 48 wks,, the VL at the end of TX was around 370,00. we then were recomended to a top HepC specialist, top 5 in nation, and he is the one that said we don't know if you relapsed or just didnt clear,, lets try again.. His first TX wasn't that bad for sides,, he had them but was able to continue working through treatment,, this time around the doc wanted to put him on an FDA unapproved dosage of infergen once a day,, not a week, but one shot a day, and the usual dosage of ribiviron,, and start the 48 week count AFTER his VL went to 0, he was on TX for just under 62 wks. the sides this time around were horrable, worse than his first time around,, he had to stop working about 3/4 way through TX, but he finished the TX he had every side there is and it was a very bad time for him, his VL dropped to 0 by week10 this time and he has finished TX about 2 months ago, he still has some fatigue,. but other than that, he is doing great,, if he relapses would he go throught the TX again, even after the horrable time he had with sides??? he says YES without hesitation I know how hard this time around was for him and asked him why would he try again,, his answer,, because I have to keep trying, and I can't give up, I've watched my hubby fight for his life, he is, and always will be my real hero, to watch him struggle through this has been hard for me, but I will never know how hard it is for him. Bonnie . I have not taken tx yet. For one reason is because I have done a hell of alot of research on the tx and side effects, and I refuse to take the tx. Over half of the people who take tx it doesnt help, they get serverly depressed, cant eat, sleep in constant pain lose vision, get arthitis and they get so depressed that some actually try to commit sucide. I dont need all of this.For one It is just me and my daughter and I cant afford to go through all the side effects. So, dont consider yourself a quitter. You are the only person in control of how you live your life. So if you choose to quit tx that is up to you. elizabeth easterday <queenelizabethann1963@...> wrote: I find myself having no choice but to reply to this! I hope by doing so I'm not affending anybody. I have been undergoing these TX since April of this year, I had to restart all over again in Aug. of this year, due to some other complications. I'm on 180 Peg/1200 Riba & alot of other meds, due to other health issues. Not to metion I'm Bipolar, Manic, Phyicotic episodes with severe depression & Anxiety, which I've had most of my life. I'm a 1A Geno, Stage 2 possibly 3 now & probably MS. And beleive me I could go on. I have had & still have every common & rare side affect anyone could ever have from these TX. I'm constantly back & forth to the Hospital & Docs. every side you had I've had & worse. And yes it's unbarable & just about impossible. Every other day I say F___ it! I'm stopping the TX. It's not worth it, But than I have to tell myself it is worth it if it can save my life. See these TX are temporary as the side affects are. And if there just a slight chance that I could get well than I have to do this. And let me tell ya it is pure Hell for me everyday. Since I was diagnosed & started TX I have also reunited with my biological Father, after 30 yrs. Whom also after about 3 or 4 months decided he couldn't deal with it and basically is gone from my life again, I have 2 people dear to me to pass away. I was beside myself still am, I cannot describe the emotional & mental strain this has put on me. And my mother just informed me shes leaving next week to go out of the Country for 3 months, and it's the freakin Holidays of all times! I say this because I'm still here & I'm still on the TX. I can still walk, I can still breath, and I still have somewhat of my sight & mind! I feel that it is very discouraging for others that are on these TX fighting everyday for they're life, to come on here and read the post that I have just read. This is a place for encouragement & support, well at least it is for me. And when I read something like that it is very Depressing & Discouraging! My God I need all the Help, Positivness, Encouragement & Support I can get. And I totally depend on this site for that. Please forgive me if I have affended anyone, that wasn't the purpose of my reply! Thankyou, God be with you & yours, if you ever need to talk I'm always here as others are! Good Luck!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Bonnie, I couldn't have said it better. I am on a 48 week treatment schedule. My sides while I think are minimal, to others might be terrible. I am on week 10. Pegintron once a week and 1000 mg riba (5 pills) per day. I itch, I have the terrible iratating coughing. I have a hard time sleeping and I can't eat that much so I eat less, but more often. I drink lots of water. I have wonderful, supportive, family and friends that won't give up on me, so I find it very hard to give up on myself. There are days that my joints ache and I cough my head off, but I a good pain tolerance and I will keep going. My upper thighs have big red spots on them, but the good thing about it is that I know where not to give myself the next injection. May I say to you and your husband to keep up your faith and strength and bless you both. Bonniy <bonniy@...> wrote: Hi I just had to respond to this too I don't have Hep C, my Hubby does and I have watched him do TX twice, the first time he was on 1 shot a week and riboviron,, we don't even know if he responded or not, his doc tested him at 12 wks and his VL went from 190,000 to 157, the doc said thats great, and did not do another VL till end of treatment, which was 48 wks,, the VL at the end of TX was around 370,00. we then were recomended to a top HepC specialist, top 5 in nation, and he is the one that said we don't know if you relapsed or just didnt clear,, lets try again.. His first TX wasn't that bad for sides,, he had them but was able to continue working through treatment,, this time around the doc wanted to put him on an FDA unapproved dosage of infergen once a day,, not a week, but one shot a day, and the usual dosage of ribiviron,, and start the 48 week count AFTER his VL went to 0, he was on TX for just under 62 wks. the sides this time around were horrable, worse than his first time around,, he had to stop working about 3/4 way through TX, but he finished the TX he had every side there is and it was a very bad time for him, his VL dropped to 0 by week10 this time and he has finished TX about 2 months ago, he still has some fatigue,. but other than that, he is doing great,, if he relapses would he go throught the TX again, even after the horrable time he had with sides??? he says YES without hesitation I know how hard this time around was for him and asked him why would he try again,, his answer,, because I have to keep trying, and I can't give up, I've watched my hubby fight for his life, he is, and always will be my real hero, to watch him struggle through this has been hard for me, but I will never know how hard it is for him. Bonnie . I have not taken tx yet. For one reason is because I have done a hell of alot of research on the tx and side effects, and I refuse to take the tx. Over half of the people who take tx it doesnt help, they get serverly depressed, cant eat, sleep in constant pain lose vision, get arthitis and they get so depressed that some actually try to commit sucide. I dont need all of this.For one It is just me and my daughter and I cant afford to go through all the side effects. So, dont consider yourself a quitter. You are the only person in control of how you live your life. So if you choose to quit tx that is up to you. elizabeth easterday <queenelizabethann1963@...> wrote: I find myself having no choice but to reply to this! I hope by doing so I'm not affending anybody. I have been undergoing these TX since April of this year, I had to restart all over again in Aug. of this year, due to some other complications. I'm on 180 Peg/1200 Riba & alot of other meds, due to other health issues. Not to metion I'm Bipolar, Manic, Phyicotic episodes with severe depression & Anxiety, which I've had most of my life. I'm a 1A Geno, Stage 2 possibly 3 now & probably MS. And beleive me I could go on. I have had & still have every common & rare side affect anyone could ever have from these TX. I'm constantly back & forth to the Hospital & Docs. every side you had I've had & worse. And yes it's unbarable & just about impossible. Every other day I say F___ it! I'm stopping the TX. It's not worth it, But than I have to tell myself it is worth it if it can save my life. See these TX are temporary as the side affects are. And if there just a slight chance that I could get well than I have to do this. And let me tell ya it is pure Hell for me everyday. Since I was diagnosed & started TX I have also reunited with my biological Father, after 30 yrs. Whom also after about 3 or 4 months decided he couldn't deal with it and basically is gone from my life again, I have 2 people dear to me to pass away. I was beside myself still am, I cannot describe the emotional & mental strain this has put on me. And my mother just informed me shes leaving next week to go out of the Country for 3 months, and it's the freakin Holidays of all times! I say this because I'm still here & I'm still on the TX. I can still walk, I can still breath, and I still have somewhat of my sight & mind! I feel that it is very discouraging for others that are on these TX fighting everyday for they're life, to come on here and read the post that I have just read. This is a place for encouragement & support, well at least it is for me. And when I read something like that it is very Depressing & Discouraging! My God I need all the Help, Positivness, Encouragement & Support I can get. And I totally depend on this site for that. Please forgive me if I have affended anyone, that wasn't the purpose of my reply! Thankyou, God be with you & yours, if you ever need to talk I'm always here as others are! Good Luck!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Bonnie, I couldn't have said it better. I am on a 48 week treatment schedule. My sides while I think are minimal, to others might be terrible. I am on week 10. Pegintron once a week and 1000 mg riba (5 pills) per day. I itch, I have the terrible iratating coughing. I have a hard time sleeping and I can't eat that much so I eat less, but more often. I drink lots of water. I have wonderful, supportive, family and friends that won't give up on me, so I find it very hard to give up on myself. There are days that my joints ache and I cough my head off, but I a good pain tolerance and I will keep going. My upper thighs have big red spots on them, but the good thing about it is that I know where not to give myself the next injection. May I say to you and your husband to keep up your faith and strength and bless you both. Bonniy <bonniy@...> wrote: Hi I just had to respond to this too I don't have Hep C, my Hubby does and I have watched him do TX twice, the first time he was on 1 shot a week and riboviron,, we don't even know if he responded or not, his doc tested him at 12 wks and his VL went from 190,000 to 157, the doc said thats great, and did not do another VL till end of treatment, which was 48 wks,, the VL at the end of TX was around 370,00. we then were recomended to a top HepC specialist, top 5 in nation, and he is the one that said we don't know if you relapsed or just didnt clear,, lets try again.. His first TX wasn't that bad for sides,, he had them but was able to continue working through treatment,, this time around the doc wanted to put him on an FDA unapproved dosage of infergen once a day,, not a week, but one shot a day, and the usual dosage of ribiviron,, and start the 48 week count AFTER his VL went to 0, he was on TX for just under 62 wks. the sides this time around were horrable, worse than his first time around,, he had to stop working about 3/4 way through TX, but he finished the TX he had every side there is and it was a very bad time for him, his VL dropped to 0 by week10 this time and he has finished TX about 2 months ago, he still has some fatigue,. but other than that, he is doing great,, if he relapses would he go throught the TX again, even after the horrable time he had with sides??? he says YES without hesitation I know how hard this time around was for him and asked him why would he try again,, his answer,, because I have to keep trying, and I can't give up, I've watched my hubby fight for his life, he is, and always will be my real hero, to watch him struggle through this has been hard for me, but I will never know how hard it is for him. Bonnie . I have not taken tx yet. For one reason is because I have done a hell of alot of research on the tx and side effects, and I refuse to take the tx. Over half of the people who take tx it doesnt help, they get serverly depressed, cant eat, sleep in constant pain lose vision, get arthitis and they get so depressed that some actually try to commit sucide. I dont need all of this.For one It is just me and my daughter and I cant afford to go through all the side effects. So, dont consider yourself a quitter. You are the only person in control of how you live your life. So if you choose to quit tx that is up to you. elizabeth easterday <queenelizabethann1963@...> wrote: I find myself having no choice but to reply to this! I hope by doing so I'm not affending anybody. I have been undergoing these TX since April of this year, I had to restart all over again in Aug. of this year, due to some other complications. I'm on 180 Peg/1200 Riba & alot of other meds, due to other health issues. Not to metion I'm Bipolar, Manic, Phyicotic episodes with severe depression & Anxiety, which I've had most of my life. I'm a 1A Geno, Stage 2 possibly 3 now & probably MS. And beleive me I could go on. I have had & still have every common & rare side affect anyone could ever have from these TX. I'm constantly back & forth to the Hospital & Docs. every side you had I've had & worse. And yes it's unbarable & just about impossible. Every other day I say F___ it! I'm stopping the TX. It's not worth it, But than I have to tell myself it is worth it if it can save my life. See these TX are temporary as the side affects are. And if there just a slight chance that I could get well than I have to do this. And let me tell ya it is pure Hell for me everyday. Since I was diagnosed & started TX I have also reunited with my biological Father, after 30 yrs. Whom also after about 3 or 4 months decided he couldn't deal with it and basically is gone from my life again, I have 2 people dear to me to pass away. I was beside myself still am, I cannot describe the emotional & mental strain this has put on me. And my mother just informed me shes leaving next week to go out of the Country for 3 months, and it's the freakin Holidays of all times! I say this because I'm still here & I'm still on the TX. I can still walk, I can still breath, and I still have somewhat of my sight & mind! I feel that it is very discouraging for others that are on these TX fighting everyday for they're life, to come on here and read the post that I have just read. This is a place for encouragement & support, well at least it is for me. And when I read something like that it is very Depressing & Discouraging! My God I need all the Help, Positivness, Encouragement & Support I can get. And I totally depend on this site for that. Please forgive me if I have affended anyone, that wasn't the purpose of my reply! Thankyou, God be with you & yours, if you ever need to talk I'm always here as others are! Good Luck!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 I haven't posted to this site regularly, but thought someone out > there might be interested...who knows. Two weeks ago, I quit taking > all the drugs...ALL. Yep, no more, I quit. I am a quitter, after 5 > months. Okay, now that is out of the way. > > In addition to the normal stuff, like feeling so exhausted that > walking up a flight of stairs was not an option in my life....I was > experiencing crushing chest pain, for over a week,pains shooting down > my arms, joint pains that remained relentless over the course of the > five months I took the treatment, my foggy mind which couldn't make a > decision over anything, my incredibly unstable emotional state.... > AND then there were weeks diarreah where I had to race to the toilet > every twenty to thirty minutes, constant headaches, my hair was > falling out by the handful, my fingernails started peeling off in > layers like paper, my skin so dry it drove me crazy with itching, > constant infections due to low white cell count, my eyes can't focus - > I did get tested and there is no retinal detachment so the PA said > not to worry...Yeah, right! Not to worry - I suppose she can see > well enough to read, or make out patterns, or see dirt on the > dishes? I used to have excellent vision. Not any more. Will it > return? I don't know... > > Complain, complain, complain. After four months, my virus was > undetectable - it will probably return, it does in most people... but > I will never undergo this treatment again. I cannot endure the side > effects...even drinking two gallons of water a day and an organic > diet was not enough alleviate the symptoms for me... malo suerte? > > I was frightened. As is typically the case, it takes a few weeks to > get in to see the PA who is in charge of my treatment - she only > works two days a week. If I weren't so desperate for treatment many > months ago, I would have waited for someone with whom I felt trust > and confidence, but that wasn't the case. So, I took matters into my > own hands, made my own judgement as to what to do, and I quit... > > After two weeks off the drugs, I am no longer scared, and my symptoms > have abated. I am able to think more clearly, up and about like a > normal person, with more energy than I have known over the course of > this last year... My vision has not returned to normal, in fact, > nothing is back to my norm, but it is better - and I have a sense of > renewal about me.... > > I am going to see my PA today, FINALLY she had an opn appointment, > but all I want is my blood work drawn.... > > Good luck to all of you still in treatment. I hope yhou have a lot > of love and support as you endure this mess.... the drugs are a > bugger! > > Fondly > > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 I haven't posted to this site regularly, but thought someone out > there might be interested...who knows. Two weeks ago, I quit taking > all the drugs...ALL. Yep, no more, I quit. I am a quitter, after 5 > months. Okay, now that is out of the way. > > In addition to the normal stuff, like feeling so exhausted that > walking up a flight of stairs was not an option in my life....I was > experiencing crushing chest pain, for over a week,pains shooting down > my arms, joint pains that remained relentless over the course of the > five months I took the treatment, my foggy mind which couldn't make a > decision over anything, my incredibly unstable emotional state.... > AND then there were weeks diarreah where I had to race to the toilet > every twenty to thirty minutes, constant headaches, my hair was > falling out by the handful, my fingernails started peeling off in > layers like paper, my skin so dry it drove me crazy with itching, > constant infections due to low white cell count, my eyes can't focus - > I did get tested and there is no retinal detachment so the PA said > not to worry...Yeah, right! Not to worry - I suppose she can see > well enough to read, or make out patterns, or see dirt on the > dishes? I used to have excellent vision. Not any more. Will it > return? I don't know... > > Complain, complain, complain. After four months, my virus was > undetectable - it will probably return, it does in most people... but > I will never undergo this treatment again. I cannot endure the side > effects...even drinking two gallons of water a day and an organic > diet was not enough alleviate the symptoms for me... malo suerte? > > I was frightened. As is typically the case, it takes a few weeks to > get in to see the PA who is in charge of my treatment - she only > works two days a week. If I weren't so desperate for treatment many > months ago, I would have waited for someone with whom I felt trust > and confidence, but that wasn't the case. So, I took matters into my > own hands, made my own judgement as to what to do, and I quit... > > After two weeks off the drugs, I am no longer scared, and my symptoms > have abated. I am able to think more clearly, up and about like a > normal person, with more energy than I have known over the course of > this last year... My vision has not returned to normal, in fact, > nothing is back to my norm, but it is better - and I have a sense of > renewal about me.... > > I am going to see my PA today, FINALLY she had an opn appointment, > but all I want is my blood work drawn.... > > Good luck to all of you still in treatment. I hope yhou have a lot > of love and support as you endure this mess.... the drugs are a > bugger! > > Fondly > > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 , I am truly disappointed that you feel that you must apologize to those who may have been offended by your " depressing " post...but I thought that is what a support group is for...and if I can't get on here when I'm depressed or fed up with the treatment or the HepC or anything that relates to it...then I feel this is not a support group...but more of a Cheerleading Group which is not what I need. Reality sucks and so does the treatment...it ain't all a bed of roses having the HepC or the treatment and none of us should have to refrain from complaining about it. That is how many of us deal with it and why we depend on the support from these groups. I also cannot believe that someone has the nerve to even suggest that since they can put up with their side effects that you should be able to...we have plenty of doctor's that have a mindset like that... " you should be able to handle it because someone else handles it " ...how sad. Sorry for the " negative " post...wait, no I'm not. > > > Each and every one of us is different in some way - yet the same in > that we all either have HCV or have a loved one with HCV. I > understand some of you were disappointed in my last blog in which I > stated I had quit treatment, and my reasons why I made that choice. > It is apparent that some of you were displeased because I was not > full of support, but depressing and discouraging. I was using this > forum to express my feelings, sometimes they aren't all peachy. It > seems I misused this forum. Please accept my apology. My dog will > listen....pets are great that way, non-judgemental and loving, no > matter what :-)) > > I wish all of you continued success in your perseverence and > treatment... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 , I am truly disappointed that you feel that you must apologize to those who may have been offended by your " depressing " post...but I thought that is what a support group is for...and if I can't get on here when I'm depressed or fed up with the treatment or the HepC or anything that relates to it...then I feel this is not a support group...but more of a Cheerleading Group which is not what I need. Reality sucks and so does the treatment...it ain't all a bed of roses having the HepC or the treatment and none of us should have to refrain from complaining about it. That is how many of us deal with it and why we depend on the support from these groups. I also cannot believe that someone has the nerve to even suggest that since they can put up with their side effects that you should be able to...we have plenty of doctor's that have a mindset like that... " you should be able to handle it because someone else handles it " ...how sad. Sorry for the " negative " post...wait, no I'm not. > > > Each and every one of us is different in some way - yet the same in > that we all either have HCV or have a loved one with HCV. I > understand some of you were disappointed in my last blog in which I > stated I had quit treatment, and my reasons why I made that choice. > It is apparent that some of you were displeased because I was not > full of support, but depressing and discouraging. I was using this > forum to express my feelings, sometimes they aren't all peachy. It > seems I misused this forum. Please accept my apology. My dog will > listen....pets are great that way, non-judgemental and loving, no > matter what :-)) > > I wish all of you continued success in your perseverence and > treatment... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2007 Report Share Posted November 29, 2007 Thanks...I appreciate your kind words. I hope you are coping well with your treatment, and it sounds as if you have a good attitude. I am now trying to get my thyroid up and operating again - side effects of treatment being what they are... But, I am feeling much better off treatment - I made it through 5 months of treament and am still virus free - l hope it lasts and doesn't come back. I made my choice to discontinue for the last month based on effects and circumstances. I live alone on a remote island in Panama (I do have a worker on my land to run errands and the like) and access to medical care is difficult - flying to the US once a month to see my PA was not so bad, but when I cleared at three months and then found myself having so many problems with the drugs, well... it is what it is, and I stopped. Thanks a bunch for your letter - I really do appreciate it bulldoggergal <bulldoggergal@...> wrote: , I am truly disappointed that you feel that you must apologize to those who may have been offended by your " depressing " post...but I thought that is what a support group is for...and if I can't get on here when I'm depressed or fed up with the treatment or the HepC or anything that relates to it...then I feel this is not a support group...but more of a Cheerleading Group which is not what I need. Reality sucks and so does the treatment...it ain't all a bed of roses having the HepC or the treatment and none of us should have to refrain from complaining about it. That is how many of us deal with it and why we depend on the support from these groups. I also cannot believe that someone has the nerve to even suggest that since they can put up with their side effects that you should be able to...we have plenty of doctor's that have a mindset like that... " you should be able to handle it because someone else handles it " ...how sad. Sorry for the " negative " post...wait, no I'm not. > > > Each and every one of us is different in some way - yet the same in > that we all either have HCV or have a loved one with HCV. I > understand some of you were disappointed in my last blog in which I > stated I had quit treatment, and my reasons why I made that choice. > It is apparent that some of you were displeased because I was not > full of support, but depressing and discouraging. I was using this > forum to express my feelings, sometimes they aren't all peachy. It > seems I misused this forum. Please accept my apology. My dog will > listen....pets are great that way, non-judgemental and loving, no > matter what :-)) > > I wish all of you continued success in your perseverence and > treatment... > > > Spammers and security have forced me to abandon my first email account, michellerides@... so I am asking everyone to use my new gmail account in the future. amwmoore@... Thanks so much Anne Welty --------------------------------- Be a better sports nut! Let your teams follow you with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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